Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
47
(@ailaeshiz)

Posted : 12/28/2017 12:09 pm

gbolduev believes in chemtrails. He's about as knowledgeable at the this topic as you or I.

There's another thread on that site where a user says they're being helped by Resveratrol and gbolduev tells them to get off immediately because it shouldn't help. The user gets off, and guess what happens? all the benefits go away and they're back to square zero because gbold said so.

Quote
MemberMember
157
(@tanedout)

Posted : 12/28/2017 12:47 pm

31 minutes ago, ailaeshiz said:

gbolduev believes in chemtrails. He's about as knowledgeable at the this topic as you or I.

There's another thread on that site where a user says they're being helped by Resveratrol and gbolduev tells them to get off immediately because it shouldn't help. The user gets off, and guess what happens? all the benefits go away and they're back to square zero because gbold said so.

He's dug out some interesting studies, especially with regards to amino acids, and he's definitely made suggestions that help. I take betaine HCI with meals now and this results in a noticeable improvement in mental clarity. One of the PFS guys has seen a decent improvement to libido with l-cysteiine and l-histidine.

What works for one doesn't work for the other though, you need to try things personally and notice how you get on, read up on studies and follow discussions on boards like that - that's the best we have really. Doctors are useful when it comes to getting bloods and other tests obviously.

Quote
MemberMember
60
(@fiksi)

Posted : 12/28/2017 2:57 pm

What do you guys think is best for muscle pain stiffness and joints? Carnitin?

Quote
MemberMember
6
(@sirhc30)

Posted : 12/28/2017 5:13 pm

2 hours ago, fiksi said:

What do you guys think is best for muscle pain stiffness and joints? Carnitin?

In my experience, good sleep pattern (and a sufficiently deep sleep) is important. In addition, I have less muscle pain when I'm mentally stable.

Are there anyone who has tried silicon for a long period?

Quote
MemberMember
1803
(@guitarman01)

Posted : 12/28/2017 6:54 pm

You used to post on here all the time. How are you? Better, worse, the same? Anything you are looking into these days or thoughts you have on the different topics floating around?

Quote
MemberMember
299
(@macleod)

Posted : 12/28/2017 7:01 pm

new video. innovative endocrinologist doctor treating TBI/depression through alternative means. I posted his older video couple hundreds pages back. Someone should reach out to him, refer him to this forum, and ask him what he thinks, or just email him and ask him what he thinks. Obviously, our side effects differ between people, but would be interesting to have a tane sufferer reach out to him or even get treated by him.

Quote
MemberMember
1803
(@guitarman01)

Posted : 12/28/2017 7:02 pm

On 8/30/2017 at 9:37 PM, octopusfrog said:

Just got some current blood tests done with a new doctor.. same as two years ago. High testosterone, low FSH and low vitamin D. I will see a neuro in 2 weeks and ask for the autonomic test.

What ever happened with testing for the acetylcholine ganglionic neuronal antibody test to look at possible autonomic dysfunction?
What did the neurologist say? I take it you never got the test?

Quote
MemberMember
1804
(@truejustice)

Posted : 12/28/2017 8:40 pm

1 hour ago, macleod said:

new video. innovative endocrinologist doctor treating TBI/depression through alternative means. I posted his older video couple hundreds pages back. Someone should reach out to him, refer him to this forum, and ask him what he thinks, or just email him and ask him what he thinks. Obviously, our side effects differ between people, but would be interesting to have a tane sufferer reach out to him or even get treated by him.

What country does he reside in?

A question to ask is - how to fix atrophy of the Hippocampus?

Id be making it clear from the get go that doing Testosterone or Estrogen tests are useless with our predicament- its the mechanism behind hormones that we need to look at.

Quote
MemberMember
45
(@cnb30)

Posted : 12/28/2017 8:47 pm

Who here has triedPyrroloquinoline quinone. I know that there is some evidence claiming that it has the ability to reverse or atleast stop mental devay. Has anybody here noticed an improvement.

Also, I should probably add that Ive had very little luck with pregnenolone helping with libido problems. I find that I do have a weird urge with it, but nothing near traditional sexual arousal.

Quote
MemberMember
1803
(@guitarman01)

Posted : 12/29/2017 2:35 pm

19 hours ago, guitarman01 said:
What ever happened with testing for the acetylcholine ganglionic neuronal antibody test to look at possible autonomic dysfunction?
What did the neurologist say? I take it you never got the test?

@octopusfrogNow i'm confused. Your the one that told me someone else that took accutane had tested positive for this same antibody.

(which isn't the most common thing, 1 out of 15,000 according to Mayo Clinic screening)
-Its also associated with a 30 percent cancer rate which hopefully shouldn't be the case for myself and @Babis

You also mentioned a few times about trying to get this test yourself.
I've brought it up now a couple times with you and yet you dont even respond.
What is going on with this?

Quote
MemberMember
0
(@abi72)
MemberMember
7
(@namelk)

Posted : 12/31/2017 10:53 am

I did not feel anything, it's been 5 days since I stopped taking it and I did not feel exactly anything, it seems that my libido has decreased even more so now that I stopped, it only served to make me fucking that **** even more, I was hoping for it .. .

I will wait another 2 days, if nothing happens I will take it for another 25 days

 

my hair still falls when I pull with my hand a little

Quote
MemberMember
359
(@dubya_b)

Posted : 12/31/2017 1:05 pm

The old RoAccutane Action Group forum in 2004:

http://www.xsorbit1.com:80/users/davec/index.cg i" rel="external nofollow"> http://web.archive.org/web/20041231044438/http://www.xsorbit1.com:80/users/davec/index.cgi

This appears to be the most complete image, but there are sporadic pages missing.

More recent posts are archived up until ~Oct 2005
http://ragforum.com /" rel="external nofollow"> http://web.archive.org/web/*/http://ragforum.com/

.

Quote
MemberMember
75
(@colinboko)

Posted : 12/31/2017 1:07 pm

5 hours ago, hatetane said:

Shared this before

Found it interesting because I suffer weight gain and slight gyno.

Quote
MemberMember
70
(@whackutane)

Posted : 12/31/2017 8:55 pm

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?

Quote
macleod, macleod and macleod reacted
MemberMember
9
(@chris16)

Posted : 12/31/2017 9:00 pm

2 minutes ago, Iamme. said:

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?

Ive been doing mostly a vegtable diet for 4 months and joint pain has gone away and stools are way better. Still have the dry skin and hair. You have to fix the gut which can take time.

Quote
MemberMember
1804
(@truejustice)

Posted : 12/31/2017 9:21 pm

8 hours ago, Colinboko said:
Shared this before

Found it interesting because I suffer weight gain and slight gyno.

Heart health after tane is an interesting area that may hold some info. Could the erectile dysfunction, the fatigue, excess sweating, varicose veins, breathlessness etc that many of us suffer be due to altered blood flow?? Possibly.....and could it be linked to the heart?? Quiet possible I think, so definitely an area worth investigating as much as anything else.

Best of luck to all in 2018 - year of the earth dog, may it be a year of balance and fairness for us all - the scales are surely due to tip in our favour after all weve endured!!!!

Quote
MemberMember
299
(@macleod)

Posted : 01/01/2018 3:54 am

That's interesting, I dunno if its nerves or blood flow, but i have the same issue with my limbs falling asleep much easier post tane and even have spasticity with my hand (can't open it) when leaning on my elbow or in an awkward position. Also, in the cold I'll get Raynaud's phenomenon (white fingertips) which suggests it could be circulation issue.

http://the-medical-dictionary.com/raynaud_s_phenomenon_article_2.htm

Raynaud's is closely related to connective tissue diseases like scleroderma. It is also linked to angina and migraine suggesting a generalized defect that predisposes arteries in many regions to vasospasm. Hair loss is another less-known problem associated with Raynaud's. More recently, accelerated destruction of platelets and release of agents such as serotonin or thromboxane A2 have been proposed as causing vasoconstriction in some patients with Raynaud's phenomenon.

Raynaud's is caused by cancer chemotherapy drugs (such as bleomycin) and certain other chemicals. Nervous and muscular system damage by radiation treatments may also lead to the disorder.

Quote
MemberMember
40
(@duperele)

Posted : 01/01/2018 11:29 am

Just as the accutane enters your skin cells it also enters every other cell in your body, including braincells. Therefore there are so many side effects, having a dry brain or digestive system is really no good. Might it be that the body is generally dehydrated?

Quote
MemberMember
1803
(@guitarman01)

Posted : 01/01/2018 11:47 am

I was diagnosed with Raynaud's Phenomenon BEFORE Accutane.
I also have one leg that is slightly longer than the other one, again this was before Accutane.
I have Crowded lower teeth as well that maybe could have used braces.
The first is vascular, the second is bone related.
Depending on what you guys are dealing with, I want you to think long and hard if you had any signs of anything going on before
Accutane, that than a drug like this could have greatly exasperated.

On 12/28/2017 at 6:02 PM, guitarman01 said:

low FSH

Looking at this and luteinizing hormone, these are involved in fertility in both men and women.

Androgen Deprivation Therapy Induces Vitamin K Loss in Men with ...

... of a luteinizinghormone-releasing hormoneagonist and a nonsteroidal antiandrogen, bicalutamide. Serum total testosterone levels were measured at 3 months to confirm reduction to a castration level (<50 ng/dl). Monitoring was continued until the start of bone targeting therapy using bisphosphonates and/orvitamin K2.

Vitamin K and the Nervous System: An Overview of its Actions

by G Ferland - 2012 - Cited by 63- Related articles

Mar 2, 2012 -Specifically, Gas6 has been shown to preventgonadotropin-releasing hormoneneurons from undergoing serum deprivationinduced apoptosis, an effect mediated by the extracellular signalregulated (ERK) and the serine/threonine protein kinase (Akt), the latter being a downstream component of the...

Gonadotropin-releasing hormone. ...GnRHstimulates the synthesis and secretion of the twogonadotropinsluteinizinghormone(LH) and follicle-stimulatinghormone(FSH)by the anterior pituitary gland.
Quote
MemberMember
0
(@abi72)

Posted : 01/01/2018 2:03 pm

16 hours ago, Iamme. said:

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?

See FCHawk's posts - he has recovered.

He was interested in TBI connection - see the video someone just posted.
Look up Dr Mark Gordon in other youtube discussions.
We have a way to contact him but don't know if he will reply.

I have always believed/hoped that the vaxxed protocol might help. Diet, detox, dupplements and bariatric chambers.
Some include iodine, NAC and glutathione IV.

This article is worth a read:

http://www.glutathionediseasecure.com/ulcerative-colitis-glutathione.html

Quote
MemberMember
223
(@gladiatoro)

Posted : 01/01/2018 9:59 pm

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent way unfortunately , you have to watch your diet ie vitamin A and retinol to be avoided or at least limited , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they are after all permanent .... this board has been officially shut down , by me .

Quote
MemberMember
45
(@cnb30)

Posted : 01/01/2018 10:10 pm

The we should at least find anway to seek a law suit of some kind. Roche completely deserves it.

Quote
MemberMember
6
(@sirhc30)

Posted : 01/01/2018 10:24 pm

I noticed only male users in this forum report about long-term conditions after accutane, is it right?

Quote
MemberMember
1804
(@truejustice)

Posted : 01/01/2018 10:43 pm

41 minutes ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent  way unfortunately ,  you have to watch your diet ie vitamin A and retinol to be avoided or at least limited   , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they  are after all permanent .... this board has been officially shut down , by me .

Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga? :)

You folk in the US should be happy, I heard today you can buy pot legally in California?

Quote