First of all milk thistle is not artichoke, I take milk thistle only because I have not run out of it, what really helps is artichoke and peppermint.

Here comes the video I was talking about regarding the interconnectiin between the liver, gall bladder and the lymphatic system.

I am happy that so many of us are now on the same page regarding the root cause of our not so well being.

I read up upon UDCA and will definitly get my hands on it as fast as possible.

At 4-5 hours in I'm bouncing off the walls, same as last time. Whereas before I was lying on the couch dead all day. I think we've gotta look at energy and the blood stream. Can some kind of organ deal even work that fast??

It's almost impossible to get UDCA here, the only option for me is TUDCA at this moment in time, which kinda sucks. I think your right about the red dyes and stuff, i think the magnesium stearate and other ingredients is unnecessary and can cause problems with people that have stomach / intestinal problems. In relation to your bile flow you'll see it in your stools, they will become darker, fuller and the constipation will give way to healthy regular bowel movements, when the bile returns. Your diet's very low in fat though. The body releases bile to digest fat, if your not eating fat the body's not releasing bile. So maybe increase the healthy natural fats you consume slowly and see what happens to your stools. Your very in tune with your own body and i admire that, so you'll be able to gauge what works for you.

In relation to the TUDCA vs UDCA debate i think your right in that UDCA may be slightly better than TUDCA, but i don't think it's statistically significant. Bodybuilders take TUDCA or UDCA, both have been proven to work....TUDCA is just UDCA thats bound to taurine. Whats been your best experience with it, was it the UDCA with the yoghurt, or taking UDCA on it's own? what foods still cause problems for you?

Ok, did some research for you guys and found some brand names under which UDCA is sold:

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

The stuff does not only have a positive effect on the liver and gallbladder but is also restoring the mucosal lining of the digestive system...

On 8/8/2012 at 4:05 AM, *Connor said:

TheGateKeeper - You are welcome. My skype is [Removed]

Indigo - Thanks for the kind words. It is obvious to me from your post you have made great progress! That is wonderful. Your mindset appears much more positive.

I believe you should not eat any 'crisps and chocolates', or anything junk like that. It is very bad for you, which I'm sure you know. I had/have to consistently remind my family of the importance of the food we buy and eat. Now me and me dad buy 95% fresh produce, the other 5% being a bag of chips and sugary cereal (my dad eats it, not me).

Other than that all looks well.

You are making a documentary?

I added you mate when will you accept?

^ I accepted. Is that you in your picture? If you have a strong-ass upper back. Nice.

Ok, did some research for you guys and found some brand names under which UDCA is sold:

 

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

 

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

 

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

 

UDCA is a prescription drug your right, TUDCA is essentially the same thing and is marketed to bodybuilders to protect their livers whilst taking anabolic steroids. Products like Thermolife liver longer, Nutraplanet TUDCA, Antaeus labs Aegis all contain TUDCA. RUI products sell UDCA. I'm sure more will be on the market in time, it's very good at preventing cholestatic liver damage whilst taking liver toxic drugs. If dermatologists knew what they were doing they'd prescribe UDCA with accutane to protect the patients liver, but they don't.

Hi been following your thread some more. I had a question about Accutane. Is it the already converted form of vitamin A? In other words, the body converts it to tretinoin or w/e it is? Because if that's so I guess that explains the toxicity--forcing pre-converted forms of the vitamin itself into the body. So what is your take on vitamin A supplementing then? I decided to forgo Accutane, tried some vitamin A supplementation ( in safe amounts ) and my acne exploded, or rather it purged what was already just sitting there under the skin but wasn't budging. The odd thing is it cleared up the right side of my face completely, but not the left. It looks odd lol.

So would using higher doses of vitamin A possibly be safer because your body is converting it to it's liking rather than forcing pre-converted ( not to mention synthetic ) stuff into your body?

Hi been following your thread some more. I had a question about Accutane. Is it the already converted form of vitamin A? In other words, the body converts it to tretinoin or w/e it is? Because if that's so I guess that explains the toxicity--forcing pre-converted forms of the vitamin itself into the body. So what is your take on vitamin A supplementing then? I decided to forgo Accutane, tried some vitamin A supplementation ( in safe amounts ) and my acne exploded, or rather it purged what was already just sitting there under the skin but wasn't budging. The odd thing is it cleared up the right side of my face completely, but not the left. It looks odd lol.

 

So would using higher doses of vitamin A possibly be safer because your body is converting it to it's liking rather than forcing pre-converted ( not to mention synthetic ) stuff into your body?

 

Not really the topic we're wanting to discuss, but here's my five cents:

Your acne is not caused by a Vitamin A deficiency so I don't recommend doing anything that requires guess work.

Just avoid Accutane and other toxic stuff and implement a relatively healthy diet while focusing on what you do have (i.e. health, family, wealth).

Don't know anything about your skin, but I still get spots ever now and then and every time I shave it really irritates my skin. Probably because Accutane got rid of the natural oils that should prevent this.

Your skin will likely improve with time.

Ok, did some research for you guys and found some brand names under which UDCA is sold:

 

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

 

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

 

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

 

Nice so have we figured out how to get our hands on UDCA? I found one of them for 50 dollars online but idk if I trust some random online store and how do we know if it's synthetic or from bears?

I don't know if I can eat more fat with a higher dose of UDCA. I'm not eager to try it, since I'm healthy and there's no need. An error is quite painful.

I've always taken UDCA with yoghurt. My best experience is UDCA with yoghurt. As far as I know, I can't eat any new foods on UDCA, but I can be healthy with my simple diet. I have not tested this with UDCA, but I tested it with TUDCA.

I'm pretty sure UDCA is significantly stronger for me, but it's just a body hunch, no clean experiment.

I would not get animal source UDCA; it's way more expensive and extracted quite inhumanely. The synthetic version probably works better for being pure.

Yes Believe it reduces intestinal inflammation, but it works far too fast on me for that to be the primary mechanism. Bile salts in the bloodstream is my guess.

You will only find synthetic UDCA online; the natural stuff is super expensive and sold only in Asian countries I'd reckon.

I continue to have boundless energy and good sleep, and I can relax my super-strict regimine eating-time regimine without disastrous consequences. Still some tough dumps that will go away in a day or two, due to the time I spent off UDCA.

Hi been following your thread some more. I had a question about Accutane. Is it the already converted form of vitamin A? In other words, the body converts it to tretinoin or w/e it is? Because if that's so I guess that explains the toxicity--forcing pre-converted forms of the vitamin itself into the body. So what is your take on vitamin A supplementing then? I decided to forgo Accutane, tried some vitamin A supplementation ( in safe amounts ) and my acne exploded, or rather it purged what was already just sitting there under the skin but wasn't budging. The odd thing is it cleared up the right side of my face completely, but not the left. It looks odd lol.

 

So would using higher doses of vitamin A possibly be safer because your body is converting it to it's liking rather than forcing pre-converted ( not to mention synthetic ) stuff into your body?

 

Well done for still staying off Accutane! Vitamin A supplements are still not entirely natural as they are still preformed. Beta carotene (only found in plant sources) is the only natural form of Vitamin A, and the body converts just the right amount of Vitamin A it needs from beta carotene, so an overdose is not possible. The body automatically uses preformed Vitamin A in animal or supplement form and this is when overdosing can happen. About a year or two ago I read an article in a newspaper about the dangers of supplements - with Vitamin A being covered the most. I think if you want to continue with this, just be aware of the RDA limit for Vitamin A and not to exceed it (just take enough that has a positive effect on your acne) and if you get hypervitaminosis A symptoms, completely stop taking Vitamin A.

If I had a choice between Vitamin A supplementing and Accutane, it's a no brainer. Although personally I'd still go for the 100% raw food diet - I've noticed in the holistic forum of acne.org there's a thread where a lot of people are having huge success eliminating their acne without destroying their health in the process. From what I've read in the past, all symptoms of hypervitaminosis A usually (but maybe not always) go after discontinuing whatever caused it, which is usually from supplementing with Vitamin A. This is different from Accutane, which is an end chain of Vitamin A (retinoic acid) and is much, much worse then just a bad vitamin A overdose.

Hi been following your thread some more. I had a question about Accutane. Is it the already converted form of vitamin A? In other words, the body converts it to tretinoin or w/e it is? Because if that's so I guess that explains the toxicity--forcing pre-converted forms of the vitamin itself into the body. So what is your take on vitamin A supplementing then? I decided to forgo Accutane, tried some vitamin A supplementation ( in safe amounts ) and my acne exploded, or rather it purged what was already just sitting there under the skin but wasn't budging. The odd thing is it cleared up the right side of my face completely, but not the left. It looks odd lol.

 

So would using higher doses of vitamin A possibly be safer because your body is converting it to it's liking rather than forcing pre-converted ( not to mention synthetic ) stuff into your body?

 

Retinol, converts to retinol palmitate which converts to retinoic acid only in the cell. Retinol can be stored in the liver, whereas retinoic acid cannot be stored anywhere outside the cell. Accutane (13 cis retinoic acid) is hugely toxic to the body and i would STRONGLY advise you to stay away from accutane, retin A or any other synthetic retinoid.

You have to be careful supplementing any fat soluble vitamin in high amounts because fat soluble chemicals take much longer for the body to remove than water soluble chemicals. The retinol you buy in capsules or tablets is 100% synthetic anyway. Plus your acne is probably caused by either by gut problems or liver. If your acne gets worse during your menstrual cycle it's liver related.

If it's gut related raw milk kefir might help you, get raw milk (has to be raw, you can have a look on the internet if theres local farmers / sellers in your area) get some kefir grains online or on ebay, put the kefir grains in the raw milk and let them ferment for about 24 hours. Then drink. Great source of vit A, vit D, CLA, and jam packed with probiotics to heal the gut. Bone broths might help, just make sure your diet is 100% natural foods.

Maybe buy a liver tincture with milk thistle, artichoke, dandelion, gentian etc in it to help your bile flow if it's hormonal acne.

If your set on eating more retinol, buy some fermented cod liver oil and take 1/2 teaspoon a day, the ones with butter oil/ fermented cod liver oil will be best. Never exceed more than a teaspoon a day and don't take it for more than 6 months. That'll give you ample natural retinol and ample natural vitamin D, the vitamin D will actively protect you from developing toxicity from the vitamin A. Thats why all foods in nature that are high in vitamin A are also high in vitamin D. The butter oil will give you vitamin K2 which is great for the joints and cardiovascular health. That'll be alot better than any synthetic retinol pills and you'll get better results.

Just don't take accutane.

First of all milk thistle is not artichoke, I take milk thistle only because I have not run out of it, what really helps is artichoke and peppermint.

 

Here comes the video I was talking about regarding the interconnectiin between the liver, gall bladder and the lymphatic system.

 

 

 

I am happy that so many of us are now on the same page regarding the root cause of our not so well being.

 

I read up upon UDCA and will definitly get my hands on it as fast as possible.

 

First of all milk thistle is not artichoke, I take milk thistle only because I have not run out of it, what really helps is artichoke and peppermint.

 

Here comes the video I was talking about regarding the interconnectiin between the liver, gall bladder and the lymphatic system.

 

 

 

I am happy that so many of us are now on the same page regarding the root cause of our not so well being.

 

I read up upon UDCA and will definitly get my hands on it as fast as possible.

 

please read this : http://en.wikipedia.org/wiki/Bile_bear

 

Ok, did some research for you guys and found some brand names under which UDCA is sold:

 

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

 

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

 

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

 

 

 

Nice so have we figured out how to get our hands on UDCA? I found one of them for 50 dollars online but idk if I trust some random online store and how do we know if it's synthetic or from bears?

 

Ok, did some research for you guys and found some brand names under which UDCA is sold:

 

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

 

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

 

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

 

Ok, did some research for you guys and found some brand names under which UDCA is sold:

 

Ursodiol, Ursofalk,

Cholit-Ursan, Ursochol 150,

Urso 250/400 Heumann

 

Here in Europe it seems to be a prescription drug. Online pharmacies are carrying for example Ursofalk here in Germany.

 

You also have to differentiate between UDCA from animal source (bears) and synthetically manufactured UDCA. I would opt for animal source....

 

before buying, please read this : http://en.wikipedia.org/wiki/Bile_bear

I didn't know UDCA was from bear bile, no wonder it is so expensive. That business is fucked. Though I don't have room to talk since I eat meat from slaughterhouses.

I found this email today in my spam folder. Fuck you Roche. Seriously, they are evil.

Dear Sirs

 

Your address has been quoted as contact of the above domain. We, F. Hoffmann-La Roche Ltd., Basel/Switzerland are the owners of the rights to the trademark ROACCUTANE. Our affiliated company owns the right for the mark ACCUTANE We consider the above domain as clearly infringing our trademark rights. Therefore, we are asking you to confirm that you agree with the transfer of the domain name

 

ACCUTANERECOVERY.ORG

 

to Roche. In case we have no according confirmation and do not hear from you until 13^th August 2012, we shall take legal steps.

 

Best regards

 

Jerome Rhein

Trademark Manager

 

F. Hoffmann-La Roche AG

Trademark Department

Bldg. 654/717

4070 Basel, Switzerland

 

These are some motherf*****s, I would love to whoop their ass for the audaciousness of having the courage to write an email like this. Eddy is studying law, so he will help us fight the dark side, I hope. I am pretty confident that we will get them in the long run, especially with the costs of DNA testing coming down so rapidly. Emails like this are great motivaton.

By the way I am surprised they have not managed to shut down this thread, because it will only grow as more and more people catch on.

Hi everyone,

I have been trawling this board for years, just when the forum was up an running back in 2001/2002. I have been a regular in checking up on the site and also had long periods of absence. I am back again after another bad mental and physical spell which was brought on by certain events on my life. It is moments like this that the side effects I deal with on a daily basis get too much to deal with. Hence, I am back here for a search for possible answers for my side effects and sadly there arent any. I actually find coming back here depressing. I here a lot of sad stories and pessimism (understandably) which often makes me get worse. Indeed I know it is a bad idea to get into a cycle of negative thought but sometimes you cant help it.

Today I decided to make a long post about how accutane affected my life. If you have the time to read it please do, and feel free to comment. I hope this is informative and at the same time allows me to vent!

I took accutane for 6 months (40 mg daily) when I was 16.5-17 in 2002. I had been suffering from acne for a couple years and it kept getting worse. I had very oily skin! I used a range of products like BP and retin A and also some minocycline. I wanted accutane though. I heard so many good stories and avoided listening to the bad ones. I think that is natural when you are desperate. I was in a very bad position in my life at the time having just moved from another country to the UK. So I had no friends and lots of time to focus on my skin. So I went to a derm here in the UK and got prescribed the drug. I was really happy!

The drug went to work on my skin and I had a big initial break out which has left me with scarring (I never scarred before accutane). The following are a list of side effects which still remain.

Side effects

The following are side effects I am suffering from 10 years after completing my course of accutane. The ones I hate most are skin related because I feel very uncomfortable all the time:

• Dry skin
• Fragile, poor healing skin, more prone to scarring
• Sun sensitive skin (had a blister on my face from too much sun, wasnt much for other people!)
• Dry eyes (not too bad most of the time thankfully)
• Dry mouth
• Dry hair, which has thinned after accutane
• I developed VITILIGO on parts of my body whereby little white patches have shown up. (note this is an immune problem)
• Mood problems including depression and anxiety (though I cannot say these are definitely due to accutane, but I do suspect it!)
• Digestive problems: indigestion, constipation, IBS

  Although those are direct side effects I would like to illustrate how this affects me on a regular basis. Well, the acne scarring caused a lot of psychological distress for the first few years as I was still a teenager. It caused so much anxiety and physical discomfort that I lost interest in so many things. A typical day would include looking at the mirror and my reflection whenever I got the chance, removing dead skin from my lips, trawling the internet for treatments for my skin and worrying whether I would get better. I found it hard to get close to people phsycially because of the scars and a red face (probably more so than with acne, and my anxiety increased). The acne scarring and side effects were worse than the acne I had! So not only did my skin not get better, I got other problems after 6 months of hell on accutane. I was constantly spending my money on health products and topicals to no avail. I have probably spent more than 5000 on everything for dealing my issues by now (I always think how I well I could have treated acne with that kind of money nutritionists, good food, good skincare etc. etc.; but hindsight is a bitch!).

  I have, however, over the years, become much more confident and accepting of my condition though I am still not happy. I still regularly look at my scars and regret taking accutane (daily) and think about how I could feel if I had not taken it (I, as all of us, know so much about treating acne now). There are triggers everywhere which cause me to think about my problems, if I look at someone with acne I think how nice it would be just to treat that and maintain the skin. I see people with no skin issues and am jealous. I sometimes feel I am living a nightmare with my side effects and it will never end. I have thought about suicide a few times but have not done it. I think the antidepressants I take help with that a bit

  I have tried (very very hard over 10 years!) to treat my acne scars and my overall health problems holistically as I know that may be a good option. I was mostly obsessed with the skin problems which bother me most, but also I have tried to address my health overall.

  Treatments I have had for acne scarring (images - [Edited image out]

  • Subcision
  • Isolagen (using own cells) I was part of a trial
  • Dermaroller x 8 (once with PRP blood injections)
  • Dermstampt x 2

    I have tried every topical cream you can think of (copper peptides, AHAs and other acids, moisturisers, jojoba and other oils, retin creams etc. etc.)

    I have also tried to reduce redness by having YAG laster and N-lite. As you can see from the pictures I still have noticeable scarring. And this is 10 years post accutane.

    Holistic treatment

    I have tried approaches at addressing my body function as well. These have been done at different times of the past 10 years without much success. Although I do recommend GLA as a way to relieve some dryness. The only problem is it made my hair incredibly oily!

    • Liver flushes x4
    • Colon cleanses with colonic (embarrassing procedure!) x4 (coinciding with liver cleans)
    • Supplements
    • GLA
    • Vitamin C
    • Vitamin E
    • Vitamin B complex
    • Biotin
    • Hyaloranic acid
    • Milk thistle
    • Probiotics
    • Digestive enzymes
    • Liver detox formulas
    • Antidepressants (I still take them daily)

      Psychological Treatment:

      • 10 sessions of counselling at age 19 (was really good and lifted me and made me think differently. It was effective in particular because I didnt have many people to talk to).

      [*]Psychodynamic therapy for 1 year (about 30 sessions). This was a waste of time. The therapist was terrible and I seriously think it made me worse after it.

      [*]10 sessions of CBT therapy I highly recommend this. This was the best treatment to address my health. It made me think differently, but unfortunately I still relapse a lot.

      [*]I also take antidepressants (citalopram 20mg daily) mentioned above

      Well, there you have it. My sad situation in a nutshell.

      This week has been really bad for me. I have been really down and been searching for treatments for my problems and have been tempted to buy products which might work on my skin and my overall health. I have decided NOT to buy anything. I really think the best way to deal with these issues is through a good diet and exercise. Although I must admit I have done, and still do, both of these things and I still suffer.

      I am sorry this is not an uplifting story for some but others have recovered better than I have so dont lose faith. The hope of getting better is one thing that keeps me going! I will keep trying but at times I want to give up. It has really damaged the last 10 years of my life and changed me as a person. In some ways I feel as though I am more open and accepting but I have also become a bit pathetic as well. I am more reserved than I want and due to feeling uncomfortable all the time with my skin problems I really find it hard to focus on other things.

      I have been very brave as well, I have pushed myself very hard to do things and I have been successful in many things. I have had girlfriends and been in a band, for example, so I have lived a reasonable life. However, I am constantly feeling uncomfortable and anxious and it is horrible. I would happily trade lives with other people because I feel like shit so much of the time.

      I am doing okay academically, I am studying for a Phd but this is not what I would truly want in some ways. I am following a path which my problems have led me on. Although people may look with envy at some of my acheivements they dont realise the deep underlying problems I have and how I feel everyday.

      I really dont know what to do with myself. I suppose I will continue to try to get rid of my acne scars and hope I can at least get clear skin after 10 years! And maybe the other problems will get better as well. I dont know though. I think I may need another course of counselling. But again there goes more money! Ihave tried to raise a lawsuit for getting money from ROCHE for my side effects but to no avail. Lawyers will not take up cases unless you have something like Chrones disease and DIRECT proof that accutane caused it. That is near impossible. Someone like myself has no chance of compensation unfortunately, so I have to accept I have to pay out for treating these side effects.

      Thanks for reading.

^ Sup Jamie. Well thought out post. I can relate to most of what you said.

I highly recommend getting off of antidepressants. They only numb one into tolerating their situation by dulling their perception.

I have been really down and been searching for treatments for my problems and have been tempted to buy products which might work on my skin and my overall health. I have decided NOT to buy anything. I really think the best way to deal with these issues is through a good diet and exercise.

 

I agree. It's what I have been trying to drive through to other people in this thread. 10 years of trying quick fix products have shown you it isn't the way. The best foods on the planet are fruits, veggies, and nuts. If you are eating just this, and only this, you have a healthy diet. I can't say it enough.. EAT HEALTHY PLANTS!

If you have a healthy diet and work hard, in time you will be strong!

These are some motherf*****s, I would love to whoop their ass for the audaciousness of having the courage to write an email like this. Eddy is studying law, so he will help us fight the dark side, I hope. I am pretty confident that we will get them in the long run, especially with the costs of DNA testing coming down so rapidly. Emails like this are great motivaton.

 

By the way I am surprised they have not managed to shut down this thread, because it will only grow as more and more people catch on.

 

The thread is 1600+ posts deep now, it's kind of amazing how it's grown. it's on a site were people are freely allowed to express their opinions on acne procedures and it's related products. Obviously lots of people with acne have been put on accutane, so it's really the best place for it. Somehow it doesn't fill me with ease though, i know they have shut down other domains with people talking about accutane side effects and i really hope theres someone in this thread that can backup the posts or create a mirror so nothing is lost. We've seen from the above email how they take things like this.

I'm just thankful for this place. When i was 17 there wasn't a forum like this were people could discuss and help people in relation to the side effects of accutane. After taking the drug i developed severe seb derm all over my face and my hair started falling out all over my head, i wish this forum was here then, because i felt like the only person alive suffering from these freak side effects. But i'm thankful this forum is here now.

On 8/15/2012 at 2:07 AM, *Connor said:

I didn't know UDCA was from bear bile, no wonder it is so expensive. That business is fucked. Though I don't have room to talk since I eat meat from slaughterhouses.

I found this email today in my spam folder. Fuck you Roche. Seriously, they are evil.

Quote

Dear Sirs

Your address has been quoted as contact of the above domain. We, F. Hoffmann-La Roche Ltd., Basel/Switzerland are the owners of the rights to the trademark ROACCUTANE. Our affiliated company owns the right for the mark ACCUTANE We consider the above domain as clearly infringing our trademark rights. Therefore, we are asking you to confirm that you agree with the transfer of the domain name

ACCUTANERECOVERY.ORG

to Roche. In case we have no according confirmation and do not hear from you until 13^th August 2012, we shall take legal steps.

Best regards

Jerome Rhein

Trademark Manager

F. Hoffmann-La Roche AG

Trademark Department

Bldg. 654/717

4070 Basel, Switzerland

Wow.

What a complete bunch of ... Hey wait, there are NO words to describe these people.

Seriously, the nerve!

My advice - You have no choice but to back down to the bastards.

It's bullshit, and it sucks, but there's no other way.

Not sure what you could call the site instead, but these sick fucks have too much money to play with.

I assume I'm not breaching their stupid rules by having a book out called 'Accutane -The Truth'.

Unless it was in my junk folder, I never saw anything from them.

We have their address now.

I wonder what their security is like?

Man, if this was a film, I'd have a lot more guns to hand and I'd have a helicopter drop me through the roof.

Which of us could deny that we haven't dreamt of having 30 minutes with these guys?

I read this at 5 in the morning when I couldn't sleep.

I was too angry to get back to bed.

Good God, I feel like I'm hanging on for dear life.

For something to change.

I'm sitting at my job, filing, thinking 'What is the damn point?' That shite seems so insignificant when this is going on.

I feel like we need to do more.

I'm not going to say about the YouTube videos again.

What if the documentary makes no difference?

That seems all I have hope in right now.

I doubt those supplements I ordered will do a thing.

None of the previous 100+ have.

Ah well, if they don't work, that's that. No more throwing what little money I do have away.

Veggies and fruit can replace them.

I totally agree though - We need a Plan B, always.

What if this site closed down, or Roche did pay Dan (the owner) to remove this thread.

How did they get the survivor thread removed that time? It's too much of a convenience to have not been them.

It kills me to read stories of people who have suffered twice as long as me, and have tried things that should work, yet don't.

Suicide becomes more appealing when all the hope is gone.

This is too much to deal with, for anyone.

And having to worry about creating a standard future - buy a house, settle down, raise a family, etc - How on earth can anyone not think about those things.

Injustice is the only word I can think of here.

Most of us were totally unaware that these side effects could be likely, let alone permanent.

There's so little info out there, considering how many people have taken this drug.

Dunno about you, but I worry about how my kids would come out, if I were to have them.

I know it's not meant to cause that problem, if the man takes the drug, but still - If these side effects are permanent, is it really true that deformed babies are only a problem while ingesting the drug?

It's horrible thinking this drug is possibly in our fat, without knowing if we're ever able to release it.

I think the reason things can, and often do, get worse is because we're already overloaded with toxins because of this drug.

It's impossible to escape toxins from every day things, like the air, food, man-made chemicals and stress, too.

So our overload increases further.

I'm grateful for this site.

I don't know if this thread is monitored at all.

I'm pretty sure it's normally not allowed - Saying 'I want to fucking kill myself' etc.

We're lucky to have this.

[Edited link out]

Found this, but I'm not sure that it tells us anything new.

I took bentonite clay for like a day, or too. Messy stuff and hard to ingest.

A book, worth reading, is 'It's the thought that counts'.

We clearly didn't ask for any of this, and neither did we create it, but time and time over it's said that stress makes things worse.

Easier said than done to remove stress, especially in circumstances like these, but it's important to try.

Another one of the better quotes is something like: Whatever you give focus to, you give power too.

Obviously we want to get better, more than anything in the World, and yet we have to surrender to the fact that, at least for now, that's not possible.

We add more pressure and stress to the situation when we concentrate on what we're missing.

In the space I've written this post, I've calmed down a bit.

Writing in my diary, and on here, is like therapy for me.

In my day-to-day life, I have nobody to speak to about my feelings.

My family and friends don't want to hear it.

So instead, I say nothing.

It's not good to store things inside, because they build up.

It's highly linked to increases in cancerous tumours.

Releasing our emotions is a big thing.

Exercise to release aggression. Smash a shot in Badminton/Tennis, for example.

Punch a pillow, scream, sing, write. Lots of options really.

We have more anger than most people, and that's to be expected.

But yeah, the book is good, and for any Kindle-owners, it's very cheap at the moment.

The same author has also written 'Heal your body with your mind', which I've read.

The guy is good, and there's lots of science to prove what he's saying.

The Secret is the worst example of the law of attraction, but I think it's impossible to disprove.

It doesn't count for everything.

Good people die in car accidents, I believe.

But there are lots of quotes to back up the LOA.

Not much of a Christian, myself, and after this it's hard to believe in a God, but one quote is used in 'It's the thought that counts' and it makes me wonder... Who wrote this.. Is it true?

The quote is:

Jesus Heals Two Blind Men

27As Jesus was traveling on from there, two blind men followed him, shouting, Have mercy on us, Son of David! 28When he had gone into the house, the blind men came to him.

Jesus asked them, Do you believe I can do this?

They said to him, Yes, Lord!"

29Then he touched their eyes and said, According to your faith, let it be done for you! 30And their eyes were opened.

Basically, if it were true, it backs up that what we believe counts for a lot.

I didn't know UDCA was from bear bile, no wonder it is so expensive. That business is fucked. Though I don't have room to talk since I eat meat from slaughterhouses.

 

I found this email today in my spam folder. Fuck you Roche. Seriously, they are evil.

 

 

Dear Sirs

 

Your address has been quoted as contact of the above domain. We, F. Hoffmann-La Roche Ltd., Basel/Switzerland are the owners of the rights to the trademark ROACCUTANE. Our affiliated company owns the right for the mark ACCUTANE We consider the above domain as clearly infringing our trademark rights. Therefore, we are asking you to confirm that you agree with the transfer of the domain name

 

ACCUTANERECOVERY.ORG

 

to Roche. In case we have no according confirmation and do not hear from you until 13^th August 2012, we shall take legal steps.

 

Best regards

 

Jerome Rhein

Trademark Manager

 

F. Hoffmann-La Roche AG

Trademark Department

Bldg. 654/717

4070 Basel, Switzerland

 

 

Is it not possible to start a domain in africa or asia somewhere and have the owners of the domain less traceable? it could be .whatever it would still be indexed by search engines. And also if they do stop sites like this forum, it would be nice to have a backup, i think there is a lot of gathered evidence and knowledge in this thread. Also nice place to go when nobody believes you. What about dyndns kind of services? use a home server and maybe a dynamic dns service from some weird country with no laws?, less stopable? hmm.

Roche has worldwide patents and the accutane trademark, so unless you use a TLD (domain extention) from a very very remote island or anything, you run out of luck pretty quick. And even then it's just a matter of time.

A workarround to this problem could be to use the generic name isotretinoin. This is not a trademark. Or a short version for accutane, something like "tane" which is used quite often. Search sites will index it anyway once the contents of the site contains the word accutane, so it will be easy to find.

Ofcourse a domain containing the word accutane would be great, but It's not going to happen I'm afraid. I'm also quite sure that a website dedicated to this would need a very clear disclaimer that it has nothing to do with the Roche company in any way.

I wish this UDCA was legal here so we could A. actually get it B. know the source C. know how it was extracted. The methods seem to be getting more humane but there's no way to tell when you get it from oversees. Interestingly though, I took 2 pills of my Cholacol before lunch today due to ppl's success with udca/tudca and I started to wonder if we've found a key organ for our success with the gallbladder connection. I felt kinda crappy and nauseous today before lunch and I usually feel tired and crappy after lunch even though I usually only eat salads for lunch. But today I feel better than I did before lunch. The only thing I did different today was take my cholacol. All it is is one herb that cleanses the liver and bile salts... Will of course report back to see if results are consistent.

btw, I still recommend Oxyal even though indigo didn't see results. I got the filmy thing when I first started taking them too but floaters have been down by 80% on a consistent basis. I'd say try one drop right before bed and one in morning or as needed.