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2 hours ago, Roland1968 said:
have you experienced any improvements with dry skin and dry eyes after your water fasts. and if yes would you say that the improvements were permanent?
My PAS symptoms after two rounds are different than most, I have excessively oily and flaky skin, which is finally drying up and normalizing on vitamin A depletion.
One other user with extreme dry skin symptom PAS is attempting vitamin A depletion diet, and is starting to see sebum return, but still to early to judge completely.
On 2/12/2019 at 2:40 AM, TrueJustice said:As you work on gut, is it important to calm nervous system and also work on breaking downbiofilms in both mouth and gut? ( N Acetyl Cysteine )
And at the same time Ive beentold its advisable to take something like Baikal Skullcap - thishelps the body rid this bad bacteria once its broken down - or so Im told....
Anyone know anything about these processes and their importance before hitting asupplement or probiotic that may not be timed right in terms ofrebuilding the gut?
Thanks for the suggestion! My physician also recommended me to take betaine HCL to help improve acidity in the stomach to help digest nutrients (PNS symptoms). She assumes its low.
She recommended taking 2 500mg a day and increasing by 2 pills every other day until I receive heartburn symptoms.
FYI dont take HCLif you are consuming NSAIDs or without physician supervision.
I read lot of you talking about.. I have bought this suplement... I have had that suplement....
But..... who of you all are on a free gluten and sugar diet? ... because gluten is what is damaging you intestines and sugar is what feed the bad bacterias that colonice the damaged intestine. Who eat vegetables to feed the good microbiota? Who eat prebiotics?
Unfortunately we have to do a greateffort to feel healthier or cured. That is the only pill that will works "effort" to jump the worst obstacle "cravings" and improve your health by a heathy and natural diet.
19 minutes ago, Francisco..Blanquez said:I read lot of you talking about.. I have bought this suplement... I have had that suplement....
But..... who of you all are on a free gluten and sugar diet? ... because gluten is what is damaging you intestines and sugar is what feed the bad bacterias that colonice the damaged intestine. Who eat vegetables to feed the good microbiota? Who eat prebiotics?
Unfortunately we have to do a greateffort to feel healthier or cured. That is the only pill that will works "effort" to jump the worst obstacle "cravings" and improve your health by a heathy and natural diet.
Well, in my case prebiotics (inulin for example) andhigh fodmap vegetables & fruits (cauliflower, broccoli, apples etc.) make things much worse.
Kinesiologist also pointed out, that head tension many of us have particularly in the front lobes affects stomach acid production too
Eventually Id like to be off Pariot as it also stops my acid production. Problem is if I go 2 days without taking it I get chronic heartburn so itll be a slow process to get me off it.
let us know how HCL goes for you
1 hour ago, Francisco..Blanquez said:I read lot of you talking about.. I have bought this suplement... I have had that suplement....
But..... who of you all are on a free gluten and sugar diet? ... because gluten is what is damaging you intestines and sugar is what feed the bad bacterias that colonice the damaged intestine. Who eat vegetables to feed the good microbiota? Who eat prebiotics?
Unfortunately we have to do a greateffort to feel healthier or cured. That is the only pill that will works "effort" to jump the worst obstacle "cravings" and improve your health by a heathy and natural diet.
Good point andyes Im working on diet by cutting out dairy and gluten but would any amount of diet change improve say erectile dysfunction or extreme depression post Tane??
All good if your only problem is gut related, youll probably have success by either fasting or improving diet but if your HPA Axis is fucked for example, I doubt any amount of justfasting or diet change will bring on any sort ofbig change.
So yeah thats why I think some have improved, all they had were gut related problems but for those with more extreme issues Im sceptical of fasting as a cure all.
Good for them!! - wish all I had were some gut issues to deal with,unfortunately thats just the start of it for me and many others!!
9 hours ago, TrueJustice said:Good point andyes Im working on diet by cutting out dairy and gluten but would any amount of diet change improve say erectile dysfunction or extreme depression post Tane??
All good if your only problem is gut related, youll probably have success by either fasting or improving diet but if your HPA Axis is fucked for example, I doubt any amount of justfasting or diet change will bring on any sort ofbig change.
So yeah thats why I think some have improved, all they had were gut related problems but for those with more extreme issues Im sceptical of fasting as a cure all.
Good for them!! - wish all I had were some gut issues to deal with,unfortunately thats just the start of it for me and many others!!
So have you attempted to improve your diet. Attempted fasting or gluten diet?
got to start somewhere mate
Yes!! Off dairy which wasnt as hard as first thought.
Gluten - fucking hard Ill be honest, yes making changes when I canbut not completely off it. Itsjust in so many things....definitely challenging to be fully off it.
Sugar - similar to dairy, I dont have massive sugar cravings anymore. Try to only drink water although occasionally have some things likecordial which I know isnt good. Stuff like Coca Cola - lucky to have 2 cans a year, just dont need it and know its no good for either gut or teeth.
Fasting - having discussed with kinesiologist it isnt right for me and my issues which extend beyond gut into HPA dysfunction.
Having said that, fasting could be perfect for someone else who may not have the same issues I do, if you only have gut issues then it might be perfect!!
9 hours ago, TrueJustice said:Good point andyes Im working on diet by cutting out dairy and gluten but would any amount of diet change improve say erectile dysfunction or extreme depression post Tane??
All good if your only problem is gut related, youll probably have success by either fasting or improving diet but if your HPA Axis is fucked for example, I doubt any amount of justfasting or diet change will bring on any sort ofbig change.
So yeah thats why I think some have improved, all they had were gut related problems but for those with more extreme issues Im sceptical of fasting as a cure all.
Good for them!! - wish all I had were some gut issues to deal with,unfortunately thats just the start of it for me and many others!!
So have you attempted to improve your diet. Attempted fasting or gluten diet?
got to start somewhere mate
On 2/12/2019 at 10:52 PM, under_tow said:My PAS symptoms after two rounds are different than most, I have excessively oily and flaky skin, which is finally drying up and normalizing on vitamin A depletion.
One other user with extreme dry skin symptom PAS is attempting vitamin A depletion diet, and is starting to see sebum return, but still to early to judge completely.
Same! My skin is oilier and flakier post-Tane. How do you manage other than being on a vitamin A diet? I attributed my oily skin to never actually finishing the entire course (only did one month of Tane), so Im wondering if you actually finished the entire course?
On 2/10/2019 at 11:24 PM, whackutane said:how many people here follow a strict gluten free diet?
I follow a strict gluten free diet; Ive been on it for 6 months now. Ive become gluten intolerant after Tane, so it helped with not feeling fatiguedafter eating. Other than that, it did not help with my other symptoms at all.
On 2/12/2019 at 12:38 AM, VanceAstro said:I took 224 billion of VSL#3 and2 billion ofBifidobacterium infantis 35624 daily for around one month.
Today I decided to give another chance toBifidobacterium infantis 35624 and I've ordered another 90 caps (1 billion each).
ButI'm really eager to try some antifungals.
Ive tried antifungals for a short while (one week only); when I take a pill, it helps with my joint pain but I relapse the next day.Please update us on your results later on!
55 minutes ago, Mabbbs said:Same! My skin is oilier and flakier post-Tane. How do you manage other than being on a vitamin A diet? I attributed my oily skin to never actually finishing the entire course (only did one month of Tane), so Im wondering if you actually finished the entire course?
I follow a strict gluten free diet; Ive been on it for 6 months now. Ive become gluten intolerant after Tane, so it helped with not feeling fatiguedafter eating. Other than that, it did not help with my other symptoms at all.
Ive tried antifungals for a short while (one week only); when I take a pill, it helps with my joint pain but I relapse the next day.Please update us on your results later on!
You only did one month? what was your dosage?
Your sides are similar to mine but I took it for alot longer.
Well Im back after taking long break
doing worse than ever...
had few questions
1.what seems to be the main issues everyone can agree on
For me I complain of dry eyes really bad
dry green bloody nose (atrophic rhinitits it looks like)
dry scalp I quit washing hair just doesnt have oil
dry flaky skin no oil no shine dull dead
(but did get oil after a decade when I was in hospital
*didnt wash face for 3 days
*didnt sleep for 3 days
*wasnt eating anything leading up to it
all I can think on oil
also got raw red rosacea like skin
dark bags
and sleep issues
cold hands feet
excess urination
heart pounding just walking or pissing
facial flushing when anxious or lifting or heat or sex
ans of course mental issues
my questions tho are what are common issues
and if u guys really think about it
have all ur issues started since tane and because of it
not saying ppl arent suffering its been a decade I hate the drug
but looking back I always had bdd and ocd and anxiety and flushed if I was anxious presentation stuff
i never had insomnia and dryness and rosacea and eye bags tho
i see people saying joints click this happens to my cousin mom and sister none took the drug
so some shit is normal I feel like everyone causing more paranoia and fears
if we all look at our lives before drug and during and afyer
maybe we can see something
i got an eating disorder now cause ppl saying paleo Keto vegan histamine diet vitamin a gluten dairy
i cant heal my body no clue what to eat I got urticaria hives and more
cant treat my mental cause the dryness and erectile issue meds cause
im in bed 16 hours a day depressed and more
this vitamin a thing idk
my blood work is normal
do I have dryness yes
but I dont got headaches and commuting and cracks corner of my mouth so cant be toxicity
everyone mentioning 30 supplements I cant afford 4,000 a year on that
how do we even know its the right combo of supp if u take mad of them how will u kno what works and dont?
and Fish oil and vitamin d scares
like I need vitamin d I dont leave my house
is any of this actual facts or are we just overthinking so much
no question about it the drugs chemo and ruined our bodies
wether it messes up hormones, hypothalamus, autonomic nervous system or immune
but I dont think we need 30 supplements and to eat grass
I tried no gluten and dairy and no eggs
for year and a half and had same symptoms
maybe less hot face and dandruff but we also got rid of old heat in house
i was still slee deprived
still dry still had skin eye issues flushed when hot and cold hands feet
ive had so much time on my hands why dont ppl do what I did
i wrote down every symptom about 40 and I wrote down possible medical for each and what Im doing on my end
example
cold hands and feet
thyroid could be
i also tho sleep 16 hours stressed anxious shit sleep never exercise and barely eat I cant blame accutane for that did I notice it after? Yes but I also became housebound after and sat all day playing ps3 at the time
idk just feel like were overlooking and blaming accutane for everything that happens
not saying it didnt fuck us all up and I hate that drug and ppl made it
but its causing more panic and depression and phobias and money wasted
like what tests have u guys got done
whats ur diet like
what do u do daily
do u jerk off 30x a day
do u smoke weed drink do drugs take psych meds
what supplements
who do u hang with
stress?
all this has a role
No... for life
1-No gluten
Cereal containing gluten = wheat, barley, rye, *oat
Any procesed food laveled as gluten free.....contain gluten....by law they are alowed 20mg/kg.... No gluten mean NO gluten
2- No sugar
To be more precise.... Dont eat any sweet thing. No sugar, no fruit, no honey, ....no sweet thing. Maybe stevia leafes.
For me, it is the most dificult point
3- No sure about diary.
It may depend on each body. I eat pure milk and a kind of cheese I feel is good. Cheese can contain gluten, yogurt contain gluten and sugar.... so... maybe that is why people feel bad.
4- No procesed food
You cant be not sure what it really contain
5- No almost
No gluten, no sugar,.... doesnt mean almost no gluten, sugar,...
This way the bad bacteria die and intestines start to be repaired. It a take from 6month to 2 years depening on how "no almost" we are.
I haveno knowledge beyond this point. I'm fighting with the "no almost" point . But did well the last few month and got no inflammation levels in my last blood test.
Just going on exploring the path
19 hours ago, Mabbbs said:Same! My skin is oilier and flakier post-Tane. How do you manage other than being on a vitamin A diet? I attributed my oily skin to never actually finishing the entire course (only did one month of Tane), so Im wondering if you actually finished the entire course?
I follow a strict gluten free diet; Ive been on it for 6 months now. Ive become gluten intolerant after Tane, so it helped with not feeling fatiguedafter eating. Other than that, it did not help with my other symptoms at all.
Ive tried antifungals for a short while (one week only); when I take a pill, it helps with my joint pain but I relapse the next day.Please update us on your results later on!
I finished two rounds, that were years apart. The only thing that is progressively reducing the sebum production is the zero vitamin A diet, and this then helps with the flakiness/dandruff. It took about 3 months zero vitamin A to get 50% reduction in sebum production(seen via oil blotting paper). I am hoping by June that skin will have normalized. Also sunlight is a potent vitamin A antagonist, so that should help as well in the summer months here(June to Aug).
Being off Tane and doing zero vitamin A should clear up the gut issues, since it will deplete different all the different retins from storage(carotenes, retinol, retinyl, retinoic). If RetinA peels off facial skin, accutane peels you from the inside, they are both active retinoic acid.
1 hour ago, under_tow said:I finished two rounds, that were years apart. The only thing that is progressively reducing the sebum production is the zero vitamin A diet, and this then helps with the flakiness/dandruff. It took about 3 months zero vitamin A to get 50% reduction in sebum production(seen via oil blotting paper). I am hoping by June that skin will have normalized. Also sunlight is a potent vitamin A antagonist, so that should help as well in the summer months here(June to Aug).
Being off Tane and doing zero vitamin A should clear up the gut issues, since it will deplete different all the different retins from storage(carotenes, retinol, retinyl, retinoic). If RetinA peels off facial skin, accutane peels you from the inside, they are both active retinoic acid.
Do you have fat malabsorption issues or folliculitis? Two rounds is alot.
1 hour ago, Calcified said:Do you have fat malabsorption issues or folliculitis? Two rounds is alot.
Some longer water fasting and liver flushes have helped fat absorption immensely and no longer have any issues.
No folliculitis, but with the excessive sebum, was getting plugged pores, blackheads, whiteheads, etc, along with dandruff, very flaky facial skin, and blepharitis. These are finally starting to fade away. Acne was on upper arms/back/chest as well, all fading. I am actually shocked how much the skin can heal and normalize.
Edit: Should add that using HCl and bile acids for a few months, helped as well.
Been reading this thread. I took Roaccutane 5 times, 5 courses in the space of 8 years in different variations each time prescribed by dermatologists controlled with the blood tests. The last time was almost 7 years ago. Since then I have been trying to do smith with the scars with no success. Before I was in such a terrible state with my skin, I could not go out of the house even with two layers of foundation, painfull cysts persisted on the most visible parts of the face, chest and upper back. After the 1st course everything cleared. Came back to the face in about 8 months, never came back to the body and these days that parts look like I never hadacne there. For the face it came back every time after the course 2-8 months, so I decided that if 2-3 months course on a small dosage keeps it more or less under control so I was prepared to take for the rest of my life. Luckily the cysts stopped around 38. I still have problems but not even close that severe that I have to take roa again, it was like this for 7 years and I truly hope it stays that way. The aside effect I had: very dry eyes, nose, lips and rash on the hands. On the low dosage this symptoms were very mild. I had some problems with the joints on the higher dosage and I drank tons of water all the time like 3+liters a day.I got a heavy temporal hair loss during the 5th time. The blood tests every two months were always fine.Suicidal? I was Before roa, not during the courses and not after. After I stopped road I developed Folliculitis? on the head skin, it comes and goes and dermatologist offer to restart roa again because usual creams do not work. For me roa was my Saver and the only thing I wished I started it earlier, I would not have to deal with scars these days and for the rest of my life as I understand after the treatments. So I was lucky then many people whose aside effects were much severe. My roa story..
1 hour ago, under_tow said:Some longer water fasting and liver flushes have helped fat absorption immensely and no longer have any issues.
No folliculitis, but with the excessive sebum, was getting plugged pores, blackheads, whiteheads, etc, along with dandruff, very flaky facial skin, and blepharitis. These are finally starting to fade away. Acne was on upper arms/back/chest as well, all fading. I am actually shocked how much the skin can heal and normalize.
Edit: Should add that using HCl and bile acids for a few months, helped as well.
Hmm what bile acids do you take? Very interested.
The reason why I ask is there are two types of bile acids: primary and secondary. I wonder which type has helped you. I am guessing it is secondary, but I'm interested to hear.
On 2/15/2019 at 10:01 PM, Calcified said:You only did one month? what was your dosage?
Your sides are similar to mine but I took it for alot longer.
Yes i only did one month. Its crazy how only one month caused all these issues. Ireally think I mightve died if I did the full 4-6 months. I honestly cant remember the dosagethough. What about you?
Those on the anti Vit A diet, are you also concerned with avoiding Gluten & Sugar??
Sounds like there are two different schools of thought concerned with diet.
Im really interested in trying to switch back on sebum oil production - correct me if Im wrong but avoiding Gluten & Sugar isnt necessarily going to help this particular issue, thats not to say it doesnt have itsown benefits but its not necessarily what many of us looking for from a diet change correct?
6 hours ago, Sibel said:Been reading this thread. I took Roaccutane 5 times, 5 courses in the space of 8 years in different variations each time prescribed by dermatologists controlled with the blood tests. The last time was almost 7 years ago. Since then I have been trying to do smith with the scars with no success. Before I was in such a terrible state with my skin, I could not go out of the house even with two layers of foundation, painfull cysts persisted on the most visible parts of the face, chest and upper back. After the 1st course everything cleared. Came back to the face in about 8 months, never came back to the body and these days that parts look like I never hadacne there. For the face it came back every time after the course 2-8 months, so I decided that if 2-3 months course on a small dosage keeps it more or less under control so I was prepared to take for the rest of my life. Luckily the cysts stopped around 38. I still have problems but not even close that severe that I have to take roa again, it was like this for 7 years and I truly hope it stays that way. The aside effect I had: very dry eyes, nose, lips and rash on the hands. On the low dosage this symptoms were very mild. I had some problems with the joints on the higher dosage and I drank tons of water all the time like 3+liters a day.I got a heavy temporal hair loss during the 5th time. The blood tests every two months were always fine.Suicidal? I was Before roa, not during the courses and not after. After I stopped road I developed Folliculitis? on the head skin, it comes and goes and dermatologist offer to restart roa again because usual creams do not work. For me roa was my Saver and the only thing I wished I started it earlier, I would not have to deal with scars these days and for the rest of my life as I understand after the treatments. So I was lucky then many people whose aside effects were much severe. My roa story..
Thanks for sharing.
5 times..wow.. sounds like estrogens are protecting you from side effects.
4 hours ago, Mabbbs said:Yes i only did one month. Its crazy how only one month caused all these issues. Ireally think I mightve died if I did the full 4-6 months. I honestly cant remember the dosagethough. What about you?
Yeah it's tuff first month, I just kept taking it but less than a year, honestly It could just be a switch flicking in the body.
I keep telling them my body look like I took it for years.