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Repairing the long-term damage from Accutane

 
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715
(@thomas76)

Posted : 09/29/2020 12:14 am

Kyolic and defatted liver just didn't work out. As for the peak performance bone complex, I think it's a good supplement, but I don't think it'll help with accutane recovery.

Currently doing whole beef liver 3 grams, with giant kelp 3 capsules, daily before work. The thing that gives me hope is that if I take whole beef liver by itself I react badly to it due to the retinol content. And if I take giant kelp by itself I react badly due to it wiping out my brain cholesterol. But if I take them both together, no bad reaction. Just more physical and mental energy.

Not recovered by any means but feel slightly better. This seems to support nature crazy guys theory that the drug is still in the body, and that retinol from whole beef liver is replenishing vitamin A, while the giant kelp pills are pulling accutane out of the body. Sticking with this combo and will keep the board updated on it. Godspeed.

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2
(@isojim)

Posted : 10/07/2020 6:16 am

On 9/12/2020 at 3:01 AM, Gunnersup said:

Been two weeks on Xeljanz to treat my hairloss. I am 100% sure the itching has ceased. Also, the individual strands of hair have greatly thickened up. The shedding is still at an abnormal rate but I feel it is slowing down, I'll have to wait a few weeks longer to make sure. No noticable side effects from the medication, but my sex drive is definitely way higher than even before accutane which is nice. Maybe ED is also linked to inflammation? Who knows...

 

I'm also starting sebowash tomorrow, a topical steroidal shampoo which may slow the shedding down temporarily while Xeljanz absorbs into my body more (Xeljanz takes 1 to 2 months to start fully working). And I'm going to be taking a liver cleanse pill starting tomorrow also, tho I'm sure it's just pseudoscience but I figure I might as well give it a go

Please tell us about your progress.

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9
(@saffronaide)

Posted : 10/07/2020 11:46 am

Guys. This is important for me. Has anyone did GROW on HEIGHT after taking Accutane and developing PAS? 

Anyone:

Did grow on their facial features? Like jaw widening, cheekbones become prominent? (if you had those genes in your family?)

Shoulder bones?

Etc. 

etc.

I wonder if PAS could affect our facial and bodily development. Bones. Is there anyone who did grow on height even after PAS? (The issue might be tissue spesific rather than systematic for some people.)

 

Please PM me or quote me. Thanks. :)

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MemberMember
120
(@pido)

Posted : 10/08/2020 12:24 am

12 hours ago, SaffronAide said:

Guys. This is important for me. Has anyone did GROW on HEIGHT after taking Accutane and developing PAS? 

Anyone:

Did grow on their facial features? Like jaw widening, cheekbones become prominent? (if you had those genes in your family?)

Shoulder bones?

Etc. 

etc.

I wonder if PAS could affect our facial and bodily development. Bones. Is there anyone who did grow on height even after PAS? (The issue might be tissue spesific rather than systematic for some people.)

 

Please PM me or quote me. Thanks. :)

Yes, it can close your epiphyseal plates so it can stop long bones from growing. Long bones on red:

 250px-Long_bones_-_anterior_view_-_with_ &sp=1602134264T026adc438d7c2b8668a8641bc33d9614a6042b03a471a7406d1c399197be96ba" src="https://www.startpage.com/av/proxy-image?piurl= &sp=1602134264T026adc438d7c2b8668a8641bc33d9614a6042b03a471a7406d1c399197be96ba">

 

I was always a big kid then I took isotretinoin when I was 12 and ended up with an average height. I grew a couple centimeters after it, but I think it was only from my torso. I'm a male and I'd say my hands are small even for a  woman. 

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MemberMember
7
(@gunnersup)

Posted : 10/09/2020 6:22 pm

On 10/7/2020 at 11:46 AM, SaffronAide said:

Guys. This is important for me. Has anyone did GROW on HEIGHT after taking Accutane and developing PAS? 

Anyone:

Did grow on their facial features? Like jaw widening, cheekbones become prominent? (if you had those genes in your family?)

Shoulder bones?

Etc. 

etc.

I wonder if PAS could affect our facial and bodily development. Bones. Is there anyone who did grow on height even after PAS? (The issue might be tissue spesific rather than systematic for some people.)

 

Please PM me or quote me. Thanks. :)

I have grown an inch in the past 3 months being off accutane

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MemberMember
23
(@perene)

Posted : 10/09/2020 9:51 pm

The recent interest in treating acne with one of the retinoid drugs has been accompanied by a wide variety of ocular side effects involving the eyelids, cornea, lens, optic nerve and retina. In one group of patients being evaluated for possible efficacy of a retinoic acid analogue in treating psoriasis, several patients complained of difficulty driving at night due to decreased dark adaptation which we were able to document. Fortunately, most of the above side effects tend to disappear within months after the drug is discontinued.

However, we have recently seen two cases of dry eye syndrome associated with Accutane therapy that have persisted for more than two years. In addition, scattered reports have appeared regarding cataracts in young patients (teens to early 40's) which developed during, and/or after Accutane treatment. We have examined lens matter derived from two such patients who had extracapsular cataract extractions.

Their lens proteins showed an elevation in UV absorptivity (between 330-390 nm) compared with matched control material (derived from Eye Bank specimens) and HPLC analyses demonstrated an abnormal peak in their profiles which was similar to one present in control samples incubated with retinoic acid and was not present in lens protein samples derived from cataracts not associated with Accutance therapy.

These observations demonstrate that some of the Accutane induced ocular side affects are not reversible when the drug is stopped, and patients on such therapy should be carefully monitored.

https://pubmed.ncbi.nlm.nih.gov/1301795/

Recently I was talking to my father about his diabetes type II and he mentioned a supplement containing LUTEIN andZEAXANTHIN. I bought to him 20 / 2 mg for eachcapsule, which also has vitamin A (retinol) 1200 mcg,Zinc Monomethionine (7 mg), 45 mg from ascorbic acid (vitamin C), 10 mg ofvitamin E (tocopherol) and 900 mcg of copper. This one is a cheap supplement, the multivitamin I was giving him had other form of vitamin A and zinc and didn't have any lutein/zeaxanthin.

For diabetic retinopathy I heard benfotiamine,alpha lipoic acid, and of course adjusting all vitamin intakes (for vitamin C is always best to get from foods, like acerola cherries which are low-carb and have much more than oranges), magnesium, potassium (for this one we can't rely on supplements, too), fish oil, COq10 for statins, etc.

And keto diet (which I am already doing, and months later when the body is already adaptedto burn fat for fuel, changed to increase carb consumption (TARGETED KETO), from no more than 20 g net carbs daily to 60, 70 grams, so it's targeted Keto + intermitent fasting)... and if possible to get rid of meds, since the diet is being corrected now, they are doing more harm than good(and meds never do, metformin and similar deplete other essential vitamins and faillike Accutane in this sense, Big Pharma is always the devil...). In his case my fatherwill check with adietitian if there's a way to gradually do the necessary changes to make sure he will be able to do all I said before.

Now... one thing that caught my attention was that my father rarely used to eat these foods that contain them:

>>>>>>> Green leafy veggies and other green or yellow. Among these, prepared kale and spinach leading the list, and non-vegetarian sources include egg yolks. Examples of dishes containing LUTEIN and ZEAXANTHIN: sunset gazpacho, chicken sliced salad, after-workout tropical smoothie, broccoli rabe with tempeh and pine nuts.

This linkmentions the obvious fact that dietary supplements do not replace a healthy diet, that eating a well-balanced diet that consists of plenty of vegetables and fruits (I disagree on fruits, unless of course we are eating the ones with low-fructose, low Glycemic INDEXand LOADand low-carb as well) typically is the best method to obtain crucial eye nutrients. And fruit juice of course out of the question.

https://eyexan.com/lutein-and-zeaxanthin/

I consume every single day at least 300-400 grams of salad, probably more than Dr. Berg mentions in this video:

Even so I hardly think, just like it is with MAGNESIUM and vitamin D-3, that the diet alone can correct this deficiency.

In other words, even with an excelent diet + supplementation we are probably not getting enough LUTEIN and ZEAXANTHIN. If these, of course, are on the top of the list to help treating this condition aggravated by Accutane.

Perhaps that don't manifest as a problem when we are young, just like Coenzyme Q10 is probably useless for me, itdoesn't make a lot of differencefor a man that is 30 years old (like COLLAGEN won't help a 20 year person), but (and this is where I am going with this post...) the older we are and the more "internal" issues with nutrient absorption (sometimes we have to increase the dosage more than normal, treat another hidden problem that blocks it from being used by our bodies)or conditions caused by diseases or meds (in here we add Accutane), the more we probably need to rely on these pills.

Meaning the argument that it's best to get all we require from foods won't do us any good. That may not be the case for most of our regular food, since soils are more than ever depleted and fruits and vegetables have become less nutritious.

Crops grown decades ago were much richer in vitamins and minerals than the varieties most of us get today. Don't even start me on vitamin D, which is more complicated to get enough from the Sun:
https://www.sunsaferx.com/health-and-wellness/vitamin-d-and-sunlight-how-to-know-if-your-sun-exposure-is-producing-vitamin-d/

Not to mention the "fakes" that are out there (a good series about them is Rotten, from Netflix, aired in 2018).

So people that did the Accutane treatment and had their eyes affected probably need to correct vitamin A deficiency and start taking LUTEIN and ZEAXANTHIN. Among other measures:

 

Accutane can cause all sorts of damages to the eyes:

https://www.dryeyesclinic.co.uk/effects-of-roaccutane-on-eyes/

I eat BEEF LIVER twice a week and in each time I get all this:

The nutritional value of this food alone is the best compared to all others for vitamin A absorption:
https://www.enviromedica.com/learn/beef-liver-natures-perfect-food/

3.5 ounces (100 grams) of sweet potatoes also provide the recommended daily amount of this vitamin.

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MemberMember
1
(@ronnie99)

Posted : 10/10/2020 4:14 am

 

Hi Guys,

Has anyone heard of Dr Mark Gordon, he treats traumatic brain injury and now has a big interest in the post finasteride syndrome area. He says that PFS is a chemical traumatic brain injury andHe takes a different approach in testing certain hromones neurosteroids bio markers etc. he isin the USA.

Unfortunately I cannot become a patient as I live in Australia, but wondering has anybody body seen him as a patient orhave heard of him ?

Ronnie

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MemberMember
1
(@ronnie99)

Posted : 10/10/2020 4:48 am

 

Has anybody thouroughly tested there liver status with testing specific enzymes and biomarkers, as I believe thereis an underlying liver damage that is hard to detect with a normal liver function test ?

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MemberMember
1804
(@truejustice)

Posted : 10/10/2020 10:06 pm

17 hours ago, Ronnie99 said:

 

Has anybody thouroughly tested there liver status with testing specific enzymes and biomarkers, as I believe thereis an underlying liver damage that is hard to detect with a normal liver function test ?

Please be more specific!

whats the test called?,can you ask via your GP?

Other than general liver function test and an ultrasound to check on fatty liver,I dont know of any other test?

There is a liver biopsy but Im not going down that path, not sure if anyones done that...

17 hours ago, Ronnie99 said:

 

Hi Guys,

Has anyone heard of Dr Mark Gordon, he treats traumatic brain injury and now has a big interest in the post finasteride syndrome area. He says that PFS is a chemical traumatic brain injury andHe takes a different approach in testing certain hromones neurosteroids bio markers etc. he isin the USA.

Unfortunately I cannot become a patient as I live in Australia, but wondering has anybody body seen him as a patient orhave heard of him ?

Ronnie

There are practitioners in Australia who would practice and treat TBI

My kinesiologist has worked on my brain in a specific way, draining lymphatic first and clearing metal toxicity, after that they can treat any damage

Ive mentioned this before but no one ever goes and seeks help that I know of on here, most people just advocate the latest supplement which youd have to fluke to get a result

I wish there were more going out and seeking help and reporting back. Im thinking everyones just given up and disappeared into the wilderness- completely understandable but none the less frustrating at the same time

I dunno, maybe people dont have enough money to go and seek help.....

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MemberMember
11
(@aforsberg)

Posted : 10/11/2020 12:01 am

You know what helps cure accutanes changes to rhe body? Nothing

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MemberMember
57
(@doctorcolumbus)

Posted : 10/11/2020 1:39 am

Allright guys,

 

Just wanted to give you an quick update because i got triggered from the Traumatic Brain Injury post.

i am currently trailing microdoses 1p-lsd and doing HIIT training. So far so good, i wont say it is a miracle and my goal is to microdose as long as my accutane course was which was 6 months.

What i really notice is that after 30 minutes my body and muscles relaxes, i can breathe normally and exercising is really different with breathing. It is like i can use my lungs again. I think this is the same effect as anti depressants have.

also i loose a lot of weight, which is good because i was too fat. My appetite seems to be normalized while on the microdose.

i will report back in a week or so.

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7
(@gunnersup)

Posted : 10/11/2020 4:29 am

On 10/7/2020 at 6:16 AM, isojim said:

Please tell us about your progress.

1 month 11 days on the medicaiton, currently dosing 15mg a day. Not much results yet, but this is to be expected. My scalp still itches every once in awhile and still lose alot of hair a day. I believe the itching/shedding should stop within the next 2 months. I'll keep this forum updated

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isojim, isojim and isojim reacted
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1
(@ronnie99)

Posted : 10/11/2020 5:29 am

7 hours ago, TrueJustice said:

Please be more specific!

whats the test called?,can you ask via your GP?

Other than general liver function test and an ultrasound to check on fatty liver,I dont know of any other test?

There is a liver biopsy but Im not going down that path, not sure if anyones done that...

There are practitioners in Australia who would practice and treat TBI

My kinesiologist has worked on my brain in a specific way, draining lymphatic first and clearing metal toxicity, after that they can treat any damage

Ive mentioned this before but no one ever goes and seeks help that I know of on here, most people just advocate the latest supplement which youd have to fluke to get a result

I wish there were more going out and seeking help and reporting back. Im thinking everyones just given up and disappeared into the wilderness- completely understandable but none the less frustrating at the same time

I dunno, maybe people dont have enough money to go and seek help.....

Regarding the liver, there is Bilirubin levels, another I beleive is Arginine Levels and liver enzyme status.

 

Truejustice your optimism is refreshing and contribution you do here is valuable.

One point I want to mention of how I was cured for 6 months and slowly regressed was using Mifepristone 700mg for 7 days and after the last dose two weeks later I felt normal for 6 months like before using accutane Accutane. This has been the closest I have gotten and the feeling was somewhat overwhelming. I got this idea to do this from the following study, link is below. Whats your thoughts ?

https://pubmed.ncbi.nlm.nih.gov/24346134/

 

 

 

 

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MemberMember
57
(@doctorcolumbus)

Posted : 10/11/2020 6:56 am

1 hour ago, Ronnie99 said:

Regarding the liver, there is Bilirubin levels, another I beleive is Arginine Levels and liver enzyme status.

 

Truejustice your optimism is refreshing and contribution you do here is valuable.

One point I want to mention of how I was cured for 6 months and slowly regressed was using Mifepristone 700mg for 7 days and after the last dose two weeks later I felt normal for 6 months like before using accutane Accutane. This has been the closest I have gotten and the feeling was somewhat overwhelming. I got this idea to do this from the following study, link is below. Whats your thoughts ?

https://pubmed.ncbi.nlm.nih.gov/24346134/

 

 

 

 

Why you not use it again?

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MemberMember
1
(@ronnie99)

Posted : 10/11/2020 7:20 am

16 minutes ago, Doctorcolumbus said:

Why you not use it again?

What happen was this, after feeling 90% better on the Mifepristone when the effects started to decline after about 5-6 monthsI tried a peptide called BPC 157 for my gut. Now im not sure but this product also affects Serotonin and dopamine levels and when I finished the 3 week course of the BPCI felt a sort of depression, I never felt depression before as a symtpom from Accutane but I dont know if BPC 157 gave me it.

I tried a second time with Mifepristone about 4-5 weeks ago. 3things could havehappened, one it did not work this time either the body had a defence this time like a antibody for the Mifepristone, 2 I got it from a different source as my previous source did not have any in stock and it could not be real Mifepristone or high quality/purity, or 3 it is working but this new sense of depression ismasking the benefits from the BPC 157 causing me this sense of depression. Its one of those 3.

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MemberMember
2
(@isojim)

Posted : 10/14/2020 5:33 am

On 10/11/2020 at 10:09 AM, Doctorcolumbus said:

Allright guys,

 

Just wanted to give you an quick update because i got triggered from the Traumatic Brain Injury post.

i am currently trailing microdoses 1p-lsd and doing HIIT training. So far so good, i wont say it is a miracle and my goal is to microdose as long as my accutane course was which was 6 months.

What i really notice is that after 30 minutes my body and muscles relaxes, i can breathe normally and exercising is really different with breathing. It is like i can use my lungs again. I think this is the same effect as anti depressants have.

also i loose a lot of weight, which is good because i was too fat. My appetite seems to be normalized while on the microdose.

i will report back in a week or so.

Drugs that mimic serotonin could decrease libido. I tested LSD, mushroom and weed. The only thing that cured me temporary was weed.

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3
(@quinc)

Posted : 10/14/2020 9:21 am

Has there been anything effective for hair loss in this thread? I also have problems breathing laying down and stomach problems. Im not sure if its all related to accutane

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7
(@gunnersup)

Posted : 10/14/2020 5:35 pm

8 hours ago, Quinc said:

Has there been anything effective for hair loss in this thread? I also have problems breathing laying down and stomach problems. Im not sure if its all related to accutane

Not yet, but I'm experimenting with an immuno suppressant and should have results by next month if it works

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(@ronnie99)

Posted : 10/15/2020 5:51 am

Has anybody you guys know had Accutane problems and then after decided to try say 20-30 mg of Accutane and see what reaction may have?

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MemberMember
3
(@quinc)

Posted : 10/15/2020 6:43 am

51 minutes ago, Ronnie99 said:

Has anybody you guys know had Accutane problems and then after decided to try say 20-30 mg of Accutane and see what reaction may have?

I wouldnt recommend it tbh, theres probably alternative treatments without the risk for awful side effects.

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1
(@ronnie99)

Posted : 10/15/2020 7:22 am

39 minutes ago, Quinc said:

I wouldnt recommend it tbh, theres probably alternative treatments without the risk for awful side effects.

what are the alternative treatments ?

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3
(@quinc)

Posted : 10/15/2020 1:34 pm

6 hours ago, Ronnie99 said:

what are the alternative treatments ?

In the shower, put some hot water on your face, get the pores open. Then use salicylic acid on them. Leave for a min or two and then wash off. Right out of the shower, moisturize your face. Also limit sugar on days when you have outbreaks

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1804
(@truejustice)

Posted : 10/15/2020 4:47 pm

I could be wrong but I dont think hes talking about fixing acne issues with going back on tane, hes talking moreabout correctingall the other negative side effects and rebooting the body again to a pre Accutane state

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1
(@ronnie99)

Posted : 10/15/2020 11:18 pm

6 hours ago, TrueJustice said:

I could be wrong but I dont think hes talking about fixing acne issues with going back on tane, hes talking moreabout correctingall the other negative side effects and rebooting the body again to a pre Accutane state

yes thats what I mean, even see what a small dosage does 10-30mg. The closest I ever got to recovery was taking Mifepristone 700mg for 7 days, then for the next 6 months I felt pre accutane, normal, after 5-6 months I felt the effects wore off. Its like it reset the HPA axis but there is something causing the the HPA axis to dysfunction and after those 6 months it seemed the HPA axis had some dysfunction again.

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(@ronnie99)

Posted : 10/16/2020 8:01 am

Has this been discussed before, link is below ?

 

https://www.sciencedaily.com/releases/2016/12/161207124055.htm

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