@jellyyI have not seen your scars, ... sounds like orange peel textural issues.

Here are the treatments:

* A light HA filler under the scar as needed. If you don't need subcicsion, pull the scar with your finger and see if it's distensible, filler will help.

* Rf Needling

* 1927nm Fraxel at full density is great for textural issues.

* OR a Dr Rullan Phenol Peel

@Jelly - how long have you been getting AMVC scarring, did it stop eventually? lasers and dermabrasion should work, the options to fix it are out there, but i am wondering when yours stopped occurring.

@Skinweird58my scaring are mainly from exfoliation products cause i use accutane before, and the skin never goes back to normal.

Ok so thats not AMVC then. Anyone diagnosed with AMVC? seems like the others who said they were dont post on here anymore, maybe its a sign it eventually stopped.

On 3/19/2019 at 9:11 AM, Skinweird58 said:

Ok so thats not AMVC then. Anyone diagnosed with AMVC? seems like the others who said they were dont post on here anymore, maybe its a sign it eventually stopped.

Best I got from a dermapathologist was maybe you have this [disease]. I dont think anyone in this thread has ever been formally diagnosed because AMVC is not well-known and no doctor can ever make a confident diagnosis.

Ive personally had spontaneous pits and linear indents/lines on and off for 6 years now. At the start of it in 2013, it was horrifying - literally a new divot or pore-connecting type lines every day. Now its every few months, somethingcomes up. And my cheeks and chin in general have this weird swollen/orange peel-liketexture thats super unsightly.

Cosmetically, Ive done microneedling a handful of times so far to no dramatic or noticeableresults.

I wish more people who have posted beforewould comeback and share how they have been.

thanks for your response, i hope we all grow out of it. i have read publications on this, there arent followups published on those cases either.

Suggested solutions:

1. Find what you are alergic to(You might be eating a certain type of food that causes the scarring).

2. Eat lessprocessed food ("Spots on the cheeks might be the result of too much meat, sugar and dairy products"; https://www.cosmopolitan.com/uk/beauty-hair/tips/a10302/face-mapping-what-do-your-spots-mean-108737/ ).

3. Drink your water (I know, this is said a lot and we are getting so tired of it, but if we are going to get rid of theserandom scarrings, we have to cleanse our bodies).

4. Useblack seed oil, internally and externally("black seed oilis said to boost the immune system, reduce inflammation, and fight infections";.

5. Use honey, alsointernally and externally ("honey is naturally antibacterial, so it's great for acne treatment and prevention. Aging: Full of antioxidants";.

My story:

I am a 24 year old girl, and I have been getting random scars since 2016, until this day. They are still appearing, and90% of the timethey appear when I eat unhealthy food, or foods like onions, ginger, turmeric, sugar, milk etc.(Although my doctor did not find any alergic signs,the scarsseem toappear when I eat these types of foods). They keep coming, and I have accepted them, even when it is so devestating whenrandom scars appear on your face and 'never' disappeares. I sleep with alo vera gel at night, applying iton those spots I have scarring going on. I hope this helps you, and know that I know exactly what you are going through and how you are feeling. As we all know, this 'problem', compared to other more seriousthings, is not a big deal, but don't Ithink mostpeoplecanunderstand how sad one can become because of these random scarring.

Just wanted to share my story, because Ive been reading through all the comments, and didn't want to leave before I tell my story, so thatit can be ofhelp to someof you, hopefully.

Best wishes to all of you!

I went to a dermatologist today after many years, and more or less...no help. She was understanding and has heard of AMVC before, but said its hard to diagnose since I still have active acne and also, even if she could make a diagnosis...the only treatments would be cosmetic ones. It sucks.

Her biggest suggestion was for me to start a beginners concentration ofRetinA. Which...many on this forum have complained to have contributed to random scarring.

Hello to everyone...

My AMVC is still here, and it's never has been worse. A tons of scarseveryday. The "old" scars are really deepening to the point there are part of my face that have no volume anymore. They became a lot wider too. My skin feel like a monster's. It does not look like acne scars. Some are 5cm lines, 3mm wide. Crazy. It's like my skin is eaten. Or collagen is destroyed without no reason day by day at a really fast pace. But even grandmas don't have this, so it's not a normal collagen aging process.

I don't know what to do anymore, so I do nothing, but it keep continues, but the state of my skin decrease a lot faster than before. At this point it's so uncontrolable and it's really scary. None of the pictures I've seen here or one AMVC science litterature are like mine... I don't know why my case is so terrible. Maybe I'm on a more advanced stage, but some people had it for 6 years, and I "only" had it for 2 years now.

I'm sorry I can't help much, but I just wanted to give some news as some here wanted to know how others with AMVC was doing now...

@boafriendon the medical litterature you can find articleof people treated with low concentration of retinA. They said that apparently their skin condition was better afterwards.

But if we follow the logic of hypervitaminosis A create this condition, it doesn't seem like a good idea to start retinA. Vitamin A is stocked in the liver and it's super hard to flush it from the body because it's stored in fat. Also under the skin. That's why too much vitamin A, that become stocked under the skin, I believe can create this condition (Well, have read tons of theories on this, and a full book, articles etc). Not sure tho of course.

Have anyone tried a 0 vitamine A diet ?

Do people with this conditions have allergies, not only to food but pets etc ?

Do people are still on anti histamine meds and is their AMVC condition stabilized ?

Do people notice more scars appearing when they are exposed (even just a little bit) to the sun, blue light, hot temperatures / face getting red because of hot temperature in your body , intense sports, hot showers, intense stress ?

What do you use on your face ? (hydrating cream, sun cream ?)

It feels like a auto immune problem to be honest. I feel like my body are attacking my own skin cells.

Is your skin ultra sensible to everything ? Before I had AMVC without redness. But since about 2 months I got a lot of redness going on, and now my AMVC looks like "acid burned" skin on some part of my face. It feels rough and everything is irritating. I'm allergic to litteraly everything at this point. I just put an hydrating cream with 5 ingredients in it, given to people that have ultra sensibility to everything / Have been doing surgery/lasers. etc. Can not be gentler on the skin. But as some people said before, the problem comes from the inside.

Sorry for the english mistakes, it's not my first language...

I hope others ones could give news too ! :3

From what i read isotretinion can help stop the scarring but its temporary because you wouldnt want to be on it forever. I think probiotics should be included in the daily regimen.

thanks so much to all of you who have shared your stories

.

I will be going to Taiwanat the end of May for some family stuff and will try to see if dermatologists therewill be able to help. East Asian healthcare and exams have advanced a lot in the past decade and are more thorough than what you can get in the US.

I dont have any high expectations though. But its worth a try.

Welp, the visit was a bust. The dermatologist, like many mentioned on here, dismissed my scarring claims and just said everything was caused by acne.

Waited so long at the hospital just for that. The dermatologist wouldnt listen to anything I had to say either.

Boafriend, Kix, DMS and others

Are the pits, lines, etc. actual dry scars (ie, healed skin) or are they wet lesions caused by something eating into your skin ?

16 hours ago, Aussie Scientist said:

Boafriend, Kix, DMS and others

Are the pits, lines, etc. actual dry scars (ie, healed skin) or are they wet lesions caused by something eating into your skin ?

All have been dryscars.

Boafriend

OK, thanks. I cannot help you then....sorry - I do not have a lot of knowledge about scars.

i suffered from AMVC in 2016 november to march 2017 and then random scarring stopped

however the scars are still here and not filled

now in 2019 i started to get acne and so for that i am ob accutane however too low dose (5 mg per day)

hopefully i should not start to get AMVC again

I went to a second dermatologist while I was in Taiwan and while she (like many) has never heard of AMVC before, she took a look at bloodwork Ihad done which showed a positive for some sort ofANA. She said it could maybe explain the scarring I have. She suggested I follow up on the bloodwork again since my initial ANA positive reading stemmed from a lupus panel I had had done at a naturopath. And since I refused Differin as a topical (due to all the vitamin A horror stories from here), she prescribed me a 20% azeliac acid cream that she said could help smooth texture and fight my acne.

And just two days ago, I noticed another random indention (1 mm long maybe) near the left side of my cheek near my nose. This disease is so draining and unpredictable. Its causing me so much distress right now.

Anish thanks for letting us know how long you had AMVC. Hopefully it wont come back.

12 minutes ago, Skinweird58 said:

Anish thanks for letting us know how long you had AMVC. Hopefully it wont come back.

hope accutane dont cause it again

did you get it the first time after being on accutane?

7 hours ago, Skinweird58 said:

did you get it the first time after being on accutane?

no ...i am taking accutane for first time

and neither that timw i used any retin ..tretinoin vitamin A

it just started randomy and formed 4 to 5 linear lines on my face which are deep and large and some boxcar type scars also but those are shallow

I don't think vitamin A (accutane, etc) is the cause, i don't believe that theory. I think you should be okay with the accutane. i have boxcar that are somewhat shallow they look like acne scars, a couple linear scars. I hope yours fully stopped. From what I've read it seems with many cases with people who didnt have it from childhood, that this eventually stops.

19 hours ago, Skinweird58 said:

I don't think vitamin A (accutane, etc) is the cause, i don't believe that theory. I think you should be okay with the accutane. i have boxcar that are somewhat shallow they look like acne scars, a couple linear scars. I hope yours fully stopped. From what I've read it seems with many cases with people who didnt have it from childhood, that this eventually stops.

i also dont support this as a vitamin A theory

REASON- My brother also have these scars but he is lucky as he developed only 2 to 3 linear scars randomly which he never noticed...as he is not conscious about scars and his skin and his skin is nice...he never ever touched any retin a ..or vitamin A or accutane.

this disease is totally genetic

my question is do these shallow or AMVC scars have lost skin appendages like hair follicles as happens with true scar tissue

i think these AMVC scars are just indentations in skin and havent lost appendages. ..just my assumption

The scars are indentations, likely decrease in elastic fibers. The dermatologist says laser would work on these scars. Depends on if you have a lot ( i do on one cheek more than the other) whereas like your brother only got 2 scars so no point in really trying to get rid of them.

Has anyone with this random scarring ever had any kind ofpositive ANA result? Ive had a positive readingtwice, but have not followed up on further testing to see what it could be.