Acne.org Products
great post sayno. welcome.
Hey guys, I'm looking for some advice on how to deal better with the problems of accutane mentally.for Me it's like I got just fucked up about my life. I loosed my girl cause of my dysfunction, I miss time with my mates cause of my unability to play sports and my fam is angry on me cause I just changed and feel bad and unhappy about my life plus they still believe that I'm overreacting and my problems arent real. I also loosed my chance to join the military and study there.(my future plans are gone too). And I feel like loosing myself and the possibility to feel the way and be the way I used to be before that stuff messed with me. Have you guys any advice to cope with that all I would appreciate it. Thanks mates:)
Hey timati2340, you might feel down sometimes, but just stay optimistic. Do things that make you happy. Don't let other people affect your happiness. If you're lost, that's cool. That means you can venture and do whatever you want. Try new things. Who cares if your mates left and the person you were with left you? They must not care that much about you if they did. Just do whatever you want. Don't let anyone stop you.
As for your dysfunction, that's gonna take some healing. Now that you know accutane wasn't so great, focus on eating healthier and leading a healthy lifestyle. You may heal over time if you get what you need. No more chemicals and bad stuff like medicines and gmo's.
Does anyone else here have fibromyalgia and very poor circulation? I'm not sure if my issues are solely caused by accutane or if it just weakened my immune system enough to allow a chronic infection to flourish. If anyone knows how to go about getting tested comprehensively for a wide range of different systemic infections (mycoplasma, viral, bacterial, protozoal, fungal etc), do let me know. I've already tested my gut multiple times - no parasites or anything abnormal. I'm thinking I have an infection elsewhere. I've already eliminated almost everything else that could possibly be wrong with me
Hey guys, I'm looking for some advice on how to deal better with the problems of accutane mentally.for Me it's like I got just fucked up about my life. I loosed my girl cause of my dysfunction, I miss time with my mates cause of my unability to play sports and my fam is angry on me cause I just changed and feel bad and unhappy about my life plus they still believe that I'm overreacting and my problems arent real. I also loosed my chance to join the military and study there.(my future plans are gone too). And I feel like loosing myself and the possibility to feel the way and be the way I used to be before that stuff messed with me. Have you guys any advice to cope with that all I would appreciate it. Thanks mates:)
I feel the same way much of the time. I'm jobless, extremely isolated, living in a dysfunctional abusive household and not able to function at all enough to be able to get out of here. What helps me the most, apart from meditation, is being around people that absolutely cherish the things you CAN do. And if you're not able to find those people, be that person for yourself. It makes everything infinitely more worthwhile for me.
Ruvick- There are many men who have had multiple hormones tested after Accutane who have posted on this forum:
http://www.allthingsmale.com/community/forums/post-finasteride-syndrome-accutane-sufferers.8/
Unfortunately, there haven't been many who have found overt hormonal problems that would explain the severity of sexual symptoms they suffer after Accutane.
Some have low testosterone, but supplementing testosterone doesn't often help.
Please go behind your urologists back and report side effects online or by phone if you need to. Most likely, a visit to the psychologist would be a complete waste. I have been through that before and they say if there was no sexual trauma, then there must be a physiological cause of sexual symptoms. You will just end up going around in a circle from psychologist to physician.
Also, Crank92 from this forum collated many studies linking the methods of action of Accutane with sexual dysfunction for the specific purpose of people showing it to their doctors:
Accutane Link with ED & Sexual Dysfunction.doc
It's worth a a shot.
@Ruvik: I am getting a biohealth functional adrenal stress profile #205 in just a couple days. Will have the results in about a week, no more than 2. However, I don't have sexual dysfunction.
And does anyone know where we can get IV treatments such as glutathione, vit C, or myers cocktails? I'm thinking of visiting a local naturopath perhaps
On 4/3/2015 at 10:18 PM, Dubya_B said:Dubya_B, on 04 Apr 2015 - 00:08, said:
What type of mental illness did you have before taking Accutane?
I had every reason to be depressed before Accutane, but wasn't depressed in the slightest.
It was like Accutane flipped the light switch off permanently.
What you say about losing the endorphine rush from exercising especially strikes a chord.
Well my mental issues are more related to my cognitive deficiency than just a emotional dysregulation. I can't tell you what I was like before Accutane because it changed so much in me. But as of current, I'm suffering from:
- low motivation
- terrible short and long-term memory
- low mental energy
- terrible problem solving
- slow mental processing speed
- proneness to anxiety and depression
- unhealthy coping mechanism/self-destructive behaviour/self-medication/substance use
- I have no friends and I withdrawal from social interaction since I dont enjoy socialising
- I am dependent on coffee. I become slow minded and depressed as soon as I stop drinking coffee. Ive tried quitting coffee for 4 weeks but I still noticed my brain working very slowly and I felt depressed and low in mental energy all day without the aid of coffee. So I had to go back to drinking coffee daily.
- have difficulty falling asleep sleep until 3:00 am and cant wake up until 11:00 am due to my Delayed Sleep Phase Disorder.
I'm already 25 yet I'm struggling to learn to drive, finding a low-end job and moving out of my mom's flat. Although I had cognitive deficit issues before, I was actually getting better. But going on Accutane significantly worsened my overall cognition so now I have to build myself back again.
What I know for sure is that I was definately NOT a suitable person to take Accutane because of my mental health issues and being on Accutane has only exacerbated my issue further. Dermatologists should be screening their patients for mental health before poisoning them with Accutane. I believe that the people who aren't complaning about the negative cognitive side effects from Accutane probably has an high functioning brain which is protecting them from their ability to function. But for me, because of my pre-existing cognitive deficiency, I've noticed my cognition worsening immediately and it affected every areas of my life. I explain my struggles with my cognitive impairments in more detail here:
[Edited link out]
[Edited link out]
hmm, no asthma here, but in my opinion, i believe any type of predisposition anyone might have who takes accutane will end up just exacerbating said genetic weaknesses. And, it may sound like a cop out to a lot of medical professionals, to just "blame a drug", but its really not that unfathomable. They claim in court that they don't really understand the mechanisms of action, so how would they have an inkling of what it does on a cellular level. We've all witnessed proliferation take a HUGE reduction. I do believe that most people are able to adapt and adjust to it genetically, so they have yielded positive results (temporarily, as far as we know) But that its just overall bad for living cells everywhere in the body. And I doubt its just solely a retinoid, they've definitely came up with a cocktail of ingredients, and in the future people will look back on it and be like, yea this was not an ideal drug.
Really random but probably not relevant question for anyone willing to answer:
How many of us have asthma like I do?
Oh, did you mean asthma as a side effect? or just who else has it in general? Sorry for the tane rant, lol.
How safe or effective is low dosage Accutane (10 MG)? Another member on here said this about it:
"Look into low dose accutane. Side effects are negligible with low dose accutane."
"I got clear with 10mg. Good diet and yoga has made sure it stays that way. Everything else is like a band aid accept accutane."
I mean you are still looking at 100,000+ IU's of Vitamin A in a single day or whatever the amount is and whatever else is combined with the retinoid Roche has decided to mix in their magic pill. A lot of people have only taken it for a few days and developed permanent sides. I think its a genetic light switch for 3-5% of people. It shuts gene's on and off the very moment you take it, and there's no going back, there's no passing through the kidney's and then its out of your blood.
to doctor my sexual organs (testicles, etc ..) are perfectly normal and functioning, he prescribed some hormonal tests
has anyone had similar exams?
Hi Ruvik, I expect your results will come back 'normal' with everything in-range, however I am guessing you will see low FSH, low LH, low testosterone and high cortisol. This seems to be a trend for people who have been affected by AR5 inhibitors like isotretonin, propecia etc. By comparison here are some of my results. The only surprise with mine is DHT is high..
- FSH = 2.1 iu/L (1.0 - 9.0)
- LH = 2.6 iu/L (1.0 - 9.0)
- Prolactin = 147mu/L ( < 550)
- Testosterone = 13.1 nmol/L (8.0 - 30.0)
- SHBG = 36 nmol/L (13.0 - 71.0)
- Cortisol = 563 nmol/L (150-600)
- DHT = 4.1 nmol/L (0.9 - 2.90)
Hey guys I'm not a pro accutane dude. Guess my last post shown that. And I really hate taking that crappy stuff, for my mild maybe moderate acne in my teens. But I was talking to many docs also alternative ones and there's some crazy stuff coming out. She was doing a test where she saw different stuff with my body. It was crazy when I saw the results on collagen in my body. It was waaaay waaay to less, and she was like that's uncommon. Than I told her about accutane and stuff makes sense I you ask me. I will not say everybody has this problem but to me it makes sense. I will test supplementing and living an healthy lifestyle and tell you guys if something comes out good. She told me that it won't be like hey I took supplements for 6 months and than my body Is full of collagen. She told me that it's an long process that may take a year maybe a bit less to see first results. Besides getting good supplements I think most of us accutane sufferers are just weak immune system wise or in getting along with chemical stuf in general. for example I had an child disease that weekend my immune system, I was strong but chemicals aren't good for me( I was ffeeling shit while in 3 months antibiotics ) so they messed me up kindof +overdosing accutane thanks to my derm. So what I want to say is good things come with time, there will be no wonder pill or wonder thing that makes us having our old health back. But I swear with time our old health will.come back it just takes time. Yeah it sucks, but that's the price we have to pay for taking that risk accutane. And don't hate on me for that just be truth to yourself, even when it's hard. Last thing I want to add is that I guess for most accutane sufferers we have to deal with depression. For me my depression, like not mood changes or lighter stuff came out,when I realized that accutane fucked me in several ways. So treating that is something we really should focus on first. Depression is a state of mind where our body is weak, and more likely to got deseases no doubt on that. So okay yeah there is damage done by accutane but I think for reversing that damage we first need to be more happy and chill with ourselves. Those are just my 2 cents , if you don't agree with me that's okay. And everybody that is blaming accutane for being the most dangerous drug on earth. I guess it isn't. There are way harder things. For example a normal chemotherapy. I experienced one with my aunt that I'm really close too. There is no comparison to accutane, not at all. And she and also many others recovered from it. So my mates don't give up we can also recover, there was people recovering from way harder stuff. And for those saying hey boy your side effects arent as bad as ours. I gave sexual sides, joint pain+operation that is diagnosed by a doc+ the stuff they don't find out.+ some more other stuff. Also mental things. Thanks for reading my friends hope best for us all well make it out brothers:)
to doctor my sexual organs (testicles, etc ..) are perfectly normal and functioning, he prescribed some hormonal tests
has anyone had similar exams?Hi Ruvik, I expect your results will come back 'normal' with everything in-range, however I am guessing you will see low FSH, low LH, low testosterone and high cortisol. This seems to be a trend for people who have been affected by AR5 inhibitors like isotretonin, propecia etc. By comparison here are some of my results. The only surprise with mine is DHT is high..
- FSH = 2.1 iu/L (1.0 - 9.0)
- LH = 2.6 iu/L (1.0 - 9.0)
- Prolactin = 147mu/L ( < 550)
- Testosterone = 13.1 nmol/L (8.0 - 30.0)
- SHBG = 36 nmol/L (13.0 - 71.0)
- Cortisol = 563 nmol/L (150-600)
- DHT = 4.1 nmol/L (0.9 - 2.90)
Hi, I think that my analyzes are normal, maybe today I have the results, but if isotretinoin inhibit AR5 why dht is "normal"?, increase dht don't think is the solution, right?
we have the necessary hormones, but the body is not able to use them?
What tests were made to you and what supplements are you starting to take now?
Hi, I think that my analyzes are normal, maybe today I have the results, but if isotretinoin inhibit AR5 why dht is "normal"?, increase dht don't think is the solution, right?
we have the necessary hormones, but the body is not able to use them?
I don't really know why DHT came back high to be honest, this was a surprise as I expected very low. The result is from a blood test of course and not a biopsy, so it may be that DHT levels are low in tissue but normal in blood, I really don't know enough about the mechanisms involved to understand it.
Isotretinion is an AR5 inhibitor however, there is no question of that and you only have to look at people suffering from the effects of other AR5 inhibitors to see the similarity in our side effects - loss of libido, ED, brain fog, depression etc. Unfortunately another common factor is there is no simple way to recover from these effects. We have basically become estrogen dominant as a result. Raising testosterone and lowering estrogen, often with the help of drugs like clomid seems to have helped many propecia sufferers.
I'm currently looking into pine pollen as a way of raising testosterone and a high dose of grape seed extract to lower estrogen (or more specifically from preventing the testosterone from being converted into estrogen & raising e levels further). I'm also eating lots of sorgum grain which makes a good rice substitute as rice is a actually a mild AR5 inhibitor, and sorgum grain has been shown in studies to increase AR5 production fairly significantly.
Post up your results when you get them anyway, be interesting to compare!
Something strange I found from my blood hormone tests a few years ago was normal T, normal DHT, but comparatively very low 3a-Androstanediol (a "storage" form of DHT).
Urinary tests results were super-high for nearly all hormones, but the 5a-reduced ratios were low enough to indicate a 5-ar deficiency. A 5a-THF/THF ratio below 0.48 is considered a sign of deficient 5-ar activity. My ratio was 0.42.
My ratios are similar to someone taking Accutane,
http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2133.1991.tb00598.x/abstract
Summary
The effect of isotretinoin (Roaccutane) on serum steroids and urinary steroid metabolites was investigated in seven female patients receiving the drug for treatment of severe acne over a 16-week period. Serum concentrations of dehydroepiandrosterone sulphate (DHAS), androstenedione (A2), and free androgen index (FAI) were not significantly altered. There was a significant fall in testosterone during treatment and a significant reduction in the 24 h urinary excretion of androsterone, tetrahydrocortisone (THE) and tetrahydrocortisol (THF) from week 8 onwards and for aetiocholanolone and allo-THF from week 12 (P < 0.05). Although pretreatment levels of urinary steroid metabolites were not abnormal, the ratios of the 5±/5² metabolites (androsterone:aetiocholanolone and allo-THF:THF) were at the upper limit of the reference range and were lowered after treatment, suggesting that 5±-reductase activity is sensitive to isotretinoin.
but I haven't taken it since 1999!
Would anyone else be willing to have the 24-hr USP performed?
It was under $200 USD, but I think a physician must order the test. That may have changed since 2010 though.
It is such B.S. that we have to figure out this stuff on our own. Like I really enjoy not getting paid to study science and medicine. Like I have nothing better to do with my life during my 20's.
They "don't understand the mechanisms", well they should be held accountable and have to pay for all of our related medical expenses, and utilize us in studies to find out what they "don't understand."
completely off topic but I had a question for those of you suffering from dry eyes, I have been off accutane for over a year now and I have not had any previous dry eye symptoms up until this week. My eyes feel like they are constantly out of focus and its been bothering me constantly, is that what it was like for you guys? not sure what I did to trigger this but I am freaking out. Have any supplements helped you deal with this? thanks in advance
completely off topic but I had a question for those of you suffering from dry eyes, I have been off accutane for over a year now and I have not had any previous dry eye symptoms up until this week. My eyes feel like they are constantly out of focus and its been bothering me constantly, is that what it was like for you guys? not sure what I did to trigger this but I am freaking out. Have any supplements helped you deal with this? thanks in advance
Can't help you. I also didn't have major symptoms until after the course. You're probably vit a deficient. Maybe see how eating liver affects you