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Repairing the long-term damage from Accutane

 
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(@jmsil)

Posted : 06/07/2012 11:58 pm

Another let-down regarding the telomere testing... I received the kit yesterday (from SpectraCell) only now after contacting them I realise this is not a skin prick test like I thought )I'm sure this is what Nathan had said). I need to draw blood at a lab, which I don't know how to arrange in the UK, and the second problem is the sodium citrate (blue top) tube to collect the blood has seemingly been forgotten to be put within the packaging. Because of this, it would probably just be easier to just try and get the telomere test done like I tried originally. I really want to know these results, but there just seems to be problem after problem.

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(@and1)

Posted : 06/08/2012 1:55 pm

 

You guys should check out manganese. Try manganese picolinate from thorne research. It helps the liver, your joints and cartilag, enzyme function etc. Mine was very low that is why I started taking it. My current theory is that one of the many problems accutane causes is that, maybe due less bile production, we have gotten deficiencies in many vital trace minerals, which then again amplify the aquired deficiencies and IMPORTANT imbalances in the long run.

 

zinc has helped me, magnesium, potassium and manganese.

 

on the other hand I have had too much copper.

 

Also want to repost a link that has been posted earlier by Mayneard, because it supports my thesis for a high fat diet:

 

http://ebooks.whnliv.../LipidDetox.pdf

 

 

It appears we have similar theories all together. I agree about us possibly needing a higher amount of trace minerals because our absorption is down for some reason. I was going to post about manganese and selenium/selenoproteins but I don't think I did.

 

For those working with sleep issues I had super restful sleep last night with great dreams... took a hot shower before bed and cooled the room w A/C and took my magnesium/coconut oil combo before bed. Timothy Ferriss' book the 4 Hr body recommends the temperature adjustments I have made- hot then cold. I bought his book to see if there were any tips about general health, he tested tons of experiments on himself before putting them in the book. Might add 1mg sublingual melatonin next time to see if it helps or hinders... It usually helps when I take it alone. Strong antioxidant as well.

 

 

Have you tried manganese, what brand, dosage...etc? I already get a whole lot of selenium it even shows in my blood tests and is about the maximum reference values at this point. I get selenium from eating brazil nuts, but be careful to not get and eat rancid ones, because they don't do you any good overall.

 

Read the book as well, it is a nice read, but there is a lot more you can do to improve sleep quality that is not mentioned in the book if I remeber correctly. Eating the right foods, gettig enough sunlight will have a major impact on sleep quality.

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(@josephbuchignani)

Posted : 06/08/2012 5:57 pm

I seem to have fixed my remaining fatigue and ibs issues by stopping eating at 5pm, instead of sundown, which occurs around 7:30. That shifted me up so that my gf wasn't prematurely waking me in the morning. Now I'm getting enough sleep and feel great.

 

Yes on micronutrients, I start cramping after a couple days without scallops.

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(@merry-mary)

Posted : 06/09/2012 11:17 am

IndigoRush,

 

What do you mean by your last post?

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(@gators_fan)

Posted : 06/09/2012 4:27 pm

I have been on Accutane for almost 1 year. Started in July 2011 with 20mg daily. Today, June 2012 I take 10mg every day.

 

I have experimented with many supplements to see what worked best with accutane. Today I take:

 

-NOW Super Omega

-Zinc (30mg)

-Hydraplenish (HIGHLY SUGGEST - Relieves dry skin, eyes and lips. Also lubricates joints better than Glucosamine)

-Probiotic

 

I believe these 4 are a big help to combat what accutane does to the body. I have never had severe side effects because of my low dose, but I know for a fact that these supplements have made a difference. I will continue to take them even when I'm done with accutane.

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85
(@and1)

Posted : 06/10/2012 5:20 am

-Hydraplenish (HIGHLY SUGGEST - Relieves dry skin, eyes and lips. Also lubricates joints better than Glucosamine)

 

 

 

What brand, at what dose? I have heard only good things about hyaluronic acid and want to try it. But it seems to only help while taking it, it is no cure. I have been browsing through tons of reviews and have not found any reviews of people saying that their improved health continued after getting off it.

 

People from Germany: Be carefull, you are not allowed to import Hyaluronic acid from the states, the customs won't let it through, but you can import it from countries inside the EU, like Great Britain.

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(@josephbuchignani)

Posted : 06/10/2012 5:59 am

Indigo, you know this site has a block function right? I wasn't even aware you were talking about me until I tried to show my gf one of your videos as an example of someone messed up worse than me.

 

EDIT:

 

List of things recently learned/adjusted:

 

heat continued to increase, so had to stop leaving windows open to maximize sunlight. past certain temperature, energy and focus drop.

gf was being needy and waking me up an hour or two after I'd gone to bed sometimes, interrupting sleep block. fixed that.

5pm cessation of eating is the right time, not 7:30 sunset. this lets me be the first to wake in the morning.

mid term, need to live alone to achieve 100% environmental control.

long term, will be starting Dr. Snow protocol soon, hopefully all this will become unnecessary.

 

Been getting a solid night's sleep for 19 days straight, still wasn't always enough, as noted above.

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143
(@indigorush)

Posted : 06/10/2012 6:36 am

[Content Removed]

Believe -

Hydraplenish is a unique product made by Nature's Way.

I'd imagine he uses this one:

[Edited link out]

Next time I place an order, I'll give it a go. I tried the Doctor's Best Hyaluronic Acid a while back and it didn't do anything. I think Nature's Way is known to be reliable though. You're right that these won't cure the effects, but if they can reduce problems like dry eyes, count me in. Roughly 10 a month is quite a bit, but one day I'm hoping I find a supplement that actually does what it claims. Then, I can ditch everything that doesn't work and 10 a month doesn't sound so bad. It's getting to the stage where I've thrown away so much money on supplements, and I find it hard to believe they really contain what they say. Why can't you import Hyaluronic Acid from the US, but you can from the EU? Obviously it's to do with feeding into a seperate economy, but I assume other supplements are okay to be imported? Weird.

I met up with a girl I've been talking to yesterday..

I hadn't really had a formal 'date' in years so anxiety was to be expected.

Good news is that the brain-fog and speech problems were non-existent, and we hung out for nearly 5 hours.

I think it all depends on how I'm feeling on the day.

She was pretty much like me, so I didn't feel like I had to 'be' anybody else, other than myself.

Once I'm relaxed/less anxious, the brain-fog doesn't seem to be around.

So that's pretty good I s'pose.

On another note, my appetite has been pretty low the last week or so.

Not really sure why, but most foods just don't seem to taste good, especially breakfast.

I'm just eating when I feel like I want to.

I'll start my job tomorrow and it'll be good to have some money coming in.

I'll seperate my banking accounts into two - One for my needs, like my College course, Car insurance, rent, petrol and some back up. I'll allow myself upto, I dunno, 200-300 a month to spend on 'luxury' items, such as supplements and going out.

My priority, and I've been speaking to Tree1 about this, at the moment is mental health.

There's no certainty about how long these side effects will stay, but I do believe that stress will block any potential healing/recovery.

There's a lot about Mindfulness, and I did a search on Google which even suggested sexual dysfunction can be reversed.

Maybe it can't, but I do feel it's likely a mental issue.

Our mind's are normally go-go-go and I speak for myself when I say it can be hard to relax.

Sex is all about being in the moment, after all.

There are big cases of depression - severe depression - which have been resolved because of Mindfulness.

Here's a few resources, which I myself will use:

[Edited link out]

[Edited link out]

[Edited link out]

I don't think the glowing reviews and back-up for mindfulness should be ignored.

It is a commitment, because you have to spend 20-40 minutes a day doing... nothing.

Just sitting there trying not to get caught up in your thoughts.

I'm sure that's tough at first.. You try counting ten breaths without your mind drifting off...

It can take months to really notice the big benefits, but at this stage that doesn't sound too bad. It can't hurt, that's for sure.

It's also become respected because, and you may have heard this already, your mind can actually change physically (for the better) as a result of this/meditation.

Tree1 told me of the book I linked second, and this sounds most appropriate for our situation (Chronic illness).

He hasn't fully committed to it before, but after chatting we agree that it could be very helpful.

I think the key lesson we need to learn is: Have patience.

Maybe we wouldn't have taken Accutane if we'd of had patience.

I don't know if I believe suffering is there to teach a lesson, but if it is - This could be that lesson.

All the best (and that includes Joe),

Stef

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(@josephbuchignani)

Posted : 06/11/2012 5:35 am

Indigo, I would argue that your lack of attention to detail is the reason you've apparently found nothing effective.

 

Your endless emoting dilutes the useful info density of your posts to such a point that even if you discovered something, I would never have the patience to wade through and find it. And I have a great deal of patience when it comes to this area.

 

Although I can't tell for sure, you actually appear to be much less affected by Accutane than I am. I had assumed you must be a biological wreck given your suicidal ideations, but the videos project a completely different picture.

 

For those of us who face the prospect of eternal internal physical torment and bed-confining chronic fatigue, the attention to detail is absolutely worthwhile, and I make no apologies for it whatsoever.

 

For those interested, I've updated my previous post with a list of tweaks learned recently.

 

In addition, I find resting (eyes closed, not unconscious) bed "naps" to be effective when motivation and focus drop off slightly. I leave music on to ensure I don't actually fall asleep. Having a meditative trigger for this, to frame it properly, helps make it happen. Behavior doesn't happen without a trigger.

 

Also in the trigger category, the free programs Efficient Reminder and Workrave. The former provides scheduled reminders to go to bed; I have three staggered to 9, 10, and 11pm. Or something like that. And Workrave, an anti repetitive stress injury program that provides frequent computing break reminders, an excellent time to take a brief bed rest non-nap.

 

Lastly, you can track my biological performance across many indicators here, since it can be difficult to interpret the results of my regimine from plain text: http://lifemetric.com/users/2127 Generally, lines in the middle are bad, and lines at top and bottom are good.

 

I highly recommend lifemetric in conjunction with don't break the chain and daily journaling, as a way to measure and evaluate different techniques.

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(@johnnybgoode)

Posted : 06/11/2012 8:36 am

I am so terrified being on tane right now. I am thinking of the worst possible things that could happen to me. I already have had colon problems for two years before starting this, and fear the tane could really end any little bit of colon health I have left ... plus I am also of very sensitive skin and worry it could cause another more serious skin condition like some have experienced, I am getting a strange itch I've never felt before. On the plus side I believe my skin is drying out ... but so are my eyes and my vision is so blurry. It's not even been two weeks since I started and already I'm frightened.

 

But on the other hand it's my last and only hope to get rid of my acne ... my acne is stopping me from living. Nothing else has ever shown a sign like this of improving my acne ... my skin has never been nothing but oily since I can remember, this is the first time I don't see oil practically soaking my face towel.

 

I've never felt more upset or conflicted in my life. I'd love to get rid of my acne more than anything in this world but I don't want to take so many risks ... I've always been a super careful person.

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(@accutaneispoison)

Posted : 06/11/2012 10:56 am

Hi everyone i have been suffering just like all you guys for 2 years now since i was 16. I have almost no energy at all in my body i went from being super athletic and full of energy to that of an 80 year old man. Sexually i have been destroyed i almost never can even get erections anymore and i have no feeling. Not only did the accutane completely destroy my body all my acne returned to the same state it was before. THIS IS A WARNING FOR ANYONE OUT THERE PLEASE DON'T TAKE THIS POISON YOU WOULD PREFER TO BE DEAD OVER THIS. I am here to tell everyone though i think there may be light at the end of the tunnel. I think i may have found a solution to all these terrible problems and i ask everyone to look at this with an open mind because it has been the only thing that helped me.

First i will start with the fact that i had to quit my job and quit school because i no longer could physically and mentally do anything at all. I have been extremely desperate for 2 years now and have tried just about everything to try and heal myself and nothing has seemed to work until i found one thing. This is cannabis. We all know it is illegal in many places but i have done tons of research on this now and i see exactly why it is illegal. It is illegal because it is an INCREDIBLE medicine for tons of problems. I began to use it by smoking it which is the worst form of getting it in your system but you still do get some of it. Well as i mentioned i no longer have a job so i was only to obtain a small ammount but just this little bit has gotten rid of my brain fog completely and while i was using it i suddenly was experiancing erections once again and was getting some of my feeling back into my body. I was also having diareahe at the time and i was afraid that i was getting ibs which is the main reason i tried it in the first place and in just 1 day of use i no longer got anymore diareahe and it hasn't been back since. Also i saw my acne starting to go away while using it.

This is when i realized this may be the answer. Just from a small ammount, it helped me tremendously so i can't imagine what a real dosage will do from using cannabis oil. It has recently been legalized for medicinal use where i live so i am awaiting for it to become available while i try to obtain another job so i can do this. I will now share some of the research i have done on this with you guys and you will see how it helps almost all problems in people which may be why this is going to be our answer too.

575_cannabinoid_visual2.jpg

[Edited video out]

TONS OF LINKS FOR MEDICINAL USES

This is only some research there is TONS more i encourage you guys to do your research you will see how amazing this plant is and why it may be not only the cure for us but for the world...Pharmaceutical companies don't want it legal for these exact reasons. The same reason why accutane has destroyed our lives. They are EVIL greedy pieces of..... good luck everyone

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(@josephbuchignani)

Posted : 06/11/2012 12:53 pm

Thanks Accutaneispoison. Your symptoms are quite similar to mine and I found your information extremely useful.

 

One thing - I highly doubt that smoking is the worst form of delivery and I highly doubt that oil will be better for you. It will probably be worse, I would guess.

 

I will shift weed up to a top priority. Given what I've seen on the relationship with stress, this makes a GREAT deal of sense.

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143
(@indigorush)

Posted : 06/11/2012 2:08 pm

On 6/11/2012 at 11:56 PM, accutaneispoison said:

Hi everyone i have been suffering just like all you guys for 2 years now since i was 16. I have almost no energy at all in my body i went from being super athletic and full of energy to that of an 80 year old man. Sexually i have been destroyed i almost never can even get erections anymore and i have no feeling. Not only did the accutane completely destroy my body all my acne returned to the same state it was before. THIS IS A WARNING FOR ANYONE OUT THERE PLEASE DON'T TAKE THIS POISON YOU WOULD PREFER TO BE DEAD OVER THIS. I am here to tell everyone though i think there may be light at the end of the tunnel. I think i may have found a solution to all these terrible problems and i ask everyone to look at this with an open mind because it has been the only thing that helped me.

First i will start with the fact that i had to quit my job and quit school because i no longer could physically and mentally do anything at all. I have been extremely desperate for 2 years now and have tried just about everything to try and heal myself and nothing has seemed to work until i found one thing. This is cannabis. We all know it is illegal in many places but i have done tons of research on this now and i see exactly why it is illegal. It is illegal because it is an INCREDIBLE medicine for tons of problems. I began to use it by smoking it which is the worst form of getting it in your system but you still do get some of it. Well as i mentioned i no longer have a job so i was only to obtain a small ammount but just this little bit has gotten rid of my brain fog completely and while i was using it i suddenly was experiancing erections once again and was getting some of my feeling back into my body. I was also having diareahe at the time and i was afraid that i was getting ibs which is the main reason i tried it in the first place and in just 1 day of use i no longer got anymore diareahe and it hasn't been back since. Also i saw my acne starting to go away while using it.

This is when i realized this may be the answer. Just from a small ammount, it helped me tremendously so i can't imagine what a real dosage will do from using cannabis oil. It has recently been legalized for medicinal use where i live so i am awaiting for it to become available while i try to obtain another job so i can do this. I will now share some of the research i have done on this with you guys and you will see how it helps almost all problems in people which may be why this is going to be our answer too.

575_cannabinoid_visual2.jpg

[Edited video out]

TONS OF LINKS FOR MEDICINAL USES

This is only some research there is TONS more i encourage you guys to do your research you will see how amazing this plant is and why it may be not only the cure for us but for the world...Pharmaceutical companies don't want it legal for these exact reasons. The same reason why accutane has destroyed our lives. They are EVIL greedy pieces of..... good luck everyone

I buy into this.

(A lot of) The law is stupid and I'd have no problem breaking some rules.

Accutane is legal, but they ban this?

These fuckers govern everything we do.

We'll never know freedom.

I've never touched drugs or even cigarettes, but if someone offered me some cannibas right now, I'd say 'Yes'.

I'm not someone who'd be able to get cannibas though.

I'm too much of a dork and I'd probably get beat up for asking someone if they deal.

Who likes to watch mental breakdowns?

[Edited link out]

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45
(@jmsil)

Posted : 06/11/2012 3:59 pm

Johnny - Accutane can cause significant problems to the areas you mentioned, so why on Earth would you still take this drug? Please stop taking it.

 

Stef - I've watched the video and the comments - and can only repeat what has said and say WELL DONE for doing this video. Don't be ashamed of it at all. I was almost in tears with you just watching it. I've had a real bad couple of days, where things have really gotten to me, and as always I can totally relate to your videos. People don't realise how badly this drug affects people. I usually check your comments from your first Accutane video, and some of the stick you get, and the tone of some people... I would of been tempted to of closed it down by now... people just don't get it.

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(@accutaneispoison)

Posted : 06/11/2012 5:03 pm

Thanks Accutaneispoison. Your symptoms are quite similar to mine and I found your information extremely useful.

 

One thing - I highly doubt that smoking is the worst form of delivery and I highly doubt that oil will be better for you. It will probably be worse, I would guess.

 

I will shift weed up to a top priority. Given what I've seen on the relationship with stress, this makes a GREAT deal of sense.

 

Smoking temperatures are very high and may destroy some of the cannabinoids. There are like 60+ cannabinoids thats all work together to heal the main ones being THC, CBD, CBG and others. Cannabis oil is pure Cannabinoids that have all been decarboxylated from the heat yet are still in tact and all remain in the oil. I believe the true form of healing will be through consuming the oil but it requires alot more bud to make compared to smoking some for some quick effects. I saw that smoking a little bit a day helped me alot but the fact is that i had pretty potent weed so i could only smoke like half a joint per day, but i believe the oil would allow for much higher doses per day... Anyway i think no matter how you get it into your system it will help tremendously. Smoking it definetly has helped me alot i could almost feel my brain/body healing just from a little bit. I can't wait until i can get more and make the oil then i will defintely tell you guys how it all went. I believe it will heal me. Everyone stay strong we are going to get through this, hopefully i can even help you guys too eventually if i can.

 

Definitely take a look here https://www.greenpas...e-list-jan2010/ at this link there is tons of amazing information.

 

I did research on accutane i read it supresses cell division in the hippocampus and destroys brain cells, well take a look at these links. I wonder why my brain fog was cured....

 

Cannabis Neurogenisis & Neuroprotection

http://norml.org/com...-a-user-s-guide

 

http://www.newscient...-the-brain.html

 

http://english.ohmyn...253377&rel_no=1

 

http://www.treatingy...read.php?t=5921

 

 

Besides all of these incredible documents and much more, what it did for me was give me a reason to live once again . To once again feel what happiness is and to actually have hope for the future. If you have never tried it before you are in for an amazing feeling if you decide to. All i can describe it as is pure medicine for the body and soul. It can turn any situaiton around about how you feel and make you actually feel like you have a reason to live.

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91
(@josephbuchignani)

Posted : 06/11/2012 5:55 pm

All the medicinal stories I've heard have been from smoking, not oil ingestion, but apparently I'm wrong since it's been used to cure chrohn's!

 

Always glad to learn.

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85
(@and1)

Posted : 06/12/2012 1:35 am

I know jay always took the oil before going to bed.

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(@maynerd)

Posted : 06/12/2012 3:58 am

I know a lot about marijuana. I would hesitate to recommend it as a therapy for tane. We could learn from it if people are being helped in someways and I do believe it helps in some ways, even accutane victims. But I also know long term it has side effects that may outweigh the benefits. However it depends on the kind of life and how long you want to live, of course pot may change that course but that is your choice. Know that objectively it increases people's heart rates so heart complications are a risk, particularly keep this in mind if you have a history of family heart troubles and therefore a higher chance of having underlying heart issues. Second, burnout is a real thing I believe due to the fact that pot increases norepinepherine release (probably what contributes to some people's paranoia's), but if you boost norep every day multiple times a day your brain is going to dull out because it is trying to counteract being shot through the roof. Charles Bukowski the straight shooting poet who claims to have seen most of the world says he has seen smart kids go from smart to flat affect in as little as two years. But I have a theory that pot makes people smarter in some ways. Take it with a little caffeine, norepinephine is a great molecule to ride thoughts with, the problem is that it is an artificial boost to what the brain is used to (yes I know pot is "natural"). The encyclopedia of natural health I own does not speak highly of pot. I think it even mentioned sexual sides.

However, even with these risks it might be something worth trying. Particularly for those who talk of suicide, be a stoner for a year please, first. Then see how you feel but I would say do it if you are at your whits end. Pot is fun otherwise people wouldn't do it, HAVE FUN with the madness of it.

 

I didn't watch the posted vids, I might when I have free time, been busy with work and art, been feeling pretty decent lately actually. On just a decent, really easy, limited carb no real gluten to speak of diet right now, haven't started any kind of crazy diet yet.

 

But anyhow, I wanted to say even if people don't want to try pot, we can mimick the health benefits by what we know about pot.

 

1 It boosts feel good neurons.

2. It may have anti inflamatory effects

3. It is fat soluble.

4. It speeds up heart rate and metabolism. (maybe not as much if consumed in oil form)

5. It boosts melatonin production (melatonin is a sleep anti oxidant some odd 10,000 times stronger than vitamin C) Btw, when used by subjects in the morning it led to slightly more cancer but when taken at night they had way less cancer. That's another reason I am skeptical of marijuana to help overall health, because most frequent pot smokers smoke many hours before bed. If you consumed maybe 3 hours before bed you might be ok on that but it's hard to tell cuz you're supposed to take melatonin an hour or less before bed.

 

Anyhow, I hope this helps, I hope it was objective enough.

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(@haydos)

Posted : 06/12/2012 6:29 am

Hi everyone,

If you have a few minutes to read below, it would be greatly appreciated...

I am a 25 year old male from Australia who has been suffering from a chronic headache since November, 2005. I had been taking Roaccutane for 12 days and woke up on the 12th morning with this pain/discomfort around my forehead. At the time I had been working as a Landscaper (mowing lawns mostly) for roughly 4 months. When I woke up with the headache it was sitting on a 4/5 out 10, but I went to work. After a few hours of being at work I told the boss that I needed to go home because I had this headache, so I got home and took a couple of painkillers and lay down for an hour or so. I got up only to find the headache was exactly the same. I immediately thought to myself 'this is strange' but didn't think too much of it, as I was expecting it to just go away a bit later. I went to bed and woke up the next morning with the headache still exactly the same. This is when I started to worry a bit. After a couple of days of this persistent head pain, my Mother rang the doctor who prescribed the Roaccutane and asked if I should stop taking the drug and the Dr said to stop taking it immediately. All up I was on the drug for 15 days (15 x 20mg tablets). I booked an appointment with my GP a few days after and the Doctor told me that it may be a sinus headache because it is located around where my frontal sinus are. I was prescribed a weeks worth of Antibiotics to clear my sinus but it had no effect and the pain remained the same. After the antibiotics hadn't cured my headache, I started really worrying that I might have a tumor or something serious. However, I had a CT scan performed which showed no abnormalities, so anything serious was ruled out. Since then it has been a constant search to find a cure. My family and I have spent over $30,000 on the following treatments..

Sinus surgery (2006)

Acupuncture

Chiropractic work

Massage therapy

Hypnotherapy

Cranial-sacral therapy

Chinese Medicine

Bowen therapy

Botox injections x 2 and every pain medication under sun. The list just goes on and on.

About a year into the headache, I developed an anxiety disorder from constant worry, frustration and stress about my headache so I went on anti depressants for a few years. To a degree I think they did help me cope with the constant pain but more than anything they just helped me hold a happy face and pretend I was alright. The last thing I ever wanted from everyone is sympathy so I didn't tell my friends about the extent of pain because I wanted to seem like I normal. Only until recently, I have kept my pain a secret from a lot of people because I'm still not after sympathy from anyone. If I did have the occasional headache when I was younger, I would just prefer to ask Mum for a panadol (pain killer) and go to lye down in my room until the pain went but it has now been 6 and a half years, and I am tired of not enjoying my life. I am desperate to get rid of the pain so I can live life how it was intended to be for all of us. I have even had some people (even my own Mother) think it's a Psychological issue from being stressed out about my acne before taking Roaccutane, which really makes me feel like shit. That makes me feel the worst out of everything. I think a teenager should be able to get stressed out without developing a chronic headache that persists for 7 years, even when the acne clears up. I am open to any possibility though and my Mother is the closest person to me and has shown the most support, so I am seeing a Psychologist for pain management.

Over the years, we have researched 'headaches as side effect from Roaccutane' but all the articles we found just said that all side effects should go away once Accutane is out of the system. However, after reading posts from the actual people who have taken Accutane, It makes me wonder who is writing these articles saying that accutane side effects should go away after you have stopped taking it.

About 3 weeks ago, I had the biggest breakthrough yet after bumping into a man named George who is a pharmacist at my local Pharmacy. I was just in the store looking at vitamins, when he walked up and asked me if I needed any help. At this point in time I had been losing all hope and was desperate for help, so I told him about my condition. The more I told him, the more he seemed interested and deeply concerned about my headache. We talked for about 20 minutes and he asked If I minded if he called me tomorrow to discuss it further. Since then I have been in to see him weekly along with my parents and we have talked about all the possibilities of the cause of my pain. George would have to be the most sincere, knowledgeable person I have came across since the headache began. He understands my headache and is highly suspicious that Roaccutane is the cause. He believes my body has had an adverse effect which has manifested in this head pain. After all this time, it makes sense. Why was my health perfectly normal up until 12 days of taking this poison?

I have no other side effects besides the head pain. I have developed an anxiety disorder because of the constant worry and frustration (anyone would). My joints are fine, my vision is fine, my hearing fine. I do have fatigue which I also think is normal for someone who has a headache. However, I have managed to keep myself in shape and looking healthy. I have quit drinking, smoking and eating junk food. My skin is the best it's been and my diet is very healthy. I am currently off all pain drugs and antidepressant but have not noticed any change in the pain. I have noticed that my hair has gotten thin on top though. Not really thin, but definitely noticeable.

So here's the theory.....

George has me taking 3 Vitamin A tablets a day as well as 5 x 1M Palmitate Vitamin A liquid drops. He believes that the the toxic shit in Roaccutane has pretty much poisoned me and is stored in my liver as a fat soluble, so we're boosting my vitamin A levels for a couple of months in hopes of overriding the poison in Roaccutane. He explained it much clearer than I just did, but it does make sense. Because I was only on Roaccutane for 15 days, does not mean that it is completely out of my body. Even 6 years later. The strength of this drug is undeniable and it should be taken off the market. I have been on the natural vitamin A for three weeks, but haven't noticed anything yet, but George said it will take time. It may not work, but hey..it's worth trying. At this point, I am willing to try anything.

I know my story is quiet different from most people on this forum, but I thought it may be relevant. I commend you all for being so strong though and believe me, I know how hard it is living with the effects from this evil drug but we will get through it.

Stefan, alongside being a funny motherf***** and an entertaining character, I think you're extremely brave for putting yourself out there like that. I've watched a few of your videos and find them very inspirational. I wish I had the balls to make videos of my situation, but it's not really my style. I look forward to seeing your doco too, I hope it continues to raise awareness about Roaccutane

I've felt like giving up many of times but I'm not going to let this piece of shit drug beat me. Even though it sometimes seems like it's just never going to go away. There will be better days.

If any of you have any questions or comments, I will be checking this forum regularly from now on so please feel free to reply to this post or contact by email at [Removed]

Cheers for reading and stay positive..

P.S ...Fuck Roche and anyone involved with the manufacturing, distribution and marketing of this product!

There may be a lot more clearer faces in the world, but that does not make up for the young people who are suffering because of your product. If someone told me Hitler invented this drug, I wouldn't argue the possibility

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(@tree1)

Posted : 06/12/2012 7:14 am

Haydos - sorry to hear about your suffering. When i read your story i thought of the below video I saw a while back on youtube about a woman who had cured a 16 year long headache via water fasting - clearly the cause of the headache is different, but this could be a potential treatment is all else fails..

 

 

 

there have been a few 'taners that have tried water fasting to combat side accutane side effects. I find this story pretty inspirational

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(@accutaneispoison)

Posted : 06/12/2012 11:49 am

I know a lot about marijuana. I would hesitate to recommend it as a therapy for tane. We could learn from it if people are being helped in someways and I do believe it helps in some ways, even accutane victims. But I also know long term it has side effects that may outweigh the benefits. However it depends on the kind of life and how long you want to live, of course pot may change that course but that is your choice. Know that objectively it increases people's heart rates so heart complications are a risk, particularly keep this in mind if you have a history of family heart troubles and therefore a higher chance of having underlying heart issues. Second, burnout is a real thing I believe due to the fact that pot increases norepinepherine release (probably what contributes to some people's paranoia's), but if you boost norep every day multiple times a day your brain is going to dull out because it is trying to counteract being shot through the roof. Charles Bukowski the straight shooting poet who claims to have seen most of the world says he has seen smart kids go from smart to flat affect in as little as two years. But I have a theory that pot makes people smarter in some ways. Take it with a little caffeine, norepinephine is a great molecule to ride thoughts with, the problem is that it is an artificial boost to what the brain is used to (yes I know pot is "natural"). The encyclopedia of natural health I own does not speak highly of pot. I think it even mentioned sexual sides.

 

However, even with these risks it might be something worth trying. Particularly for those who talk of suicide, be a stoner for a year please, first. Then see how you feel but I would say do it if you are at your whits end. Pot is fun otherwise people wouldn't do it, HAVE FUN with the madness of it.

 

I didn't watch the posted vids, I might when I have free time, been busy with work and art, been feeling pretty decent lately actually. On just a decent, really easy, limited carb no real gluten to speak of diet right now, haven't started any kind of crazy diet yet.

 

But anyhow, I wanted to say even if people don't want to try pot, we can mimick the health benefits by what we know about pot.

 

1 It boosts feel good neurons.

2. It may have anti inflamatory effects

3. It is fat soluble.

4. It speeds up heart rate and metabolism. (maybe not as much if consumed in oil form)

5. It boosts melatonin production (melatonin is a sleep anti oxidant some odd 10,000 times stronger than vitamin C) Btw, when used by subjects in the morning it led to slightly more cancer but when taken at night they had way less cancer. That's another reason I am skeptical of marijuana to help overall health, because most frequent pot smokers smoke many hours before bed. If you consumed maybe 3 hours before bed you might be ok on that but it's hard to tell cuz you're supposed to take melatonin an hour or less before bed.

 

Anyhow, I hope this helps, I hope it was objective enough.

 

 

If you want to make claims please post scientific data the way i have instead of sounding like you are spreading government propaganda. We have taken ACCUTANE which is made for brain cancer yet marketed to us as an acne treatment. As teenagers most of us are ignorant and don't know sh*t which is why our lives were ruined by this drug. I have looked all over the internet for a way to heal from this and i have found not 1 thing that somebody has confirmed to help out. I tried Cannabis after thorough research and i know why it is illegal because it is medicine. It has been the only thing that helped me tremendously and i am sure it will get me back on my feet once i use Cannabis oil. Now that we have had our bodies destroyed i think the last thing to worry about is a natural plant that has been proven over and over again to help very significantly with many health problems. Like i said in a previous post smoking it is the worst form of ingesting it because yes it does speed up the heart rate and the smoke is not good for the heart. This is why i say the oil is the true medicine. There have been studies saying it reduces stroke by 50% and much more. The cannabinoids are clearly very protective strong antioxidants and our body has cannbinoid receptors throughout it. The people who are "burn outs" are people who are in good health and all they do is abuse this natural medicine. If you smoke weed all day every single day obviously you are abusing something that is meant to be used as a medicine. If your health is in critical condition then you use it as neccesary. I know many successful people that use cannabis alot and are very intelligent, therefore i know first hand that most of these claims are false.

 

The fact is you guys can believe whatever you like but the evidence is clear why this natural medicine has been demonized and kept a secret for so long. I came onto this forum to let you guys know what I will be doing. If you would like to buy into the propaganda and maybe brush a potential cure under the rug then so be it. I am suffering just like all of you guys and whether you disagree with me completely or not that is on you, but i will be sure to let everyone know how it went once i am able to medicate myself. If you have a better idea or a confirmed solution i'm all ears, but like i said i have tried almost everything i know of and i eat extremely healthy and take vitamins everyday, and it is not helping.

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(@maynerd)

Posted : 06/12/2012 1:27 pm

What I meant by intelligent was a sharp mind, not smart vs dumb, and frequent use of pot for extended periods can dull a person, likely due to the brain anticipating a norepinepherine spike at any moment. I don't know any pot users who use pot but do not use on a very frequent basis so all I am saying is prepare for it and know the potential down sides.

 

Just because it is naturally occuring from the earth, doesn't mean shit. Google the statements I have made, I am too busy to type the key words into google for you.

 

Let me mention again I am not anti pot. Research it before diving into that interesting/fun world.

 

But @accutaneispoison, I do not want to argue with you and I won't because the beauty of the protocol for us on this page is that you can try your idea on yourself then report all the details here. Let us know what tane side effects you have had, when they developed and how the pot helped. It's a fairly emotionless system.

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(@dcrangersfootballclub)

Posted : 06/12/2012 2:57 pm

Has anyone tried traditional Chinese herbal medicine. I'm thinking of trying it. It's supposed to help release the toxins from the body and help heal the body. Has anyone tried it.

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(@and1)

Posted : 06/12/2012 3:06 pm

here is a review from jay

 

 

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(@josephbuchignani)

Posted : 06/12/2012 9:55 pm

Video watched, conversion complete. I'm a believer. 1 billion rep points.

 

In hyper detailed news, I've noticed an additional pattern to normal recoveries. After infraction, 2-3 day recovery time. Dumping every day. Then a hiatus on dumps and feeling fully recovered for 2-3 days. Then another small dump, accompanied by 1-1.5 days of insomnia and fatigue, and circadian forward shifting. Then full immediate rebound the next morning- IF you don't fuck up stress and sleep management during this time.

 

I assume this is because the last of the acidic stool hasn't been excreted yet, and it causes the most problems when it descends to the lower colon. So you get the hiatus because the digestive pace has slowed, but you still feel a "last burn" before the tract is finally clear.

 

Very important not to screw up during that brief "last dip," or you can restart the whole damn cycle. It always catches me off guard.

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