Nice to hear from you again, Chico.
How have you been? Are you still seeing improvements in your health?
You should definitely do the YouTube video(s) ASAP. It's always nice to put a face to a name...
I think anyone reading these boards, and going through this, should voice their experience in a video.
It'll help get the word around town.
Something I'm curious, and a bit worried about, is DHEA levels in post-accutane sufferers.
I've heard this can be low, and it most definitely is as that'd add up with the adrenal fatigue/sexual problems.
But again, like many of the other effects of accutane, DHEA being low seems to be a sign of aging.
Does anyone know about this? I'm thinking about seeing a nutritionist soon, and she can test DHEA output, but I don't know if there's much you can do about it (?)
It'd certainly explain the sexual dysfunction, though I still find it concerning that this is something that tends to come on years after stopping accutane.
I know that stress is a culprit, but .. hmmm.
I read something about it, and the page author seemed to think that DHEA dropping is Mother Nature's way of stopping stressed people reproducing. You never know...
Still, I suppose it could be just a symptom of poor overall health and it could possibly correct itself once the body is healthy again.
Chico, have you been doing some liver flushes using coconut oil?
It's hard with all of this because it feels like there's nothing I can do but wait.
I can't deal with the sitting around and waiting.
I want to see changes and be able to make them every single day, with a sense of direction.
But yeah, eating correctly is definitely a good place to start.
I'm still not certain that accutane is stored in the body, with all the other theories, but what you've said (Chico) from the start seems to make clear sense, though I still don't know if there is anything wrong with my bile flow.
A general question here:
What do you guys do in your spare time? My life seems soley centered around all of this.
I check far too often this site, to see if there is a new reply. Bit sad really.
I've got quite a few hobbies but I find it pretty hard to concentrate on anything without this at the back of my mind.
There are lots of books I'd love to read, but I end up just reading self-help books to try and conquer the depression.
I play Call of duty and can't relax because although I love it, it feels like my life is a shambles and I should be 'out there' living.
Stef
Hi Indigo, yes i'm doing well, how about yourself? The DHEA thing you raised is really interesting. DHEA is as you say totally adrenal related, the stress of dealing with the side effects can also heavily burn out the adrenals, weakening the kidneys and as a result slowing detoxification pathways. Hypervitaminosis A the direct cause of accutane can damage the testis and lower testosterone function......this could also be the cause of the sexual disfunction....look up retinoic acid and testis, it plays a vital role in the function of the testis......having too much retinoic acid in the body can cause testicular varicocele and other sexual problems.... including general sexual disfunction. It's all related to the body not being able to remove the accutane out of the body. Thats why in my mind you have to kick start the detoxification process, lymph, kidneys / adrenals, liver / gallbladder, blood / skin. Also i'd get your fat soluble vitamin levels checked, A,D,E,K2......bile absorbs fat soluble vitamins, without it they aren't absorbed and deficiencys start to arise. Get your vitamin d levels checked if they are below 50ng/L they are low...30ng/L is a clinical deficiency, helps alot with depression.
What do i do in my spare time....i like to play music, study health, fight this condition...yes it takes up a lot of my life, but i'm dedicated to helping myself first and foremost and i'm dedicated to helping all those around me that are suffering, thats very important to me.
Have i been doing coconut liver flushes? yes i'm experimenting with it at the moment...i'll report back with the results. Nice Song.
Ah man... yet another morning that I wake up with my ankles, shins, and lower back killing me. I hadn't drank for awhile, but last night was a close friend's birthday, and anyway, I'm just frustrated that the moment I let go and stop "watching myself" and am distracted about how I've been feeling, I wake up to this. Grrr. I'm doing my best to not focus on it and not keep stretching out my legs (which is what I get an urge to do, I can't explain but the pain makes me feel like if I just stretch them one more time it will fix the pain) but rather just leave them alone. Which leaves them sort of tingly and feeling weird... I don't know, maybe I'm really tense in my sleep and that's causing it? Hopefully it's not just the Accutane.
Like I said, I really do believe that for anyone who's done Accutane and feels they have bad side effects, you really should get at least a few sessions with a counselor, especially CBT (cognitive behavioural therapy), to focus on your feelings toward its effects on you, how you view yourself and your body, where you put your attention (a my psych prof says, attention is EVERYTHING in life), etc... Because it seems like you guys are very consumed by your physical symptoms (I know I am) but I think it's best to try to steer away from that to a degree in order to shift your attention... and ultimately, yes, feel better! Pain and side effects from this drug years later can really suck, but with psych/emotional work, you can help make yourself feel better, or at least ensure that your anxiety and depression about Accutane don't start creating a feedback loop and actually causing you physical problems. Your body can "learn" habits (as can your mind) and start to create symptoms simply because of your thought patterns.
Even as I sit here, I have effectively distracted myself from the pain in my legs to an extent, which is good enough for me right now!
Anyways... I'm off for now. Keep on keepin' on
Interestingly hormones are also fat soluble, when you have fat soluble toxins floating around the body (accutane), they can bind to the thyroid and adrenal receptors and stop the uptake of thyroid hormone and cortisol. This isn't uncommon with people that have heavy metal toxicity. Fat soluble toxins will travel round the body and latch to receptor sites stopping the hormone uptake.
I'll explain a hormone is fat soluble....accutane is fat soluble......heavy metals are fat soluble. All hormones excreted by the liver / adrenals etc....bind to specific hormone receptors in cells. They float around and latch on to these receptors to activate themselves. If you have high levels of fat soluble toxins in the body like pesticides, dioxins, pharma drugs (cough cough Accutane) heavy metals.....these fat soluble toxins float around and get latched onto the hormone receptors......ie the hormones themselves cant get into the receptors because a fat soluble toxin is already in there. Hence symptoms like depression, fatigue, inability to gain / lose weight, slow wound healing and offer stuff related to hypo / hyperthyroid, low adrenal function.
Ironically coconut oil can help thyroid conditions because the fat in coconut oil binds some of these toxins in the circulation and carries them out the body. Likewise a dessicated adrenal or thyroid formula can give these organ systems a boast. Always clean the adrenals before targeting the thyroid though, thats just like gospel innit : )
Also question for you guys if you have any idea.
If I wanted to treat the lower back/ sacral pain I get since Accutane (especially lately), what do I target?
Like, do they know what causes the back pain? Is it a joint problem? Muscle? Nerve?
I suspect it's joints, like your lower spine and in my case where the spine meets the sacrum, but I was wondering what would be the best way to treat that pain. For my joint pain at the moment I'm using "Tylenol Arthritis Pain". After tough workouts I'd be in a lot of pain without it the next day.
Interestingly hormones are also fat soluble, when you have fat soluble toxins floating around the body (accutane), they can bind to the thyroid and adrenal receptors and stop the uptake of thyroid hormone and cortisol. This isn't uncommon with people that have heavy metal toxicity. Fat soluble toxins will travel round the body and latch to receptor sites stopping the hormone uptake.
I'll explain a hormone is fat soluble....accutane is fat soluble......heavy metals are fat soluble. All hormones excreted by the liver / adrenals etc....bind to specific hormone receptors in cells. They float around and latch on to these receptors to activate themselves. If you have high levels of fat soluble toxins in the body like pesticides, dioxins, pharma drugs (cough cough Accutane) heavy metals.....these fat soluble toxins float around and get latched onto the hormone receptors......ie the hormones themselves cant get into the receptors because a fat soluble toxin is already in there. Hence symptoms like depression, fatigue, inability to gain / lose weight, slow wound healing and offer stuff related to hypo / hyperthyroid, low adrenal function.
Ironically coconut oil can help thyroid conditions because the fat in coconut oil binds some of these toxins in the circulation and carries them out the body. Likewise a dessicated adrenal or thyroid formula can give these organ systems a boast. Always clean the adrenals before targeting the thyroid though, thats just like gospel innit : )
I see what you're saying.
It'll be interesting to see my Vitamin D levels, once I get the test results, as I take 5000iu as a supplement.
I was naughty today. My girlfriend comes with me when I do my healthy shops at Tesco, but she eats what she wants.
Couldn't resist some pancakes and ritz biscuits. That's good food! Nice to have a break from fruit/veg/oatmeal/fish/rice every now and then.
Chico, what does dessicated mean? And do you know where to get a thryoid/adrenal formula?
Thanks for the previous link to the liver formula which you can get in the UK.
Always appreciate your helpings.
Stef
I don't do weightlifting... I'm a swimmer.
The joint pain can be persistent some days but it comes and goes as well. It can be really intense... sacral pain and knees and ankles, and even the muscles in those areas will feel like they are on fire. It's really painful and it causes me to tense up and not be able to stay still or keep focused on the task at hand. Sigh.
I've had full blood work done and my doctor said my thyroid was fine.
Oh Andrewharv I am so sorry to hear you are not doing well my friend! Most of your complaints are common among the Accutane population...Lower back, ankles and knees. Have you had any xrays and or blood test for Rheum problem (which will probably come back normal) What supplements are you taking? Also I had lower back pain also in the spine (though I have extensive bone loss) I do crunches and I don't have a problem any longer. -
Oli Girl,
Yeah my joints crack a ton! My physiotherapist (I've been going for a year for an unrelated injury that was pre-Accutane but is in my shoulder) always gets a laugh out of how "cracky" I am. I think I was always like that to some degree though, as I'm a skinny guy.
I have had a full blood-work done and it showed nothing out of the ordinary.
I'm taking Vitamin D and Glucosamine-Chondroitin MSM.
Doing crunches helped your lower back pain? Was it your sacrum (where your spine meets the bone beneath it)? (I imagine stretching would help too).
I'm glad to hear that you don't have the issue anymore. How many years did you have it for? And please do answer my questions above and tell me what you did to help the problem since I'm active (swimming) and I really want to resolve this as best as possible so it doesn't get in my way anymore .
Thanks!
I'd love to go swimming but am too conscious of my 'patchy' shitty hair ("Thanks 'Tane!") which I always do 'specially' after having a bath/shower so it's less noticable.
I wouldn't be able to not get my hair wet as I used to love a good old swim every now and then.
[Edited video out]
New video. Enjoy my rant!
I've heard good things about the adrenal extracts! If you can get a bovine adrenal gland that's even better, because food is always better than supplements when the option is there.
I've seen your latest video Indigo, and trust me mate -- you're not alone. The internet is hardly gonna make you feel less isolated, but we are going to pull through. I wouldn't worry about your girlfriend's reaction to your suicidal thoughts too much; she's choosing to be there with you through the worst of times as well as the best, and that's when you know that she's a true companion to keep.
Put it this way; if she turned around to you one day and said "I want to die. I can't handle this anymore.", how would you react? You'd be shocked at first undoubtedly, but then chances are you'd promise to see it through to the end with her, and for her to make sure that she doesn't actually act on those suicidal tendencies because that would cause an unbearable pain so deep that even time can only do so much at that point. As long as you inflict no harm on yourself, be it emotionally, mentally or physically, then don't worry too much about those suicidal thoughts because it's perfectly normal to think that way when you're going through this amount of pain for so long; it's your idealisation of a quick escape from everything, but obviously it would cause an indescribable summation of torture for your loved ones. The only thing on their minds would be the 'What ifs' and the 'It's all my fault' thought processes. Nobody wants to ruminate on those dark thoughts when they can't be talked out of it, so that's why we're going to see this through until we've made a full recovery.
We're all fed up, and while I can't speak for everyone here, you've been through this for far longer than I have (about a year for me personally). I just refuse to believe that Accutane causes irreversible effects quite frankly, but even if it did we can mitigate the damage to a great degree.
I've noticed that you're unemployed as well -- getting a job would help immensely for the both of us. We live in a modern society where money is necessary for the basic necessities, so if you don't have a reasonable income level streaming in to finance your recovery, it's going to put a hiatus on all of your progress.
I know it's hard; we all do. You have every right to rant and kick and scream your head off, because your life has been unwillingly put on hold, as mine has been for the past 3 years. Point is, we're all collaborating for a common goal that will ultimately lead to happiness, and when we reach that point we can spread the word; we can write up a FAQ or an "Accutane recovery guide" that will be stickied to the very top of the Accutane posts forum area for all to see. That ain't gonna get written up if you're dead though, so keep those suicidal thoughts as thoughts only and not actions.
Keep in touch! [Edited image out]
EDIT: Forgot to add, Andrew -- your thyroid may still be screwed because most doctors test the thyroid incorrectly. Go to Stop The Thyroid Madness, they'll have everything you need to clarify what you're going through. Have you tried taking a basal temperature test every morning for a few days?
Hey Indigo, nice video again.
Those four words you mentioned are great, they can be powerful if you let them. A similar phrase - 'Everything will be O.K' - to really know everything will be O.K is an incredibly powerful emotion. Both phrases provide so much hope.
Although I don't tend to get too deep into the whole depression situation, as I generally believe any depression I have is only generated by the physical side effects plaguing me, it can be very easy to believe that things will only get better once (insert Accutane side effect) has gone. And this can be very self defeating.
I sometimes get sucked into thinking this myself, that I had a great life before that week I took Accutane, that it was all rosey, I had no concerns in the world and I can only truly live my life again and be happy once I overcome these side effects. You cannot live you life thinking that one day you will wake up and everything will be better and you will be happy and then and only then can you live your life. Life will pass you by if you think like this.
At the same time it is easy to get frustrated at your body, that it is not working how it should. I think we sometimes don't give our body enough credit. It is a very powerful and complex machine, and it will deal with it's own problems and regulate itself if we provide it with the opportunity and right conditions for it to do so. It is us that fucked it over and now it needs a little bit of help.
Yeah I get frustrated at my friends, when they go out drinking, eating all the shit of the day and sleeping minimal hours, I used to do exactly the same. They haven't took Accutane though, and I need to remember this, and I need to give my body time and help to heal.
How can I do this? Well I can do everything in my power to live as healthy as possible right now. I can eat well, exercise regularly, get good sleep, drink adequate water and keep stress to a minimum. Will any of these things individually cure me? No. Cumulatively over a period of time they will help though and you will have a solid healthy foundation to build on with supplements and routines.
I also personally don't believe in getting supplements to treat specific symptoms, otherwise I would have to take a ridiculous amount. One pill/drug/chemical caused all of these problems, there will likely be an underlying cause to all of my symptoms. What is this cause? I'm not certain in my situation, but I have a thought that either accutane damaged my immune system in some way that allowed a fungal infection of some sort to proliferate (I have a number of fungal symptoms - Toenail Fungus, Follicullitis, severe seb-derm of the scalp and milder on the face) or that it damaged either my liver or stomach/colon, in which systematic issues could arise from if this is the case. Those two organs are the most likely, most of the court cases have been for IBD and we all know of the liver function tests needed for Accutane treatment.
Those are my personal thoughts anyway. Good luck guys.
Hi Man.
Thanks for replying again.
I'm feel super low today. I just beat the shit out of my pillow.. Poor thing didn't even deserve it. I just had to release some agression. After that, I just felt hyped up to go and crash my car into a roundabout. I was going to call suicide hotline (it's got to that point) and my sister knocked at my door, trying to reassure me about my worries.
I'm super fearful about my colon/bowels. Personal info here (but I don't care anymore), I have trouble just going once a day, and can't remember the last time I went for a normal number 2. Never formed, just some kind of brown monster goo. (lovely).
What gets to me is, when I try to talk it over with my family, they don't understand and think I'm making a big deal out of nothing.
I've had trouble going for months now, and it was fairly recently I cut out bread/milk/processed food in order to support my body.
My mum then says 'Get some real food in you, that's why you're not going'. (Haha, it's not 'real' food at all).
I say that it was issue before, and it gets shrugged off. Her and my step-dad then give an example of a time they didn't go for a couple of days.
I know they're probably trying to help, but it really doesn't. I need someone who knows I'm not crazy and understands. Though sometimes I feel like I am.
And my girlfriend has said that. She's a bit screwed up like me. Probably why we're together. She has issues with cancer and fears getting it because her Mum did a few years back (Her Mum got through it). Sometimes I feel like I'd be better alone. I feel the pressure to be a good boyfriend, and I can't be. You have to be able to look after yourself before you look after anyone else. But when she says it, I don't believe her, and normally just think 'Awesome. We can die together, like fuckin' Romeo and Juliet'.
I appreciate your support too. You always seem to have a positive outlook about it. I guess I've just run out of hope. I've tried lots and I've only gotten worse. But, I guess in my own words (as I said it in the video), I don't know what the future holds. I just want things to be okay right now.
Perhaps I'll go to the doctors about my buttocks.. though I won't be taking any medication. I'm so afraid that I'll get Irritable Bowel Disease or something worse.
I have about 4,000 left in the bank. I saved up for a while before leaving my job. I thought something would work out and I'd be able to do the music thing. I thought drama classes would help me feel confident on stage. Nothing seems to be working. I'm always reading a self-help book, and they can help briefly, but then it gets to the point where I want to shout 'You don't know whats happening to me. I can't just do this to fix my life'. I often feel so unmotivated to get out of bed. Not enough energy. The thing that keeps me going is: I do not want to live this way. I know I have great potention. I know that without this burden, I'd be aiming high. If there were a crystal ball (for real) that said there was no way out, I'd give up and hit that roundabout, but I can't do that to my family, and I don't want death. I want life. While I don't know if true life is still possible, I have to keep going. I hope to one day look back at this board, read this reply and go 'Wow. I did it. I got through it, and made it out with lots of knowledge about health. I won't waste a moment now that I have this second chance'. Maybe that can happen, one day.
I don't say this too many people, but I love you man.
I hope we can make it through this. And if we do, and I don't mind leading it, we're going to make the most fascinating documentary evarrr!
Buh-bye for now
Nice to see you back again Chico!
Like you Indigo, I want to be "out there" living RIGHT THIS SECOND. I don't want to be wasting time. But I feel Accutane has taken away this option. Bascially, it's totally restrcited me to a normal life. There is so much I could do, and want to do, that I can't.
I read somewhere, maybe on these boards, somone questioning the human race for allowing these danerous drugs like Accutane to be allowed to be given out fully knowing the consequencies it may have. Where are these people who handed it out, where are they to pick up the pieces. Not just that though, look around the whole world, in all aspects of it. This world was once perfect, but the human race has messed it up. I feel badly let down.
Sometimes I imagine what I would be doing right now, even at this second, what I would be doing if I never took Accutane, or if I was magically cured this second, what I would do first. I wish I didn't have to dream it though and could actually do it!
I had never heard the analogy of Accutane being compared to the Titanic, but I can certainly see why.
Sorry man.
But hey, if they are in our bodies (the emotions) surely that's not good.
My girlfriend is here now.. I'll TRY to enjoy a film..
I'm trying to stay strong.
[Edited video out]
ANOTHER video. Check it out if you wish. It's a preview of my album that I've done since being off work. How I wish I could just be done with this and go win the x-factor. The last track I wrote today appears at the end. It's called 'All I need'. You can guess how I came up with the title.
Wishing on a cure any fucking day right now,
Stefan.
Oli Girl,
Yeah my joints crack a ton! My physiotherapist (I've been going for a year for an unrelated injury that was pre-Accutane but is in my shoulder) always gets a laugh out of how "cracky" I am. I think I was always like that to some degree though, as I'm a skinny guy.
I have had a full blood-work done and it showed nothing out of the ordinary.
I'm taking Vitamin D and Glucosamine-Chondroitin MSM.
Doing crunches helped your lower back pain? Was it your sacrum (where your spine meets the bone beneath it)? (I imagine stretching would help too).
I'm glad to hear that you don't have the issue anymore. How many years did you have it for? And please do answer my questions above and tell me what you did to help the problem since I'm active (swimming) and I really want to resolve this as best as possible so it doesn't get in my way anymore
.
Thanks!
Interesting that swimming has that effect on your joints, as it is widely used for arthritis pts, but then again were talking about Accutane. I don't have siatica, but do have changes in the lower spine which is probably why I lost height while on Accutane.
One of my husband's colleagues stated that crunches help with lower back pain and that he would be out of business if people would just do crunches. So I tried to do them and streches every morning and night and got relieve. I use to wake up to every am or just from sitting soo stiff and pain, this problem isn't soo much anylonger.
I have read many stories though of post Accutaners being dx with siatica. Also the bone cracking are you taking Magnesium with the Vit D? Not a vitamin w/ them combined but seperate? It may be crepitus???? Sheefa had problems with that.
For your pain also Tai Chi, yoga helps with the pain.
I would though if it continues see a doctor, It took 4 Rhuem for me to get an answer!
I wish I could be better help, Hang in there!
I appreciate the help a lot, Oli Girl. I will start to do more crunches .
As for how incredibly sick I've felt every day the last week, though the same symptoms I've had for months now, I saw an allergist today (covered by government healthcare, and he's quite well known) who I've been on a waiting list for a year to see, and he thinks a lot of my symptoms are my immune system acting up against me constanting consuming foods I'm allergic to.
I've been given a list of the foods I need to avoid and hopefully that will help a lot!
Swimming doesn't seem to cause joint pain because it's only my back and legs, and swimming is pretty easy on your muscles (although the swim practices are HARD work). So I don't think that causes the pain for me, rather it seems to trigger the exhaustion. Now it seems more likely that the allergen foods I was consuming were creating this inflammation/sickness.
Cross your fingers for me, guys!
I also think food allergies play a big chunk in the Accutane sife effects. It seems as though Accutane has completely screwed up how the body uses food. I've also gone for the hair analysis like Indigo (I sent away on Monday), and the allergy results is what I'm most interested in. In one sense I'm scared of finding I'm allergic to a lot of things. But ti would be nice to know so I can completely avoid them and then see if it makes any difference to my side effects. The problem is is that I've read people have have taken Accutane and their allergies continue to grow. Wishful thinking hopes once you eliminate allergy food, new allergies won't appear, that it will calm the whole body down and hopefully get more energy, strength, and maybe even some healing as a result.
Keep doing your videos Indigo. Love the honesty and just saying how you feel. I can relate to so much you say. Mixing Accutane talk with a bit of comedy shouldn't work, but you've somehow managed it!
To jmsil, i did a food intolerance test a few years ago, it was a big comprehensive test, cost me alot of money if i remember rightly at the time. Interestingly i was found to be allergic to eggs, cheese, milk, tuna, chilli, garlic and ginger and carrots. What i later realised is that the foods that contain retinol are eggs, milk, cheese and fish. Carrots are massively high in beta carotene which is the precursor to retinol so that causes problems as well, and ginger chilli and garlic open up the circulation system.
This made me realise that the accutane was still in my body, my body freaks out when i eat retinol containing foods because it already has an abundance of retinol in the body that it cant get rid of (ie accutane). It freaks out when i eat foods really high in beta carotene as well (carrots), because i've got too much vitamin A in the body as it is.
Heres were it gets interesting if the accutane is stored in the fat cells, which is common practise for fat soluble toxins that cant be removed, ginger, garlic and chillies open up the circulation system causing the fat soluble toxins to enter the bloodstream again.....hence the body freaking out because the accutane is pushed back into circulation.
Look up niacin (vitamin b3) and saunas. They give people niacin, which opens up the capillaries so more blood flows to the fat cells, this pushes fat soluble toxins back into the circulation, then people get into a sauna and sweat for a few hours which purges the toxins from the body.
So the garlic, ginger and chillies act in a similar way to niacin by vasculating the blood and circulatory system. In my case i wasn't allergic to these foods, i was allergic to the accutane that was still in my body causing me to react badly to these foods.
To jmsil, i did a food intolerance test a few years ago, it was a big comprehensive test, cost me alot of money if i remember rightly at the time. Interestingly i was found to be allergic to eggs, cheese, milk, tuna, chilli, garlic and ginger and carrots. What i later realised is that the foods that contain retinol are eggs, milk, cheese and fish. Carrots are massively high in beta carotene which is the precursor to retinol so that causes problems as well, and ginger chilli and garlic open up the circulation system.
This made me realise that the accutane was still in my body, my body freaks out when i eat retinol containing foods because it already has an abundance of retinol in the body that it cant get rid of (ie accutane). It freaks out when i eat foods really high in beta carotene as well (carrots), because i've got too much vitamin A in the body as it is.
Heres were it gets interesting if the accutane is stored in the fat cells, which is common practise for fat soluble toxins that cant be removed, ginger, garlic and chillies open up the circulation system causing the fat soluble toxins to enter the bloodstream again.....hence the body freaking out because the accutane is pushed back into circulation.
Look up niacin (vitamin b3) and saunas. They give people niacin, which opens up the capillaries so more blood flows to the fat cells, this pushes fat soluble toxins back into the circulation, then people get into a sauna and sweat for a few hours which purges the toxins from the body.
So the garlic, ginger and chillies act in a similar way to niacin by vasculating the blood and circulatory system. In my case i wasn't allergic to these foods, i was allergic to the accutane that was still in my body causing me to react badly to these foods.
Couldn't agree more with you on this post! I acutally have extrememly hard time with carrots joints are 10x worse after a couple hrs and the next day. Though you can't view most of the old ragfourms posts, there was a suffer who use to go to the sauna everyday for relief of his side effects. I thought of doing this except there's only soo many hrs in a day lol!
Hope everyone is doing well, Hang in there my friends!
Oh if you have flushing becareful of Niacin, I know there is flush free, just be careful!
That's a really interesting post Chico, because I react badly to ginger, chilli and garlic. I noticed around 2007 after taking garlic I got a pain in my chest area, which hurt when I breathed n. I had to curl my body up for about an hour before I could breath in normally without pain. Around mid 2009 I started taking a cayenne pepper tincture, which was really hot even with only a few drops in water. I decided to take this as I thought it would be good to get good body circulation. I took this for many months and was feeling worse - a lot weaker and much less energy, but didn't think this was anything to do with the cayenne, as chillis would give you more energy as it's supposed to boost circulation, so I actually kept taking more drops of cayenne per day. I just assumed I was getting weaker due to Accutane in general. Ten from Janaury 2010 for about 6 weeks it hurt to walk, it hurt to breath in, hurt moving my arms upwards - I was literally laying on the sofa/bed for about 6 weeks, fearing the worse. had pain/tingly sensations in my chest area to, as well as some numbless/lack of feeling. It's only when I realised, after forgetting to take a dose of the cayenne, that I didn't feel quite so bad. After a week I felt a huge difference from not taking it and a few weeks later I had so much energy back. I have tried to avoid anything hot and spicy since. I do still take Naicin as it's in a natural food powder supplement I take which gives me a naicin flush, and doesn't give me the horrible effects that the hot stuff does, but maybe I'd feel better without it? Then again, I remember I react badly to mushrooms, and I think they are high in niacin .
I always thought it was a really strange alllergy to be allergic to spicy/hot foods, and you are the first person to explain why.. so thank you! If Accutane is still in the system and is being recirculated around the body thenit explains why.The foods are tested in the hair analysis, so it will be interesting if this confirms my experience with these foods.
What I'm gutted about though Chico is Coconut oil - when I was taking this it gave me a drop in energy/made me hot if I did too much, so I have a feeling there could be an allergic reaction to coconuts. Unfortunately i don't think the hair analysis does coconuts in the allergy test. I could really do with the fat ingeneral, and coconut oil sounds really good. Thing is, it seems whatever oil I eat, be it flax, hemp, olive I feel bad... instantlyalmost. Coconut oil doesn't have the instant feel bad impact, but it surfaces over a few days later with lower energy.
I'm still taking Chinese Bitters and also the other herbs from Sensible Health (Coptis for Bile flow) for almost 3 months now and still feel more hydrated, my skin/lips can sometimes feel more moist and my BMs are generally coming out more formed. Nothing radical, but it's enough to keep taking them.
I haven't felt any noticeable bad effects with carrots, but then again, I don't eat them that often. Something that I felt really, really bad from a few times is Watermelon. I have since heard they are high in Vitamin A. I've got very low energy very quickly after this, feeling very "jittery". I juiced them the few times and this may of made it worse.
It looks increasingly like, the very first step to heal from this drug is to have a allergy/intoleranece test then! Just switching to a healthy food diet might not actually make you better!