Hey Ya'll, The UK Inquiry/Investigation has grown. Anyone from anywhere can post. They are begging to know people's stories. They are seriously considering better warnings and maybe dosing recommendations. It is a start. Tell your story to them at [email protected] another email is: [email protected] (Sorry for the all caps).

They need to know your story, that permanent issues are a real thing and need to be added to the patient information, maybe your recommendations for this drug. The need to know how incredibly widespread damage is from this drug. Granted it is in the UK, but that information can spread to other countries.

That being said, I am blue.So, today I stumbled around on [removed] as you all know those symptoms are also very much Accutane symptoms and they NEED people to fill out their surveys about your symptoms. So depressing, like widespread, global non-treatable issues.

I am glad that cutting out Vitamin A works for some, but it seems it is more a factor of not being as damaged at the start. I wonder how much time and not being as damaged helps. As I've written before I am sick with worry for my teenage son. I find he is bingeing junk food and Netflix with no focus. HOW is he going to be successful in college? He already has issues with Dyslexia and now this. I am having issues functioning myself.

Anyway. Keep up the good fight.

Thanks for the post Anna. Is the email info or infor? The lockdown hasn't helped your son any. It's made things worse for him. Ending the lockdown is a step in the right direction.

Supplements
Raw beef
Liver
Spleen

Other
Alpha gpc
Ahana sea kelp

Cytochrome p450 is iron based. Machine keeps indicating iron deficiency. Spleen is rich in iron. Keep fighting.

https://pubmed.ncbi.nlm.nih.gov/15163330/

12 hours ago, Aaron76 said:

Thanks for the post Anna. Is the email info or infor? The lockdown hasn't helped your son any. It's made things worse for him. Ending the lockdown is a step in the right direction.

Supplements
Raw beef
Liver
Spleen

Other
Alpha gpc
Ahana sea kelp

Cytochrome p450 is iron based. Machine keeps indicating iron deficiency. Spleen is rich in iron. Keep fighting.

https://pubmed.ncbi.nlm.nih.gov/15163330/

12 hours ago, Aaron76 said:

Thanks for the post Anna. Is the email info or infor? The lockdown hasn't helped your son any. It's made things worse for him. Ending the lockdown is a step in the right direction.

Supplements
Raw beef
Liver
Spleen

Other
Alpha gpc
Ahana sea kelp

Cytochrome p450 is iron based. Machine keeps indicating iron deficiency. Spleen is rich in iron. Keep fighting.

https://pubmed.ncbi.nlm.nih.gov/15163330/

You also take the brain supps? Hypothalamus?

I've tried beef brain several different times in my life and every time has been a disaster. Brain is rich in phosphorous. Anything high in phosphorous is always a problem. Lecithin is a problem for several reasons, including phosphorous. My body loves calcium, copper and iron and hates zinc, selenium and phosphorous.

I've tried pituitary and hypothalamus. Hypothalamus stimulates dopamine release. Pituitary does nothing.

I've tried spleen once before and at first it felt awesome, but later not so much. I believe the drug is trapped in the body. I believe the two most important enzymes for getting it out are lecithin retinol acyltransferase, and cytochrome p450, which is heme based. Heme rich beef spleen arrives on Saturday. The alpha gpc is to support Lrat activity. The whole beef liver is to replenish true retinol while the fake vitamin A is being released. The sea kelp is to replenish iodine, which is blocked by accutane/retinoic acid. Seems like every time I use beef liver my machine indicates iron deficiency. I believe the body needs the iron to support cyp450 to remove accutane.

Forget alpha gpc. Nutritiondata.com indicates beef kidneys are an excellent source of choline, so will go with it.

No matter where you are, the email to write your story to the MHRA Inquiry/Investigation is:

[email protected]

another email to one of the people in charge of this is: [email protected]

Tell them what happened to you, what you want done (the UK is looking only at more warnings and maybe dosing guidelines) They are also looking mainly at the Sexual Sides and the Suicides.

A video would be great. Copies of diagnosis and blood work as well.

This is the ONLY thing we have right now to help protect others.

I doubt it will ever go off the market, but knowledge needs to get OUT there.

i finded my problem. i have cronic prostatit. i need strong antibiotics long time. check your prostat imflammation. it is linked ed,low libido, shrinking and others.

Hey yedek, prostatitis is one of many issues stemming from retinoic acid toxicity. I'm afraid the antibiotics will do you more harm than good. If you choose to go thru with antibiotics then I'd consume yogurt on a daily basis. Will report my results next week.

my goal was to help you. your goal is to get me down. Fuck off.

My goal is not to get you down. My goal is to protect you from the harm that antibiotics can cause. Yes, there are bad bacteria in the prostate and urinary tract thanks to accutane. But once excess retinoic acid is eliminated the pelvic bacterial issue should resolve.

I believe undertow is correct about excess retinoic acid being stuck in the body. We're simply taking different approaches for removal. My approach is to try to upregulate Lrat and cytochrome p450 with whole food choline and iron supplementation. I will post an update next week.

2 hours ago, Yedek said:

my goal was to help you. your goal is to get me down. Fuck off.

Dont worry too much about trying to help anyone else right now. The best news you could bring back to forumis that you went on the antibiotics, it fixed everything and you feel great. Thats not being selfish, wed love to hear youre healed

After that come back here and share the good news!! If the antibiotics happen to upset gut health, so be it, go to work on fixing the gut after that

Theres more pain & suffering on this forum than anything Ive heard about adverse reactions to antibiotics- Id take mychances if I were you with this one, get yourself fixed!!

7 hours ago, TrueJustice said:

Dont worry too much about trying to help anyone else right now. The best news you could bring back to forumis that you went on the antibiotics, it fixed everything and you feel great. Thats not being selfish, wed love to hear youre healed

After that come back here and share the good news!! If the antibiotics happen to upset gut health, so be it, go to work on fixing the gut after that

Theres more pain & suffering on this forum than anything Ive heard about adverse reactions to antibiotics- Id take mychances if I were you with this one, get yourself fixed!!

thanks my friend. hopefully i will do it.

12 hours ago, Yedek said:

thanks my friend. hopefully i will do it.

I wouldnt do it.

2 hours ago, Chris16 said:

I wouldnt do it.

you know yourself

Low iodine, high alginate Seagate brand seaweed supplement arrives Wednesday. First dose Wednesday night.

On 4/28/2020 at 8:21 PM, Calcified said:

Alkaline phosphatase is now what???

Low (edited)

AND he told me yesterday his ED is now almost total. He had been trying Ginseng, the day after some really good tea he woke up 'almost normal' down below. So thinking it was the tea, he decided to take way too large amounts of it. Maybe it was the overheating of the ginseng..

The problem with ginseng is the phytoestrogen content. Same thing goes for garlic. Probably the best adaptogen for accutane victims is cordyceps, but that will not cure us. I believe the drug is trapped and needs to be removed. Will see if the seaweed can accomplish this later this week.

12 hours ago, Aaron76 said:

The problem with ginseng is the phytoestrogen content. Same thing goes for garlic. Probably the best adaptogen for accutane victims is cordyceps, but that will not cure us. I believe the drug is trapped and needs to be removed. Will see if the seaweed can accomplish this later this week. 

Aaron,

The heat of the ginseng and the heat damage of the accutane makes sense. Blows my mind that things that help others will not help us-because my Dad has taken this exact brand of Ginseng since the 80s and he is a randy old man  

BUT, I have also read that ashgwanda root is hot and looked up studies tonight that talked bout Ginseng being good for T. I do not want to cut out something that is good for him.

(FYI, it is super annoying that you can not search within a thread)

I am half crazy with grief. My son has hopes with the Drs, I of course do not, but I will let him hold out hope a bit longer. 

Your dad has no problem with ginsengs estrogen content because his livers never been damaged by accutane. A healthy liver metabolizes estrogen no problem. An accutane damaged liver has issues metabolizing ginsengs estrogen. Same with garlic estrogen. Ginseng and ashwaghanda tend to have a drying effect on the body, which is no good for accutane guys. We're already too dried out from accutane. Ashwaganda would be a herb for a guy who is cold and damp/oily all the time.

Accutane causes a cold/dry disposition. My body temp hovers around 95-97 farenheight. It's never 98.6. this is why sweating is extremely difficult for me to achieve.

Cordyceps is warming, moistening, and unlike most mushrooms, boosts dht, all good things for accutane guys. my machine also ranks cordyceps much higher than ginseng. Out of all the adaptogens I've ever used, cordyceps ranks as the best, anecdotally. But it still doesn't cure accutane syndrome.

My machine has always ranked laminaria higher than any other food or supplement. The problems always been finding a laminaria species that isn't loaded up with iodine, which is a problem for me. Excess retinoic acid impairs iodine metabolism. Seagate seaweed is low in iodine and high in alginic acid.

I believe a low iodine, high alginate seaweed can heal us. Alginate draws radioactive poison out of the body. Accutane is a highly polarized cis isomer of retinoic acid, which I believe makes it radioactive. It worked for Chernobyl victims and I believe it can work for us too. Accutane was like a nuclear explosion inside our bodies, literally as it attaches to nuclear receptors.

21 hours ago, Anna Nim said:

Low (edited)

AND he told me yesterday his ED is now almost total. He had been trying Ginseng, the day after some really good tea he woke up 'almost normal' down below. So thinking it was the tea, he decided to take way too large amounts of it. Maybe it was the overheating of the ginseng..

 

No worries, how's serum retinol?

7 hours ago, Calcified said:

No worries, how's serum retinol?

I don't know. That has not been tested. We have a Dr appointment on Thursday. I want them to test everything-which is ANNOYINGLY rare. Just fucking test all the things, not that they can help...

Mainstream doctors do more harm than good, and when they screw up a person's life, they have no clue how to fix the mess they've made. Instead of taking responsibility for the crime they've committed against their patients, they label the patient as depressed, and prescribe an antidepressant. Pathetic.

There are plenty of good Doctors of course

where I find the system to be pathetic is how easy it is for doctors to prescribe drugs, thats their job BUT too often they are pushing drugs they simply dont know enough about, drug companies cover up things that even doctor dont know about till its too late - the system has failed in that regard

Clearly we know much more about Accutane than the majority of doctors - it shouldnt be that way at all

Guys the whole side effects of Accutane are caused by gluten. Please all of you go on a super strict gluten free diet for at least 3 months and then report back. I'm sure your symptoms will be gone or greatly improved. I know it sounds like bullshit or whatever but please do it. It worked for me, it worked for other people and I know that gluten is the cause of all those problems like brain fog, fatigue, joint pain ecc but it's tough to convince people because I also thought it was bullshit until I tried. Nothing else will work believe me.

Once you're recovered please come back here and say you're recovered after going gluten free so you can convince more people of going on a strict gluten free diet. Don't disappear after you are cured.

And yes, if you tested for celiac and the test came back negative it means nothing. I also got tested and all my test came back negative but I still was sensitive to gluten and that was the cause of my problems. Accutane use switch something permanently in our genes that make us sensible to gluten and that inflammation cause autoimmunity and a whole host of other problems.

This is not even a theory, I'm certain of that so please try it and report back so we can all sue Roche. That's actually the whole reason why I'm sharing it. It took me years to discover it and I'm sharing it for free. Stop wasting money on supplements and tests. I'll just ask you to trust me...what does it cost you? After all you already tried everything and your symptoms make your life miserable. At the worst you'll stay the same but believe me you WILL improve. You just have to be extremely strict and stay on it for at least 3 months. To lift brain fog it may take a year but you should see noticeable improvements way before that and some symptoms will be cured in as little as 4 weeks.

Others symptoms improve much quicker. You also need to eat a healthy diet to speed up the process. Don't eat processed food and reduce your sugar intake. I don't suggest you any supplement because I don't want you to think I work for a supplement company or whatever. Some supplements can speed up the process but they are useless without going strictly gluten free. You can be cured without taking any supplements.

Ok, let me know even in PM your progress. I'm sure of your progress. I may not write here much again because I don't want to argue endlessly with people saying it can't be true and other things or even saying they tried and didn't work just to try to get some relevance in saying it doesn't work. The thing is: they didn't try for a long enough period of time or werent 100% strict with it. That's it. If I'm this sure is because I'm 100% convinced gluten causes this problem. And the thing is that even a small speck of gluten will trigger the inflammation from cytokines or autoimmunity in certain cases. That's why you need to be 100% strict and even wash things extremely thoroughlyif someone before you cooked/atethings with gluten in it. Believe me I know. Even a super small amount of gluten will make my symptoms come back and will take 24/48h to clear

Simplemutton, I agree with you that atleast one of the [removed] is an absolute idiot who blocks the free flow of information. Very dictatorial, blocking info that propecia guys might like to read about, but since he alone doesn't agree with it, it's blocked. Absolute bullshit.

But I must disagree with you that you are truly cured. Why? Because if you consume one tiny amount of gluten, your symptoms return. To me, that is far from being cured. To me, being able to consume gluten without any issues would be a significant part of being cured.

Gluten does nothing bad to me. I've gone gluten free before and it makes absolutely no difference for me at all. Great for you if it works for you, but it's not that simple for everyone.

For me, eggs, soy, and crucifers are all problem foods. Non gmo grains and organic dairy are harmless to me. GMO is a major problem for me. I can absolutely tell the difference between GMO snack chips and non GMO snack chips. GMO is a complete disaster for me.

Vitamin A deficiency causes autoimmune disease. We are vitamin A deficient because accutane is still there, standing in the way of real vitamin A.

I will be combining Seagate seaweed with whole beef liver Sunday evening or Monday, and will report results next week.