Notifications
Clear all

Spontaneous Scarring Condition - AMVC - Atrophia Maculosa Varioliformis Cutis - Pitted Scars Suddenly Appearing - Not Acne

 
MemberMember
40
(@anish004)

Posted : 06/14/2019 8:05 pm

6 hours ago, Skinweird58 said:

The scars are indentations, likely decrease in elastic fibers. The dermatologist says laser would work on these scars. Depends on if you have a lot ( i do on one cheek more than the other) whereas like your brother only got 2 scars so no point in really trying to get rid of them.

i think skinappendages are still there as no major trauma caused to the skin there...

Quote
MemberMember
0
(@skinweird58)

Posted : 06/17/2019 11:11 am

Yes same with me.

Did you ever see a doctor that had any experience with other patients to let you know if their random scars started up again later? Its hard to find case reports but the ones that do usually didn't have any followups from years later. I found a few that said the patients didn't have new scars, they were stable.

 

Quote
MemberMember
40
(@anish004)

Posted : 06/18/2019 7:04 am

19 hours ago, Skinweird58 said:

Yes same with me.

Did you ever see a doctor that had any experience with other patients to let you know if their random scars started up again later? Its hard to find case reports but the ones that do usually didn't have any followups from years later. I found a few that said the patients didn't have new scars, they were stable.

 

in my brother and mine case it stopped 2 yrs ago and till now it havent started again

i am just curiois about one thing

like chicken pox scars and trauma scars the appendages of skin are lost means those are not only indentations in skin but they also dont have any pores and follicles in it.

in AMVC scars theres no actual trauma to skin ...so maybe they could be just indentations in skin and still have pores and hair follicles in it(in one of my AMVC scar i noticed this..that is presence of some bumpy texture which is also present in normal skinwhen look magnifying

Quote
MemberMember
0
(@skinweird58)

Posted : 06/19/2019 11:58 am

I see what you are saying, yes the texture isstill normal justthe indentation is still an atrophic scar. Its not a major scar in depth and size. That's probably why Laser or microneedling would work on these and these scars are shallow so probably wouldn't need many sessions. You have to find a dermatologist that is known to be good at laser because a lot of the results are based on their skill. The treatment is there but when you are going through the period where these scars are still progressing on your face and hasn't stopped it becomes a bit scary because you don't know how long this will last. Also yes its genetic but there have been some cases where its not. Yours totally is genetic if your brother has it.

Once you are done with accutane you can look into treatments if you are interested because treatment for atrophic indendation type scars has a come a long way.

 

Quote
MemberMember
146
(@boafriend)

Posted : 06/25/2019 11:12 am

Why is this thread so dead? No one from previous pages or posts is coming back. So frustrating, and no one has commented on my last findings.

Quote
MemberMember
0
(@skinweird58)

Posted : 06/25/2019 4:05 pm

may be its a because the people who had it are not experiencing new scarring. what happened to lamar, may be someone should try to get an update from him.

what does ANA stand for?

Quote
MemberMember
146
(@boafriend)

Posted : 06/25/2019 6:42 pm

2 hours ago, Skinweird58 said:

may be its a because the people who had it are not experiencing new scarring. what happened to lamar, may be someone should try to get an update from him.

what does ANA stand for?

It means Antinuclear Antibody. It is a blood marker.

I dont believe every person whos reached out for help on this thread has 100% stopped with spontaneous scarring. Ive had it for 6 years now. It kinda stopped for a year or two but came back, and Im getting deep linear scars.

And Lamarrarelycomesback into this thread.

Quote
MemberMember
0
(@skinweird58)

Posted : 06/27/2019 4:59 pm

A case report I readmentioned ANA along with some other tests, the case report patient had a negative result so that's not indicative of AMVC.

Quote
MemberMember
146
(@boafriend)

Posted : 06/29/2019 9:07 pm

On 6/27/2019 at 2:59 PM, Skinweird58 said:

A case report I readmentioned ANA along with some other tests, the case report patient had a negative result so that's not indicative of AMVC.

Thanks for that info. Do you have the link to that case study?

And I know I amspeaking to an empty room, but does anyone else here who seems to have this skin issue have any positive ANA results? I really want to know because I cannot be the only sufferer who has had autoimmune disease bloodworkdone.

I have to wait til August to see the rheumatologist I had previously gone to, so am sitting this out. I had indented lines form on my kneecaps as well, so it may be a sign of something other than AMVC.

Quote
MemberMember
146
(@boafriend)

Posted : 07/03/2019 9:00 pm

On 6/5/2018 at 4:55 AM, AA94 said:

I have a couple of friends who have these very shallow scars everywhere on their face (though never noticed before i got this condition) and they dont really know (nor do they care) where the heck they came from. It comforts me somehow and 2 of my friend have way more than I have developed so far. I always considered them as having great skin.

could it be that this is something that develops with most people usually as they are growing up to some extent as a normal skin phenomenon, but to people like us it happens to go out of control to some extent and eventually also stops ? Because i am becoming very sure this isnt really that rare its just that its so harmless it 99% goes unreported and even if it does get reported doctors wont take it seriously as in my case. I have been to 5 doctors in germany and all of them seem to tell me they are small and are probably from acne (which is 100% not true).

on this forum there are some really scary stories which make me nervous about myself. (I dont know if it is really as bad as descirbed) i have been having this for 2 months now and sometimes when looking into a certain mirror u can almost notice nothing, though under certain lightning it is definitely seeable.

if it stops anytime soon and even if the damage does not go I would be 100% satisfied and forget about all of this very soon. Whats keeping my hopes high is that in many cases this lasts 1-4 months and stops somehow. That would be great if it stops in the coming weeks.

this experience will have changed my whole perspective about my face. The mild to moderate acne i have is really nothing to worry about its harmless and no one cares. That hell of always not knowing how ur face will look next months with lifetime scars makes all my other problems seem harmless. I hope this will end soon..

I'm totally digging up a comment over a year old, but I cannot agree enough with you. I colored in red the exact text. 100 effin agree. I'm extremely upset dueto new scars that have pawned within the past month., and my mood nosedived post-haircuttoday when I looked in my car vanity mirror and noticed a new shallow boxcar pit and what looks like a random smile line.

I had acne from high school to college, and at its worst (senior year of high school), I was miserable. But looking back, at least there was an end point and actual treatments and methods of help out there. For this random scarring, there is nothing. It's near-impossible to get a diagnosis in itself, and most dermatologists/dermapathologists have never heard of the diseasebefore. When I see people and say goodbye in my everyday life, I always have this gut-deep fear that when I next see them (be it a month, 2 weeks, half a year later) -- I have no idea how much worse my face will look. It's gut-wrenching, and the sad reality is this scarring is NOTICEABLE, even the smallest pits. It's a textural issue -- overhead lighting, harsh LED lighting, lighting from behind, angled sunlight --people will notice. Everyday when I drive to work, I look at other people in their cars and on the streets and envy how blessed they are to not have to deal with this issue. Even dealing with just atrophic scarring (that is NOT random/spontaneous) is a blessing because there is an end to it (lots of money required of course, but there is hope).

Aside from pitting, the strange overall "breakdown" of my overall texture is bizarre to me, too. The random smile lines linear indents, too. Just doesn't make sense to me, especially for someone who has worn sunscreen everyday since he was 13-14 years old, and even reapplies during the day. Not saying that makes me obsolete from any kind of "aging," but it just doesn't make sense for it to happen randomly.

(Yes, I'm venting...)

I've had this scarring for 6 years now. It oddly seemed to have stopped 2014 -2017, but started again last year. I thought this shit is said to eventually lessen over time (but does that mean permanently stop?).

Quote
jellyy, jellyy and jellyy reacted
MemberMember
81
(@aussie-scientist)

Posted : 07/03/2019 10:30 pm

Boafriend

Can you post a picture of your "scarring". Your "scarring" might be a fungal infection... The breakdown in the skin surface is indicative of a fungal infection.

Doctors know NOTHING about fungal ski infections (apart from tinea).

Quote
MemberMember
146
(@boafriend)

Posted : 07/04/2019 12:10 pm

15 hours ago, Aussie Scientist said:

Boafriend

Can you post a picture of your "scarring".  Your "scarring" might be a fungal infection... The breakdown in the skin surface is indicative of a fungal infection.

Doctors know NOTHING about fungal ski infections (apart from tinea).

Yes, I've heard that theory before, but there is no medical professional whom I can go to for this possibility. Who's gonna take you seriously, you know? Everyone will just think I'm crazy or obsessing over "aging." I've even gone to naturopaths who haven't been helpful.

These scars are so hard to capture on camera and don't seem as obvious as in person, but here's a shot. I drew on the images to indicate near where they are. These are the linear ones that have spawned over the past half year.

995689044_2lines.png.1009d100d6b77972fe7689ca3066f3ed.png

Another pic with some shade so the the lines may be more visible (unmarked, too). Those lines on my neck are normal, BTW, in case someone notices or asks. I've had those since I was young:

IMG-8215.JPG.31811aacb82bc5b4cc6e26d1032bf87c.JPG

Smaller linear scar on other side near my nose:

1098607902_smallline.png.9910b2a7fefc42c7a5a659a1e72cb52a.png

And this last one is of my kneecaps, which also have had bizarre linear scars:

IMG-9333.JPG.437165c8fd7dd6e27a3cf5db65a9d1cd.JPG

One dermatologist said these appear to be Langer's lines, which are naturally in the body and that I shouldn't worry too much. But Langer's lines shouldn't be visible? This absolutely doesn't look normal. I don't see anyone else's kneecaps with these kind of lines.

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/04/2019 6:53 pm

boafriend

You may have a fungal skin condition. You can treat it yourself. Doctors know nothing about fungal conditions - apart from tinea.

Try applying the following treatments -

1. Buy clotrimazole topical antifungal cream (often sold as Canesten - no prescription needed) and apply it to the areas with "acne" 2-3 times a day.

2. Wash your hair in an antidandruff shampoo.

3. Do NOT apply any moisturisers or organic oils to the areas with the "scars" unless your skin becomes very dry. Fungus loves moisture.

I am happy to hear how things go.

Quote
MemberMember
146
(@boafriend)

Posted : 07/05/2019 2:35 am

20 hours ago, Aussie Scientist said:

boafriend

You may have a fungal skin condition. You can treat it yourself. Doctors know nothing about fungal conditions - apart from tinea.

Try applying the following treatments -

1. Buy clotrimazole topical antifungal cream (often sold as Canesten - no prescription needed) and apply it to the areas with "acne" 2-3 times a day.

2. Wash your hair in an antidandruff shampoo.

3. Do NOT apply any moisturisers or organic oils to the areas with the "scars" unless your skin becomes verydry. Fungus loves moisture.

I am happy to hear how things go.

Appreciate your help.

So what does theclotrimazole topical antifungal cream do for these scars? It won't lessen their appearance, will they?

And are you saying to not moisturize my face at all? That makes no sense. It is hard to avoid the scarred areas as is.

Also, has this method worked for anyone? I have suspected something fungal based off appearance alone, but doctors haven't been able to help. Has anyone gone this antifugnal cream route and stopped their random scarring for good?A blood test I had done at a naturopath found a positive reading for the EpsteinBarr virus, but apparently a lot of people have this and it doesn't mean anything significant in relation to my symptoms. So how can we be sure it may be a fungal virus?

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/05/2019 10:15 pm

Boafriend

Moisturising makes fungal acne WORSE because FUNGUS LOVES moisture.

The scars may be caused by fungus. Your legs certainly look like they have a fungal condition. There is no harm in applying antifungal cream and see if the scars go away.

Fungus and viruses are TOTALLY different things.

We do not know whether you have a fungal condiiuon or not - the simplest and safest way to find out is to apply some antifungal cream, which is cheap and totally safe.

 

Quote
MemberMember
146
(@boafriend)

Posted : 07/06/2019 12:11 am

2 hours ago, Aussie Scientist said:

Boafriend

Moisturising makes fungal acne WORSE because FUNGUS LOVES moisture.

The scars may be caused by fungus. Your legs certainly look like they have a fungal condition. There is no harm in applying antifungal cream and see if the scars go away.

Fungus and viruses are TOTALLY different things.

We do not know whether you have a fungal condiiuon or not - the simplest and safest way to find out is to apply some antifungal cream, which is cheap and totally safe.

 

Gotcha on the virus thing.

Strange though. I had a skin scraping done on my face back when the scarring started and the autopsy found nothing (the scraping was for any fungal infections, mites, etc.). Also, wouldn'tthis "fungus" be something internal, if anything? It looks like these scars are being caused by something underneath the skin. How would topically applying this heal it?

And this is safe to use on the face? Most of thoseclotrimazole topicals are referred to as "jock itch/foot" creams. Or should I just try on my kneecaps first?

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/06/2019 12:58 am

Boafriend

Skin tests for fungus are not reliable.

Fungus is often on skin and NOT internal. Malasezzia fungus is virtually ALWAYS ONLY ON SKIN or just under skin. Candida fungus can be in the gut and on/just under skin.

You can use terbenafine cream anywhere - it is quite safe. They just sell it as jock itch/foot cream, because jock itch and foot fungus are very common. Terbenafine will penetrate skin to some extent.

I am not saying that your problem IS caused by fungus. Rather, I am saying that it is worth while applying antifungal cream to see if the problem is fungal in origin.

By all means, start with your kneecaps.

Quote
MemberMember
146
(@boafriend)

Posted : 07/06/2019 1:24 am

22 minutes ago, Aussie Scientist said:

Boafriend

Skin tests for fungus are not reliable.

Fungus is often on skin and NOT internal. Malasezzia fungus is virtually ALWAYS ONLYON SKIN or just under skin. Candida fungus can be in the gut and on/just under skin.

You can use terbenafine cream anywhere - it is quite safe. They just sell it as jock itch/foot cream, because jock itch and foot fungus are very common. Terbenafine will penetrate skin to some extent.

I am not saying that your problem IS caused by fungus. Rather, I am saying that it is worth while applying antifungal cream to see if the problem is fungal in origin.

By all means, start with your kneecaps.

Right, totally got it. I guess it's worth a shot. Do you thinkterbenafine will be better thanclotrimazole? Or does it really not matter and just try one of them to start?

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/06/2019 1:35 am

Boa

You could try clotrimazole.

Do you have dandruff ? Or a white tongue ??

Quote
MemberMember
146
(@boafriend)

Posted : 07/06/2019 1:51 pm

13 hours ago, Aussie Scientist said:

Boa

You could try clotrimazole.

Do you have dandruff ? Or a white tongue ??

Neither.

Also, I didnt mention. I tend to have imprint marks that stay on the skin for a long time (ex. short jeans pressed against legs; the imprint marks will last for a long time). But this seems to be internal? Not sure if this is related to the random scarring.

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/06/2019 9:42 pm

Thanks Boa.

Your skin issues may not be caused by fungus, of course But it is worthh while applying some antifungal cream, in case the condition is caused by fungus.

Quote
MemberMember
146
(@boafriend)

Posted : 07/19/2019 1:42 pm

On 7/6/2019 at 7:42 PM, Aussie Scientist said:

Thanks Boa.

Your skin issues may not be caused by fungus, of course But it is worthh while applying some antifungal cream, in case the condition is caused by fungus.

Definitely not the case. Ive applied the antifungal stuff for over a week on my kneecaps to zero improvement.

Quote
MemberMember
81
(@aussie-scientist)

Posted : 07/20/2019 10:31 pm

Thanks Boafriend

You can now rule out fungal causes.

Quote
MemberMember
0
(@sila)

Posted : 07/23/2019 5:46 pm

Any update somebody?

Quote
MemberMember
146
(@boafriend)

Posted : 07/24/2019 11:03 pm

On 7/23/2019 at 3:46 PM, Sila said:

Any update somebody?

There are no updates from anyone. I've been pushing this thread for a couple pages now, crying out for more insight from others who are having or have had this issue.

Quote