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Repairing the long-term damage from Accutane

 
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299
(@macleod)

Posted : 01/12/2018 1:59 am

But you also have to look at the bright side. We now know that our health is solely our responsibility and the health industry is just that, a market. this isn't to say that all docs are bad people, i've met some that genuinely want to help. doctors too fall victim of inherently trusting regulators and pharma companies. only few actually do their homework and look at the controlled studies. in their mind its imperative to get their patient to quit smoking so they prescribe a drug like Chantix, not knowing the studies clearly only show a 40% efficacy rate. a drug that carries severe side effects andcan affect mental state. whats worse is that the drug is synthesised from a plant, a flower. soldiers that didn't have access to tobacco in WW2 discovered the plant and would smoke it. far safer than taking a synthesised drug that carries side effects. but again, business wise, you simply cannot patent a drug that you didn't create.

point i'm trying to make is, when you realize that manyof the pharmaceuticals are derived from plants or mushrooms, there is no need to take these harsh drugs to maintain your health. i now take lions mane every day and drink chaga tea. its crucial for us to get back to our roots and closer to nature whereas modern medicine is going in the opposite direction. i'm able to give nutrition advice to friends and love ones, to implement a plant/fruit based diet, to exercise, to take their health into their hands, that is priceless info, and it may of cost our health to realize, but we can provide benefits to others.

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MemberMember
0
(@abi72)

Posted : 01/12/2018 4:54 am

9 hours ago, svgputin1001 said:

For the guys who have ED or libido problems, you should really get a blood test. Your testosterone level, estradiol levels, and more can all play a role. Your ED should be relatively easy to fix with hormones.

Are you joking?

Name me one doctor who knows how to fix this problem.

Don't want to be offensive but that is an incredibly stupid remark to make.

Have you had and then recovered diminished libido and ED?

If you have successfully been treated by a doctor I would love to take back my words!

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MemberMember
86
(@scarright)

Posted : 01/12/2018 6:13 am

Lots of misinformation in this thread from people who are not qualified medical practitioners. There is no evidence Accutane causes permanent side effects in 100% of people. None.

From the Accutane FAQ in this forum (A little less biased)

I have heard several horror stories about accutane. Could the things they are speaking of happen to me?

-Unfortunately, there is a chance that you could experience such side effects. The drug affects people in different ways, and whilst cases of severe, permanent side effects are rare, they can happen. You have to assess whether you are willing to take the risk.

Can accutane leave me with permanent damage?

-There is a risk of permanent side effects, such as ongoing dryness, reproductive problems, and internal organ problems, but permanent side effects are relatively rare, and typically, normal bodily function resumes within a few weeks to a year after finishing the course.

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1803
(@guitarman01)

Posted : 01/12/2018 8:15 am

2 hours ago, ScarRight said:

Lots of misinformation in this thread from people who are not qualified medical practitioners. There is no evidence Accutane causes permanent side effects in 100% of people. None.

From the Accutane FAQ in this forum (A little less biased)

I have heard several horror stories about accutane. Could the things they are speaking of happen to me?

-Unfortunately, there is a chance that you could experience such side effects. The drug affects people in different ways, and whilst cases of severe, permanent side effects are rare, they can happen. You have to assess whether you are willing to take the risk.

Can accutane leave me with permanent damage?

-There is a risk of permanent side effects, such as ongoing dryness, reproductive problems, and internal organ problems, but permanent side effects are relatively rare, and typically, normal bodily function resumes within a few weeks to a year after finishing the course.

Let me transpose this for you, because you underlined and put it in bold twice.
There is evidence Accutane causes permanent side effects in some people.

Hopefully that's not the case and some damages can be mitigated or reversed. That was the original purpose of this thread and thats why im still here. In that regard you and some others dont need to be here because you dont qualify. Which is good.

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MemberMember
86
(@scarright)

Posted : 01/12/2018 8:52 am

That was not for you specifically, it was for the chap that states Accutane is going to cause permanent side effects for all users. It only does this very rarely.

I hope you are feeling well and recovering.

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MemberMember
223
(@gladiatoro)

Posted : 01/12/2018 9:06 am

13 hours ago, Gladiatoro said:

Expect side effects to slowly easetheir way into your life after isotretinoin exposure hair loss ,joint pain especially lower back pain will kick in dizziness mental dips welcome to the world of isotretinoin. That is reality.

Systemic dehydration is after all permanent. Expect chronic dry eyes , mouth , lips , and of course skin after exposure to this chemotherapy agent. ED is a real concern and can and will happen to young men.

And the best you can hope for is symptom management.. Most important part dont mess with your skin trust me on this one our skin cell receptors are permanenty messed up and prolonged rubbing can litteraly induce a heart attack , no joke as it re activatesisotretinoinand shots cholesterol through the roof.

This Drug is so dangerous it should have NEVER been approved for anything let alone young kids and adults With a few red spots that is insane . In reality side effects ARE permanent after all.

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299
(@macleod)

Posted : 01/12/2018 9:58 am

4 hours ago, ScarRight said:

Lots of misinformation in this thread from people who are not qualified medical practitioners. There is no evidence Accutane causes permanent side effects in 100% of people. None.

From the Accutane FAQ in this forum (A little less biased)

I have heard several horror stories about accutane. Could the things they are speaking of happen to me?

-Unfortunately, there is a chance that you could experience such side effects. The drug affects people in different ways, and whilst cases of severe, permanent side effects are rare, they can happen. You have to assess whether you are willing to take the risk.

Can accutane leave me with permanent damage?

-There is a risk of permanent side effects, such as ongoing dryness, reproductive problems, and internal organ problems, but permanent side effects are relatively rare, and typically, normal bodily function resumes within a few weeks to a year after finishing the course.

Are you Dr. Cornbleet's bitter son?

How do you interpret the vague definition of "rare" as 'No' 0.00% evidence? Even if it was at a 1% rate, considering 30 million have taken the drug, that's almost half a million (300,000) people with permanent adverse effects.

You have no argument. The latest medical text Iatrogenic pathology (2017) clearly lists the possible mechanisms of action regarding the ADR (adverse effects) Delayed (permanent) ADR of Accutane and hundreds of other drugs. You are free to purchase the book and read it if you'd like. I have. Or you can google Accutane FAQ's. Seem's like a reliable source of information. Derp.

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(@gladiatoro)
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(@gladiatoro)
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(@gladiatoro)

Posted : 01/12/2018 11:53 am

This drug litteraly has the potential to destroy peoples lives ,

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(@cnb30)

Posted : 01/12/2018 11:58 am

3 hours ago, ScarRight said:

That was not for you specifically, it was for the chap that states Accutane is going to cause permanent side effects for all users. It only does this very rarely.

I hope you are feeling well and recovering.

Why are you standing for the murder of innocent lives? Why are you coming on here and telling individuals who have basically had their lives unjustly ruined by bloodthirsty corporations to suck it up and that they're all wrong? What kind of sick mind do you have to do that?

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157
(@tanedout)

Posted : 01/12/2018 12:15 pm

6 hours ago, ScarRight said:

Lots of misinformation in this thread from people who are not qualified medical practitioners. There is no evidence Accutane causes permanent side effects in 100% of people. None.

From the Accutane FAQ in this forum (A little less biased)

I have heard several horror stories about accutane. Could the things they are speaking of happen to me?

-Unfortunately, there is a chance that you could experience such side effects. The drug affects people in different ways, and whilst cases of severe, permanent side effects are rare, they can happen. You have to assess whether you are willing to take the risk.

Can accutane leave me with permanent damage?

-There is a risk of permanent side effects, such as ongoing dryness, reproductive problems, and internal organ problems, but permanent side effects are relatively rare, and typically, normal bodily function resumes within a few weeks to a year after finishing the course.

This is the whole point you clown, it's totally underreported as CURRENTLY the persistent side effects cannot easily be tested for, so patients are dismissed/doctors left scratching heads why post-accutane users don't respond to the usual treatments for their issues (ED etc) because they no longer respond/react normally to certain hormones.

You think everyone is on here for fun, or because they've got a grudge on Roche?! People's lived are ruined by the side effects from these drugs.

Who funds the studies on the side effects of the drugs, you think the vendors are on hand to help out?! Fortunately the PFS lot are much better funded and well organised and the studies are showing permanent changes to neurosteroid levels and so on. These are not things which are easy to test, but once they've identified the specifics people who've taken accutane for example will be able to mirror the tests, and it's basically a certain to mirror the outcomes

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Side Effects of 5 Reductase Inhibitors (5ARI): Why Do They Occur, in Which Patients, and What Can We Do to Treat or Prevent Them?

http://www.pfsfoundation.org/news/2061/

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patients treated with finasteride for male pattern hair loss, persistent side effects including sexual side effects, depression, anxiety and cognitive complaints may occur. We here explored the psychiatric and andrological features of patients affected by post-finasteride syndrome (PFS) and verified whether the cerebrospinal fluid (CSF) and plasma levels of neuroactive steroids (i.e., important regulators of nervous function) are modified

https://www.sciencedirect.com/science/article/pii/S0960076017301024

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(@cnb30)

Posted : 01/12/2018 12:16 pm

30 minutes ago, Gladiatoro said:

This drug litteraly has the potential to destroy peoples lives ,

It does. Period. As I've said before, everybody I know who's taken this drug had some part of their head messed with and something not right happen to their personality, whether or not they realized it. The whole problem here which I've realized is that a lot of people are (to put it as politely a possible) gullible enough to not notice serious changes to their own heads (even if others do). The fact that this occurs subtly over months and years doesn't help either. I've been known to have a decent memory when it comes to recalling my mental state (at least others say so), yet so much of this stuff just creeps up on me from nowhere.

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223
(@gladiatoro)

Posted : 01/12/2018 2:22 pm

2 hours ago, cnb30 said:
It does. Period. As I've said before, everybody I know who's taken this drug had some part of their head messed with and something not right happen to their personality, whether or not they realized it. The whole problem here which I've realized is that a lot of people are (to put it as politely a possible) gullible enough to not notice serious changes to their own heads (even if others do). The fact that this occurs subtly over months and years doesn't help either. I've been known to have a decent memory when it comes to recalling my mental state (at least others say so), yet so much of this stuff just creeps up on me from nowhere.

It is after all the worlds MOST dangerous drug.

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(@guitarman01)

Posted : 01/12/2018 4:07 pm

Here is an example not to scare people, but to be made aware.

Fen Phen's Deadly Side Effects May Appear 10 or 20 Years Later

www.legaltube.com BREAKING NEWS HOT LIST

Research from the Mayo Clinic links the diet drugFen Phenwith Primary Pulmonary Hypertension. There is no cure for PPH and can result in heart failure.

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223
(@gladiatoro)

Posted : 01/12/2018 4:35 pm

How can anyone say chemical castration is perfectlyfine for young people , its NOT.

Its criminal thats what it is.

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(@gladiatoro)

Posted : 01/12/2018 6:03 pm

This is how corrupt the medical system is , in reality there is ABSOLUTLEY no proof for mental illnesses , NONE.
[Edited link out]

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(@gladiatoro)

Posted : 01/12/2018 6:25 pm

We can all thank Indigo rush for starting this thread and helping us understand the long term implications of this chemotherapy agent.

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(@truejustice)

Posted : 01/13/2018 12:05 am

On 1/13/2018 at 7:03 AM, Gladiatoro said:

This is how corrupt the medical system is , in reality there is ABSOLUTLEY no proof for mental illnesses , NONE.
[Edited link out]

Youd have to agree that one of the biggest side effects tane can produce is depression, has anyone fully recovered though from Accutane induced depression? Im not sure....

In Aust we have all sorts of campaigns, many programs will mention reaching out for help if the program you have just watched has raised issues, similarly there are massive call outs to stop bullying in all its forms but Ive gotta say with tane depression Im yet to hear of anyone who knows how to treat this form of depression so even if you do seek help, no one that Ive ever seen knows how to fix it, and I mean no one!!

My thoughts are though that its a depression from brain interference, its not your typical clinical depression, it may manifest in a similar fashion but something is fucked up in the brain.

So to all the latest programs/campaigns, before asking the public to seek help which we do, how bout contacting Roche and telling them to get their fucking act together and stop unnecessarily wrecking lives, thatd be a start.

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223
(@gladiatoro)

Posted : 01/13/2018 10:03 am

10 hours ago, TrueJustice said:
Youd have to agree that one of the biggest side effects tane can produce is depression, has anyone fully recovered though from Accutane induced depression? Im not sure....

In Aust we have all sorts of campaigns, many programs will mention reaching out for help if the program you have just watched has raised issues, similarly there are massive call outs to stop bullying in all its forms but Ive gotta say with tane depression Im yet to hear of anyone who knows how to treat this form of depression so even if you do seek help, no one that Ive ever seen knows how to fix it, and I mean no one!!

My thoughts are though that its a depression from brain interference, its not your typical clinical depression, it may manifest in a similar fashion but something is fucked up in the brain.

So to all the latest programs/campaigns, before asking the public to seek help which we do, how bout contacting Roche and telling them to get their fucking act together and stop unnecessarily wrecking lives, thatd be a start.

I wouldnt say isotretinoin causes depression rather reduces brain function that comes and goes expect mental dips after tan exposure is more accurate.

Mainly because it dehydrates the human body constantly . That would explain the joint pain especially lower back it messes with spinal fluid. Also the chronic dry eyes , mouth , skin .

And the skin is messed up prolonged rubbing causes heart papulations anyone that tells you it leaves the body is lying it changes how the body works is more accurate.

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223
(@gladiatoro)

Posted : 01/13/2018 10:23 am

One derm said its the lesser of the evil , if you look like a BEAST maybe true for everyone else definently NO. My skin looks like glass but I would say there are consequences to this look as I have found out ... it's given me the skin I always dreamed of BUT.....

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1803
(@guitarman01)

Posted : 01/13/2018 11:21 am

@Gladiatoro
I know your not big on doctors. (neither am I) but when is the last time you've had any sort of tests or bloodwork?
Do you currently have insurance?
Examples,
ekg for heart/vascular health
brain mri
blood counts/metabolic function
hormones
kidney function
Minus the brain mri these are all very simple, quick, and fairly cheap tests.
The point being (especially for people that are getting older) is to possibly find real evidence of something going on that might trace back to this drug.

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MemberMember
223
(@gladiatoro)

Posted : 01/13/2018 3:28 pm

4 hours ago, guitarman01 said:
@Gladiatoro
I know your not big on doctors. (neither am I) but when is the last time you've had any sort of tests or bloodwork?
Do you currently have insurance?
Examples,
ekg for heart/vascular health
brain mri
blood counts/metabolic function
hormones
kidney function
Minus the brain mri these are all very simple, quick, and fairly cheap tests.
The point being (especially for people that are getting older) is to possibly find real evidence of something going on that might trace back to this drug.

I have insurance in Canada its free , last time I got tests done it all turned out normal range no point in it , lets put it this way the systemic dehydration is after all permanent.

Anyways I feel accu drained today thats about it. Last time I got tests was. 5 years ago or so , problem is Im smarter then any allopathic doctor and Ill leave it at that .

My doctor said and I quote its not that bad , you have to watch your diet and take better care of yourself thats about it I reduced beer consuption this has improved my condition and learned NOT to mess with my skin NOT a good idea as I found out the hard way.

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1803
(@guitarman01)

Posted : 01/13/2018 4:02 pm

42 minutes ago, Gladiatoro said:
I have insurance in Canada its free , last time I got tests done it all turned out normal range no point in it , lets put it this way the systemic dehydration is after all permanent.

Anyways I feel accu drained today thats about it.

If you have never had a ekg I would consider it next time if given the opportunity, that goes for anyone else as well. (especially as you start to get older)
Make sure you look at the report, mine showed possible left ventricle enlargement. Something they didn't even tell me, that I only saw on the report.
(a nurse told me to always look at the reports, because they leave out information, dont tell you everything)
This enlargement has been stable from two different tests a few years apart.
I see a MRI is hard to come by in Canada with an average 12 to 18 month waiting list.
Also a reminder I have mild cerebral "atrophy" (there's that word again.) from a MRI brain scan.
These are things you want to be aware of and stay on top of if applicable.
You see some of this in common with a few people, I think we could start to make some pretty quick connections.
We obviously dont want this in common, but you dont know until you check.
What might be going on systemically, any organ or gland could have a target and It might originate from blood flow to specific organ or gland that affects functioning.

Similar to what might cause the birth defects. Lack of vascular development that starts to kill off tissues.

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(@truejustice)

Posted : 01/13/2018 4:31 pm

6 hours ago, Gladiatoro said:
I wouldnt say isotretinoin causes depression rather reduces brain function that comes and goes expect mental dips after tan exposure is more accurate.

Mainly because it dehydrates the human body constantly . That would explain the joint pain especially lower back it messes with spinal fluid. Also the chronic dry eyes , mouth , skin .

And the skin is messed up prolonged rubbing causes heart papulations anyone that tells you it leaves the body is lying it changes how the body works is more accurate.

I would say it causes both, the diminished brain function probably comes first though.

People committing suicide, flying planes into buildings, stabbing doctors are depressed no doubt.

Did you get warned of the permanent dehydration? I didnt and there seems to be nothing to fix it, it just gets worse as time goes on.

God only knows the implications of this from a systemic level - not good for the organs at all.

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