Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
91
(@josephbuchignani)

Posted : 05/23/2012 4:37 pm

Yes, that is a smart and correct idea, Believe. I was taking much longer, multi hour naps. But I'm just going to completely eliminate naps until I can stabilize it out.

Quote
MemberMember
85
(@and1)

Posted : 05/23/2012 4:54 pm

For me napping for longer than 30 minutes kills it, no benefit at all, quite the opposite.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 05/24/2012 7:13 pm

Boom, back at 100% 1 day after cutting out naps. Woohoo!

 

Man, taking a nap made me physically ill. Nuts.

Quote
MemberMember
18
(@user142279)

Posted : 05/24/2012 7:51 pm

For me napping for longer than 30 minutes kills it, no benefit at all, quite the opposite.

 

 

I'm the same way. I wake up feeling dehydrated and not so great overall, but under 30 and it's pretty refreshing.

Quote
MemberMember
148
(@oli-girl)

Posted : 05/24/2012 9:32 pm

I can't remember who posted it on here recently, but I could of swore I saw someone is taking cod liver oil....Who ever that is please STOP NOW! Cod liver oil is full Vit A and not the Beta Form.... Just ask Patti Lodes, She felt good at first (she took accutane back in the 80's and we get together 1x a year) But then all hell broke loose......

Quote
breesy, breesy and breesy reacted
MemberMember
2
(@edikk)

Posted : 05/26/2012 7:00 am

http://cure-erectile...xual-exhaustion

 

Check it out, its pretty interesting and adresses not only the namesake. Ladies, I recomend you read it too. Especially Oli. It adresses the body problem from a neurological stand point.

 

And about Vit A. I think its crazy not taking vit A anymore for the rest of your life. Sure you got overexposed once. But you still need it for specific functions. Doesnt mean one should take it right after the drug. Need time to recuperate, but I still believe its a vital substance.

Quote
MemberMember
143
(@indigorush)

Posted : 05/27/2012 5:32 pm

Did you guys see the post about the guy getting better following Beta-Carotene supplements?

He added me on Facebook a while back.

Might be worth considering.

The above link was interesting... Don't really understand it when it gets complex though.

Need a good idea on how to fix the thing.. Any supplements, etc.

Quote
MemberMember
91
(@josephbuchignani)

Posted : 05/28/2012 3:42 am

This is my sixth good day in a row. Looks like I've figured out all the rules - getting sunshine was the last one.

 

I may start testing 20-30 min naps tomorrow. To cut down on the noon post-meal fatigue dip.

 

I think I said 9 days was my next milestone when I would expect some people to start believing me. Should hit it soon.

Quote
MemberMember
2
(@edikk)

Posted : 05/28/2012 10:14 am

Indigo, if you asked if there are supplements recomended in that site, yes there are. There under the section Line. Im on them now. Its expensive (gonna cost me about 200 euro per month first 2-3 monts, but then I can drop most of them. Thats what he told me anyway), but if it can do the job, Im more than happy to try. Theyre pretty complex I must say. But they instill somewhat hope, because some of the ingredients are zinc picolinate ( which belive used, and they helped him a lot) and ZMA (which helped me noticably). Im gonna try and get zinc picolinate seperately though. I've read picolinic acid is used by the brain to be converted into different neurotransmitters, as well as into nitric oxide (which we should all by now know what its for). So I have a lot of hope that this doc knows what hes talking about. By looking at the symptomatic alone on his site I get the feeling Im suffering from SE. And dont try to read his explanations without wikipedia or a book on biological- or neuro-atonomy. biggrin.png

Im also visiting an ostheopath. 40 Euro for 40 min. A LOT of money is going on this healing stuff. But like all of these docs told me. Your body is out of whack. You need to be adressing it from all sides. Not just a little here, then a little there. And I agree with them. Got to try things as a coordinated systematic approach, not random sky picking.

Best of luck to ya.

Quote
MemberMember
148
(@oli-girl)

Posted : 05/28/2012 5:32 pm

Did you guys see the post about the guy getting better following Beta-Carotene supplements?

He added me on Facebook a while back.

Might be worth considering.

The above link was interesting... Don't really understand it when it gets complex though.

Need a good idea on how to fix the thing.. Any supplements, etc.

 

 

You can take it Indigo, but unless you get that thyroid in control you will be wasting your money. Unless you are doing both? Hope everyone is had a Memorial Day Weekend :)

Quote
MemberMember
37
(@chiron)

Posted : 05/28/2012 9:24 pm

 

I apologize for those who've read my similar post elsewhere on acne.org...I have been supplementing with Beta Carotene and it has been incredible for overcoming Accutane side effects in the long-term. Since taking the drug in '91, I have suffered from anxiety and depression, sexual dysfunction, joint pain...the list goes on. Because of the fact that Isotretinoin or Accutane is a vitamin A derivative and is responsible for all of the miserable side effects that have plagued me for years, I never thought that supplementing with vitamin A was a good idea. However, many of my side effects I found out were similar to vitamin A deficiency! Poor night vision, leukoplakia, irritability, low energy, etc. Since taking Beta Carotene in doses ranging between 10-40,000 IU per day, all of the psychological and sexual symptoms have improved a great deal. I still have some joint pain but I am taking other supps for this that really help. Beta C. is not a miracle cure-all, but it will make your life better than anything else I believe. I take a food based form that is made from carrot concentrate, lemon grass, spirulina. Somehow, just eating carrots on their own hasn't been effective in the same way. Please consult your Naturepath or MD to confirm my findings, but I wanted to share with you my experience so that others might benefit and not have to suffer any more from Accutane's long-term effects. Also, try a gluten, dairy and sugar-free diet to see if it helps you at all. I have had good luck with that since Accutane has altered the tissues of my digestive tract.

Health and Best,

Matt Chiron

Quote
MemberMember
91
(@josephbuchignani)

Posted : 05/28/2012 11:21 pm

I have been noticing poor night vision for quite some time, and I think you may be onto something there.

 

But it's not very important to me to fix in the short term, and I doubt I could stomach the pills anyway.

Quote
MemberMember
10
(@milano)

Posted : 05/29/2012 9:26 am

 

 

I apologize for those who've read my similar post elsewhere on acne.org...I have been supplementing with Beta Carotene and it has been incredible for overcoming Accutane side effects in the long-term. Since taking the drug in '91, I have suffered from anxiety and depression, sexual dysfunction, joint pain...the list goes on. Because of the fact that Isotretinoin or Accutane is a vitamin A derivative and is responsible for all of the miserable side effects that have plagued me for years, I never thought that supplementing with vitamin A was a good idea. However, many of my side effects I found out were similar to vitamin A deficiency! Poor night vision, leukoplakia, irritability, low energy, etc. Since taking Beta Carotene in doses ranging between 10-40,000 IU per day, all of the psychological and sexual symptoms have improved a great deal. I still have some joint pain but I am taking other supps for this that really help. Beta C. is not a miracle cure-all, but it will make your life better than anything else I believe. I take a food based form that is made from carrot concentrate, lemon grass, spirulina. Somehow, just eating carrots on their own hasn't been effective in the same way. Please consult your Naturepath or MD to confirm my findings, but I wanted to share with you my experience so that others might benefit and not have to suffer any more from Accutane's long-term effects. Also, try a gluten, dairy and sugar-free diet to see if it helps you at all. I have had good luck with that since Accutane has altered the tissues of my digestive tract.

Health and Best,

Matt Chiron

 

 

 

Very interesting. I've often thought that the Vitamin A thing isn't being dealt with enough. Avoidance of Vitamin A will create problems on its own over time.

 

Perhaps if we have somehow become 'allergic' to retinoids, if the receptors in the digestive tract have somehow been affected, perhaps Beta Carotene is a way around this. I've considered what would happen if I were rub a Vitamin A oil capsule onto my skin as a means to bypass the digestive tract.

 

I know Chris Masterjohn suggests that we have a Vitamin A deficiency as the Accutane can block the receptor. I think I also read that Beta Carotenes can actually 'cleave' retinoids in the body. Perhaps the same can happen with Accutane if it is still present?

 

I might add a daily carrot into my diet and monitor my health. I did use to eat carrot daily even after Accutane but stopped due to the Vitamin A fears. Can't remember noticing any improvement from stopping.

Quote
MemberMember
37
(@chiron)

Posted : 05/29/2012 1:04 pm

 

I apologize for those who've read my similar post elsewhere on acne.org...I have been supplementing with Beta Carotene and it has been incredible for overcoming Accutane side effects in the long-term. Since taking the drug in '91, I have suffered from anxiety and depression, sexual dysfunction, joint pain...the list goes on. Because of the fact that Isotretinoin or Accutane is a vitamin A derivative and is responsible for all of the miserable side effects that have plagued me for years, I never thought that supplementing with vitamin A was a good idea. However, many of my side effects I found out were similar to vitamin A deficiency! Poor night vision, leukoplakia, irritability, low energy, etc. Since taking Beta Carotene in doses ranging between 10-40,000 IU per day, all of the psychological and sexual symptoms have improved a great deal. I still have some joint pain but I am taking other supps for this that really help. Beta C. is not a miracle cure-all, but it will make your life better than anything else I believe. I take a food based form that is made from carrot concentrate, lemon grass, spirulina. Somehow, just eating carrots on their own hasn't been effective in the same way. Please consult your Naturepath or MD to confirm my findings, but I wanted to share with you my experience so that others might benefit and not have to suffer any more from Accutane's long-term effects. Also, try a gluten, dairy and sugar-free diet to see if it helps you at all. I have had good luck with that since Accutane has altered the tissues of my digestive tract.

Health and Best,

Matt Chiron

 

 

 

Very interesting. I've often thought that the Vitamin A thing isn't being dealt with enough. Avoidance of Vitamin A will create problems on its own over time.

 

Perhaps if we have somehow become 'allergic' to retinoids, if the receptors in the digestive tract have somehow been affected, perhaps Beta Carotene is a way around this. I've considered what would happen if I were rub a Vitamin A oil capsule onto my skin as a means to bypass the digestive tract.

 

I know Chris Masterjohn suggests that we have a Vitamin A deficiency as the Accutane can block the receptor. I think I also read that Beta Carotenes can actually 'cleave' retinoids in the body. Perhaps the same can happen with Accutane if it is still present?

 

I might add a daily carrot into my diet and monitor my health. I did use to eat carrot daily even after Accutane but stopped due to the Vitamin A fears. Can't remember noticing any improvement from stopping.

 

 

Thanks for your response...Make sure you eat fats with the Carotene because somehow I think it needs that in order to convert to vitamin A. As I suggested, doses beyond 10,000 have helped me more than anything else which is why I supplement with food-based capsules. I would like to follow up with Masterjohn and find out more about the biochemistry behind all of this. Thanks and keep me posted if you have more info in the future...Matt.

Quote
MemberMember
143
(@indigorush)

Posted : 05/29/2012 5:21 pm

[Edited link out]

New video above...

I was recently contacted by Sergio, who you may remember as the guy who did the 30 day fast..

Anyway, he recommended the 80-10-10 diet (look it up) because it's really helped him since starting a couple of months ago (his issues were mainly anxiety, brain fog, depression and fatigue). He read it after seeing a girl online talk of it.. Actually, he linked a video of that girl (who does raw vegan videos) recently..

I then did a search and found another example of where someone has used this diet to relieve Accutane side effects.

That's three reported cases, and enough for me to go on.

It is highly backed up with science, and involved eating mainly fruit and veg (you can have lots of fruit, which will not cause a blood-sugar balance issue, despite the common belief that it would).

I just started reading the book today.

I've just spent the night watching a documentary about slaughterhouses.

Immediately after, I had to hug my little dog.

Call me a weedy little boy, but it's sickening to know that that is legal, and yet cannibas, or whatever, is illegal.

I've never touched drugs, but from what I hear, cannibas isn't harmful.

Point is - You can't kill animals 'humanely'.

It was interesting to see the people who worked in the slaughterhouse... They all seemed like a bunch of ex-convicts, who should be shot.

Here's the video I watched:

(Beware: You may never eat meat again)

[Edited video out]

Take care.

Quote
MemberMember
10
(@milano)

Posted : 05/29/2012 7:37 pm

Great video Indigo. Nice to see your dog. I also have a Springer Spaniel that just over one year old.

CHIRON, here are some of the quotes I mentioned earlier:

"

Accutane is not vitamin A. The body handles it differently from natural vitamin A (see Figure 4) and there are a number of lines of evidence showing that it acts as an anti-vitamin A compound that can aggravate vitamin A deficiency"

"

The totality of the evidence strongly suggests that vitamin A deficiency contributes to depression and that Accutane is associated with this mental illness because it interferes with vitamin A metabolism."

- Chris Masterjohn

And Regarding Beta Carotene:

"s-carotene can not only be converted into vitamin A, but can also be converted into a number of potentially harmful "eccentric cleavage products" within the cell. When the polyunsaturated fat, linoleic acid, is added to the mix, the production of these eccentric cleavage products dramatically increases. These products can induce the binding of the smoke-borne carcinogen, benzo[a]pyrene, to DNA, and research suggests they can actually interfere with vitamin A activity."

"The very fact that s-carotene, despite being able to increase blood levels of vitamin A to some degree in vitamin A-deficient people, can decrease activated vitamin A levels in specific tissues means that the vitamin A derived from s-carotene may be, in some tissues, worse than useless."

So it kinda asks the question whether Beta-Carotene helping you because Beta-Carotene is somehow dealing with a Vitamin A deficiency caused by Accutane and damage to the retioind receptors. Or whether Beta-Carotene is somehow interfering with the pre-existing Accutane (if it is there) already there blocking the receptor by somehow 'cleaving' it.

This whole article by Chris Masterjohn is worth a read: [Removed]

Edit: A quick question CHIRON, have you ever noticed any issues from eating retinol-containing foods?

Quote
MemberMember
143
(@indigorush)
MemberMember
1
(@tree1)

Posted : 05/30/2012 8:08 am

indigo - re raw food, I'm a big fan. I was 100% raw food (pretty much 80/10/10) before xmas and it was probably my best period sexually - not a cure, but definite improvement. This, along with fasting are the two things that have helped me the most. Thats not saying much, cause im still pretty fucked but they have helped. My flaccid size has stayed a bit bigger, even when switching back to the SAD diet, consequently I think going raw food and doing an 8 day water fast has helped my body heal a (little) bit. Raw food and fasting are intimately linked because the main benefit of raw food is that it is enzyme rich so it is easy for the body to digest and expend the rest of its energy on healing - water fasting is the ultimate healing modality as you are not consuming any calories and the body can heal.

 

But, there are real drawbacks to raw food:

 

- The cost. I was spending around 20-25 on food. Fruit and veg is seriously expensive.

- The weight loss (im a skinny guy); its very, very hard to get the required daily calories from raw food.

- Th sugar. The only real way to get enough calories is to consume shedloads of fruit (I was eating about 5-10 bananas a day). This will fuck your teeth, all the cavities in my teeth got worse going raw

- Lack of a social life. Eating out, socialising etc is very tough. Obviously no point in drinking when your on raw food.

 

All said and done, the pros outweigh the cons for me and I know I will switch back to raw food after I have done a very long fast (aiming for september). I'm now bulking up more with weights and a paleo diet so that I have enough weight on me to fast that long.

 

Until the fast I will keep experimenting with supplements etc.

 

Hope everyone is ok

Quote
MemberMember
85
(@and1)

Posted : 05/30/2012 11:24 am

Regarding vitamine A: Humans have traditionally consumed much more vitamine A than today. In many cultures the innards of animals were a main source of Vitamine A, but there are also plant based sources like red palm oil. These people did not have acne, what a surprise...

 

Regarding sleep: Is anyone using an app (Android) to manage and document your sleep cycle and quality? I just started using "sleep bot" today.

 

For those who want to try raw foods, I would go ahead and try paleo diet first.

 

I am going to try to get my hands on some of the supps that were suggested by this guy a few pages ago who claimed he was cured. His protocol was copied from some other site. I will order at iherb, wish me luck that all the supps go through at the customs.

Quote
MemberMember
85
(@and1)

Posted : 05/30/2012 11:54 am

Just ordered:

Nature's Way, Licorice, Root, 100 Capsules (NWY-14600)

Status: Pending Reason: Waiting for processing1 X $5.66 $5.66Nature's Way, Myrrh Gum, 550 mg, 100 Capsules (NWY-15100)

Status: Pending Reason: Waiting for processing1 X $6.29 $6.29Nature's Way, Artichoke, Standardized, 60 Capsules (NWY-64600)

Status: Pending Reason: Waiting for processing1 X $6.92 $6.92Now Foods, Silymarin, Milk Thistle Extract, 2X - 300 mg, 200 Vcaps (NOW-04753)

Status: Pending Reason: Waiting for processing1 X $26.39 $26.39

Nature's Way, Neem, Leaves, 100 Capsules (NWY-15120)

Status: Pending Reason: Waiting for processing1 X $5.66 $5.66 Country Life, Gluten Free, 100% Pure Australian Tea Tree Oil, 1 fl oz (30 ml) (CLF-09756)

Status: Pending Reason: Waiting for processing1 X $7.84 $7.84 Natural Factors, Peppermint + Oregano Oil Complex, 60 Enteric Coated Softgels (NFS-03516)

Status: Pending Reason: Waiting for processing1 X $12.57 $12.57 Now Foods, Dandelion Root, 500 mg, 100 Capsules (NOW-04645)

Status: Pending Reason: Waiting for processing1 X $5.08 $5.08 Nature's Way, White Oak Bark, 480 mg, 100 Capsules (NWY-17800)

Status: Pending Reason: Waiting for processing1 X $5.66 $5.66 Nature's Way, Slippery Elm, Bark, 370 mg, 100 Capsules (NWY-17100)

Status: Pending Reason: Waiting for processing1 X $5.98 $5.98 Bluebonnet Nutrition, Chelated Magnesium, 180 Veggie Caps (BLB-00673)

Status: Pending Reason: Waiting for processing1 X $20.76 $20.76

 

 

If it goes through at the customs there are some more products I will try.

Quote
MemberMember
85
(@and1)

Posted : 05/30/2012 12:33 pm

I am a big believer in Mg and have used it successfully for years. Recently someone told me to try Mg chelate instead of citrate. Let's give it a try.

Quote
MemberMember
45
(@jmsil)

Posted : 05/31/2012 5:17 am

Unfortunately Indigo I tried 80/10/10 for a very short period during my 2 years on 100% raw foods (bought the 80/10/10 book from Doug Graham ) and felt very bad on it. I only lasted about 3 weeks on it. It obviously works for most, although even some raw fooders think it's unnessessarily strict, which I also think. For some reason my body could not handle all the fruit, and yes, I do believe that is because of the damage Accutane has done to my body/digestive system. I do beleive 100% raw foods is the natural diet for humans, but the reason I stopped after 2 years is because it wasn't making me better. That's why I switched back to vegan (while still eating plenty of raw foods), because eating 100% raw foods is too much effort when you are getting no results, amongst other things.

 

Quite a few of us here ahve tried raw, and it is clear that it doesn't work against long term Accutane side effects. Nor does 80/10/10. It will make you better in the sense because you are automatically eliminating meat, diary and other junk food, but in terms of actually healing, then no. All the books and videos about health/diets are all generally based on curing illnesses due to years/lifetime of eating unhealthy foods, excessive drinking, no exercising and the like. Unless they specifically mention about Accutane, then it doesn't apply. I keep reading other posts around, and it does seem the Accutane badly damages the body up on a genetic level, for any healthy living to heal the body.

Quote
MemberMember
143
(@indigorush)

Posted : 05/31/2012 6:52 am

Hey James.

Always killing my hope :P

Hope you're doing okay man, I know this stuff is hard.

[Edited link out]

I'm going to give it a try, because Sergio said it is helping him and I have now read 3 other post-accutane (well one was propecia, as linked above) successes.

Hang in there though, because you need hope to remain... hopeful(?)

Someone sent me a message on YouTube yesterday saying that after 10 years their depression vanished.

They did mention they still have issues, though I'm not sure on the specifics.

I'm ill and tired at the moment which isn't good.

It's my birthday today and I see no real reason to celebrate.

Hopefully it'll pass soon, but not having energy leads to stress and frustration.

Just want some fucking good news!

Quote
MemberMember
143
(@indigorush)

Posted : 05/31/2012 7:11 am

http://www.loving-it-raw.com/raw-food-testimonials.html

Another story that I'd link to curing Accutane side effects, even though she doesn't state Accutane caused her depression/anxiety.

She states Accutane is a terrible drug, so likely had a bad ride with it.

 

Keep positive.

We WILL get through this.

There aren't many, but there ARE stories of people recovering from this.

Hang on to them, and don't let go.

Those who commit suicide have lost all hope, so try to keep in the mindset that 'Things will get better' and 'Life is still worth living'.

Quote
MemberMember
85
(@and1)

Posted : 05/31/2012 7:16 am

You guys have to remember that whatever diet you are on, you gotta eat your healthy fats otherwise you will sooner or later become a nervous wreck. For a limited period of time you can do well on 80/10/10, especially when you are doing detox such a diet is recommended, but in my opinion it is not suited for your everyday life. I have tried a lot from juice fasting (2 months) to raw foods (70-80% for about 6 months) to veganism (little over half a year). I believe it has all helped me in my recovery, whereas I had a really hard time on the vegan diet. Nowadays I stick pretty much to a ketogenic diet. I have mentioned it before. Once you have done enough detox or once it is time for your body recuperate from detox and to put on some muscle I wold recommend it.

 

http://en.wikipedia..../Ketogenic_diet

 

Everybody is different. What works for one person may not work for the next, you gotta try yourself!!

Quote