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Shouldn't there be a website or something where we can read about verteporfin's progress, what stage clinical trial it's in, etc.? Lots of drugs have websites that do just that.
On 2/15/2022 at 9:43 AM, lehran said:Been a long time since I came here fellas:
About Elastagen: the reason you're not hearing about anything is because of a NDA. Elastagen was first acquired by Allergan (a big pharmaceutical company) which was afterwards acquired by Abbvie (one of the biggest pharmaceutical companies in the world)...sooooo basically yes, it is in the pipeline obviously, they're working on it in their labs, but you're not going to hear about anything regarding it until Abbvie chooses to do so.
It's good news...but it's frustrating: it's good in the sense that it's really going to happen, but it's frustrating in the sense that we have very little ways to find out anything else about it.
Do you know what happened to the clinical reports that were supposed to come out including before/after pictures and clinical safety ,etc? I saw a few people saying that it would be released at the end of the year in 2021, but no updates for a while from elastagen
13 hours ago, Reee69420 said:Longakers lab has a Twitter, but the last post was back in August 2021. I really want to see the results of verteporfin on the pig model. I really want this to work.
Someone I know emailed him and he emailed back saying that the results will be published this year!
On 3/11/2022 at 3:45 PM, ScarfromtheLionKing said:Shouldn't there be a website or something where we can read about verteporfin's progress, what stage clinical trial it's in, etc.? Lots of drugs have websites that do just that.
https://doctrc.org/wp-content/uploads/2021/06/SummaryComingSoon-1.pdf
This website will post their project summary when they have a plan for clinical trials. No information as of now, but clinical trials will probably start late 2022 or 2023.
So the verteporfin pig study could be published within the next few months and human clinical trials would begin late 2022 or early 2023?
Previous posts also said people would try verteporfin off-label if the pig study was successful and not wait for the clinical trials. I would totally try that.
https://clinicaltrials.gov/ct2/show/NCT05223998?cond=skin+wound#contacts Microcoring trials, seems still LFM to join.
Lots of bad news.
1. Verteporfin apparently doesn't work. This plastic surgeon says it's not helpful. I understand it hasn't been through all the clinical trials yet, but since he is a plastic surgeon I'm guessing he has tried the drug and found it to be ineffective. I'm really, really hoping that he's just wrong or dishonest, but I think that view is irrational. It's in the post "Scar revision with off-label use of Verteporfin?" on Realself: https://www.realself.com/question/los-angeles-california-tats-unis-scar-revision-label-verteporfin
2. Microcoring is not being tested for acne scars. I talked to Cytrellis, the company that owns Ellacor, and they said they had no plans for doing trials with acne scars. Then again, there was that clinical trial posted ^above that says it's being tested for skin regeneration. So maybe they just meant it wasn't being tested for acne scars specifically? Maybe they were misinformed? Or maybe it is being tested by a company other than Cytrellis?
5 hours ago, ScarfromtheLionKing said:Lots of bad news.
1. Verteporfin apparently doesn't work. This plastic surgeon says it's not helpful. I understand it hasn't been through all the clinical trials yet, but since he is a plastic surgeon I'm guessing he has tried the drug and found it to be ineffective. I'm really, really hoping that he's just wrong or dishonest, but I think that view is irrational. It's in the post "Scar revision with off-label use of Verteporfin?" on Realself: https://www.realself.com/question/los-angeles-california-tats-unis-scar-revision-label-verteporfin
2. Microcoring is not being tested for acne scars. I talked to Cytrellis, the company that owns Ellacor, and they said they had no plans for doing trials with acne scars. Then again, there was that clinical trial posted ^above that says it's being tested for skin regeneration. So maybe they just meant it wasn't being tested for acne scars specifically? Maybe they were misinformed? Or maybe it is being tested by a company other than Cytrellis?
It's pretty early to base something on an apparent plastic's surgeon's own point of view, when they haven't done any actual tests on patient's with Verteporfin? It's still very much in clinical trials atm and it's going to need ACTUAL evidence like trials and such to prove it doesn't work. This Doctor, has everything to lose by promoting verteporfin as opposed to his own methods and procedures that he can charge thousands and thousands dollars for less than 5% improvement? Emer has nothing to gain by promoting or by being neutral to a future scar treatment since it's gives patients hope for something better than they have now, right?
The thing is, I think this plastic surgeon in the thread I mentioned has tested the drug. I don't see how he could make the claim if he hadn't. I suppose his testwouldn't be as thorough as a full clinical trial, but you only need to test it on a few people to know if it works or not.
And I do see your point about him wanting to promote more costly, currently available scar treatments, but I doubt that this motivation would lead him to lie brazenly in a way that everyone can see.
5 hours ago, ScarfromtheLionKing said:The thing is, I think this plastic surgeon in the thread I mentioned has tested the drug. I don't see how he could make the claim if he hadn't. I suppose his testwouldn't be as thorough as a full clinical trial, but you only need to test it on a few people to know if it works or not.
And I do see your point about him wanting to promote more costly, currently available scar treatments, but I doubt that this motivation would lead him to lie brazenly in a way that everyone can see.
Trust me he appears to be the type of guy that would, also he definitely hasn't tried it or he would have backed it up with some data .
On 3/23/2022 at 8:47 AM, ScarfromtheLionKing said:The thing is, I think this plastic surgeon in the thread I mentioned has tested the drug. I don't see how he could make the claim if he hadn't. I suppose his testwouldn't be as thorough as a full clinical trial, but you only need to test it on a few people to know if it works or not.
And I do see your point about him wanting to promote more costly, currently available scar treatments, but I doubt that this motivation would lead him to lie brazenly in a way that everyone can see.
Give me a proof that he has used it and that it has not worked and I will believe you, until then it's BULLSHIT.
On 3/22/2022 at 6:53 PM, ScarfromtheLionKing said:Lots of bad news.
1. Verteporfin apparently doesn't work. This plastic surgeon says it's not helpful. I understand it hasn't been through all the clinical trials yet, but since he is a plastic surgeon I'm guessing he has tried the drug and found it to be ineffective. I'm really, really hoping that he's just wrong or dishonest, but I think that view is irrational. It's in the post "Scar revision with off-label use of Verteporfin?" on Realself: https://www.realself.com/question/los-angeles-california-tats-unis-scar-revision-label-verteporfin
2. Microcoring is not being tested for acne scars. I talked to Cytrellis, the company that owns Ellacor, and they said they had no plans for doing trials with acne scars. Then again, there was that clinical trial posted ^above that says it's being tested for skin regeneration. So maybe they just meant it wasn't being tested for acne scars specifically? Maybe they were misinformed? Or maybe it is being tested by a company other than Cytrellis?
If you would have read the forum previously, then you would have seen this has already been posted in regards to verteporfin. He literally responds to every real itself question. Its probably not even him, just one of his staff members.
9 hours ago, gueste said:If you would have read the forum previously, then you would have seen this has already been posted in regards to verteporfin. He literally responds to every real itself question. Its probably not even him, just one of his staff members.
I saw afterwards that this had been mentioned in the forum. I hope you're right about him just trying to half-assedly answer every question, and that he is wrong about it.
Emer....Lol
Do we know of anyone who may have actually tried verteporfin off label yet (and has data to back it up)?
6 hours ago, Reee69420 said:Do we know of anyone who may have actually tried verteporfin off label yet (and has data to back it up)?
People are self testing it as of now. Well see the results in like 3 months or so from now.
On 3/22/2022 at 9:53 PM, ScarfromtheLionKing said:Lots of bad news.
1. Verteporfin apparently doesn't work. This plastic surgeon says it's not helpful. I understand it hasn't been through all the clinical trials yet, but since he is a plastic surgeon I'm guessing he has tried the drug and found it to be ineffective. I'm really, really hoping that he's just wrong or dishonest, but I think that view is irrational. It's in the post "Scar revision with off-label use of Verteporfin?" on Realself: https://www.realself.com/question/los-angeles-california-tats-unis-scar-revision-label-verteporfin
2. Microcoring is not being tested for acne scars. I talked to Cytrellis, the company that owns Ellacor, and they said they had no plans for doing trials with acne scars. Then again, there was that clinical trial posted ^above that says it's being tested for skin regeneration. So maybe they just meant it wasn't being tested for acne scars specifically? Maybe they were misinformed? Or maybe it is being tested by a company other than Cytrellis?
This is false. There is/was a clinical trial in Miami for micro-coring on acne scar patients. It's been going on since 2018. https://www.clincosm.com/trial/scars-miami-mcd
I've been to this office several times, very poorly run but Dr. Waibel is behind this study so if there are any questions pertaining to microcoring on Acne scars, she would know.
I've already inquired today about micro-coring for myself and anemployee invited me in for a "consult" to see Dr. Waibel. Probably to get me in and sell me another procedureinstead of answering my question.The issue is that this office is so poorly run that they make you wait three hours for a consult no matter what and the Doctor is not very personable.
There is also another doctor, a plastic surgeon in Boca,Dr. Jason Pozner,who has the micro-coring device but I doubt he cares to use it for acne scarring. I've also personally seen and spoken to this doctor once about my scarring previously in 2020. But I digress.
Perhaps emailing these doctors for questions on micro-coring for acne scarring would produce answers but it's hard to tell. I would try to email Pozner before Waibel, I strongly dislike Waibel.
On 3/27/2022 at 8:16 PM, gueste said:People are self testing it as of now. Well see the results in like 3 months or so from now.
Are you guessing 3 months? Its been almost a year since The NY Times article about verteporfin and scarring in mice and no one has tried it off label yet (as far as I know). Why in 3 months or so?
1 hour ago, Reee69420 said:Are you guessing 3 months? Its been almost a year since The NY Times article about verteporfin and scarring in mice and no one has tried it off label yet (as far as I know). Why in 3 months or so?
I believe thats how long the study stated it takefor the slower healing process to be complete
What are they actually doing? Excising a scar,injecting verteporfin upon wound closure, then waiting 30 days?