Acne.org Products
On 11/24/2020 at 4:12 PM, Calcified said:I don't see how people mentioning listed, proven and well known side effects will do anything.
Is sexualdysfunction listed in th US PIL then?
Is permanent systemic damage mentioned?
Is spontaneous suicide mentioned?
Is post treatment suicide mentioned?
Is PAS mentioned?
51 minutes ago, timetoban said:Very selfish attitude. Tell me how many teenagers committed isotretinoin induced suicide this year in the US and the UK?
Better still, tell me how many Australians botherer to report any side effects at all?
It will be years before victims get another chance to be heard so please speak up now.
speak up for all the kids who lost their lives
for all the males whocan't have sex and will never father a child.
for all the females who are not able to enjoy sex.
for all the foetuses who were spontaneously aborted
for all those who have diminished painful lives
for all those grieving for the loss of their former lives
for all those who no longer have a future worth living
Direct email [email protected]
Sorry for being selfish and trying to seek help and report back hereover the years.
I could equally ask you what youve done to go and seek help and report back here??
To the section of the forum thats about repairing damagepost tane!!
Its dickhead comments like that that make me want to back away from helping you at all
yourenot in charge - pull your fucken head in!!
13 hours ago, TrueJustice said:Sorry for being selfish and trying to seek help and report back hereover the years.
I could equally ask you what youve done to go and seek help and report back here??
To the section of the forum thats about repairing damagepost tane!!
Its dickhead comments like that that make me want to back away from helping you at all
yourenot in charge - pull your fucken head in!!
You are not helping me in the slightest - have you ever re-read your own posts - your like a flip flop.
I really wish you would back away!
What about stopping other peoplebeing prescribed this drug rather than coming here to listen to all youruseless advise on how to get better!!!
Seriously, have you said one single thing that has ever helped someone get better - I think not!
Help your fellow humans. Less victims in the future is good for us all. Here is the letter I received from the MHRA today.
Only 256 people have responded to their inquiry that has been 6 years in the making. If you have not done so, fill it out!
Dear Colleague,
We recently informed you that the Commission on Human Medicines (CHM) and the Isotretinoin Expert Working (IEWG) is reviewing evidence of the possible association between isotretinoin and suspected psychiatric and or sexual disorders. If you are interested in finding out more about the review, further information is availablehere.
To help us gather information to support the review, we have issued acall for information.
The call for information has now been open for 4 of its 12 week duration and we have received 256 responses. We have received responses from a range of individuals including those who have received isotretinoin, family members or friends of someone who has taken isotretinoin, and from healthcare professionals who have either treated individuals with isotretinoin or have treated suspected side effects of isotretinoin.
We would like to reassure you that all responses to the call for information will be considered by the IEWG who will make recommendation to the CHM. All personal details will be protected.
We have been raising awareness of the review and the call for information through a variety of methods including direct emails, the GOV.UK webpage, an article in our bulletin Drug Safety Update and on social media. So far, the responses indicate that all of these routes are reaching people.
If you havent already done so, we would encourage you to consider contributing to the isotretinoin: call for information whichis open until 2 February 2021.
We are particularly interested in the views of those who live in the UK but will also accept contributions from those living outside the UK.
We would appreciate it if you could share information about thereviewand thecall for informationwith anyone who you think may be interested.
If you require further information, please email[email protected].
Kind Regards,
Patient, Public and Stakeholder Engagement team
Communications division
Medicines and Healthcare products Regulatory Agency
10 South Colonnade, Canary Wharf, London E14 4PU
Telephone: 0203 080 6000
Email:[email protected]
Stay connected:mhra.gov.uk/stayconnected
6 hours ago, timetoban said:You are not helping me in the slightest - have you ever re-read your own posts - your like a flip flop.
I really wish you would back away!
What about stopping other peoplebeing prescribed this drug rather than coming here to listen to all youruseless advise on how to get better!!!
Seriously, have you said one single thing that has ever helped someone get better - I think not!
Again sorryfor being selfish and trying to help as little as that might be- I deserved to becalled out
Also sorry for losing my mind over last 20 years and giving useless ramblinginfo
Show us the way timetoban....all yours to lead the way....
FYI - Im part of the 256 whove filled out the survey....apologies if that was a selfish act on my part!!
Like Calcified said, I really don't see why describing our side effects would get the drug banned. Each side effect we have is clearly listed on the pamphlet everyone receives.
I think most of us are looking for "closure". Either by trying to get the drug banned, or by healing ourselves. I could absolutely care less if the drug gets banned. I'd rather find closure by healing myself. And I sympathize with True Justice, I don't think after 20 years that his main priority is getting the drug banned. I'm sure he just wants to heal himself, as I do. Anyways, more people with permenant accutane side effects will further along research for this, as close-minded as it sounds.
I agree, when I took it in 98 pamphlet DIDsay it can cause depression, cant argue it didnt say it as much as it hurts.Just wish I wasnt so naive back thenbut didnt think it would happen to meand if it did thatIdjust snap out of it - never had depression before that so didnt really understand it
I empathise with those who have sexual sides, I believe they have more ground to stand on with questioning the warnings on pamphlet or lack there of. Ive got nothing to offer though reallyas I dont have these sides and havent sort answers over the years.
Im all for seeing it banned but Ill take no shit with those trying to shame victims here with some sort of guilt trip that weve been selfish and havent done anything to help....whats that all about?!
The best thing that can come from the survey is shedding light on the actualnumbersof people with issues, maybe that will lead to more research etc in to helping people. As for seeing it banned though,just look whats happened previously- Roche cease making it cause of all the legal battles theyvehad and yet its still made in generic form now by someone else,does that not say everything about thepharmaceutical industry and how they work - theydontgive a shit......mind boggling to say the least I know
Unlikely every Accutane will be taken off the market. It makes far too much money. I would rather no "cure/treatment" than have it continue to be on the market..save someone. It is gross how little the MHRA survey is doing after years of grieving parents pressure. That being said.
Fill. Out. The.Survey.
Thank you coming to my Ted Talk
Anna Nim
What part of your info with survey would you say will be a revelation to the MHRA?
If its sexual sides, theyll probably lump you in same category as me - depression
Everything I mentioned re depression, fatigue etc is already known. Was probably known years before I went on it in 98, again it was listed as a potential side effect and thats 22 years ago.Theres nothing Ive given that would result in getting it banned as far as I can see
To change subject, have you and your son investigated any of those autoimmune issues yet?Keen to know if thats an avenue worth looking into or not...
Exactly TJ, I'd feel a fool answering the survey with a list of known side effects. Maybe if I had ED I'd fill it out, but even then...
The drug won't be banned, and quite frankly I think that is a silly way of trying to find closure. We should just focus on healing ourselves. Atleast I'm making some progress with the autoimmune meds I'm on.
Gunnersup
I would say try and fill out survey if you can. It is easy, very straightforward survey that takes no more than 10-15 mins
It would help to show the number of people with issues at the very least, even though were doubtful on seeing tane banned anytime soon....
I finally received an email today so I know it was successfully filled out and submitted
@Anna Nim@timetoban therewas an mtv true life episode, years ago, like 10+ years showing how careful dermatologists are in USA to prescribe. Did this change?
I've seen YouTube videos of people on low dosages compared to years ago, like if you were 100kilos you were on 100gms a day in the 90's.
I wanted to hold off on saying this, but I seem to moderately allergic to gluten now. Every time I eat gluten my lips and mouth have a crazy allergic reaction. And this morning, after eating a sandwich, my stomach became extremely nauseous and I felt very sick. I don't really know what to do about this. I guess I will stay away from Gluten. Perhaps I will hop back on Tofacitinib as that gave me relief from yhis gluten allergen when I was on it.
Daily supplements
Kyolic original capsules 4/day
Organic beetroot capsules 2/day
Whole beef liver capsules 1.5g/day
Diet
Omad warrior
Omnivore
Organic when possible
Acceptable eggs
Pastured
Grain fed
Cage free
Non soy fed
Non flax fed
Frozen entrees
Lean cuisine
Healthy choice
Amy's organics
Fruit
Canned or raw, organic if possible
Glucose source
Organic dates
Juice
Dole pineapple juice
Low pufa nut butter
Nutella
Low pufa snacks
Combos
Meat
Ballpark beef franks
Up north beef sticks
Jack link's beef jerky
Tyson chicken nuggets
Chicken or turkey sausage
Milk
Organic 2%
Orac staples
Organic instant decaf coffee
Simply smoothie orchard berry
Probiotics
Raw kombucha
Seafood
Soy free pouched albacore
Precooked frozen shrimp & soy free bbq sauce
Soup
Campbell's chunky
Soy free deli
Meijer baked beans
Panera Mac n cheese
Veggies
Canned, never raw, organic if possible
Wrongfully villified restaurants (Just avoid the sugar & aspartame--fat is GOOD.)
Bk
Tb
McD
Arby's
Wendy's
Acceptable candy
Riesens
Chocolate covered fruit
Brookside dark chocolate
Avoid soy based deli
Cole slaw
Tuna salad
Potato salad
Macaroni salad
Avoid all
Soy
Alcohol
Caffeine
Tobacco
Deodorant
Swine products except ham
Artificial sweeteners (worse than sugar)
Bathroom products
Meijer tp
Zest bar soap
Vo5 shampoo
Meijer flossups
Aim toothpaste
Water treatment
Ecopure chlorine filter/water softener
Acceptable dental materials
Non bpa
Non metallic
Biocompatible
I've never tried that cbd cream product. I have tried cbd orally and it destroys my liver, since it's not a whole food, but an extract. Never tried rso but I'd be willing to bet I'd do much better with rso than cbd.
Anna nim, I appreciate your passion and intelligence with wanting to ban accutane. Ever seen the movie Erin brockovich? You, sam ward, and colette all remind me of her. I believe the three of you have what it takes to find some of the worlds top anti pharma lawyers and go after the mhra and fda legally.
I also believe that if you three came here with, hey guys, we've got lawyers, were going to sue the fda and the mhra, and we need your help, every guy in here and every other website would LOVE to help you attack these assholes. We would do whatever you want us to do if you had lawyers attacking these two corrupt organizations. Anna, get in touch with Sam ward and colette, collaborate with them, and start hunting down some of the top anti pharma lawyers in the us and uk. If you 3 gals have lawyers who will sue, we will all help you in your fight against these two evil organizations.
On 12/10/2020 at 7:14 PM, timetoban said:Very selfish attitude. Tell me how many teenagers committed isotretinoin induced suicide this year in the US and the UK?
Better still, tell me how many Australians botherer to report any side effects at all?
It will be years before victims get another chance to be heard so please speak up now.
speak up for all the kids who lost their lives
for all the males whocan't have sex and will never father a child.
for all the females who are not able to enjoy sex.
for all the foetuses who were spontaneously aborted
for all those who have diminished painful lives
for all those grieving for the loss of their former lives
for all those who no longer have a future worth living
Direct email [email protected]
True justice isn't selfish, he's tired and he's smart. We need to forget about begging these two scumbag organizations for help and legally attack the fda and mhra with lawyers. I believe anna, colette, and Sam are all more than capable of finding the lawyers needed to go after these two evil organizations.
35 minutes ago, Aaron76 said:Anna nim, I appreciate your passion and intelligence with wanting to ban accutane. Ever seen the movie Erin brockovich? You, sam ward, and colette all remind me of her. I believe the three of you have what it takes to find some of the worlds top anti pharma lawyers and go after the mhra and fda legally.
I also believe that if you three came here with, hey guys, we've got lawyers, were going to sue the fda and the mhra, and we need your help, every guy in here and every other website would LOVE to help you attack these assholes. We would do whatever you want us to do if you had lawyers attacking these two corrupt organizations. Anna, get in touch with Sam ward and colette, collaborate with them, and start hunting down some of the top anti pharma lawyers in the us and uk. If you 3 gals have lawyers who will sue, we will all help you in your fight against these two evil organizations.
True justice isn't selfish, he's tired and he's smart. We need to forget about begging these two scumbag organizations for help and legally attack the fda and mhra with lawyers. I believe anna, colette, and Sam are all more than capable of finding the lawyers needed to go after these two evil organizations.
Would not work because the generic isotretinoin companies are not able to be sued
Has anyone tried a 20 day water fast? I am thinking about taking out a $5,000 loan to go on a 20 day water fast to see if that causes some sort of change at the Truenorth health center. I managed to make it 6 days without food and I saw definite improvements. I am thinking 20 days would be necessary to make a more significant difference.
Good on you for trying this - this really is all we can do, go try things and report the findings back here, as slow as that process might be at times
Ive only ever done moderate fasting as part of Moritz Liver cleanse procedure, more than 3 days and I just feel weak.I think going to a place where its all supervised is the best way to go
Hope you have some success and it improves your health, let us know how it all goes pls
I'm really skinny in some places and don't really seem to be able to put fat on those places. So no long fasts for me. Lately my bottom of feet has been hurting while walking and I seriously start to think it's because of the fat layer has thinned. This is something that normally can happen to old people and I'm 29. I feel like this drug really can age you fast in some things. I might get on TRT, maybe that will make me more youthful.
I would say for joint pain, a 5 day fast helps significantly. I am thinking to improve libido and testosterone levels that you might have to go 20 days. I was also wondering if anyone knew if Isotretinoin causes telomere shortening. I am hoping that post-retinoid syndrome is almost entirely an autoimmune issue but I am wondering if there is any evidence of genetic damage. My hairstylist is 27 and she is already getting grey hair and she took isotretinoin. This leads me to believe that it causes damage to stem cells and causes telomere shortening. Autoimmune disorders can be fixed with extreme water fasts so I am hoping that it is just an autoimmune disorder. My intuition tells me that it is both though.
Good question about telomere shortening
I have read that fasting can help lengthen them, other things that weve all tried help such as Co Q10, fish oil etc
All the other things your doctor tells you to do - plenty of veggies, exercise etc are apparently a step in the right direction
This is all just basic stuff though, to go deeper into stem cells etc, maybe someone else knows a thing or two about this area?
Lately with kinesiologist weve struggled somewhat to clear my lymphatic system- I think this is highly compromised after tane. Perhaps the drying up of sebaceous glands impacts on lymphatic??...cant say for sure though
Im on Manjistha Supreme to help draining, along with all the physical work we continue to do. Ive had some good days where my head doesnt feel so inflamed and the brain fog has lessened
Raw beef organs, 1x2/day
Codeage kidney
Codeage spleen
Dr rons prostate
Swanson thyroid
Codeage pancreas
Ancestral intestines
Life giving store heart
Time honored defatted liver
Diet
Omnivore
Organic when possible
Frozen entrees
Lean cuisine
Healthy choice
Amy's organics
Fruit
Canned or raw, organic if possible
Juice
V8 original
Organic orange
Low pufa nut butter
Nutella
Low pufa snacks
Combos
Meat
Ballpark beef franks
Up north beef sticks
Jack link's beef jerky
Tyson chicken nuggets
Chicken or turkey sausage
Milk
Organic 2%
Orac staples
Organic instant decaf coffee
Simply smoothie orchard berry
Probiotics
Raw kombucha
Seafood
Soy free pouched albacore
Precooked frozen shrimp & soy free bbq sauce
Soup
Campbell's chunky
Soy free deli
Meijer baked beans
Panera Mac n cheese
Veggies
Canned, never raw, organic if possible
Wrongfully villified restaurants (Just avoid the sugar & aspartame--fat is GOOD.)
Bk
Tb
McD
Arby's
Wendy's
Acceptable candy
Riesens
Chocolate covered fruit
Brookside dark chocolate
Avoid soy based deli
Cole slaw
Tuna salad
Potato salad
Macaroni salad
Avoid all
Soy
Eggs
Alcohol
Caffeine
Tobacco
Deodorant
Swine products except ham
Artificial sweeteners (worse than sugar)
Bathroom products
Meijer tp
Zest bar soap
Vo5 shampoo
Meijer flossups
Aim toothpaste
Water treatment
Ecopure chlorine filter/water softener
Acceptable dental materials
Non bpa
Non metallic
Biocompatible
Acceptable doctors
Alternative
Naturopathic
Non mainstream
Unacceptable doctors
Metro
Blodgett
St marys
Spectrum
Mainstream
Raw beef organs, 1x2/day
Codeage kidney
Codeage spleen
Dr rons prostate
Swanson thyroid
Codeage pancreas
Ancestral intestines
Life giving store heart
Time honored defatted liver
Diet
Omnivore
Organic when possible
Frozen entrees
Lean cuisine
Healthy choice
Amy's organics
Fruit
Canned or raw, organic if possible
Juice
V8 original
Organic orange
Low pufa nut butter
Nutella
Low pufa snacks
Combos
Meat
Ballpark beef franks
Up north beef sticks
Jack link's beef jerky
Tyson chicken nuggets
Chicken or turkey sausage
Milk
Organic 2%
Orac staples
Organic instant decaf coffee
Simply smoothie orchard berry
Probiotics
Raw kombucha
Seafood
Soy free pouched albacore
Precooked frozen shrimp & soy free bbq sauce
Soup
Campbell's chunky
Soy free deli
Meijer baked beans
Panera Mac n cheese
Veggies
Canned, never raw, organic if possible
Wrongfully villified restaurants (Just avoid the sugar & aspartame--fat is GOOD.)
Bk
Tb
McD
Arby's
Wendy's
Acceptable candy
Riesens
Chocolate covered fruit
Brookside dark chocolate
Avoid soy based deli
Cole slaw
Tuna salad
Potato salad
Macaroni salad
Avoid all
Soy
Eggs
Alcohol
Caffeine
Tobacco
Deodorant
Swine products except ham
Artificial sweeteners (worse than sugar)
Bathroom products
Meijer tp
Zest bar soap
Vo5 shampoo
Meijer flossups
Aim toothpaste
Water treatment
Ecopure chlorine filter/water softener
Acceptable dental materials
Non bpa
Non metallic
Biocompatible
Acceptable doctors
Alternative
Naturopathic
Non mainstream
Unacceptable doctors
Metro
Blodgett
St marys
Spectrum
Mainstream
Raw beef organs, 1x2/day
Codeage kidney
Codeage spleen
Dr rons prostate
Swanson thyroid
Codeage pancreas
Ancestral intestines
Life giving store heart
Time honored defatted liver
Diet
Omnivore
Organic when possible
Frozen entrees
Lean cuisine
Healthy choice
Amy's organics
Fruit
Canned or raw, organic if possible
Juice
V8 original
Organic orange
Low pufa nut butter
Nutella
Low pufa snacks
Combos
Meat
Ballpark beef franks
Up north beef sticks
Jack link's beef jerky
Tyson chicken nuggets
Chicken or turkey sausage
Milk
Organic 2%
Orac staples
Organic instant decaf coffee
Simply smoothie orchard berry
Probiotics
Raw kombucha
Seafood
Soy free pouched albacore
Precooked frozen shrimp & soy free bbq sauce
Soup
Campbell's chunky
Soy free deli
Meijer baked beans
Panera Mac n cheese
Veggies
Canned, never raw, organic if possible
Wrongfully villified restaurants (Just avoid the sugar & aspartame--fat is GOOD.)
Bk
Tb
McD
Arby's
Wendy's
Acceptable candy
Riesens
Chocolate covered fruit
Brookside dark chocolate
Avoid soy based deli
Cole slaw
Tuna salad
Potato salad
Macaroni salad
Avoid all
Soy
Eggs
Alcohol
Caffeine
Tobacco
Deodorant
Swine products except ham
Artificial sweeteners (worse than sugar)
Bathroom products
Meijer tp
Zest bar soap
Vo5 shampoo
Meijer flossups
Aim toothpaste
Water treatment
Ecopure chlorine filter/water softener
Acceptable dental materials
Non bpa
Non metallic
Biocompatible
Acceptable doctors
Alternative
Naturopathic
Non mainstream
Unacceptable doctors
Metro
Blodgett
St marys
Spectrum
Mainstream