On 30/07/2017 at 6:49 AM, Vice-accutane said:

Truejustice, guitarman, what are your remaining side effects ? Feel free to pm if you like

Fatigue
head pressure
eye floaters
sore joints
varicose veins
depession
light sensitivity
thinning hair
unwanted body hair
insomnia
grind teeth
bad nails

some of these you could say really that's from Accutane? I feel they all are!!
I liken my body to a computer with a virus, its slow, doesn't work properly and is very frustrating..,,

I just can't find the thing that is needed to Reboot???

Interesting [removed] thread about chronic fatigue and environmental sensitivities after Accutane: [removed]

He had autoimmune markers and is treating with Rituximab.

Excerpt:

Quote

My illness began after using Accutane for 6 weeks when I was 18 years old. Accutane is associated with autoimmune illnesses including Crohn's and IBD, as well as changes in DNA transcription and methylation patterns in T-cells. The latter can be long lasting. (R) Epigenetics is a burgeoning field with many autoimmune diseases expressing similar patterns in epigenetic control mechanisms e.g. DNA methylation, histone acetylation, miRNA. (R) For example, drug induced lupus and systemic lupus erythematosus express an identical DNA methylation pattern with no significant genetic difference to controls. But the former disappears as soon as the offending drug is discontinued. This is an important thread to unravel.

You can read about my symptoms, testing, illness onset and supplement regiment[Edited link out]

^ Lol...who wants to take a Roche drug to cure side effects from a Roche drug? That's some pretty twisted stuff. Gotta be careful with what you read online.

They are all prostitutes all of them ( allopathic inc )

I thought it was s miracle drug until the back pain kicked in , the hair fell out and the pseudo Tumor flaired up , fucking $luts.

9 hours ago, guitarman01 said:

no I didnt mention it but yes man, D, all of the above.
I think we have too much in common. Ehohel was on a course of steroids for breathing problems that seemed to be coming from the lungs if I recall correctly. I can attest to changed breathing post accutane as well. Thats one thing that doesn't get talked about much on here, lung function. This is something that can increase your heart rate as well, or affect exercise ability. This could be for any number of reasons like thick mucus, muscle weakness or constriction. This could also fall into that dysautonomia category.

No i dont get sick much either. This could not only be autoimmune but maybe this could be immune deficiency as well, where you body is choosing not to fight some things it should be fighting.

The development of autoantibodies that bind to and destroy blood cells is the most commonautoimmunedisease seen in primaryimmunodeficiencydiseases. The blood cells affected are the red blood cells (RBCs), platelets and white blood cells (WBCs).

Autoimmunity | Immune Deficiency Foundation

primaryimmune.org/about-primary-immunodeficiencies/relevant-info/autoimmunity/

I wasn't throwing shade at you man. I've said many times before that I respect all of your research. But, there are a lot things you listed that I truly don't suffer from.

It's not that I don't get sick a lot. I literally never get sick. I've gone this whole year without a single cold. Not a drop of green phlegm has left my system since the onset of these side effects. If I have mucus ever, it's 100% clear.

Just curious, have any of you guys been diagnosed with anything:

-fybromaglia
-rhematoid arthritis
-chronic fatigue syndrome
-multiple sclerosis
-Lupus
-shorgen syndroms

or any other type of disease ? A lot of my symptoms seems to coincide with these diagnosis and I'm wondering if I should bring this up to my doctor next time.

A a lot of our symptoms seem to fit this as well. Especially you guys 10+years post Tane. Have they still not been able to diagnose you with anything?

i pretty much just lost hope with modern medicine as my neurologist just came to the conclusions that I'm having migraines and prescribed me anti depressants and my primary doctor things my chronic fatigue and muscle weakness stems from stress and j should relax.

Theyre idiots. They really are. They only know how to treat what they know and when they don't know they just assume you're making it up or there is no problem. It's frustrating as hell.

Worst of all, none of them will admit accutane caused any of this. It's the most frustrating thing in the world to not only suffer but have to convince the doctors that your pain is actually real and constant. I just want to shake my doctors and tell them "please,just give the slightestfuck about my health and try to see what's wrong with me so you can help.!"

On 28/07/2017 at 1:59 PM, TrueJustice said:

Cool...

just ordered it!! $150 with trackable air freight from NZ.

Here's hoping its not just another supplement scenario with money wasted and no improvement!! I have reason to believe though that this could help me, especially as I suffer terribly with circulation issues and varicose veins, so at the very least this product could help me make improvements in those areas!

That was quick - ordered Friday, arrived today coming from NZ.

It could be just another supplement, I need to be honest about that. I will say though, Improving circulation like lung function is an overlooked area for us tane victims, besides the obvious things like joint stiffness, blood flow or lack of it could explain erectile issues, eye floaters, varicose veins, panic attacks/depression/insomnia- I'm no expert but the blood carries OXYGEN correct, If it isn't getting around the body properly of course we're going to have some of the issues we know of......

ill keep the forum posted - need to give it time, they even suggest taking these drops daily for a year....we'll see how it goes...

On 7/31/2017 at 3:55 AM, RobGreene said:

Interesting [removed] thread about chronic fatigue and environmental sensitivities after Accutane: [removed]

He had autoimmune markers and is treating with Rituximab.

Excerpt:

This is good information. Thanks for posting this. I'm going to try to get in touch with this person when I get a chance.

On 28/07/2017 at 9:37 PM, Gladiatoro said:

To be honest I'm doing better then most on this board my main problem these days is brain fog other symptoms have gone away no more stomach issues thank God for that , for a while my stomach was pretty messed up so close to a full recovery.

My doc said and I'll repeat it again I have to watch my diet and take better care of myself in other words drink less beer having said that my dad drank beer until age 80 so this pisses me off . As have most of my ancestors so I'm doing the same thing they are.

Aparently beer and tan don't mix hmmm.

And what about your hair loss? Could you please tell me what happened?

That PhoenixRising article is certainly a good read, but Ritu-whatever seems pretty dangerous from what I've read about. If it's true and we all have an unidentified autoimmune disease then I'd much rather stay safe and treat it with steroids for the rest of my life. The side effects of steroids are far more tolerable. I mean I've read articles about that drug having the potential to ACTUALLY kill you. No thanks.

Also, ehohel never answered but I assume when he got down to 20 mg, he was still feeling great. What if he went even lower! Say 10mg and it had the same effect. I remember reading about a guy treating his CFS for life on 10mg.

2 hours ago, Yar said:

And what about your hair loss? Could you please tell me what happened?

Sorry my allopathic doctor said and I quote " it's not that bad ,( isotretinoin) you have to take better care of yours and watch your diet " those were his exact words .

Hair loss is sadly permanent 50 % loss in front due to hypervitamin tosis .

All truth passes through three phases , first it is ridiculed , second it is violently opposed and FINALLY it is seen as self evident.

Isotretinon is no different. Accutane treats acne with permanent side effects, FACT.

And please people don't rub your skin it only makes symptoms / side effects.WORSE.

9 hours ago, Jorcruz24 said:

Just curious, have any of you guys been diagnosed with anything:

-fybromaglia
-rhematoid arthritis
-chronic fatigue syndrome
-multiple sclerosis
-Lupus
-shorgen syndroms

...

Worst of all, none of them will admit accutane caused any of this. It's the most frustrating thing in the world to not only suffer but have to convince the doctors that your pain is actually real and constant. I just want to shake my doctors and tell them "please,just give the slightestfuck about my health and try to see what's wrong with me so you can help.!"

1) Those are serious diseases, with multiple sclerosis if i'm not mistaken people are bed bound, how come doctors are not able to diagnose that ? You're sure that your symptoms fit well with them?
2) A doctor whom I spoke about accutane went to an "official" website (maybe pubmed or something like that) with a bunch of side effects listed, so your doctors can not say that it's sides are non-existent

I find it ironic I go to my allopathic doctor for severe lower back pain and I get offered more drugs caused by another drug ( isotretinoin) what a. Joke .

I never took any instead I learned to drink more water , more often and less beer this solved my problem. But it's how the system works they treat symptoms but never actually get to the root cause of what the hell is causing them , pathetic.

Dont get me wrong most allopathic doctor are well meaning but are simply trained to hand out synthetic concoction.

They call it symptom management it's certainly the wrong approach and in the end never really leads to healing.

40 minutes ago, sacha_n said:

1) Those are serious diseases, with multiple sclerosis if i'm not mistaken people are bed bound, how come doctors are not able to diagnose that ? You're sure that your symptoms fit well with them?
2) A doctor whom I spoke about accutane went to an "official" website (maybe pubmed or something like that) with a bunch of side effects listed, so your doctors can not say that it's sides are non-existent

People are bed bound when not treated... or taking medicine. (With the exception of M.S. which obviously progressively cripples you with age).. but I don't think any of us have that. If we did that'd be a GIGANTIC lawsuit, that's for sure.

I figured I'd give an update....
ive been working with a rheum and nutritionist
was put on black currant seed oil
fish oil
vitamin d 4,000 iu
milk thistle
cholacol (told not absorbing fat)
cataplex f
prolamine iodine
ive been avoiding dairy gluten wheat low sugar diet since November
ive stopped all psych meds minus my Xanax for sleep went from 5mg down to .5mg
went from 5 hours of sleep to about 2 before I wake back up
and nothing is working...my eyes are so dry when waking they are crusted mucus in oain
was told blepharitis (doubtful)
I put castor oil in them eye drops I have plugs
ice tried restasis and xxidra diet change
drank less water was drinking 8 bottles a day 16oz bottles and figured maybe too much
ive also quit eggs although I'm not sure if I'm lacking vitamin a retinol in diet
I drink a protein organine drink that has 25% a
thats about it
I avoid dairy and eggs so not sure if avoiding a is maming me worse

heres what hat I have been told and recent tests done

i was told when taking Accutane my alt ast liver enzymes were high and cholesterol triglycerides sky high I was about 165 pounds 5 feet 10
19 years old
i quit smoking and lexapro made me gain from 129-165
i also started having cold hands feet constipation dry skin flushing and insomnia dry eye mouj nose scalp
anxiety depression lower back pain
Also was told pre diabetic from 4 hour glucose
Then told raynaurds yet my hands feet never tingled just cold easily and pale and blue tone but not the tips or fingers the whole hands
wrist down

fast forward to 2013
im told my tsh is 5.78 and ultra sound showed thyroiditis was told levothyroxine for life
thought I had found the answer
sadly my tsh went down to .50 and I went from 150-119 in two months
then told it was no longer inflamed stop meds if I want weight loss wasn't from meds LMAO

now I'm 130 and hard to gain on strict diet avoiding and becoming OCD of everything making my skin worse and health

was told fatty liver by ultra sound years ago

now I've had
schirmers test showing no tears at al
lip biopsy was negative in 2012
ana was diffuse or speckled in 2011
negative now
my LH hormone was high which prompted them to do MRI of brain said pituatry issue could be why it was high
waiting on results still....
told I have congested liver leaky gut
yet no relief on diet
ive been told my skin issue could be rosacea Seb Derm kp
stI'll no clue

my my main issues are

weight loss-I avoid everything and not sure if vitamin a bad my levels were normal but the retinol version was like 0.1
range 0.0-0.5
Barely eat...
acid reflux is back I've had esophagus stretched history of ulcer and acid reflux
started since diet....
dry eyes-nothing works lipiflow next option
dry nasal passages worse in morning or if indoors
dry mouth upon waking usually ok through day if I drink water brush terth
cold hands feet
dry flaky nose and skin
rashy blushed dermatitis
facial flushing anxiety makes it worse I do know this
eye bags from sleep issues maybe?
havent slept 8 hours straight in over 10 years
tried every sleep med anxiety pill weed
im trying 10mg melatonin next and getting off Xanax
my sex drive is dipping and erextions
anti depressants made it worse
i do believe some of that is mental for me
also my t levels were 900 high
now 500
in a year
my total t is 12 range is 9-50
feel like that's low

mainly im dry
sleep deprived
depressed anxious stressed cold hot and stomach pain

it all mimics sjorgens
and thyroid hormonal shit

was told magnesium low
zinc low
urine iodine
and dhea were normal but low levels
mWas told sleep apnea yet don't fit criteria
small adnoids under weight

im so frustrated NOTNING works
should I stay on this diet
I miss pizza and see no difference in skin pink ness acne
I mean I get break outs here and there

sorry it's all over the place
I also ordered b complex as I am fatigued now I figured since gluten free
also have raw vitamin c I want to try

I'm just mad because I have Bdd over my skin eyes
and eye doc said I have lower fat prolapse and surgery can fix it
but my dry eyes make it almost impossible to treat
I also have anxiety depression and urticaria hives
and antihistamines and more dry me out

feel like I'm fucked
becoming reclusive more and more I'm 28 now

also have light sensitivity in eyes and sun I feel makes me rashy more

....wish we all felt better
sorry u all are in pain

@Nemesisbradyyou might as well give the CDnuts protocol a go, water fast, juice fast, rotate testosterone boosting herbs and do cycles of DHT prohormes. Sounds like you've got pretty good willpower, and some guys are doing pretty well after including the prohormes.

http://www.totalmaleoptimization.com

I'm going to give this another go including the DHT prohormes (which I've got already). Currently just waiting to get my health back a bit - I've been having issues with chest pains, racing pulse, heart issues - and it turns out it's low potassium. I've been taking a Jarrow B-right B-complex daily for about a year (includes methlfolate) and it looks likely this could be the cause, so I'd supplement with potassium if you start on B-vits.

@tanedout thank u
problem is I'm not sure if hormones is my issue
also
water fasting and all that scared because I'm already so thin ....
thanks for the heads up on b vitamins
jist want to know what's what and how to feel better
as I'm sure we all do

2 hours ago, sacha_n said:

1) Those are serious diseases, with multiple sclerosis if i'm not mistaken people are bed bound, how come doctors are not able to diagnose that ? You're sure that your symptoms fit well with them?
2) A doctor whom I spoke about accutane went to an "official" website (maybe pubmed or something like that) with a bunch of side effects listed, so your doctors can not say that it's sides are non-existent

My symptoms are:

-head pressure ( daily, the severity comes and goes, but it's never gone away since getting off accutane. Probably the worst side effect of all since I think it's causing further brain damage as I'm having trouble formulating thoughts now, memory issues, etc.)
-muscle pain/joint pain ( started off just in the morning but would go away, now it's getting more severe and lasting. I can't due hard physical activity, I get tired more easily and throughout the day everything hurts:shoulders, low back, legs, knees and arms)
-digestive issues ( probably just as bad, always bloated and constantly having to use the restroom.)

so far m, I've tried RSO, all vitamins and minerals, change in diet, light excercise and now I'm taking prednisone and anti depressants.

Not it really attacking the root cause I know, but the last 6 months going to the doctor all they've prescribed me is a steroid and antidepressant. It's a fucking joke.

Anyways, I'm on month 8 post Tane

but it to answer your question, the severity of all of those diseases I mentioned fluctuates from patient to patient, just likes us post Tane with some of us complaining of just out hair falling out or low libido while others post Tane are actually bed ridden and and do anything.

42 minutes ago, Nemesisbrady said:

@tanedout thank u
problem is I'm not sure if hormones is my issue
also
water fasting and all that scared because I'm already so thin ....
thanks for the heads up on b vitamins
jist want to know what's what and how to feel better
as I'm sure we all do

Hormones are involved, but it's more complicated than that. You've got PFS guys who've worked to get perfect hormone profiles, but still have their sides.

Everyone is affected differently, so you need to just do trial and error as what works for one doesn't always work for the other. Sides change over time too, I never used to get sleep issues (tane sides for 7 years), but since the end of last year I've had trouble sleeping and haven't had more than 4 hours straight since last year.

@Jorcruz24 - are you noticing anything from the prednisone?!

18 minutes ago, Jorcruz24 said:

My symptoms are:

-head pressure ( daily, the severity comes and goes, but it's never gone away since getting off accutane. Probably the worst side effect of all since I think it's causing further brain damage as I'm having trouble formulating thoughts now, memory issues, etc.)
-muscle pain/joint pain ( started off just in the morning but would go away, now it's getting more severe and lasting. I can't due hard physical activity, I get tired more easily and throughout the day everything hurts:shoulders, low back, legs, knees and arms)
-digestive issues ( probably just as bad, always bloated and constantly having to use the restroom.)

so far m, I've tried RSO, all vitamins and minerals, change in diet, light excercise and now I'm taking prednisone and anti depressants.

Not it really attacking the root cause I know, but the last 6 months going to the doctor all they've prescribed me is a steroid and antidepressant. It's a fucking joke.

Anyways, I'm on month 8 post Tane

but it to answer your question, the severity of all of those diseases I mentioned fluctuates from patient to patient, just likes us post Tane with some of us complaining of just out hair falling out or low libido while others post Tane are actually bed ridden and and do anything.

What was your dosage ? Your side effects are quite severe sounds like around 15.000 mg or more

2 minutes ago, tanedout said:

Hormones are involved, but it's more complicated than that. You've got PFS guys who've worked to get perfect hormone profiles, but still have their sides.

Everyone is affected differently, so you need to just do trial and error as what works for one doesn't always work for the other. Sides change over time too, I never used to get sleep issues (tane sides for 7 years), but since the end of last year I've had trouble sleeping and haven't had more than 4 hours straight since last year.

@Jorcruz24 - are you noticing anything from the prednisone?!

I just started today: dizziness, naseua, tiredness. I hope the benefits kick in tomorrow or later. I'll let you know if it provides any relief. Even short term

2 minutes ago, Gladiatoro said:

22 minutes ago, Jorcruz24 said:

My symptoms are:

-head pressure ( daily, the severity comes and goes, but it's never gone away since getting off accutane. Probably the worst side effect of all since I think it's causing further brain damage as I'm having trouble formulating thoughts now, memory issues, etc.)
-muscle pain/joint pain ( started off just in the morning but would go away, now it's getting more severe and lasting. I can't due hard physical activity, I get tired more easily and throughout the day everything hurts:shoulders, low back, legs, knees and arms)
-digestive issues ( probably just as bad, always bloated and constantly having to use the restroom.)

so far m, I've tried RSO, all vitamins and minerals, change in diet, light excercise and now I'm taking prednisone and anti depressants.

Not it really attacking the root cause I know, but the last 6 months going to the doctor all they've prescribed me is a steroid and antidepressant. It's a fucking joke.

Anyways, I'm on month 8 post Tane

but it to answer your question, the severity of all of those diseases I mentioned fluctuates from patient to patient, just likes us post Tane with some of us complaining of just out hair falling out or low libido while others post Tane are actually bed ridden and and do anything.

What was your dosage ? Your side effects are quite severe sounds like around 15.000 mg or more

That's what I'm saying! If it was bad enough for me to get a brain scan and go through a lumbar puncture because I felt like a had a brain tumor, then it's pretty damn bad.

I was was only on 40 mg daily for 3 months.

Will def look into hormones more
i doubt this diet is needed

and what's the deal with vitamin a
i avoid retinol
but I eat leafy greens and carrots

@Jorcruz24

Keep us updated on the prednisone for sure! What is your dose?

10 minutes ago, Colinboko said:

@Jorcruz24

Keep us updated on the prednisone for sure! What is your dose?

60 mg per day