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1 hour ago, hatetane said:Your very ignorant. I accept you are in a bad way but you are slating people for not wanting to take any more pharmaceuticals..
I suspect your not a teenager - most are when they get given accutane.
You are entitled to go to a doctor and be safe - that has not been the case for most people on this forum.
Yes, I do believe that someone should be held accountable for destroying young peoples lives but more than anything I want young people protected in the future.
Signing emails! Thanks to everyone who took the time to email PRAC - the PIL is getting up-dated to include erectile dysfunction and diminished
libido. You obviously don't care about future victims and I am not for one minute suggesting it is enough but it is a start and hopefully it will at least get young people to directly look this side effect up,
Sound to me like you want everyone else to take risks by taking dangerous drugs to pave a safe way forward for yourself.
Don't use others on this forum to do your dirty work for you.
If you have gynecomastia you need your hormones tested - namely estrogen. It's totally irreverent what other peoples test result are.And don't you dare tell me to take a seat you moron - you haven't got the slightest idea about my situation so don't make judgements on it.
"Moron" HAHA
I've found out more about the destruction of this drug being a year post tane than you have your entire time being here. So, like I said... take a backseat cause you'll never know what we're going through.
"You are entitled to go to a doctor and BE SAFE"
Do you even KNOW what you're spewing?!
16 minutes ago, Colinboko said:"Moron" HAHAI've found out more about the destruction of this drug being a year post tane than you have your entire time being here. So, like I said... take a backseat cause you'll never know what we're going through.
"You are entitled to go to a doctor and BE SAFE"
Do you even KNOW what you're spewing?!
Like I said - MORON
42 minutes ago, hatetane said:59 minutes ago, Colinboko said:"Moron" HAHAI've found out more about the destruction of this drug being a year post tane than you have your entire time being here. So, like I said... take a backseat cause you'll never know what we're going through.
"You are entitled to go to a doctor and BE SAFE"
Do you even KNOW what you're spewing?!
Like I said - MORON
Not even worthy of a response
I also just turned 22 in September... still young...
C'mon guys, we're better than this aren't we!!
We absolutely are entitled to go to a doctor and feel safe no matter what condition you have!!
It is a doctors "duty of care" to help the patient, not to harm them or at the very least arm the patient with all the information available- we weren't given all the right info, so yes to "BE SAFE" whilst seeing a doctor - no doubt about it, that should go without saying....
I value everyone's comments on forum and I guess I'm guilty too of saying some dumb stuff at times, a bit of thought and respect behind the comments is the best approach going forward yeah...
We've all got enough shit to deal with without hanging more off each other!!
6 minutes ago, macleod said:CBD oil has been fantastic this entire week. Dreaming on a daily basis (pleasant), I am up to about 7-8mg a day. Its great. Best anti inflammatory ever. This stuff should be in everyone's medicine cabinet.
Have you got the underground stuff or is it more commercial?
If commercial pls provide the company and which one you've got?
Great that it's providing relief!!
1 hour ago, TrueJustice said:Have you got the underground stuff or is it more commercial?If commercial pls provide the company and which one you've got?
Great that it's providing relief!!
all commercial. all legal, since it does not contain the psychoactive THC substance. I found the best site in terms of pricing + quality to be cbdpure.com - I am almost finished with the first 100mg bottle and will be going up to the 300 mg more concentrated next week.
i've also been sharing some with my dogs and they love the taste.
it's very sad to see people give their dogs antibiotics or other drugs without hesitation because it comes from a vet, but are weary of a natural substance, god forbid, that can provide some benefits. it's a backwards way of thinking, truly.
At the very least we can be thankful of having learned a valuable lesson in life ourselves through first hand experience and can help others enjoy their lives as they should.
32 minutes ago, draci said:with THC or without?
without thc. if it contains THC then it turns into what is called Rick Simpson Oil. Which is way stronger, more concentrated, recommended for people with tumors/cancer etc. However it will get you super stoned + it's illegal, so you have to make it yourself or find someone. i would def try it if i could find it.
18 hours ago, tanedout said:But the estrogen issue is kind of explained in that theory like I posted earlier.1) you've taken accutane (acts as a 'progestin' - synthetic progesterone, so you effectively have really high progesterone when taking it
2) your body 'down regulates' the receptor sites because there is loads of progesterone
3) you come off the drug and suddenly there is not loads of progesterone, but the receptor sites remain down-regulated
4) your body produces extra progesterone because it's can't utilise it because the receptor sites have remained down regulated
5) The extra progesterone being produced is blocking estrogen receptors and making DHT insensitive
6) you in effect have a hormone imbalanceSo these guys are going with the theory that you need to 'normalise/up-regulate' the progesterone receptor sites, so they're;
1) taking an anti-progesterone which reduces the amount of progesterone
2) receptors are forced to up regulate/increase because they're like "hey where's all the progesterone?"
3) you come off the anti-progesterone drug, and the receptors remain upregulated
4) balance of progesterone, estrogen, DHT is restored (or at the very least your body has a shot at restoring this balance at this point)THere's more at play obviously, that's just a simplistic view and obviously it's just a theory. But I think it makes sense. I'm getting progesterone tested but it's not easy getting this tested as a guy, so I'm having to go via an online clinic and pretend to be a women.
I think the relationship between progesterone, estrogen and DHT/testosterone is worth exploring, on the basis that we have potentially taken a 'progestin' (accutane).
Really good post.
i have some RSO as backup.
Im up for the trail.
my memory is my biggest thing, reduced erect size, low libido and of course chronic fatigue. I am always tired.
lets do this, can you give me the links with the most up to date thread?
I will do a trail
2 hours ago, Walden Rev said:Really good post.
i have some RSO as backup.
Im up for the trail.my memory is my biggest thing, reduced erect size, low libido and of course chronic fatigue. I am always tired.
lets do this, can you give me the links with the most up to date thread?
I will do a trail
Hi Walden - are you saying you are going to trial progesterone?
Are you going to get tested first?
I spoke to Haidut from the RayPete forum - He has been looking at accutane and PFS for many years. For low T and E( many of you have High E) he recommended pregnenolone and DHEA. Pregnenolone is a precursor to Preogesterone and it may be better to look at that instead.
Sorry, I know guys probably know all this already but for anyone who doesn't there are many youtube videos with really explain it all and it makes sense that we all have a basic understanding of how things work.
https://www.yourhormones.com/proper-use-of-hormone-precursors/
I assume that everyone knows that PFS are alloprenanolone deficient
https://en.wikipedia.org/wiki/Allopregnanolone
This is why we all need to support Rxisk. I know everyone is short of funds etc but try and sell something or get your families to fundraise together.
When the Accutane side effects hit me , the biggest problelms were: cognitive function and memory. Basically slurred speech, brain fog, short and long term memory issues.
Has anyone gone down the road of nootropics in enhancing these disruptions?
Obviously dopamine pops up all the time. Im trying L-tyrosineand Bacopa at the moment to see how my memory gets. At the moment its quite bad. A few years ago it was horrendous. I remember somedays I couldnt remember what day it was, what month it was, and sometimes even had to think for a few seconds about what year it was. Memories with friends vanishes etc. Im only touching the surface with these new experiments, but considering we are nearly 14,000 posts in here, and with no clear understanding of how Accutane effects can be reversed, what's the harm with going down this route?
TL;DR: Anyone had any success with nootropics for cognitive/memory issues
- Seems to be only two very brief mentions of Bacopa in this thread
- Many positive reviews on the reddit sub: nootropics
- https://www.reddit.com/r/nootropics/wiki/beginners#wiki_bacopa_monnieri
food for thought etc.
Yes I have major brain fog too, severe tiredness etc but no experience with Nootropics as of yet.
The post above yours looks interesting, not to dismiss nootropics butthe relationship between Testosterone/Estrogen/Progesterone etc seems like it could hold a key or two withcognitive function!!
Im looking into Pregnenolone for sure!!
Yes, nootropics hasbeen discussed extensively. Refer to user AccuityDrane's posts several weeks past. I think between both of us we've tried several. I did the sampler pack from powder city. I think we started first with Tianeptine. and now trying some newer ones such as Semax and methyl blue. Things like that.
Was a fool to realize that my voice cracking, having less strength and sounding slightly higher is definitely a result of either low t or high E...
getting this tested this week.. only hormone I believe that was ever tested for me was TSH.. stupid I know, but I just thought we were throwing hormones aside for a while. But at the end of the day everything comes right back to them.
Maybe im getting better, because I am absolutely losing my motivation to post on here for the moment. Not sure yet.
This is just one of the many reasons I continue to take k2 mk7. This is the only thing im taking and that I plan on taking until I know more, and il try to look into this with some blood testings as well to see if its having a sort of a universal type effect.
im taking k2vital. at 180mcg to 360mcg per day. This suppliers version is a completely synthetic powder thats k2 and k2 only. Multiple studies have shown escalating dosage benefit, but im not going any higher than this for awhile. Also a study showed in a case of actual deficiency when looking at artery stiffness, it took the full length of the study to improve elasticity. Which was 2 years at 180mcg.
They are also running multiple trials at 360mcg per day for years at at time, so i would assume this is a safe dosage.
You can see how essential this is to life. This could be part of that innate strength or resting muscle strength that ive recently mentioned.
Vitamin K2 in different bovine muscles and breeds.
a physiological role for MK4 in skeletal muscle cells
Bacillus piscissp. nov., a novel bacterium isolated from the muscle of the antarctic fish
The main respiratory quinone is menaquinone-7 (MK-7)
On 10/9/2017 at 11:52 PM, guitarman01 said:Watching this video, a few observations. Your thoughts are very well put together and collected. I was looking at your apparent overall health.
Your skin looks pretty good, your eyebrows full and thick, your hair had a good sheen to it and not noticeably thin. your teeth were very pearly white and your tongue seemed a healthy pink tone with no coating, and based on your speech, no indication of dry mouth.
Looking at your pupils your eyes seemed in good health as well. Not overly dry or bloodshot.
I say this because these are some things to feel pretty good about.The way you articulate and your pace I dont see a lack of cognitive function or slow thought process.
So whats really holding you back?
You appear to be the healthiest accutane spokesperson ive seen.
What are you really looking to fix?
Are you taking any drugs or supplements atm?
Do you feel post accutane youve learned to do more with less?
Do You feel like your not reaching your full potential?
Thats how I feel. A quote from one of my favorite movies, "wasted talent"
I was gunna say
no offense
but u can put yourself on the internet
u rent pale and dark bags skin rashes
glasses because dry eyes
your tongue is not pale
u don't look old and sick or dry and dead
shit id take dick issues over my shit
and take viagra
I'm finding it more beneficial to
read PubMed research articles regarding the use of isotretinoin and reading about the progress being made onautoimmune diseases and the mind-gut connection.
For instance, this article states that the blood work exams they made us do during our treatment courses are useless and don't show how the drug is actually effecting the body. Makes sense since I felt like shit a lot of times on the drug but all the tests always and still come back "normal" https://www.ncbi.nlm.nih.gov/m/pubmed/28537864/?i=69&from=accutane
Also, this article talks about the mind gut connection and how the two are linked and how all autoimmune conditions are related and caused by this imbalance
https://www.theatlantic.com/magazine/archive/2016/07/when-the-body-attacks-the-mind/485564/?utm_source=atlfb
or this one on how certain foods can reverse some diseases https://www.attn.com/stories/18919/food-can-reverse-certain-diseases-and-replace-prescription-drugs?utm_source=facebook&utm_medium=postjw&utm_campaign=internal
And finally what we all know to be true, especially in the US. All of our dermatologists were probably paid off in some way by te pharmaceutical companies to push this drug on us. https://tonic.vice.com/en_us/article/ypkpe5/your-doctor-is-probably-being-paid-off
I find it interesting how the studies that many of these dermatologist reference when pointing to the safety of the drug are from the early 90s and were probably paid off by Roche.
Also, do you guys also notice that none of the doctors ever put Accutane on the medical notes ? I've seen about 6 different doctors now for all my Accutane related issues and I always mention that this all started after getting off the drug and in the end when I get a copy of my medical notes they never once mention Accutane. Almsost as if they assume it's not relevant. Imagine how many more doctors are brushing this off and not keeping records of how patients are telling them about what this drug is causing.
Anyways,Im holding out hope that somehow the science may soon come to the root cause of this all. It's incredible the progress that's being made, especially how scientists are just realizing there are pathways connecting the mind and the immune system!
On 10/23/2017 at 9:35 AM, Jorcruz24 said:I'm finding it more beneficial to
read PubMed research articles regarding the use of isotretinoin and reading about the progress being made onautoimmune diseases and the mind-gut connection.For instance, this article states that the blood work exams they made us do during our treatment courses are useless and don't show how the drug is actually effecting the body. Makes sense since I felt like shit a lot of times on the drug but all the tests always and still come back "normal" https://www.ncbi.nlm.nih.gov/m/pubmed/28537864/?i=69&from=accutane
Also, this article talks about the mind gut connection and how the two are linked and how all autoimmune conditions are related and caused by this imbalance
https://www.theatlantic.com/magazine/archive/2016/07/when-the-body-attacks-the-mind/485564/?utm_source=atlfbor this one on how certain foods can reverse some diseases https://www.attn.com/stories/18919/food-can-reverse-certain-diseases-and-replace-prescription-drugs?utm_source=facebook&utm_medium=postjw&utm_campaign=internal
And finally what we all know to be true, especially in the US. All of our dermatologists were probably paid off in some way by te pharmaceutical companies to push this drug on us. https://tonic.vice.com/en_us/article/ypkpe5/your-doctor-is-probably-being-paid-off
I find it interesting how the studies that many of these dermatologist reference when pointing to the safety of the drug are from the early 90s and were probably paid off by Roche.
Also, do you guys also notice that none of the doctors ever put Accutane on the medical notes ? I've seen about 6 different doctors now for all my Accutane related issues and I always mention that this all started after getting off the drug and in the end when I get a copy of my medical notes they never once mention Accutane. Almsost as if they assume it's not relevant. Imagine how many more doctors are brushing this off and not keeping records of how patients are telling them about what this drug is causing.
Anyways,Im holding out hope that somehow the science may soon come to the root cause of this all. It's incredible the progress that's being made, especially how scientists are just realizing there are pathways connecting the mind and the immune system!
very interesting articles!
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On 10/23/2017 at 4:31 AM, guitarman01 said:Maybe im getting better, because I am absolutely losing my motivation to post on here for the moment. Not sure yet.
This is just one of the many reasons I continue to take k2 mk7. This is the only thing im taking and that I plan on taking until I know more, and il try to look into this with some blood testings as well to see if its having a sort of a universal type effect.
im taking k2vital. at 180mcg to 360mcg per day. This suppliers version is a completely synthetic powder thats k2 and k2 only. Multiple studies have shown escalating dosage benefit, but im not going any higher than this for awhile. Also a study showed in a case of actual deficiency when looking at artery stiffness, it took the full length of the study to improve elasticity. Which was 2 years at 180mcg.
They are also running multiple trials at 360mcg per day for years at at time, so i would assume this is a safe dosage.You can see how essential this is to life. This could be part of that innate strength or resting muscle strength that ive recently mentioned.
Meat Sci.2014 May;97(1):49-53. doi: 10.1016/j.meatsci.2014.01.005. Epub 2014 Jan 22.Vitamin K2 in different bovine muscles and breeds.
a physiological role for MK4 in skeletal muscle cells
Bacillus piscissp. nov., a novel bacterium isolated from the muscle of the antarctic fish
The main respiratory quinone is menaquinone-7 (MK-7)
Is the dose of Vit K that we get from food not enough? I saw that there is a lot in meat and eggs.
I just got diagnosed with Fybromyalgia from my rheumatologist after the MRI and CT scan ruled out any inflammationthat may have been caused by ankylosing spondylitis.
Idid a little research onit and it explains most of my symptoms:
headaches
IBS
depression
muscle/joint pain
But it doesn't explain my Sebhoric dermatitis, skin sensitivity, dryness.
I think it's a somewhat bullshit diagnosis given by doctors to diagnose unexplainedpain. It's a labelthey give when they don't understand what's going on. There's no treatment, so the diagnosis does me little good.
1 hour ago, Jorcruz24 said:I just got diagnosed with Fybromyalgia from my rheumatologist after the MRI and CT scan ruled out any inflammationthat may have been caused by ankylosing spondylitis.
Idid a little research onit and it explains most of my symptoms:
headaches
IBS
depression
muscle/joint pain
But it doesn't explain my Sebhoric dermatitis, skin sensitivity, dryness.
I think it's a somewhat bullshit diagnosis given by doctors to diagnose unexplainedpain. It's a labelthey give when they don't understand what's going on. There's no treatment, so the diagnosis does me little good.
Sorry to hear that Cruz. I think your right - doctor can'y find anything obvious, they don't even look that deep and then they pacify you with a
meaningless diagnosis. Brilliant and quite ironic when in you case - they are the ones who caused you to be unwell in the first place.
4 hours ago, Jorcruz24 said:I just got diagnosed with Fybromyalgia from my rheumatologist after the MRI and CT scan ruled out any inflammationthat may have been caused by ankylosing spondylitis.
Idid a little research onit and it explains most of my symptoms:
headaches
IBS
depression
muscle/joint pain
But it doesn't explain my Sebhoric dermatitis, skin sensitivity, dryness.
I think it's a somewhat bullshit diagnosis given by doctors to diagnose unexplainedpain. It's a labelthey give when they don't understand what's going on. There's no treatment, so the diagnosis does me little good.
And you've had full hormonal work up?
18 minutes ago, Colinboko said:4 hours ago, Jorcruz24 said:I just got diagnosed with Fybromyalgia from my rheumatologist after the MRI and CT scan ruled out any inflammationthat may have been caused by ankylosing spondylitis.
Idid a little research onit and it explains most of my symptoms:
headaches
IBS
depression
muscle/joint pain
But it doesn't explain my Sebhoric dermatitis, skin sensitivity, dryness.
I think it's a somewhat bullshit diagnosis given by doctors to diagnose unexplainedpain. It's a labelthey give when they don't understand what's going on. There's no treatment, so the diagnosis does me little good.And you've had full hormonal work up?
Why would I do that? My emotions are fine. It's the health issues that are causing the depression I doubt my hormones have anything to do with my physical pain.