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3 hours ago, VanceAstro said:I would like to remind everyone who suffers from intestinal problems that Isotretinoin is associated with Dysbiosis: https://www.sciforschenonline.org/journals/clinical-cosmetic-dermatology/article-data/JCCD-2-131/JCCD-2-131.pdf
thx for posting VanceAstro
Aside from the alarming reports here, what are you finding is helpful for the gut?
What probiotic are you on if I can ask?
Ever since I took accutane, it felt like I was in a constant state of fight or flight. Felt like ptsd. Ever since I've owned the biofeedback machine, ginkgo extract has always been one of the top recomended supplements. When I take ginkgo extract, I have a massive dopamine loss and experience horrible RLS. When I consume WHOLE organic ginkgo powder that I encapsulate at home, the feeling of fight or flight ptsd goes away completely. A sigh of relief.
My brain and liver biofeedback scans definitely improve with ginkgo use. My machine indicates radiation in the prostate, gut, and liver. I firmly believe that accutane is radioactive retinoic acid, that it has an extremely long half life, and that it remains trapped in the body for years after use. It encases itself by impairing microcirculation. whole organic Ginkgo comes along and improves microcirculation, allowing it to become untrapped. That's when the prostate flares. I think it's just a matter of flooding my body with ginkgo daily to flush it out, eating lots of carotenoid rich foods such as raw carrots with cream cheese dip, tangerines, organic carrot juice, etc, and getting lots of seafood such as shrimp and tuna to replenish dha, which is an rxr and rar ligand.
My aorta has been in bad shape for a long time according to the machine. The ginkgo has started to improve the health of my aorta. Also drinking fat free lactose free milk daily. Body craves it. I'm sticking with the ginkgo daily and will keep the board posted.
Ginkgo has been scientifically proven to heal leaky gut by restoring tight junctions.
As for the uroxatral, I don't even think it's necessary and have eliminated it. It may actually do more harm than good by burdening the body's detox pathways.
12 hours ago, guitarman01 said:Yes I have posted this study quite a few times myself. Ive gone back and forth myself on p.acnes being a cause or even acure.
P. acnes is a strong stimulator of immunity both adaptive and innate, which includes tlr2 activation.
Microbiota Signals during the Neonatal Period Forge Life-Long Immune Responses
https://www.mdpi.com/1422-0067/22/15/8162/htm
CommensalPropionibacteriumstrain UF1 mitigates intestinal inflammation via Th17 cell regulation
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5663347/
^I believe this is classified to the species propionibacterium freudenreichii which in turn is very similar to p.acnes.
Helpful bacterium shown to fortify newborns immune system in animal model
https://ufhealth.org/news/2019/helpful-bacterium-shown-fortify-newborns-immune-system-animal-model
This establishes that specific strains of a probiotic bacterium can mobilize immunity to enhance the health of newborns, Mohamadzadeh said.
TH17 cells could also act as a gatekeeper to prevent microbial translocation from the large intestine.
Establishment of the infant gut microbiota affects gut maturation and influences long-term health.Cutibacterium(formerlyPropionibacterium) have been identified as early colonizers, but little is known about their function.
https://academic.oup.com/femsec/article/95/1/fiy215/5154911
Early colonization byPropionibacterium/Cutibacteriummight determine later community assembly and infant gut health.
Yeah I came across a study looking at p.acnes and hidradenitis suppurativa, they had lower levels. They linked it to gut dysbiosis.
Sad part is my skin is basically the same as hs, maybe p.acnes really is gone.
I remember being really burnt out and it was all over my inner legs.
Got to wonder if Accutane gave my hs, strange thing is they put hs patients on accutane, don't they?
With the biofeedback machine I've paid a lot of attention to brain gut liver prostate but have largely ignored the skin. Paw paw is a supplement that seems to come up alot for the skin. Just ordered some and should have it tomorrow. I'm going to try supplementing with paw paw only for a bit and see how things go. Will report later.
17 hours ago, TrueJustice said:thx for posting VanceAstro
Aside from the alarming reports here, what are you finding is helpful for the gut?
What probiotic are you on if I can ask?
I think that over the years I have tried all probiotics that are available on the market. I noticed some change after Enterogermina (Bacillus clausii). I wouldn't call it a great improvement, but loose stools are far less common. Decided to give it a try after reading that in one study Bacillus clausii was used as a treatment of Small Intestinal Bacterial Overgrowth. I also take 600mg of Butyric Acid daily.
18 hours ago, VanceAstro said:I think that over the years I have tried all probiotics that are available on the market. I noticed some change after Enterogermina (Bacillus clausii). I wouldn't call it a great improvement, but loose stools are far less common. Decided to give it a try after reading that in one study Bacillus clausii was used as a treatment of Small Intestinal Bacterial Overgrowth. I also take 600mg of Butyric Acid daily.
So have you guys tried this one?
https://www.iherb.com/pr/nutricology-securil-propio-fidus-based-30-capsules/9385
Most of the reviews are translated from Russian, but it seems like Drs have prescribed this over there according to numerous reviews and its almost treated like a drug.
They also keep mentioning this specific test, again in Russia, that says this bacteria is lacking. Im not sure what the test is, maybe to measure scfas or some kind of stool test?
Its been prescribed to adults and infants.
Okay this is the keyword from the reviews I kept seeing,
OSIPOV
anyone here Russian?
I think this might be it, its a person.
https://chromatest.si/wp-content/uploads/2020/06/OSIPOV-GA.pdf
So looking for some help here: (please take a second from researching curescures:) )
Took tane 20 years ago. Been well aware of the affects it has had on my life since then. Been mostly living a life trying to be tough through it all. Gave up on dermatologists and doctors pretty early on due to frustration and dismissing because I was young and appeared healthy.
(Side affects early on after treatment- still persist today)
-dry skin everywhere including eyes
-redness and tingling constant on face-easily flushes
-slow wound healing
-sensitivity to sun (inability to tan on face-easily tanned before)
-No ED/libido issues early on(fortunate)
-No GI issues early on
(Couple years later and today)
-continual hairloss and premature greying-started greying in early 20's
-stiffness in muscles-especially neck and lower back(cannot stand still in one position for very long without stiffness and pain) much better when I am moving
-headpressure and headaches in last 5 years along with tinnitus
-just recently started getting ear fullness and loss of hearing in my left ear(audio sensitivity and symptoms similar to Meiners)
-ive alternated between a dull pain in the side of my liver area on my right flank and kidneys burning. Mostly consistent dull pain in right side liver area)
-anxiety has been constant all my life, but the fight or flight increased after tane considerably and now my adrenals are probably shot. I am so fatigued now
-i hadn't had any stomach issues shortly after treatment, but today my stools are consistently soft mushy and bright orange diarrhea (Despite no cartenoids in diet that day). No stomach pain, but constant gas after eating.
-Depression/anxiety constant for last 20 years
-Brain fog is bad today and most days feel like I have early onset Alzheimer's
-Allergies
-Mylomas(fatty tumors-non cancerous) started developing in last couple years
Probably more but you get the drift.
So here's where I need your help. I haven't seen doctors much other than getting meds for.migraines and had some ultrasounds on liver, gallbladder and kidney areas in the past, but never got alarming test results or if I did, they didn't forward scans to GP and I didn't follow up.
I need to start a healing journey and put a plan together to start working on restoring a small bit of vitality. My problem is, I don't know where to start with the doctor. She will be used mainly for tests and blood work and possibly transition to holistic doctors when I can afford. I'm intimidated and lack energy to fight with doctor to get the tests done that I need to rule out issues, such as more extensive blood work, hormones, etc. ((((((What tests should I prioritize and what steps should I take?))))
Main problems today are brain issues. Secondary issues is gut problem because I know the importance of gut health.
Please, if you are kind enough to respond, please understand I have a good understanding of Acutane and supplements and have been present in the past in this forum under a different username, so I am well aware and understand I am not alone with any of my symptoms. I am not looking for a cure, just looking for a better quality of life and to mitigate the damage further.
In the meantime, I am starting a GAPs diet and exercising daily. Starting to cut out sugar and caffeine and focus on a stricter sleep schedule to try and get REM(although my sleep quality sucks and I don't ever dream). Trying to minimize the inflammation and get back to meditating(gave me the best results in the past). Probably going to start taking TUDCA for my liver and gallbladder and possibly Gingko Biloba for stomach and brain as well as continue use of NAC, vit. C and antioxidants to combat ROS.
Please prioritize my path with doctors as if it was your own. I honestly need real help here with that and can use the encouragement.
If you take the time to help me-you are a Saint and I am truly greatful. We are all warriors and you guys have encouraged me to continue to fight for a good life and not give up and accept that sickness has to always lead to constant suffering.
Wish you all continued and improved health. Best regards, Dustin
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On 9/15/2021 at 4:51 AM, VanceAstro said:I think that over the years I have tried all probiotics that are available on the market. I noticed some change after Enterogermina (Bacillus clausii). I wouldn't call it a great improvement, but loose stools are far less common. Decided to give it a try after reading that in one study Bacillus clausii was used as a treatment of Small Intestinal Bacterial Overgrowth. I also take 600mg of Butyric Acid daily.
thx Vance
Ive decided to buy the Securil probiotic product
Ive taken note of the Butyric Acid product you mentioned, I may buy that too
I think it makes sense to look at gut health again with more detail. As I said to my kinesiologist this week, its all well and good to tackle biofilms and get rid of fungus, bacteria and viruses but we need to feed the body the best bacteria after this, he agreed
The problem is, there are so many products on the market, its hard to know which probiotic to go with. Im taking one now that has 50 billion and 11 strains but I dont notice much change. In fact the best change I notice is more to do with laying off sugar than anything to do with the probiotic, so yeah diet is also critical to get right
Fish, the bright orange stool could've been from carotenoid foods from the day or two before. If no carotenoid foods the previous few days then that tells me your body just dumped some accutane into the toilet.
I've had nothing but bad luck with tudca, nac, and all other synthetic isolate pills. The only isolate I can tolerate is vitamin c gummies, which I love.
From my experience, synthetic isolates are the least helpful/most harmful. Whole plant based supplements such as whole ginkgo are better. And I just went back to beef based organs and tissues today and there's absolutely no question that beef based organs and tissues are far superior to everything else. Below is what I'm doing.
Daily supplements
Swanson beef thyroid
Codeage beef pancreas
Swanson defatted beef liver
Peak performance bone marrow
Definitely not cured by any means but I do feel stronger from the beef based stuff. All i really want is for my pelvic region to just relax. Uroxatral has been zero help with this. My pelvic region has always been tight and constricted post accutane.
I was taking NAC which is used to detoxify liver and started getting pimples although my skin felt drier. I searched and found out that NAC inhibits sebum so how it causes acne? Did it release isotretinoin from my body because it felt like in the beginning of isotretinoin course when acne gets worse. I can't think another reason for it.
I'm starting to think that accutane permanently exacerbates and magnifies anything that we as individuals are genetically predisposed to. Heart disease and diabetes runs in my family.
When I experiment with beef organs, I react badly to beef liver, beef brain, beef spleen, beef kidney, and beef prostate. But I have no bad reaction to beef heart or beef pancreas. Diabetes stems from the pancreas.
For now I'll be supplementing with beef heart and beef pancreas daily. Also drinking kalona vat pasteurized milk. Will report results later. You can Google search top ten largest organs. Talk to mom and dad about family health history. My current theory is that you can reverse accutane syndrome by addressing the specific organ(s) that cause familiar disease with raw beef organ supplements.
On 9/5/2021 at 6:53 AM, Aaron76 said:Brain damage can impair lymphatic flow. It can impair vitamin A metabolism. Causes chronic inflammation in the head and body. Alters the gut microbiome. Im surprised you weren't able to make those connections.
My biofeedback machine has always recommended flomax as a pharmaceutical solution for my prostate issues, but I've always avoided it due to the retrograde ejaculation it causes. I've come to think that retrograde ejaculation is something I will unfortunately have to live with. Will post results soon.
Had an MRI, no brain damage for me, will try to do an eeg to see if there is something wrong...
2 hours ago, DeadCobra said:Had an MRI, no brain damage for me, will try to do an eeg to see if there is something wrong...
Well done on checking this!!
Good result too
Ever considered the brain issues stem from gut dysbiosis??
We cant expect the brain to function optimally if the stomach is a mess yeah. Plus you cant expect any otherorgan of tye bodyto function equally I would say
At this stage, I just cant fix my gut.
43 minutes ago, TrueJustice said:Well done on checking this!!
Good result too
Ever considered the brain issues stem from gut dysbiosis??
We cant expect the brain to function optimally if the stomach is a mess yeah. Plus you cant expect any otherorgan of tye bodyto function equally I would say
At this stage, I just cant fix my gut.
How do we check gut disbiosis ?
And why you wouldn't be able to repair yours ?
I believe stool test and urine test
Regardless though, leaky gut or dysbiosis I just cant fix mine. Seen heaps of different practitioners, still seeing kinesiologist and he does a few things but its still fucked
Just cant get rid of reflux. Will continue to try a few more probiotics in the hope they work but Ive got nothing else after this. The gut issues affect my brain fog, Ill also continue to drain lymphatic in head with kinesiologist but with the gut, Ive got no other ideas unfortunately
9 hours ago, TrueJustice said:I believe stool test and urine test
Regardless though, leaky gut or dysbiosis I just cant fix mine. Seen heaps of different practitioners, still seeing kinesiologist and he does a few things but its still fucked
Just cant get rid of reflux. Will continue to try a few more probiotics in the hope they work but Ive got nothing else after this. The gut issues affect my brain fog, Ill also continue to drain lymphatic in head with kinesiologist but with the gut, Ive got no other ideas unfortunately
Have tested these multiple time troughout the past with no results...
My father use a drug for reflux, have you tried dry fasting for a day or two ?
4 hours ago, TrueJustice said:Yes tried fasting, only minor relief
Im on Parietfor heartburn. No doubt it works but I dont want to be on it, certainly not for life
I dont want to be on anything, just want to be healthy without taking pharmaceutical drugs.
I can feel you, i'm upset about all this shit, i just wanna get back my libido, my memory and my brain...
Has anyone talked about DBS here ? (deep brain stimulation)
This might be something to look into.
This isnt a stool test, its actually a blood sample.
Diagnosis of infections, dysbiosis and inflammatory processes
Welcome to Chroma Test the official representative of the Laboratory of Microbial Chromatography in the European Union!
Since 2010 the Laboratory has been specializing in a single type of clinical test microbial chromatography or, more precisely, gas chromatography-mass spectrometry.
I think beef organs can be very nutritious and helpful for the average Joe, but I no longer think they can help accutane people. As with naturecrazy YouTube guy, I believe the drug is still in us, and that increasing systemic nitric oxide to promote skin detox and lymphatic pumping/flow is key to its removal.
When I try arginine alone, it stimulates a MASSIVE dopamine loss, and I have to stop. Last night I tried combining arginine with uroxatral, and voila, no dopamine loss, no RLS. Woke up this morning sporting some lumber down below, and improved libido. Definitely not cured, but did notice some minor improvement. I'm doing that same combo again tonight.
So what's going on here? Well, vitamin A is key to dopaminergic regulation. A lack of vitamin A means a lack of dopamine regulation. So what would cause a vitamin A deficiency? Fake, synthetic vitamin A in the form of accutane. With a lack of true vitamin A, Nitric oxide stimulates uncontrolled release of dopamine unless there's something standing in the way to block adrenaline, which is what uroxatral does. It's an alpha blocker. This is why I could take arginine with no dopamine loss and no RLS.
The idea is to go with arginine and uroxatrol daily to keep the lymphatic system active, in order to flush accutane from the body. Drinking kalona vat pasturized milk, getting adequate seafood like tuna or shrimp to replenish dha, which is an rxr and rar ligand, and just following food cravings. Milk and cheese provide vitamin A. Carrots and carrot juice provides beta carotene. Will keep the board posted.
This poison further aggravated my intestinal symptoms that I had due to stress, I wanted to know if I had any inflammatory process in the body ... either due to viruses, diseases or inflammatory bowel disease, so I performed a PCR and the result was lower than any healthy person. I don't know what to think anymore, I'm tired. God save us.
1 hour ago, Aaron76 said:You mean a doctor performed a pcr on you. What do you mean by the result was lower than any healthy person? Please be more specific.
Yes, a doctor did it. Having a low index means that there is no problem in the body and everything is fine, actually despite that, I will try to convince the doctor to see my intestines, but from the inside.
A pcr sounds similar to complete blood count and metabolic panel, which often show up as normal for accutane people. I believe if there was a test that could measure not blood but TISSUE 13 cis retinoic acid, or simply tissue retinoic acid, I believe our levels would be off the charts.