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On 7/24/2017 at 1:05 PM, Jorcruz24 said:I told the doctor that this is one of many issues, but I'm seeing w rheumatologist for my muscle/joint pain and weakness and a gastrointerologist for my digestive issues.
Id still try to get that test I mentioned if you're going to be getting more blood test from the rheumatologist. Ive been to a rheumatologist, they will run alot of blood test on you and most of them will come back normal, minus maybe testosterone. Another thing you could look into from the rheum if you wanted to, since you've already gone as far as a lumbar puncture, is a muscle biopsy. This looks into the muscle weakness. This could be neurological in nature though and the biopsy might show nothing. I had a consultation for one myself, but I changed my mind. Maybe I should have went through with it.
Also this blood test. There seems to be case reports of this being elevated post tane.
Creatine kinaseis an enzyme chiefly found in the brain, skeletal muscles, and heart. An elevated level ofcreatine kinaseis seen in heart attacks, when the heart muscle is damaged, or in conditions that produce damage to the skeletal muscles or brain
On 7/24/2017 at 10:51 PM, MoreTwine said:Conducting Accutane Survey
Hi All,
I'm considering talking to a lawyer about Accutane.
We know what we have in common. These symptoms are too vague to hold up in a court of law. We need to find something more specific that we have in common that will legally hold up.
2 hours ago, idontknow1993 said:But these physical and mental side effects can also caused by hormonal dysfunction. I'm sure if you fix the sexual sides all the others will disappear with time.
I think you could spin this the other way as well, erectile function is a highly sensitive thing, just like hair loss. If you got some systemic issues going on, these might be the first to show it.
On 7/18/2017 at 3:17 AM, Sprinterguy98 said:Hey guys,
I'm glad i found this forum. So i'll begin by saying that in September 2016, I had a moderate cystic acne breakout. My mom decided to take me to the dermatologist, and discussed with the doctor what was going on. Due to my family's history with bad acne, he decided to put me on accutane as the first treatment in late October. I began at 40 mg a day for one month, being 5'9 and 170 pounds. I was ecstatic, because this medication cleared my sister's acne so well and she had no side effects whatsoever, so i was ready. No here's the awkward part...about 3 weeks into treatment I realized that i "couldn't get it up" that well. I then did a quick google search for shits and giggles, and saw that Accutane can cause ED. I immediately went off the medication, and told my parents that it was just "making me tired". So at this point i was relieved. But to my amazement, the ED never really went away. I first attributed this to my lowbody fat, because I was in very good shape at the time. But then i started making connections. Overtime, i went through good and bad times pertaining to this topic. For days, sometimes weeks, i would be totally dead down there for weeks. I also noticed candida on my tongue since ending treatment. Recently in the past two months, I've had two spurts of feeling great, oily face, horny, and feeling happy. Then, these good spurts disappear, and I feel absolutely dead "down there" and legitimately feel impotent. Im currently in this state of partial impotence and cant get my D up for the life of me (no morning wood, spontaneous erections, etc). So basically what I'm asking is does it get better in terms of ED? My sleep patterns are beginning to return, and my "good spurts" with no symptoms seem as though they are begining to happen closer to each other but this "dead spell" is the worst yet. Does this mean im recovering? The symptoms seem to be on and off right now, so maybe this is my body fighting to get back? I sure hope so. And for ED, what can i take to get me back on track? My libido is up, I want to have sex, but it seems as though I have no visual stimulation and my penis isnt connected to my brain. I could literally get hard looking at a girl before now i really have to work it. i am only 18, so i gotta get my stick working at 100% all the time. I'm looking at taking creatine, gilko bilabo, and maybe pine pollen. I just need to some truthful answers because im pretty down right now. And i really hope this ED thing isnt permanent. I have really done my research on these AR-5 Reductase inhibitors and its scaring me. Any advice? Am I screwed down there for life? Its been 6 months. Please any response will be helpful. Thanks.
where are u from - have you reported your side effects?
55 minutes ago, Jorcruz24 said:I'm just worried because so far, 8 months post accutane, I don't have any issues with my libido or ED or major depression. I hope it doesn't come in the future.
If you've gone that far without those issues appearing, then you're probably ok. I've read of some people who've had issues like ED appear while on, or just after finishing the drug, and then the issues have gone away for a bit and then come back months later, but I'm not aware of anyone who has had issues appear first time months after taking it. I think you'll be fine, but I'd still be eating a healthy diet etc if I were you.
1 hour ago, Jorcruz24 said:I'm just worried because so far, 8 months post accutane, I don't have any issues with my libido or ED or major depression. I hope it doesn't come in the future.
That's kiiiiind of like me. I can still get hard (not as hard as I used to) and can still "finish". I truly think it has to do with the depression and anhedonia that I suffer from. But yeah I'm not totally impotent.
1 hour ago, tanedout said:If you've gone that far without those issues appearing, then you're probably ok. I've read of some people who've had issues like ED appear while on, or just after finishing the drug, and then the issues have gone away for a bit and then come back months later, but I'm not aware of anyone who has had issues appear first time months after taking it. I think you'll be fine, but I'd still be eating a healthy diet etc if I were you.
It's also curious because while I was on the drug, I did experience occasional headaches, occasional muscle joint pain and occasional digestive issues. Nothing was too concerning at the time, and when I brought up all these issues to my dermatologist she said they were normal side effects and would go away once I stopped. 8 months later and these are the exact same areas of my body that are fucked.
I think the reason I had such bad head pressure immediately post accutane that lasted about 6 months, is that my mind was trying to compensate for what was lost or damaged. After the head pressure subsided, it seems I started to develop muscle/joint pain and digestive issues, almost like my brain stopped trying to compensate anymore.
I begged for an MRI early on because it felt like I had a brain tumor, but all the doctor did was do a CT scan and lumbar puncture. I think the MRI would have shown this activity happening
I think it's important for us to document our personal journey, during accutane and the immediate months after.
The he doctors don't seem to care and no one seems to be doing research on this, but I think it's crucial to understanding how our body's were damaged, to what extent and what we an do to recover.
Also, did anyone suffer from withdrawal symtoms immediately after stoping Accutane? A week after I stopped, I felt the worst I've felt in a very long time. It was like a horrible fever, but I had no fever. I just took ibuprofen and rested for about a week.
Maybe be we had horrible withdrawals symptoms like a lot of other drugs and our body just shut down?
I know you're not too keen on steroids right now. But out of us all, you actually have a test that proves an autoimmune dysfunction. You're further along than a lot of us. Start experimenting please.
8 hours ago, tanedout said:, but it's all about the money for them. Just deny responsibility, cover-up, rinse and repeat. No concern for helping those whose lives they've ruined.
It's clear as day, but it's common practice throughout the world. And really no one minds until it's at their doorstep affecting them. I follow Roche's company in the business world, and they have been bringing in 2-4% growth every year for over a decade. Can you imagine if you had millions of dollars where you would want to invest your money?
This company was handed the single biggest pharmaceutical fine by the U.S. government for their part in a Vitamin fixing scandal.
Their current CEO is a stakeholder and board member of Suisse bank.
This company is now under threat by generic manufacturers undercutting their products, as the patents expire, yet they will still find a way to profit. They do not lose. I promise you. They will find a way to profit.
They have influence in governments around the world including the FDA. Except for the Japan. Because the Japanese health Ministry takes side effects seriously, actually cares about their people, and have banned sales from some of their drugs.
Somewhere in the U.S. right now there is a kid walking into a walk-in clinic with a common flu and being given Tamiflu by a doctor when there is simply no reason.
I know I am not the only one who experienced the same thing because I've read a similar story on PFS, but right after I finished accutane, I was still able to have erection , when I think about it now something was different with my libido but not a total loss as I have now for two years . The weird thing is, in September 2014 ( finished accutane on April of that year ) I had during 15 days an enormous libido, and erection were normal . It is in december 2014 that I crashed. Slowly but steadily during three months after december I could felt my libido and erection decreasing . To 0, where I am still now.
I was also eating like crazy when the libido rush, then when I crashed I was eating normal. As if my body was trying to compensate something . And during the months were I was crashing, I went from 80kg to 88, while still practicing sports almost everyday.
Those abnormal changes were in my opinion related to the thyroid .
now I weigh 75 and cant gain much even if I try
2 hours ago, Vice-accutane said:I know I am not the only one who experienced the same thing because I've read a similar story on PFS, but right after I finished accutane, I was still able to have erection , when I think about it now something was different with my libido but not a total loss as I have now for two years . The weird thing is, in September 2014 ( finished accutane on April of that year ) I had during 15 days an enormous libido, and erection were normal . It is in december 2014 that I crashed. Slowly but steadily during three months after december I could felt my libido and erection decreasing . To 0, where I am still now.
I was also eating like crazy when the libido rush, then when I crashed I was eating normal. As if my body was trying to compensate something . And during the months were I was crashing, I went from 80kg to 88, while still practicing sports almost everyday.
Those abnormal changes were in my opinion related to the thyroid .
now I weigh 75 and cant gain much even if I try
Thyroid or Hypothalamus???
Or Pituitary for that matter?, many Thyroid tests done by people on this forum have come back within range....
In any case hormones after tane seem altered, the root cause is what we don't know!!
I just don't understand want accutane has done to cause our immune systems to what I assume is attacking itself, joint pain, disc issues, dry skin etc.
Its crazy to think that the mechanism behind accutane is actually not really known. So I guess this is just a puzzle that will never be solved. I would like to figure out how to stop all this from progressing, but all the supplements and life style changes have brought me no luck.
I spoke with my dermatologist todayfor the first time since getting off The drugand she said she's never heard of any of these symptoms being related to post accutane. If anything, they can happen during treatment but never after. She suggested I speak with my primary doctor and ask if it may be Lyme disease? Since all my symptoms seem to be related to that.
I I also called the FDA( Food Drug and Administration in the US) to file a complaint about the side effects I've had after Accutante and the person said the only issues to may have been caused by post accutane use is possible damaged muscles but this would show up in a muscle test from a rhematilogist, right? None of the side affects that I mentioned have been seen in double blind scientific studies. The guy even told me the drug has been approved since 1982 so it's a relatively safe drug to most since its been around so long.
it felt a little weird since for q second I thought maybe it is all just in my head, then I feel the head pressure and my body ache just when I'm sitting down and I think: "no, I'm not going crazy, these symptoms are real ." I fucking wish I was just making it up.
I'm back only because I have some important information to share with fellow isotretinoin VICTIMS .
http://www.curezone.org/forums/fm.asp?i=1971775
http://www.thehealthyhomeeconomist.com/say-no-to-accutane/ https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
56 minutes ago, Gladiatoro said:I'm back only because I have some important information to share with fellow isotretinoin VICTIMS .
http://www.curezone.org/forums/fm.asp?i=1971775
http://www.thehealthyhomeeconomist.com/say-no-to-accutane/ https://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/
Thank you!!
How have you responded to the process suggested in the "curezone" link??
Haven't tried them yet the key with isotretinoin is to gently remove it from the fat cells that's where it's stored like all other toxins that the body knows are dangerous and toxic . It's NOT stored in the liver. Once in the blood stream it can be removed is what this article states.
Im buying liquid herbal combo with cayenne peppers , hawthorn berry , aged garlic and bilberry to improve my blood flow and hopefully remove some toxins stored in my fat cells.
With this drug gentle is the key.
1 hour ago, Gladiatoro said:
When they say high risk of birth defects, is that only in relation to woman taking it or would that apply to a male too??
Thats never been fully explained in any article. And if we're to believe that tane is stored in fat cells etc for years well then it's in us so what's to say that birth defects couldn't result down the track???
7 hours ago, Gladiatoro said:Haven't tried them yet the key with isotretinoin is to gently remove it from the fat cells that's where it's stored like all other toxins that the body knows are dangerous and toxic . It's NOT stored in the liver. Once in the blood stream it can be removed is what this article states.
Im buying liquid herbal combo with cayenne peppers , hawthorn berry , aged garlic and bilberry to improve my blood flow and hopefully remove some toxins stored in my fat cells.
With this drug gentle is the key.
Which brand are you looking at?
You can buy them online.
I believe they have 7 herb in that mixture the tincture I buy is local from a naturopath doctor and it only contains 4 herbs for a gentle detox the key is to push the toxins out of the fat cells by increasing circulation then the body can deal with them slowly. Key word slowly without causing harm.
I know a lot of y'all have tested high in cortisol but I still really need to get this test done regardless. After all, Cortisol does shut off inflammation. So I could just be experiencing what feels like "autoimmune", when it's really low cortisol. I passed both the adrenal fatigue pupil and scratch tests.. idk. Planning on getting this checked. Also I have a CT Scan coming up of my neck because of my vocal fold atrophy. They want to check nerves/muscles I guess. Anyone ever find anything unusual on a CT scan?
3 hours ago, Gladiatoro said:You can buy them online.
I believe they have 7 herb in that mixture the tincture I buy is local from a naturopath doctor and it only contains 4 herbs for a gentle detox the key is to push the toxins out of the fat cells by increasing circulation then the body can deal with them slowly. Key word slowly without causing harm.
And you'll also be taking Zinc correct? so the retinoic can be removed from the body and not just stay stuck in circulation yeah?
13 minutes ago, Gladiatoro said:Yup.Due to my diligence we are finally making progress with this toxicity issue , you can thank me later.
Cool...
just ordered it!! $150 with trackable air freight from NZ.
Here's hoping its not just another supplement scenario with money wasted and no improvement!! I have reason to believe though that this could help me, especially as I suffer terribly with circulation issues and varicose veins, so at the very least this product could help me make improvements in those areas!