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Spontaneous Scarring Condition - AMVC - Atrophia Maculosa Varioliformis Cutis - Pitted Scars Suddenly Appearing - Not Acne

 
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(@carolina-rain)

Posted : 07/26/2010 7:00 pm

I tend to agree with you on the fact that it seems that ANY stinking thing I do to my skin seems to make it worse! Did you ever try rolling or needling at all? Intitially it made my skin look pretty good but when it settled there was a mess. I didnt think that a 0.5 mm roller could cause scarring since it didnt reach the dermis.But on my face with the retin- a thinning my skin I think it must have. Im glad I didnt go with a longer one!Im so PISSED at myself for what it seems I have done to my face. And it seems there are no answers. I was thinking about seeing a professional to do some TCA peels but hey with whats been going on with my skin Im way chicken to try that. You look at some of these before and after pics of people that have had it done and they got great results but who knows with my skin.Its so weird that we are getting scars on one side only! Why is that? And yes as far as the doctors go mine told me I should use retin-a for the rest of my life. Well I think it was Lammar that said( or someone on here knowledgable) that retin-a may be for many people what really starts the whole problem. I think it thinned my skin so bad it started to break down or something!

So I dont know what to trust anymore. Same with medical doctors...theyll throw you a mess of pills to take for one thing next thing you know your losing your hair!( true story that happened to me too). Anyways I will look into the led lights, that seems like its at least uninvasive. What is the protocol for using them? Ill try anything but Im frustrated because Ive got blackheads on my face that I cant treat without fear, cant exfoliate or take fish oil or barely even touch my face at all. Ill look into the couple of things you mentioned thanks for the help and I feel your pain! It seems we are going through much of the same thing. Sometimes I think maybe its God trying to teach me a lesson and that I shouldnt have ever been so vain to begin with worrying about some tiny bit of peach fuzz to begin with. How I wish I could also turn back the hands of time and leave my face alone! But hey maybe thats what I need to do now,lol???

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(@iloveuk)

Posted : 07/26/2010 9:42 pm

I tend to agree with you on the fact that it seems that ANY stinking thing I do to my skin seems to make it worse! Did you ever try rolling or needling at all? Intitially it made my skin look pretty good but when it settled there was a mess. I didnt think that a 0.5 mm roller could cause scarring since it didnt reach the dermis.But on my face with the retin- a thinning my skin I think it must have. Im glad I didnt go with a longer one!Im so PISSED at myself for what it seems I have done to my face. And it seems there are no answers. I was thinking about seeing a professional to do some TCA peels but hey with whats been going on with my skin Im way chicken to try that. You look at some of these before and after pics of people that have had it done and they got great results but who knows with my skin.Its so weird that we are getting scars on one side only! Why is that? And yes as far as the doctors go mine told me I should use retin-a for the rest of my life. Well I think it was Lammar that said( or someone on here knowledgable) that retin-a may be for many people what really starts the whole problem. I think it thinned my skin so bad it started to break down or something!

So I dont know what to trust anymore. Same with medical doctors...theyll throw you a mess of pills to take for one thing next thing you know your losing your hair!( true story that happened to me too). Anyways I will look into the led lights, that seems like its at least uninvasive. What is the protocol for using them? Ill try anything but Im frustrated because Ive got blackheads on my face that I cant treat without fear, cant exfoliate or take fish oil or barely even touch my face at all. Ill look into the couple of things you mentioned thanks for the help and I feel your pain! It seems we are going through much of the same thing. Sometimes I think maybe its God trying to teach me a lesson and that I shouldnt have ever been so vain to begin with worrying about some tiny bit of peach fuzz to begin with. How I wish I could also turn back the hands of time and leave my face alone! But hey maybe thats what I need to do now,lol???

 

Yep, I wish I had never touched any acne products, wish I had never touched vitamin a, and I definitely wish that I hadn't messed around with things that were supposed to help heal my skin these past couple of months. Seriously, everything I do makes it worse. I have blackheads as well but can't do a thing about them because I made the mistake of trying to squeeze them a few months ago not knowing how fragile my skin was and that definitely caused a few scars. I'm hoping that the LED's help with the blackheads - I've heard that they do. If you want to learn how to use them check out Lamarr1986's thread titled "Ok Guys". I learned a lot from that thread. I have spoken with him about my condition and he told me to start out by using the red LED only for 5-15 minutes to start, since my skin is super fragile right now. You might want to consider yourself in the same boat as well.

 

I've never dermarolled, and it will be a long time before I can, if I choose to. I have had needling done on some acne scars by a professional makeup artist and I saw minimal results. The scars were pretty deep however - I think it would work better on these crazy shallow scars that I now have.

 

Do look into some of the things I have mentioned, and I would stay away from any peels right now if I were you. Try to build up your skin tissue first if you can or you will probably cause more damage. Maybe Emu Oil can help with thickening the skin, I'm gonna try it. Also look into Orgono Living Silica . I'm taking it and it's a top of the line form of silica which is purported to rebuild the skin from within. MSM is good too, along with Vitamin C in water.

 

I think we have to be patient with this and try not to cause more harm than good. It is tempting to try all these products and procedures but they might hurt in the long run. My plan now is to go gentle with the lights, take my supplements, and allow nothing to touch my face except for Coconut oil, Emu Oil, and water.

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(@carolina-rain)

Posted : 07/29/2010 8:35 pm

Thanks so much for the advice iloveuk, Im definately going to try the things you mentioned.As far as when I needled, what it did (because mine were initially icepicks) was raise them YEA but also widened them considerably! Ive posted about this before on here but what I didnt realize was that my scars would not just fill up where they were at... but that the needling would lift the pulled down skin from underneath and broaden the scars( I should have really thought about it a bit more,lol). So now where I had barely noticeable icepicks ( silly me), I now have fairly noticeable rolling scars and a bunch of other surface scars I think from the rolling and retin-a.In theory I guess one could say I could just keep going but its such a long process that it would definately make bigger scars in the meantime that covered a greater portion of my face.And Im just not confident enough that they could ever be truly leveled.

Id definately be careful even with the rolling if your skin is like mine as youve said.I do understand now ,however, that needling works best on rolling and boxcars. I think those doing it on icepicks should be more aware of what Im talking about before they begin. Its just too much skin to pull up.When you had your needling done did it make your scars any wider or noticeable?

Like you said when I go to the derm what else could he really throw at me but something like retin-a. So I think Im going to stick to some of the things you mentioned. Keep posting about the results you get , Id definately like to know how the leds and the products work for your skin and Ill do the same when I get the stuff. On a side note straight grapes and tomatoes smooshed up seem to work pretty good for blackheads...although the urge to pick is still there.Also epsom salt mixed with a couple drops of iodine loosen them up very well too. One last question, do you think you have AMVC scarring? Its all I could think of at first in my case, its either that or the retin-a making my skin thinner, but I also thought maybe Im a bit old for AMVC since I am 34.Your skin looks good in your picture but I know in my case others have told me the same,lol... but I guess we just need to remember that others do not judge us nearly as harshly as we do ourselves, Thanks!

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(@iloveuk)

Posted : 07/29/2010 9:28 pm

Thanks so much for the advice iloveuk, Im definately going to try the things you mentioned.As far as when I needled, what it did (because mine were initially icepicks) was raise them YEA but also widened them considerably! Ive posted about this before on here but what I didnt realize was that my scars would not just fill up where they were at... but that the needling would lift the pulled down skin from underneath and broaden the scars( I should have really thought about it a bit more,lol). So now where I had barely noticeable icepicks ( silly me), I now have fairly noticeable rolling scars and a bunch of other surface scars I think from the rolling and retin-a.In theory I guess one could say I could just keep going but its such a long process that it would definately make bigger scars in the meantime that covered a greater portion of my face.And Im just not confident enough that they could ever be truly leveled.

Id definately be careful even with the rolling if your skin is like mine as youve said.I do understand now ,however, that needling works best on rolling and boxcars. I think those doing it on icepicks should be more aware of what Im talking about before they begin. Its just too much skin to pull up.When you had your needling done did it make your scars any wider or noticeable?

Like you said when I go to the derm what else could he really throw at me but something like retin-a. So I think Im going to stick to some of the things you mentioned. Keep posting about the results you get , Id definately like to know how the leds and the products work for your skin and Ill do the same when I get the stuff. On a side note straight grapes and tomatoes smooshed up seem to work pretty good for blackheads...although the urge to pick is still there.Also epsom salt mixed with a couple drops of iodine loosen them up very well too. One last question, do you think you have AMVC scarring? Its all I could think of at first in my case, its either that or the retin-a making my skin thinner, but I also thought maybe Im a bit old for AMVC since I am 34.Your skin looks good in your picture but I know in my case others have told me the same,lol... but I guess we just need to remember that others do not judge us nearly as harshly as we do ourselves, Thanks!

 

 

Thanks for the compliment, although this picture is 3 years old and has been up since I first joined the site. I would never dare post a current picture...in the beginning of this ordeal people were telling me my skin looked fine, now the same people are asking what is going on and can clearly see a problem...

 

Anyway, while I definitely am exhibiting signs of AMVC and my scars look just like in the pictures on the AMVC medical website, I don't think it's the true textbook disorder. As in, I don't have the genetic disorder, but the vitamin a has caused a similar process to occur in my skin. The same goes for most of the people on this thread I'm sure - we weren't born with it but it occured because of the oral meds or topicals that we have used. So as far as I'm concerned, I have AMVC brought about by outside factors.

 

When I had needling done on my boxcar scars I really didn't see much improvement, I didn't notice a worsening, either. I can see why needling would possible worsen an icepick scar though. I think if and when I am ready to needle for these AMVC weird linear/squiggle-looking scars I will just go to my needling lady and have her do them. I really don't trust myself to do it, and I like the precision and predictability of a tattoo gun (that's how she does it - tattoos without ink). What's weird though is that these AMVC scars actually look like a bunch of icepick-scarred pores that formed overnight into lines, where previously the pores were invisible. Like, I look in the mirror and suddenly have scarred pores out of nowhere and then oh wait, now they have formed tracks. What the hell??

 

I'm still waiting on the LED's...they are my biggest hope right now for improvement. I did make an appointment with a derm for next week so will see what he has to say. I doubt there will be any amazing revelations there. I would like to know what he thinks the prognosis is though, like if my skin will ever recover or thicken up. I know they don't have some magical pill to build elastin or anything. I really don't know what they can do, I feel like it's in my own hands, honestly. I have noticed that I can control the new scarring by just not using anything on my face besides coconut oil, though. I think in my case this scarring patch of skin is so thin and sensitive that it literally reacts to everything by irritating and scarring...put rosewater on...burning and scar! Rosehip Oil (great for burns, wrinkles and scars)...caused even more burning and scarring! I can't possibly be truly allergic to these things, I think the skin is just reacting abnormally to any outside stimuli. Of course I can put anything on the left side of my face and no pain or scarring. SO weird.

 

Keep on rebuilding from the inside - something has to work.

 

 

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(@carolina-rain)

Posted : 08/01/2010 1:55 pm

Yes YES thats my skin too,lol. Every bit of what youve saids going on has been me too.I was using coconut oil on my face also but I quit because I was afraid that along with the fish oil I was taking I was getting too many essential fatty acids. I mean I didnt know what to do really. I would like to start using coconut oil again and taking flax seed but Im scared cause someone one here said it could come from fish oil too.And flax and fish oil basically do the same thing. I know I sound nuts here cause these things like you said are supposed to help scarring but you dont know whats safe anymore!Thanks fo answering those questions for me, at least the needling didnt make yours any worse but it sounded like they werent icepicks so thats good.Where are you getting your LED's from?

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(@iloveuk)

Posted : 08/01/2010 8:04 pm

Yes YES thats my skin too,lol. Every bit of what youve saids going on has been me too.I was using coconut oil on my face also but I quit because I was afraid that along with the fish oil I was taking I was getting too many essential fatty acids. I mean I didnt know what to do really. I would like to start using coconut oil again and taking flax seed but Im scared cause someone one here said it could come from fish oil too.And flax and fish oil basically do the same thing. I know I sound nuts here cause these things like you said are supposed to help scarring but you dont know whats safe anymore!Thanks fo answering those questions for me, at least the needling didnt make yours any worse but it sounded like they werent icepicks so thats good.Where are you getting your LED's from?

 

Don't worry about coconut oil - it does not contain omega 3's which are the oils implicated with the scarring. It actually contains unique fats called MCT's, which are very beneficial, especially for the skin. i could not live without coconut oil, for eating and for topical application. So use the coconut oil if you like it!

 

I just got my LED's yesterday! I got them from the LED Man, the one that Lamarr1986 has had success with. I used the red light last night for a few minutes, and will again tonight. So far, so good.

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(@carolina-rain)

Posted : 08/02/2010 8:16 pm

Cool, thanks for letting me know that about coconut oil.And when I get my LED'S that's where Ill get mine from too. I think I was already told that by someone else to get them from him. Keep posting with your results and good luck! :dance:

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(@iloveuk)

Posted : 08/06/2010 12:08 am

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

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(@stinky-muldoon)

Posted : 08/06/2010 1:40 am

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

 

Honestly, I think you need to listen to your derm, calm down and try and focus on other things in your life. Your facial obsession is clearly unwarranted and misguided.

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(@iloveuk)

Posted : 08/06/2010 12:22 pm

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

 

Honestly, I think you need to listen to your derm, calm down and try and focus on other things in your life. Your facial obsession is clearly unwarranted and misguided.

 

Yeah you try that when your face is burning and leaving scars in that same area and you can barely move your face it hurts so bad. And no I don't need to moisturize, my skin is oily as can be. I wouldn't be here wasting time at a message board or wasting my time with doctors if I didn't feel this was a significant problem

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(@iloveuk)

Posted : 08/06/2010 12:23 pm

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

 

Honestly, I think you need to listen to your derm, calm down and try and focus on other things in your life. Your facial obsession is clearly unwarranted and misguided.

 

Yeah you try that when your face is burning and leaving scars in that same area and you can barely move your face it hurts so bad. And no I don't need to moisturize, my skin is oily as can be. I wouldn't be here wasting time at a message board or wasting my time with doctors if I didn't feel this was a significant problem

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(@zenergy)

Posted : 08/06/2010 6:42 pm

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

 

I got a few new scars and huge pores from using Green Cream 9 (retinol). I read on another site about someone using Green Cream and developing the same thing as you - linear scars and weird squiggly lines, also enlarged pores. Anyway, she said she started using Derma E's Alpha Lipoderm and the lines which had been forming for about a month stopped when she started using it and her enlarged pores shrank back to normal. I began using it about a month ago and although I wasn't forming new scars after stopping GC, it did reduce my pores back to their normal size. I'm not sure if it will help the scars at all, but it does have alpha lipoic acid in it and it has improved my skin noticeably considering what it looked like after the GC. Anyway, just a suggestion.

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(@iloveuk)

Posted : 08/06/2010 7:45 pm

Just wanted to say that I had my appointment with the dermatologist today. He told me I was delusional and just had wrinkles and that scars could not appear out of nowhere. He saw these linear scars but said it was part of the aging process. He also said that vitamin a/accutane could never cause this and I should see a psychiatrist for even thinking that could be the cause. He tried to give me Retin-A and I refused (for obvious reasons). He then said I should just go get laser done and all my problems will be solved. I asked him if laser was really appropriate for someone whose face is inflaming and scarring out of nowhere and can't tolerate any topicals and again he told me I was making it up. So, I'm sitting here with a burning, scarring face and have gotten no help from the medical community whatsoever. I'm glad that I pretty much told him off and walked out of his office. I am actually thinking I will just schedule laser tomorrow. Hey why not, I doubt it could get much worse. I am so distraught and getting no help whatsoever and getting more linear scars and shapes forming by the day. Oh yeah, Emu Oil was a BAD mistake. It made my face burn like nothing else and I am still trying to recover from that. It is supposed to be non-irritating and heal the skin - whatever. So that is my rant. LED experiment is halted for now until my face calms down.

 

I got a few new scars and huge pores from using Green Cream 9 (retinol). I read on another site about someone using Green Cream and developing the same thing as you - linear scars and weird squiggly lines, also enlarged pores. Anyway, she said she started using Derma E's Alpha Lipoderm and the lines which had been forming for about a month stopped when she started using it and her enlarged pores shrank back to normal. I began using it about a month ago and although I wasn't forming new scars after stopping GC, it did reduce my pores back to their normal size. I'm not sure if it will help the scars at all, but it does have alpha lipoic acid in it and it has improved my skin noticeably considering what it looked like after the GC. Anyway, just a suggestion.

 

 

Thank you, this is why I post here. I like to hear new ideas and suggestions. I am astounded that these creams and things which are supposed to HELP with skin problems actually cause more! I Mean, it's freakish and insane. This problem needs to be brought to the attention of more derms because they are prescribing retinoids like candy and then denying that scars can appear out of nowhere. I personally haven't used retinoids for at least 8 years but it sounds like they are just as troublesome as accutane/vitamin a. And to think this derms yesterday was trying to give me retin-a for this problem...good lord

 

Anyway, I will look up this cream. I am TERRIFIED to use topicals right now since anything I put on seems to inflame me more, but for what it's worth I will look into it. I wonder if Alpha Lipoic Acid supplementation would help - I took it for awhile in the beginning of this ordeal but ran out and never bought it again. My kitchen counter looks like a vitamin shop as it is, might as well as another to the list.

 

Thanks for your input again - that's what I come here for - constructive advice and mutual support and exchange of ideas. By the way did your scars just look like connected pores or what? Did your skin burn or feel irritated before they formed? I'm always curious as to how this manifests in others

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(@amyelizabeth94)

Posted : 08/06/2010 9:49 pm

Hi there,

Have you heard about Nia24? It's a pretty expensive cream, but I've heard great things about it's ability to heal skin. I just started using the Intensive recovery complex to heal my skin after over exfoliation. You should look into it.

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(@iloveuk)

Posted : 08/06/2010 10:00 pm

Hi there,

Have you heard about Nia24? It's a pretty expensive cream, but I've heard great things about it's ability to heal skin. I just started using the Intensive recovery complex to heal my skin after over exfoliation. You should look into it.

 

I've vaguely heard of it but will have to look into it further. Thanks! Hope it really helps you

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(@iloveuk)

Posted : 08/06/2010 10:00 pm

Hi there,

Have you heard about Nia24? It's a pretty expensive cream, but I've heard great things about it's ability to heal skin. I just started using the Intensive recovery complex to heal my skin after over exfoliation. You should look into it.

 

I've vaguely heard of it but will have to look into it further. Thanks! Hope it really helps you

 

OK edited to add that I just looked it up and I guess the reason it sounded familiar is that I was given some samples of it a few months ago but after reviewing the ingredients I found a few that I have known allergies to. Bummer, because it sounds effective

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(@zenergy)

Posted : 08/07/2010 8:36 am

 

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(@goodlife)

Posted : 08/09/2010 10:39 am

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

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(@iloveuk)

Posted : 08/09/2010 5:31 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

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(@goodlife)

Posted : 08/09/2010 5:42 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

 

 

That's good, you won't go wrong talking to him, was also very helpful to me.

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(@iloveuk)

Posted : 08/09/2010 6:21 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

 

 

That's good, you won't go wrong talking to him, was also very helpful to me.

 

 

Goodlife, if you don't mind me asking, has your AMVC stopped? Have the scars diminished on their own or have you used any therapy to get rid of them (dermaroller, needling,etc.)? Just would like to know how your progress has been?

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2
(@goodlife)

Posted : 08/09/2010 6:34 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

 

 

That's good, you won't go wrong talking to him, was also very helpful to me.

 

 

Goodlife, if you don't mind me asking, has your AMVC stopped? Have the scars diminished on their own or have you used any therapy to get rid of them (dermaroller, needling,etc.)? Just would like to know how your progress has been?

 

 

Of course I don't mind, no problem.

 

Yeah it stopped after I stopped taking the fish oil. I had fingernail like scars appear and they seem to have diminished somewhat on there own, I have not had any treatment. The good thing is that these scars are usually quite shallow and do respond well to treatment.

 

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MemberMember
3
(@iloveuk)

Posted : 08/09/2010 6:45 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

 

 

That's good, you won't go wrong talking to him, was also very helpful to me.

 

 

Goodlife, if you don't mind me asking, has your AMVC stopped? Have the scars diminished on their own or have you used any therapy to get rid of them (dermaroller, needling,etc.)? Just would like to know how your progress has been?

 

 

Of course I don't mind, no problem.

 

Yeah it stopped after I stopped taking the fish oil. I had fingernail like scars appear and they seem to have diminished somewhat on there own, I have not had any treatment. The good thing is that these scars are usually quite shallow and do respond well to treatment.

 

 

Awesome, I'm happy to hear that they diminished for you. Some that I have gotten already seem to have faded a bit, while others have actually grown over time. Most are pretty shallow but are irregularly shaped and really catch my eye, while others are a bit deeper. I'm looking to have needling done on them in the future - the hard part is living with them until then :(

 

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MemberMember
2
(@goodlife)

Posted : 08/09/2010 6:56 pm

Back at the org after a short break. I am a little surprised to see this thread have so many pages, I didn't expect that when I started it.

 

The best person to talk to on this topic was unfortunately driven away from this site, despite only ever trying to help people. There are some absolute ***** here. ;)

 

lamarr1986 is the man to speak to for anyone still suffering with this.

 

You are right, he's the man. I have been privately e-mail chatting with Lamarr for a couple of weeks and he has been very helpful. I still am posting here though because I'm curious as to how others are doing who have experienced this - if they've had improvements over time or what.

 

 

That's good, you won't go wrong talking to him, was also very helpful to me.

 

 

Goodlife, if you don't mind me asking, has your AMVC stopped? Have the scars diminished on their own or have you used any therapy to get rid of them (dermaroller, needling,etc.)? Just would like to know how your progress has been?

 

 

Of course I don't mind, no problem.

 

Yeah it stopped after I stopped taking the fish oil. I had fingernail like scars appear and they seem to have diminished somewhat on there own, I have not had any treatment. The good thing is that these scars are usually quite shallow and do respond well to treatment.

 

 

Awesome, I'm happy to hear that they diminished for you. Some that I have gotten already seem to have faded a bit, while others have actually grown over time. Most are pretty shallow but are irregularly shaped and really catch my eye, while others are a bit deeper. I'm looking to have needling done on them in the future - the hard part is living with them until then :(

 

 

Thank you.

 

Having discussed this with lamarr, I'm sure you have too, they respond very well to needling. You should be really positive about improving them, I have seen his before and after pics and he had amazing results.

 

Stick with talking to him, he really knows what he is talking about. I felt the same way you are now and he helped me through a tough time.

 

I have posted some recent pics of me here http://www.acne.org/messageboard/POST-PICS...&start=1540 , but unfortunately I don't have any pics of when these scars started appearing.

 

 

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MemberMember
3
(@carolina-rain)

Posted : 08/09/2010 7:05 pm

Hey Iloveuk, I cant believe that derm was so insensitive but then again yea I CAN believe it! We give so much credit to doctors thinking that they have been through so many years of school and theyve seen it all. But not always when its something they havnt been trained to see. Its totally different when an idividual is actually experiencing it themselves and has done a ton of research on that one single issue. And they have been trained to throroughly back some of these products as they represent big $$$ to their livelyhood.I know that such side effects may be rare with retin-a but I doubt even if it were not rare that they would admit it could contribute to what we have experienced. Just look at the pharmaceutical industry and every new pill that comes out and all the lawsuits that follow many of them. I have had more side effects from medications that were even clearly listed as a side effect on the prescibers website. Alongside those side effects were other countless individuals who were suffering the exact same side effects and I have had most if not ALL doctors deny that the medication could do that! And they then love to insenuate that you are nuts.

 

People that decide to make such snap decisions agreeing with them because they are doctors have clearly not ran the full gambut of trying to get answers from the medical community... especially for a rare disorder! Most of them are taught to treat much more common skin disorders and usually give typical diagnosis with typical medications. Usually its that one rare doctor that has had extensive training in these areas and isnt as interested in getting a buck over really listening to the patient that will finally confirm that you are not going nuts.And in this day and age I feel doctors need to start realizing that with access to the computer and alot of time clients can sometimes come in with a better idea of what may be going on than they may think.The fact that he stated that scars dont appear out of nowhere shows he doesnt know anything about AMVC.All he needed to do was google it!

 

Its just so much easier for them to dismiss these things and go on to the next typical patient. I have also had these weird scarred pores and squiggly lines that connect to make weird shapes and patterns overnight but with no burning that preceded it. There may not be a ton of people that have this but there are clearly enough to warrant that its not in our freaking head! I wish Lammar was still on here also... please pass along anything helpful he tells you and Ill do the same if something works for me. But hang in there cause I know its hard enough having this go on with your skin and having other people trying to tell you your crazy...hey if your crazy then theres alot of nuts on this thread, including me, LOL !

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