accutane was developed as a cancer medication and is still used to treat nerve cancers and other cancers. It quickly kills rapidly dividing cells. It doesn't select what to damage, it just damages what it wants to so you will never know what side effects you will get and how permanent they will be. doctors don't 'know' how it works exactly, it even says that in the leaflet that comes in the accutane packet. it shrinks up your old glands so you get less acne, once you stop, oil glands slowly return to normal (maybe not as oily as before) so you develop the possibility of having your acne return.

I heard it can dry guys down there, i'm not a guy but i've heard that. Well, it can cause rectal and vaginal bleeding as well, so how do you know what is going on inside? It affects bones, skin, hair, eyes . Like i said, it was developed and is still used as cancer medication.

First of all, i want to appologize if i said something wrong. I never said i'm ignored here, but......... hmmm.......although Propecia or other meds have many common side effects with Accutane, we should realise its not the same drug. I know some people who took Propecia and got E.D., but within some months/few years, their sexual function got on the right track. On the other side, i never heard of people who got E.D. from Accutane, to reverse the damage. But maybe i'm wrong...

Someone suggested me here to try TOPICAL SOLUTIONS, to reverse the hair loss? Minoxidil doesnt seem to work. What's the other option?

Thanks guys, really appreciate your efforts.

Roberto- You didn't do anything no need to apologize and to be honest I didn't realize the whole hoopla regarding Gladiatoro mentioning SP had anything to do with you till yesterday! Anyways...Onward as I just read all of your 7 posts and here is what I suggest!

1. It apears that you could be suffering from Alopecia Areata from Accutane with the eyebrow and other hairloss or TE! The thing is you mention in your 1st post that you have eczema, depression & ED and fatigue along with hairloss correct?

2. Though some Accutane suffers have tests and tests and find nothing, some have tests and do! So have you had your hormones tested? Have you had your thyroid or adrenals tested? Have you seen a Endocrinologist? Some have experinced pitutary issues, androgen issues, could be thyroid????

3. Now - You asked about a liver flush or detox and Believe advised you to read through some of his back posts regarding this! I would advise you to do that if you wish to do a liver flush! You will have to take the time to read and research on the liver flush.

4. You say that Hair loss is your main issue and you don't care about the rest but again all the side effects could be connected to 1 issue. I would suggest you go to the Hairloss thread, there are a lot of posts but read through Max- & Lamarr1986 posts and a few others.

5. I also agree with Indigo and I believe SlowChica posted about good sleep, eating well, exercising, not stressing,etc....

6. You say your trying Horny Goat Weed and that topical solution didn't work, I don't know about horny goat weed, but how long did you use theese things???

7. What Supplements and things have you tried?

I can't say anything suggested will help you, and if your looking for a quick fix to your accutane damage there isnt one sorry! You are right though there are very very few (maybe only thoose with hair loss and nothing elese) who have recovered from Accutane, I've meet with a suffer for 25yrs and still going.......Now that doesn't mean that life can't still go on, that things might get better just not the way they use to be before accutane! Hang in there. I will post some links for you!

 

I never stated I had sexual problems it was you who instead said that saw palmetto can CAUSE sexual problems in fact I have absolutely 0 sexual problems , and never had ANY sexual problems , fatigue sometimes yes , brain fog a little but these problems have drastically improved AFTER taking saw palmetto and a few other supplements like liquid D3 , and the only reason I am taking saw palmetto is for hair loss which was CAUSED by isotretinoin ( a known side effect , one of many for this drug ), why do you think this thread is called REPAIRING THE LONG TERM DAMAGE OF ACCUTANE ??? get a reality grip , people like you shouldn't even be on this forum you have nothing positive to contribute so get lost.

This is my last post; you can only reason with reasonable people I'm afraid. I may be wrong on the count of sexual side effects, but I doubt I am as they are the most common. You also deleted a thread you created which was entitled: My Accutane side effects. Do you have something to hide? What is so embarrassing about side effects induced by a pharmaceutical, if they are not of a sexual nature? I guess it doesn'tt help that you put your picture up and you are no longer anonymous. Given your level of fear, I don't trust anything you say.

OliGirl: If I was indeed rude for calling someone weak for openly discussing anti-androgen usage in a thread such as this, please consider that you would no doubt be on your own in making that determination about my behavior. No one at Propeciahelp would tolerate the continued usage of anti-androgens given the current predicament of so many. The fact that you defended a middle aged man who wants to keep his hair so badly that he would risk further damage speak volumes about you. Not only do you profess to side on the side of right, but a righteous right at that. You want a pity party on your own terms.

Well that is great news that this is your last post , what I'm trying to do is to help people and tell them what has worked for me, and like I said FOR THE LAST TIME I'm not saying anyone should take saw palmetto , but it has helped me I deleted a post on my accutane side effects , yes very likely I don't remember why but maybe I was not happy with my post , who cares . You continue to insist I have sexual side effects that is funny , you don't even know who I am , are you a psychic mind reader ???? Reading a lot of these post I consider myself very lucky NOT TO HAVE sexual side effects like so many people here do , And I think the only reason I don't is because I didn't take that much isotretionin a.k.a poison , only about 2000 mg within a month and a half duration I stopped on my own accord after seeing my hair fall out even though the DOC wanted me to stay on it for six months I bluntly told him to @#$%^& off , smartest thing I ever did .Obviously the more mg one takes the worse the damage to the body . I think everyone will be happy that you are not posting anymore , you really are annoying as hell.

First of all, i want to appologize if i said something wrong. I never said i'm ignored here, but......... hmmm.......although Propecia or other meds have many common side effects with Accutane, we should realise its not the same drug. I know some people who took Propecia and got E.D., but within some months/few years, their sexual function got on the right track. On the other side, i never heard of people who got E.D. from Accutane, to reverse the damage. But maybe i'm wrong...

Someone suggested me here to try TOPICAL SOLUTIONS, to reverse the hair loss? Minoxidil doesnt seem to work. What's the other option?

Thanks guys, really appreciate your efforts.

So Here are some links you can also you the search bar on acne.org and find topics you are looking for! The things are this: 1. Many suffers have similar or identical side effects, but dx with diffrent disorders or no answers...You'll see in this link that Babis (go to last pg of thread) Got dx with a pitutary disorder finally! 2. Yes Accutane caused your problems but you got to let that go! You need to focus on what your issues are and go from there...Now like Indigo and some others have said you may research, obsese to try and find an answer and get no where....or you might like some! However, Accutane done it's damage You know it was Accutane so now it's time to move on. I stopped mentioning Accutane when going to physican visits and started getting help and answers!

I reccomened that everyone no matter what side effect you experince that your report to what ever agency your country reports too...Though I will say sexual dysfunction and thyroid etc.. have been reported since the 80's and still not on the label of side effects.

Oli girl : thanks for your effort and for trying to help me, really appreciate it.

I went to an endocrinolog and did some tests like : testosteron, lutein, TSH, prolactin, etc... the doctor asked me to do these tests to see if i have some thyroid problems,,,,but the tests are good.......so, i think my thyroid is ok?! What other tests should i do?

Yes, i also think my symptoms are connected and they lead to a single problem : hormonal disorders (E.D., lack of specific smell of the sperm, dry hairs on testicules) + dry hair&hair loss + skin eczema (on face and scalp) + eyes iritation + muscles weakness + dry skin.

I'm loosing hair from my head, eyebrows, eyelashes, pubic hair, even the hair from inside the nose. Ohh!

What suppliments i tried : multivitamins, clay based detoxification (taking it since 2 weeks ago), gingko billoba pills, vitamin C, garlic tincture, red pepers tincture (topical), minoxidil (topical). That's all so far.

I stilll didnt use Horny goat weed cause for now i have no girlfriend, so the sexual thing is not a priority for now.

There's something i should mention. When i started to loose hair, alot of it, and got dry skin, i took one multivitamin pill, and in 2 hours i got very oily skin and hair got thick so fast, and it stoped falling completely. Within few days, the multivitamin pill stopped working (my skin remained dry and hair continue to fall) .........i dont know what should i understand from this..............i'm so confussed, really.......do u have any idea why that happened? Do you have any clue?

Wow, anyone else notice the last 3 pages here have been miscommunications about who said what about who and mistaken aggression is some cases?

Robert, I'm sorry I can't give you much advice about the hairloss. Oli's suggestion to search for threads about it on this site sounds pretty reasonable.

I also wanna say my experience was nearly identical to yours and I improved quite a bit in the first 6 months after my "crash" without taking any drugs or supplements, or changing my diet. In that time my brain fog almost completely disappeared, I could actually feel a little bit of emotion again, and even the loss of sex-drive and ED got a little better. I am not even close to feeling anything like normal, but certainly am not as bad as I was right after crashing. Hopefully you'll experience a bit of natural recovery too. It seems like most people who got side effects like ours improve somewhat by 6-12 months after they quit the drug. Just don't go assuming things will always stay as bad as they are now.

Oli Girl, there's no point in telling people to accept what is unnacceptable to them. I can't live with being neutered and lobotomized without trying to do something about it.

It pains me to bring up the post finasteride guys again in this thread, but they are a perfect example of not giving up. After going through media outlets, protesting, getting influential doctors on their side, and lobbying for interest from scientific researchers, they are on the path to finding a treatment or cure for the condition.

If you don't squeak, you shall get no grease!

Indigo did a great deed for guys with ED after accutane by showing his face on a nationally broadcast show and talking about his problems. As much as I have certain issues with the way he is handling things, I have much respect for the guy for doing that. It may have been more useful in the long-run than all of us laptop scientists (not talking about anyone here!) trying to figure this out. In all honesty, we should all be doing things similar to what he did.

Oli, you are absolutely right that everyone needs to report their side effects!

Can anyone who is very familiar with this forum say who would be the best moderator to ask about pinning a thread with links to the various agencies world-wide that handle reporting adverse events from prescription drugs?

Should I just post a new thread with a few of these links, then ask to have it pinned in the accutane subforum?

Hi everyone,

Just wanted to give an update.

In the last 6 months I've gained around 15 pounds. I think that's a good sign because most accutane sufferers can't gain weight.

I think it's mostly because I've been taking colostrum.

I did a 36 hour water fast at the beginning of the month, just to try it, and I felt really good. The first few hours were difficult but towards the end I felt great!

Since then I've tried to stay on a vegan diet. I also stay away from bread I eat mostly veggies and rice and try to incorporate as many fermented foods as possible.

For 3 weeks I've been taking the powdered colostrum from Immune tree. I believe that's the only reason I haven't had the flu.

I believe the colostrum has pushed the accutane back into my system.

I've started noticing some things reminiscent of when I was on accutane.

My feet have started to get hot and really red at random times (mostly in the evening)

My facial hair BARELY grows. Since I took accutane my facial hair started growing at half the rate as it did pre acc. Now it's started growing even slower!

I've been waking up in the morning before I need to. I wake up at 7 then 7:30 when I don't have to get up till 8:15.

What do you think it means?

What do you think I should do?

Wow, anyone else notice the last 3 pages here have been miscommunications about who said what about who and mistaken aggression is some cases?

Robert, I'm sorry I can't give you much advice about the hairloss. Oli's suggestion to search for threads about it on this site sounds pretty reasonable.

I also wanna say my experience was nearly identical to yours and I improved quite a bit in the first 6 months after my "crash" without taking any drugs or supplements, or changing my diet. In that time my brain fog almost completely disappeared, I could actually feel a little bit of emotion again, and even the loss of sex-drive and ED got a little better. I am not even close to feeling anything like normal, but certainly am not as bad as I was right after crashing. Hopefully you'll experience a bit of natural recovery too. It seems like most people who got side effects like ours improve somewhat by 6-12 months after they quit the drug. Just don't go assuming things will always stay as bad as they are now.

Oli Girl, there's no point in telling people to accept what is unnacceptable to them. I can't live with being neutered and lobotomized without trying to do something about it.

It pains me to bring up the post finasteride guys again in this thread, but they are a perfect example of not giving up. After going through media outlets, protesting, getting influential doctors on their side, and lobbying for interest from scientific researchers, they are on the path to finding a treatment or cure for the condition.

If you don't squeak, you shall get no grease!

Indigo did a great deed for guys with ED after accutane by showing his face on a nationally broadcast show and talking about his problems. As much as I have certain issues with the way he is handling things, I have much respect for the guy for doing that. It may have been more useful in the long-run than all of us laptop scientists (not talking about anyone here!) trying to figure this out. In all honesty, we should all be doing things similar to what he did.

Oli, you are absolutely right that everyone needs to report their side effects!

Can anyone who is very familiar with this forum say who would be the best moderator to ask about pinning a thread with links to the various agencies world-wide that handle reporting adverse events from prescription drugs?

Should I just post a new thread with a few of these links, then ask to have it pinned in the accutane subforum?

I can't help but ask about your issues with the way I do certain things...

Do tell

Hi everyone,

 

Just wanted to give an update.

 

In the last 6 months I've gained around 15 pounds. I think that's a good sign because most accutane sufferers can't gain weight.

I think it's mostly because I've been taking colostrum.

 

I did a 36 hour water fast at the beginning of the month, just to try it, and I felt really good. The first few hours were difficult but towards the end I felt great!

 

Since then I've tried to stay on a vegan diet. I also stay away from bread I eat mostly veggies and rice and try to incorporate as many fermented foods as possible.

 

For 3 weeks I've been taking the powdered colostrum from Immune tree. I believe that's the only reason I haven't had the flu.

 

I believe the colostrum has pushed the accutane back into my system.

 

I've started noticing some things reminiscent of when I was on accutane.

 

My feet have started to get hot and really red at random times (mostly in the evening)

 

My facial hair BARELY grows. Since I took accutane my facial hair started growing at half the rate as it did pre acc. Now it's started growing even slower!

 

I've been waking up in the morning before I need to. I wake up at 7 then 7:30 when I don't have to get up till 8:15.

 

What do you think it means?

 

What do you think I should do?

I think you're looking too much into it.

So what if your beard grows slowly, right?

Mine is a pain in the ass to shave all of the time.

If you're bored of rice and veggies, have something you do want.

If you don't think you're getting much for your efforts, is it worth it?

I don't question why I wake up 30 minutes earlier than I need to.

You'll be okay man.

 

 

Wow, anyone else notice the last 3 pages here have been miscommunications about who said what about who and mistaken aggression is some cases?

Robert, I'm sorry I can't give you much advice about the hairloss. Oli's suggestion to search for threads about it on this site sounds pretty reasonable.

I also wanna say my experience was nearly identical to yours and I improved quite a bit in the first 6 months after my "crash" without taking any drugs or supplements, or changing my diet. In that time my brain fog almost completely disappeared, I could actually feel a little bit of emotion again, and even the loss of sex-drive and ED got a little better. I am not even close to feeling anything like normal, but certainly am not as bad as I was right after crashing. Hopefully you'll experience a bit of natural recovery too. It seems like most people who got side effects like ours improve somewhat by 6-12 months after they quit the drug. Just don't go assuming things will always stay as bad as they are now.

Oli Girl, there's no point in telling people to accept what is unnacceptable to them. I can't live with being neutered and lobotomized without trying to do something about it.

It pains me to bring up the post finasteride guys again in this thread, but they are a perfect example of not giving up. After going through media outlets, protesting, getting influential doctors on their side, and lobbying for interest from scientific researchers, they are on the path to finding a treatment or cure for the condition.

If you don't squeak, you shall get no grease!

Indigo did a great deed for guys with ED after accutane by showing his face on a nationally broadcast show and talking about his problems. As much as I have certain issues with the way he is handling things, I have much respect for the guy for doing that. It may have been more useful in the long-run than all of us laptop scientists (not talking about anyone here!) trying to figure this out. In all honesty, we should all be doing things similar to what he did.

Oli, you are absolutely right that everyone needs to report their side effects!

Can anyone who is very familiar with this forum say who would be the best moderator to ask about pinning a thread with links to the various agencies world-wide that handle reporting adverse events from prescription drugs?

Should I just post a new thread with a few of these links, then ask to have it pinned in the accutane subforum?

I can't help but ask about your issues with the way I do certain things...

Do tell

 

Hi everyone,

 

Just wanted to give an update.

 

In the last 6 months I've gained around 15 pounds. I think that's a good sign because most accutane sufferers can't gain weight.

I think it's mostly because I've been taking colostrum.

 

I did a 36 hour water fast at the beginning of the month, just to try it, and I felt really good. The first few hours were difficult but towards the end I felt great!

 

Since then I've tried to stay on a vegan diet. I also stay away from bread I eat mostly veggies and rice and try to incorporate as many fermented foods as possible.

 

For 3 weeks I've been taking the powdered colostrum from Immune tree. I believe that's the only reason I haven't had the flu.

 

I believe the colostrum has pushed the accutane back into my system.

 

I've started noticing some things reminiscent of when I was on accutane.

 

My feet have started to get hot and really red at random times (mostly in the evening)

 

My facial hair BARELY grows. Since I took accutane my facial hair started growing at half the rate as it did pre acc. Now it's started growing even slower!

 

I've been waking up in the morning before I need to. I wake up at 7 then 7:30 when I don't have to get up till 8:15.

 

What do you think it means?

 

What do you think I should do?

I think you're looking too much into it.

So what if your beard grows slowly, right?

Mine is a pain in the ass to shave all of the time.

If you're bored of rice and veggies, have something you do want.

If you don't think you're getting much for your efforts, is it worth it?

I don't question why I wake up 30 minutes earlier than I need to.

You'll be okay man.

It's a pain because I have to shave at least 3 times a week. My facial hair is thick but it grows very slow! So when I shave it feels like I'm shaving my skin as well.

Maybe I'm not explaining it well....

But don't you think it's interesting?

Why has my oil production (or whatever causes hair to grow) dramatically slowed AGAIN?!

I'm not freaking out or scared I just thought I'd share.

On 2/2/2013 at 4:48 AM, humanstate said:

On 2/2/2013 at 4:38 AM, IndigoRush said:

On 2/2/2013 at 1:15 AM, Dubya_B said:

Wow, anyone else notice the last 3 pages here have been miscommunications about who said what about who and mistaken aggression is some cases?

Robert, I'm sorry I can't give you much advice about the hairloss. Oli's suggestion to search for threads about it on this site sounds pretty reasonable.

I also wanna say my experience was nearly identical to yours and I improved quite a bit in the first 6 months after my "crash" without taking any drugs or supplements, or changing my diet. In that time my brain fog almost completely disappeared, I could actually feel a little bit of emotion again, and even the loss of sex-drive and ED got a little better. I am not even close to feeling anything like normal, but certainly am not as bad as I was right after crashing. Hopefully you'll experience a bit of natural recovery too. It seems like most people who got side effects like ours improve somewhat by 6-12 months after they quit the drug. Just don't go assuming things will always stay as bad as they are now.

Oli Girl, there's no point in telling people to accept what is unnacceptable to them. I can't live with being neutered and lobotomized without trying to do something about it.

It pains me to bring up the post finasteride guys again in this thread, but they are a perfect example of not giving up. After going through media outlets, protesting, getting influential doctors on their side, and lobbying for interest from scientific researchers, they are on the path to finding a treatment or cure for the condition.

If you don't squeak, you shall get no grease!

Indigo did a great deed for guys with ED after accutane by showing his face on a nationally broadcast show and talking about his problems. As much as I have certain issues with the way he is handling things, I have much respect for the guy for doing that. It may have been more useful in the long-run than all of us laptop scientists (not talking about anyone here!) trying to figure this out. In all honesty, we should all be doing things similar to what he did.

Oli, you are absolutely right that everyone needs to report their side effects!

Can anyone who is very familiar with this forum say who would be the best moderator to ask about pinning a thread with links to the various agencies world-wide that handle reporting adverse events from prescription drugs?

Should I just post a new thread with a few of these links, then ask to have it pinned in the accutane subforum?

I can't help but ask about your issues with the way I do certain things...

Do tell [Edited image out]

On 2/2/2013 at 2:36 AM, humanstate said:

Hi everyone,

Just wanted to give an update.

In the last 6 months I've gained around 15 pounds. I think that's a good sign because most accutane sufferers can't gain weight.

I think it's mostly because I've been taking colostrum.

I did a 36 hour water fast at the beginning of the month, just to try it, and I felt really good. The first few hours were difficult but towards the end I felt great!

Since then I've tried to stay on a vegan diet. I also stay away from bread I eat mostly veggies and rice and try to incorporate as many fermented foods as possible.

For 3 weeks I've been taking the powdered colostrum from Immune tree. I believe that's the only reason I haven't had the flu.

I believe the colostrum has pushed the accutane back into my system.

I've started noticing some things reminiscent of when I was on accutane.

My feet have started to get hot and really red at random times (mostly in the evening)

My facial hair BARELY grows. Since I took accutane my facial hair started growing at half the rate as it did pre acc. Now it's started growing even slower!

I've been waking up in the morning before I need to. I wake up at 7 then 7:30 when I don't have to get up till 8:15.

What do you think it means?

What do you think I should do?

ockquote> I think you're looking too much into it.

So what if your beard grows slowly, right?

Mine is a pain in the ass to shave all of the time.

If you're bored of rice and veggies, have something you do want.

If you don't think you're getting much for your efforts, is it worth it?

I don't question why I wake up 30 minutes earlier than I need to.

You'll be okay man.

It's a pain because I have to shave at least 3 times a week. My facial hair is thick but it grows very slow! So when I shave it feels like I'm shaving my skin as well.

Maybe I'm not explaining it well....

But don't you think it's interesting?

Why has my oil production (or whatever causes hair to grow) dramatically slowed AGAIN?!

I'm not freaking out or scared I just thought I'd share.

My beard grows so fast.

I'm like Steve Carrell in Evan Almighty.

But I don't get what you're trying to say lol.

You're beard grows fast, but it grows slow?

Shaving is a bit of a problem for me too though.

If I shaved every day, my skin would look really bad.

I shave every few days (at which point I look homeless) because I don't want to irritate my skin.

I've used Colostrum and didn't notice anything.

My feet get hot and sweaty sometimes.

I could question a bunch of stuff that happens with my body, but I know there is no explaining.

I think you're worrying a bit

Wow, anyone else notice the last 3 pages here have been miscommunications about who said what about who and mistaken aggression is some cases?

Robert, I'm sorry I can't give you much advice about the hairloss. Oli's suggestion to search for threads about it on this site sounds pretty reasonable.

I also wanna say my experience was nearly identical to yours and I improved quite a bit in the first 6 months after my "crash" without taking any drugs or supplements, or changing my diet. In that time my brain fog almost completely disappeared, I could actually feel a little bit of emotion again, and even the loss of sex-drive and ED got a little better. I am not even close to feeling anything like normal, but certainly am not as bad as I was right after crashing. Hopefully you'll experience a bit of natural recovery too. It seems like most people who got side effects like ours improve somewhat by 6-12 months after they quit the drug. Just don't go assuming things will always stay as bad as they are now.

Oli Girl, there's no point in telling people to accept what is unnacceptable to them. I can't live with being neutered and lobotomized without trying to do something about it.

It pains me to bring up the post finasteride guys again in this thread, but they are a perfect example of not giving up. After going through media outlets, protesting, getting influential doctors on their side, and lobbying for interest from scientific researchers, they are on the path to finding a treatment or cure for the condition.

If you don't squeak, you shall get no grease!

Indigo did a great deed for guys with ED after accutane by showing his face on a nationally broadcast show and talking about his problems. As much as I have certain issues with the way he is handling things, I have much respect for the guy for doing that. It may have been more useful in the long-run than all of us laptop scientists (not talking about anyone here!) trying to figure this out. In all honesty, we should all be doing things similar to what he did.

Oli, you are absolutely right that everyone needs to report their side effects!

Can anyone who is very familiar with this forum say who would be the best moderator to ask about pinning a thread with links to the various agencies world-wide that handle reporting adverse events from prescription drugs?

Should I just post a new thread with a few of these links, then ask to have it pinned in the accutane subforum?

I take it you mean when I say that Accutane caused his issues and in other words trying to say he shouldn't obsessive about it! It will drive you crazy, can make you sicker from stress! Do think I don't know and live everyday what this drug did to me trust me I do, and If ya ever read my story you get it! However, the damage is done and so 1 needs to take action to find answers, and try help themselves along with promoting this drug as pure posion and in my eyes like no other!

I do have one question for you though how long have you been damaged and how much hx are you aware of Accutane, the media,tv shows, congressional hearings, court cases (and not the IBD ones) etc... The research and studies, done by scientist???? Just Curious....

As for Mods I not sure your gonna get them to pin a thread on where to report links to various agencies, But I will ask!

Have a Great Weekend Everyone!

More hair loss tips:

Skip out on oilings, cowashes, etc.
It may seem like oiling your scalp or putting conditioner on it could help to moisturize it, but it also softens up the roots of the hair, making it easier for your hair to fall out. Also, it's a pain getting the oils and silicones out of your scalp (you'll probably have to use a lot of sulfate shampoo, which will irritate your scalp and undo all the moisturizing you've done...) More information here: http://hairscapades.com/2011/06/21/excessive-shedding-is-co-washing-the-culprit-2/

Foam your shampoo.
I have never found a sulfate-free shampoo that worked for my fine, oily hair. I use a moisturizing sulfate shampoo, but I dilute it with water and put it in a foam-pump soap dispenser. So it's pre-lathered and you use less product!

Wash your hair less often. (But still do it!)
I used to wash my hair at least once a day (maybe twice if I was really dirty/sweaty.) But all that washing will irritate the scalp, which produces natural oils to keep itself healthy. I wash my hair every 2-3 days now. It was hard at first, but my scalp gradually adjusted and makes less oil now to overcompensate. But if you don't wash (or if you don't lather or rinse well) you'll get a crusty scalp coating, which will soften the roots of the hair, which makes it fall out more easily.

Don't brush, especially while wet.
Hair is a lot more brittle when it's wet. Low porosity hair especially can snap very easily while wet. Wet hair will also come out more easily at the roots. Wait until it's dry. Even then, I don't really brush or comb... I prefer to pick out the tangles with my fingers rather than risk yanking hair out at the roots. And the brushes I've had were plastic, which could damage my hair.

Protein treatments
If you have high porosity hair (dull, rough, damaged, processed, but products "soak into" it easily), get a shampoo or conditioner with protein in it. If you have low porosity hair should (brittle, products don't "soak in" but rather sit on the hair), avoid protein because it will make it snap more easily. (Accutane made my hair thinner, but it's still low porosity.) More information here: http://www.lacocobella.com/2012/04/11/hair-porosity-its-kind-of-a-big-deal/

Keep hair at least shoulder length (if you're female).
I made the mistake of getting a pixie cut about a year ago. It looked cute, but when the hair started growing, I entered a "mullet" phase that looked absolutely awful. Unless you wear hats or refuse to look at yourself in the mirror for a couple months, every day will be a constant struggle of wanting to cut off your hair. With short hair, you have no way of holding it back when it falls everywhere unless you want to wear hats. With long hair, at least you can put it back in a ponytail and not have to look at it or worry about it. My hair's about shoulder length now, which is a good length; it isn't too stringy, but still ponytail length.

Hope these helped!

I stopped on my own accord after seeing my hair fall out even though the DOC wanted me to stay on it for six months I bluntly told him to @#$%^& off , smartest thing I ever did .Obviously the more mg one takes the worse the damage to the body . I think everyone will be happy that you are not posting anymore , you really are annoying as hell.

Yeah, I guess the next smartest thing you did was to let your fear drive you to ingest another anti-androgen. Sure, I'll admit to coming across as annoying to someone who obviously can't reason to save himself; or, some rudderless kid who can't navigate the basics of life. Do you have kids; and, are you able to look at them in the face and say that you have no choice but to put their well being on the line because you cherish your hair so much: more than your already shaky health? Weak.

Quote

IndigoRush: Do tell [Edited image out]

Hah! You worry too much Indigo. [Edited image out]It's not much, really. I'll PM you about it.

Oli Girl, maybe I misread one of the quadruple or quintuple embedded quotes here as something you said? It's dificult to keep track of everything.

anyways...

No one should expect one of us to become obsessive about recovering. That's not what I meant.

We all owe it to ourselves to at least become well-informed enough about our health and any potential treatments we may undertake to avoid being taken advantage of by medical quackery and other irrelevant, ineffective, or dangerous treatments.

I'm glad you mentioned Babis. He learned enough about hormonal therapy and which doctors should be trusted with his medical care to finally find proper treatments that worked for him. This wouldn't have happened if he gave up. I was both surprised and happy to see that hormonal therapy actually helped that guy.

Some of us have side-effects that have not, and probably never will be able to be properly treated with either conventional or natural medicine. We're likely to need some pretty unorthodox treatments.

Maybe it's time we tried again to get some attention and some real help. This still doesn't mean we have to let our problems dominate our lives.

To answer your questions:

My side-effects have lasted for 13 years now, and I didn't make the correlation between my symptoms and my accutane use until late 2010. The worst of it all happened after I quit the drug.

I am well aware of much of the sad history of accutane and have read Nathan Carr's summary, many if not all of the studies he cited, as well as much of the general scientific data on accutane and other retinoid drugs. Nathan makes a very strong point in that science has progressed to where we should be able to link accutane's methods of action with its long term side-effects if we try hard enough and get the right kind of help.

This should be evident after looking at these two papers(which specifically mention isotretinoin) that show there is current scientific interest in the subject:

"Epigenetic side-effects of common pharmaceuticals: a potential new field in medicine and pharmacology"

http://www.ncbi.nlm.nih.gov/pubmed/19501473

"Early gene changes induced by isotretinoin in the skin provide clues to its mechanism of action"

http://www.landesbioscience.com/journals/dermatoendocrinology/article/8107/

Epigenetics and molecular mechanisms are at the "deepest" possible level of biology and if our problems can't be explained there, then Accutane must truly be some form of cursed voodoo magic.

The "methods of action are unknown" defense should be a tasteless joke by now. ...and yes I do realize that same old song and dance has worked great for Roche in the past, along with the "acned teenagers are suicidally depressed anyways" defense, but all good things must come to an end.

Maybe the above links will give the "there's no way this stuff changed the way our DNA works" camp something to reconsider.

Even dermatologists and cancer researchers admit this is true. I don't wanna admit it's true, but it's fact.

About the Mods: I wasn't sure how neutral they were on the accutane topic. People are supposed to report their side effects. It's the right thing to do. Mods shouldn't have any problem with pinning a thread like I described unless there is a bias. Well, unless they think it isn't important enough to pin.

If anyone feels offended by this post in any way; absolutely none was intended. If someone wants to begin another frivolous argument about what was said; don't waste your time, you'll get no response.

 

I stopped on my own accord after seeing my hair fall out even though the DOC wanted me to stay on it for six months I bluntly told him to @#$%^& off , smartest thing I ever did .Obviously the more mg one takes the worse the damage to the body . I think everyone will be happy that you are not posting anymore , you really are annoying as hell.

Yeah, I guess the next smartest thing you did was to let your fear drive you to ingest another anti-androgen. Sure, I'll admit to coming across as annoying to someone who obviously can't reason to save himself; or, some rudderless kid who can't navigate the basics of life. Do you have kids; and, are you able to look at them in the face and say that you have no choice but to put their well being on the line because you cherish your hair so much: more than your already shaky health? Weak.

Let's get one thing straight here my health isn't shaky , the side effects I have from isotretionin are manageable but not life threatening or anything like that , we are all on this forum in order to improve our health and reverse the damage caused by this drug , you on the other hand seem to be on this forum to put negative comments on to things that have worked for other people like me, and the last time you commented you said this will be my last post , well it seems you contradicted yourself as you are still blabbing away and NO ONE IS LISTENING , so do yourself a favor and stop posting and make the world a better place lol...

ps. I will not respond to any more of you silly commets.

Finally i quit accutane!!! My acne is a shit , my hair are completely destroyed !!! I will not take this shit ever again , i hope that at least my hair will return as before...my dermatologist said that in 2 mounth shall recover them as before !!! I hope at least to save the salvable .

 

I guess it's time for another update.

Non-organic American chicken wiped me out hard, even without additives.

I've switched to just organic chicken, scallops and homemade yoghurt. I also added animal thyroid extract, Glutagenics, colostrum, and superzymes. This has allowed me to restabilize my circadian and get back on my feet.

I'm glad to see you are still plugging away. On to more pressing matters: I just stumbled across your 1 and only post over at ATM; and, I have to say I was blown away. To call it killer is no where near enough. I knew you were diluting yourself here. Acne. org isn't getting the full enchilada - not by a long shot! I read it about an hour ago and I still can't stop laughing long enough to fall asleep. Full respect bud - sincerely.

I will buy hairmaxlasercomb and i will assume supplements of biotin . In 3 mounth of accutane i lost 50% of my hair density ...all over the scalp.....

On 2/3/2013 at 12:26 AM, Andrew2890 said:

I will buy hairmaxlasercomb and i will assume supplements of biotin . In 3 mounth of accutane i lost 50% of my hair density ...all over the scalp.....[Edited image out]

Andrew, I am sorry to hear that. If you are quite young (early 20's), I'm sure you are justifiably distraught; but, please be careful with any course of action you take in an attempt to remedy this. Steer clear of any pharmacueticals or reputed 'natural' solutions which are effectively anti-androgens to fight hair loss. Be wary of what you read online.

In the blood tests i did, i saw that the white cells its over limit......what does it means?

On 2/3/2013 at 7:05 AM, camaroz28 said:

On 2/3/2013 at 12:26 AM, Andrew2890 said:

I will buy hairmaxlasercomb and i will assume supplements of biotin . In 3 mounth of accutane i lost 50% of my hair density ...all over the scalp.... [Edited image out]

Andrew, I am sorry to hear that. If you are quite young (early 20's), I'm sure you are justifiably distraught; but, please be careful with any course of action you take in an attempt to remedy this. Steer clear of any pharmacueticals or reputed 'natural' solutions which are effectively anti-androgens to fight hair loss. Be wary of what you read online.

what should I do? my derma said in 2 mounth will return as before but reading on internet no one has made a full recovery, on the other in a short time. But all dermatologists said it's temporary . But off sure i trust most of guys who have had the same experience than doctors who can not admit that the accutane is causing all this . I really lost hope , i pray [Edited image out]

Hey,

Just to throw another theory into the mix lol has anybody considered candida overgrowth possibly being the cause for many of our symptoms post accutane. Accutane def has adverse effects on the GI tract...

anyways heres a site and a lot of the symptoms are similar to what I and many of you suffer from...

[Edited link out]

On 2/4/2013 at 1:09 AM, Andrew2890 said:

On 2/3/2013 at 7:05 AM, camaroz28 said:

On 2/3/2013 at 12:26 AM, Andrew2890 said:

I will buy hairmaxlasercomb and i will assume supplements of biotin . In 3 mounth of accutane i lost 50% of my hair density ...all over the scalp.....[Edited image out]

Andrew, I am sorry to hear that. If you are quite young (early 20's), I'm sure you are justifiably distraught; but, please be careful with any course of action you take in an attempt to remedy this. Steer clear of any pharmacueticals or reputed 'natural' solutions which are effectively anti-androgens to fight hair loss. Be wary of what you read online.

what should I do? my derma said in 2 mounth will return as before but reading on internet no one has made a full recovery, on the other in a short time. But all dermatologists said it's temporary . But off sure i trust most of guys who have had the same experience than doctors who can not admit that the accutane is causing all this . I really lost hope , i pray [Edited image out]

What has happened is messed up, no doubt about it; but, you should avoid getting into more trouble. It may be worth risking your health and all your future prospects for disfiguring cystic acne, but it is indefensible, to put it ALL on the line AGAIN for hair. You have lost your hair in a short period of time (that would sting); and, perhaps people are giving you a hard time about it, but do not take any more anti-androgens.

On 2/3/2013 at 9:47 PM, Robert1000 said:

In the blood tests i did, i saw that the white cells its over limit......what does it means?

High White Blood count can mean viral/bacterial, Rhuematoid and sometimes other autoimmune disorders. Some medications can do this also, but with Accutane it usually lowers the WBC, though I wouldn't put anything past it. What did your doc say? Are they going to monitor it?

On 2/3/2013 at 12:26 AM, Andrew2890 said:

I will buy hairmaxlasercomb and i will assume supplements of biotin . In 3 mounth of accutane i lost 50% of my hair density ...all over the scalp.....[Edited image out]

Biotin is good! Good Diet! I wouldn't do anything drastic yet and go out and spend hunderds on the hairmaxlasercomb. I would give a couple months and baby that hair! You could be just suffering from TE in which your body went through stress from Accutane. See the hairloss thread! As for acne have you tried diet, laser therapy?