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On 10/10/2020 at 2:22 AM, Gunnersup said:I have grown an inch in the past 3 months being off accutane
But did you also experience PAS? The problem is did you suffer from low T symptoms but you still did grow? Btw, you can't grow an inch in 3 months, it is just not possible. Do the proper calculations again please. Thanks.
On 10/8/2020 at 8:24 AM, Pido said:Yes, it can close your epiphyseal plates so it can stop long bones from growing. Long bones on red:
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I was always a big kid then I took isotretinoin when I was 12 and ended up with an average height. I grew a couple centimeters after it, but I think it was only from my torso. I'm a male and I'd say my hands are small even for a woman.
Pido, hey i remember you. The question is, did your face also stopped masculinizing after PAS?
Did your facial features and your shoulder bones etc. continue to develop after PAS?
(I remember your height didn't grow. When did you take Accutane again?)
6 hours ago, SaffronAide said:But did you also experience PAS? The problem is did you suffer from low T symptoms but you still did grow? Btw, you can't grow an inch in 3 months, it is just not possible. Do the proper calculations again please. Thanks.
I did grow an inch in 3 months, possibly more even. I'm not sure why you question that. I was on 40mg for 4 months, and grew right after. I had a very later puberty. You can see in my growth chart that I grew in height very late, and this continues to today (I just turned 19)
16 hours ago, SaffronAide said:But did you also experience PAS? The problem is did you suffer from low T symptoms but you still did grow? Btw, you can't grow an inch in 3 months, it is just not possible. Do the proper calculations again please. Thanks.
Pido, hey i remember you. The question is, did your face also stopped masculinizing after PAS?
Did your facial features and your shoulder bones etc. continue to develop after PAS?
(I remember your height didn't grow. When did you take Accutane again?)
My jaw and torso did grow after.Theyaren't long bones.Although my jawline atleast partially looks more masculine now because my face is less chubby.I'd say I suffered from low T symptoms. I took Roaccutane in 2003.
22 hours ago, Gunnersup said:I did grow an inch in 3 months, possibly more even. I'm not sure why you question that. I was on 40mg for 4 months, and grew right after. I had a very later puberty. You can see in my growth chart that I grew in height very late, and this continues to today (I just turned 19)
Im asking again, did you have PAS or not? Did you suffer from permanent side effects due to Accutane? Low T like symptoms? Sexual issues etc? So you used Accutane and observed your growth and you did grow after accutane? Thanks for your contribution.
Hello. I'm new here. Hope anyone can help me. My adverse effects are driving me insane, I'm feeling kind suicidal.
I've taken accutane 2 times, the first time for 4 months and stopped because of nose bleeding several times a day. The second time for 5 months (should be 7 to complete) and stopped due to extreme dry eyes. Was OK for the following months, except for dry eyes but I could live with it.
Them a few months later, pain started on my left knee. So for 1 year I had this pain in my left knee and dry eyes. After one year, the pain went to the right knee too and my right hip (groin area, seems to be related to a calcified tendom). But now, I've gained a new pain source, my back! In my neck area! Also hear a grinding sound when I turn my head. I KNOW FOR A FACT that this is all due to accutane. Before it, I've never had any joint pain, would run 3 miles without stopping. Now I can't even walk long distances, my knees are always "burning", although this has gotten a little bit better with time. But now this back neck pain is killing me. A MRI of bothknees stated that I had developed Chondromalacia patella (much worse in the left knee). X ray of the hip area is normal, so I'm not sure what's causing the pain there (as i said i think its calcification of a tendom). Don't have a x ray of my neck are, will reqyest my doctor. Did a MRI of my lower and mid back, all normal and no pain there .My eyes, seems to be dryer when I'm sleeping. Eye drops are of little relief.No intestinal problems, although I had chronic diarrhea a few months after taking the drug, that lasted I think 2 months.
Also my fingertips are always peeling the skin. I know that this is also due to accutane. I am taking MSM, colagen, Vit K2, saffron, but nothing seems to help. I'm sure some people might have experienced similar simptons and maybe you guys could help with some supplement that I should try?
TLDR version: 3 years after acctuane, joint pain, back pain, knee pain, can't walk much. Dry eyes still, worse at night. Desperate for help.
(sorry for possible english errors)
On 10/16/2020 at 7:48 AM, Ronnie99 said:yes thats what I mean, even see what a small dosage does 10-30mg. The closest I ever got to recovery was taking Mifepristone 700mg for 7 days, then for the next 6 months I felt pre accutane, normal, after 5-6 months I felt the effects wore off. Its like it reset the HPA axis but there is something causing the the HPA axis to dysfunction and after those 6 months it seemed the HPA axis had some dysfunction again.
Some patients experienced such thing with 5-10 days finasteride.
This idea was in my mind.but I used accutane about half of normal dose (20mg) for my weight for16 months (and sometimes on/off)and there wasnt any improvement.
You are a man and used mifepristole?
Mifepristole cured both sexual dysfunction and brain fog?
On 10/18/2020 at 4:40 PM, SaffronAide said:But did you also experience PAS? The problem is did you suffer from low T symptoms but you still did grow? Btw, you can't grow an inch in 3 months, it is just not possible. Do the proper calculations again please. Thanks.
Pido, hey i remember you. The question is, did your face also stopped masculinizing after PAS?
Did your facial features and your shoulder bones etc. continue to develop after PAS?
(I remember your height didn't grow. When did you take Accutane again?)
I have PAS but during accutanemy facual features developedand i should notice that my jawline narrawed (which was good for me)
Has any one tried doing extreme water fasting? I went 6.5 days without eating and experienced a remarkable improvement in my symptoms. I did this unsupervised, I am going to try a 15 day supervised fast to see if this improves things.My sexual side effects improved dramatically, my energy improved, and I am no longer experiencing joint pain. I don't know if it is the universal affect of water fasting or if there is some sort of repair that happens during an extreme water fast. Autophagy is supposed to start at 17 hours and increase to it's fastest rates at 72 hours.
On 10/20/2020 at 7:34 PM, ArthurAndrade said:Hello. I'm new here. Hope anyone can help me. My adverse effects are driving me insane, I'm feeling kind suicidal.
I've taken accutane 2 times, the first time for 4 months and stopped because of nose bleeding several times a day. The second time for 5 months (should be 7 to complete) and stopped due to extreme dry eyes. Was OK for the following months, except for dry eyes but I could live with it.
Them a few months later, pain started on my left knee. So for 1 year I had this pain in my left knee and dry eyes. After one year, the pain went to the right knee too and my right hip (groin area, seems to be related to a calcified tendom). But now, I've gained a new pain source, my back! In my neck area! Also hear a grinding sound when I turn my head. I KNOW FOR A FACT that this is all due to accutane. Before it, I've never had any joint pain, would run 3 miles without stopping. Now I can't even walk long distances, my knees are always "burning", although this has gotten a little bit better with time. But now this back neck pain is killing me. A MRI of bothknees stated that I had developed Chondromalacia patella (much worse in the left knee). X ray of the hip area is normal, so I'm not sure what's causing the pain there (as i said i think its calcification of a tendom). Don't have a x ray of my neck are, will reqyest my doctor. Did a MRI of my lower and mid back, all normal and no pain there .My eyes, seems to be dryer when I'm sleeping. Eye drops are of little relief.No intestinal problems, although I had chronic diarrhea a few months after taking the drug, that lasted I think 2 months.
Also my fingertips are always peeling the skin. I know that this is also due to accutane. I am taking MSM, colagen, Vit K2, saffron, but nothing seems to help. I'm sure some people might have experienced similar simptons and maybe you guys could help with some supplement that I should try?
TLDR version: 3 years after acctuane, joint pain, back pain, knee pain, can't walk much. Dry eyes still, worse at night. Desperate for help.
(sorry for possible english errors)
Try Mk-677+ Vitamin D.
39 minutes ago, Ronnie99 said:How long have you had these symptoms?
Me? about 2 years. A little more than 2. But now it's getting to the point that I feel if things continue this way, I'm going to be dead in about 3 years. There won't be any joint left functional in my body.
5 hours ago, ArthurAndrade said:Me? about 2 years. A little more than 2. But now it's getting to the point that I feel if things continue this way, I'm going to be dead in about 3 years. There won't be any joint left functional in my body.
Have you considered you have arthritis? Just a thought really, but accutane can trigger autoimmune issues
19 hours ago, ArthurAndrade said:Me? about 2 years. A little more than 2. But now it's getting to the point that I feel if things continue this way, I'm going to be dead in about 3 years. There won't be any joint left functional in my body.
how do you feel when you get sunlight afterwards, do you notice a improvement ?
11 hours ago, Gunnersup said:Just got diagnosed with Lichen Planopilaris today. Kinda depressing but atleast I have a supportive dermatologist ready to prescribe me meds
if I were you I would get a second opinion as sometimes doctors can misdiagnose and a second opinion would confirm or state otherwise.
9 hours ago, Ronnie99 said:if I were you I would get a second opinion as sometimes doctors can misdiagnose and a second opinion would confirm or state otherwise.
No, I've figured I had this for a few months now. She knew instantly what it was, I didn't even mention it. The number one reason she knew is due to how 20% of my hairs are super miniturizized and have a condition called "Pili Torti", in which the hair shaft twists irregularaly in a deformed like manner, which is only seen in Lichen Planopilaris. Not to mention my scalp acne and zits
Recently I started feeling an intense pain in my left shoulder. I had to get an injection for it to go away and days later its still there in less intensity, and 24/7. I cant move the arm or do things like changing a t-shirt without asking for help.
https://www.verywellhealth.com/shoulder-pain-2548793
After taking several blood tests the only abnormal results were, so far:
Aspartatetransaminase (AST), alanine transaminase (ALT)
Lab range for the 1st between 13 and 39 (I measured47 this time - previous tests 26 and 23), and the latter 86 (lab range between 7 and 52, previous tests showed 28 and 20).
AndCreactive protein at 6.9 when it should be below 5 ( previous result 1.1, a year ago).
Plus eosinophil count.I measured9% and 640 (lab range: 1 to5% and 40 to 500).
Vitamin D levels at 50 because I am taking 4000 IU with K-2 (Mk7, 100 mcg) daily since April. Calcium is within the lab range, so no hypercalcemia. I also take a multivitamin, coq10, ZMA, fish oil... and follow a keto diet.
The only downside to my lifestyle is that I have been spending most days at home and in a chair using a PC, ever since March when I stopped going to a gym,plus recently I started sleeping late in the evening, and waking late, and also adding some carbs (and unhealthy carbs) like pizza... some people say I might have bursitis since this is my only symptom, but I find hard to believe something so debilitating could happen all of sudden under all these conditions. Ill do an ultrasound OCT 30.
I did the accutanetreatment many years ago, I believe the dosage was 20 mg, in 2011. And ever since then I never noticed anything wrong in terms of bones/muscles. However we all know this drug can cause a myriad of issues, some reported to last forever. Still, I believe this has to be some infection, at first I thought about COVID...
What do you think? What were your experiences with these sorry situations?
If this was self inflicted (my fault)then in theory it should resolve in time, and when diet/supplementation (I am adding ashwagandha, boron and collagen type II with liposomal vitamin C, plus turmeric and black pepper capsulesto see if it makes a difference) are corrected... plus I was about to try intermittent fasting.
its just that in a million years I would never have expected this to happen. Really, you feel agonizing pain 24/7. Its so bad that you have to get out of bed and sleep less because just lying there hurts even more.
10 hours ago, Perene said:Recently I started feeling an intense pain in my left shoulder. I had to get an injection for it to go away and days later its still there in less intensity, and 24/7. I cant move the arm or do things like changing a t-shirt without asking for help.
https://www.verywellhealth.com/shoulder-pain-2548793
After taking several blood tests the only abnormal results were, so far:
Aspartatetransaminase (AST), alanine transaminase (ALT)
Lab range for the 1st between 13 and 39 (I measured47 this time - previous tests 26 and 23), and the latter 86 (lab range between 7 and 52, previous tests showed 28 and 20).AndCreactive protein at 6.9 when it should be below 5 ( previous result 1.1, a year ago).
Plus eosinophil count.I measured9% and 640 (lab range: 1 to5% and 40 to 500).
Vitamin D levels at 50 because I am taking 4000 IU with K-2 (Mk7, 100 mcg) daily since April. Calcium is within the lab range, so no hypercalcemia. I also take a multivitamin, coq10, ZMA, fish oil... and follow a keto diet.
The only downside to my lifestyle is that I have been spending most days at home and in a chair using a PC, ever since March when I stopped going to a gym,plus recently I started sleeping late in the evening, and waking late, and also adding some carbs (and unhealthy carbs) like pizza... some people say I might have bursitis since this is my only symptom, but I find hard to believe something so debilitating could happen all of sudden under all these conditions. Ill do an ultrasound OCT 30.
I did the accutanetreatment many years ago, I believe the dosage was 20 mg, in 2011. And ever since then I never noticed anything wrong in terms of bones/muscles. However we all know this drug can cause a myriad of issues, some reported to last forever. Still, I believe this has to be some infection, at first I thought about COVID...
What do you think? What were your experiences with these sorry situations?
If this was self inflicted (my fault)then in theory it should resolve in time, and when diet/supplementation (I am adding ashwagandha, boron and collagen type II with liposomal vitamin C, plus turmeric and black pepper capsulesto see if it makes a difference) are corrected... plus I was about to try intermittent fasting.
its just that in a million years I would never have expected this to happen. Really, you feel agonizing pain 24/7. Its so bad that you have to get out of bed and sleep less because just lying there hurts even more.
My father took accutane 20+ years ago and comes across pain like this frequently. He actually had the shoulder pain just as you described a few weeks ago. He said steroid Injections treated it
6 hours ago, Gunnersup said:My father took accutane 20+ years ago and comes across pain like this frequently. He actually had the shoulder pain just as you described a few weeks ago. He said steroid Injections treated it
I did more blood tests today... This one:
https://www.mayoclinic.org/tests-procedures/sed-rate/about/pac-20384797
https://en.wikipedia.org/wiki/Erythrocyte_sedimentation_rate
Measured 65mm (lab range: no more than 15mm up to 50 years old). Howeverrheumatoid factor was5,0 UI/mL (lab range: less than 20).Still waiting for Anti-cyclic citrullinated peptide (anti-CCP) antibodies. Creatine kinase low, 42 (lab range 24 - 195).Alkaline phosphatase also OK. So far I am only seeing in the results inflammation.So this is it? All of sudden, for the first time in your life, you get this debilitating pain that lasts for several days? And if by steroid injection you mean the same thing I got, then I must say only the pain is reduced, the problem is stil there (and some say there are bad side effects with repeated use)and over time the pain comes back somehow (the effects don't last long and/or all the time).
The worst moment of the day is when I go to sleep, in there the arm bothers me no matter what. I hope with the changes I am implementing this can be resolved shortly, and the ultrasound helps me. All this time I thought this was COVID-19.
If I catch COVID now I'll certainly die, because some people recover from it, now this bursitis, arthritis or whatever it is, it's dreadful, no indication this would have happened, ever. No doubt I'll take months to recover from this.
On 10/26/2020 at 10:26 PM, Ronnie99 said:Im going to see a neurologist in November.
Interesting today with kinesiologist. Asked him if its possible I have hydrocephalus?
Not a bad question in my book given the head tension many of us suffer post tane. He thinks not but actually found something interesting today in how Im processing Vit B2. Long story short he thinks the brain fog and tension is more lactic acid in the head,something Id never considered before
We did some body adjustment in the mouth and jaw and hes very interested to see how I go with this over the next 4 weeks till next appointment
The last thing Id want is hydrocephalus- not easy to correct, in fact very invasive with drilling into the scull basically to relieve excess spinal fluid, hes hoping its just lactic acid at play
9 hours ago, TrueJustice said:Interesting today with kinesiologist. Asked him if its possible I have hydrocephalus?
Not a bad question in my book given the head tension many of us suffer post tane. He thinks not but actually found something interesting today in how Im processing Vit B2. Long story short he thinks the brain fog and tension is more lactic acid in the head,something Id never considered before
We did some body adjustment in the mouth and jaw and hes very interested to see how I go with this over the next 4 weeks till next appointment
The last thing Id want is hydrocephalus- not easy to correct, in fact very invasive with drilling into the scull basically to relieve excess spinal fluid, hes hoping its just lactic acid at play
Yes I beleive the neurologist will provide tests for that to confirm. Hopefully it is lactic acid.
Hi everyone,
I've been reading quite a bit of this thread. Obviously I am here because Accutane damaged me. The thing is, my problems are localized entirely to my skin, while it seems most people here are having much tougher issues. I'm going to tell you what it's done to me. I have been off Accutane for 7 months and the problems seem to be increasing.
My lips are destroyed. They are constantly peeling, constantly dry, but more importantly there's massive inflammation and swelling around them at all times. I am essentially disfigured now. Sometimes even drinking water burns them. Sometimes they burn for seemingly no reason at all!
My skin is dry, but that's not all. Besides the wrinkles and prematurely aged look, I also now suddenly get dermatitis, psoriasis, and eczema. I wake up with random spots on me, and can get dermatitis even from my jacket.
I am always itchy, especially the neck and chest. My neck skin is definitely thin, and starting to sag. I am only 36.
My hair is bone dry of course as well.
When I wake up there's imprints from my sheets or pillow cases that last an hour. Even putting my hands in my pockets leaves marks on my hands for that long. If I scratch an itch the red mark lasts the same amount of time.
It's clear to me that my skin doesn't function anymore. It can't condition or protect itself. I look like I've aged a decade in 7 months.
Of course, I didn't even have acne and had a very terrible derm, but that's another story and not helpful to repeat.
My question to you guys is, has anybody been able to fix these relatively (not to me but in the scope of what could have happened) minor issues? Most of the chatter I see involves mental health and digestive issues.
I really don't want to go around the rest of my life with fucked up lips. My self confidence is already destroyed, and now I'm basically suicidal because I know nobody is ever going to admit what happened to me, let alone actually help me. I really don't want to watch myself deteriorate anymore.