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11 minutes ago, Colinboko said:Yeah but an increased heart rate could be the result of a MILLION different things. Ill still try to get tested but it doesnt even exist through the lab thats covered by my insurance.
I wouldn't exactly call it increased heart rate, more like heart rate variability. I could give numerous examples of how this antibody might apply. The fact that it affects the nervous system means it could have a vast range of implications. I believe though this could be vascular in nature and the immune system might not be involved.
Most labs/health networks can ship out to Mayo Clinic. Mine did. You can just call your doctor or lab to check. Also I would verify the CPT codes on the test with your insurance to make sure its covered as diagnostic. It should be.
3 hours ago, hatetane said:Just like accutane - victims don't talk about the sexual sides but it is a common factor.
Just like most of the autoimmune diseases: Parkinson, MS, CFS, diabetes, epstein barr and mono.Mono is associated with accutane and many report this side effect.
Someone tested for mono? I had high liver values at that time (1 week before I started the therapy, plus lung pain, after a week everything was fine and I started with Accutane). Maybe we have the side effects because we had Mono while on Accutane.
1 hour ago, SimpleMutton said:If it was something "serious" like a brain trauma, an infectious disease or early dementia then after 10 years we should feel much much worse (or be even dead)
Instead we feel pretty much the same amount of brain fog, it just goes in waves
I have other experiences. First years after accutane it got worse and worse and suddenly it changed, since 3 years my health is constantly improving. I stopped Accutane over 10 years ago.
17 hours ago, macleod said:No, we have several women sufferers that check in once and a while on this thread and we get messages from new sufferers every now and then. They are just more practical and see that this thread doesn't lead anywhere and move on with their lives.
I can't find any reports from women who have such serious side effects from Accutane as we do.
12 minutes ago, guitarman01 said:I wouldn't exactly call it increased heart rate, more like heart rate variability. I could give numerous examples of how this antibody might apply. The fact that it affects the nervous system means it could have a vast range of implications. I believe though this could be vascular in nature and the immune system might not be involved.
Most labs/health networks can ship out to Mayo Clinic. Mine did. You can just call your doctor or lab to check. Also I would verify the CPT codes on the test with your insurance to make sure its covered as diagnostic. It should be.
Ill try my hardest to get it done. My sweating isnt decreased... my sweating pattern has indeed changed though. My back gets soaked during workouts now
12 minutes ago, guitarman01 said:I wouldn't exactly call it increased heart rate, more like heart rate variability. I could give numerous examples of how this antibody might apply. The fact that it affects the nervous system means it could have a vast range of implications. I believe though this could be vascular in nature and the immune system might not be involved.
Most labs/health networks can ship out to Mayo Clinic. Mine did. You can just call your doctor or lab to check. Also I would verify the CPT codes on the test with your insurance to make sure its covered as diagnostic. It should be.
Ill try my hardest to get it done. My sweating isnt decreased... my sweating pattern has indeed changed though. My back gets soaked during workouts now
12 minutes ago, guitarman01 said:I wouldn't exactly call it increased heart rate, more like heart rate variability. I could give numerous examples of how this antibody might apply. The fact that it affects the nervous system means it could have a vast range of implications. I believe though this could be vascular in nature and the immune system might not be involved.
Most labs/health networks can ship out to Mayo Clinic. Mine did. You can just call your doctor or lab to check. Also I would verify the CPT codes on the test with your insurance to make sure its covered as diagnostic. It should be.
Ill try my hardest to get it done. My sweating isnt decreased... my sweating pattern has indeed changed though. My back gets soaked during workouts now
11 hours ago, hatetane said:You might be right and I am no longer thinking a cure is possible.
But somehow you have to find a liveable state.
What I would say is that whatever anyone tries, be it TRT or an aromatise inhibitor etc - nothing will work unless you
have done lots of groundwork e.g exercise, diet and putting right any deficiencies.
If and when the body is ready - it may just be possible to make added improvements with with certain protocols.
I can't see that anyone would disagree - you got to live as clean as possible for as long as possible.How many guys on this forum do you think have worked on their basic health issues to the degree that we know is necessary.
You can all argue that you have but if you are honest I am sure you would agree that you have not.Not for one minute am I saying it is easy and for most I really think it is impossible.
It would take a supreme effort and when you all have horrific health issues to deal with it's an even bigger effort to implement all the changes that are necessary and for the years that it would take. Added to that, to see little or no improvements makes it even harder.
Added to that all the negativity and completelack of any recoveries all makes everything completely hopeless.But what do you do - live a hopeless life or keep trying to improve things.
We have a big problem - hardly anyone reports their side effects, this is a fact!
Very few are trying to raise awareness about the dangers of accutane so there will be many more victims.
I draw a blank on why any health care provider would prescribe this drug and why the regulators allow it to be on the market.
They say it is the only option for severe acne but does anyone believe that the pharms are looking for safer options - why would they when they are allowed to sell accutane.
PFS have got studies going on to see what is going wrong but i don't believe they are actually looking for a cure.
Accutane victims have absolutely no researchers investigating accutane on their behalf or trying to find a cure.We don't even have a helpline group or anything like it - just these hopeless forums.
It will continue to be hopeless unless everyone reports their side effects.
We need to gather case histories.
Strength in numbers will eventually lead to recognition and the need to help accutane victims.I would prefer not to hear from anyone who says reporting is a waste of time.
It may be a waste of time for you but it might just help other kids in the future.If I had loads of case histories presented like Toggs and a few doctors to back me up I could go to the highest level and knock on every door
until we have our voices heard.We need an action group and a helpline to really get the data that is required.
I like to think that eventually there would be orders demanding that something is done about this whole sorry business.For anyone who is interested you can access reported adverse side effects of any drug.
I have a copy of all reported side effects and I think you would all be shocked at how it reads.
If I recall correctly less than 50 have reported ED and about the same for diminished libido.
About 170 sexual side effects reported in total!
This is the records help by MHRA UK - Roche are obligated by law to share their reported side effects so this would include their figures.
They have never followed up so have no data on how persistent or permanent sexual sides might be.
20 suicides between 2012 - 2014 that's nearly 1 per month.
At least 1 murder if I recall correctly.Do any of you really believe that these reported side effects are representative of the true numbers?
Well there we have it - practically nothing being done.
Our only hope at the moment - Dr Healy's (Rxisk) competition.Anyone who wants to be part of a focus group please PM me and we will see what we can do.
I am willing to try anything and open to anyones ideas.
Lot's of data surely might help someone bring a legal case one day.
We can only live in hope.
Your best hope is symptom management after tan exposure.
3 hours ago, SimpleMutton said:That's because accutane and finasteride aggraviate it, indeed Merks (the company that made propecia) had to add depression to the possible side effects of propecia.
Depression=brain fogWhen I took accutane I was laughing at the possible psychological side effects listed, never had any suicide thought and even depression, I thought it was some bullshit myth women blamed for their problem, not a serious legitimate thing
only later I found out depression=chemical imbalance in the brain=brain fog
some drugs just cause this chemical imbalance in the brain, neurotrasmitters don't work properly anymore and without them we feel these symptoms that are depression related
Antidepressants may help a bit but not much
If it was something "serious" like a brain trauma, an infectious disease or early dementia then after 10 years we should feel much much worse (or be even dead)
Instead we feel pretty much the same amount of brain fog, it just goes in waves
Are you a doctor? And if not, then why are you diagnosing me?
For people who have sexual disfunction after istotretinoin exposure , here is a re-cap .
https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
28 minutes ago, Gladiatoro said:For people who have sexual disfunction after istotretinoin exposure , here is a re-cap .
https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
Im no Doctor but would like to add, you can easily substitute sexual sides with depression/fatigue - one way or another youll be affected!!
What a gift tane has been!!!
1 hour ago, Gladiatoro said:For people who have sexual disfunction after istotretinoin exposure , here is a re-cap .
https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
The worst part of all this is no matter how many people come forward with their symptoms the medical community still refuses to acknowledge it as a problem.
Thats because they dont really know how to treat anything!!
Tane causes depression- they couldnt tell you how it does that, its veryconvenient to just lump us into that category, if its due to brain damage theyd never admit it.
Oh its just a chemical imbalance- how convenient and oh how easy to bypass it all in the legal world - the system is fucked to put it mildly.....
well i have a 2 month supply of 10 mg tane sitting on my desk for a week now. i decided to give vitamin c megadosing a shot before the plunge after seeing a post on here about someone doing a fruit fast which cured their acne in about a year.and the results have been incredible. solid 60% improvement in skin but also my digestion and sleep have improved so much. it turns out vit c is crucial for transformation of cholesterol to bile acids and adrenal steroidogenesis (cortisol- antinflamatory and regulates blood sugar) as well as fighting infections..we could all just be experiencing subclinical scurvy. im sure it can only help pas sufferers.
i have my base cholesterol and trigs from end of last year (was on high end) and plan to test every month including vitamin c, even though blood tests dont account for tissue/organ ascorbate saturation it will be interesting. im so hopeful and excited.
i have been taking 6 grams of sodium ascorbate/day and will increase to 10 grams. in addition i have been freshly squeezing 1 whole pack (3kg) of oranges and eating up to 12 kiwis a day and eat 2 normal meals/day for lunch and dinner.
i dunno, i feel like were making progress. the good side of everything is that we are aware of how the system works and how important taking care of our own health is.
I've learned quite a few things about the fungi kingdom recently and its proven results in aiding the brain and body. Look up Lion's mane. And read up on the properties of different mushrooms.
Also, Did you know that over 40% of pharmaceuticals are created from mushrooms. The more you know. The closer you are to finding a solution. I quite enjoy finding an alternative treatment to my ailments. Quite a task, but i'm up for it.
12 hours ago, ailaeshiz said:13 hours ago, Gladiatoro said:For people who have sexual disfunction after istotretinoin exposure , here is a re-cap .
https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/The worst part of all this is no matter how many people come forward with their symptoms the medical community still refuses to acknowledge it as a problem.
They obviously don't think CHEMOTHERAPY has any long term effect on the human body lol...
Another re-cap for nebs ....
For people considering isotretinoin I would recommend to stay far away from caring and loving derms , your taking a huge gamble with your health and what kind of debilitating side effect will you have down the road ???? That is the question , if this drug shortened my life I will be severely pissed off . 30 years later they still don't know how it works hmmm... , I think I know more about this drug than any derm after years of extensive study it goes something like this...
another re- cap .....
I want to begin this by saying that i was in your position. I had bad acne. I'm writing this to provide some insight to what it's been like the last 3 years after my course of accutane (some information that i would have eaten right up before i started treatment). Let me start off by saying - this drug works. For most, if not all of middle/high school, I had very bad acne that was resistant to doxycycline, minocycline, proactiv, Murad products, benzoyl peroxide, sailicylic acid, and all the wipes i could get my hands on. You more than likely will be free from acne at least for a few years after treatment, and it's absolutely wonderful! Being able to walk around without having to check mirrors for a new red/white bump on your face is as great as you think it would be. Looking back it seems like i was a completely different person. You're probably thinking: if it works so well, why the lackluster rating then?! This drug works wonders but there is absolutely a reason as to why they're so serious about prescribing it. They are very cautious because this stuff is freaking legit - it alters your body in a permanent way. Once you've finished your course there is no going back. In fact, at the time of writing they still do not understand exactly how it works - but it affects acne. This was originally made to be a drug for cancer patients (yeah, people that had nothing left to lose and were willing to try something that could potentially debilitate them if it meant surviving! crazy right?) So I went on the medication and throughout the course felt nothing but the normal side effects of dry lips, skin, nosebleeds, dry eyes and easily scarring (just a scratch on accutane can turn into a permanent scar hah, i have a few reminders). Things went through without a hitch and i was acne free! I would notice people staring at me, and if i could guess what they were thinking it would be "How in the hell did that pizza face get porcelain clear skin?!" Strangely, the side effects of this medication slowly ease their way into your life after treatment (the effects are permanent after all). Expect something along the lines of joint pain, gastrointestinal issues, and mental health dips. These tend to be the most serious. When people get these issues they disregard it as natural, how in the world could they be associated with something they took 3, 5, even 10 years ago? Long story short in convincing you this are legit, the original manufacturers of accutane (Roche) went out of business due to lawsuits and had huge payouts of millions upon millions of dollars to peoples lives they had negatively changed (mostly focusing on permanent gastrointestinal issues). I could talk about this for hours but to avoid making it THAT lengthy, here's the summary: I can't stress enough how EXTREMELY important it is for you to consider these potentially permanent side effects. When i took it i couldn't care less about side effects, all i wanted was my acne to be gone! But there are people who used to play sports, ran, and workout - now experience severe pain by simply walking due to joint issues (and it's seemingly permanent unfortunately). If your acne isn't really that bad, or could go away within a couple of years normally, it is up to YOU to consider taking this drug. There are dermatologists out there who will prescribe this to people with just a few pimples, which is unecessary given how serious the side effects could be. Read up on peoples experiences years after their treatment and make an informed decision!!! God bless 
definently NOT my story , I had very mild acne .... but you get the point , " people with a few pimples " would be my story .
Let me finish off in saying that in the NEAR future any kind of chemotherapy treatment will be considered and ACT OF CRIME against humanity , mark my words .
My derm didnt put it anyway, either way she lead me down a horrible path....
This is a newer company out of silicon valley. This sort of reminds me of 23andme. This is a project that might grow and develop with time.
[Edited link out]
Your microbiome is the unique collection of trillions of microorganisms in and on your body.
uBiome uses machine learning, artificial intelligence, and advanced statistical techniques, as well as our patented precision sequencing process to analyze the microbes in your sample. Test once, or track your microbiome over time the choice is yours.
Something to keep in mind is its not just bacteria in your gut, but on your skin as well.
Isotretinoin and lymecycline treatments modify the skin microbiota in acne
http://onlinelibrary.wiley.com/doi/10.1111/exd.13397/full
First published:September 2017
And then looking even further.
[Edited link out]
Gut bacteria hold clues to heart health
By AMERICAN HEART ASSOCIATION NEWS
hereditary factors can account for only about 15 percent of cardiovascular risk, meaning environmental causes account for the rest, said cardiologist Stanley Hazen, M.D., Ph.D., chair of the Department of Cellular and Molecular Medicine at the Cleveland Clinics Lerner Research Institute.
I think the magnitude of the importance of the gut microbiome is far greater than we ever anticipated, Hazen said.
These bacteria and other microbes, known collectively as the gut microbiota, or microbiome, are influencing heart health in previously unseen ways, research is showing.
People are still getting their head around how something in the gut can affect the heart,
preventing or treating cardiovascular disease will not be as straightforward as simply using probiotics to make complex communities of gut microbes match a healthy profile. We have to get to the function of bugs, Hazen said, and how that is leading to a change in host physiology.
On 1/2/2018 at 11:42 PM, Colinboko said:Been having slight prostate pain quite often lately...
Its not excruciating and generally goes away after some time but its still there. Usually after masturbation
Oh man, I have exactly the same issues for over a year now. I'm after accutane "treatment" for about 3 years now.
I experience strong pain, cramp-like after masturbation (doesn't always happen but often), after wet dreams. It generally occurs in the night, where I wake up with the pain that won't go away for 20-40 mins and then subsides. If I abstain from masturbation I get none of these pains.
I googled it and found this which explains it well - https://en.wikipedia.org/wiki/Proctalgia_fugax
Seeing your post surprised me a lot, maybe it's not related to Accutane hehe.
2 hours ago, AccuNate said:Oh man, I have exactly the same issues for over a year now. I'm after accutane "treatment" for about 3 years now.I experience strong pain, cramp-like after masturbation (doesn't always happen but often), after wet dreams. It generally occurs in the night, where I wake up with the pain that won't go away for 20-40 mins and then subsides. If I abstain from masturbation I get none of these pains.
I googled it and found this which explains it well - https://en.wikipedia.org/wiki/Proctalgia_fugaxSeeing your post surprised me a lot, maybe it's not related to Accutane hehe.
No. It definitely is..
something is seriously wrong with my hormones
35 minutes ago, Colinboko said:No. It definitely is..something is seriously wrong with my hormones
Welcome to tane world. Tane affects every hormone there is... from testosterone and thyroid onwards. It is now known it affects pituitary hormones as well. These imbalances could be transient, or permanent.
Have you tested all hormone levels possible?
15 minutes ago, fiksi said:Welcome to tane world. Tane affects every hormone there is... from testosterone and thyroid onwards. It is now known it affects pituitary hormones as well. These imbalances could be transient, or permanent.Have you tested all hormone levels possible?
You comment is right on the money , somehow we are all connecting by one single factor isotretinoin.
It is after all a brotherhood.
11 minutes ago, Gladiatoro said:You comment is right on the money , somehow we are all connecting by one single factor isotretinoin.
It is after all a brotherhood.
Let me tell you this... I had a severe reaction to accutane, my basic bloodwork was fine, but I felt like a dying man. 98% strength gone... this is accutane induced myositis, with dizzyiness/ataxia, headache, pain in all muscles and joints.
The stuff that we test is quite limited... even these basic tests rarely includes CK, ANA or such stuff.
Doctors will say- side effects not likely. But I think 98% sufferers never report anything. Sometimes they will think you are crazy or say "accutane doesn't cause xyz".
In some cases, autoimmune diseases awaken after accutane as well.
Latest research I read, says accutane affects pituitary gland "in unknown ways", alters hormone balance there... and that this "likely" helps acne, but what abotu other systems?
11 minutes ago, fiksi said:Let me tell you this... I had a severe reaction to accutane, my basic bloodwork was fine, but I felt like a dying man. 98% strength gone... this is accutane induced myositis, with dizzyiness/ataxia, headache, pain in all muscles and joints.The stuff that we test is quite limited... even these basic tests rarely includes CK, ANA or such stuff.
Doctors will say- side effects not likely. But I think 98% sufferers never report anything. Sometimes they will think you are crazy or say "accutane doesn't cause xyz".
In some cases, autoimmune diseases awaken after accutane as well.
Latest research I read, says accutane affects pituitary gland "in unknown ways", alters hormone balance there... and that this "likely" helps acne, but what abotu other systems?
Its heartbreaking what these derms do to kids and young adults. For a few red spots.
Basically traumatizing them for life and messing up their young bodies. Some how this drug went from a last resort drug for severe cystic nodular acne to hey young man / woman you have a few red spots here is some chemotherapy for you .