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Repairing the long-term damage from Accutane

 
MemberMember
35
(@user187201)

Posted : 02/11/2013 12:47 am

I'd already signed that long ago Ive just realized.

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MemberMember
9
(@bohemian)

Posted : 02/11/2013 12:49 am

 

PATTI LODES
I read your pdf. Your pale yellow stools and stringy bits are identical to my stool. I have found a solution to this problem. Please get in touch so I can send you the ebook for you to try. I would be very interested to know why this is happening. I hope my solution, while not a cure, will return you to normal strength and health and weight, as it has me.
The diet is 100% free and the ingredients are cheap and easily available, but it does require changes in diet and maybe sleep pattern. It is easy enough for me to do when so sick I can hardly get up at all for the entire day, so I think you'll be able to do it, if you want to.
GENERAL:
I retested ox bile (cholacol) after getting everything else right. While is does improve stool quality for fatty foods, it is too harsh on my damaged intestinal lining, resulting in mild pain and energy drop. Therefore I've discarded it. UDCA is much milder and better, it seems.
I tried plain organic kefir and it had a tremendous positive effect on energy, sleep, digestion and mood.
ANYONE ELSE WHO HAS PALE STOOL AND SOMETIMES STRINGY, PLEASE GET IN TOUCH.

Oh wow! Found something on the mucous strings right next to the article about bile deficiency. Get to a doctor quick, ideally a naturopathic one that can lead you through a BADLY NEEDED DETOX and screen you for allergies.

http://metabolichealing.com/education/articles/gut-function-intestinal-mucosal-barrier/

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MemberMember
157
(@chico-esposito)

Posted : 02/11/2013 7:08 am

Accutane causes symptoms of hypervitaminosis A (toxic amounts of vitamin A) but also symptoms of vitamin A deficiency. Hopefully i can explain to some of you why that is. There was a study done were they gave people deficient in vitamin A 13 cis retinoic acid (which is accutanes chemical name) and they found that some elements of the vitamin A deficiency improved but some stayed the same. For instance eye function suffered and continued to be as bad in both groups even after supplementing 13 cis retinoic acid. This is because it's Retinol palmitate that the eyes use to help vision not 13 cis retinoic acid. Other functions that use retinol palmitate are testicular function amongst other things. 13 cis retinoic acid is basically whats in control of skin shedding (differentiating epithelial tissues) thats why it works for acne because it switches off the sebum glands and causes the skin to shed at an advanced rate. Whereas retinol in the from of oily fish has many uses in the body, the body can convert it to retinoic acid if it chooses but it's a very tightly monitered system.

When people eat high amounts of beta carotene in there diet after they suffer from accutane side effects, they dont seem to convert the beta carotene to retinol. Or more importantly the body refuses to convert the beta carotene because it already has the 13 cis retinoic acid in the cell. When these people intake retinol in dietry form the body has to use the retinol because it doesn't have the choice of whether or not to convert it like beta carotene, thats why dietry retinol causes the hot flushes, dry skin etc thats so synonymous with accutane. High beta carotene foods bizzarely seem to increase hair shedding, joint points and eye dryness this is because of the duality of having both large amounts of beta carotene and large amounts of retinoic acid in the body at the same time. Hope that draws some light on why there is a paradox between vitamin A toxicity and deficiency.

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MemberMember
20
(@robert1000)

Posted : 02/11/2013 8:20 am

We need to spread the word about this, we need to take action. The ones who have any emails, numbers, of some medical authorities, labs, scientists , complain boards about accutane or something like that, please post them here and make them public.

If we could find someone who's interested on this case, at least he could fill his pocket with money from the court actions against accutane, and we could get a chance to be cured or treat our side effects. The hell, i'm even willing to testify in the court, if necesarry!

Quote
MemberMember
12
(@bamdaze)

Posted : 02/11/2013 11:29 am

So I've been found to have low sIgA levels, which means my intestinal mucosal lining is damaged. Also I have a rather high white blood cell count. In other words, my immune system is quite busy reacting to all the stuff that enters via the intestines. I will get a sonography of my gallbladder and liver next week and try to get my hands on UCDA. Heres my plan:

1. Get the bile flowing / support digestion / possibly elimination of Accutane

- Epsom Salts

- UCDA

- Olive Oil / Lemon combo

- Taurine

- Apple Cider Vinegar

- Glucaric acid, either by supplementation of Calcium D-Glucarate and/or fruits & veggies

2. Repair mucosal lining / boost sIgA

- L-Glutamine powder

- Zinc

- Vitamin A (via cod liver oil) to replace Accutane if it's still there

- Music

- Humor

- Avoid stress

3. Help the body cope with the symptoms - those things help me temporarily / calm my immune system

- Fish oil

- Raw garlic

- Hypoallergenic foods (i.e. limiting/avoiding gluten, dairy, nuts, additives etc.)

Furthermore I will probably try Triamcinolone or a similar corticosteroid and see if it does anything to reduce the severity of symptoms.

Quote
and1, Robert1000, JosephBuchignani and 9 people reacted
MemberMember
78
(@movingon)

Posted : 02/11/2013 3:27 pm

We need to spread the word about this, we need to take action. The ones who have any emails, numbers, of some medical authorities, labs, scientists , complain boards about accutane or something like that, please post them here and make them public.

If we could find someone who's interested on this case, at least he could fill his pocket with money from the court actions against accutane, and we could get a chance to be cured or treat our side effects. The hell, i'm even willing to testify in the court, if necesarry!

I would just start by google searching. I did areas/locales of people close to home since I know of them/can visit in person if need be. I'm going to do a little bit each week. I will post new stuff if i stumble upon it!

 

 

Isn't cod liver oil dangerous to take after Accutane? What are your guys' thoughts?

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MemberMember
223
(@gladiatoro)

Posted : 02/11/2013 3:53 pm

 

We need to spread the word about this, we need to take action. The ones who have any emails, numbers, of some medical authorities, labs, scientists , complain boards about accutane or something like that, please post them here and make them public.

If we could find someone who's interested on this case, at least he could fill his pocket with money from the court actions against accutane, and we could get a chance to be cured or treat our side effects. The hell, I'm even willing to testify in the court, if necessary!

I would just start by google searching. I did areas/locales of people close to home since I know of them/can visit in person if need be. I'm going to do a little bit each week. I will post new stuff if i stumble upon it!

 

 

Isn't cod liver oil dangerous to take after Accutane? What are your guys' thoughts?

I wouldn't recommend cod liver oil or fish oil of any kind , a few years ago I took fish oil for a month or so and my back seized up for three days , not fun , so NO I wouldn't recommend any fish oil , somehow it interacts with isotretinoin.

Quote
MemberMember
7
(@09eric09)

Posted : 02/11/2013 3:58 pm

Accutane causes symptoms of hypervitaminosis A (toxic amounts of vitamin A) but also symptoms of vitamin A deficiency. Hopefully i can explain to some of you why that is. There was a study done were they gave people deficient in vitamin A 13 cis retinoic acid (which is accutanes chemical name) and they found that some elements of the vitamin A deficiency improved but some stayed the same. For instance eye function suffered and continued to be as bad in both groups even after supplementing 13 cis retinoic acid. This is because it's Retinol palmitate that the eyes use to help vision not 13 cis retinoic acid. Other functions that use retinol palmitate are testicular function amongst other things. 13 cis retinoic acid is basically whats in control of skin shedding (differentiating epithelial tissues) thats why it works for acne because it switches off the sebum glands and causes the skin to shed at an advanced rate. Whereas retinol in the from of oily fish has many uses in the body, the body can convert it to retinoic acid if it chooses but it's a very tightly monitered system.

When people eat high amounts of beta carotene in there diet after they suffer from accutane side effects, they dont seem to convert the beta carotene to retinol. Or more importantly the body refuses to convert the beta carotene because it already has the 13 cis retinoic acid in the cell. When these people intake retinol in dietry form the body has to use the retinol because it doesn't have the choice of whether or not to convert it like beta carotene, thats why dietry retinol causes the hot flushes, dry skin etc thats so synonymous with accutane. High beta carotene foods bizzarely seem to increase hair shedding, joint points and eye dryness this is because of the duality of having both large amounts of beta carotene and large amounts of retinoic acid in the body at the same time. Hope that draws some light on why there is a paradox between vitamin A toxicity and deficiency.

Thanks for the info, but is there any way fix this?

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MemberMember
8
(@anon333)

Posted : 02/11/2013 5:48 pm

 

We need to spread the word about this, we need to take action. The ones who have any emails, numbers, of some medical authorities, labs, scientists , complain boards about accutane or something like that, please post them here and make them public.

If we could find someone who's interested on this case, at least he could fill his pocket with money from the court actions against accutane, and we could get a chance to be cured or treat our side effects. The hell, I'm even willing to testify in the court, if necessary!

I would just start by google searching. I did areas/locales of people close to home since I know of them/can visit in person if need be. I'm going to do a little bit each week. I will post new stuff if i stumble upon it!

 

 

Isn't cod liver oil dangerous to take after Accutane? What are your guys' thoughts?

I wouldn't recommend cod liver oil or fish oil of any kind , a few years ago I took fish oil for a month or so and my back seized up for three days , not fun , so NO I wouldn't recommend any fish oil , somehow it interacts with isotretinoin.

I took fish oil capsules all 5 months while on Roaccutane. It's because I thought it would help with my lower back pain caused by the med.

This was actually one of the side effects for me. Beside bloody stools and eventually-hives. I stopped before i completed the course because when you get hives there's no disscusion-allergies are dangerous! That's what i experienced while on the med... After i stopped taking it, hives actually continued to show up for a month. As soon as i started taking probitics, they went away. That's something i thought would do me good, since my immune system was so stressed.

Eventually all of these side effects went away. Salmon oil capsules helped me with my back, now my back is back to normal. Bloody stools(external reasons) ..i had them because of the dryness the med caused. I worked really hard to get back to normal. I ate very healthy, drank a lot and basically just tried to make my immune system strong enough. I think i am lucky enough to say i am back to where i was before. And i am lucky enough to live in an environment that allows me to live in harmony with nature. very simple, rural lifestyle.

Oh my god, there is one thing. But I always forget.

I lost my period while i was on the med. I mean, not totally but in 5 months i only had 3. after a stopped, i didn't get it for like 2 months and then i got it but the most painful period i have ever had. my mom said i looked as if i was in labour, and that is exactly how it felt. aand every single period i got since then was painful. 20 painful periods. I think accutane has to do with it. it affects mucosa so... basically it affects everything.

And i agree accutane could affect dna as well since the med was created for CHEMOTHERAPY. Affecting dna doesn't always mean a bad thing; but in this case...

after you've done with accutane you regret it.always.no matter how good skin you get. you feel dirty and contaminated and ill. It's very present in your mind. Feels like poison.

still...I am really healthy right now the only thing i've got left are my periods. Couple of times they didn't hurt which is a good sign.

BUT; this could also be random! I am not entirely sure about periods and accutane.

How much do you think retin-a affects body? how much of it accumulates? since it's pretty much the same thing..

(oh and think about it: my dosage was only 30mg for about 5 months!)

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MemberMember
78
(@movingon)

Posted : 02/11/2013 5:57 pm

 

We need to spread the word about this, we need to take action. The ones who have any emails, numbers, of some medical authorities, labs, scientists , complain boards about accutane or something like that, please post them here and make them public.

If we could find someone who's interested on this case, at least he could fill his pocket with money from the court actions against accutane, and we could get a chance to be cured or treat our side effects. The hell, I'm even willing to testify in the court, if necessary!

I would just start by google searching. I did areas/locales of people close to home since I know of them/can visit in person if need be. I'm going to do a little bit each week. I will post new stuff if i stumble upon it!

 

 

Isn't cod liver oil dangerous to take after Accutane? What are your guys' thoughts?

I wouldn't recommend cod liver oil or fish oil of any kind , a few years ago I took fish oil for a month or so and my back seized up for three days , not fun , so NO I wouldn't recommend any fish oil , somehow it interacts with isotretinoin.

I took fish oil capsules all 5 months while on Roaccutane. It's because I thought it would help with my lower back pain caused by the med.

This was actually one of the side effects for me. Beside bloody stools and eventually-hives. I stopped before i completed the course because when you get hives there's no disscusion-allergies are dangerous! That's what i experienced while on the med... After i stopped taking it, hives actually continued to show up for a month. As soon as i started taking probitics, they went away. That's something i thought would do me good, since my immune system was so stressed.

Eventually all of these side effects went away. Salmon oil capsules helped me with my back, now my back is back to normal. Bloody stools(external reasons) ..i had them because of the dryness the med caused. I worked really hard to get back to normal. I ate very healthy, drank a lot and basically just tried to make my immune system strong enough. I think i am lucky enough to say i am back to where i was before. And i am lucky enough to live in an environment that allows me to live in harmony with nature. very simple, rural lifestyle.

Oh my god, there is one thing. But I always forget.

I lost my period while i was on the med. I mean, not totally but in 5 months i only had 3. after a stopped, i didn't get it for like 2 months and then i got it but the most painful period i have ever had. my mom said i looked as if i was in labour, and that is exactly how it felt. aand every single period i got since then was painful. 20 painful periods. I think accutane has to do with it. it affects mucosa so... basically it affects everything.

And i agree accutane could affect dna as well since the med was created for CHEMOTHERAPY. Affecting dna doesn't always mean a bad thing; but in this case...

after you've done with accutane you regret it.always.no matter how good skin you get. you feel dirty and contaminated and ill. It's very present in your mind. Feels like poison.

still...I am really healthy right now the only thing i've got left are my periods. Couple of times they didn't hurt which is a good sign.

BUT; this could also be random! I am not entirely sure about periods and accutane.

How much do you think retin-a affects body? how much of it accumulates? since it's pretty much the same thing..

(oh and think about it: my dosage was only 30mg for about 5 months!)

What do you credit to getting better? Just the probiotics and salmon oil? I think i was on 40mg for 5 months. I didn't have cystic though. Probiotics help my stomach out IMMENSELY. Btw, I had to go on birth control for periods that felt like miscarriages every time. Not that I know what a miscarriage feels like, but thats what my gyno thought a few years back when i came in. Nope! just my period. That painful. I want to try going off the birth control due to not wanting to mess with my hormones...but i'm a little scared about the periods. Exercise and hot baths should help! Did you have any joint problems or bone problems???

 

 

I read that too little HA can affect periods, so now that im supplementing with that, I hope it should help. Accutane effects periods for SURE. Many women have had problems with fertility post accutane due to their eggs being dried up. Take it as a good sign that you even get periods! but then again, hopefully the quality of the eggs are not fucked either :( I'm sure in the future, there are ways around it. There's a ton of stuff going on in fertility.

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MemberMember
8
(@anon333)

Posted : 02/11/2013 6:31 pm

I am not entirely sure if these things helped or my body regenerates so quickly.

But yes, salmon oil capsules (salmon is healthier than any other fish) helped my back i think, it got better very quickly!!

Although it hurt a lot, i couldn't do PE (at school) and when i bent over or backwards my back would hurt a lot. Also when i lied down. Like a 80 years old lady!

I think my back needed around 3 months to get normal. I think now my back is back to where it was before. No, i didn't have any bone problems beside lower back...

Salmon oil has a lot of vitamin d.. and the good fats-both will help your joints!

My whole family takes these capsules, since we don't eat fish strictly every week.

The probiotics...I remember doing some research on how accutane has similar effects as antibiotics. So when no one could help me(my derm acted stupid, pharmacy workers looked at me like i was impossible case) i thought: why not try the basic? So I did and it helped! You can get enough probiotics with eating just simple yoghurt that has added microorganism (or not)- yoghurt cannot form if there's no MO in it so whatever yoghurt will do. You just have to be persistent, make it a habit. eat one everyday.

Miscarriages? I think the feeling might be similar to birth(i don't know either). but it's just contractions, it's all the same. i know how it feels. i had 8 hours of contractions. but there was not a second of rest. like someone would be tearing me organs consistently. so i usually take pills to kill the pain.

i do have faith in all the herbal stuff, so i always (if there's nothing left i can do) look into my book of this austrian lady Maria Treben-i think she's wonderful!

I remember when i was 16 and my period was extremely late, i read lady's mantle is the cure for every lady's trouble.So i drank it for a week and got my period. i'll never forget that. I am thinking of trying it again. it couldn't hurt. and i don't even want to know how exactly it could work. I just want to keep believing in herbs. So lady's mantle, nettle and yarrow. that's what i am doing next:)

when you said you are on BCP i thought to myself you have to get off eventually. How long have you been on? These really mess up your hormones and i think that preventing your body to function as it wants is not very good. I mean, to this extent. Hormonal system effects everything..i would just try going off the pills and just see how it goes..i know it could be bad but the worst thing it could happen is you'd be in pain-which is bad but it's better to face it! I am trying to stop using pain killers so i will usually wait for 3 hours and suffer so i get used to it. also, BCP just camouflage what is "really" going on in your body. You don't know if by now your periods would be normal! so try going off, everything's going to be alright:) there's always something you can do, try. always.

ps.do i have to apologize for my awkward way of writing and my silly English? i am foreign and it's 0:36 am here:)

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MemberMember
148
(@oli-girl)

Posted : 02/11/2013 8:50 pm

I am just going to say I would NOT in anyway take Cod Liver Oil after Accutane! There are many old suffers from the 80's 90's and early 2000's who got even more damage after doing that! Your choice though

 

PATTI LODES
I read your pdf. Your pale yellow stools and stringy bits are identical to my stool. I have found a solution to this problem. Please get in touch so I can send you the ebook for you to try. I would be very interested to know why this is happening. I hope my solution, while not a cure, will return you to normal strength and health and weight, as it has me.
The diet is 100% free and the ingredients are cheap and easily available, but it does require changes in diet and maybe sleep pattern. It is easy enough for me to do when so sick I can hardly get up at all for the entire day, so I think you'll be able to do it, if you want to.
GENERAL:
I retested ox bile (cholacol) after getting everything else right. While is does improve stool quality for fatty foods, it is too harsh on my damaged intestinal lining, resulting in mild pain and energy drop. Therefore I've discarded it. UDCA is much milder and better, it seems.
I tried plain organic kefir and it had a tremendous positive effect on energy, sleep, digestion and mood.
ANYONE ELSE WHO HAS PALE STOOL AND SOMETIMES STRINGY, PLEASE GET IN TOUCH.

Joseph - Are you talking about her pdf on the RagFourm??? I don't think Patti posted here!

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MemberMember
35
(@user187201)

Posted : 02/12/2013 12:30 am

my periods were also messed up by this drug. They stopped and when they came back they are extremley light and usually only last 2 days which is highly abnormal for me.

I was told to go on the pill to regulate them which I did for 3 mnths and seemed to get so much sicker during that time so I took myself off it. My hormones appeared as they I was not ovulating. I fear I may be infertile but worse than that still suffering these side effects how could I possibly produce a healthy baby....

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MemberMember
8
(@anon333)

Posted : 02/12/2013 9:09 am

sdro 123: i did get it checked and she said everything's normal. my ovaries were ok:) no pcos i am very grateful for that...

I heard about the benefits of marijuana. I have to admit I've only tried to smoke a cigarette once let alone pot. I mean, if you really do a research about it there should be no harm in trying. Oil I think is much better choice. I have nothing against smoking ..But it is harming your lungs like cigarettes, causing inflammation of your lung cells. How does the vaporization work?

No, this is the first time i hear about epsom salt baths!! How is it suppose to work?

I usually just put hot water bag on my lower stomach so i get distracted(i put really hot water in).

oli girl: why would you advise that? I really want to know the reason..Is it because of the vitamin A?

That could be a problem. That's true. But with liver damage and liver problems it is advised to eat food rich with omega 3 fatty acids.

Livetoregret: I am very sorry to hear that...Really, i am. Sounds like this causes you to worry all the time. Which doesn't have any good effect on overall health. Going to gynecologist wouldn't help since they only know the names of 3 different medications and BCP. I also worry sometimes about getting pregnant(someday in future).. I am still a kid myself but one would think about the future.

The best i can tell you is just start doing the same i am doing right now. Try herbal stuff. I am at this very moment drinking nettle and yarrow tea, which i picked and dried myself in the summer/autumn. And i also think any physical work especially outside is very beneficial. Waking up your metabolism, causing all the toxins to leave your body.

Does anyone remember the first posts here about calcium D-glucarate(helps the liver detoxify certain carcinogens and hormones from the body)? It is also suppose to help balance testosterone-estrogen levels. Which is always good. I will start eating more apples, since they have this wizardry in it.

This topic is very informative but i fear that many people because of it will feel ill as soon as they start reading.

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MemberMember
148
(@oli-girl)

Posted : 02/12/2013 11:19 am

Cod liver is different then say fish oil or eating salmon! It is full of fat soluble vitamin A! Some suffers have issues with all forms of vitamin A even in food form! Some do okay with beta form and omega 3! GLA a form of omega 6 is good!

There was some info back a long time ago articles regarding artic explorers eating polar bear liver and going crazy, shedding of skin etc... It just depends there was a suffer Mod who actually was deficient on vitamin A yet the only way he could take it was by I.V. Or his accutane side effects order got worse! One suffer back in the 80's took it and then developed worse issues and enhancements of accutane sides

Personally I would not take cod liver!

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MemberMember
8
(@anon333)

Posted : 02/12/2013 11:39 am

oli girl: thank you for replying! Yes, salmon oil is different since it's not oil from just liver. It has three times less vitamin A than cod liver oil.

Oh my god this sound awful. But I think taking cod liver oil would have as bad side effects for someone who took accutane as for someone who didn't.

Eating to much beef liver or any kind of liver is harmful, my mom used to tell me all the time. So it's bad for anyone. But it is even worse for those who still have high amounts of vitamin A in their bodies.

Here's an interesting fact. An overdose of vitamin A does take a long time dissipate. It has a half-life in the body of about 286 days. I took my last pill on 12th of August 2010. It's been around 914 days since i stopped. That makes me happy.

I am wondering,,Achilles and the turtle paradox: if it has a half time.. The overdose vitamin A is forever present in the body even if there's only a little.

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MemberMember
51
(@acne1776)

Posted : 02/12/2013 4:00 pm

oli girl: thank you for replying! Yes, salmon oil is different since it's not oil from just liver. It has three times less vitamin A than cod liver oil.

Oh my god this sound awful. But I think taking cod liver oil would have as bad side effects for someone who took accutane as for someone who didn't.

Eating to much beef liver or any kind of liver is harmful, my mom used to tell me all the time. So it's bad for anyone. But it is even worse for those who still have high amounts of vitamin A in their bodies.

Here's an interesting fact. An overdose of vitamin A does take a long time dissipate. It has a half-life in the body of about 286 days. I took my last pill on 12th of August 2010. It's been around 914 days since i stopped. That makes me happy.

I am wondering,,Achilles and the turtle paradox: if it has a half time.. The overdose vitamin A is forever present in the body even if there's only a little.

when you overdose on vitamin A your body starts storing it in fat tissue as a way to get it out of the bloodstream. the trick to detoxing is getting it out of your stored fat tissue and back into your bloodstream so your liver can remove it.

that is why long term water fasting has at least moderately helped pretty much everyone who has attempted it. when you water fast your body has to break down fat tissue which releases stored vitamin a back in the bloodstream.

Quote
MemberMember
85
(@and1)

Posted : 02/12/2013 5:18 pm

So I've been found to have low sIgA levels, which means my intestinal mucosal lining is damaged. Also I have a rather high white blood cell count. In other words, my immune system is quite busy reacting to all the stuff that enters via the intestines. I will get a sonography of my gallbladder and liver next week and try to get my hands on UCDA. Heres my plan:

1. Get the bile flowing / support digestion / possibly elimination of Accutane

- Epsom Salts

- UCDA

- Olive Oil / Lemon combo

- Taurine

- Apple Cider Vinegar

- Glucaric acid, either by supplementation of Calcium D-Glucarate and/or fruits & veggies

2. Repair mucosal lining / boost sIgA

- L-Glutamine powder

- Zinc

- Vitamin A (via cod liver oil) to replace Accutane if it's still there

- Music

- Humor

- Avoid stress

3. Help the body cope with the symptoms - those things help me temporarily / calm my immune system

- Fish oil

- Raw garlic

- Hypoallergenic foods (i.e. limiting/avoiding gluten, dairy, nuts, additives etc.)

Furthermore I will probably try Triamcinolone or a similar corticosteroid and see if it does anything to reduce the severity of symptoms.

Seems like we have the exact same symptoms, finally somebody with a low IgA count.

Do you have pale stooles as well? I finally have darker stooles on a consistent basis and better digestition, that is after being through a couple of supps and UCDA over the last few months. My coated tongue has also receded noticably. I am currently not taking any supplements, but intend to go back on EPSOM salts soon.

Quote
MemberMember
8
(@anon333)

Posted : 02/12/2013 6:32 pm

 

oli girl: thank you for replying! Yes, salmon oil is different since it's not oil from just liver. It has three times less vitamin A than cod liver oil.

Oh my god this sound awful. But I think taking cod liver oil would have as bad side effects for someone who took accutane as for someone who didn't.

Eating to much beef liver or any kind of liver is harmful, my mom used to tell me all the time. So it's bad for anyone. But it is even worse for those who still have high amounts of vitamin A in their bodies.

Here's an interesting fact. An overdose of vitamin A does take a long time dissipate. It has a half-life in the body of about 286 days. I took my last pill on 12th of August 2010. It's been around 914 days since i stopped. That makes me happy.

I am wondering,,Achilles and the turtle paradox: if it has a half time.. The overdose vitamin A is forever present in the body even if there's only a little.

when you overdose on vitamin A your body starts storing it in fat tissue as a way to get it out of the bloodstream. the trick to detoxing is getting it out of your stored fat tissue and back into your bloodstream so your liver can remove it.

that is why long term water fasting has at least moderately helped pretty much everyone who has attempted it. when you water fast your body has to break down fat tissue which releases stored vitamin a back in the bloodstream.

How do you do it? The water fasting i mean?

what if i am already very slim..? i can't loose any more weight..

Quote
MemberMember
51
(@acne1776)

Posted : 02/12/2013 6:51 pm

How do you do it? The water fasting i mean?

what if i am already very slim..? i can't loose any more weight..

water fasting is only having water. no food and no other liquids. make sure it is filtered and not out of a plastic bottle.

however i'm not sure if it is safe to do if you can't lose any weight.

Quote
MemberMember
12
(@bamdaze)

Posted : 02/12/2013 9:01 pm

 

So I've been found to have low sIgA levels, which means my intestinal mucosal lining is damaged. Also I have a rather high white blood cell count. In other words, my immune system is quite busy reacting to all the stuff that enters via the intestines. I will get a sonography of my gallbladder and liver next week and try to get my hands on UCDA. Heres my plan:

1. Get the bile flowing / support digestion / possibly elimination of Accutane

- Epsom Salts

- UCDA

- Olive Oil / Lemon combo

- Taurine

- Apple Cider Vinegar

- Glucaric acid, either by supplementation of Calcium D-Glucarate and/or fruits & veggies

2. Repair mucosal lining / boost sIgA

- L-Glutamine powder

- Zinc

- Vitamin A (via cod liver oil) to replace Accutane if it's still there

- Music

- Humor

- Avoid stress

3. Help the body cope with the symptoms - those things help me temporarily / calm my immune system

- Fish oil

- Raw garlic

- Hypoallergenic foods (i.e. limiting/avoiding gluten, dairy, nuts, additives etc.)

Furthermore I will probably try Triamcinolone or a similar corticosteroid and see if it does anything to reduce the severity of symptoms.

Seems like we have the exact same symptoms, finally somebody with a low IgA count.

Do you have pale stooles as well? I finally have darker stooles on a consistent basis and better digestition, that is after being through a couple of supps and UCDA over the last few months. My coated tongue has also receded noticably. I am currently not taking any supplements, but intend to go back on EPSOM salts soon.

Sometimes my stools are of a lighter brownish color, not really pale though. What I notice most is the dryness of the stool and sluggishness of the colon. It seems like a lack of biofilm/mucous. I managed to get better overnight a few times while experimenting with supplements, especially Zinc. I also have a slight gut dysbiosis and a too alkaline stool. My naturopath recommended drinking apple cider vinegar and eating yoghurt regularly. I took probiotics in the past and drank selfmade kefir for a few weeks but that didn't help with the symptoms.

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(@user187201)

Posted : 02/13/2013 12:04 am

I think we need to look at it laid out as chronic inflammation in the body along with the systemic dehydration.

They are the root causes of all our various issues.

Lets break it down - standard medical professionals are completely useless in this situation.

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2
(@darran)

Posted : 02/13/2013 2:19 am

Hey

No BS please... just reply if this is relevant to you :)

Experienced severe loss of libido/ED during my second course of accutane¦now trying to determine if this is due to accutane or something else¦

Symptoms:

Loss of morning wood (indicates not psych problem)

Loss of libido

ED/Impotence

Less important/could be imagining this due to shit on the net ive read:

Darker/foamy/bubbly urine, slightly water ejaculate

Gynaecomastia

My lab results:

Elevated prolactin

Elevated Iron

Elevated transferrin saturation

Elevated thyroglobulin antibodies

These results were elevated enough to be flagged but not enough to require immediate medical attention

Possible causes:

Patuitary tumor

Heamochromatosis

Renal failure

Thyroid disorder

Random shit due to accutane :D:D

Note: can™t seem to find a link between my test results

Has anyone had similar test results to me? Or been tested for these possible causes?

Thanks in advance

Darran

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MemberMember
8
(@anon333)

Posted : 02/13/2013 7:51 am

acne1776: i see. what if i just try to go for really long walks as much as possible so i loose fat but make my muscles stronger at the same time? And once I loose some fat replace it with new one? This sounds really silly i know.

sdro123: vaporization sounds ok:) hmm it's a shame marijuana is illegal! Our neighbor country is deciding whether to make it legal or not. I hope it's our turn soon!

Thank you for explaining, i'll see if i can buy it here. No, no Walmart :D We have our own stores!

Livetoregret: I agree. I think many women have menstrual problems-with menstrual problems i mean dysmenorrhoea(which is a term for very painful periods)- because of dehydration of the tissue, of the mucosa. When the mucosa is not hydrated enough it takes a lot of more contractions for the mucosa to peel off.

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148
(@oli-girl)

Posted : 02/13/2013 11:11 am

On 2/13/2013 at 3:19 PM, Darran said:

Hey

No BS please... just reply if this is relevant to you smile.png

Experienced severe loss of libido/ED during my second course of accutane¦now trying to determine if this is due to accutane or something else¦

Symptoms:

Loss of morning wood (indicates not psych problem)

Loss of libido

ED/Impotence

Less important/could be imagining this due to shit on the net ive read:

Darker/foamy/bubbly urine, slightly water ejaculate

Gynaecomastia

My lab results:

Elevated prolactin

Elevated Iron

Elevated transferrin saturation

Elevated thyroglobulin antibodies

These results were elevated enough to be flagged but not enough to require immediate medical attention

Possible causes:

Patuitary tumor

Heamochromatosis

Renal failure

Thyroid disorder

Random shit due to accutane [Edited image out] [Edited image out]

Note: can™t seem to find a link between my test results

Has anyone had similar test results to me? Or been tested for these possible causes?

Thanks in advance

Darran

Well Autoimmune thyroid (Hasimoto's) can cause high Prolactin levels & High Iron levels amongst other complications. However, Pituitary tumor can cause high prolactin levels, not sure on high Iron.

symptoms of high iron can include, sexual dysfunction,joint pain, weakness, change in skin color and other serious conditions...

High prolactin levels and high iron levels can cause kidney damage/liver damage etc...

High prolactin levels can also cause:

  • impotence
  • decreased size of testicles
  • decreased beard growth
  • muscle weakness
  • breast enlargement
  • milk production and secretion

I would find another physican..I am not sure if you saw a endocronligist, but you should and have a scan to make you you don't have some type of Pituitary tumor or adenomas. However, Like I said Hypothyroidism can cause a slight elevation in prolactin also and once thyroid is restored in a timely manner most issues should subside. Did you have your TSH and T4 and T3 checked?

Yes Accutane as been known to cause many hormonal and autoimmune issues! You have abnormal labs you need to get medical attention!

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