Acne.org Products
6 hours ago, TrueJustice said:Im going to say dont bother wasting money on any of those supplements, you are going to have to try something much stronger like CBD oil - everyone has only positive things to say about it!!Getting into Yoga is also highly advisable regardless of your ability- you will get results over time
Actually my dad has some CBD oil, Ill look into that. Also I do yoga currently about twice a week but I should probably get into a morning routine!
Im only on day 4 and I already am having lots of joint popping - no pain but quite a bit of noise - and SUPER mild lower back pain (honestly could be just in my head). Just want to take all the precautions possible
@tryingtohelp2014
This might seem out of the blue, but did you have any luck on the Wahl protocol/diet?
https://www.remedyspot.com/content/topic/2709873-nystatin-full-sexual-recovery-from-pfs/
just re-posting this - not sure who originally posted it.
20 hours ago, TrueJustice said:Im going to say dont bother wasting money on any of those supplements, you are going to have to try something much stronger like CBD oil - everyone has only positive things to say about it!!
I've been through loads of the stuff and noticed nothing from it. It might be beneficial for overall health on paper, but I don't think it'll do anything for persistent accutane side effects like loss of libido, ED, brain fog, depression, persistent dry eyes/skin etc
New case from Finasteride, just in. Told him to perform several tests, including Total Bile Acids.
The results are as follows :
TBAs are 3.5 times more than normal. Yet one more with Cholestasis which leads to Liver Injury.
1 hour ago, mariovitali said:@guitarman01 @tanedoutNew case from Finasteride, just in. Told him to perform several tests, including Total Bile Acids.
The results are as follows :
TBAs are 3.5 times more than normal. Yet one more with Cholestasis which leads to Liver Injury.
Do you know if they had normal AST, ALT and bilirubin?
All my liver enzymes always come back normal, usually right in the middle of the range. Ultrasounds fine, PET/CT scan was fine. The pains I get in my liver/GB area are totally resolved by taking TUDCA or UDCA though, so I'm supplementing with that. So far no impact on other sides though.
38 minutes ago, draci said:Whats the rationale for taking finasteride to resensitize the receptors and not Isotretinoin?
It's just down to Dr Pezzi (a doctor who took accutane and got hit with permanent side effects - loss of libido, ED etc) choosing to use that. PFS guys who've been hit with the same sides as us from fin have taken it again though, and got nothing from it. Might be something to do with the mechanism being slightly different. Both drugs act like progestins and inhibit DHT, but fin doesn't inhibit DHT directly, I'm not sure about accutane.
4 hours ago, mariovitali said:TBAs are 3.5 times more than normal. Yet one more with Cholestasis which leads to Liver Injury.
What am I missing here? The reference range is 0-10 for total bile acids.
His is 3
or 3.52 to be exact.
This is what Accutane is good for. This I get. This is why it should still be on the market. I think most of us can attest though that our acne was never this severe or even cystic. Thats where the line needs to be drawn, for severe persistent cystic acne only. The problem is if you keep going back to the dermatologist even with mild to moderate acne, they will probably eventually mention Accutane as a option.
https://www.yahoo.com/lifestyle/id-just-sit-cry-womans-acne-photos-show-painful-journey-173209365.html
I want to begin this by saying that i was in your position. I had bad acne. I'm writing this to provide some insight to what it's been like the last 3 years after my course of accutane (some information that i would have eaten right up before i started treatment).
Let me start off by saying - this drug works. For most, if not all of middle/high school, I had very bad acne that was resistant to doxycycline, minocycline, proactiv, Murad products, benzoyl peroxide, sailicylic acid, and all the wipes i could get my hands on. You more than likely will be free from acne at least for a few years after treatment, and it's absolutely wonderful! Being able to walk around without having to check mirrors for a new red/white bump on your face is as great as you think it would be. Looking back it seems like i was a completely different person.
You're probably thinking: if it works so well, why the lackluster rating then?!
This drug works wonders but there is absolutely a reason as to why they're so serious about prescribing it. They are very cautious because this stuff is freaking legit - it alters your body in a permanent way. Once you've finished your course there is no going back. In fact, at the time of writing they still do not understand exactly how it works - but it affects acne. This was originally made to be a drug for cancer patients (yeah, people that had nothing left to lose and were willing to try something that could potentially debilitate them if it meant surviving! crazy right?)
So I went on the medication and throughout the course felt nothing but the normal side effects of dry lips, skin, nosebleeds, dry eyes and easily scarring (just a scratch on accutane can turn into a permanent scar hah, i have a few reminders). Things went through without a hitch and i was acne free! I would notice people staring at me, and if i could guess what they were thinking it would be "How in the hell did that pizza face get porcelain clear skin?!"
Strangely, the side effects of this medication slowly ease their way into your life after treatment (the effects are permanent after all). Expect something along the lines of joint pain, gastrointestinal issues, and mental health dips. These tend to be the most serious. When people get these issues they disregard it as natural, how in the world could they be associated with something they took 3, 5, even 10 years ago? Long story short in convincing you this are legit, the original manufacturers of accutane (Roche) went out of business due to lawsuits and had huge payouts of millions upon millions of dollars to peoples lives they had negatively changed (mostly focusing on permanent gastrointestinal issues).
I could talk about this for hours but to avoid making it THAT lengthy, here's the summary:
I can't stress enough how EXTREMELY important it is for you to consider these potentially permanent side effects. When i took it i couldn't care less about side effects, all i wanted was my acne to be gone! But there are people who used to play sports, ran, and workout - now experience severe pain by simply walking due to joint issues (and it's seemingly permanent unfortunately). If your acne isn't really that bad, or could go away within a couple of years normally, it is up to YOU to consider taking this drug. There are dermatologists out there who will prescribe this to people with just a few pimples, which is unecessary given how serious the side effects could be. Read up on peoples experiences years after their treatment and make an informed decision!!! God bless 
I read this today and it's probably the most accurate description of isotretinoin I have ever read .
1 hour ago, mikez said:There's no true rationalefor taking low dose Fin imo.
Theres no true rationale to any cure on this forum in my opinion. Everyone is affected differently. If someone wants to try a protocol and think it may work for their individual self then by all means that person should do so. It could also help us break down into groups once we find out which people feel better on what and see if their tests results show similarities as well. Too many people on here thinking were all identical. Been saying that forever now
Im not sure Im a good candidate for taking Finasteride anyway, luckily sexual side effects arent an issue for me and from what I can gather those who are taking it have some sexual issue they are addressing after tane....am I wrong?
My biggest issue is the chronic fatigue and brain fog so is fin that good for me? Prob not I would say.
What are the latest ideas around chronic fatigue? I dont know, supplements will give some relief but clearly arent going to give anyone a clear recovery.
The jury is still out in what to do with our livers post tane, do we still need to cleanse and repair it? No one knows - ultrasounds arent conclusive, nor is any blood work.....we just dont know.
1 hour ago, Colinboko said:3 hours ago, mikez said:There's no true rationalefor taking low dose Fin imo.
Theres no true rationale to any cure on this forum in my opinion. Everyone is affected differently. If someone wants to try a protocol and think it may work for their individual self then by all means that person should do so. It could also help us break down into groups once we find out which people feel better on what and see if their tests results show similarities as well. Too many people on here thinking were all identical. Been saying that forever now
Good point , but taking a drug known to cause semi /permanent side effects is risky
11 hours ago, TrueJustice said:My biggest issue is the chronic fatigue and brain fog so is fin that good for me? Prob not I would say.
What are the latest ideas around chronic fatigue? I dont know, supplements will give some relief but clearly arent going to give anyone a clear recovery.
micro dose psilocybe cubensis
English is not my first language and i don't speak english very well, hope you understand me.
Are there any experiences about vaccination for post accutane sufferers. I took Accutane 11 years ago, for about 3 years my symptoms improve slowly (30% recovered). My doctor said that i need important vaccines, but i'm worried about that. Does vaccines aggravate the damage from accutane?
1 hour ago, sirhc30 said:English is not my first language and i don't speak english very well, hope you understand me.
Are there any experiences about vaccination for post accutane sufferers. I took Accutane 11 years ago, for about 3 years my symptoms improve slowly (30% recovered). My doctor said that i need important vaccines, but i'm worried about that. Does vaccines aggravate the damage from accutane?
Watch the documentary VAXXED and go to whale.to for vaccine information.
The first step to Accutane recovery is accepting that you have been poisoned and damaged.
3 hours ago, sirhc30 said:English is not my first language and i don't speak english very well, hope you understand me.
Are there any experiences about vaccination for post accutane sufferers. I took Accutane 11 years ago, for about 3 years my symptoms improve slowly (30% recovered). My doctor said that i need important vaccines, but i'm worried about that. Does vaccines aggravate the damage from accutane?
umm, what? vaccines as an adult? are you traveling to another country?
46 minutes ago, macleod said:umm, what? vaccines as an adult? are you traveling to another country?
I had my last vaccines at birth and didn't have vaccines anymore. Especially Hep B scares me, but the vaccine scares me too......i'm not sure, if i should get the vaccines.
My symptoms from accutane (and recovery rate): almost every day inflammation on the left eye (90-95%), IDS (80%), dry eyes (70%), dry skin (50%), Depression (40%), anxiety (40%), visual snow (40%), muscle pain (0%), fatigue (0%). I didn't do anything special (pills, diet ....) to recover. The improvements started about 8 years after accutane.
Muscle pain and fatique are significantly better when I'm sleeping well and on days i feel strong mentally. These symptoms have always fluctuated very much.
On 12/17/2017 at 10:01 AM, tanedout said:homocysteine not elevated? Histidine and cysteine also normal?
homocysteine is a stand alone test. Ive had this tested numerous times. Its always been in range. You can check page 12 of my posts if you want to see the full test results for the amino acid panel that was sent to mayo.
On 12/18/2017 at 2:37 PM, draci said:Whats the rationale for taking finasteride to resensitize the receptors and not Isotretinoin?
In my opinion there is no rational for either. Especially if the source of this information or similar to it originated in a forum. If so you need to look at long term credibility.
On 12/17/2017 at 11:11 AM, Colinboko said:I read low testosterone and even other hormones can cause circulation problems! When I do yoga and I have to put my feet up in the air, they lose blood flow so quickly and start throbbing I have to bring them back down
I've noticed my feet/legs falling asleep more easily than I think they should. Whether they are elevated on the couch or same sitting position for a long period of time.
18 hours ago, Colinboko said:Too many people on here thinking were all identical. Been saying that forever now
Just because you keep saying this doesn't necessarily mean its true. Who do you keep referring to in people thinking we are all identical?
There could very well be a "Macro" cause that affects individuals differently.
Obviously we have Accutane in common, but it's obvious we have some other things in common
even before we took Accutane, thats why we were more affected.
You have to keep in mind the people that continue to frequent this forum are the worst of the worst that was affected.
It would be nice to know why.
Latest blood tests:
hormones within range including Estrogen. Last test 6 weeks ago said thyroid all ok, I think Im done testing this area, even if there is something wrong it cant be found....
What is of concern is still high cholesterol, going to have to continue cleaning up diet and more exercise - Ill do that over medication
Also of concern this time round was platelet levels 130 ( range 150 - 450 )
I cant remember if it was this forum or another where a Doctor thought Accutane made us susceptible to a Virus??
Its possible given how much it wreaks havoc on gut and liver, but what virus??
I asked my Dr what she advises for people who have a virus- basically ride it out she says, good advice I guess for the average person, I mean at least shes not prescribing medication unnecessarily but what are we to do?
Take a course of antibiotics......treating what I dont know.
ps - I too get pins & needles in legs very easily.....blood flow issue right!!?
1 hour ago, TrueJustice said:Latest blood tests:
hormones within range including Estrogen. Last test 6 weeks ago said thyroid all ok, I think Im done testing this area, even if there is something wrong it cant be found....
What is of concern is still high cholesterol, going to have to continue cleaning up diet and more exercise - Ill do that over medication
Also of concern this time round was platelet levels 130 ( range 150 - 450 )
I cant remember if it was this forum or another where a Doctor thought Accutane made us susceptible to a Virus??
Its possible given how much it wreaks havoc on gut and liver, but what virus??I asked my Dr what she advises for people who have a virus- basically ride it out she says, good advice I guess for the average person, I mean at least shes not prescribing medication unnecessarily but what are we to do?
Take a course of antibiotics......treating what I dont know.
ps - I too get pins & needles in legs very easily.....blood flow issue right!!?
Youre also in your 40s
You have to keep that in mind man.
You said there were no issues with weight gain when your side effects first started right?