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17 hours ago, Gunnersup said:I'm sure everyone is sick of hearing about fasting, but has anyone here tried a water fast of 30+ straight days? Curious
I have done a 50 day Breuss juice fast and couple 20 day water fasts. No PAS improvements, but they were done while I was still consuming large amounts of vitamin A.
On 12/22/2020 at 10:33 PM, under_tow said:I have done a 50 day Breuss juice fast and couple 20 day water fasts. No PAS improvements, but they were done while I was still consuming large amounts of vitamin A.
Were you experiencing testosterone issues before and after your 20 day fast?
Imetwith a vitamin A toxicity doctor today so I will update you guys on what he said. The vitamin A toxicity doctor seemed to think that a water fast wouldn't really help that much. Isotretinoin is a retinoid which is a metabolite of vitamin A. Vitamin A becomes more toxic as it becomes metabolized. The doctor I spoke to today had reason to believer that vitamin A should not be considered a vitamin, it's much more a toxin.
Here is his website, [removed]
He said that a vitamin A detox can take up to 2 years. For Accutane users, it could be more. There are about 10 Accutane users that he is working with right now and he says that most Accutane users believe that they are broken for life. Morale tends to be low with Accutane users and this is something I feel like we should talk about. I am going to start on a low vitamin A diet today.
On 12/23/2020 at 12:28 AM, DeepAcceptance said:Were you experiencing testosterone issues before and after your 20 day fast?
Imetwith a vitamin A toxicity doctor today so I will update you guys on what he said. The vitamin A toxicity doctor seemed to think that a water fast wouldn't really help that much. Isotretinoin is a retinoid which is a metabolite of vitamin A. Vitamin A becomes more toxic as it becomes metabolized. The doctor I spoke to today had reason to believer that vitamin A should not be considered a vitamin, it's much more a toxin.
Here is his website, https://nutritionrestored.com/
He said that a vitamin A detox can take up to 2 years. For Accutane users, it could be more. There are about 10 Accutane users that he is working with right now and he says that most Accutane users believe that they are broken for life. Morale tends to be low with Accutane users and this is something I feel like we should talk about. I am going to start on a low vitamin A diet today.
@DeepAcceptance I am now at over 2yrs on the low VA diet, it is the only thing that has helped with accutane sides for me, I am planning another 2yrs on strict low VA, as I ate a diet extremely high in dairy, eggs, liver, cod liver oil, and all the high VA fruits/vegg along with two rounds of accutane. Depends on how old you are, your VA intake, and accutane dosage, but I suspect 2-4yrs average to get most people down to bottom levels of liver and tissue VA storage.
Best of luck, remember to have patience, the first few months will be rocky, it is a long marathon, not a sprint.
Grant's forum has some accutane users as well: [Edited link out]
On 12/22/2020 at 6:10 PM, TrueJustice said:Pls ask if the process can be aided by increasing the other Fat Soluble Vit??
That would be Vit D,K and E
He doesn't seem to think that vitamin really improve things but he does say that people that have done Accutane seem to have zinc deficiencies. This is his shpeel.
Thank you
When testing fat soluble vitamins with my kinesiologist, D on its own I tested unfavourably but when he tested one of the supplements with both D and K in it I tested in positive way.
The point being that we need a good balance between all the fat soluble vitamins
Ive never pursued the anti Vit A diet yet, it appears to be very disciplined and hats off to those whove stuck it out for years, I hope though at the end of it they actually get some results!!
Went to dentist yesterday to find I have 3 cavaties. Yes, 3. This is very out if the blue given I have had perfect teeth before accutane, and still brush daily. Very confused. Could be unrelated, but I wouldn't doubt the lack of saliva in my mouth after accutane played a factor
On 12/15/2020 at 7:06 AM, Aaron76 said:We wouldn't be suing the generic drug companies. We'd be suing the fda and mhra for their gross inaction against toxic harmful drugs.
Trust me we all want to see Pharma pay but we need more recognition. You are right that we need to sue the MHRA and the FDA - they are responsible for patient safety and they have allowed Pharma to murder innocent teenagers.
Note that the Thalidomide and victims pf other drugs did eventually get compensated years and years after the scandal so we do need to keep chipping away. But you got to realise we can't do it alone, we need everyone one of you guys to get involved. You can send us case history(this is your own experience in your own words - no records needed and it can be anonymous), fill out the survey and email pharma and the regulators. You can do all of this or just one, it all helps. One thing to note is that jumping on the bandwagon at the last minute to get compensation when the chance come along (we we hope and believe it will) might be much more difficult than if you actually getinvolved now - make yourselves known to the regulators and register with one of us. We are also looking for the government to commit to finding a cure but they need to know that there are a lot of sufferers if they are going to invest.
On 12/11/2020 at 11:52 PM, Gunnersup said:Like Calcified said, I really don't see why describing our side effects would get the drug banned. Each side effect we have is clearly listed on the pamphlet everyone receives.
I think most of us are looking for "closure". Either by trying to get the drug banned, or by healing ourselves. I could absolutely care less if the drug gets banned. I'd rather find closure by healing myself. And I sympathize with True Justice, I don't think after 20 years that his main priority is getting the drug banned. I'm sure he just wants to heal himself, as I do. Anyways, more people with permenant accutane side effects will further along research for this, as close-minded as it sounds.
LookI don;t want to attack victims of Isotretinoin, we are all suffering so greatly. We all want to find a cure and some might like compensation. Would I drop everything if someone said thatthey could offer me and me alone a cure - if I am being honest a probably would. But don't you agree that becausevictimsdid not report sideeffects years ago - there are more victims today and loads of dead teenagers? I spoke to a dermatologist the other day and he said that he had only heard about sexual side effects 3 years ago!!
You say thatall the side effects are clearly listed on the pamphlet but the sexual ones only got included in 2017 and it was because we pushed for it. Spontaneous suicide is not listed nor is post treatment suicides. There is no mention of autoimmune diseases, microbiome destruction, hormonal changes, baldness - I could go on and on. There is no warning that you might get hit with many or all the side effects listed. There is no mention that the side effects can persist for years or that they might be permanent. There is no safety guideline to ensure that every patientreads the pamphlet, is told about the risks, understand the risks and is educated on how to recognise the risks. Some patients might not get warning signs and some might not recognise them. We all know that some side effects only occur once treatment stops or emerge years later like gynecomastia for instance or ulcerative colitis.
There is no national register to even record how many people are being prescribed this dangerous drug, no record of elective or spontaneous abortions(loss of foetuses are not even included in the death- they don't count apparently). Dermatologists should not just be ableto willy nilly prescribe this heinous drug without any thought or care for the damage they are doing.
It might seem ok saying that more people with permanent side effects will further along research but young kids are dying, ripping families apart along the way.
We care about all of this and we care about every victim, even True Justice who pisses me off most of the time.
We are trying to stop the madness but we can't do it alone - it really s a simple as that. If you can'tdo anything else, at least email the regulators and explain PAS to them and complete the survey.
On 12/26/2020 at 11:21 AM, timetoban said:LookI don;t want to attack victims of Isotretinoin, we are all suffering so greatly. We all want to find a cure and some might like compensation. Would I drop everything if someone said thatthey could offer me and me alone a cure - if I am being honest a probably would. But don't you agree that becausevictimsdid not report sideeffects years ago - there are more victims today and loads of dead teenagers? I spoke to a dermatologist the other day and he said that he had only heard about sexual side effects 3 years ago!!
You say thatall the side effects are clearly listed on the pamphlet but the sexual ones only got included in 2017 and it was because we pushed for it. Spontaneous suicide is not listed nor is post treatment suicides. There is no mention of autoimmune diseases, microbiome destruction, hormonal changes, baldness - I could go on and on. There is no warning that you might get hit with many or all the side effects listed. There is no mention that the side effects can persist for years or that they might be permanent. There is no safety guideline to ensure that every patientreads the pamphlet, is told about the risks, understand the risks and is educated on how to recognise the risks. Some patients might not get warning signs and those that domight not recognise them. We all know that some side effects only occur once treatment stops or emerge years later like gynecomastia for instance or ulcerative colitis.
There is no national register to even record how many people are being prescribed this dangerous drug, no record of elective or spontaneous abortions(loss of foetuses are not even included in the death toll - they don't count apparently). Dermatologists should not just be ableto willy nilly prescribe this heinous drug without any thought or care for the damage they are doing.
It might seem ok saying that more people with permanent side effects will further along research but young kids are dying, ripping families apart along the way.
We care about all of this and we care about every victim, even True Justice who pisses me off most of the time.
We are trying to stop the madness but we can't do it alone - it really s a simple as that. If you can'tdo anything else, at least email the regulators and explain PAS to them and complete the survey.
On 10/5/2014 at 9:15 AM, rewopwspe said:Hi guys,
It's been years since I posted here but I was brought back because I recently received an email that someone quoted me. I can't believe this topic still exists (actually I can since accutane is a horrible drug).
I felt obligated to inform everyone here that I am pretty much cured and 100% back to the person I was prior accutane. Long story short, I suffered really bad digestive issues from a second course of accutane which led to a myriad of additional problems. I went through a couple years of terrible pain, thinking that my body would never be the same. I was a wreck, and was very ill. Everyone told me that I looked terrible.
But good news - I found the cure to digestive ailments. I started making homemade kefir and within a week I felt better. Now it's been almost a year and I can say that I've never felt better. A cup of homemade kefir has about 2.5 trillion probiotics. Good luck finding that amount in supplement form. BTW, I tried about every probiotic supplement, and none compare to kefir. Not. Even. Close. Homemade kefir is made from kefir grains which are growing bacteria. You feed them milk everyday, they give you a tasty drink.
Overall, my diet is pretty clean nowadays. No gluten, no gmos, mostly paleo, except that I eat lots of dairy. Plenty of organic foods. I have no issue with vitamin A anymore. But none of that even matters compared to the difference homemade kefir made in my life. Store bought kefir is alright, but it's not "real" kefir, but rather, a probiotic drink. Make it at home, you won't regret it. It will heal your body.
In terms of further detox of accutane, saunas are great too.
Also, good news for the guys who have lost hair after accutane, I found another fix. Please check out this thread/forum:
[removed]
Long story short, MPB is an inflammation process that involves calcification of the scalp. There's a lot of disagreement in that forum topic, but ignore the haters, this method absolutely works. But it will take up to a year to regrow. Be patient.
Sorry if I repeated anything that's already been said here, I have not read any posts before writing this.
Good luck,
rew
Did fatigue joint pain and brain fog go away too? Please can u come back and give a full guide of what you did?
On 12/12/2020 at 10:33 AM, Calcified said:@Anna Nim@timetoban therewas an mtv true life episode, years ago, like 10+ years showing how careful dermatologists are in USA to prescribe. Did this change?
I've seen YouTube videos of people on low dosages compared to years ago, like if you were 100kilos you were on 100gms a day in the 90's.
They may have been somewhat more careful in the past, but clearly not. In fact, I read somewhere that USA tends to have higher doses, and in my son's case I think that is VERY true. There were so many lawsuits in the USA, Roche pulled out, giving us generics and no one to sue. Found this gem online:
"Accutane lawsuitsclaim the drug caused Crohn's disease and other inflammatory bowel disorders. A court dismissed the majority of the more than 7,000lawsuitsfiled against Swiss manufacturerRochein 2014. The New Jersey Supreme Court dismissed another 500lawsuitsin 2018."
7 hours ago, Anna Nim said:They may have been somewhat more careful in the past, but clearly not. In fact, I read somewhere that USA tends to have higher doses, and in my son's case I think that is VERY true. There were so many lawsuits in the USA, Roche pulled out, giving us generics and no one to sue. Found this gem online:
"Accutane lawsuitsclaim the drug caused Crohn's disease and other inflammatory bowel disorders. A court dismissed the majority of the more than 7,000lawsuitsfiled against Swiss manufacturerRochein 2014. The New Jersey Supreme Court dismissed another 500lawsuitsin 2018."
If you watch the episodes people found it really hard to get.
Sueing seems futile, lots of medicine has serious sides.
A inflammatory arthritis med causes liver failure according to a youtube conference i watch hosted by rheumatoid doctors.
An example, I have terrible joint issues , flying is unbearable except on prednisone, but I can't take it everyday as it is may shut down my own cortisol production plus a whole lot of other sides are possible.
But flying without it is like myspine ripping out of my body on take off.
On 12/26/2020 at 9:17 PM, timetoban said:
Something to research:
https://www.healthline.com/health/gcmaf-cancer-treament
18 hours ago, FkAccutane said:Did fatigue joint pain and brain fog go away too? Please can u come back and give a full guide of what you did?
Please participate
14 hours ago, Calcified said:If you watch the episodes people found it really hard to get.
Sueing seems futile, lots of medicine has serious sides.
A inflammatory arthritis med causes liver failure according to a youtube conference i watch hosted by rheumatoid doctors.
An example, I have terrible joint issues , flying is unbearable except on prednisone, but I can't take it everyday as it is may shut down my own cortisol production plus a whole lot of other sides are possible.
But flying without it is like myspine ripping out of my body on take off.
What is your point?
Lots of medicine has serious sides, but for an acne medication, the risk far outweigh the benefits. Pimples that will clear out. IDK about some episodes-Accutane rates of issues are FAR higher than we are led to believe. No Drs believe you. The reason lawsuits are futile, is that Roche SAW the writing on the wall regarding the lawsuits, and they pulled out. The cases were dropped. You simply can NOT sue generics, literally By Law. What should have happened is that the FDA, should have stopped this drug...period.
4 hours ago, Anna Nim said:What is your point?
Lots of medicine has serious sides, but for an acne medication, the risk far outweigh the benefits. Pimples that will clear out. IDK about some episodes-Accutane rates of issues are FAR higher than we are led to believe. No Drs believe you. The reason lawsuits are futile, is that Roche SAW the writing on the wall regarding the lawsuits, and they pulled out. The cases were dropped. You simply can NOT sue generics, literally By Law. What should have happened is that the FDA, should have stopped this drug...period.
Yes, I agree with you, they need to come up with something safer for acne.
Supplements
Codeage beef organs 6/day
Honest supplements bone marrow 6/day
Diet
Omnivore
Organic when possible
Dairy
Organic kefir
Frozen yogurt
Eggs
Cage free non vegan
Frozen entrees
Lean cuisine
Healthy choice
Amy's organics
Fruit
Raw organic
Juice
Goodbelly
Meat
Ballpark beef franks
Up north beef sticks
Jack link's beef jerky
Tyson chicken nuggets
Chicken or turkey sausage
Seafood
Soy free pouched albacore
Seapak frozen shrimp & soy free bbq sauce
Snacks
Hemp seeds
Soup
Campbell's chunky
Soy free deli
Panera Mac n cheese
Veggies
Canned, never raw, organic if possible
Wrongfully villified restaurants (Just avoid the sugar & aspartame--fat is GOOD.)
Bk
Tb
McD
Arby's
Wendy's
Acceptable cooking oil
Lard
Evco
Evoo
Butter
Tallow
Avocado
Macadamia
Unacceptable cooking oil
Pufa rich
Margarine
Avoid soy based deli
Cole slaw
Tuna salad
Potato salad
Macaroni salad
Avoid all
Soy
Alcohol
Tobacco
Deodorant
Swine products except ham
Artificial sweeteners (worse than sugar)
Bathroom products
Meijer tp
Zest bar soap
Vo5 shampoo
Meijer flossups
Aim toothpaste
Water treatment
Ecopure chlorine filter/water softener
Acceptable dental materials
Bpa free
Metal free
Biocompatible
Not saying the above program is thee cure, but it's what I'm currently doing as of today. Will post results in the coming days/weeks. Godspeed.
On 12/29/2020 at 4:57 AM, Calcified said:Yes, I agree with you, they need to come up with something safer for acne.
A safer alternative to accutane for acne is organic kefir. Seriously. Acne begins in the gut.
On 12/29/2020 at 4:38 PM, DeepAcceptance said:Do we have any documentation of before and after a water fast for testosterone levels and autoimmunity?
My t always plummets when conducting a fast. I think daily fasting for 16 hours or so can be good, but I'm not for fasts lasting several days or more.
Anyone here try Low Dose naltrexone? Someone messaged me saying they have been treating all of their accutane side effects with it. And what do you know, it's used for autoimmunity diseases.
... really starting to believe in accutane producing its own autoimmune disease in the body.