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My (F19) accutane telogen effluvium journey (PICS)

 
MemberMember
79
(@chicanery)

Posted : 07/02/2018 6:12 pm

I've had normal shedding for a full month!! :) This works in cycles, but I am now feeling fairly confident that I will never go bald from this

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Karly123@, MeritNorth, flowerpower123 and 9 people reacted
MemberMember
56
(@flowerpower123)

Posted : 07/03/2018 11:44 am

Omg AMAZING. Are u so happy? Maybe this is the end for you? Have u being doing anything different?

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MemberMember
79
(@chicanery)

Posted : 07/06/2018 5:55 pm

On 03/07/2018 at 5:44 PM, flowerpower123 said:

Omg AMAZING. Are u so happy? Maybe this is the end for you? Have u being doing anything different? 

Aw thanks so much! I'm absolutely delighted to have some relief, but I think it will probably be temporary as this seems to work in cycles. However, I'm keeping my fingers crossed and will keep updating! I haven't been doing anything different - still using minoxidil :)

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A1992, Karly123@, A1992 and 3 people reacted
MemberMember
56
(@flowerpower123)

Posted : 07/07/2018 5:18 am

Its great you really stuck with the minoxidil! So happy for you. Keep us updated. Does minoxidil irritate your scalp at all? Are u still washing it daily and applying it?

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MemberMember
49
(@karly123)

Posted : 07/09/2018 10:06 am

i believe this is a cycle. My hair in the parietal front is back! I'm not using minoxidil. I use to wash my hair every day. Using aloe vera shampoo.

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MemberMember
48
(@a1992)

Posted : 07/09/2018 11:10 am

On 7/6/2018 at 3:55 PM, chicanery said:
Aw thanks so much! I'm absolutely delighted to have some relief, but I think it will probably be temporary as this seems to work in cycles. However, I'm keeping my fingers crossed and will keep updating! I haven't been doing anything different - still using minoxidil :)

I actually highly believe its the minoxidil that is finally kicking in. it takes 4 to 6 months for it to actually work. on the plus side u wont be bald, yay! and over time you hair may get thicker too. 

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MemberMember
47
(@meritnorth)

Posted : 07/12/2018 9:44 pm

My shedding has been less recently as well! I'm so happy to hear positive updates from you all 🙂

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MemberMember
79
(@chicanery)

Posted : 07/16/2018 7:28 am

My hair is so much thicker than it was this time last year. I have "nice hair" again!!! It's not what it used to be, but it's 70% there and I'm absolutelydelighted. It lacks some density but it's long, healthy, shiny and my parting is normal. I do believe this runs in cycles and is probably autoimmune, so we may never be "cured", but it seems that topical growth stimulants help. I'll keep coming back to update!

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MeritNorth, A1992, flowerpower123 and 9 people reacted
MemberMember
48
(@a1992)

Posted : 07/16/2018 3:20 pm

@chicanery
Thats such good news! How long it's been that u got off Accutane?

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MemberMember
79
(@chicanery)

Posted : 07/17/2018 8:38 am

17 hours ago, A1992 said:
@chicanery
Thats such good news! How long it's been that u got off Accutane? 
 

Thank you! I've been off it for 2 full years now :)

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MeritNorth, A1992, Karly123@ and 6 people reacted
MemberMember
48
(@a1992)

Posted : 07/25/2018 1:32 pm

Hows everyone doing?
My shedding is not great, probably 150-200 hair day. lucky its not thinning, sometimes it grows back even thicker and kinkier but just sheds sooo much. no minoxidil, been only taking biotin and zinc.
hope everyone surviving!

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MemberMember
56
(@flowerpower123)

Posted : 07/29/2018 7:21 am

On 25/07/2018 at 7:32 PM, A1992 said:

Hows everyone doing?
My shedding is not great, probably 150-200 hair day. lucky its not thinning, sometimes it grows back even thicker and kinkier but just sheds sooo much. no minoxidil, been only taking biotin and zinc. 
hope everyone surviving!  

Mine is still the same. Shedding as what I would consider severely, I think I will try the minox again maybe :( 

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MemberMember
22
(@lotus001)

Posted : 07/31/2018 12:08 am

Hi everybody! First off, I just wanna say how thankful I am to have found this thread! Before I ended up here, I was moving from derma to derma looking for different opinions but they all ended up not really knowing how to deal with the situation properly. Most of them resulted in prescribing me with rogaine 5% foam. Thankfully my new derma already knew many of the side effects of accutaneand was aware of the amount of hair loss. One BIG problem is that since I'm a 19 yr old male with hairloss on my mother's side, the temples are more susceptibleto receding due to MPB but I knew that without taking accutane, this probably would've happened a lot later. For those of you whom are male viewers and are going through post accutanehair loss, the side effects in my case were rapid hair loss and I was able to count the fallen 30-40 strands every day. This doesn't even include the hairs that fall out unnoticeably throughout the day. My hair was also thinning and as I mentioned before my temples were also receding. The crown was also a little bit easier to see but it's not too bad now.

As for my dosage, I started off with 20 mg in September which is light. In October, I bumped up to 40 mg and this lasted until the mid of November when I was once again bumped to 60 mg. Once mid-December hit, for some reason, my dermatologist wanted to bump me to 80 mg. Being the UNEDUCATED SWINE I was, I believed him when he said that, "It's just to make sure that your acne gets out of your system." So I went along with it. I stopped my accutane treatment on March 23. By this time about a good 30-35% of my hair was gone.

The entire time I was taking accutane, I was skeptical mainly because of how much hair was falling out. At the end of November, I noticed that my scalp was visible. I had noticed this because I usually had my hair styled upwards and I was starting to somewhat see the outline of my head through my hair. I was worried so I booked an appointment with the derma who prescribed the accutane to me and he told me that it was a side effect that would go away and that my hair would grow back. Throughout December my hair was still THICC enough to style which I was alright with until I noticed my temples were starting to creep a bit. It was then that I panicked and throughout January my hair was falling out rapidly. My scalp was much easier to see and my hair was harder to style so I BUZZED IT ALL OFF. Most people would say that my temples receding because of the accutaneis a bogus idea. I'm aware that it accelerates MPB but one thing that confirmed it was when my barber that I visit every month asked if my hairline was always receded. He knew because he usually gives my hairline a lineup to make it straight but it just wasn't possible at this point. In fact, he wasn't the only barber to notice this either.

Since June, I noticed that my long hairs weren't starting to fall out anymore so I thought the TELOGEN EFFLUVIUM had subsided. But MAN WAS I FUCKING WRONG! Now I am losing 2-3 cm hairs now. To top this off, my skin is becoming oiler and I'm getting some acne here and there. Thankfully I'm following a new skin care routine.

Overall, don't take accutane. Doctors are lying to you when they say it's the best treatment for acne. In fact, it was originally supposed to treat cancer but instead, it's making us look like WE HAVE CANCER LMAO! I'm currently taking the men's rogaine minoxidil 5% foam. I just started it on the 30th. I've been working out since 2 years ago and have been drinking green tea as much as I could. I've been trying to get enough protein in my diet. However, the rest of my diet still sucks and I still have to work on my poor sleeping habits due to college.

Anyways, that's my story for both the females and males going through this hell. Moral of the story is do your research, don't do drugs, and don't do accutane. If you're panicking right now, don't because it'll only make things worse and you'll end up buzzing your head like an idiot (unless you have a nice looking shaped head). If your hair loss is indeed as terrible as you think or say it is, keep your hairstyle short so it doesn't curl or kink. Find a nice hat that you look good in to hide it. I find that this helped me a lot. Lastly your final resort would be to own it.

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chicanery, MeritNorth, A1992 and 6 people reacted
MemberMember
48
(@a1992)

Posted : 08/01/2018 10:58 am

On 7/30/2018 at 10:08 PM, Lotus001 said:

Hi everybody! First off, I just wanna say how thankful I am to have found this thread! Before I ended up here, I was moving from derma to derma looking for different opinions but they all ended up not really knowing how to deal with the situation properly. Most of them resulted in prescribing me with rogaine 5% foam. Thankfully my new derma already knew many of the side effects of accutaneand was aware of the amount of hair loss. One BIG problem is that since I'm a 19 yr old male with hairloss on my mother's side, the temples are more susceptibleto receding due to MPB but I knew that without taking accutane, this probably would've happened a lot later. For those of you whom are male viewers and are going through post accutanehair loss, the side effects in my case were rapid hair loss and I was able to count the fallen 30-40 strands every day. This doesn't even include the hairs that fall out unnoticeably throughout the day. My hair was also thinning and as I mentioned before my temples were also receding. The crown was also a little bit easier to see but it's not too bad now.

As for my dosage, I started off with 20 mg in September which is light. In October, I bumped up to 40 mg and this lasted until the mid of November when I was once again bumped to 60 mg. Once mid-December hit, for some reason, my dermatologist wanted to bump me to 80 mg. Being the UNEDUCATED SWINE I was, I believed him when he said that, "It's just to make sure that your acne gets out of your system." So I went along with it. I stopped my accutane treatment on March 23. By this time about a good 30-35% of my hair was gone.

The entire time I was taking accutane, I was skeptical mainly because of how much hair was falling out. At the end of November, I noticed that my scalp was visible. I had noticed this because I usually had my hair styled upwards and I was starting to somewhat see the outline of my head through my hair. I was worried so I booked an appointment with the derma who prescribed the accutane to me and he told me that it was a side effect that would go away and that my hair would grow back. Throughout December my hair was still THICC enough to style which I was alright with until I noticed my temples were starting to creep a bit. It was then that I panicked and throughout January my hair was falling out rapidly. My scalp was much easier to see and my hair was harder to style so I BUZZED IT ALL OFF. Most people would say that my temples receding because of the accutaneis a bogus idea. I'm aware that it accelerates MPB but one thing that confirmed it was when my barber that I visit every month asked if my hairline was always receded. He knew because he usually gives my hairline a lineup to make it straight but it just wasn't possible at this point. In fact, he wasn't the only barber to notice this either.

Since June, I noticed that my long hairs weren't starting to fall out anymore so I thought the TELOGEN EFFLUVIUM had subsided. But MAN WAS I FUCKING WRONG! Now I am losing 2-3 cm hairs now. To top this off, my skin is becoming oiler and I'm getting some acne here and there. Thankfully I'm following a new skin care routine.

Overall, don't take accutane. Doctors are lying to you when they say it's the best treatment for acne. In fact, it was originally supposed to treat cancer but instead, it's making us look like WE HAVE CANCER LMAO! I'm currently taking the men's rogaine minoxidil 5% foam. I just started it on the 30th. I've been working out since 2 years ago and have been drinking green tea as much as I could. I've been trying to get enough protein in my diet. However, the rest of my diet still sucks and I still have to work on my poor sleeping habits due to college.

Anyways, that's my story for both the females and males going through this hell. Moral of the story is do your research, don't do drugs, and don't do accutane. If you're panicking right now, don't because it'll only make things worse and you'll end up buzzing your head like an idiot (unless you have a nice looking shaped head). If your hair loss is indeed as terrible as you think or say it is, keep your hairstyle short so it doesn't curl or kink. Find a nice hat that you look good in to hide it. I find that this helped me a lot. Lastly your final resort would be to own it.

HAHA! thanks for telling us we all gonna get bald!
Why dont you try rogain? it actually works. better than being bald I guess

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Lotus001, chicanery, Lotus001 and 3 people reacted
MemberMember
47
(@meritnorth)

Posted : 08/01/2018 10:34 pm

On 7/29/2018 at 7:21 AM, flowerpower123 said:
Mine is still the same. Shedding as what I would consider severely, I think I will try the minox again maybe :( 

@flowerpower123 @A1992 how long have you been off Accutane?

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MemberMember
56
(@flowerpower123)

Posted : 08/02/2018 4:58 pm

18 hours ago, MeritNorth said:
@flowerpower123 @A1992 how long have you been off Accutane?

1.5 years! How™s your shedding doing? :)

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MemberMember
2
(@layla95)

Posted : 08/05/2018 4:30 pm

Hi guys,

Ive been following this thread for a while and its been really comforting to see Im not the only one going through this.

3 months after a successful Accutane treatment (around December 2017) I noticed my hair looking incredibly thin at my temples and on the back on of my head. Of course, I immediately panicked and booked a derm appointment. I cant even count the number of derms Ive been to at this point, all of which assured me it was TE and would stop on its own.

Fastforward to this past June, my hair shedding finally went back to being pretty normal and my temples and back of my head almost are thickened back to what they use to be. However, within he last 4 months or so, the very front of my hairline (not the entire hairline) has been receding/ thinning drastically. Id say its back maybe 3/4 of an inch at this point. When I look at it, I see some short hairs, but theyre sparse and dont look very thick at all. Definitely not enough to give me any coverage.

Im wondering if any of you have experienced this kind receding with your TE and what youre doing to grow it back? Im worried because sometimes thats a sign of genetic hair loss. Ive been using 5% minoxidil foam for a few weeks, but, its too soon to tell if its helping. Any advice would be great. I feel like this hair loss thing is taking over my life.

Quote
MemberMember
48
(@a1992)

Posted : 08/07/2018 11:58 am

On 8/5/2018 at 2:30 PM, Layla95 said:

Hi guys,

Ive been following this thread for a while and its been really comforting to see Im not the only one going through this.

3 months after a successful Accutane treatment (around December 2017) I noticed my hair looking incredibly thin at my temples and on the back on of my head. Of course, I immediately panicked and booked a derm appointment. I cant even count the number of derms Ive been to at this point, all of which assured me it was TE and would stop on its own.

Fastforward to this past June, my hair shedding finally went back to being pretty normal and my temples and back of my head almost are thickened back to what they use to be. However, within he last 4 months or so, the very front of my hairline (not the entire hairline) has been receding/ thinning drastically. Id say its back maybe 3/4 of an inch at this point. When I look at it, I see some short hairs, but theyre sparse and dont look very thick at all. Definitely not enough to give me any coverage.

Im wondering if any of you have experienced this kind receding with your TE and what youre doing to grow it back? Im worried because sometimes thats a sign of genetic hair loss. Ive been using 5% minoxidil foam for a few weeks, but, its too soon to tell if its helping. Any advice would be great. I feel like this hair loss thing is taking over my life.

Minoxidil works, just give it few months and commit to it. other than that dont worry too much, dont obsess, dont pull ur hair out, dont use chemicals, no dryer, biotin helps, dont shampoo too much ....

Quote
MemberMember
56
(@flowerpower123)

Posted : 08/08/2018 3:14 pm

On 07/08/2018 at 5:58 PM, A1992 said:
On 05/08/2018 at 10:30 PM, Layla95 said:

Hi guys,

Ive been following this thread for a while and its been really comforting to see Im not the only one going through this.

3 months after a successful Accutane treatment (around December 2017) I noticed my hair looking incredibly thin at my temples and on the back on of my head. Of course, I immediately panicked and booked a derm appointment. I cant even count the number of derms Ive been to at this point, all of which assured me it was TE and would stop on its own.

Fastforward to this past June, my hair shedding finally went back to being pretty normal and my temples and back of my head almost are thickened back to what they use to be. However, within he last 4 months or so, the very front of my hairline (not the entire hairline) has been receding/ thinning drastically. Id say its back maybe 3/4 of an inch at this point. When I look at it, I see some short hairs, but theyre sparse and dont look very thick at all. Definitely not enough to give me any coverage.

Im wondering if any of you have experienced this kind receding with your TE and what youre doing to grow it back? Im worried because sometimes thats a sign of genetic hair loss. Ive been using 5% minoxidil foam for a few weeks, but, its too soon to tell if its helping. Any advice would be great. I feel like this hair loss thing is taking over my life.

Minoxidil works, just give it few months and commit to it. other than that dont worry too much, dont obsess, dont pull ur hair out, dont use chemicals, no dryer, biotin helps, dont shampoo too much ....

Have u tried minoxidil?

Quote
MemberMember
79
(@chicanery)

Posted : 08/13/2018 3:32 pm

Aaaah my hair is back to shedding again - this does run in cycles! It's looking good though, and I'm working towards feeling psychologically free from this problem. It doesn't affect me as much as it used to, since my hair DOES remain relatively nice. Gotta remind myself that 1 month of shedding *won't* make much of a difference

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Jocelyn82, accutanehairloss, MeritNorth and 15 people reacted
MemberMember
56
(@flowerpower123)

Posted : 08/15/2018 8:23 am

This is quiet a good positive video. This girl also found rogaine worked. Chicanery she said Her shedding stopped and then started again! But it does stop!

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MemberMember
49
(@karly123)

Posted : 08/25/2018 5:51 pm

so how are you guys? her still shedding. i wash my hair everyday, no minoxidil. 1.6 off of roaccutane.

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MemberMember
48
(@a1992)

Posted : 08/27/2018 11:07 am

1 year 3 months off accutane. started minoxidil 27 days a ago. horrendous shedding but thats related to monoxidil (hopefully). :S

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MemberMember
6
(@accutanehairloss)

Posted : 08/29/2018 5:21 pm

Hey guys - F22 here. I've been suffering with severe accutane hair loss for the past 1.5 years (it started during my course) and i'm so sick of having to deal with this trauma. I'm considering trying rogaine but I'm not sure :/

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MeritNorth, chicanery, flowerpower123 and 6 people reacted
MemberMember
6
(@accutanehairloss)

Posted : 09/01/2018 4:44 pm

Just found this article posted by someone who has recovered from accutane hair loss and has thick hair again: [removed]

I've bought the peppermint oil that they've mentioned and will commit to using it for 6 months. Surely if they've had success with that exact product, there is hope for the rest of us?

i've read other good things about peppermint oil and how it increases the rate of hair growth as well as decreasing shedding - praying it helps me! I'll keep updating :) 

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MeritNorth, chicanery, A1992 and 6 people reacted