15 hours ago, Biggest Brother said:

I'm actually curious to know how the kinesiologist can help. We were going to explore that option, but right now i believe we may try something called patchakarma detox. Anyone ever hear of it?

@TrueJustice @PitTumorCrohns

Kinesiology works through muscle testing, a good practitioner can ascertain what the body is saying. At the moment Im just trusting in the process, after years of telling my story over and over to GPs, specialists etc in many fields and getting nowhere Im happy to let my body do the talking for me!!

Interesting how he said my cells arent passing on the right energy, remember weve already discussed on here apoptosis of the cells post Accutane - I really hope my cells can heal themselves.

Whats encouraging about kinesiology is that he worked this out in a 20 min session.
If you tried to do this via pathology can you imagine how long and arduous the process is!!? Going back and fourth to find out results and as we know nothing conclusive ever comes back historically speaking with blood tests does it...

Bring on more kinesiology I say!!

1 hour ago, TrueJustice said:

Kinesiology works through muscle testing, a good practitioner can ascertain what the body is saying. At the moment Im just trusting in the process, after years of telling my story over and over to GPs, specialists etc in many fields and getting nowhere Im happy to let my body do the talking for me!!

Interesting how he said my cells arent passing on the right energy, remember weve already discussed on here apoptosis of the cells post Accutane - I really hope my cells can heal themselves.

Whats encouraging about kinesiology is that he worked this out in a 20 min session.
If you tried to do this via pathology can you imagine how long and arduous the process is!!? Going back and fourth to find out results and as we know nothing conclusive ever comes back historically speaking with blood tests does it...

Bring on more kinesiology I say!!

Is ALA all you are presently taking?

Just ALA

ive got cupboards full of other stuff but as I said, Im trusting in the process, Im trusting in the kinesiologist- Ill take what they say trusting in the correct order of things - nothing more, nothing less....

To determine if your adrenals are fatigued, shouldn't pathology be done to assess your corticosteroid output ?

Ie 24 hr urine (or saliva) tests, morning cortisol, and ACTH etc if adrenal suppression is expected.

It's wise to do a full male hormone panel and thyroids also. (I can send over what hormones to get tested if interested).

You may have already done all this, but if you went to a standard GP or even specialist , they may not have done in depth testing.

We often need to go to 'anti ageing' / ACNEM certified GPs to be taken seriously or adequately tested at at least

2 hours ago, mikez said:

To determine if your adrenals are fatigued, shouldn't pathology be done to assess your corticosteroid output ?

Ie 24 hr urine (or saliva) tests, morning cortisol, and ACTH etc if adrenal suppression is expected.

It's wise to do a full male hormone panel and thyroids also. (I can send over what hormones to get tested if interested).

You may have already done all this, but if you went to a standard GP or even specialist , they may not have done in depth testing.

We often need to go to 'anti ageing' / ACNEM certified GPs to be taken seriously or adequately tested at at least

Yes, Ill take whatever you can send. Thx

9 hours ago, TrueJustice said:

Just ALA

ive got cupboards full of other stuff but as I said, Im trusting in the process, Im trusting in the kinesiologist- Ill take what they say trusting in the correct order of things - nothing more, nothing less....

I have problems with absorption too. Even with other pharmaceutical drugs I dont respond like I did in the past. The one doctor always said I was a puzzle to him. They gave me iron infusions and I never benefited from them as my body never absorbed the iron.

I bought a few things yesterday to try and ALA was one of them. (Also purchased Zinc, B5, B6, B12, Mg with Taurine, Phosphatidylcholine, and a Probiotic...was gonna purchase D3/K2, Vit E today). But how
much am I going to absorb? Hmmm

For the Kinesiologist, did your GP refer you?i am thinking I want to do what you are doing with ALA. I am going to talk to my doctor on Tuesday and see what he says.

My Alpha Lipoic Acid is 600 mg per capsule. What is your dose? Thx

*Ive included my urine tests and due to high Glycine, the report claims to use Lipoic acid to break down glycine.

9 hours ago, mikez said:

To determine if your adrenals are fatigued, shouldn't pathology be done to assess your corticosteroid output ?

Ie 24 hr urine (or saliva) tests, morning cortisol, and ACTH etc if adrenal suppression is expected.

It's wise to do a full male hormone panel and thyroids also. (I can send over what hormones to get tested if interested).

You may have already done all this, but if you went to a standard GP or even specialist , they may not have done in depth testing.

We often need to go to 'anti ageing' / ACNEM certified GPs to be taken seriously or adequately tested at at least

Having these results in your arsenal isnt going to hurt its just that I got fed up a long time ago doing blood test after blood test only to find nothing conclusive other than raised cholesterol levels.

Ive done everything from hormones to copper testing. If my kinesiologist suggests more pathology, sure Ill do it but like I said hes already found that my cells arent operating fully in a 20 min session of muscle testing alone!!

My ALA dose is 400mg - 1 capsule in morning per day.

This is what i've been looking at.

Yeast worsens gut disorder
https://www.nature.com/articles/543291d
Yeast in the gut boosts levels of uric acid, which damages the intestinal wall and worsens bowel inflammation in mice.

3 hours ago, TrueJustice said:

Having these results in your arsenal isnt going to hurt its just that I got fed up a long time ago doing blood test after blood test only to find nothing conclusive other than raised cholesterol levels.

Ive done everything from hormones to copper testing. If my kinesiologist suggests more pathology, sure Ill do it but like I said hes already found that my cells arent operating fully in a 20 min session of muscle testing alone!!

My ALA dose is 400mg - 1 capsule in morning per day.

What were the test(s) that your Kinesiologist preformed? Im very interested. Thx.

21 hours ago, TrueJustice said:

Having these results in your arsenal isnt going to hurt its just that I got fed up a long time ago doing blood test after blood test only to find nothing conclusive other than raised cholesterol levels.

Ive done everything from hormones to copper testing. If my kinesiologist suggests more pathology, sure Ill do it but like I said hes already found that my cells arent operating fully in a 20 min session of muscle testing alone!!

My ALA dose is 400mg - 1 capsule in morning per day.

Good point and I see what you mean. It's good that you have had all the stuff tested in the past at least.. I use chinese medicine myself for some other issues . I hope you can find relief with the new treatment.

1 hour ago, PitTumorCrohns said:

What were the test(s) that your Kinesiologist preformed? Im very interested. Thx.

They test muscle strength which also gives the practitioner feedback on whats going on in the body both physically and emotionally

so they work often with the subconscious where memory is stored even from your childhood and they work through issues one by one, I currently do one half hour session per week.

Youll have to try it for yourself to fully understand....

I am a male and had 2 rounds of accutane. Since my last round where I took 30 mg for 6 months straight, I have lost body hair. I mean, I have always been very hairy. Especially my arms, legs, chest, stomach were hairy as hell since puberty started. But since my last course, I lost great amounts of body hair. My arm, leg and stomach hair is now much less than it used to be. The hair is also much lighter and not as dark anymore. Is this a common observation? did this happen to anybody else here? What could be the reason for this?

9 hours ago, Caprisunny said:

I am a male and had 2 rounds of accutane. Since my last round where I took 30 mg for 6 months straight, I have lost body hair. I mean, I have always been very hairy. Especially my arms, legs, chest, stomach were hairy as hell since puberty started. But since my last course, I lost great amounts of body hair. My arm, leg and stomach hair is now much less than it used to be. The hair is also much lighter and not as dark anymore. Is this a common observation? did this happen to anybody else here? What could be the reason for this?

I lost hair on both of my feet, 3 inches of hair above my ankles, and hair on my thighs. It is all symmetrical, really bizarre. Lost it all a few months after finishing accutane.
However, some hair came back after pit tumour came out.

22 hours ago, TrueJustice said:

They test muscle strength which also gives the practitioner feedback on what™s going on in the body both physically and emotionally 

so they work often with the subconscious where memory is stored even from your childhood and they work through issues one by one, I currently do one half hour session per week.

Youll have to try it for yourself to fully understand....

I think I will try it out. Are you covered for the charges? I™m in Canada and thankfully have extra
coverage for a naturopath, but have to see if Kinesiologist is...I am covered for athletic therapist/ athletic physiologist however. 

I gave up working out because it literally burned me out. I see zero
gains as well. I then halted all cardio and just weight trained for no more than 45 minutes 3-4 times per week.  Hopefully I can get my energy back!  

No better feeling than a good successful workout! A nice natural high.

52 minutes ago, PitTumorCrohns said:

I think I will try it out. Are you covered for the charges? I™m in Canada and thankfully have extra
coverage for a naturopath, but have to see if Kinesiologist is...I am covered for athletic therapist/ athletic physiologist however. 

I gave up working out because it literally burned me out. I see zero
gains as well. I then halted all cardio and just weight trained for no more than 45 minutes 3-4 times per week.  Hopefully I can get my energy back!  

No better feeling than a good successful workout! A nice natural high.

I™m in Australia and yes I™m in a health fund.

I™m covered up to a certain point, I™m going weekly to kinesiologist so it won™t take long to fill my quota whatever it is....

I™m not overly concerned, I work full time and don™t have kids so I can afford it.

Totally agree on working out, some weeks are better than others though in terms of energy and commitment- this week my energy has been low so only 2 workouts - I™m still getting over a cold.

@PitTumorCrohns
Thanks for sharing your experience.

Crohns/UC/IBD were some of the most prominently discussed Accutane side effects in the 2000s but are rarely mentioned in post-Accutane forums today. I find it hard to believe that this is such a rare side effect.

I had a couple bouts of rectal bleeding for the only time in my life shortly after starting Accutane and one of the few post-Accutane patients I have met in person experienced rectal bleeding and vomiting blood for some time ( I think she mentioned a couple years) after starting Accutane.

Of course, dermatology claims Crohns/UC/IBD occur at a higher frequency in the general population than what is reported by Accutane users, and uses this fact to refute an association with the drug. ...A garbage statistic if you think about it.

.

I have this weird problem to where i feel waves/chills feeling that starts from my back/spine. It's similar to the feeling of nails on a chalkboard almost like a cringe feeling. I get this multiple times a day and sweat the entire day. During social interactions the feeling gets worse.

its such a strange problem but i remember it started happening after i took accutane10 years ago. if someone experiences something similar please PM me. im not sure if its from tane, just thought id post here.

Brand new visitor. Did a search on the zero vitamin A diet. Someone pages back mentioned it. I have been reading ["Ideas, Concepts, and Observations" blog] wher he has three free books online.

All of them discuss sub clinical vitamin A toxicity, particularly its derivative form as Retinoic Acid. The author healed his eczema and has been Zero A for four years.

The latest book is Breast Cancer, very accessible at 99 pages.

The prior one is Poisoning For Profits, much longer with more science.

The comment section over there discusses Accutane and how its damage fits into the overall scenario that is causing widespread auto immune diseases, which are actually poisoning, due to vast increases in Vitamin A intake, beyond the livers capacity to bind it, thus it ends up destroying stem cells in endothelial tissues all over the body, including the skin, and our immune systems try to cope with the overdose.

3 hours ago, hillcountry said:

Brand new visitor. Did a search on the zero vitamin A diet. Someone pages back mentioned it. I have been reading ["Ideas, Concepts, and Observations" blog] wher he has three free books online.

All of them discuss sub clinical vitamin A toxicity, particularly its derivative form as Retinoic Acid. The author healed his eczema and has been Zero A for four years.

The latest book is Breast Cancer, very accessible at 99 pages.

The prior one is Poisoning For Profits, much longer with more science.

The comment section over there discusses Accutane and how its damage fits into the overall scenario that is causing widespread auto immune diseases, which are actually poisoning, due to vast increases in Vitamin A intake, beyond the livers capacity to bind it, thus it ends up destroying stem cells in endothelial tissues all over the body, including the skin, and our immune systems try to cope with the overdose.

But the vast increases in Vit A intake would only occur when on Accutane which for many was over 20 years ago.

Im not sure whats going on present day to still be experiencing issues? Is damage already done, does body post Accutane not know how to deal with Vit A etc etc.

It would be good to hear from those on the zero Vit A diet, there were a few of them discussing this about 5 or so months ago - be good to see if they kept it up and if their side effects have subsided!!?

Hi True Justice - my summary of Grant Genereuxs theory wasnt clear enough. Much of his research into the rising epidemics of so-called auto-immune diseases identifies the simultaneous rise in Vit A intake that may be the underlying cause. Modern supplementation in food (milk and cereal for example) and vitamin pills, plus the non-linear rise in fish oil consumption, plus the healthy eating craze of overconsumption of Vit A vegetables, combines to overwhelm the livers capacity to store this potential toxin safely, which it releases in a non-destructive, transportable form under normal circumstances.

When capacity is breached, the retinol and its more toxic sibling, Retinoic Acid, are stashed away in fat cells and endothelial tissue, and as I understand the theory so far, we get to the point where theres quite a bit of free floating A and RA causing stem cell disturbances that trigger immune responses, inflammation and tissue damage.

Reaching liver capacity used to take decades, but now these diseases are hitting younger people who are growing up consuming much more Vit A than those of us in our 60s and 70s did. The Accutane discussions over at his blog (thanks Admin for doing the link edit) are in this context above. Im still sorting and self-referencing the information but am convinced enough to get as close to Zero A intake as possible, due to a couple of auto-immune conditions that have given me a bunch of grief over the years.

It
it

Strange thing happened above where I was typing into a blank screen.

Anyway, Ill check in occasionally to report any changes. Grant Genereux relates his Zero A journey over 4 years of very intermittent blogging. It took him that long to become free of eczema, so the theory is that once liver capacity has been reached, it takes a long time to deplete storage of these poisons in the other tissue locations.

I encourage everyone to read his Breast Cancer book because it is a powerfully condensed look at the whole subject, not just the local manifestation of breast cancer. Its so good I printed copies of the index, preface, and introduction, to give to everyone I know. Sometimes hard-copy performs better than sending a link.

i hope you find it to be a useful read.

His blog comment section has a few people looking into ways of binding and excreting as much of these two toxins as possible. Cholestyramine and activated charcoal mostly.

Ive got the PDF poisoning for profits but whats his book prior to this, whats it called and is there a PDF download for it?

he says thats where his personal diet is found.

I gotta say, it must be damn hard to avoid all Vit A....

On 9/14/2018 at 12:00 PM, hillcountry said:

Hi True Justice - my summary of Grant Genereuxs theory wasnt clear enough. Much of his research into the rising epidemics of so-called auto-immune diseases identifies the simultaneous rise in Vit A intake that may be the underlying cause. Modern supplementation in food (milk and cereal for example) and vitamin pills, plus the non-linear rise in fish oil consumption, plus the healthy eating craze of overconsumption of Vit A vegetables, combines to overwhelm the livers capacity to store this potential toxin safely, which it releases in a non-destructive, transportable form under normal circumstances.

When capacity is breached, the retinol and its more toxic sibling, Retinoic Acid, are stashed away in fat cells and endothelial tissue, and as I understand the theory so far, we get to the point where theres quite a bit of free floating A and RA causing stem cell disturbances that trigger immune responses, inflammation and tissue damage.

Reaching liver capacity used to take decades, but now these diseases are hitting younger people who are growing up consuming much more Vit A than those of us in our 60s and 70s did. The Accutane discussions over at his blog (thanks Admin for doing the link edit) are in this context above. Im still sorting and self-referencing the information but am convinced enough to get as close to Zero A intake as possible, due to a couple of auto-immune conditions that have given me a bunch of grief over the years.

It
it

I just want to follow up on that -

Do any of you still have the bumps/red spots on the backs of your arms since accutane? They started with accutane and are apparently a symptom of vitamin A deficiency. I'm about 8 years post accutane and they're still there most of the time, though some days/weeks they almost disappear.

Just wondering if that could have something to do with how much i increase or decrease my vitamin A intake around that time.

I wasn't well informed after accutane and was taking a multi vitamin that contained vitamin A for a while afterwords until i realized I may be causing harm. Since that time i spent years avoiding all forms of vitamin A, didn't have dairy, veg, sweet potato, nothing.

The past year I started eating those things again and it really hasn't made a difference either way, still have painfully dry skin and impaired wound healing. Although, my skin is the only issue so the years off of vitamin A may have saved me other side effects.

1 hour ago, Justdry said:

I just want to follow up on that -

Do any of you still have the bumps/red spots on the backs of your arms since accutane? They started with accutane and are apparently a symptom of vitamin A deficiency. I'm about 8 years post accutane and they're still there most of the time, though some days/weeks they almost disappear.

Just wondering if that could have something to do with how much i increase or decrease my vitamin A intake around that time.

I wasn't well informed after accutane and was taking a multi vitamin that contained vitamin A for a while afterwords until i realized I may be causing harm. Since that time i spent years avoiding all forms of vitamin A, didn't have dairy, veg, sweet potato, nothing.

The past year I started eating those things again and it really hasn't made a difference either way, still have painfully dry skin and impaired wound healing. Although, my skin is the only issue so the years off of vitamin A may have saved me other side effects.

Im at a loss, Im doing the whole kinesiology thing which Im happy to continue with but a couple of other things that concern me:

Theres two schools of thought - those that say avoid all Vit A and theres that YouTube video that says take liquid Vit A as part of the reversing Accutane side effects. As per usual no one really knows do they!!?

Also, where is everyone who once posted on here? People coming on forum all guns blazing and then they just disappear....

Have they all just gone off to work on the anti Vit A diet.....,reporting back in 10 years time or something.

9 minutes ago, TrueJustice said:

Im at a loss, Im doing the whole kinesiology thing which Im happy to continue with but a couple of other things that concern me:

Theres two schools of thought - those that say avoid all Vit A and theres that YouTube video that says take liquid Vit A as part of the reversing Accutane side effects. As per usual no one really knows do they!!?

Also, where is everyone who once posted on here? People coming on forum all guns blazing and then they just disappear....

Have they all just gone off to work on the anti Vit A diet.....,reporting back in 10 years time or something.

I think you've hit the nail on the head there with ''as per usual no one really knows do they''.

As I said, I've tried both methods (off vitamin A for years) and don't notice an ounce of difference either way. I really don't think it matters. Most of the Vit A we get in our diet is from veg, which is beta carotene anyway, which has a really low vit A conversion rate. 3% i think i read once.

I've spent so much time over the last few years obsessing over my diet and what i should and shouldn't eat because of my skin. I'm tired, I just want to be able to get on with life without stressing about my facial skin every day.

Yep, aside from the fatigue and mental issues Id love nothing more than finding moisture again for both my skin and my hair, Im just so dry and cant find a cure.

My hair is thin and wiry and greying prematurely and my face is as dry as a bone.

Dont know what to do