Have any of you been diagnosed with anything ?

-Fybromaglia
-rhematoid arthritis
-chroms disease
-irritable bowl syndrome
-inflammatory bowl syndrome
etc

so far, I've just been diagnosed with Sebhoric dermatitis, but I assume after the visit to the GI doctor and rheumatologist, I might get diagnosed with some others.

All my symptoms seem to fall in line with the above diseases.

Just been tested for crohns actually - should know in a week or so, but I think quite a lot of people have been positive for this so it wouldn't come as a surprise.

My bloods have always shown quite high cortisol (always in range, but right at the top). Recently I think it's gone even higher, and I'm getting it tested first thing Monday. This goes hand in hand with increased abdominal pains/gut inflation/crohns or whatever it is, but this is likely increasing cortisol significantly, and it's giving me issues like righthand side chest pains, general stress feeling. The below probably explains why I've been feeling better applying progesterone cream, as mentioned recently;

[Edited link out]

Quote

High cortisol levels also occur with trauma and inflammatory responses such as the flu. Inflammatory bowel disease, for example, has been shown to induce high levels of cortisol, leading to reduction of progesterone efficacy and resulting in estrogen dominance. With chronic stress, eventually the adrenals are exhausted and production of these important hormones are drastically reduced.

Taking this drug has caused me more problems than any woman ever has lol decades later I'm finally putting the puzzle together of what exactly this drug did to me.

Gladiatoro, let's try to keep this board bringing some hints about how to recover or for pertinent informations. I think some of your recent post are just pessimist, hopeless . And it affects everyone who read this

WE, can recover. We don't really know how, it's probably different for everyone, but some did it, why not us. There is absolutely no reason . Keep fighting, it might take years but I bet you haven't done, as many of this board, and tried everything thatmight get your health back. And while you keep trying some unthought possible solution will come along .

2 hours ago, Vice-accutane said:

Gladiatoro, let's try to keep this board bringing some hints about how to recover or for pertinent informations. I think some of your recent post are just pessimist, hopeless . And it affects everyone who read this

WE, can recover. We don't really know how, it's probably different for everyone, but some did it, why not us. There is absolutely no reason . Keep fighting, it might take years but I bet you haven't done, as many of this board, and tried everything thatmight get your health back. And while you keep trying some unthought possible solution will come along .

To be honest I'm doing better then most on this board my main problem these days is brain fog other symptoms have gone away no more stomach issues thank God for that , for a while my stomach was pretty messed up so close to a full recovery.

My doc said and I'll repeat it again I have to watch my diet and take better care of myself in other words drink less beer having said that my dad drank beer until age 80 so this pisses me off . As have most of my ancestors so I'm doing the same thing they are.

Aparently beer and tan don't mix hmmm.

Also my severe back pain is gone that was years ago I attribute this to drinking lots of pure maunawai water a water system I bought worth ever penny.

So in conclusion I'm doing pretty well considering being poisoned.

Whatever happened to indigo rush ? The original post that started it all his long term side effects were dry eyes , brain fog , joint pain , hair loss , impotence , constipation.

To be fair he took 12,000 mg that's a lot.
Perhaps he finally moved on realizing that symptoms wax and wane.

2 hours ago, Gladiatoro said:

Whatever happened to indigo rush ? The original post that started it all his long term side effects were dry eyes , brain fog , joint pain , hair loss , impotence.

To be fair he took 12,000 mg that's a lot.
Perhaps he finally moved on realizing that symptoms wax and wane.

I was thinking about this too. I actually found the guy on YouTube. It looks like he's still suffering from slight depression and anxiety, but 11 years later he looks great and seems to be happy.

it kind of does make me believe things get better with time. You said it yourself, now all you have is slight brain fog but all your other symptoms seem to have gone away. That's a huge improvement I can't wait until I get to the point where all I have is slight brain fog( this constant muscle weakness/joint pain is the real bitch for me right now I feel like I have arthritis all over my body, my muscles are constantly weak, I feel like I have the body of an 80-year old and after I go to the gym and do slight excercise my body is extremely sore and fatigued for about a week). To be fair, 6 months ago the worst symptom for me was the head pressure ( I thought I had a brain tumor that I got a CT scan and lumbar puncture done), but that seems to have subsided almost entirely. Maybe the acupuncture helped or maybe the RSO helped. Who knows?

But then again, there are people on here that have been living with the accutane side effects for 20+ years so who knows?

I I will say that the symptoms do tend to go up and down for me. They tend to be the worst at work (a highly stressful environment) and far less severe when I'm running, hanging out with friends or just smoking and listening to music in my room alone. Maybe stress does play a huge part in this.

On 27 juillet 2017 at 3:47 PM, Gladiatoro said:

Haven't tried them yet the key with isotretinoin is to gently remove it from the fat cells that's where it's stored like all other toxins that the body knows are dangerous and toxic . It's NOT stored in the liver. Once in the blood stream it can be removed is what this article states.

Im buying liquid herbal combo with cayenne peppers , hawthorn berry , aged garlic and bilberry to improve my blood flow and hopefully remove some toxins stored in my fat cells.

With this drug gentle is the key.

But what if someone has zero body fat ? Where it is stored?

1 hour ago, sacha_n said:

On 27/07/2017 at 11:47 PM, Gladiatoro said:

Haven't tried them yet the key with isotretinoin is to gently remove it from the fat cells that's where it's stored like all other toxins that the body knows are dangerous and toxic . It's NOT stored in the liver. Once in the blood stream it can be removed is what this article states.

Im buying liquid herbal combo with cayenne peppers , hawthorn berry , aged garlic and bilberry to improve my blood flow and hopefully remove some toxins stored in my fat cells.

With this drug gentle is the key.

But what if someone has zero body fat ? Where it is stored?

I would say the organs, infact I remember when I was 22 when I took this shit, I was pretty skinny and very fit - I ran every day and carried very little body fat.

It could very well account for why I have all these problems 20 years later - it prob lodged in my liver and brain....and every other organ!??

Correct ,stress is the number 1 killer so people on this board please don't get stressed out over tan this will only make things worse. The oldest person in recorded history lived to 122. What was her secret , she never did anything special for her health in fact she smoked drank wine daily ate 2 pounds of chocolate per week so what was her secret ?

She was quoted saying if you can't do anything about it then DON'T worry about it. Wise words from a smart lady in other words NO mental stress.

Now everyone here should listen to those words it's called the body mind connection. German new medicine.

Have any of you tried HIGH doses of phosphatidylserine (minimum 600mg per dose) for an extended time? I landed on this quote recently, I haven't spotted the part of research that backs this up but it's right up this alley:

Quote

The introduction of Phosphatidyl Serine reverse the insensitivity at these brain neurons, meaning that these specific areas of the brain are satisfied with much less cortisol. The end result: the hypothalamus no longer stimulates the adrenals in the same way, the cortisol levels fall. As such, phosphatidyl serine is not a cortisol blocker, it simply reverses the factors that would otherwise push cortisol up too high.

[removed]

I've tried it before and in accordance with some of the research it only works well in high doses. There is a problem that all the supplements are shitty soy products with polyunsaturated fatty acid chains, and it gets expensive. There's a list of high-PS animal foods on wikipedia and a few years back I had improvements on some of them. It's taken me some time to more clearly establish that it was probably the PS content that made the biggest difference (not the omega-3 or minerals or other).

57 minutes ago, feastofvermin said:

Have any of you tried HIGH doses of phosphatidylserine

I mentioned this awhile back. I actually have phosphatidylserine antibodies, that might be related to antiphospholipid syndrome and other things still unknown (like gingivitis for example) Based on everything ive been able to look at I havent found if supplementing would be helpful or harmful, so I haven't.

On 7/29/2017 at 3:06 PM, MoreTwine said:

Also it would be a great thing if there was a very specific metric in common with all Accutane patients to discern a measured side effect in black and white.

I tested positive for this antibody from this test,
[Edited link out]

I haven't been diagnosed with this disorder yet, because none of my local doctors have the capability of doing the further tests (like difference in blood pressure when sitting and standing) or treating this. I was just able to order the blood test locally. So I have to drive at least a hour, or go to mayo to look into this more. This antibody might not even be at the top of the charts as to whats going on, but it could be a sign of something.

I tried getting into mayo on my own. They turned me down. Now I have a doctor referral and Im waiting to hear from them again. If not, there are
more local universities that i have referrals to, but I like the idea of getting things done in one shot at mayo.

On 7/29/2017 at 4:35 PM, Jorcruz24 said:

it kind of does make me believe things get better with time.

Im sorry man not necessarily. i'm 20 years out. It does wax and wane though. Again referring to that test. Babis, a person who was on this thread, went to mayo clinic. He tested positive for this same antibody^ and got treatment for it. He also had a PET head scan. One hospital determined it as normal, Mayo didnt.
They ran some advanced metrics on it that basically showed he had some low grade brain inflammation going on. If this is chronic eventually its going to take its toll as you age. So best to figure it out now if possible, or make a push to at least. This is my last push (not that im going to off myself or anything, but I'll move on)

Truejustice, guitarman, what are your remaining side effects ? Feel free to pm if you like

I thought I would add my story to the mix.

Im a 34 year old male, and Ive taken a lot of Accutane. I went on a 6 or 9 months treatment back in 2000. I cant remember exactly, but I think it was 80 mg a day. It cleared my cystic acne, and I was able to maintain generally okay skin for the next several years (mostly with Pro Activ). In 2014 my doctor prescribed Benzamycin (Benzoyl peroxide + antibiotic) gel as I was tired of using Pro Activ and dealing with mild to moderate acne. It worked great, but I stayed on it for 6 months and developed moderate acne again. The bacteria in my skin became resistant to the antibiotic in Benzamycin.

In the fall of 2014 I was prescribed Accutane and was on this course for 1 year (40 mg a day for 2 months, off Accutane for 2 months, then back on for another 2 months). My skin was great while on Accutane, but I continued to develop moderate acne within a month after my last dosage. My moderate acne consisted of pustules all over my temples, forehead, cheeks and along my scalp.

After 3 months since my last dosage of Accutane (I was prescribed a topical retinoid during this period which did not help), I want to a Derm who put me on Accutane for 9 months - 40 mg a day. The last dosage for this course finished in September of 2016, and by November my moderate acne returned. I tried various different natural regimes, but my acne escalated to the worst it has ever been without the cysts. I went onto a OTC 5% Benzoyl Peroxide gel which reduced the severity. I decided to go on the Murad regime from December 2016- February 2017. It helped for a month, but my moderate acne returned.

I went back on Accutane, this time 20 mg a day from the end of February to Mid June 2017. My moderate acne started to develop again 2-3 weeks later.

Ive cut out dairy and wheat, reduced my refined sugar intake, and have been drinking a lot of water for the last 3 weeks and I am seeing improvement. Actually, I want to say my skin looks better than it has ever been while being off of Accutane. Ive also started the Acne.org regime to help make sure it stays this way.

Anyways Accutane symptom. I had severe mood swings and I still do, but not as much since I was on 20 mg per day. Now that I am off it, I hope it will get better. Ive developed anxiety over the last year (not very bad, but I will wake up occasionally win the middle of the night with panic attacks, and feel nervous for no reason on certain days). Dry lips and skin have now subsided. The one thing that worries me is the daily dizzy spells I get that are followed with pressure that builds up in my head. I also have noticed I get a lot more occurrences of ringing in my ears (it passes quickly but I get it often now). I also get a very uncomfortable, bloated stomach after eating any meal. However, I am taking certain foods out of my diet to see if this is due to becoming intolerant to certain proteins. I also continue to experience hair loss (I easily shed more hair than I did pre Accutane).

Just being honest, I probably dont take care of myself as well as I should. My work keeps me from exercising, and I dont eat well. I dont stay too active because I have no energy after work, but that lack of energy could be due to poor eating and possibly my mood swings while on Accutane.

I want to stay off this drug forever. Im hoping that eating better, and taking certain foods out will improve my skin (or keep it how it is at this very moment as Im typing this) so that I can not worry about my face, and focus on eating better and becoming more active.

10 hours ago, guitarman01 said:

I mentioned this awhile back. I actually have phosphatidylserine antibodies, that might be related to antiphospholipid syndrome and other things still unknown (like gingivitis for example) Based on everything ive been able to look at I havent found if supplementing would be helpful or harmful, so I haven't.

PHOSPHATIDYLSERINE AB (IGG)19 H

U/mL

<10 Negative

10-20 Equivocal- Found in small percentage of

the healthy population; may

be reactive

>20 Positive - Risk factor for thrombosis

and pregnancy loss

CARDIOLIPIN AB (IGM) 13 H

< OR = 12 Negative

13-20 Indeterminate

21-80 Low to Medium Positive ...

have you been tested for Lupus?

14 hours ago, raziel101 said:

I thought I would add my story to the mix.

Im a 34 year old male, and Ive taken a lot of Accutane. I went on a 6 or 9 months treatment back in 2000. I cant remember exactly, but I think it was 80 mg a day. It cleared my cystic acne, and I was able to maintain generally okay skin for the next several years (mostly with Pro Activ). In 2014 my doctor prescribed Benzamycin (Benzoyl peroxide + antibiotic) gel as I was tired of using Pro Activ and dealing with mild to moderate acne. It worked great, but I stayed on it for 6 months and developed moderate acne again. The bacteria in my skin became resistant to the antibiotic in Benzamycin.

In the fall of 2014 I was prescribed Accutane and was on this course for 1 year (40 mg a day for 2 months, off Accutane for 2 months, then back on for another 2 months). My skin was great while on Accutane, but I continued to develop moderate acne within a month after my last dosage. My moderate acne consisted of pustules all over my temples, forehead, cheeks and along my scalp.

After 3 months since my last dosage of Accutane (I was prescribed a topical retinoid during this period which did not help), I want to a Derm who put me on Accutane for 9 months - 40 mg a day. The last dosage for this course finished in September of 2016, and by November my moderate acne returned. I tried various different natural regimes, but my acne escalated to the worst it has ever been without the cysts. I went onto a OTC 5% Benzoyl Peroxide gel which reduced the severity. I decided to go on the Murad regime from December 2016- February 2017. It helped for a month, but my moderate acne returned.

I went back on Accutane, this time 20 mg a day from the end of February to Mid June 2017. My moderate acne started to develop again 2-3 weeks later.

Ive cut out dairy and wheat, reduced my refined sugar intake, and have been drinking a lot of water for the last 3 weeks and I am seeing improvement. Actually, I want to say my skin looks better than it has ever been while being off of Accutane. Ive also started the Acne.org regime to help make sure it stays this way.

Anyways Accutane symptom. I had severe mood swings and I still do, but not as much since I was on 20 mg per day. Now that I am off it, I hope it will get better. Ive developed anxiety over the last year (not very bad, but I will wake up occasionally win the middle of the night with panic attacks, and feel nervous for no reason on certain days). Dry lips and skin have now subsided. The one thing that worries me is the daily dizzy spells I get that are followed with pressure that builds up in my head. I also have noticed I get a lot more occurrences of ringing in my ears (it passes quickly but I get it often now). I also get a very uncomfortable, bloated stomach after eating any meal. However, I am taking certain foods out of my diet to see if this is due to becoming intolerant to certain proteins. I also continue to experience hair loss (I easily shed more hair than I did pre Accutane).

Just being honest, I probably dont take care of myself as well as I should. My work keeps me from exercising, and I dont eat well. I dont stay too active because I have no energy after work, but that lack of energy could be due to poor eating and possibly my mood swings while on Accutane.

I want to stay off this drug forever. Im hoping that eating better, and taking certain foods out will improve my skin (or keep it how it is at this very moment as Im typing this) so that I can not worry about my face, and focus on eating better and becoming more active.

So basically accutane only worked while you were on it pathetic. Yet they tout it as a miracle drug there is no such thing.

More like a controlled poisoning .

Allopathic medicine disgusts me it's filled with endless LIES. From toxic vaccines to toxic drugs they really have NO clue on how to heal the human body .

Their future lies in bone mending and trauma care.

20 hours ago, Vice-accutane said:

Truejustice, guitarman, what are your remaining side effects ? Feel free to pm if you like

My sides are probably your sides, his sides, and alot of what you see mentioned on here. After so much time its kind of hard to call them sides or distinguish whats normal. First sign something was wrong though, and this was years ago, was the diffuse all over hair loss, facial flushing, head pressure/warmth, and trouble concentrating, then different things progressed from there, like coating on tongue.

Speaking of tongue coating, a few people on here have tested positive for SIBO, might be a test to keep in mind. The tongue coating is more likely bad bacteria, not yeast (as this would become very obvious as thrush) If you have SIBO odds are the bad bacteria is crowding out any candida growth. People with liver disease are more likely to have SIBO, Also people with slowed gut motility, which that ganglionic neuronal antibody might support. According to a recent study, SIBO can also lead to a k2 deficiency.

Still looking at k2, I noticed a possible changed gene caused by accutane that might affect conversion of k1 or intestinal k2 to mk4.
mk4/k2 is involved in steroid genesis and xenobiotics, also growth. Specifically bone growth, which accutane affects.

This is turning out to be another VIOXX.

2 hours ago, guitarman01 said:

My sides are probably your sides, his sides, and alot of what you see mentioned on here. After so much time its kind of hard to call them sides or distinguish whats normal. First sign something was wrong though, and this was years ago, was the diffuse all over hair loss, facial flushing, head pressure/warmth, and trouble concentrating, then different things progressed from there, like coating on tongue.

Speaking of tongue coating, a few people on here have tested positive for SIBO, might be a test to keep in mind. The tongue coating is more likely bad bacteria, not yeast (as this would become very obvious as thrush) If you have SIBO odds are the bad bacteria is crowding out any candida growth. People with liver disease are more likely to have SIBO, Also people with slowed gut motility, which that ganglionic neuronal antibody might support. According to a recent study, SIBO can also lead to a k2 deficiency.

Still looking at k2, I noticed a possible changed gene caused by accutane that might affect conversion of k1 or intestinal k2 to mk4.
mk4/k2 is involved in steroid genesis and xenobiotics, also growth. Specifically bone growth, which accutane affects.

Thanks for your reply . You haven't mentioned anhedonia, libido loss, ED, hair loss, dry eyes, facial changes.. which are my main symptoms. It really seems like PFS. And i never had facial flushing nor head pressure . I had ear ringing but it went away with diet and RSO. That's why at one point I will go full with CDNUTS protocol . Just waiting to gather enough money and be done with other molecules im trying. Fortunately I've been able to get rid or at least "control " the digestive issue, insomnia and this damn chronic fatigue . Thanks for your input

41 minutes ago, Vice-accutane said:

4 hours ago, guitarman01 said:

My sides are probably your sides, his sides, and alot of what you see mentioned on here. After so much time its kind of hard to call them sides or distinguish whats normal. First sign something was wrong though, and this was years ago, was the diffuse all over hair loss, facial flushing, head pressure/warmth, and trouble concentrating, then different things progressed from there, like coating on tongue.

Speaking of tongue coating, a few people on here have tested positive for SIBO, might be a test to keep in mind. The tongue coating is more likely bad bacteria, not yeast (as this would become very obvious as thrush) If you have SIBO odds are the bad bacteria is crowding out any candida growth. People with liver disease are more likely to have SIBO, Also people with slowed gut motility, which that ganglionic neuronal antibody might support. According to a recent study, SIBO can also lead to a k2 deficiency.

Still looking at k2, I noticed a possible changed gene caused by accutane that might affect conversion of k1 or intestinal k2 to mk4.
mk4/k2 is involved in steroid genesis and xenobiotics, also growth. Specifically bone growth, which accutane affects.

Thanks for your reply . You haven't mentioned anhedonia, libido loss, ED, hair loss, dry eyes, facial changes.. which are my main symptoms. It really seems like PFS. And i never had facial flushing nor head pressure . I had ear ringing but it went away with diet and RSO. That's why at one point I will go full with CDNUTS protocol . Just waiting to gather enough money and be done with other molecules im trying. Fortunately I've been able to get rid or at least "control " the digestive issue, insomnia and this damn chronic fatigue . Thanks for your input

Exactly. None of us are experiencing the same exact thing. Guarantee it. Vice, have you at all caught a "cold" or "flu" since the onset of your symptoms? This was a big connection between ehohel and myself.

1 hour ago, Vice-accutane said:

You haven't mentioned anhedonia, libido loss, ED, hair loss, dry eyes, facial changes

no I didnt mention it but yes man, D, all of the above.

1 hour ago, Colinboko said:

Exactly. None of us are experiencing the same exact thing. Guarantee it. Vice, have you at all caught a "cold" or "flu" since the onset of your symptoms? This was a big connection between ehohel and myself.

I think we have too much in common. Ehohel was on a course of steroids for breathing problems that seemed to be coming from the lungs if I recall correctly. I can attest to changed breathing post accutane as well. Thats one thing that doesn't get talked about much on here, lung function. This is something that can increase your heart rate as well, or affect exercise ability. This could be for any number of reasons like thick mucus, muscle weakness or constriction. This could also fall into that dysautonomia category.

No i dont get sick much either. This could not only be autoimmune but maybe this could be immune deficiency as well, where you body is choosing not to fight some things it should be fighting.