2 minutes ago, TrueJustice said:

Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga?

You folk in the US should be happy, I heard today you can buy pot legally in California?

Who gives a damn about pot when our lives are ruined

People who are ill, people who have to live with pain etc - thats who!!!

4 hours ago, TrueJustice said:

Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga?

You folk in the US should be happy, I heard today you can buy pot legally in California?

Maunawai water the best and purest water in the world , and remember don™t rub your skin unless you want to have a heart attack our skin cell receptors have been permanently messed up.

Trust me I found this out the hard way by rubbing witch hazel on my chest for mild acne . I had chest pain for three days after that coupled with heart populations, so don™t do it.

I must say
whoever masterminded this CHEMO torture deserves a monument in HELL.

5 hours ago, sirhc30 said:

I noticed only male users in this forum report about long-term conditions after accutane, is it right?

No, we have several women sufferers that check in once and a while on this thread and we get messages from new sufferers every now and then. They are just more practical and see that this thread doesn't lead anywhere and move on with their lives.

^ can any mod delete above post?

Your brain fog is caused by depression.
Every time I hear somebody saying "Accutane caused brain fog", "finasteride caused my brain fog" and shit like that I know that these medications only increased the depression that already was there but kept in check.

Indeed both Finasteride and Accutane, have as side effects an aggravating of depression symptoms.

Depression is cased by brain chemical imbalances (neurotrasmitters don't work as they should) and that cause your inability to concentrate, focus, being productive, lack of motivation, lack of energy, difficult to put a sentence together, forgetfulness ecc

Many people just don't accept depression as a diagnosis, they think they have some hidden secret disease but what they have is just that: depression or major depression.

Taking antidepressants can somehow improve the symptoms but the only thing that will cure you is fixing what you don't like in your life and that deep down make you suffer.
Is that acne? Another physical flaw? A relationship? Your family? Work? University? A disease? ecc
Fixing what make you suffer is very difficult and that's why very few people get rid of their brain fog.

It's crazy how many of you think accutane caused you this elusive disease that no doctor or science recognize....accutane just caused your depression. And depression can be very bad because, if serious, your mental symptoms are similar to the ones of a person with dementia/Alzhaimer and in addition you have the lethargy.

The only true reason why 99% of people develop brain fog:

https://www.healthyplace.com/depression/symptoms/brain-fog-a-symptom-of-depression/

11 hours ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent way unfortunately , you have to watch your diet ie vitamin A and retinol to be avoided or at least limited , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they are after all permanent .... this board has been officially shut down , by me .

You might be right and I am no longer thinking a cure is possible.
But somehow you have to find a liveable state.
What I would say is that whatever anyone tries, be it TRT or an aromatise inhibitor etc - nothing will work unless you
have done lots of groundwork e.g exercise, diet and putting right any deficiencies.
If and when the body is ready - it may just be possible to make added improvements with with certain protocols.
I can't see that anyone would disagree - you got to live as clean as possible for as long as possible.

How many guys on this forum do you think have worked on their basic health issues to the degree that we know is necessary.
You can all argue that you have but if you are honest I am sure you would agree that you have not.

Not for one minute am I saying it is easy and for most I really think it is impossible.
It would take a supreme effort and when you all have horrific health issues to deal with it's an even bigger effort to implement all the changes that are necessary and for the years that it would take. Added to that, to see little or no improvements makes it even harder.
Added to that all the negativity and completelack of any recoveries all makes everything completely hopeless.

But what do you do - live a hopeless life or keep trying to improve things.

We have a big problem - hardly anyone reports their side effects, this is a fact!
Very few are trying to raise awareness about the dangers of accutane so there will be many more victims.
I draw a blank on why any health care provider would prescribe this drug and why the regulators allow it to be on the market.
They say it is the only option for severe acne but does anyone believe that the pharms are looking for safer options - why would they when they are allowed to sell accutane.
PFS have got studies going on to see what is going wrong but i don't believe they are actually looking for a cure.
Accutane victims have absolutely no researchers investigating accutane on their behalf or trying to find a cure.

We don't even have a helpline group or anything like it - just these hopeless forums.

It will continue to be hopeless unless everyone reports their side effects.
We need to gather case histories.
Strength in numbers will eventually lead to recognition and the need to help accutane victims.

I would prefer not to hear from anyone who says reporting is a waste of time.
It may be a waste of time for you but it might just help other kids in the future.

If I had loads of case histories presented like Toggs and a few doctors to back me up I could go to the highest level and knock on every door
until we have our voices heard.

We need an action group and a helpline to really get the data that is required.
I like to think that eventually there would be orders demanding that something is done about this whole sorry business.

For anyone who is interested you can access reported adverse side effects of any drug.
I have a copy of all reported side effects and I think you would all be shocked at how it reads.
If I recall correctly less than 50 have reported ED and about the same for diminished libido.
About 170 sexual side effects reported in total!
This is the records help by MHRA UK - Roche are obligated by law to share their reported side effects so this would include their figures.
They have never followed up so have no data on how persistent or permanent sexual sides might be.
20 suicides between 2012 - 2014 that's nearly 1 per month.
At least 1 murder if I recall correctly.

Do any of you really believe that these reported side effects are representative of the true numbers?

Well there we have it - practically nothing being done.
Our only hope at the moment - Dr Healy's (Rxisk) competition.

Anyone who wants to be part of a focus group please PM me and we will see what we can do.
I am willing to try anything and open to anyones ideas.
Lot's of data surely might help someone bring a legal case one day.
We can only live in hope.

This is timely. Just saw this on Yahoo the other day.
https://www.yahoo.com/news/solange-opens-autonomic-disorder-she-153526028.html

Solange Opens Up About Autonomic Disorder She's Been Battling For Months

Although the singer-songwriter didnt share what kind of autonomic disorder shes currently fighting,the disorder generally targets a persons nervous system resulting in problems with blood pressure, heart rate, body temperature and more,according to the Mayo Clinic.
http://www.mayo.edu/research/departments-divisions/department-neurology/programs/autonomic-nerve-disorders

AUTONOMIC NERVE DISORDERS

Autonomic nerve disorders (dysautonomia) refer to disorders of autonomic nervous system (ANS) function. Dysautonomia is a general term used to describe a breakdown or abnormal function of the ANS. The autonomic nervous system controls much of your involuntary functions. Symptoms are wide-ranging and can include problems with the regulation of heart rate, blood pressure, body temperature, perspiration, and bowel and bladder functions. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness, and cognitive impairment.

digestion is controlled by the autonomic nervous system. When the ANS malfunctions, the "victim" commonly develops gastrointestinal problems. Symptoms include nausea, bloating, vomiting, severe constipation, and abdominal pain.

Autonomic dysfunction can occur as a secondary condition of another disease process

Testing positive for the acetylcholine ganglionic antibody would show signs of altered nervous system function post drug treatment of
Accutane, Propecia or SSRIs.
One more person testing positivefor this wouldn'tbe a coincidence because of its rarity.
Looking at big picture, this would be one way of setting things in motion or starting to paint a better picture of what might be going on if something was found here.
Or at least a step.

16 hours ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent way unfortunately , you have to watch your diet ie vitamin A and retinol to be avoided or at least limited , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they are after all permanent .... this board has been officially shut down , by me .

Completely disagree. I avoided vit A for 7 years and got worse. Now im taking it in the form of cod liver oil im seeing a lot of benefits.

1 hour ago, guitarman01 said:

This is timely. Just saw this on Yahoo the other day.
https://www.yahoo.com/news/solange-opens-autonomic-disorder-she-153526028.html

Solange Opens Up About Autonomic Disorder She's Been Battling For Months

Although the singer-songwriter didnt share what kind of autonomic disorder shes currently fighting,the disorder generally targets a persons nervous system resulting in problems with blood pressure, heart rate, body temperature and more,according to the Mayo Clinic.
http://www.mayo.edu/research/departments-divisions/department-neurology/programs/autonomic-nerve-disorders

AUTONOMIC NERVE DISORDERS

Autonomic nerve disorders (dysautonomia) refer to disorders of autonomic nervous system (ANS) function. Dysautonomia is a general term used to describe a breakdown or abnormal function of the ANS. The autonomic nervous system controls much of your involuntary functions. Symptoms are wide-ranging and can include problems with the regulation of heart rate, blood pressure, body temperature, perspiration, and bowel and bladder functions. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness, and cognitive impairment.

digestion is controlled by the autonomic nervous system. When the ANS malfunctions, the "victim" commonly develops gastrointestinal problems. Symptoms include nausea, bloating, vomiting, severe constipation, and abdominal pain.

Autonomic dysfunction can occur as a secondary condition of another disease process

Testing positive for the acetylcholine ganglionic antibody would show signs of altered nervous system function post drug treatment of
Accutane, Propecia or SSRIs.
One more person testing positivefor this wouldn'tbe a coincidence because of its rarity.
Looking at big picture, this would be one way of setting things in motion or starting to paint a better picture of what might be going on if something was found here.
Or at least a step.

I will try my hardest to get this done. Really dont apply to a lot of the symptoms but its worth a shot.

If anything my heart rate LAUNCHES during exercise...

6 hours ago, SimpleMutton said:

It's crazy how many of you think accutane caused you this elusive disease that no doctor or science recognize....accutane just caused your depression. And depression can be very bad because, if serious, your mental symptoms are similar to the ones of a person with dementia/Alzhaimer and in addition you have the lethargy.

23 minutes ago, sirhc30 said:

Immediately after Accutane, I got visual snow, low vision, double vision, Palinopsia. These Symptons can not caused by Depression!

Nevertheless, I think that you are partly right. The depression causes even more symptoms and intensifies the original symptoms. I think if we treat depression and anxiety, most of us could live normal again.

You're right, these symptoms are probably not caused by depression but all the mental symptoms (brain fog) are totally caused (and intensified) by depression

I, myself, couldn't even form proper sentences in my native language anymore....I just couldn't remember the right word to say, couldn't focus on anything.
When I was at my worst I couldn't even read and understand what I was reading....for example I could read a word like "star" and I'd have to re-read it multiple times because I couldn't understand the meaning of that (and many other) simple words.
Studying for college was impossible, I was very unproductive. Zero energy. Even focusing for simple things like watching a movie was very hard, had to pause it every now and then to refocus.
I thought I developed dementia or Alzhaimer (or ADHD at the very least) and I also blamed some elusive disease that caught me after accutane and finasteride but I was so wrong.

I just had depression. Both finasteride and accutane aggraviate depression a lot. And depression=mental fog/brain fog. Not suicide thoughts or schizophrenic behaviour as many people think.

For example, back in 2016 I had a good year with very good things happening to me and all those symptoms magically disappeared completely.

In the recent months I went into a full throttle depression again and the symptoms reappeared as strong as ever

Wasted so much money on so many supplements, diets and stupid theories.
Getting rid of depression isn't easy though....it's actually very hard...that's why brain fog is very persistent for many people

[Edited link out]

Just like accutane - victims don't talk about the sexual sides but it is a common factor.
Just like most of the autoimmune diseases: Parkinson, MS, CFS, diabetes, epstein barr and mono.

Mono is associated with accutane and many report this side effect.
All of these are hard to treat but with persistence some claim to recover.

One interesting guy is doing well fighting Parkinsons - youtube Colin Potter shares his protocols.

[Edited video out]

You might be wondering why I am bring this to your attention.
Well at least there is some research going into these disease unlike accutane.
So it is worth considering recoveries and learning from their protocols.

We got to keep up the hope right?

39 minutes ago, SimpleMutton said:

You're right, these symptoms are probably not caused by depression but all the mental symptoms (brain fog) are totally caused (and intensified) by depression

I, myself, couldn't even form proper sentences in my native language anymore....I just couldn't remember the right word to say, couldn't focus on anything.
When I was at my worst I couldn't even read and understand what I was reading....for example I could read a word like "star" and I'd have to re-read it multiple times because I couldn't understand the meaning of that (and many other) simple words.
Studying for college was impossible, I was very unproductive. Zero energy. Even focusing for simple things like watching a movie was very hard, had to pause it every now and then to refocus.
I thought I developed dementia or Alzhaimer (or ADHD at the very least) and I also blamed some elusive disease that caught me after accutane and finasteride but I was so wrong.

I just had depression. Both finasteride and accutane aggraviate depression a lot. And depression=mental fog/brain fog. Not suicide thoughts or schizophrenic behaviour as many people think.

For example, back in 2016 I had a good year with very good things happening to me and all those symptoms magically disappeared completely.

In the recent months I went into a full throttle depression again and the symptoms reappeared as strong as ever

Wasted so much money on so many supplements, diets and stupid theories.
Getting rid of depression isn't easy though....it's actually very hard...that's why brain fog is very persistent for many people

In a nutshell this is what Ive experienced too after tane, the depression, tiredness and brain fog - to this day I still have it.

How are you trying to fix it though?

Ive been on many different antidepressants over the years but they only take the edge off & dont completely fix the problem. I also want to add like someone else said, I got eye floaters and bad light sensitivity so Im thinking thats more related to TBI rather than clinical depression, thats why many of us have had brain scans etc looking into trauma rather than neurotransmitters yeah!!??

So yeah totally agree about depression but Id love to have more insight if its deeper than a chemical imbalance and is more due to TBI?

29 minutes ago, TrueJustice said:

In a nutshell this is what Ive experienced too after tane, the depression, tiredness and brain fog - to this day I still have it.

How are you trying to fix it though?

Ive been on many different antidepressants over the years but they only take the edge off & dont completely fix the problem. I also want to add like someone else said, I got eye floaters and bad light sensitivity so Im thinking thats more related to TBI rather than clinical depression, thats why many of us have had brain scans etc looking into trauma rather than neurotransmitters yeah!!??

So yeah totally agree about depression but Id love to have more insight if its deeper than a chemical imbalance and is more due to TBI?

I tried lots of things and blamed pretty much everything for my brain fog symptoms (I thought accutane caused gluten sensitivity, other food sensitivity, leaky guy, candida, brain inflammation, testosterone deficiency, vitamins deficiency, Lyme disease, other virus, some mysterious bacteria that passed the blood/brain barrier, hormonal imbalances ecc) .
I didn't want to accept I just had depression because I used to link depression to other symptoms and used to think it was some fake illness that weak minded people claimed to have.

But depression is just chemical imbalance in the brain and, of course, if you have chemical imbalance your neurotrasmitters don't work properly and you develop brain fog and apathy.
Accutane actually has been shown to cause some psychological side effects. The same is true for finasteride that creates the same mental side effects.

I haven't treat it with drugs because drugs (antidepressants) don't really cure depression, they just numb you....
But I can say this, I had one year where things got really good in my life and my brain fog pretty much disappeared and the same is true for lethargy and lack of energy/enthusiasm/motivation.

Then I got into depression again, bad things happened in my life and symptoms reappeared

Treating depression mean tackling our problem that caused our depression.....everybody has its own, some are fixable some not so for some/many people the brain fog is permanent

I completely don't believe any of us had any brain trauma related to accutane, I mean even looking at these things is wrong. Brain trauma are caused by other things, we're just so desperate to find something rare that we get this weird theories.
But I can understand....I used to do the same and blame some insane things because I thought only same rare elusive things could be the cause.

How could brain fog caused by a common thing like "depression"? Thought I was a special snowflake and I was wrong and lost so much money in stupid analysis and cures

Been having slight prostate pain quite often lately...

Its not excruciating and generally goes away after some time but its still there. Usually after masturbation

Keep in mind, tane has been shown in some to cause interference in frontal lobes of brain - therell be some who say thats bullshit but those reports I dont believe were just made up.

Call it TBI, call it something else, trauma to the brain can lead to depression.

Im just trying to find out if its treated differently to normal for want of a better word clinical depression?

hyperbaric chamber etc rather than just antidepressants?

9 hours ago, SimpleMutton said:

Your brain fog is caused by depression.
Every time I hear somebody saying "Accutane caused brain fog", "finasteride caused my brain fog" and shit like that I know that these medications only increased the depression that already was there but kept in check.

Indeed both Finasteride and Accutane, have as side effects an aggravating of depression symptoms.

Depression is cased by brain chemical imbalances (neurotrasmitters don't work as they should) and that cause your inability to concentrate, focus, being productive, lack of motivation, lack of energy, difficult to put a sentence together, forgetfulness ecc

Many people just don't accept depression as a diagnosis, they think they have some hidden secret disease but what they have is just that: depression or major depression.

Taking antidepressants can somehow improve the symptoms but the only thing that will cure you is fixing what you don't like in your life and that deep down make you suffer.
Is that acne? Another physical flaw? A relationship? Your family? Work? University? A disease? ecc
Fixing what make you suffer is very difficult and that's why very few people get rid of their brain fog.

It's crazy how many of you think accutane caused you this elusive disease that no doctor or science recognize....accutane just caused your depression. And depression can be very bad because, if serious, your mental symptoms are similar to the ones of a person with dementia/Alzhaimer and in addition you have the lethargy.

The only true reason why 99% of people develop brain fog:

https://www.healthyplace.com/depression/symptoms/brain-fog-a-symptom-of-depression/

I had severe depression before taking Finasteride. I never had brain fog. The brain fog didn't show up until my libido started to drop.

4 hours ago, Justdry said:

20 hours ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent way unfortunately , you have to watch your diet ie vitamin A and retinol to be avoided or at least limited , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they are after all permanent .... this board has been officially shut down , by me .

Completely disagree. I avoided vit A for 7 years and got worse. Now im taking it in the form of cod liver oil im seeing a lot of benefits.

Our bodies somehow respond differently to vit A and retinol , but if it works for you great , one thing I know FOR SURE our bodies really have been permanently altered by this drug , no question . 30 years later they still don't know how it works what a joke . Honest derms will tell you joint pain and depression are related to isotretinoin . I would describe it more as mental dips that come and go . Being chronically dehydrated cannot be healthy , no way , that is it's main problem or main effect .

And so it's no wonder that some derms refuse to even use it in their practice only as a last resort
for severe cystic nodular acne , think about that not mild not moderate SEVERE . Accutane cures acne with side effects is right key words with side effects.

25 minutes ago, ailaeshiz said:

9 hours ago, SimpleMutton said:

Your brain fog is caused by depression.
Every time I hear somebody saying "Accutane caused brain fog", "finasteride caused my brain fog" and shit like that I know that these medications only increased the depression that already was there but kept in check.

Indeed both Finasteride and Accutane, have as side effects an aggravating of depression symptoms.

Depression is cased by brain chemical imbalances (neurotrasmitters don't work as they should) and that cause your inability to concentrate, focus, being productive, lack of motivation, lack of energy, difficult to put a sentence together, forgetfulness ecc

Many people just don't accept depression as a diagnosis, they think they have some hidden secret disease but what they have is just that: depression or major depression.

Taking antidepressants can somehow improve the symptoms but the only thing that will cure you is fixing what you don't like in your life and that deep down make you suffer.
Is that acne? Another physical flaw? A relationship? Your family? Work? University? A disease? ecc
Fixing what make you suffer is very difficult and that's why very few people get rid of their brain fog.

It's crazy how many of you think accutane caused you this elusive disease that no doctor or science recognize....accutane just caused your depression. And depression can be very bad because, if serious, your mental symptoms are similar to the ones of a person with dementia/Alzhaimer and in addition you have the lethargy.

The only true reason why 99% of people develop brain fog:

https://www.healthyplace.com/depression/symptoms/brain-fog-a-symptom-of-depression/

I had severe depression before taking Finasteride. I never had brain fog. The brain fog didn't show up until my libido started to drop.

That's because accutane and finasteride aggraviate it, indeed Merks (the company that made propecia) had to add depression to the possible side effects of propecia.
Depression=brain fog

When I took accutane I was laughing at the possible psychological side effects listed, never had any suicide thought and even depression, I thought it was some bullshit myth women blamed for their problem, not a serious legitimate thing

only later I found out depression=chemical imbalance in the brain=brain fog

some drugs just cause this chemical imbalance in the brain, neurotrasmitters don't work properly anymore and without them we feel these symptoms that are depression related

Antidepressants may help a bit but not much

If it was something "serious" like a brain trauma, an infectious disease or early dementia then after 10 years we should feel much much worse (or be even dead)
Instead we feel pretty much the same amount of brain fog, it just goes in waves

On 1/3/2018 at 8:10 AM, SimpleMutton said:

If it was something "serious"

It might have potential to be. I also believe there is potential to degrade over time, people would become less self aware because its very gradual.
They would forget what used to be normal.
I tested positive for this test. This isnt depression. Someone else tested positive for this as well that took Accutane. They also tested positive for inflammation on a brain PET scan. Again this isn't caused by depression but could be the other way around.
[Edited link out]
Positive for the acetylcholine ganglionic neuronal antibody to be exact.

On 1/3/2018 at 4:55 AM, Colinboko said:

If anything my heart rate LAUNCHES during exercise...

So did mine.

2 hours ago, TrueJustice said:

Keep in mind, tane has been shown in some to cause interference in frontal lobes of brain - therell be some who say thats bullshit but those reports I dont believe were just made up.

Call it TBI, call it something else, trauma to the brain can lead to depression.

Im just trying to find out if its treated differently to normal for want of a better word clinical depression?

hyperbaric chamber etc rather than just antidepressants?

Accutane interfereres with brain, and pituaitary... almost everything in fact.

Depressions has been statistically proven by rechallenge. On many people.

On 1/3/2018 at 8:43 AM, guitarman01 said:

It might have potential to be. I also believe there is potential to degrade over time, people would become less self aware because its very gradual.
They would forget what used to be normal.
I tested positive for this test. This isnt depression. Someone else tested positive for this as well that took Accutane. They also tested positive for inflammation on a brain PET scan. Again this isn't caused by depression but could be the other way around.
[Edited link out]
Positive for the acetylcholine ganglionic neuronal antibody to be exact. So did mine.

Yeah but an increased heart rate could be the result of a MILLION different things. Ill still try to get tested but it doesnt even exist through the lab thats covered by my insurance.

On 1/3/2018 at 8:43 AM, guitarman01 said:

It might have potential to be. I also believe there is potential to degrade over time, people would become less self aware because its very gradual.
They would forget what used to be normal.
I tested positive for this test. This isnt depression. Someone else tested positive for this as well that took Accutane. They also tested positive for inflammation on a brain PET scan. Again this isn't caused by depression but could be the other way around.
[Edited link out]
Positive for the acetylcholine ganglionic neuronal antibody to be exact. So did mine.

I am becoming more scared by each day... I will do some tests as well. Accutane does mess up immune system as well. I will strat with autoimmunes.

What a joke. We took a pill nobody knows how works exactly... I think some effects are logn term. Some appear later.