Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
143
(@indigorush)

Posted : 06/14/2012 4:14 pm

Hi everyone,

 

If you have a few minutes to read below, it would be greatly appreciated...

 

 

I am a 25 year old male from Australia who has been suffering from a chronic headache since November, 2005. I had been taking Roaccutane for 12 days and woke up on the 12th morning with this pain/discomfort around my forehead. At the time I had been working as a Landscaper (mowing lawns mostly) for roughly 4 months. When I woke up with the headache it was sitting on a 4/5 out 10, but I went to work. After a few hours of being at work I told the boss that I needed to go home because I had this headache, so I got home and took a couple of painkillers and lay down for an hour or so. I got up only to find the headache was exactly the same. I immediately thought to myself 'this is strange' but didn't think too much of it, as I was expecting it to just go away a bit later. I went to bed and woke up the next morning with the headache still exactly the same. This is when I started to worry a bit. After a couple of days of this persistent head pain, my Mother rang the doctor who prescribed the Roaccutane and asked if I should stop taking the drug and the Dr said to stop taking it immediately. All up I was on the drug for 15 days (15 x 20mg tablets). I booked an appointment with my GP a few days after and the Doctor told me that it may be a sinus headache because it is located around where my frontal sinus are. I was prescribed a weeks worth of Antibiotics to clear my sinus but it had no effect and the pain remained the same. After the antibiotics hadn't cured my headache, I started really worrying that I might have a tumor or something serious. However, I had a CT scan performed which showed no abnormalities, so anything serious was ruled out. Since then it has been a constant search to find a cure. My family and I have spent over $30,000 on the following treatments..

 

Sinus surgery (2006)

Acupuncture

Chiropractic work

Massage therapy

Hypnotherapy

Cranial-sacral therapy

Chinese Medicine

Bowen therapy

Botox injections x 2 and every pain medication under sun. The list just goes on and on.

 

About a year into the headache, I developed an anxiety disorder from constant worry, frustration and stress about my headache so I went on anti depressants for a few years. To a degree I think they did help me cope with the constant pain but more than anything they just helped me hold a happy face and pretend I was alright. The last thing I ever wanted from everyone is sympathy so I didn't tell my friends about the extent of pain because I wanted to seem like I normal. Only until recently, I have kept my pain a secret from a lot of people because I'm still not after sympathy from anyone. If I did have the occasional headache when I was younger, I would just prefer to ask Mum for a panadol (pain killer) and go to lye down in my room until the pain went but it has now been 6 and a half years, and I am tired of not enjoying my life. I am desperate to get rid of the pain so I can live life how it was intended to be for all of us. I have even had some people (even my own Mother) think it's a Psychological issue from being stressed out about my acne before taking Roaccutane, which really makes me feel like shit. That makes me feel the worst out of everything. I think a teenager should be able to get stressed out without developing a chronic headache that persists for 7 years, even when the acne clears up. I am open to any possibility though and my Mother is the closest person to me and has shown the most support, so I am seeing a Psychologist for pain management.

 

Over the years, we have researched 'headaches as side effect from Roaccutane' but all the articles we found just said that all side effects should go away once Accutane is out of the system. However, after reading posts from the actual people who have taken Accutane, It makes me wonder who is writing these articles saying that accutane side effects should go away after you have stopped taking it.

 

About 3 weeks ago, I had the biggest breakthrough yet after bumping into a man named George who is a pharmacist at my local Pharmacy. I was just in the store looking at vitamins, when he walked up and asked me if I needed any help. At this point in time I had been losing all hope and was desperate for help, so I told him about my condition. The more I told him, the more he seemed interested and deeply concerned about my headache. We talked for about 20 minutes and he asked If I minded if he called me tomorrow to discuss it further. Since then I have been in to see him weekly along with my parents and we have talked about all the possibilities of the cause of my pain. George would have to be the most sincere, knowledgeable person I have came across since the headache began. He understands my headache and is highly suspicious that Roaccutane is the cause. He believes my body has had an adverse effect which has manifested in this head pain. After all this time, it makes sense. Why was my health perfectly normal up until 12 days of taking this poison?

 

I have no other side effects besides the head pain. I have developed an anxiety disorder because of the constant worry and frustration (anyone would). My joints are fine, my vision is fine, my hearing fine. I do have fatigue which I also think is normal for someone who has a headache. However, I have managed to keep myself in shape and looking healthy. I have quit drinking, smoking and eating junk food. My skin is the best it's been and my diet is very healthy. I am currently off all pain drugs and antidepressant but have not noticed any change in the pain. I have noticed that my hair has gotten thin on top though. Not really thin, but definitely noticeable.

 

So here's the theory.....

 

George has me taking 3 Vitamin A tablets a day as well as 5 x 1M Palmitate Vitamin A liquid drops. He believes that the the toxic shit in Roaccutane has pretty much poisoned me and is stored in my liver as a fat soluble, so we're boosting my vitamin A levels for a couple of months in hopes of overriding the poison in Roaccutane. He explained it much clearer than I just did, but it does make sense. Because I was only on Roaccutane for 15 days, does not mean that it is completely out of my body. Even 6 years later. The strength of this drug is undeniable and it should be taken off the market. I have been on the natural vitamin A for three weeks, but haven't noticed anything yet, but George said it will take time. It may not work, but hey..it's worth trying. At this point, I am willing to try anything.

 

I know my story is quiet different from most people on this forum, but I thought it may be relevant. I commend you all for being so strong though and believe me, I know how hard it is living with the effects from this evil drug but we will get through it.

 

Stefan, alongside being a funny motherf***** and an entertaining character, I think you're extremely brave for putting yourself out there like that. I've watched a few of your videos and find them very inspirational. I wish I had the balls to make videos of my situation, but it's not really my style. I look forward to seeing your doco too, I hope it continues to raise awareness about Roaccutane

 

I've felt like giving up many of times but I'm not going to let this piece of shit drug beat me. Even though it sometimes seems like it's just never going to go away. There will be better days.

 

If any of you have any questions or comments, I will be checking this forum regularly from now on so please feel free to reply to this post or contact by email at [email protected]

 

Cheers for reading and stay positive..

 

P.S ...Fuck Roche and anyone involved with the manufacturing, distribution and marketing of this product!

 

There may be a lot more clearer faces in the world, but that does not make up for the young people who are suffering because of your product. If someone told me Hitler invented this drug, I wouldn't argue the possibility

 

 

I'm curious about the whole Vitamin A thing.

Whether it helps, or if (like many suggest) it makes things worse.

Please let us know of any progress.

It's cool that this George fella is helping you out of good will.

Imagine if he's right... That'd be epic.

 

For the time being, I've been to the doctors about my depression.

A big part of what's got to me is breaking up with my girlfriend.

I chose to, but over the last week I realised how selfish I was. Always worrying about myself.

Sure, it wasn't just me causing problems, but I tried to get her back and she doesn't want to be with me anymore.

Bit gutted really, but I put my neck on the line and it didn't work. I couldn't have done more.

Now I know for next time...

 

I realise that my depression is one the pitfalls of my life at the moment.

I can't expect to be happy while these health problems are going on, but if I can find a way to be happier then that's a step in the right direction.

The nurse advised anti-depressants, but of course - I refused them.

I've been referred to a counselling service though, and should hear back in the next few weeks.

 

I'm reading the original Chicken Soup for the soul book at the moment.

It's good to read inspirational stories.

 

I don't want to carry on letting this drug ruin every area of my life.

I'm making this a big priority.

Quote
MemberMember
7
(@girlie)

Posted : 06/15/2012 3:29 am

Hi There

 

I'm a long ago Roaccutane user.

 

It's been 20 years since been off the drug,and I got bad long term side effects from it. Joint pain, brain fog, highly sensitve skin, dry lips, spontaneous scarrring, depression, anxiety etc etc

 

Here is the good news! After many years, prolly ten or more, those symptoms have all gone.

 

My lips no longer require lip balm, maybe once a week, i may put it on, but its not chronically dry. Joints fine, skin is better but still a bit of sensitivity, spontaneous scarring has stopped, depression gone.

 

I think it was time, but also LAMARR'S advice made a big impact. i remember cod liver oils making EVERYTHING much worse. Lamarr recommended stopping the oils, andx trying instead evenening primrose or borage oil instead, no vitamin A whatsoever, and even careful with foods HIGH in vitamin A

 

So what I am wanting to say to all of you sufferers is there is light at the end of the Roaccutane. AT least, this has been my experience. i briefly read of someone on here, who took it 20 years ago (chiron? i think?) did his side effects lessen/reduce with time?????

 

So pls don't give up if you are going through the "Roaccutane Hell" right now. I have been there too, in my darkest moments, it felt like it would never end, that it would never lift !

 

Not much in life is easy, everyone struggles with SOMETHING, you too can make it through this.

 

the only thing that i wish would clear completely is the seborrheic dermatitis i got. i never had it prior to accutane, but its very very mild now so i take comfort in that.

 

Any questions I am happy to help if i can.

 

oh brain fog is gone too!

 

fish oil didnt help me at all

 

now the only thing i take is b complex, vitamin c, zinc, vit d (just found out have deficiency) evening primrose oil

 

I am ETERNALLY GRATEFUL to LAMARR. what an amazing human being. His advice improved the quality of my life immeasurably!!

Quote
jamie10, JosephBuchignani, IndigoRush and 6 people reacted
MemberMember
143
(@indigorush)

Posted : 06/15/2012 12:31 pm

Hi There

 

I'm a long ago Roaccutane user.

 

It's been 20 years since been off the drug,and I got bad long term side effects from it. Joint pain, brain fog, highly sensitve skin, dry lips, spontaneous scarrring, depression, anxiety etc etc

 

Here is the good news! After many years, prolly ten or more, those symptoms have all gone.

 

My lips no longer require lip balm, maybe once a week, i may put it on, but its not chronically dry. Joints fine, skin is better but still a bit of sensitivity, spontaneous scarring has stopped, depression gone.

 

I think it was time, but also LAMARR'S advice made a big impact. i remember cod liver oils making EVERYTHING much worse. Lamarr recommended stopping the oils, andx trying instead evenening primrose or borage oil instead, no vitamin A whatsoever, and even careful with foods HIGH in vitamin A

 

So what I am wanting to say to all of you sufferers is there is light at the end of the Roaccutane. AT least, this has been my experience. i briefly read of someone on here, who took it 20 years ago (chiron? i think?) did his side effects lessen/reduce with time?????

 

So pls don't give up if you are going through the "Roaccutane Hell" right now. I have been there too, in my darkest moments, it felt like it would never end, that it would never lift !

 

Not much in life is easy, everyone struggles with SOMETHING, you too can make it through this.

 

the only thing that i wish would clear completely is the seborrheic dermatitis i got. i never had it prior to accutane, but its very very mild now so i take comfort in that.

 

Any questions I am happy to help if i can.

 

oh brain fog is gone too!

 

fish oil didnt help me at all

 

now the only thing i take is b complex, vitamin c, zinc, vit d (just found out have deficiency) evening primrose oil

 

I am ETERNALLY GRATEFUL to LAMARR. what an amazing human being. His advice improved the quality of my life immeasurably!!

 

 

That's great. This forum needs some hope...

 

It's been a little over 6 years since I finished taking the drug.

You think the evening primrose oil was helpful, or that avoiding Vitamin A was helpful?

You didn't do anything to heal depression?

Like, deal with stress better?

 

Did you have any other problems, such as sexual dysfunction, digestive problems, dry eyes/mouth or hair-loss?

 

Thanks

Quote
MemberMember
27
(@sbowlchica)

Posted : 06/15/2012 5:29 pm

I've posted this all over the Accutane sufferers blog... think you guys might want to look into this, too. I'm two days into upping my Vitamin D to 3000 IU/day and nothing yet, but what can you tell from two days?

I've taken taurine (for my liver) and probiotics, which have helped significantly, but my hair still isn't nearly as thick as it was pre-Accutane. Worth a shot, right?

[Edited link out]

Quote
MemberMember
26
(@maynerd)

Posted : 06/15/2012 11:08 pm

This Shona Banda girl was able to make the thc oil a lot cheaper than the Rick Simpson method.

[removed]

Quote
IndigoRush, JosephBuchignani, IndigoRush and 3 people reacted
MemberMember
7
(@girlie)

Posted : 06/15/2012 11:38 pm

Hi Indigo

 

I had dry eyes (in the initial stages whilst taking Accutane) but it resolved quite quickly. That was one that resolved most quick.

 

The depression hung around for years! The fish oil helped that alot ! but it worsened other long term accutane effects for me, such as spontaneous scarring. So i sought other methods to help me. The evening primrose oil or you can take borage oil (better for men the borage) will help with the depression, Also found most invaluable and I can't stress this enough for depression was including ample amounts of FAT in my diet. No, not fat like in crisps, but fat on meat. Particularly eating lamb with the fat on it, helped my brain fog, depression, anxiety lift

 

when my health took such a bad tumble from Accutane, i was beside myself. I was aging quicker as well (that was soooo scarey for me!:((( I tried so many different things, tests from docs, supplements, nothing was helping if anything i was getting worse

 

So i took a very keen interest in learning all about health as much as I could. the BEST food plan i have ever gone onto to help my symptoms and i have nver looked back was the Sally Fallon "Nourishing Traditions " cookbook, and following the principles of Weston Price, I advise all you accutane sufferers to reserach this more, and if you want buy that book, and follow what she espouses in there. it made an immeasurable difference to my health, and recouping that.

 

 

Yes, Indigo, avoiding ALL vitamin A products, esp in multivitamins, and even in food. if your long term effects are at a bad stage, don't tempt fate by including them in your diet. I couldn't eat Salmon at all. Or liver. Now I can have SOME salmon, can eat SOME cARRots without the bad effects happening.

 

Sorry for the typos, I am not normally careless, and I promise yiou can I spell properly :) its just that I have a young son, who needs my attention right now. will be back if any ofyou need help or advice. Even after Accutane, i produced an amazing HEALTHY child, who has no allergies, no asthma, no eczema or other skin probs, no behaviour disorder, and is VERY intelligent. So don't think that you guys cant produce a healthy child, although mind you,when i was pregnant i did all the right health things, no smoking no drinking, no drugs, lots of water, fruit vegetables, prenatal vitamins (which luckily enough had no vit A) But i WAITED 13 years after Accutane to ahve him. Not becuase of Accutane, but didn't think i wantd children.

 

bye for now. willcome back later and check

 

just to let you know. THERE IS HOPE. I thought i would never recover, was doomed to a life of such suffering because of the evil Accutane!! Stay strong, positive, and have faith that things can right themselves, but everyone struggles to some extent. Try to feel less of a victim. sometimes looking up all the bad effects can do you in more. yes reserach what you can do, but don't focus heavily on what is NOW going on , because that can change. If you focux too much on the negative it can only create more anxiety which you guys do not need

 

indigo, sexual dysfunction???

 

Hmm, well I never had much of a sex drive my whole life. So after Accutane, it didnt seem much different, although i was sexually active, was married at the time

 

I think the depression effected my sex drive too though, which the depression was fron the Accutane

 

But as the years have gone on, I have gotten healthier, I even look younger now. But that has also come from being positive about life, and doing the best I can for my body. Meditation has made an amazing impact on my stress level, but so has regular exercise, i love tennis and play every week.

 

also the epo has helped alot with stress, and b vitamins, AND making the broth soups out of sally fallons book, helped my brain and mood so mUCH, becuase those animal fat NOURISH the brain.

 

I had hair loss during Accutane use, and after, but it slowly got betterm, and now it no longer happens. I had VERY thick hair, and NOW I STILL HAVE VERY THICK HAIR!!! ITS SO THICK I ALWAYS have to have it thinnned. but afteraccutane it was coming out in clumps! :(

 

Digestive problems??? Yes, I had those, but I took probiotics (plus I was on antibiotics prior to accutane for approx 10 - 13 years of my life :( you would have thought i would have got much worse health problems but not so from the antibitocs. but the accutane did me in!! I use to feel ssoooo despondent about my side effects, thought my life was over, at one time my depression wa s so bad, contemplated killing myself!! :((((

 

NOW I AM SO GLAD I DIDNT DO THAt. YOU TOO CAN GET BETTER. ITS NOT THE END OF YOUR LIFE AND HEALTH BUT TRY AND FOCUS ON POSITIVES, EVEN AFFIRMATIONS IF YOU CAN.

 

Please visit this site

 

askwaltstollmd,com

 

that site HELPED me soooo mcuh. thats' where i found out what i could do for my health, and help myself. i followed Walt's principles and my health started to regain!!

 

its a free site, but you have to do your research there.

 

do you guys take turmeric???

 

You can buy it very cheaply at shops.

 

I normally take it if i hjave an acne breakout

 

its the most AMAZING ANTI INFLAMMATORY WITH NO SIDE EFFECTS, which is also part of the issue with accutane, is it causes inflammation!

 

my partner even used it for his joint pain, and it helped as much as pain killers do!!

 

its the best anti inflammtory but not ohnly that its been proven to prevent and improve alzheimers!!!

 

I take two teaspoons of it in a glass of half warm water, and half warm milk, witha generous dash of black pepper, and drink that concoction with a straw, it mutes alot of the taste with a straw. pls try that !! the black pepper aids the body's absorption of the turmeric

 

for Teas, I like Rooibos. That has sooo mmany antioxidants

 

I use to drink green tea, but got a bit concerned with the fluoride it contains.

 

Plus dark chocolate. I love ! It is such a mood enhanceer and also has antioxidants, so its a nice treat, without the guilt

 

sometimes us Taners, need that something special. I have it everyday~! and have never gained weight with it.

 

but with accutane, i was q2uite thin afterwards for a long time, but as years went by, weight gained no prob

 

it did take along time for me to fully recover, well i am 99 percent full recoverd, other than the dermatitis, which i get occasionally. that is now the worst of

my complaints

 

PLUS i also found a very good naturopath, that also put me onto the healing path, but it wasnt just ONE thing that did it. other than FATHER TIME. :)

 

IndigoRush

 

Now I have an amazing sex life!! I never dreamed it could be so great and that was from finding the right partner.

 

My sex drive was reduced though from Accutane, but now its fully recovered

 

it just seems that as time goes by, everything got better, esp wioth LAMARR'S help. But in the first ten year, my health was DYSMAL. :(

 

For anxiety, stress, brain fog for you Taners, eat the fat on your meat, do not have low fat dairy products, eat cream, yoghurt, cheese, milk, (I drink goats milk, less mucous producing, but never LOW FAT!! Full fat all the way!!. Low fat is not good like you have been told ! My mood elevated amazingly from just that !

 

Watch your greens. like spinach etc which has high vit a in it. don't eat much of it at all. eat greens such as broccoli which is not as high in vit a and careful of parsley

 

i have learnt all this from trial and error ! Good luck. am here though if you want to ask anything more.

Quote
MemberMember
10
(@accutaneispoison)

Posted : 06/16/2012 8:31 am

On 6/16/2012 at 10:08 AM, Maynerd said:

This Shona Banda girl was able to make the thc oil a lot cheaper than the Rick Simpson method.

[Removed]

Seems pretty good for a inexpensive method. I'm sure this can work well with small ammounts i may give something like this a try at first. I don't know all the science on it exactly but what i do know is there are alot more cannabinoids than just thc cbd cbn cbg all the commonly mentioned ones and they all have different vaporizing temperatures so it's hard to know if you are getting all of them out of the plant matter while vaporizing. Cannainoids are fat soluable/alcohol so making it other ways like rick simson's method are sure to get all of them out. But since she said it cured her im sure it does a great job as a cheap method.

^^^^ and to the post above me that's great you have found a bunch of things that are legal that help with the conditions, but you are talking about anti oxidants, anti inflammatory "with no side effects" , depression, alzheimers, brain fog, etc. cannabinoids are proven to be the most potent substances that protect and heal all of these problems.

Quote
MemberMember
148
(@oli-girl)

Posted : 06/16/2012 9:35 pm

On 6/16/2012 at 12:38 PM, girlie said:

Hi Indigo

I had dry eyes (in the initial stages whilst taking Accutane) but it resolved quite quickly. That was one that resolved most quick.

The depression hung around for years! The fish oil helped that alot ! but it worsened other long term accutane effects for me, such as spontaneous scarring. So i sought other methods to help me. The evening primrose oil or you can take borage oil (better for men the borage) will help with the depression, Also found most invaluable and I can't stress this enough for depression was including ample amounts of FAT in my diet. No, not fat like in crisps, but fat on meat. Particularly eating lamb with the fat on it, helped my brain fog, depression, anxiety lift

when my health took such a bad tumble from Accutane, i was beside myself. I was aging quicker as well (that was soooo scarey for me![Edited image out](( I tried so many different things, tests from docs, supplements, nothing was helping if anything i was getting worse

So i took a very keen interest in learning all about health as much as I could. the BEST food plan i have ever gone onto to help my symptoms and i have nver looked back was the Sally Fallon "Nourishing Traditions " cookbook, and following the principles of Weston Price, I advise all you accutane sufferers to reserach this more, and if you want buy that book, and follow what she espouses in there. it made an immeasurable difference to my health, and recouping that.

Yes, Indigo, avoiding ALL vitamin A products, esp in multivitamins, and even in food. if your long term effects are at a bad stage, don't tempt fate by including them in your diet. I couldn't eat Salmon at all. Or liver. Now I can have SOME salmon, can eat SOME cARRots without the bad effects happening.

Sorry for the typos, I am not normally careless, and I promise yiou can I spell properly [Edited image out] its just that I have a young son, who needs my attention right now. will be back if any ofyou need help or advice. Even after Accutane, i produced an amazing HEALTHY child, who has no allergies, no asthma, no eczema or other skin probs, no behaviour disorder, and is VERY intelligent. So don't think that you guys cant produce a healthy child, although mind you,when i was pregnant i did all the right health things, no smoking no drinking, no drugs, lots of water, fruit vegetables, prenatal vitamins (which luckily enough had no vit A) But i WAITED 13 years after Accutane to ahve him. Not becuase of Accutane, but didn't think i wantd children.

bye for now. willcome back later and check

just to let you know. THERE IS HOPE. I thought i would never recover, was doomed to a life of such suffering because of the evil Accutane!! Stay strong, positive, and have faith that things can right themselves, but everyone struggles to some extent. Try to feel less of a victim. sometimes looking up all the bad effects can do you in more. yes reserach what you can do, but don't focus heavily on what is NOW going on , because that can change. If you focux too much on the negative it can only create more anxiety which you guys do not need

indigo, sexual dysfunction???

Hmm, well I never had much of a sex drive my whole life. So after Accutane, it didnt seem much different, although i was sexually active, was married at the time

I think the depression effected my sex drive too though, which the depression was fron the Accutane

But as the years have gone on, I have gotten healthier, I even look younger now. But that has also come from being positive about life, and doing the best I can for my body. Meditation has made an amazing impact on my stress level, but so has regular exercise, i love tennis and play every week.

also the epo has helped alot with stress, and b vitamins, AND making the broth soups out of sally fallons book, helped my brain and mood so mUCH, becuase those animal fat NOURISH the brain.

I had hair loss during Accutane use, and after, but it slowly got betterm, and now it no longer happens. I had VERY thick hair, and NOW I STILL HAVE VERY THICK HAIR!!! ITS SO THICK I ALWAYS have to have it thinnned. but afteraccutane it was coming out in clumps! [Edited image out]

Digestive problems??? Yes, I had those, but I took probiotics (plus I was on antibiotics prior to accutane for approx 10 - 13 years of my life [Edited image out] you would have thought i would have got much worse health problems but not so from the antibitocs. but the accutane did me in!! I use to feel ssoooo despondent about my side effects, thought my life was over, at one time my depression wa s so bad, contemplated killing myself!! [Edited image out](((

NOW I AM SO GLAD I DIDNT DO THAt. YOU TOO CAN GET BETTER. ITS NOT THE END OF YOUR LIFE AND HEALTH BUT TRY AND FOCUS ON POSITIVES, EVEN AFFIRMATIONS IF YOU CAN.

Please visit this site

askwaltstollmd,com

that site HELPED me soooo mcuh. thats' where i found out what i could do for my health, and help myself. i followed Walt's principles and my health started to regain!!

its a free site, but you have to do your research there.

do you guys take turmeric???

You can buy it very cheaply at shops.

I normally take it if i hjave an acne breakout

its the most AMAZING ANTI INFLAMMATORY WITH NO SIDE EFFECTS, which is also part of the issue with accutane, is it causes inflammation!

my partner even used it for his joint pain, and it helped as much as pain killers do!!

its the best anti inflammtory but not ohnly that its been proven to prevent and improve alzheimers!!!

I take two teaspoons of it in a glass of half warm water, and half warm milk, witha generous dash of black pepper, and drink that concoction with a straw, it mutes alot of the taste with a straw. pls try that !! the black pepper aids the body's absorption of the turmeric

for Teas, I like Rooibos. That has sooo mmany antioxidants

I use to drink green tea, but got a bit concerned with the fluoride it contains.

Plus dark chocolate. I love ! It is such a mood enhanceer and also has antioxidants, so its a nice treat, without the guilt

sometimes us Taners, need that something special. I have it everyday~! and have never gained weight with it.

but with accutane, i was q2uite thin afterwards for a long time, but as years went by, weight gained no prob

it did take along time for me to fully recover, well i am 99 percent full recoverd, other than the dermatitis, which i get occasionally. that is now the worst of

my complaints

PLUS i also found a very good naturopath, that also put me onto the healing path, but it wasnt just ONE thing that did it. other than FATHER TIME. [Edited image out]

IndigoRush

Now I have an amazing sex life!! I never dreamed it could be so great and that was from finding the right partner.

My sex drive was reduced though from Accutane, but now its fully recovered

it just seems that as time goes by, everything got better, esp wioth LAMARR'S help. But in the first ten year, my health was DYSMAL. [Edited image out]

For anxiety, stress, brain fog for you Taners, eat the fat on your meat, do not have low fat dairy products, eat cream, yoghurt, cheese, milk, (I drink goats milk, less mucous producing, but never LOW FAT!! Full fat all the way!!. Low fat is not good like you have been told ! My mood elevated amazingly from just that !

Watch your greens. like spinach etc which has high vit a in it. don't eat much of it at all. eat greens such as broccoli which is not as high in vit a and careful of parsley

i have learnt all this from trial and error ! Good luck. am here though if you want to ask anything more.

Glad to hear Lamarr could be of some service. Indigo, Lamarr has posted on this thread back in the begining with advice. He is the one who suffers basically from Lupus, Alopecia, Rosecea etc.... If your working on your low thyroid, then thoose supplements will help, if not then you will be wasting your money.

Lamarr takes more then supplements, he had some abnormal labs also.....

Quote
MemberMember
7
(@girlie)

Posted : 06/16/2012 9:38 pm

Hi Oli

 

I credit LAMARR with the advice that finally stopped my spontaneous scarring.

 

I am now contemplating dermastamping, as my skin heals much better.'

 

Can't thank LAMARR enough . If ppl are serious about doing what they can heal to from Accutane

consult Lamarr's posts. He seems to have the best advice thus far!

Quote
MemberMember
10
(@accutaneispoison)

Posted : 06/17/2012 1:59 am

[Removed]

Cannabis and acne

AEA simulates lipid production in human sebocytes of sebaceousglands at low concentrations, but induces apoptosis athigher levels, suggesting that this system is under ECS control(Dobrosi et al., 2008). CBD 1020 mMdid not affect basal lipidsynthesis in SZ95 sebocytes, but did block such stimulationby AEA and arachidonate (Biro et al., 2009). Higher doses of CBD (3050 mM) induced sebocyte apoptosis, which was augmented in the presence of AEA. The effect of CBD to increase Ca++ was blocked by ruthenium red, a TRP-inhibitor. RNAmediated silencing of TRPV1 and TRPV3 failed to attenuate CBD effects, but experiments did support the aetiological role of TRPV4, a putative regulator of systemic osmotic pressure (T. Biro, 2010, pers. comm.). Given the observed ability of CBD to be absorbed transcutaneously, it offers great promise to attenuate the increased sebum production at the pathological

root of acne. Cannabis terpenoids could offer complementary activity. Two citrus EOs primarily composed of limonene inhibited Propionibacterium acnes, the key pathogen in acne (MIC 0.31 mLmL-1), more potently than triclosan (Kim et al., 2008). Linalool alone demonstrated an MIC of 0.625 mLmL-1.

Both EOs inhibited P. acnes-induced TNF-a production, suggesting an adjunctive anti-inflammatory effect. In a similar manner, pinene was the most potent component of a tea-tree eucalyptus EO in suppression of P. acnes and Staph spp. in another report (Raman et al., 1995). Considering the known minimal toxicities of CBD and these terpenoids and the above findings, new acne therapies utilizing whole CBD-predominant extracts, via multitargeting (Wagner and Ulrich-Merzenich, 2009), may present a novel and promising therapeutic approach that poses minimal risks in comparison to isotretinoin.

Lots of scientific information in that PDF, page 9 if you would like to see about the cannabis & acne for yourself. Like i mentioned in an earlier post i noticed some my acne disappearing while using only a little bit of cannabis.

Quote
MemberMember
1
(@gatorwolf6)

Posted : 06/17/2012 9:32 am

Haydos,

 

pseudotumor cerebri is a well documented side effect from accutane. It increases pressure in the skull and may be causing your headaches

Quote
MemberMember
143
(@indigorush)

Posted : 06/17/2012 6:50 pm

My latest plan:

 

Do nothing.

If someone offers me cannibas, sure why not..

But I'm not going to keep throwing money at supplements.

I'm bored of eating salad constantly.

I'm not someone who can keep eating junk food anymore, but a wrap or a sandwich is much nicer than a salad to me at the moment.

 

I had a Kinder Bueno milkshake today. So nice.

And a Tootsie roll.

And a 12 inch subway.

And Marshmallow 'Fluff'.

Naughty, naughty.

 

I want to share a quick story, if you don't mind.

 

I was missing my girlfriend like crazy a week ago.

I used to think I was dead inside and couldn't get upset anymore.

My emotions were shut off, and I just felt so depressed.

But, and a couple of you may have watched the YouTube video I uploaded a couple of days ago, I was crying every day of last week.

I thought it was over between me and my girlfriend.

I realised what I'd had in her, and that she'd been amazing to me.

She'd stuck by me and listened to me talk about this drug all the time.

And I dumped her because of a few of her problems.

 

I walked into Budgens, a local supermarket, where she works after work on Friday.

I needed to get my Dad a Father's Day card.

But more than that, I needed to see the girl I was inlove with.

I didn't know if she'd be there and at first I couldn't see her.

I hadn't seen her in over two weeks, not unless you count in my mind every waking second.

 

And, there she was.

On the Kiosk.

She'd asked me to leave her alone and said it couldn't work now.

She didn't notice me until she looked up and saw me standing there.

I didn't know how much the card was so just handed her a couple of pounds.

She said it was 2.85 and that I'd given her 1.30.

My heart was racing and my hands were shaky.

There was an elderly lady behind me, so I couldn't say what I wanted to say.

It was very weird.

Hannah's hands were shaky too, and when she said I'd given her 1.30, when I'd given her a lot more, I wondered what was going through her mind.

We didn't say anything.

When she passed me my receipt I looked at her and told her I loved her, and I walked out with tears in my eyes.

 

For once, I wanted something more than my health.

 

And luckily, I managed to gain her trust in me and I'm with her again.

The last couple of days I've been going out, spending some money on food, some clothes, the cinema. Just getting out of my house.

 

It feels good to treat someone else to things, especially someone who really deserves to be treated well.

I've booked a Hotel for the weekend with her and I can't wait to have a great time there.

(I didn't mean it that way, but I'm sure that'll be fun too...)

 

I don't know what you're supposed to get out of this.

Maybe a lesson.

Don't let this drug hold you back.

Don't let it narrow your mind into thinking you've lost everything and have no future.

Several days ago, when I made that video, I wanted to be dead.

 

Now, I feel on top of the world.

 

But hey, it's 1am... I'm off to bed.

 

Take care of yourselves.

Quote
tritonxiv, girlie, tritonxiv and 3 people reacted
MemberMember
2
(@haydos)

Posted : 06/17/2012 11:55 pm

Haydos,

 

pseudotumor cerebri is a well documented side effect from accutane. It increases pressure in the skull and may be causing your headaches

 

 

Yeah I have been tested for this. I had a Lumbar punctur performed in 2006 to measure the fluid in my skull. It was in normal range and fine.

 

Maybe it might be worth double checking. Does anyone know exactly how Accutane can cause pseudotumor cerebri?

Quote
MemberMember
29
(@tritonxiv)

Posted : 06/18/2012 8:34 am

Don't let this drug hold you back.

Don't let it narrow your mind into thinking you've lost everything and have no future.

Several days ago, when I made that video, I wanted to be dead.

 

Now, I feel on top of the world.

 

But hey, it's 1am... I'm off to bed.

 

Take care of yourselves.

 

 

This is your best post on these boards. Nice to hear you and your lady are back together.

Quote
MemberMember
10
(@accutaneispoison)

Posted : 06/18/2012 4:10 pm

Hey indigo i enjoyed your video even if that may sound weird lol. I have alot of the same effects as i mentioned before. I am still trying to follow through with my plan but i'm sure i will be able to do so soon. You seem like a very nice guy i hope things are still getting better for you.

Quote
MemberMember
10
(@accutaneispoison)

Posted : 06/18/2012 5:33 pm

Always think positive.

Quote
MemberMember
143
(@indigorush)

Posted : 06/19/2012 2:17 am

Always think positive.

 

 

Saw this a while back.

And I believe it, too.

There's enough proof.

The Secret was a bad way of going about it.

 

Plus, Will Smith is a good an icon as anyone, so people should take his word for it.

Quote
MemberMember
16
(@humanstate)

Posted : 06/19/2012 9:41 am

Like I would take advice from someone as stupid as will smith. That's probably the most ridiculous thing posted on this thread.

 

I've been taking colostrum and a probiotic for a week and I've noticed a difference. My digestion has really stablized. I've also gained a 3-5 pounds. I feel "normal" if that makes sense. I feel like I have a little bit more energy and just better overall.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 06/19/2012 9:49 am

Awesome man. I'm really happy for you. Fucking genuinely, nothing makes me happier.

 

I'm trying Yakult right now, a skim milk probiotic. Per your experience I think I'll throw in colostrum. It only makes sense.

Quote
MemberMember
10
(@accutaneispoison)

Posted : 06/19/2012 9:53 am

Most ridiculous thing posted on this thread? Positive thinking and believing in yourself? WOW. Goodluck to you in life.

Quote
MemberMember
16
(@humanstate)

Posted : 06/19/2012 4:50 pm

Most ridiculous thing posted on this thread? Positive thinking and believing in yourself? WOW. Goodluck to you in life.

 

 

Yeah sorry. I'm an introvert so positive thinking isn't really in my nature :/ Booooo

Quote
MemberMember
91
(@josephbuchignani)

Posted : 06/19/2012 10:30 pm

There are forms of meditative positivity that work for introverts, but extrovert style positive thinking is a contemptible joke to us.

 

The yakult is working for me.

Quote
MemberMember
16
(@humanstate)

Posted : 06/19/2012 11:29 pm

There are forms of meditative positivity that work for introverts, but extrovert style positive thinking is a contemptible joke to us.

 

The yakult is working for me.

 

 

Good! Definitley get the colostrum tho.

I'm using some from a place called Pure Matters but when I buy more I'll be getting it from surthrival.com

 

Surthrivals seems like the best quality and price.

 

 

 

I was wondering how many accutaners where on antibiotics before accutane?

 

I started with minocycline then doxycycline and then tetracycline. This was for around 2.5 years I think. I don't remember how long on which.

 

While I've been reading different things about acne and side effect related issues ive found a lot of troubling info regarding them.

 

There are tons of strong side effects from these drugs and I'm beginning to wonder if accutane just made the damage to my body worse...

 

I'm interested to know how many of you were on antibiotics for acne and if you noticed any side effects while on them.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 06/20/2012 12:20 am

Yeah I took heavy antibiotics for sinus infections growing up.

 

EDIT: I feel soooo Mongolian. Picked up some plain liquid milk/yoghurt at the grocery store, drank it in a bowl with one bottle of yakult and two packets of colostrum mixed in. Freakin delicious, didn't leave me overfull afterwards... in fact no effect at all. Just feel normal.

 

Oh yeah and I downed a probiotic pill with it, and used my unwashed finger to lick clean the bowl. Pretty sure I'm at maximum bacterial intake.

Quote
MemberMember
26
(@maynerd)

Posted : 06/20/2012 4:06 pm

Ya I took 2 or 3 rounds of antibiotics. Ever since realizing that antibiotics make us feel better I have wondered if taking antibiotics before accutane set us up for side effects that we might not otherwise experienced. I don't think we'll ever know the answer fully.

 

Anyhow, has anyone tried my sleeping protocol? Coconut + Magnesium + 15 min hot shower, then straight to bed in a cold room between 72 and 75 degrees. I've been doing it for 6 nights now. Didn't do it 2 of those nights and the morning after those 2 nights I felt low energy and so on. But on the other 4 mornings I have felt great, skin healthier, energy great etc.

 

I originally thought my success was due to my night time supplement combination but after trial and error the shower + cold room thing seems to be the most important key. Anyways, I'm going to stick to it religiously but I was curious if anyone else would have success

Quote