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Repairing the long-term damage from Accutane

 
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(@melloman)

Posted : 03/27/2015 7:11 pm

@macleod, the FDA has always been corrupt. In the 20th century, they approved medicine that was much worse than accutane. It was for HIV or AIDS, and it literally killed people. They refused to approve any of the foreign medicine that actually helped people survive years after their doctors told them they would die. I wonder why that is? hmmm $

I just can't quite put my finger on it...

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(@mfuco821)

Posted : 03/28/2015 11:43 am

First of all I'd like to say that ive been dealing with the sides for awhile now and appreciate all that everyone on here does to try and find solutions. I took 3 courses of tane when i was 14, 16, and 20. I'm now 30 and look 16, but feel like an old man. This shit is strong and it messed me up real good.. When i first took it 15 years ago i remember a lot of side effects were warned but no emphasis on anything permanent or mentioning the fact that it was designed as a chemo drug. While on it, life was great, some of the clearest skin in high school, much alone a freshman. It came back a little over a year later and i didnt start noticing some of the sides until months after the second round while in gym class. I was always athletic and good at sports and i could tell my eyesight felt a little different while playing football and noticed i just wasn't growing or getting facial hair, etc all the normal things that puberty brings.

Well after high school it started coming back a little. I started trying other cleansers which broke me out like crazy so i ran back to what i knew worked so well and was prescribed it no questions asked. I've been paying for it ever since. I stopped it a month before my 21st birthday, went on a drinking binge with my friends and of course it came back about 6 months later. I noticed the sides a lot now, my skin was thinned and easily cut when working on cars (im a mechanic), it severely dried out my entire body, every joint cracked, healing was way slower, etc. I told my parents and doctor about some of these concerns and they just told me to wait it out your probably a late bloomer yada yada yada... I distanced myself from my goals in life, found dans bp and turned to excessively smoking pot around that time due to lack of self esteem and kind of just chilled with the non judging stoner group to try and wait things out in hopes my skin would clear again. Every year since, my conditions have just worsened. I have extremely sensitive skin to many foods and products including moisturizers. I am skinny as hell, had developed allergies, chronic fatigue, rashes, hives, fogginess, itchy skin and all kinds of other sides that never affected me before. I just felt very unhealthy. I have what I'm guessing is eczema (still undiagnosed) and my skin would progressively get worse and more widespread year by year. But maybe the most depressing of all, sexual dysfunction.

I was depressed and stopped going to doctors because i simply didnt trust them anymore and they never took me seriously. It wasn't until i was about 26 that i really started digging the web for information. I was pretty bummed with what i found but that was around the time telomere activation and all that started so it seemed like there was hope with all the new exciting research. I've tried and wasted a lot of money on supplements and diets that never gave me the results i hoped. I finally accepted the facts and tried to live as normal of a life as i could. The 2 relationships I've had since then ended the same way. Me being self conscious and pushing people away from the truth i was hiding. My mother also has taken a few rounds in the future and became very depressed and even attempted suicide on a few occasions. After all this i still try to maintain high hopes, even though its tough knowing that you were supposed to be more than what this drugged robbed you of. I just recently went to the doc for the first time in years, did some blood work and i have slightly high cholesterol and low iron. He told me to eat healthy, exercise and take iron supplements :( Truth is doctors and derms really dont know squat about this drug and its serious life long sides still to this day.

Thats why it is up to us, the ones who deal with this stuff everyday to raise awareness about the subject. Last i read over 20 million people had taken it and the only cases that won in trials were for ibd related illnesses. If we could bring together even a small amount of those people for a collective push I am sure we could start something. Roche has to be held accountable in some degree for not properly informing that there was a chance they might be ruining peoples entire lives with permanent effects and not to take this stuff unless you are absolutely out of any other options and out of puberty. If we could organize this thread somehow to list the known strategies that have actually yielded positive and negative results that would be awesome for anyone who hasn't already sifted through the hundred of pages here. keep up the faith people lets take strides to be heard and find some relief!

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299
(@macleod)

Posted : 03/28/2015 2:04 pm

@mello

and they are still doing it too . Remember that whole H1N1 craze. Countries were pressured by the WHO to stockpile Tamiflu (Roche always has the "cure"). Good season for them too. They netted 2bn that year alone. After that hype passed, and the bird flu pandemic went away on its own (like most flu strains), one would tend to think that we would have no need for the big powerful guns (Tamiflu) anymore, right? Nope. The FDA and medicine market actually gave it a green light to sell to the general public.

We are talking doctors in U.S. suburbs (as 'developed world' as it gets on earth) to this very date 2015, prescribing it to anyone, from kids up to the elderly, who come in with standard flu like symptoms..............Why? Talk about Overkill. Bringing nukes to a flu fight. All I can think of is there must be some financial incentive or just plain curiosity for research purposes. Or maybe even both. What a win-win scenario. Both the government and Roche get a hell of an ROI (Return on Investment) Govt. makes their money back. Roche keeps their money and now gets research results! ROI masters here. You know who gets the worst ROI in this scenario? The individual patient. Little does he/she know they are walking into a casino (doctors office) and playing their health with really good odds (95%) But odds nonetheless. If she wins, then she wins, everyone wins. If she loses (5%), they still win .

Wow. As I am writing this, I actually stumbled upon an article clarifying (more articulately than I) what I was trying to convey. Lol. It's actually about Tamiflu! Sweet. I'm gonna read this before I take a nap.

http://www.newsweek.com/2014/11/21/medical-science-has-data-problem-284066.html

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76
(@yetanotheraccutanevictim)

Posted : 03/28/2015 2:55 pm

I am 20 years old. Took accutane 2 years ago (10,800 mg over 5 month period)

My total testosterone is 225 (normal range 280-800)

My free testosterone is 23.1 (normal range 46-224)

I eat loads of zinc (from oysters) and tons of saturated fat and cholesterol. I shouldn't be having this problem.

I will be getting retested soon to confirm that it is chronically that low.

*Does anyone know if this could be related to my EXTREME muscle pain? I'm also losing hair all over my body. It's extremely thin.

*What would you guys do if you were in my situation? Should I get any other hormones checked or anything like that?

Appreciate any help or advice

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(@accutazed)

Posted : 03/28/2015 7:57 pm

On 3/29/2015 at 1:55 AM, yetanotheraccutanevictim said:

I am 20 years old. Took accutane 2 years ago (10,800 mg over 5 month period)

My total testosterone is 225 (normal range 280-800)

My free testosterone is 23.1 (normal range 46-224)

I eat loads of zinc (from oysters) and tons of saturated fat and cholesterol. I shouldn't be having this problem.

I will be getting retested soon to confirm that it is chronically that low.

*Does anyone know if this could be related to my EXTREME muscle pain? I'm also losing hair all over my body. It's extremely thin.

*What would you guys do if you were in my situation? Should I get any other hormones checked or anything like that?

Appreciate any help or advice

I have a similar situation as you man, my testosterone was in the low end of the acceptable range, but my DHT was stupid low.

Here is what has helped me (almost all of my sides are completely gone).

1st : (most important) start doing No Fap (in about 3 weeks you will get your libido back (sometimes earlier) and start feeling manly as fuck....energy...happiness...confidence..etc) Plus your testosterone significantly raises.

2nd : Start Working out once you get into NoFap I was able to start lifting again, without the insane pain. Heavy weight and short reps are great for test/DHT increase.

3rd : Once you start working out regularly or even before eat FAT tons of FAT!!!! I have been beefing up my smoothies with Coconut Oil and supplementing with Olive Oil as well just to up my fat intake. TBH I think the liver flush giving people benefits is almost exclusively from the immense olive oil intake the night before (and why they only last briefly). Eating lots of Fat has helped my sides a ton. Eating Fats with exercise raises testosterone as well.

4th : Take Zinc Supplements! (you got that down) and maybe vitamin D. I think pure sunlight is much more effective though. At least it was for me. I live in Canada, so it was really noticeable every time I visited family in Phoenix with how my sides reacted to the sun. One piece of advice..its really hard to do no fap while taking zinc supplements though You get so dam horny >< I would advice chilling on the zinc until a good nofap streak gets going. (2 weeks + after the urges go down).

5th : I tried to limit my hunchback computer gaming habbit. Lots of studies associate posture with testosterone > < .

last time I posted I was in a manic phase thinking that antidepressants really helped me. in 3 weeks i almost completely forgot this thread existed and the post i made lol. I failed to notice that this was accompanied by a 3 week NoFap streak (when I posted) and all the life changing habits it brought (working out, less PC, eating fats, zinc, better sleep). No Fap while raising testosterone also betters your other living habits that increase testosterone...it really was the best thing I ever did. Check out [removed] The posts obviously don't have the same context as here, but a lot crosses over.

My DHT went from about 19 to 88 in 2 month's time. Can't remember my testosterone when i got it tested though.

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359
(@dubya_b)

Posted : 03/28/2015 8:51 pm

That Newsweek article was very informative indeed Macleod.

Hoffman La-Roche, Roche Pharmaceuticals, whatever you want to call them, are a cancer on society.

Some more dirty history about everyone's favorite cross-over chemotherapy drug, Accutane:

http://dash.harvard.edu/bitstream/handle/1/8963867/Green.html?sequence=2

 

Recently learned they also fought like hell to extend their stranglehold over PCR technology (gene amplification techniques), which might have seriously held the biotech field back for years, if Roche hadn't lost many of the patents they were wrongfully claiming.

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299
(@macleod)

Posted : 03/29/2015 5:47 am

*Does anyone know if this could be related to my EXTREME muscle pain? I'm also losing hair all over my body. It's extremely thin.

*What would you guys do if you were in my situation? Should I get any other hormones checked or anything like that?

Appreciate any help or advice

 

I went through a hair shedding phase as well for a little bit several months after cessation of treatment. As far as my personal muscular experience goes post accutane, is a lack of lactic acid (I don't feel that burn feeling anymore in my thighs when I run or in my arms when I lift) and an increase in the severity and time of my DOMS (delayed onset muscle soreness) Now I usually get my Doms 48-72 hours after a workout (which is a little abnormal). And the doms pain is different than it was pre-accutane. It now feels like bruising and complete hell rather than that kind of 'good hurt feeling' after a good gym workout.

Yea, if you have insurance. Get all your health stats checked out by professionals. For physical pain my advice would be pretty standard. Nutrition properly and take a few supps daily (don't overdo it, stay within the RDA, change isn't gonna happen overnight) Also, get your hourly stretching and exercise in. Massage. Hot tub. Things like that...

@Dubya

Wow, what a read. At least the FDA fought back. And one of the scientists that co-researched it first. Anyone know the names of the people who were in charge of Roche at the time?

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(@dubya_b)

Posted : 03/29/2015 12:03 pm

Anyone know the names of the people who were in charge of Roche at the time?

TRYTOCELEBRATE.pdf

 

This was from when the Big Bad FDA still had the balls to pick on Roche.

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(@yetanotheraccutanevictim)

Posted : 03/29/2015 1:25 pm

 

My total testosterone is 225 (normal range 280-800)

My free testosterone is 23.1 (normal range 46-224)

Appreciate any help or advice

I have a similar situation as you man, my testosterone was in the low end of the acceptable range, but my DHT was stupid low.

Thank you so much for posting Accutazed! I actually have a really strong libido, which is weird. I'm not sure if it's possible to have incredibly low testosterone but maintain a good libido.

I should note that I had my testosterone checked at around 4pm last time, fasted. Not sure if my testosterone numbers are super abnormal for that time of the day. Tomorrow I'm going to get it checked very early in the morning. Should have the results in about 3-4 days.

I've been eating a cyclical ketogenic diet for the past 13 months. Not had a single bite of a processed food. No dairy, grains, or anything like that. Loads of organ meats, bone broths, vegetables... The only iffy food I consume is egg yolks. I've eliminated them for a few months and my accutane symptoms didn't improve so they're here to stay even though they make me produce a bit more mucus in my mouth. Everything is organic, pastured, grass-fed etc. All of my food is from local farmers. My diet is probably 70-85% fats, 10-15% protein, and 5-15% sugar depending on if I decide to indulge in a couple of servings of berries one day.

I also have spent $3000 on supplements. Nothing I do gives me any improvement. And I've probably spent over $5-10K on testing (can't believe I never really got detailed hormonal tests. I mainly just tested adrenal function and thyroid. I'm going to pursue getting my other hormones tested like DHEA, DHT, free test, etc

@macleod

My muscle pain actually feels like my muscles are drenched in lactic acid 24/7 even though I'm unable to workout. If I flex any muscle anywhere, I get extreme pain. They are all knotted up, tight, and fibrous as well. My abdominal muscles compress my stomach causing unbearable, chronic acid reflux. My teeth are see-through from all the erosion. I think my health problems are worst than other accutane victims. I don't think that I can live like this much longer.

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(@macleod)

Posted : 03/29/2015 5:58 pm

@yet

shit man. yours does sound a lot worse. i had that muscle flex issue too, if i flex too hard it feels like it will pull or tear. I spent countless hours rebuilding them and rolling them out with foam rollers. my tendons on the other hand, those are fucked. Well, it sounds like you've got the nutrition, supps, and water intake taken care of. I really don't know. You've gotta try to rehabilitate your muscle fibers man, they are probably deteriorated down to that smallest cellular level. You've gotta talk to an expert...you could try some somatropin or stem cells, but that's obv gonna be hella expensive. i personally cant do the growth hormones (somatropin) because of the Idiopathic Intracranial hypertension i developed post tane. I'd love to be able to try some stem cell therapy in China. They do quality work there if you have the money. A bit costly, and a gamble, but what's to lose?

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128
(@melloman)

Posted : 03/29/2015 11:57 pm

@macleod

Thanks for sharing. Reminds me a lot of what they're doing to kids with asthma in North Carolina.

It won't lemme paste links! Anyone know how to paste links on a tablet?

@Dubya

Big read! Did you read that whole thing? I saved it so I can read it in my spare time.

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(@accutazed)

Posted : 03/30/2015 12:59 am

Kind of a random side bar but I found this really interesting study.

A while ago I was ranting and raving about how a night of heavy drinking really helped with my sides. Look at this study LOL!

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3367262/

"Taken together, these studies indicate that chronic alcohol consumption is associated with decreased retinoid content in all of the main cell types of the liver, though quantitatively this decrease is largest in HSCs."

apparently chronic alcohol use can lower retinoid storage in the liver! lolol! Who is down for drinking their problems away?

 

Edit: Just read this entire study it goes into great lengths of how vitamin a is metablized and stored in cells. I would recommend all the theory crafters to take a look in here ;)

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(@dubya_b)

Posted : 03/30/2015 10:55 am

@Melloman- If you're talking about the paper from the Harvard website, I didn't get around to reading the whole thing. Just browsed through it and found some new information.

It basically boils down to Roche prioritizing financial gains over revealing that Accutane causes birth defects. If they were never forced to share this information with consumers, they likely wouldn't have.

The same thing happened when the US Congress questioned Rohe executives as to why observations of depressive behavior in rats treated with Accutane were not divulged to the FDA.

This is what you get when you let a pharmaceutical company perform its own safety studies.

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(@yetanotheraccutanevictim)

Posted : 03/30/2015 12:07 pm

Is it worthwhile to go to the Mayo Clinic or some sort of diagnostic center? Not sure if I should continue testing myself via home through labs like Genova and Doctor's Data or if I should be under a doctor's care.

Does anyone have a giant list of things we should all test for (heavy metals, infections, hormones, etc..)

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(@artaemis)

Posted : 03/30/2015 2:53 pm

I'm trying to find someone who will supervise a long fast of 30-40 days. I'm afraid of going longer than 6-10 days. I wish I could find some way to boost my energy levels temporarily, I'm having trouble staying up for even short periods of time. Drinking water and eating (organic, gluten free) is exhausting for me, but I keep at it with no real benefit. Glutamine, short fasts and changing bedrooms (allergies?) have reduced my stomach/intestine pain, my nausea, dryness and shortness of breath to about 50-65%. Still dead tired though and my mind is in a fog, I trip over my words easily, but at least its progress from where my physical condition became first severe a few months ago. My symptoms are now bearable, which is a huge relief after suffering for month and months.

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299
(@macleod)

Posted : 03/30/2015 3:55 pm

On 3/30/2015 at 1:03 AM, Dubya_B said:
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Anyone know the names of the people who were in charge of Roche at the time?

[Edited image out] TRYTOCELEBRATE.pdf

This was from when the Big Bad FDA still had the balls to pick on Roche.

Yea those Nutley, NJ guys are just proxies. I want the head of the snake. The Swiss execs.

On 3/30/2015 at 1:59 PM, Accutazed said:

Kind of a random side bar but I found this really interesting study.

A while ago I was ranting and raving about how a night of heavy drinking really helped with my sides. Look at this study LOL!

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3367262/

"Taken together, these studies indicate that chronic alcohol consumption is associated with decreased retinoid content in all of the main cell types of the liver, though quantitatively this decrease is largest in HSCs."

apparently chronic alcohol use can lower retinoid storage in the liver! lolol! Who is down for drinking their problems away?

Edit: Just read this entire study it goes into great lengths of how vitamin a is metablized and stored in cells. I would recommend all the theory crafters to take a look in here ;)

That is so crazy!!! This was one of my theories! Although I always hypothesized that the ethanol I consumed was relieving pressure in my head. But I did in fact notice that when I consumed, the next day of the "hangover" process, when ethanol turns into acetaldehyde, that I could feel the trees and the sunlight outside more, my anxiety went away in public places, and my sex drive and erections went back to 100%.

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(@dubya_b)

Posted : 03/30/2015 11:49 pm

There were a few names from the Basel HQ in that document, but I think they were some generic rum-dums. Think of Roche as more of a hydra than a snake.

Just wanted to chime-in that I've had the same experience several times after a long night of drinking. Hungover, but the unit was in its pre-Accutane morning-mode again and I was in a good mood despite feeling dehydrated and headachy. This is really beating a dead horse, but many many of the PFS guys have said the same thing. No doubt in my mind their problems are related to ours.

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(@artaemis)

Posted : 04/01/2015 9:18 am

Edit: Nevermind, I got it

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(@timati2340)

Posted : 04/02/2015 11:09 am

Hey guys I join the crew. I'm 18 1 year post accutane. Went from an athlete to someone who can't move wothout pain. Eye problems/my body and mind just feels tired and changed . Chronic tendonitis. First operation without injury. Acne back /dry skin that won't heal without scars + libido loss. Well fuck accutane and those who prescribe it.1 and a half year on 20 mg for first 6 months than rest of time on 30mg a day. Biggest regret of my life.

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(@heinstar)

Posted : 04/03/2015 8:36 am

This is my experience on Accutane.
 
Prefix: I actually had my cystic acne under control in our old flat. But after our landlord went bankrupt, the bank took over our house and we were forced to move out in 3 weeks on October 2014. While moving out, my acne started to get out of control and it became so severe that I decided to see a dermatologist because I was fed up with getting bullied at work because of my severe acne. And I had to keep working no matter what because I was getting income support by Centrelink. When the dermatologist saw my face, he said "I'll fix you up" and immediately decided to put me on Accutane for 12 months.
 
I blindly trusted my dermatologist and began my Accutane course on November 2014, I was only on 20mg for five days but unfortunately, it was enough to mess up my brain. These are the side effects I've experienced:

Day 1

  • Extreme irritability and uncontrollable anger. I snapped and yelled at my mom for no reason and I couldn™t control my anger.
  • Migraine and nausea after drinking coffee few hours after taking Accutane.

Day 2

  • Significantly worsened memory (all day), I couldn™t even remember the 4 digit number that I always use at work.
  • Severe depression (all day). I started crying in middle of the day for no reason.
  • Extreme fatigue (all day) - Exercising was exhausting and I could only run half as much on a treadmill while I was on roaccutane.
  • Feeling of unwellness like I was dying inside.

Day 3, 4 and 5

  • Same as day 2

I eventually quit on Day 5 due to not been able to deal with the above side effects.

It's been over 3 months since I've stopped taking Accutane and I've noticed a few things different about myself:

  • I used to get endorphin highs from exercising but I don™t experience that anymore.
  • I used to love exercising, but I don™t feel the urge to exercise as often anymore.
  • I've become apathetic and I don't experience as much emotion anymore to anything. For example, I can't enjoy music like I used anymore and I don't feel the same emotional response I used to get from my favorite music.
  • I've become a lot more apathetic, impersonal and prone to depression and anxiety.
  • Coffee doesn™t stimulate me as well it used to. Coffee doesn™t provide same motivation/drive, concentration, and energy boost that it used to give me.
  • Both my toenails has permanently stained in yellow. (in just five days, and it was much more stained before I took the photo.)
  • After taking Accutane, I lost all motivation to study this year and the lack of motivation persisted even after I stopped taking Accutane and I eventually dropped out of college. Whereas last year prior to taking Accutane, even though I was in much more stress, I persisted and got through my course.

After stopping Accutane, I eventually realised that I could put my severe acne in permanent remission by drinking juiced vegetables and taking zinc supplements (probably related to the

I have). After juicing and taking zinc supplements, I now no longer get any breakouts and I don't even have to use benzoyl peroxide anymore. I can even touch my face with my dirty hands as much as I like and I still don't get breakouts! I wish my dermatologist had mentioned these alternative options to me before jumping into Accutane. But I understand that their priory is to push Antibiotics or Accutane into hopeless/unknowledgable acne sufferer's throats so that they can get money in their pockets. He said to me so confidently that nothing is going to cure my acne other than long-term antibiotics or Accutane but he couldn't be more wrong.

My advise to those who's considering going on Accutane is to please think twice(even thrice) before deciding to go on Accutane, especially if you have a pre-existing undiagnosed mental illness like I do. My mental illness is now significantly worse after I™ve been on Accutane. I was already battling with a mild mental illness before but going on Accutane has tipped my mental illness over the edge so I definitely have to get therapy now. I wish I could go back in time and never had taken Accutane. :(

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(@dubya_b)

Posted : 04/03/2015 9:18 am

What type of mental illness did you have before taking Accutane?

I had every reason to be depressed before Accutane, but wasn't depressed in the slightest.

It was like Accutane flipped the light switch off permanently.

What you say about losing the endorphine rush from exercising especially strikes a chord.

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299
(@macleod)

Posted : 04/03/2015 9:36 am

I have some similar permanent side effects as well Heinstar. You are not alone. No endorphin feeling whatsoever during or after exercising. A general apathy view towards things and persons. De-sensitization of the brain (i.e. sense of smell, touch, sight, hearing) and many other neurological sides as well. Let us know what treatments you attempt and if they work or not.

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(@binga)

Posted : 04/03/2015 10:18 am

 

I was only on 20mg Accutane for five days but unfortunately, it was enough to messed up my brain.
The side effects I™ve experienced were:
Day 1
  • extreme irritability/anger - snapped and yelled at my mom for no reason and I couldn™t control myself.
  • migraine and nausea after drinking coffee few hours after taking Accutane
Day 2
  • significantly worsened memory - couldn™t even remember my 4 digit number that I regularly use at work
  • severe depression
  • extreme fatigue
  • feeling of unwellness like I was going to die
Day 3, 4 and 5
same as day 2
I eventually quit on Day 5 due to not been able to deal with the above side effects.
It's been almost 3 months since I've stopped taking Accutane and I've noticed a few things different about myself:
  • I used to get endorphin highs from exercising but I don™t experience that anymore.
  • I used to love exercising, but I don™t feel the need to exercise as often anymore.
  • I often feel depressed and I no longer feel as much happiness.
  • Coffee doesn™t work as well it used to. Coffee doesn™t provide same motivation, concentration and energy boost that it used to give me.
  • Both my toenails has stained permanently yellow.
  • I can™t formulate my thoughts properly anymore.
  • My personality has changed and I™ve become impersonal and more easily prone to anxiety.
  • Accutane has became my gateway drug. I don™t view drugs the same way anymore and I™ve become significantly more of a risk taker and self-destructive.
  • After taking Accutane, I lost all motivation to study this year and the lack of motivation persisted even after I stopped taking Accutane and I eventually dropped out of college. Whereas last year prior to taking Accutane, even though I was in much more stress, I persisted and got through my course.
Please don™t take Accutane especially if you have a pre-existing undiagnosed mental illness like I do. My mental illness is now significantly worse after I™ve taken Accutane and it™s causing me to self-harm. I don™t seem to care about my life anymore.
I was already battling with a mild mental illness before but taking Accutane has tipped my mental illness over the edge so I definitely have to get therapy now. :( I wish I could go back in time and never had taken Accutane.

Start doing hatha yoga and drink vegetable juice. That should help. If not add colostrum and dabur chyawanprash as supplements. There are threads on colostrum and how it helps to recover from the side effects.

Caffeine stresses out liver. Try avoiding it.

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(@saynototane)

Posted : 04/03/2015 6:43 pm

Hi guys,

were should I start... I am 27 years old, did 2 cycles of Accutane and well, here I am.

It started when I was a teenager, I would get mild acne, it bothered me but not to do much about it. In my later teens I was prescribed Bactrim for my Acne. It would make me sick and I did not see any improvement so I stopped taking it. Fast forward to when I was about 22. I figured by this age my Acne would have gone away. I started getting cystic acne in my jaw and cheeks so I went to the Derm for the first time in my life. He put me on tetracycline I believe, did nothing for my Acne which is when I agreed to Accutane.

I remember all the classic side effects. Achy joints, dry face and lips, brain fog etc. It did however start clearing my face up and I thought the battle would soon finally be over. The first instance where I realized the Accutane had actually affected my body was when I was wrestling at my mma gym. Went down for a takedown and I felt my knee hurt when It touched the ground, I guess just a bad angle or something. Not saying I could not have been hurt without accutane, but as a 23 year healthy and active guy, it just didn't seem right. The knee healed after a few weeks, but I still feel pain in it sometimes, however nothing to crazy.

Fast forward another 2 years to when I'm about 25, that's when things got uncomfortable. It started with a slight bloating pain in my left abdomen. After a few weeks of pain I went to the doctor, he prescribed my miralax for constipation. Only took it a few days as I read online that it was also poison. Doctor shortly ordered a CT scan, they found nothing. I am very sure it was the accutane that has compromised my gut. After much reading for the last few years. I changed my diet, started taking some supplements many of which I have read you guys take too. The "IBS" comes and goes in flares almost, there have been months where I feel like a normal persons and others where it bothers me for a few weeks.

I recently got health insurance through my school and so have been visiting Rush hospital in Chicago to get some insight from the professionals there. The gastro doctor I have been seeing, did an ultrasound of my side to make sure it was not gallbladder or something like it and my test for Celiac and H,pylori have come back negative. He prescribed my Prilosec because he believes i have stomach ulcer, I have been taking for a month (not very excited about it), but the treatment is only 8 weeks long. It has helped somewhat with the pain, and no other heavy side effects other than maybe a little anxiety. He will be giving me an endoscopy next month to see if he sees something else.

I should also mention I have allergies, but I have had them since I was a kid, stuffy nose, sneezing etc. Now as an adult, I feel more sensitive to certain allergens and I am positive there is a gut-allergy connection going on. I have ringing in my ear (already went to ENT) sometimes shortness of breath, some eczema, some skin like rashes etc. The wife of my gastro doctor is the head of the gastro-allergy department at the hospital and he referred me to her specially to see if there are any things I am eating or being exposed to that is causing me inflammation. Hopefully she is able to find something that helps. Talking of inflammation, I have been suffering from testicle pain and more recently hip and butt pain (in the same region) from what I believe to be a sciatica never or hurt hip (i jumped a few feet onto some concrete last year) The tane could or could not be having an inflammatory significance for this injury. Not sure, but I am scheduled for an orthopedic.

Conclusion: I am essentially acne free, but the Rosecea i get once in a while is pretty embarrassing. If you are taking or soon to be taking accutance i suggest NOT TO DO IT. The effects are not worth the eradication of the pimples. Now that I look back, something as simple as eliminating Dairy from the diet would have sufficed. Again, this is in hindsight, but I am very convinced, that accutane has affected my body negatively. However I realize my side effects could have been worse and I remain confident that I will cure myself and my body. BE BRAVE and DONT GIVE UP. There is a lot of misfortune in the world, be grateful that you are a live and don't give up on yourself.

Ps. Will wait to see what the endoscopy and or allergy specialist finds. If they do not provide results I will probably try a liver flush first (although my liver numbers were fine in the blood tests) then maybe a water fast and then possibly experiment with CBD cannabis oil.

Melloman, Artaemis, macleod and 1 people liked
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MemberMember
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(@yetanotheraccutanevictim)

Posted : 04/04/2015 5:26 pm

 

get off prilosec before you screw yourself up even further. good luck in your journey

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