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Repairing the long-term damage from Accutane

 
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143
(@indigorush)

Posted : 10/10/2011 8:23 am

I always like to hear from you, Spy.

I ended up buying some stuff from iHerb (omega 3's, Livercare and 5-HTP) and the postage to the UK was only 4 dollars. I'd think it sounds too good to be true, but I know how infamous they are.

How long have you been jobless for?

I might start reading Adrenal Fatigue later on. Funny enough, one of my best friends is called James Wilson. Maybe that's a sign (lol).

I'm glad you have some things to look into. As do I. I know it'll cost a hell-of-alot to get tested for everything, but I need to feel like I'm doing something about my issues.

I'll give it a month or two of following the guidance from my herbalist, and then I'll possibly see a nutritionist.

Perhaps, with more than one of us looking for answers, we're in the money.

:)

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MemberMember
143
(@indigorush)

Posted : 10/10/2011 12:41 pm

Dude... I'm about to place another order on iherb, but I've heard that because it's from the States we have to pay a fuckin' massive import (customs) fee.

That would suck!

 

http://www.iherb.com/info/shipping/International

Though, if you check the above link, they say that the cheapest delivery option is the best as it's unlikely to cause additional tax/customs fees.

We'll see.

I'm going to place another order (Magnesium citrate powder, Zinc and liver supplements)

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5
(@the-spy)

Posted : 10/10/2011 12:47 pm

As long as you pick International Airmail like I do for shipping ($4 one), the customs won't be expensive at all. I'm sorry for not mentioning that though, I should have filled you in on that. That fee should be posted to you within a few weeks of ordering, but I promise you that as long as you don't select DHL you'll be fine. Again, I apologise for that!

 

I've been unemployed for a couple of months now; I've only recently finished college but I don't want to go to Uni right now. I wanna get a job (even at minimum wage) and save up to get these health problems sorted, then I can reconsider my education.

 

I agree on your stance on all of us co-operating -- it's a relief that you're also in the UK, because a lot of these sites are mainly based in / around America. Luckily there are resources for UK references as well! :)

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4
(@coolguy)

Posted : 10/11/2011 3:44 am

Hi all, so i've decided to go with the liver flush method to fix my problems or even alleviate some of them. i've already heard quite a number of people doing this for the accutane side effects so i'm giving this a shot as well. and chinese medicine is generally safer in terms of side effects than western med anyways. ya..so after months of procrastinating I finally i got the 4 tinctures from sensiblehealth.com and i started today. i want to ask, has anyone done a colonic cleanse after the flush? like from a colon irrigation clinic? people say you should and i've been told to do it (i likely will) but what is it like? does it make you feeling dizzy after? does it make you feel more energized later on? or any other comments you guys have on colonic cleansing? (yes i know there are enemas you can do at home but i dont know, seems kinda intimidating to do it on your own.and i have the thought that its messy)

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143
(@indigorush)

Posted : 10/11/2011 5:00 am

http://max001.proboards.com/index.cgi?board=gfdgdgfd&action=display&thread=38 < Not good news :/

Spy, I realised after sending my last comment. I ordered the $4 shipping and their site mentions you're unlikely to get additional costs via that method.

Coolguy, I considered that at one point; even contacted a place nearby and they reassured me, but I didn't go ahead with it. Too embarrassing for me - You're there for like, an hour! I did buy an enema, though I don't feel too enthused to use that either.

To be honest, I really feel at the tail end right now.

I need a fuc*ing lifeline right now. Things have just hit rock bottom, and it seems the more I learn about this drug, the less likely it is I can ever recover. And I don't know if I can live with that. I keep considering suicide, and the more I lose hope, the more easy it seems to just get in my car and hit a tree at 70mph. And the moderators can remove this post if they like, but this just isn't fair. Justice is in order. I wasn't given any warning of this. I feel like I've lost my mind a bit, and I probably have as the bastard drug affects the brain as well as every organ in the body.

Roche, you bunch of mother-f*ckers, If I go, I'm taking you down with me.

Hooray for a happy ending!

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MemberMember
143
(@indigorush)

Posted : 10/11/2011 5:51 am

http://max001.proboards.com/index.cgi?board=gfdgdgfd&action=display&thread=38 < Not good news :/

Spy, I realised after sending my last comment. I ordered the $4 shipping and their site mentions you're unlikely to get additional costs via that method.

Coolguy, I considered that at one point; even contacted a place nearby and they reassured me, but I didn't go ahead with it. Too embarrassing for me - You're there for like, an hour! I did buy an enema, though I don't feel too enthused to use that either.

To be honest, I really feel at the tail end right now.

I need a fuc*ing lifeline right now. Things have just hit rock bottom, and it seems the more I learn about this drug, the less likely it is I can ever recover. And I don't know if I can live with that. I keep considering suicide, and the more I lose hope, the more easy it seems to just get in my car and hit a tree at 70mph. And the moderators can remove this post if they like, but this just isn't fair. Justice is in order. I wasn't given any warning of this. I feel like I've lost my mind a bit, and I probably have as the bastard drug affects the brain as well as every organ in the body.

Roche, you bunch of mother-f*ckers, If I go, I'm taking you down with me.

Hooray for a happy ending!

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10
(@milano)

Posted : 10/11/2011 9:16 am

Hey Indigo, I'm sure you are pretty fed up of people telling you to not give in, keep being positive etc. but really, you must otherwise you will loose hope.

You seem like quite a fun guy from the videos you posted, but I know very well that is easy to put on a positive/happy front when really your terribly sad inside.

Searching the Internet for information on Accutane will not do you any good from what I've learned. You will only find stories of hopelessness and despair and the more you surround yourself with these feelings the more they will sink into you. This is why I like this thread in particular, it started in a very positive manner, by yourself no less, trying to find a resolution to our problems and there has been some good advice along the way, I hope it continues like that.

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MemberMember
143
(@indigorush)

Posted : 10/11/2011 11:48 am

I'm no good at being happy when I'm not dude.. I film those videos in my good moods normally. In one I did today, I mention I was depressed, but thanks anyway.

I feel a bit better now.

I walked my dog and went out for a while, so I feel okay.

It is hard not to let things get the best of you when you're like this though, and I start to go mad just wondering if it's my fault for being depressed, or if the drug damaged my brain. Could be both, but I'm doing my best. My relationship with my girlfriend is going terribly due to this drug though. She will stand by me, but I hate that I can bring her down, or suddenly change my mood from alright to suicidal (That's what seems to happen regularly now).

While searching the web, I came across this today: http://www.healthsynergy.co.uk/

I'm thinking about doing that, though I need to let my hair grow a bit as I had it cut yesterday.

You send away some of your hair (only an inch) in an envelope and for 47 you get tested for mineral/vitamin deficiencies and allergies.

I've heard some people say these are affected by accutane.

Worth trying perhaps.

It'd show if our body has become allergic to carrots, for example (because of the vitamin A).

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MemberMember
143
(@indigorush)

Posted : 10/11/2011 12:06 pm

You should all read this (A message from somebody on YouTube who watched my Accutane video) ....

How you doing ? I hope you doing well man!

 

I am sorry if I took too long to reply ,I was on a trip with friends in the french part of canada, it was pretty fun , anyway I went to the herbalist and she gave me some cells antioxidants called NAC and gluthomine, i hope it helps .

 

Well like I told you , I went to this trip and it was really good for me you know , I got my mind off these side effects and this drug , there was a girl who I met 2 years ago , really beautiful girl, she's got such an amazing personality p.s some amazing booty hehe kidding well she lives in quebec I met her again over the weekend and she noticed I was different . I told her about the drug , and guess what ? She took the drug herelf when she was 16 for the first time for 8 months and the second time for 6 months when she was 17.

 

Man , she suffered all these horribles side effects that I am experiencing right now , she couldn't concentrate on nothing , she had dark thoughts , low energy , depression .. All the side effects you can imagine , but now 5 years later she's completely recovered ! It has inspired me , if a girl who was 16 passed trough these valley of death and survived we can do it as well mate .

 

It has to go away someday buddy, let's keep positive. I wish I could have some solution for our problem right now , I am sorry .

 

I would like to talk to you later , tell details about my friend accutane story ,

 

Ah, HOPE, how powerful you are.

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(@thegreyhound)

Posted : 10/11/2011 12:17 pm

I'm realizing lately that because doctors can't find out why I feel rundown so much of the time (tired, low energy, achy joints and muscles, muscle fatigue, headaches, IBS) and that some of it is most likely from Accutane, the best thing I can do while waiting it out, apart from taking care of myself, exercising, eating well and taking a reasonable couple supplements (stuff for joints, etc.), is learning to live with it/ manage it, and manage my expectations of myself and my condition.

I'm going to a counselor for cognitive-behavioural therapy.

I think at some point you need to stop reading article after article about what a "nasty poison" Accutane is... because we DON'T have control over what Accutane has already done to our body. You need to take control of what you DO have control over, and that is your attitude towards your body while it's recovering from the effects of Accutane, and the way you see yourself and your body and manage the symptoms.

-Andrew

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143
(@indigorush)

Posted : 10/11/2011 4:26 pm

Nicely put Andrew. Thanks for the comment

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(@user116745)

Posted : 10/11/2011 4:51 pm

Hey everyone. I made a video in a thread about my experience on Accutane and how I am recovering. I have some great information that I think could help many of you.

http://www.acne.org/...tane-treatment/

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5
(@the-spy)

Posted : 10/12/2011 12:08 pm

Hooray for a happy ending indeed, Indigo! Never give up on hope, because we'll emerge much stronger than we've ever been once we're done with all of this. wink.png

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(@milano)

Posted : 10/12/2011 2:33 pm

This. This shit gave me the most laughs for a good while - I doubt any Accutane topic on the whole of the Internet contains such a gem of information.

You have great comedic timing by the way.

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MemberMember
143
(@indigorush)

Posted : 10/12/2011 4:45 pm

Thanks. My ego feels nicely polished right now :)

[Edited video out]

I don't know if I'm 'allowed' to post non-related videos, but I know how many people need to know the contents of this vid.

Enjoy ;)

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2
(@thegreyhound)

Posted : 10/12/2011 7:40 pm

Annndddd I have an instant crush on IndigoRush. hifive.gif

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MemberMember
143
(@indigorush)

Posted : 10/13/2011 10:25 am

Hooray.

If women loved me as much as men seem to, I'd be balls deep in clunge (Bit inbetweeners..)

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45
(@jmsil)

Posted : 10/13/2011 12:55 pm

Love the videos Indigo! I've been following almost since this thread started, and I've read a few of your other posts on other ones, and I can literally feel all those different emtions that you are going through! There is no doubt this drug tests your mind to the absolute limit! You bring up a good point in is it the side effects that make us feel like this, or has Accutane directly effected the brain.

Connor - That's a good inspirational post. The problem with exercise, is that with me, and I'm sure others, I don't have lots of energy to do this intense workout, or even proper exercise that can be constantly substained. Also you always here if you are dehydrated then do not exercise otherwise you will feel worse. It's all about doing your personal best. The Spy is right in that walking is very good, and really I'm going to do this tomorrow. I've been feeling a bit less of energy the last few days, but I have a treadmill and will try an hour walk on that tomorrow, and see how I go! I know this might not sound much but the Accutane has taken it's toll on me! If I could do this consistently every day I would be well pleased. But anyway, back to actually healing from Accutane, you are saying we should sweat as though toxings such as Accutane has re

As we are talking about good exercise and eating as cleanly as possible, I'll share a few links to some food I've found. The first link below are a range of organic soups from a brand called Tideford. If you click on one of them and look at the ingredients, and can see natural it is, and all the range is vegan, wheat free, gluten free and organic! They are the nice thick, homemade soups too in big tubs, unlike the runny stuff you normally get in the cans ! I've ordered one today! The other link is organic ready meals. Again, all are vegan, organic, and I think wheat and gluten free. I don't think you will find cleaner food anywhere! For people who missed my post pages back, this company also sell raw, organic, cold pressed coconut oil, again you can't get it any better! This company really is good for really healthy food.

[Edited link out]

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MemberMember
143
(@indigorush)

Posted : 10/13/2011 4:12 pm

Thanks man.

I like whenever I see there's a new post in these pages.

I find though, when I feel fresh hope, I feel better overall.

So perhaps without the side-effects of tane, we'd be just fine.

The author of Ultramind says that brain disorders are related to body illness anyway, so it's most likely that real depression has an underlying cause.

Those soups look pretty good. At the moment, I just buy Heinz which are cheap.

Sure, they're not organic, but the ingredients look alright.

I get spring/winter vegetable/ lentil and minestrone because they don't contain milk.

I tend to have soup every day.

The amount of times I eat mackerel for dinner is funny! I try to have fish instead of other meats.

I know the sea's are polluted, but unless you buy organic you can't be sure how the animal's have been treated/fed.

My stomach has been playing up today though.

Hopefully it'll pass, 'cos it hurt when I went to the loo.

Thought you'd all like to know that...

Ciao for now

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2
(@thegreyhound)

Posted : 10/13/2011 6:32 pm

You're not alone Indigo [Edited image out]... not at all. Your situation is very very similar to mine.

(Also, even your posts remind me of myself... the way you write and your thought process on this stuff.)

I'm glad I found this thread, and plan on hanging around. [Edited image out]

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MemberMember
2
(@thegreyhound)

Posted : 10/14/2011 11:11 am

For your body aches, what do you currently do, by the way?

I've realized that I've been not allowing myself any remedy for it, which is strange. I guess I just get really frustrated about it and start telling myself negative things like "Why do I have to feel like such an old man all the time?" (lol) so as a result I don't allow myself to take a painkiller.

I think I'm going to start using the Tylenol for arthritis, and take it as needed. Considering many people take one every day, I'm sure regular use shouldn't be a problem.

As for my tiredness, there doesn't seem to be much of a remedy for it... I have a sleep study coming up which should unveil how I am sleeping, but if that's not a problem, then I have no idea where that leaves me. Sometimes I have a bit of energy, but a lot of the time I feel like I have very little and there is no explanation.

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MemberMember
143
(@indigorush)

Posted : 10/15/2011 6:03 am

Andrew... 'This too shall pass' - Did you get this from the Tao Te Ching?

I have a Wayne Dyer audiobook related to it, and 'This too shall pass' was one of the things that spoke to me.

I put that message on a yellow sticky and kept it near my computer monitor when I was working.

Still waiting for it to pass though!

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45
(@jmsil)

Posted : 10/15/2011 7:04 am

Andrew - For your arthritis, have you tried a Rebounder? I had arthritis come on suddenly, but it went away within weeks of using a rebounder. I bought a rebounder because I read a lot of success on the internet about arthritis and rebounders.

To be honest, I've just looked up some info again on Rebounders, and I think maybe I should try and see if I can manage to use it more. Take a look a this link here:

http://healthimpactn...ll-in-the-body/

another link:

http://www.healingda...-rebounding.htm

By sterengthening every cell in your body, if the telomere thoery is true, then this could be a good way to counter it. Even is the telomere thoery isn't rtrue, strengthening every cell in your body is still good! I keep abandoning my rebounder because it just doesn't feel like exercise, evn though it does work because it did get rid of my arthritis quickly. There are so many good articles about the benefits I'm really going to try and give it a consistent go.

You may remember me saying i was going to do some walking on the treadmill... did 30 minutes yesturday, did 30 minutes today. I did want to do a straight hour today but my damn ipod ran out of battery! I reckon i could of done it though.. it's just whether i can do it consistently. I'm going to try and do 30 more minutes again later... that would be 2.5 miles today. I'll try and do some rebounding on top o that. The intense workout that Connor said is just a no-no for me.. haven't got that strength or energy... It does make some snese in what he said. If we can try and strengthen our body, our muscles etc.. and biuld our bodies back up, maybe the healing can begin. I personally feel like my body has been weakening ever since Accutane.. never getting stronger, just the opposite. If someohw, maybe through exercise we can reverse this, then maybe if the body is stronger it can start to heal. it's very hard though... sometimes i fel i do more damage to my body by exercising by overstressing an already tired body. hopefully if by exercising slowly though, this is not the case..

For people who have been following tis thread since like 8 pages ago, I am still taking all 4 sensiblehealth tinctures., 2 1/2 months on. I must of had about 4 bottles each of gcg, coptis and curcuma.. maybe 2 of chinese bitters.. I said i was going to give these herbs a good go and i am. the annoying thing is we don't know how to treat Accutane, but as i keep hearing it hits the liver hard, it makes sense to target that area. I chose the chinse herbs because a) they've got a good feedback from other message boards b) they've been used for hundreds of years to treat liver problems and c) i feel that if traditional, more poular herbs liek milk thistle and dandelion worked against accutane side effects we would all know about it.

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MemberMember
143
(@indigorush)

Posted : 10/15/2011 9:11 am

Hi dude.

It's cool you have a treadmill.

I could do with having a personal home gym for the winter. Lovely outside today though so I've done an hour or so walking.

I don't know what exercise I'll do when it's cold and shitty out there.

I get dizzy doing weights and stuff, and won't be joining the gym again because 1) I didn't have the energy when I went before 2) Other people make me depressed because I feel/look so weak in compariso and 3) I always felt stupid and self-conscious running.

I send off some strands of hear today in an envelope for the Hair Analysis that I mentioned - At least I think I mentioned it in here, it could of been in a personal message. Just incase I didn't: [Edited link out]

I'll hear back in about 10 days, so I'll let you know if I've got any allergies or vitamin/mineral deficiencies.

It's very often that I feel like giving up due to, like you, things getting worse rather than better when I'm trying all I can to help my body.

I just try to remember than the liver can regenerate/heal itself. Perhaps, it's just took a real hard blow, so it'll take time to get it working again.

But then, I feel like 'what is fucking right anymore?' There is too much guesswork in what's happened to us.

Hopefully tests like the hair-strand thing will take some guess work out and I can see if my body is being burdened further with foods it can't handle.

I'm now also taking iodine, in the form of a kept supplement, as this is meant to help with thyroid.

I won't get my hopes up because I really don't have much hope at the moment, but I've been taking it two days. If it's not worked within a week or two, it probably won't do a thing.

All I want is to know that there's a way.

If I knew for sure that say, Exercise (as suggested by Connor) was the way to get my health back, I'd be able to push myself, but I doubt that it will do much.

I'm putting my life on hold for this. I can't even think about my future right now.

It annoys me so much that regular people (not that we're freaks or anything) have such terrible diets/drink fucks loads/smoke and are still feeling fine.

We make one mistake, because we didn't know better (and for me weren't warned), and we ruin our bodies.

I know it does no good to think like that, but it's damn hard not to.

I'm still waiting on Sergio to get back to me about that girl who supposedly overcame the side effects after years of having them, but we'll see about that.

Also, another chap I talk to through messages on this site is looking into talking to his Uncles friend who also apparantly found a way out.

I'd love to save us all, you guys. I'm doing the best I can.

Rebounder sounds interesting, though I've never used one.

Always thought it was a less fun trampoline. It does sound very dull to use, depending how long you're advised to use one for.

I was watching a comedian live last night and he was going on about how men can't control when they get a boner.

I had to fake a laugh for that one :/

All the best, amigos.

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MemberMember
157
(@chico-esposito)

Posted : 10/15/2011 12:42 pm

I'd like to preface this by saying this is for anyone suffering from Sebborheic dermatitis, joint cracking, chellitis of the lips, scarring, painfully dry eyes, sexual disfunction as a result of Accutane, it's also for myself to keep track of my progress on reversing the terrible side effects accutane has caused in my life and hopefully help people to better understand the side effects caused by the drug.

In my case accutane stopped my bile from flowing and as a result the accutane stored itself in the fat cells of my body causing the sebborheic dermatitis and the other myriad of other problems mentioned above.

Heres how i'm going about reversing it ( i might start a youtube channel talking about accutane side effects and health of the human body in general. )

firstly diet

Mostly raw fruits, vegetables, salads, juices, green juices, coconut oil, water and some steamed root veg.

firstly when the human body has low bile flow it doesn't have the ability to emulsify fat, if the fat is not emulsified and turned soluble by the bile, the pancreatic enzymes cannot break them down and as a result the fat isn't absorbed. When this happens fat is carried out by the colon without being absorbed, causing problems in the gi tract / colon along the way.

The diet has been catered for lack of bile, raw fruits contain living enzymes....they contain no fats with the exception of avacado and Durian. Those fruits have mono unsaturated fats, which are long chain fats that are difficult to absorb hence i wouldn't recommend them. But apples, pears, mango's, berries, pineapple, lemons.....etc are all fine....infact almost every fruit is fine. Fruit has the highest angstroms on earth. What are angstroms? they are the living energy within foods......by comparison a hamburger has 0 angstroms. Raw fruits have 10,000 angstroms of energy. A heallthy human body operates at around 6,500 angstroms.. Disease starts below that, when the body eats food with little to no energy. Citrus fruits, berries and grapes are the most powerful lymphatic busters in our food, they break up stagnant mucous and clean house.

Raw vegetables contain no fat and are fantastic at alkalising the human body, eaten raw they have all their enzymes intact and take the full weight off the pancreas in digestion. If a food has zero fat then the body doesn't have to use bile to digest it, so if your biliary system is weakened like it is with me it won't put un-needed stress on the body.

Salads have no fat, eating romaine, with peppers, tomato's, cucumbers, alfalfa sprouts, lemons and all other salad stuff is extremely easy on digestion. Juices likewise require no digestion because they are liquid so it travels straight to the blood stream. I like apple, ginger, celery, raw beets and lemon juice........ginger, chillies and garlic are fantastic for opening up the capillaries and sending nutrients to every cell in the body.

Coconut oil as i've mentioned before is the only fat that can be absorbed without bile or pancreatic enzymes. It has been known to heal gallstones.....the bile stagnates in the gallbladder and becomes hard with cholesterol and calcium. This clogs up the gallbladder and it's unable to release bile for digestion.....the only fat that can be absorbed is coconut oil because it's a medium chain fat also known as MCT's. By eating this fat it gets absorbed into the liver for energy it then purges into the gallbladder were it can break up the stagnation.

Water, watermelon, celery and other diuretics are great for cleaning the kidneys....without the liver being capable of removing fat soluble toxins in the bile, the kidneys take a huge brunt of the work....you have to supplement both systems to get healing.

Now onto the herbs, herbs are just wild plants they have very astringent propertys that can clear up the organ systems of the body and cure toxicity. You need to target the lymph system first of all, the lymph is the sewage system of the body, when the cells remove waste they push it into the lymph.....the lymph carrys fat soluble toxins into the liver for removal......a slow, clogged or congested lymph will not filter toxins out of the body it's the first port of call

how to get the lymph moving again- citrus fruits, lemons, limes, grapes.....lymph tinctures- essential.

Next is the kidneys / adrenals - watermelon, berries, celery, nettle, kidney tincture.

Next is the liver gallbladder- i recommend Livotox but something like this would work [Removed]

Gentian, Bupleurum, artichoke, milk thistle, black radish, dandelion........foods would be beets, coconut oil, green juices, apples, garlic, ginger.

Next is the blood and skin - take a blood and skin tincture.......foods would be juices / green juices, beetroots and anything thats good for the kidneys as that removes toxins in the blood.

Peace out

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