Sexual dysfunction and brain fog are a hell of a lot different to treat than baldness and a dried up internal & external body - pretty different side effects.

Sure,who's to say cannabis oil doesnt address the physiological issues that cause depression,brain fog and sexual dysfunction - the mind is alot easier to harness than the body.

Im talking about tangible physical side effects.

yes I agree life is worth living - my life before all this was amazing and I want it back and I would do anything.

I want a family of my own, I want my husband to have his wife back, my family to have me back.

Everybody has told me I am not the same person I was before all this.

But what my life has been reduced to is humiliating and my only peace is at night when I lie in bed trying to forget it all. sometimes I just want it all to end forever.

I do my best to deter people from ever thinking that accutane is some sort of savior because it will steal everything from you and left you desperate with nowhere to turn in the end.

There are no doctors able to help, there are no cures for hairloss, nothing will give me my normal skin back and every day is pain.

This forum is about as useful as praying to a Fictional bearded man in the sky.

I'm not sure if you can delete profiles on here, but if you can, I bid you fairwell.

I'd like to say it's been nice, but it hasn't really, has it?

It's been one big waste of time, contemplating different scenarios and getting NOWHERE.

Honestly, we might as well all kill ourselves.

Bye.

Indigo, I am sorry you are having a bad day or evening which ever it is over there! You videos, this thread is not a waste....I hope tomorrow is better my friend

 

We all come her with so much hope & faith that we will be able to heal our bodies fix our hairloss, hydrate our skin, libido,depression, recurring acne etc etc etc..

Anyone successful in any of these yet?

hands up - who has actually gotten any better?

I have improved , my hair loss is reversing , my back pain is completely gone as been for a long time now , my stomach problems are gone have also been for a long time now , sure not all my symptoms are gone totally , I take lithium orotate that helps with my mood so ok I will put my hand up , indigo rush you are too negative , negativity will not get you anywhere I went through some VERY rough times with this poison no doubt but I never gave up perhaps it's my strong faith that kept me going , in fact it was . People are waking up to all the pharmaceutical poisonings thanks in part to this forum if anything we are helping others learn the truth and we should be comended for that , our problems are being heard and if one less person takes this poison then my job is done . Mark my words within less than ten years Big Pharma ( Orothodox medicine ) will become Little Pharma there scams and poisonings are coming to an end due to the internet and people like us , people are going back to OLD SCHOOL HEALING ie herbal medicine , real safe medicine , Never give up or they ( Big Pharma ) wins and you become another casualty of there insatiable greed for $$$$$$ , my two cents. (=

But Pete - how long did you take it it like a month? Side effects are dose related. Your a good guy and I know you only want to help everyone but you need to take into consideration.

http://www.naturalnews.com/038985_universe_simulation_intelligent_design.html

This forum is about as useful as praying to a Fictional bearded man in the sky.

I'm not sure if you can delete profiles on here, but if you can, I bid you fairwell.

I'd like to say it's been nice, but it hasn't really, has it?
It's been one big waste of time, contemplating different scenarios and getting NOWHERE.

Honestly, we might as well all kill ourselves.

Bye.

Hey Indigo Rush you should read this , it may change your mind about a fictional bearded man in the sky lol...

Atheism is not a good thing to follow trust me on that . (=

 

We all come her with so much hope & faith that we will be able to heal our bodies fix our hairloss, hydrate our skin, libido,depression, recurring acne etc etc etc..

Anyone successful in any of these yet?

hands up - who has actually gotten any better?

I have improved , my hair loss is reversing , my back pain is completely gone as been for a long time now , my stomach problems are gone have also been for a long time now , sure not all my symptoms are gone totally , I take lithium orotate that helps with my mood so ok I will put my hand up , indigo rush you are too negative , negativity will not get you anywhere I went through some VERY rough times with this poison no doubt but I never gave up perhaps it's my strong faith that kept me going , in fact it was . People are waking up to all the pharmaceutical poisonings thanks in part to this forum if anything we are helping others learn the truth and we should be comended for that , our problems are being heard and if one less person takes this poison then my job is done . Mark my words within less than ten years Big Pharma ( Orothodox medicine ) will become Little Pharma there scams and poisonings are coming to an end due to the internet and people like us , people are going back to OLD SCHOOL HEALING ie herbal medicine , real safe medicine , Never give up or they ( Big Pharma ) wins and you become another casualty of there insatiable greed for $$$$$$ , my two cents. (=

But Pete - how long did you take it it like a month? Side effects are dose related. Your a good guy and I know you only want to help everyone but you need to take into consideration.

Yeah I know you took a lot more than me around 2000 mg (me) and I understand that and I feel your pain , but trust me even 2 grams did a lot of damage some I can repair some I cannot , maybe in the future .... I will continue to look for answers for all of you who are suffering . (=

http://www.naturalnews.com/038985_universe_simulation_intelligent_design.html

This forum is about as useful as praying to a Fictional bearded man in the sky.

I'm not sure if you can delete profiles on here, but if you can, I bid you fairwell.

I'd like to say it's been nice, but it hasn't really, has it?

It's been one big waste of time, contemplating different scenarios and getting NOWHERE.

Honestly, we might as well all kill ourselves.

Bye.

Hey Indigo Rush you should read this , it may change your mind about a fictional bearded man in the sky lol...

Atheism is not a good thing to follow trust me on that . (=

 

>

We all come her with so much hope & faith that we will be able to heal our bodies fix our hairloss, hydrate our skin, libido,depression, recurring acne etc etc etc..

Anyone successful in any of these yet?

hands up - who has actually gotten any better?

I have improved , my hair loss is reversing , my back pain is completely gone as been for a long time now , my stomach problems are gone have also been for a long time now , sure not all my symptoms are gone totally , I take lithium orotate that helps with my mood so ok I will put my hand up , indigo rush you are too negative , negativity will not get you anywhere I went through some VERY rough times with this poison no doubt but I never gave up perhaps it's my strong faith that kept me going , in fact it was . People are waking up to all the pharmaceutical poisonings thanks in part to this forum if anything we are helping others learn the truth and we should be comended for that , our problems are being heard and if one less person takes this poison then my job is done . Mark my words within less than ten years Big Pharma ( Orothodox medicine ) will become Little Pharma there scams and poisonings are coming to an end due to the internet and people like us , people are going back to OLD SCHOOL HEALING ie herbal medicine , real safe medicine , Never give up or they ( Big Pharma ) wins and you become another casualty of there insatiable greed for $$$$$$ , my two cents. (=

But Pete - how long did you take it it like a month? Side effects are dose related. Your a good guy and I know you only want to help everyone but you need to take into consideration.

Yeah I know you took a lot more than me around 2000 mg (me) and I understand that and I feel your pain , but trust me even 2 grams did a lot of damage some I can repair some I cannot , maybe in the future .... I will continue to look for answers for all of you who are suffering . (=

 

Your a good guy Pete, of all the people on here you have been so kind and so helpful.x

 

We all come her with so much hope & faith that we will be able to heal our bodies fix our hairloss, hydrate our skin, libido,depression, recurring acne etc etc etc..

Anyone successful in any of these yet?

hands up - who has actually gotten any better?

I have improved , my hair loss is reversing , my back pain is completely gone as been for a long time now , my stomach problems are gone have also been for a long time now , sure not all my symptoms are gone totally , I take lithium orotate that helps with my mood so ok I will put my hand up , indigo rush you are too negative , negativity will not get you anywhere I went through some VERY rough times with this poison no doubt but I never gave up perhaps it's my strong faith that kept me going , in fact it was . People are waking up to all the pharmaceutical poisonings thanks in part to this forum if anything we are helping others learn the truth and we should be comended for that , our problems are being heard and if one less person takes this poison then my job is done . Mark my words within less than ten years Big Pharma ( Orothodox medicine ) will become Little Pharma there scams and poisonings are coming to an end due to the internet and people like us , people are going back to OLD SCHOOL HEALING ie herbal medicine , real safe medicine , Never give up or they ( Big Pharma ) wins and you become another casualty of there insatiable greed for $$$$$$ , my two cents. (=

But Pete - how long did you take it it like a month? Side effects are dose related. Your a good guy and I know you only want to help everyone but you need to take into consideration.

Side Effects are NOT dose related. There are victims who have ended up hospitalized or dead on 20mg or less time then you and I took! Unfortunately your not going to get better till physicans take your abnormal labs serious and do more invetigating! It took 4 Rhuems 2 Neuros 3 Endos, Cardiologist, 3 internists, allergist and over 2yrs before I got help, but I wouldn't give up and kept seeking till I got answers and help and found what worked for me. True I will never be the same health wise, but I am better

 

We all come her with so much hope & faith that we will be able to heal our bodies fix our hairloss, hydrate our skin, libido,depression, recurring acne etc etc etc..

Anyone successful in any of these yet?

hands up - who has actually gotten any better?

I have improved , my hair loss is reversing , my back pain is completely gone as been for a long time now , my stomach problems are gone have also been for a long time now , sure not all my symptoms are gone totally , I take lithium orotate that helps with my mood so ok I will put my hand up , indigo rush you are too negative , negativity will not get you anywhere I went through some VERY rough times with this poison no doubt but I never gave up perhaps it's my strong faith that kept me going , in fact it was . People are waking up to all the pharmaceutical poisonings thanks in part to this forum if anything we are helping others learn the truth and we should be comended for that , our problems are being heard and if one less person takes this poison then my job is done . Mark my words within less than ten years Big Pharma ( Orothodox medicine ) will become Little Pharma there scams and poisonings are coming to an end due to the internet and people like us , people are going back to OLD SCHOOL HEALING ie herbal medicine , real safe medicine , Never give up or they ( Big Pharma ) wins and you become another casualty of there insatiable greed for $$$$$$ , my two cents. (=

But Pete - how long did you take it it like a month? Side effects are dose related. Your a good guy and I know you only want to help everyone but you need to take into consideration.

Side Effects are NOT dose related. There are victims who have ended up hospitalized or dead on 20mg or less time then you and I took! Unfortunately your not going to get better till physicans take your abnormal labs serious and do more invetigating! It took 4 Rhuems 2 Neuros 3 Endos, Cardiologist, 3 internists, allergist and over 2yrs before I got help, but I wouldn't give up and kept seeking till I got answers and help and found what worked for me. True I will never be the same health wise, but I am better

I disagree Jen.

I believe the severity of my hairloss and skin issues are due 100% to the massive amount I was given and that is why I have not gotten any better.

There is nothing for any doctors to treat as all my labs are 'within range'..unless Im outside of that whether it be thyroid, insulin whatever there is nothing to treat and I would never consider putting another drug into my body in an attempt to fix the damage this drug has caused, Ive learnt my lesson.

Never again.

Indigo Rush : Man, there are Accutane sufferers that are loosing their hair, eyebrows, eyelashes, have so severe E.D. that cant perform a sexual act, have very severe eyes problems, bones problems and many other very bad side effects. Some even got back their acne. U look very fine, your hair is fine, your E.D. is not so severe as u can still perform a sexual act.

Instead of wishing to die, consider yourself a very lucky man. Your biggest problem seems to be the depression. But, you can live with it my man, i also have it, and i would say that, if i can do something and stop the hair loss, i would go on with my life, caring with me this shitty depression.

Dont think like that man. U have a family, a girlfriend, u look very well, u have your music project. Try to realise how lucky u are and enjoy what u have man.

I would have been the happiest to be in your place man.......dont take for granted what u have and keep going with your depression. Meditate, pray, eat healthy, sing, study, work, go on with your life, the quality of your life is not that bad man, trust me.

Goodluck to you...

Indigo Rush : Man, there are Accutane sufferers that are loosing their hair, eyebrows, eyelashes, have so severe E.D. that cant perform a sexual act, have very severe eyes problems, bones problems and many other very bad side effects. Some even got back their acne. U look very fine, your hair is fine, your E.D. is not so severe as u can still perform a sexual act.

Instead of wishing to die, consider yourself a very lucky man. Your biggest problem seems to be the depression. But, you can live with it my man, i also have it, and i would say that, if i can do something and stop the hair loss, i would go on with my life, caring with me this shitty depression.

Dont think like that man. U have a family, a girlfriend, u look very well, u have your music project. Try to realise how lucky u are and enjoy what u have man.

I would have been the happiest to be in your place man.......dont take for granted what u have and keep going with your depression. Meditate, pray, eat healthy, sing, study, work, go on with your life, the quality of your life is not that bad man, trust me.

Goodluck to you...

Hey Robert did you see my msg to you to read some of Lamarr1986 posts? He also has his email on his profile!

 

Indigo Rush : Man, there are Accutane sufferers that are loosing their hair, eyebrows, eyelashes, have so severe E.D. that cant perform a sexual act, have very severe eyes problems, bones problems and many other very bad side effects. Some even got back their acne. U look very fine, your hair is fine, your E.D. is not so severe as u can still perform a sexual act.

Instead of wishing to die, consider yourself a very lucky man. Your biggest problem seems to be the depression. But, you can live with it my man, i also have it, and i would say that, if i can do something and stop the hair loss, i would go on with my life, caring with me this shitty depression.

Dont think like that man. U have a family, a girlfriend, u look very well, u have your music project. Try to realise how lucky u are and enjoy what u have man.

I would have been the happiest to be in your place man.......dont take for granted what u have and keep going with your depression. Meditate, pray, eat healthy, sing, study, work, go on with your life, the quality of your life is not that bad man, trust me.

Goodluck to you...

Hey Robert did you see my msg to you to read some of Lamarr1986 posts? He also has his email on his profile!

Yes, thank you. I sent him a mail. Hope he can give me some answers... Thanks alot

I did 4 runs of Accutane.

I also had mercury in my mouth and 5 root canals that I had removed (i.e, extracted) I also have digestive issues (could only poop hard black pebbles about once every other week) and a bladder infection every 2 weeks which became resistant to other antibiotics so I was put on an open dose of Cipro. I always got a yeast infection afterward, so I got a round of difluan. Then I tried to rebuild my gut flora before having to take the another round of Cipro. Only to do it again, and again, and again for about 7 years. Couple this with escaping an abusive marriage and the stalking seven years later, and getting sued by your abuser for three million bucks (I am not joking) being a single mom for years then supporting a family of 4 on administrative assistant's wages while carrying 4 attorneys kids in college. Yeah, I know stress. Physically, emotionally, psychologically, financially, stress has all kinds of ways degrade you.

I came back to this board 3 years after I spent thousands on some scar revisions treatments. Only to get cystic acne. Again. Then try to undo what my body has been through, and coming back to report the things that did, and didn't, for me.

Is this still the place to do that? If so... I have about 80 more pages to read of this very long thread. Secondly, I found Indigo's and Chino's posts incredibly insightful and from the heart. The two of you, and a couple other people that started this thread are BRILLIANT. Gorgeous writers.

There ARE answers. I believe I have stumbled upon a few.

Like you I feel like I have "done it all"... vegan/vegetarian for 12 years, every "cycline" known to man, every blood cleansing herb, Boiron pellet, apple cider toning, sweating, not sweating, accupuncture, liver, kidney, and parasite cleanses... then 4 rounds of Accutane. It is disparaging. But not a loss. Do you sometimes wonder if you would be half as beautiful and brilliant had you not been blessed with acne?

But right now, for the first time, I think I have stumbled upon a few things that really work. They are pretty simple.

Chino, what is the recipe you were using for juice? Tell me more about your experiences with juicing, please?

Thanks for reading.

You are not a victim. No matter what you have been through, you're still here. You may have been challenged, hurt, betrayed, beaten, and discouraged, but nothing has defeated you. You are still here! You have been delayed but not denied. You are not a victim, you are a victor. You have a history of victory.
Steve Maraboli

Reading other people's experiences with Accutane. So this could also partially explain a sudden weight loss of 50 lbs and my face looking so gaunt in the last year, so much white hair. And here I thought it was all stress. LOL! We have done a number on our bodies, haven't we!

Hi Guys, just wanted to let you know I sent this information to the head of stem cell research at harvard. I'm gonna keep advocating for us all. I live in Mass, and I figured it would be a good place to start. I'm going to start with researchers instead of doctors. I find it helps to be nonreactive and just lay out the facts otherwise they automatically assume CRAZY. Maybe someone will bite, maybe not. I'm hopeful that if i send this to enough people, and other people send similar messages, it will spread like a fucking tidal wave. Scientists are scientists for a reason, they like to figure things out. My boyfriend is a biochemical engineer, trust me. At least if they don't want to necessarily try to cure us, some gung-ho scientist who has to figure the complicated matrix out, out of sheer obsession, then there will be research done...this is at least my hope. What do you guys think? Also, give me feedback. I don't mind tweaking what i wrote. One thing I learned is putting information in the other person's frame of mind and not using "I" too much, which I tried to do, but not too well lol Whatevs, let me know what you think. I won't stop until there is an answer.

Hello,

My name is Stephanie Drost. Stem cell research is something that has continued to fascinate me and has given me and several others hope. I would like to propose a new research area for individuals who have taken Accutane and have experienced severely altered brain chemistry, ability to heal, autoimmune disorders, bowel disorders, joint disorders, diabetes, and the most harrowing, suspected increased aging/proliferate cell death. It is in my interest to help foster awareness of an underground community of individuals, who are suffering from a wide array of chronic illnesses and are going untreated. I am one of these people, and so is my brother. I will clearly state that my interest is purely in research on this subject, and not litigation. I will tell you that the hundreds of individuals I have spoken with, have their health as their primary interest as well. Not only would this research potentially cure many thousands of individuals, but data driven research on subjects post-accutane will help increase awareness and help promote a general trend towards doctors actually treating the side effects. The pharmaceutical companies and FDA do not care about this issue, I will say that. I am not interested in getting into a battle with them, I am interested in helping myself and others get the treatment they so desperately need. I have spoken to many who said they would be willing to subject themselves to research as they are not getting better. I see this as being a booming field, and I think whoever is bold enough to take this on as a challenge, would be a hero. I'm 24 and I had my life stripped from me at 16. Accutane has severe latent effects that look very much like some form of progeria in the symptomology. I am not a doctor and I only have a basic understanding of cellular biology, so forgive me, but I am trying my best to make sense of this all. If you are not afraid to look into this a bit further, google accutane side effects and you will find an alarming number of blogs and anecdotal research supporting my claims. Unfortunately, there needs to be more research. I am including one gentleman's attempts to make sense of Accutane's mechanism of action. I think it was pretty bold of him, and he has received a lot of backlash for not being a scientist or doctor, but I think he has gotten closer to the truth than any of us. Some of it may not be perfectly true, but that's why we need research!! I will point out that many people who take accutane seem to be fine which is great that it still helps many people. However, there is an alarming majority of invididuals who were misprescribed, given too high of a dosage, and then not listened to, or not believed that the accutane was the cause. Again, the side effects show up YEARS later. My worst side effects have shown up about 7 or 8 years later. Please, if you can help us get some form of research, I would be so very grateful. I can even work to seek out individuals as research subjects as I know many would be willing candidates. I know grants are hard to come by, but this would be without a doubt, a worthwhile investment for thousands of individuals effected (maybe more). This goes for internationally as well.

Thank you for hearing my story and the story of many others. If you have it in your heart to forward this information to others in the stem cell research community, please feel free.

I am including the link of the gentlemen who has tried his best to make sense of all of this information:

http://www.topix.com/forum/drug/accutane/T9QJ8DO1TLI41VBPN

One of many blogs around trying to repair the damage associated with Accutane:

My Tests :

LH - 6.6

Prolactin - 222

TSH - 1.15

Testosteron total - 19.09

Someone showed me this website, where there are shown the normal testosteron levels http://www.mens-hormonal-health.com/normal-testosterone-levels.html

It seems mine is much much lower than it should be, for my age. Should i take testosteron suppliments? How about u guys? Can we compare the tests results? Thanks alot

 

PATTI LODES

I read your pdf. Your pale yellow stools and stringy bits are identical to my stool. I have found a solution to this problem. Please get in touch so I can send you the ebook for you to try. I would be very interested to know why this is happening. I hope my solution, while not a cure, will return you to normal strength and health and weight, as it has me.

.....

ANYONE ELSE WHO HAS PALE STOOL AND SOMETIMES STRINGY, PLEASE GET IN TOUCH.

I frequently have long strings and clumps of strings in and around my stools. When I do an enema lots come out with the water.

I took a picture and told my doctor. I told him the "strings" looked as if there were whitish-yellowish long worms that had been split and gutted, but sometimes there would be a big clump of them. He was stumped.

Then I saw a gastroenterologist. He explained that it is normal where there is constipation. (Which I have, and I see more strings when I haven't been able to eliminate for over a week). He said it is MUCOUS lining the lower G.I. tract.

It's mucous.

My Tests :

LH - 6.6

Prolactin - 222

TSH - 1.15

Testosteron total - 19.09

Someone showed me this website, where there are shown the normal testosteron levels http://www.mens-hormonal-health.com/normal-testosterone-levels.html

It seems mine is much much lower than it should be, for my age. Should i take testosteron suppliments? How about u guys? Can we compare the tests results? Thanks alot

you're still within one standard deviation of the mean, so I wouldn't be too concerned if I were you. Doesn't seem abnormally low.

Is anyone else on board with advocating for research?!?! and if so, can you please help support the cause by contacting legislature, researchers, stem cell labs, etc.??! just go for it. They will see an influx of the same/similar problems and start filling in the blanks. We have to do something though. Just sitting around waiting is not going to do. I liked to see that Indigo, Nathan, and several others have spoken out, and sought outside support and advocated for the cause, you can do it too! Strength in numbers, always remember that!!!

Bohemian, is your stool also abnormally pale, and if so what is the explanation?

Hi Guys, just wanted to let you know I sent this information to the head of stem cell research at harvard. I'm gonna keep advocating for us all. I live in Mass, and I figured it would be a good place to start. I'm going to start with researchers instead of doctors. I find it helps to be nonreactive and just lay out the facts otherwise they automatically assume CRAZY. Maybe someone will bite, maybe not. I'm hopeful that if i send this to enough people, and other people send similar messages, it will spread like a fucking tidal wave. Scientists are scientists for a reason, they like to figure things out. My boyfriend is a biochemical engineer, trust me. At least if they don't want to necessarily try to cure us, some gung-ho scientist who has to figure the complicated matrix out, out of sheer obsession, then there will be research done...this is at least my hope. What do you guys think? Also, give me feedback. I don't mind tweaking what i wrote. One thing I learned is putting information in the other person's frame of mind and not using "I" too much, which I tried to do, but not too well lol Whatevs, let me know what you think. I won't stop until there is an answer.

Hello,

 

My name is Stephanie Drost. Stem cell research is something that has continued to fascinate me and has given me and several others hope. I would like to propose a new research area for individuals who have taken Accutane and have experienced severely altered brain chemistry, ability to heal, autoimmune disorders, bowel disorders, joint disorders, diabetes, and the most harrowing, suspected increased aging/proliferate cell death. It is in my interest to help foster awareness of an underground community of individuals, who are suffering from a wide array of chronic illnesses and are going untreated. I am one of these people, and so is my brother. I will clearly state that my interest is purely in research on this subject, and not litigation. I will tell you that the hundreds of individuals I have spoken with, have their health as their primary interest as well. Not only would this research potentially cure many thousands of individuals, but data driven research on subjects post-accutane will help increase awareness and help promote a general trend towards doctors actually treating the side effects. The pharmaceutical companies and FDA do not care about this issue, I will say that. I am not interested in getting into a battle with them, I am interested in helping myself and others get the treatment they so desperately need. I have spoken to many who said they would be willing to subject themselves to research as they are not getting better. I see this as being a booming field, and I think whoever is bold enough to take this on as a challenge, would be a hero. I'm 24 and I had my life stripped from me at 16. Accutane has severe latent effects that look very much like some form of progeria in the symptomology. I am not a doctor and I only have a basic understanding of cellular biology, so forgive me, but I am trying my best to make sense of this all. If you are not afraid to look into this a bit further, google accutane side effects and you will find an alarming number of blogs and anecdotal research supporting my claims. Unfortunately, there needs to be more research. I am including one gentleman's attempts to make sense of Accutane's mechanism of action. I think it was pretty bold of him, and he has received a lot of backlash for not being a scientist or doctor, but I think he has gotten closer to the truth than any of us. Some of it may not be perfectly true, but that's why we need research!! I will point out that many people who take accutane seem to be fine which is great that it still helps many people. However, there is an alarming majority of invididuals who were misprescribed, given too high of a dosage, and then not listened to, or not believed that the accutane was the cause. Again, the side effects show up YEARS later. My worst side effects have shown up about 7 or 8 years later. Please, if you can help us get some form of research, I would be so very grateful. I can even work to seek out individuals as research subjects as I know many would be willing candidates. I know grants are hard to come by, but this would be without a doubt, a worthwhile investment for thousands of individuals effected (maybe more). This goes for internationally as well.

 

Thank you for hearing my story and the story of many others. If you have it in your heart to forward this information to others in the stem cell research community, please feel free.

 

I am including the link of the gentlemen who has tried his best to make sense of all of this information:

 

http://www.topix.com/forum/drug/accutane/T9QJ8DO1TLI41VBPN

 

One of many blogs around trying to repair the damage associated with Accutane:

 

Would a petition from sufferers as well as friends and family help with this appeal?

I would do anything to help, please let me know.

There was a petition I posted on here a while back and alot of us tried to get circulated on change.org, I' ll have to re find it, but there wasn't enough signatures to send off. It's worth a shot sdo123 I think acutally some scientist in Mass. did some testing on the psyciatric effects of accutane. I will have to look up the study. I know Nathan had been in contact with a few researchers and there was some intrest, but then nothing came of it. I know a Harvard student wrote a paper on the HX of Accutane. I'll send you the link

Hope all is well

I did 4 runs of Accutane.

I also had mercury in my mouth and 5 root canals that I had removed (i.e, extracted) I also have digestive issues (could only poop hard black pebbles about once every other week) and a bladder infection every 2 weeks which became resistant to other antibiotics so I was put on an open dose of Cipro. I always got a yeast infection afterward, so I got a round of difluan. Then I tried to rebuild my gut flora before having to take the another round of Cipro. Only to do it again, and again, and again for about 7 years. Couple this with escaping an abusive marriage and the stalking seven years later, and getting sued by your abuser for three million bucks (I am not joking) being a single mom for years then supporting a family of 4 on administrative assistant's wages while carrying 4 attorneys kids in college. Yeah, I know stress. Physically, emotionally, psychologically, financially, stress has all kinds of ways degrade you.

I came back to this board 3 years after I spent thousands on some scar revisions treatments. Only to get cystic acne. Again. Then try to undo what my body has been through, and coming back to report the things that did, and didn't, for me.

Is this still the place to do that? If so... I have about 80 more pages to read of this very long thread. Secondly, I found Indigo's and Chino's posts incredibly insightful and from the heart. The two of you, and a couple other people that started this thread are BRILLIANT. Gorgeous writers.

There ARE answers. I believe I have stumbled upon a few.

Like you I feel like I have "done it all"... vegan/vegetarian for 12 years, every "cycline" known to man, every blood cleansing herb, Boiron pellet, apple cider toning, sweating, not sweating, accupuncture, liver, kidney, and parasite cleanses... then 4 rounds of Accutane. It is disparaging. But not a loss. Do you sometimes wonder if you would be half as beautiful and brilliant had you not been blessed with acne?

But right now, for the first time, I think I have stumbled upon a few things that really work. They are pretty simple.

Chino, what is the recipe you were using for juice? Tell me more about your experiences with juicing, please?

Thanks for reading.

You are not a victim. No matter what you have been through, you're still here. You may have been challenged, hurt, betrayed, beaten, and discouraged, but nothing has defeated you. You are still here! You have been delayed but not denied. You are not a victim, you are a victor. You have a history of victory.
Steve Maraboli

Wow! You had Cipro too! Florquinlones are just as bad! Thank You for your story and your quote! You know out of curiosity were you ever checked for interstitial cystitis? I know a few suffers who had thier bladder/uretha dried up and was eventually dx with interstitial???

I think a petition with supporting statements from our families with our stories needs to happen, lets make it happen guys .

I think a petition with supporting statements from our families with our stories needs to happen, lets make it happen guys .

Agreed! However, here is the link to the petition on change.org

http://www.change.org/petitions/tell-roche-pharmaceuticals-give-us-the-truth-about-accutane

 

Wow! You had Cipro too! Florquinlones are just as bad! Thank You for your story and your quote! You know out of curiosity were you ever checked for interstitial cystitis? I know a few suffers who had thier bladder/uretha dried up and was eventually dx with interstitial???

Hi Oli Girl,

I have been to so many urologists it's not even funny. One of my least favorite tests was having a dozen electrodes inserted into my bladder while two people watched me urinate while propping myself up on a porta potty without doors. LOL! I'm sure one of them diagnosed me with something somewhere along the line and it does sound familiar. So... probably, and if I ever get around to reading my medical records again I will confirm it with you.

I stopped having constant bladder infections when I did a couple things. First, I delved heavily into a juicing regime, of granny smith apples with carrots, and various green juices. I began eating a lot of raw honey. Then I had 5 root canaled teeth extracted and let the abcesses heal. During this time I also used medical marijuana which brought down the inflammation in my body and also helped me to poop. I tried to turn my body from acidic to alkaline. I haven't had a bladder infection since March of 2012!

Bohemian, is your stool also abnormally pale, and if so what is the explanation?

No, my stool is not pale. Poop gets its brown color from bile salts in the liver. Pale stools are indicative of a biliary issue (pancreas, gallstones, hepatitis, cirrhosis of the liver). Apparently another cause can be taking antacids.

It is essential for you to eat LOTS of fresh organic produce. Avoid anything greasy, your system is unable to process it, as confirmed by your description of your poop.

Read this:

http://metabolichealing.com/key-integrated-functions-of-your-body/gut/bile-deficiency-heartburn-poor-digestion-toxicity/