Hi Guys,

I have some good news and some bad news.

The good news is that I had my blood re-taken for the telomere test and have had the results back. The bad news is that the results are just "Normal". They weren't sent to Life Length like I thought they might, so that's also dissapointing that I don't actually know my exact biological age or other detailed results. I've tried my best, but here in the UK you are limited to what tests you can do. In America, you have both Spectra Cell, and in the last 7 months, Life Length also do the test in the US. Spectra Cell give you a 7 year age swing of the biological age they give you, so it's not completely accurate, but with Life Length, it's 97% accurate. Of course, whether it's worth having a telomere test done is for personal opinion, but I think it is.

I remember Oli Girl saying that someone else had their telomere test also come back normal. If I'm being honest, without sounding like I'm mad/in denial, I wonder about the validity of my test, but I'll let that go. We all have wide ranging side effects, yet I'm sure there has to be a common link, something that's wrong with our bodies for all of us. I had hoped it might of been telomeres, if it had given an answer, but I guess now it might well be something else. Who knows....

The beta carotene thing IS helping but one must also remember to take vitamin D to balance the competing A. This is why fermented cod liver oil is so beneficial for mucus production, depression and many other things. It contains a healthy balance of each. Most "fish oil" is processed using horrible chemicals and has little in the way of beneficial properties when all is said and done. The fermented kind from 'Green Pastures' though for example is made in the traditional method, like how in Norway, fishermen used to store the livers in abig barrel all season long and then at the end of it, would ladle out the oil that rose to the top. Why is everything so freakin' processed nowadays. Neither A or D in high doses should be taken continuously though, according to my naturepathic Dr. She recommends supplementing with one or the other for only a few months at a time, then giving the body a break. This is in larger doses than a normal diet-based source which can be consumed continuously. Anywhom, I also find that diatomaceous earth is nice for 1) killing parasites (shredding the bastards) 2) bone health and 3) hair growth (if not regrowth, at least it speeds the heck out of the growth of existing hair and helps to thicken it and prevent further loss). Look it up. Finally, just a side-note. I have had kidney stones 4 or 5 times now. Aside from being well-hydrated there is a treatment that is super easy and can be administered whenever kidney-stone pain presents itself. This is one shot-glass full of olive oil mixed with an equal amount of apple cider vinegar. Take this once a day for 2-3 days. It bloody works. Before learning about this, I had a lithotrypsy operation to the tune of 6,000 bucks U.S. If only I had known there was a four dollar treatment available. Somehow the cider vinegar is able to dissolve the stones immediately. The pain just goes away instead of lasting for a week or two and worsening during that time. Try it and let others know. This can otherwise be an extremely painful condition. Thanks...

Has anyone tried DHEA or Quercitin? I met a dude who also took some 'radioactive Accutaneium'

(hardy har har, cry) and suggested that it might help.

I'm going to be trying some cannabis oil soon maybe in about a week or less, will tell how it is going once i start. .

I'm going to be trying some cannabis oil soon maybe in about a week or less, will tell how it is going once i start. .

 

Cannabis oil sounds awesome, although it'd be more beneficial the higher the CBD percentage. If I had the land to grow a kilo of the stuff myself without fear of being possibly arrested, I would do it this summer. Otherwise, how the heck do you afford that treatment?

Truth be told, good old St. John's Wort is helping my depression/anxiety quite a bit, but if I get cancer at some point, I will be trying the hemp oil...

Best to you all

New member here,

This topic is pretty interesting. I took Accutane 12 years ago and still suffer many side effects. Every few years I end doing a lot of research on how to fix my problems but then slowly give up until next time. [Edited image out]Some of my symptoms seems to have been caused by antibiotics I took around the same time but I sometimes wonder if Accutane still played a role somehow. My symptoms include:

- Hair loss. Receding hairline and all the hair on my head thinned. Basically became doll hair.

- Rosacea/Seborrheic Dermatitis on my cheeks and nose.

- Folliculitis on scalp, beard area, chest... and with any luck my pubes area *fingers crossed.

- Dry eyes (caused by minocycline)

- Eye floaters (caused by doxycycline)

- Fat malabsorption

My hairline receded and my hair starting changing texture pretty fast. At one point while still on Accutane I went a little nuts and just shaved my head and that's when I noticed a thick, thick layer of what seemed to be seborrheic dermatitis across my scalp. Months later the folliculitis started. Eventually the folliculitis made its way down my sideburns and into my beard and kept going.

Took a bunch of antibiotics to fight the folliculitis which just messed up my eyes each time. And something I was taking, I forget which anitibiotic but it gave me jaundice for a while.

My face slowly started getting red. Eventually it started getting slimy with seborrheic dermatitis as well.

After spending a couple years fruitlessly researching hairloss and Accutane and reading about TGF-b2 and the caspase cascade all day I gave up. These days I just want my skin to improve.

Of the problems I have it's the folliculitis that is easiest to improve. Avoiding sugar, dairy, wheat and sucking down large quantities of L-glutamine and colostrum works wonders. The only problem was a couple years ago I realized L-Glutamine was largely responsible for improving the folliculitis (it stimulates epithelial cell proliferation) and so I upped my dosage and bam! woke up the next morning with severe balance issues and muscle twitches which still persist today to a small degree. I quickly realized L-Glutamine is very bad to take if you have MS and I'm predisposed to getting it since my mother has it. So my main folliculitis fighter could no longer be used. Damn. I've slways felt my folliculitis was mainly due to intestinal permeability. What's weird about it is my folliculitis has always had a cycle all these years- it gets bad for a few days then good, then bad, then good.... on and on. The most logical explanation I could ever think of was it was following the cycle of the intestine replacing it's own wall every 3-6 days. Fun fact: the only supplement I've ever taken that has made my folliculitis worse(way worse) was Betaine HCL for some reason. It was either somehow burning me or killing off bacteria in my small intestine causing a herxheimer reflex.

Nothing I do seems to help with the seborrheic dermatitis. Well maybe a really strict diet might help but I'm lazy.

The eye floaters don't bother me that much since I got used to them a long time ago. It's still gross though if I suddenly look at a bright white wall... all those floaters... My dry eyes are much more annoying. I live in Canada and so in January you get this arctic blast of wind in your face and I look like I'm crying, I have to wear sunglasses everywhere. Some eye doctor once mentioned something about me having too much oil in my eyes. I dunno. It just doesn't look good, people think I'm a stoner cause I guess I have this glazed look to my eyes.

I found out I probably have fat absorption issues back in 2007 when I took a stool test. Most of the test looked fine but the absorption area was mostly all off. Here's a picture(sorry it's sideways ugh): [Edited image out]

The green box is the optimal area, red is bad. My triglycerides were literally off the chart.

Anyways, trying to figure out what the culprit is behind those abnormalities. Maybe pancreas, maybe bile... who knows.

Haven't read the entire thread yet but there's a lot of interesting info here. Gotta keep trying new things!

Has anyone here tried Burdock root and Yellow dock?

Hi, I've been reading up those posts for a while and decided to share my story. I took accutane roaccutane (whatever they call this shit in England) back in 2009. I don't remember exactly what was the dose but i think it was 60 mg I am quite skinny so I don't think it was more than that. Yes sure I had acne like all of as. Was it bad? Not bad enough to be prescribed this drug, I would say common acne which could maybe be controled with diffrent measures. I did try so many things over the years bc pills, antibiotics, creams blah blah, I was fed up.

My sister who suffered with severe cystic acne told me about accutane. I couldnt belive it could be this simple, pop few pills and your shity skin will be beautiful forever, yoop yoop. So I went to dermatologist and got my prescription, boy that was my mistake.

So during the tratment it was kinda ok, just usuall dry lips, dry scalp, nothing major. After about 4th month I started losing hair.

As u can expect my derma told me it will go after treatment. It didnt!!! It was three years ago. I also developed sebborheic dermatitis on my scalp and I just cant fucking belive it! The way I loose my hair is really strange, it comes and goes in cycles. I am sheddding massive amounts than it grows and few weeks later falls out again. Latley it just got worse. My scalp itches like hell and there is always some scales and dundruff present even though i wash my hair every day. I am 25 and my once beautiful wavy hair is thin and frizzy. I lost all my confidence, just cant belive it and feel like crying every day.

Other symptoms I developed is extreme joint pain, fatigue and loss of libido. Joint pain though is a killer. My hips and lower back hurt every day and I struggle at work so much I just wana cry sometimes.

People I spoke to about this dont belive me or just dont wana listen. Ive been to numerous doctors, dermatologists etc., now I reached the point i dont do anything. I know what happened to me is accutane, I know basis of how it works and what it does to cells, liver, joints and muscles. I dont know how to reverse it.

Things that I can share, which helped me are

celadrin, glucosamine and hylauronic acid for joints

For hair I tried everything, vits, herbs, shampoos, nothing works so maybe wig in the future. Just so unhappy at the moment i cant thing or enjoy anything. By the way my acne came back, only is on my back now, so yep i have acne and lots of diffrent crap, so thanks roche hope u fucking choke. Happy I found this forum though and thanks Indigo for your videos you made my day so many times.

I will continue my pointless reaserch and keep u posted. Good luck everyone

I have been to the hospital for an eye in fection not long ago. My eye was "ulcerated" and badly infected. It was pussing. It may have been unrelated or it may relate to accutane. I am concerned about balding or thinning hair and considering rogaine just in case. To the above poster, a lot of this stuff is psychosomatic. Its in your mind or your worried about it makes it a reality. Balding or thinning hair, stress can cause it as it can effect libido or erections. I for whatever reason feel all fucked up. I am trying to use holistics and organics to get me back to where I was. I am planning to see a natural path to correct the damage done through accutane. I also want to live as healthy as I can, start yoga, do it regularly, meditation frequently, stretch more, and take a happy approach to life. It kills to swallow right now even liquids or food. I am not sure if this is accutane related. One doctor said to stop taking accutane then came back saying to stop temporarily. Another doctor told me to just keep taking it. I do not think they think I am that serious. I hope i just had the flu and nothing accutane related. I may mention it to my dermatologist however, I do not want to scare him off keeping me on accutane cycle 1.

I seem to have seborrheic dermatitis too.

Scalp is bloody itchy all the time now anyway.

What the fuck is going on?

How is this happening after 6+ years of having taken the drug?

God Dammit.

I also have some kind scalp infection white pus boils(may be seborrheic dermatitis ). Olive leaf extract helped me somewhat but i still have it.

Aloevera based shampoo helps in relieving the symptoms.

My hairline has definitely receded too.. Not necessarily lately, but I'd say it's noticable, especially as my friend pointed it out to me and laughed.

Ordered Powdered Colostrum and Garden of Life Probiotics today... and will probably get Glutagenics soon.

Presuming the whole '70% of your immune system is in your gut' thing is true, it makes sense to try these.

I don't think liver supplements and the rest will do me any good. I've taken enough of them, and seen NO improvement. I still take them anyway, but only to use up.

Today I started a new job in Credit Control. Fucking going to struggle, I can tell that already.

Very stressful department, as you'd expect, and the toilets and everything else are right next to my desk, so I have no reasons to vanish for more than a couple minutes.

Therefore, my poor dry eyes and taking a bashing constantly.

Could barely concentrate today.

On a more positive note, I only have to do it for 2 months an then I can start doing Music.

I fear sometimes that I can't even sing songs without forgetting the words. Brain fog is definitely an issue. I'm hoping the gut-repair is doable and can improve things.

I'll have another Thyroid blood test in a couple of weeks, so will see if things have progressed at all.. Haven't really done much for it apart from take a NOW supplement (Thyroid Energy) which I doubt will have done much. I feel the same anyway.

I'm reading a good book called 'Depressive Illness: Curse of the strong'. It's really, really good and easy to digest (not literally - that won't help my constipation).

I went to an anxiety group last week, to meet others.

They were nice and I will go again (fortnightly), but I don't think they have much advice. Thought I'd got the wrong room at first. There were a bunch of 90 year olds in there. Turns out, the group was started 36 years ago so some of those people who first went still go, just for social reasons.

Most people give in to drug-taking (antidepressants etc) though, so I keep quiet during those conversations.

What occured to me though, because some of these people (like me, and perhaps some of you) had social anxiety, is how normal everyone looked.

I guess that's how I look to others. You forget people aren't able to read minds.

I think that covers everything for now.

Joe - Did you deliberately ignore my questions a couple of pages back?

I just want to know what side-effects you had (please remind me?) and why you believe yourself to be cured. Does it only relate to digestive problems, or have other symptoms cleared?

I'd appreciate it if you could let me know how you're getting on...

I seriously forget if the rest of you lot have jobs, and how you cope with them if you do?

My last job (which I did for just a month) was boring as hell (which I hear is fairly dull), but it was so simple I couldn't do it wrong (filing/archiving).

Now I worry I'll be incapable of working in this job. I can't work as fast as I should be able to. I have to re-check things because I've come to expect making mistakes (partly because my eyes are so dry, I find it hard to keep a close eye)

Maybe office work wouldn't be for me without these problems anyway.

I get so easily bored with repetition. I probably have ADD now...

Hope everyone is doing alright.

We're all still hanging in there, so pat on the backs all round.

I know this isn't easy, but maybe one day we'll be able to look at this in a positive light.

I hope so!

One last thing - I watched a great film last night. Wasn't expecting too much from it, because it has Edward Cullen in... (Robert Pattinson, lol).

It's called 'Remember Me'. Anyone seen it?

It's one of those 'seize the moment' films and a good reminded of what's important in life.

Peace and love x

Hey guys!

Been lurking every now and then, my acne has come back worse then before,derm recommended accutane again, told her where to shove it!

Has anyone tried ZMA? You take two caps before bed and makes you sleep better, also when you wake you'll be bursting with energy..

Just a idea to throw out there.

Good luck amd take care guys.

I am starting to take spirulina after i did alot of reading. It is extremely benificial, you guys should look into it. Chlorella is very beneficial as well in different ways. Take a look at this website: http://www.chlorellafactor.com/ It's a free "book" that you can read right there.

Note: if you purchase it in powder form you should also buy gelatin capsules and fill them because it doesn't taste very good alone so it makes it 100x easier to take in capsule form. Also look for ORGANIC spirulina/chlorella.

Some have called this book, "The most courageous voice yet..." on chlorella and spirulina. That's because inside this book, you'll get the astounding truth on how these two superfoods are far more than just "supplements" like vitamins and minerals: they are disease preventing and even reversing foods from nature that can actually help conquer cancer, nerve damage, diabetes, heart disease, irritable bowel syndrome, clinical depression, and much more.

You probably haven't heard that before, and here's why: no company selling chlorella or spirulina is allowed to tell you the truth about it. That's because the FDA would consider such statements to be "medical claims." So you never hear the real story on how these amazing superfoods can actually reverse serious diseases with no side effects and often without surgery, drugs, or other barbaric treatments like chemotherapy.

But I, on the other hand, can tell you the truth about these superfoods. That's because I don't sell them. That's right: I have nothing for sale here. I don't sell chlorella or spirulina, and I don't make any affiliate fees from anyone that you buy it from. My only financial reward comes from the Google ads that display throughout this report, and I have no control over which ads actually appear here (Google decides that).

As a result, I'm totally free to tell you the truth about chlorella and spirulina -- the kind of truth you've probably never heard anywhere else. If you're battling cancer, depression or other serious disease, or if you're looking to increase your muscle mass or accelerate your weight loss efforts or improve your mental functioning, you've come to the right place. Chlorella and spirulina can help you do all that and more!

Here's a taste of what you'll find in the pages that follow:

Which superfood provides twelve times more digestible protein than beef.How these superfoods actually rebuild nerve tissue in the brain and throughout the body. The truth about how one superfood has been shown to kill breast cancer tumors outright.Why these superfoods would cost $100 a pill if they could be patented and classified as drugs.The reason why these superfoods are called "the perfect food" for the human body.How these superfoods provide critical nutritional help for those on high-protein / low-carb diets.The surprising facts of how these superfoods provide a complete protein (all eight essential amino acids) that's rarely found in the plant kingdom.The cancer-fighting truth that modern medicine doesn't want you to know: there's a blue pigment in spirulina that shrinks cancer tumors.How these superfoods correct a common nutritional deficiency that results in poor cardiovascular health and increased risk of osteoporosis.Why you can throw out all your "bulk" vitamins and minerals once you start eating these superfoods: they provide every vitamin and mineral needed for human health in natural form, straight from nature, not from a chemical factory.How chlorella contains far more calcium than milk (and all-important magnesium, too, which is almost completely absent in milk).Why these superfoods are vastly superior to coral calcium when it comes to getting macrominerals and trace minerals from natural sources.How these two superfoods help regulate blood sugar and reduce cravings for carbohydrates.The astounding facts about how these superfoods actually remove heavy metals from your body: metals like mercury, cadmium, lead and arsenic.The truth about how one nutrient found in one of these superfood boosts brain function and literally increases mental capacity.Why people with silver dental fillings absolutely must take these superfoods to protect their nervous systems from damage.Which superfood is best for people with chronic liver disorders or who have a history of smoking or drinking.The shocking truth of how one group of students improved their academic scores by 81% from taking a tiny dose of one of these superfoods for six months.How certain ingredients in these superfoods help your body repair DNA damage to boost its immune function and even reverse cancer.The astounding truth of how one group of patients undergoing chemotherapy and radiation actually quadrupled their two-year survival rates by taking a single dose of chlorella!How one ingredient found in spirulina protects against arthritis, multiple sclerosis, asthma, and cardiovascular disease -- all at the same time!The facts on how these two superfoods can protect you from pesticides, PCBs, and other environmental toxins that are simply unavoidable in today's food supply.

The astounding health benefits of chlorella and spirulina

What can these two superfoods really do for your health? They offer a stunning array of health benefits. Chlorella and spirulina have been shown to be effective in treating and even reversing the following conditions:

• Cancers (all types)
• Obesity
• Diabetes
• Hypoglycemia
• Arthritis
• Depression
• Severe liver damage and liver disorders
• Intestinal ulcers
• Hemorrhoids
• Asthma
• High blood pressure
• Constipation
• Bleeding gums
• Infections
• Inflammation of joints and tissues
• Body odor / breath odor
• Various degenerative diseases
• Essential fatty acid deficiencies
• Mineral deficiencies (magnesium is a common deficiency)

  Both chlorella and spirulina are particularly useful for:

   

  • People with poor digestion and assimilation (these micro-algae are easy to digest and absorb)
  • People with poor vitality and anemia
  • Individuals who consumer large quantities of animal protein (the micro-algae protein, in contrast, is easier to digest and offers a far healthier balance of minerals)
  • People who eat refined or processed foods
  • People who take prescription drugs (spirulina protects the kidneys and liver)
  • People who are overweight or obese
  • People who engage in physical exercise and / or strength training
  • People with low energy levels (feeling depleted, exhausted, etc.)

   

  In fact, both chlorella and spirulina have been described as "the perfect food:"

Hey guys, keep up the good work on theorizing and trying stuff out.

I am doing pretty well. I have had a few bad days but for the most part I feel good. The eye floaters and dryness are currently the only thing driving me nuts right now.

Loving the Picamilon and Standard process supps. Thinking of trying SP's Catalyn which is their multiple vitamin. It has various organ parts from animals so I figure it might be good to do the "like heals like" approach with multiple organs. I wonder if it has kidney in it. Somebody's post about kidney stones made me wonder about low kidney function in general.

Also wanted to note that I have changed my nightly shower routine and it seems to be more effective at putting me into a deeper sleep quicker. So, I still shower everynight but I switch from hot to completely cold for the last half of the shower (I'm getting into temp change therapy a bit) then I sleep in a cold dark room. This seems to work better than just taking a really hot shower cuz that made my body so hot that it had trouble transitioning into being cold even with the A/C on blast. I'm also trying to make myself shivver more (per tim ferriss).

Somebody asked about DHEA. I think DHEA is great stuff, I take the 7keto dhea (supposed to be better) topically and it seems to help me get a few more erections. I've also taken 500 mgs quercitin (not much of a dose). It's supposed to help preserve hyaluronic acid but it is expensive for the amount you're supposed to take. Biotin also preserves HA.

Someone mentioned nausea after consuming high fat meals. I get nausea also but have not made a solid link to fatty foods but it could be the fatty foods, just not sure 100%. I made more of a link to constipation and nausea but the past few times I have gotten nauseous after eating eggs so, dammit. I like eggs.

The nausea thing made me think of another strange side effect that indigo mentioned a long time ago and I wanted to make sure every side effect gets mentioned so we can add it to our mental list. I get worse body odor post accutane. I wash my arm pits in the shower and I still smell bad afterwards and it is worse on the right side. One thing that has helped is keeping the pits shaved. Geeze.

I hope everyone is doing okay. Stay hydrated this summer, we are all 73% water (accutaners are prolly less since HA retains water).

I seem to have a lot of symptoms of anemia which is linked to vitamin a deficiency. Will take iron to see if helps.

I want to clean up my body after my cycle of accutane. I am planning to go see a natural pathic doctor after my time is done. Its pretty fucking expensive. Well over a hundred dollars an hour to see one. I want to find someone in Chinese medicine as well but, I don't even know where to look. Maybe in China town lol. I am hopeful I can reverse everything. I am going to work on doing some more meditation, praying, yoga, and a bunch other things too. I am reading lots and controlling things like worry. I am concerned with side effects and later effects but, I am confident I will be fine. I am sure you guys will be too.

I've been doing great, but two days ago I tried adding natto (fermented soybeans) and that has wrecked me. Almost through it but it sucks right now.

Otherwise, the yoghurt plus all those supplements I'm still taking have me at 100%, and I can eat an expanded diet with sweet potatoes and eggs and some fat and some veggies and most reasonable oils and spices and whatnot.

I already knew I couldn't eat wheat, guess add soybean to that list. This is a bigger allergic/intolerant reaction than wheat tho.

Damn soybeans really suck tho. Reminder of the bad old days. Odd because I don't get this reaction from soy sauce, that I've noticed, and I was using it quite a bit in cooking.

But then it was in .... oh.

I just had my gf re-read the ingredients to me. This time she FINISHED READING and said the last one, which was wheat. Left that off the first two times I asked her.

Fuck. Well that explains it. Guess soybeans are fine for me, proby.

Yes, I am too tired to edit this.

Hello. A Isotretionin sufferer from norway here.

I have read alot of your posts and have gotten new inspiration to figth this hell.

24year old male.

Took the poison for 1 month 1,5 years ago. 1 month of tetracycline first.

As there were no permanent side affects as my dermatologist reassured me, i took the shit he was forcing uppon me.

The dose was 80mg day. My weight was aproximately 80kgs.

Never been to the doctor before, weightlifing and running, being very active, abnormally healthy, never sick before.

I understood it was strong stuff as i was shedding skin, frequently bleeding from my nose and ulcerations on my hands,face, joint pain, etc.

But hey, im a strong guy, this wont last forever i thought..

One month into this i had sudden striking pain to my abdomen, which lasted for days. I had never felt anything like it and i did not dare to take more of the stuff.

The pain lasted for days, without me beeing able to even sleep, finaly i went to the doctor again, which just bullshitted me "everything is in your head" "you must finish your accutane cure". According to the doctor all blood tests were fine. I could not believe this and refused to continue the use, starting to regret pretty bad that i had even gone to a doctor in the first place.

So i went home and continued my bussiness working on cars, helping a friend move etc. Two days later i was so tired from the additional physical work i just had to lay down. All joints were now so painfull i could not straigthen my back properly, my neck was also horrible. If i bent forward i felt a verry bad feeling in the middle of my spine/ middle of stomach area, which forced me to straighten the back atleast as much as i could. That night it felt like i sufferede a small heart attack, i had never felt like this before. I woke up grasping for air, my heard varying between racing and beating very light, and beating slow and very hard. My head felt like it was going to explode, bruning pain and weird warm sensation after the fast palpations, i was dizzy, naseous, and offcourse still the stomach pains, so i stumbled to the bathroom as i had done everynight at 3-4 am the last days.. No helping there, back to bed, heartrate was stabilizing, knocking slow and hard. But i still felt like i had to force myself to breathe, like i had forgotten how to do it automaticly, using my stomach muscles to breathe. I was actually so careless to this now that if i died, so bee it. The freakin doctor said im fine, i cant wait to get this stuff all out of my body, which i though only was a matter of days now that i had quit.

It was then a coupple of days since i had stopped using it, but the side effects and actual effekts was stronger than ever, it was first now that my skin was clear, exept the one biggest pimple. (i did not have much acne to begin with only a few large pimples on my shoulders and chest , and i did not really care, but my doc dit and said it was easy and no prob to remove with this wonderdrug Roaccutane, now called isotretionin)

Well, next morning i woke up, feeling stiffer than ever, have to use my hands to grab the wall and drag my corpse of a body out of the bed. Heart still knocking way to hard, but atleast at almost normal pace(a little to fast). Like i was really drunk last night, althought i went to bed at 10 and hadnt touched alcohol for the whole month i was poisoning myself.

The heart eppisodes continued to happen when i lay down to sleep the following nights, i was to the doctor again, tried another doctor at the same office now. Nothing weird with my blood and ekg they said, must be all in your head..

And so i continued for halv a year, i continued to book doctors appointment every week begging for help. No help there, only wanted to fill me up with more shit, which i now checked before i put into my body, and they all seemed wrong for my symptoms. SSRIS, valium, melatonin, betablockers.

SSRI- no way, did not touch this. Read about it.

as my head and heart was racing all the time i tried a little bit of valium to get some rest one week i had slept almost 0 hours.

This felt relaxing, for about an hour or so, before the heart started to race again, now more violently than ever. Had sideffects from valium up to several days after taking. Once it supprised me so much that i thought i was getting an inflamation of the brain or somehting solely caused by the isotretionin.

Went to the night-ER without getting any help, driving(dangerously and megacareless) the whole night to find a doctor who would take me inn. But nobody would, this was a case for my regular doctor, since i said it all started with a drug he gave me(managed to slip that out) and therefore they would not treat me.

That night was the worst of my life. Loosing sensation of the whole body, i couldnt feel my skin, all over my body. If i managed to nap alittle i would have to wave all my limbs around for minutes to get them to move again when i woke up. And everytime i almost fell asleap i ... No you know what, this story is horrible and i dont want to go into the details.

Fortunately it was the valium withdrawal who enhanced all the problems i had after taking roaccutane. I surwived that night as well. DO NOT TAKE VALIUM EITHER.

Lesson learned.

Melatonin did not work for me, it did not help me fall asleap, only made me dream while i was awake, which was really really scary. That was the actual reason for me trying the valium because i just wanted to sleep ,not here voices. Only used this this one time.

Betablokkers also sounded like a really bad drug and i did not want to take that either. I wanted to find out the root of the problems not try to mask them. The doctor is so nice to assure me that it is pointless to try to find out why im sick and that i should just eat me prescription. Nice guy..

Using tens of thousends of kroners on Accupuncture, doctors, both private and state, neurologists, nothing curing me, but some things helping.

If i had not managed to finish school and get my dreamjob before i took the poison i wouldnt have afforded any help, but i was fortunate and could. If this would have hit me while i was just a little younger, trying to finish a degree it would be much harder for me.

Fast forwarding, had some powerfull contacts in Asia, went there and tried HBOT therapy(helped for headaches, maybe permanenlty as i have not gotten them so bad again, saw someone on the forum having em) and did all checks again, apparently i had gotten a hiatus hernia with a polyp and uler which bledd, abnormal heart rate but healthy heart, abnormal nervous function, and a gallbladder full of small lumps, either polyps or stones, but small and it should still work. Did not dare to operate on anything while i was there due to no family there if things went bad.

It seems going to a doctor which has absolutely nothing to do with my condition on the other side of the world (norways is SMALL) gave me other test results.

Slamming the paperwork on the desk of my doctor and yelling him out, was the last thing i did at my general practitoneer in norway, he had also LIED about other test results, saying that i had been tested for hypovitaminous A and other vitamin mineral deficancies which i did not have. He had done no such thing.

He had also not seen a dropping hemoglobin from bleeding in my stomach, which i saw mediately going through his test results. From top to bottom of refference.

Had the polyp in the stomach removed in a private hospital in norway, which maybe was not the smartest thing to do because it was only a skin flap from a hernia, and im not sure if the should have removed it or not. Seems like pain only got worse. But atleast it wasnt really a polyp. He guaranteed me that it was pharmacutically induceed which was a good thing to here though.

LET THERE BE NO DOUBT. YOU DO NOT WANT TO TRY ROACCUTANE/ISOTRETIONING OR WHATEVER THEY RENAME IT.

im out of energy now but i will continue when i can. I have gotten alott better, but still have a serios sleeping issue, see floaters and colours huge dilated pupils, lack of energy, well the list is long but im muchMUCH better now.

I'm fucking tired of living like this now. It's torture.

I can't even function.

Every minute at my new job, I just think 'How the hell can I get through another day of this'... bear in mind, it's day two.

Really having difficulty concentrating/coping.

Torn now. I know I'm in no state to work, but I need money.

How on earth are we ever going to get out of this mess?

I can't cope now and I'm 22, with no real bills to pay, no house to run, no kids to look after.

Feeling absolutely terrible about life again.

I even pace in my room and talk out loud, as if to God, but he never seems to listen.

Maynerd - How are your gums now, after the surgery? (I think it was you who had the grafting)

Mine are looking worse.

Everything's looking worse :/

I really don't know how none of us have killed ourselves yet.

I just got done with my second to last checkup they cleaned my teeth. Most important for those of us with dry mouth to keep the plaque from wedging between the teeth and gums.

Apparently my mouth has recovered very well. It basically feels like no surgery had even taken place, except I feel like I have some mild recession in places where they tied up the stitches... She said it's normal and should basically puff out again.

Non-taners with Sjorgens have found gum relief with hyaluronic acid. I'm pretty pissed off right now about the situation we're all in. Makes me want to hurt those who were irresponsible and are therefore responsible. My eye floaters are really shitty today. Lots of them and are big. Was thinking maybe I should just say fuck it and try like 600 dose of the highest qualitiy HA I know of, which is resvitale (collagen enhance).

Anyways, my energy is actually pretty decent today so I need to move forward with the day and not stress.

Word to the wise - become a stoner or druggie before you kill yourself and if you do kill yourself, plot it out in dramatic fashion in order to indict accutane and get attention. This will help those who continue to live shed light on solutions.

I was thinking. Let's say we get some kind of financial investment to help solve our problem. What would we do with it? I would probably reach out to timothy ferriss and let him try experimental shit on me. But do we have an objective measure of success, that if we were to reach it we would know? I guess you can measure floater and boner frequencies... idk, I think it's an important question: If money weren't an object what healing ideas would you invest in?

Hey. The eye floaters are a real pain, I know.

Good about the gums, I s'pose, though I still want to know what's causing mine.

Stress? Dry mouth? Both?

So many unanswered questions...

I think if I had unlimited money, I'd focus mainly on eliminating stress.

It's darn hard carrying on with a 'normal' life when I feel like this (as you'll know).

Not working would make things a lot easier.. Lying in bed in mornings.

Not the whole answer, because 5 months off last year didn't help things. I was still saying I wanted to kill myself, and was still obsessing over this stuff.

Not sure how to stop it though. Anything I do reminds me of how unwell I am.

But I'd definitely focus on seeing some experts, buying the best foods and highest quality supplements.

I think this has become a game though. The objective is to eliminate stress, and figure out how to deal with this (maybe before I lose my teeth or something else).

I really believe our minds need more fixing than our bodies.

Not because we're deluded, but because we need to feel happy again, perhaps before we can get better.

Sort of like the chicken and egg scenario... Does happiness have to come before we get better, in order to get better? Or will we only be happy if/when we get our health back on track?

Fuck knows.

What would the rest of you spend money on?

I feel like some peoples hypochondrism and anxiety of "possible" side effects sometimes cause them. Don't read crap online - go read symptoms of excessive anxiety, that can ruin your life as well.

For me, I'd only be happy if I got my health back to how it was before.

Not long ago I had a single capsule of Renew Life Ultimate Flora Critical Care 50 Billion Probiotics. I felt weak for days, my stomach/digestion felt sluggish for days, and lost my appetite for days. Seems like my body can't even digest a capsule any more. I truly am fucked. Whenever I tell my Dad a problem I have, he suggested that I go to the doctors. I understand why my Dad says this - if the roles were reversed, I'd probably say the same (if I hadn't had such a horrifying experiecne with them 'doctors'). I wouldn't want someone for their life to crumble and suggest 'to do nothing'. And that's where this is really hard. I know my body, and I've known how I've felt since taking Roaccutane. I KNOW nothing can be done. Yet, when I tell my Dad this, understandably he gets frustrated. And it's the impact it's having on my whole family, as well as myself, that really, really angers me. My whole family are apparently 'worried' about me, and yes, the have every reason to be. Yet their is nothing I can do to stop that. I am never ever going to forgive Roche, the makers of this drug, for doing that. I'm going to have to accept I'm going to be depressed/suicidal for the rest of my life, because of my health, and by living life like that, I'll be bringing everyone else down with me too. The only way I can see myself getting my health back, after 9 years of degeneration, would be for a miracle. And I don't believe in miracles anymore.

Fucks sake this makes me freaking sad. All you guys suffering myself too... I just can't take it much longer dealing with this shit. I never wanted to come on here and complain but every day i live in hell because i live with a psychotic B for a mother who has pretty much tortured me my whole life and now that i can barely walk and function i am constantly being threatened to get kicked out and all this crazy shit you would not believe...has already happened multiple times where i have been homeless practically dying outside... I'm so done. I am waiting to get that glass vaporizer to make the cannabis oil i truly believe that is going to be the cure...just smoking some helped me feel alot better and like you said indigo alot of this is mental stress that needs to be removed asap....Tired of this shit im going to go out right now see if i can get some... In the mean time i eating healthy as usual and taking spirulina i feel as if it gave me a boost of energy i know its super healthy. Money is running low now for me since i haven't worked in months but i'm looking for another job now... Fuck roche i hope they burn in hell...

well guys, i dont know if anyone has already posted this and it makes for pretty grim reading but here is a scientific breakdown i found on the effects. Who knows how accurate it is but so many of the issues listed i can identify with i think its worth sharing. its ; [Removed]

Again i dont know what else has been written on this site but some other guy on [Removed] has a few interesting ideas. Some is obviously conjecture and speculation , but i think some of what he says appears valid to me and i'm guessing some of you guys too.

Ok, so i took this stuff in 94 just before my 15th birthday and am now early 30's am moved to write down something on here tonight(never written anything anywhere before) as i saw one of the indigo guys videos on youtube a while back and told myself when i was completely fixed i was gonna give him the gameplan. Well am not completely fixed but have some reasonably good news to give you.

Where to begin?? As soon as i had taken this stuff i knew something was wrong, its a long time ago but i think it was one then two pills a day for about 6 months, like many of you was lied to about side effects- flaky skin, dry out the oil wonderful stuff - thanks expensive but clearly useless consultant- who by the way i tracked down about two years ago and called up to give a piece of my mind to and he told me he was still shelling it out and had given it to his daughter, the latter part a lie im sure but the former indicative of the malaise , greed and misaligned morals of many of these guys who flog this stuff.

Anyway to summise somewhat, had reasonably bad facial spots but nothing else, doctors esteemed insight : antibiotics for a year- thanks a lot. This obviously just messed the situation and my gut baceria and hence immune up even more - things you dont know at 14 when none of this stuff seems that important, when your fully involved in school and not prepared for a life of health hardships. Ok that didnt work hence next advice from consultant roaccutane, this was obv the game changer and then followed up by more doctor advice take beta blockers for the the anxiety you have develpoed out of nowhere - took them for a bout 3 months i think.

Ok, so about this time, i go from getting academic scholarship to senior school and being post gcse level at about 13 to regressing, well at least having next to no interest in school work, crazy tiredness, mood swings, awful sleeps, anxiety, fear and loads of outpourings of grief. I dont know whats wrong, parents dont know...etc etc

Its getting a bit late will finish this off tomorrow, basically ive been seeing a guy in london for the last 8 years and obviously its not a miracle cure otherwise i wouldnt still be seeing him. However i am the first guy he had ever seen with damage of such a level due to roaccutane and as such im the first guy to map out a system of response to it. If 100 or even 10 had gone before the steps to progress would have already been mapped out. However my 8 years has been a blueprint of sorts. I was never afforded blood tests to check liver enzymes whilst on the stuff, things that i think are standard nowadays or should be, so early problems are highlighted more quickly. Its been a combination of cranial sacral osteopathy, nutrition and homeopathics in a specific amount that my body is asking for. I also went down with bacterial meningitis at 17 so we have had to dig that out, radiation poisoning (dont know where i got that from- thin skin weakend immune due to roaccutane- who knows??), mercury poisoning_ (all those things im sure due to roaccutane weakening me , making me more susceptible). i hit the most productive part of the curve when we identified poisoning and systemic change to adaptive chemistry in general metabolism- im guessing the roaccutane is the poison and the change the effect of the roaccutane. However since that ive had to dig out flu and now most recently coxsackie a and eb virus that have come on display via homeopathy (theyre old/not fresh) which i guess a lot of people get stuck with after this. My current problem is fungus mostly locked in the skin but definitely systemic to a degree. Am gonna go see the guy on fri, he doesnt advertise and is full with intl clients for all sorts of maladies, if he gives me ok will pass his number onto indigo guy and take it from there. As would prob help me too if he can see some more people with similar issues.

Dont want to deflate anyone but this thing is fucking hard as im sure you all know. Ive been on this non stop for 18 years, from tibetan medicine to acupuncture, tuina, diet, meditation, martial arts (mainly internal bagua etc), yoga, iv vitamin drips (which were pretty good actually- kick started me when gut wouldnt seem to absorb anything), health and diet specailists and im still not right. However i am so much better than i would have been, basically i wouldnt have been here without it all.

The comfort i try and give myself is that hopefully this is all karma trying to resolve/resolving. seeing it as chance doesnt work for me, of course we dont know definitively whether we are one and done, but i look at the seasons and nature and dont see much in it that is chance and dont believe i did anything in this life to deserve this for myself or the effect on my family and loved ones. if nothing else this gives us a window to our world so few slow down, or in our case are slowed down, to see. I.e the nature of life and our place in it. These are inevitable questions that arise when you suffer so much and feel you did nothing to warrant it. Taoism as a phliosophy (i dont do religions) is something i have found resonated with me: iching, tao te ching a couple of good places to start, zen (cha'an) buddhism also offers some ideas about seizing now, empty minded. Another thing is that even if your body feels like a prison most of the time, your mind is free-the brain, and trust me i know, not so much- but meditation was the only thing that helped me back in the day and i would sit and do that and the chi gung every night and morning even though the tiredness was so bad. Good luck everyone and your not alone. Dont give up, to quit is easy. Its about fighting and living and breathing. The best we can.