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Repairing the long-term damage from Accutane

 
MemberMember
3
(@karansinghal)

Posted : 05/20/2012 11:31 am

Hi i am also accutane sufferer i have been suffering from ulcerative colitis and other minor side effects like hair loss etc.

one thing which helped me curing my side effects is olive leaf extract .

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MemberMember
85
(@and1)

Posted : 05/20/2012 12:24 pm

if you have ulcerative colitis check: http://crohnsboy.blogspot.com

 

 

one thing which helped me curing my side effects is olive leaf extract .

 

i have heard of olive leaf extract before in connection with curing eczema. what exactly did it do for you? what brand did you use?

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MemberMember
3
(@karansinghal)

Posted : 05/21/2012 9:52 am

Taking isotertnion is a bit like playing Russian Roulette. Since this drug alters RNA transcription, it depends heavily on your DNA's susceptibility to the drug. Some people will experience mild side effects, while others will experience devastating side effects. Isotretinoin (Accutane) is a retinoid which is a derivative of Vitamin A. Taking a full course of Isotretinoin is basically like taking an overdose of Vitamin A. An overdose of vitamin A, or vitamin A poisoning, is also known as Hypervitaminosis A. Hypervitaminosis A can also be experienced from eating the liver of certain animals, for example the polar bear. Eskimos do not eat polar bear liver because it gives them Vitamin A poisoning (Hypervitaminosis A).

 

The side effects from Vitamin A poisoning are numerous. Sore joints, dry skin, dry eyes, colitis, blurry vision, rash, psoriasis, loss of hair, depression, headache, fatigue, nosebleeds, loss of hearing, lowered immune system function. The effect the Vitamin A poisoning has on the cells is that it slows down cellular proliferation. This is how it works for Acne by slowing down the oil production. This is fine for controlling the Acne, however it can be devastating/damaging to other organ and musculoskeletal systems which require cellular proliferation to operate adequately. For some people, after they stop taking Isotretinoin the cellular proliferation levels return to normal and a certain amount of healing/recovery can be done by the body. But for others who are more susceptible to the drug, proliferation levels do not return to normal and too much damage is done to certain organ systems to be able to recover. This is why I say that when you take this drug Isotretinoin (Accutane) you are playing Russian Roulette with your DNA and its susceptibility to it.

 

When I took this drug approximately 3 years ago, I had the common side effects (dry skin, dry lips, dry eyes, sore joints). I was 22 years old when I took the drug and I weighed 250 pounds. I took 50mg/day for 5 months. I was fine afterwards aside from a sore back. The Acne cleared up completely. Approximately 1 year after I stopped taking the drug, I started to feel horrible and had thoughts of suicide. I also was having heart palpitations and my fingers were cold and showing signs of clubbing on the fingertips. I also was showing signs of crohns disease. I went to the doctor (hospital) and they had no clue as to what was wrong. I showed them my fingers and the lady doctor just basically shrugged her shoulders. I told her about the crohns syptoms (symptoms) and she booked me for a scope in approximately 7 months. Terrible medical service, absolutely horrendous. So I ended up going to an alternative medicine clinic where I had a live blood analysis. All I can say is, oh my god! If you are reading this right now and you are feeling horrible, please, I beg you, please go and get a high quality live blood analysis done. Anyways back to the story, my blood had showed everything. You get to see your own blood under the microscope. The alternative medicine doctor layed out everything that was wrong with me, EVERYTHING. My red blood cells were all clumped together, a formation called rouleaux where the red blood cells look like stacks of coins all stuck together. He explained my fingers were cold and showing signs of clubbing because the red blood cells were not getting through the capillaries in my fingers because they need to go through one at a time, a feat which was not possible due to my clumped blood cells. I also showed signs of MASSIVE candida overgrowth, we are talking a 12/10. It was really bad. He mentioned the candida was likely the cause of my crohns symptoms because the candida live in the intestine and drill holes into the walls of the intestine causing inflammation.

 

Ok new paragraph. This candida overgrowth was caused by me taking the Accutane. This is because the body immune function and friendly bacteria is reduced during the course of the drug. This allowed the candida to overgrow. Also my diet was horrible. I was eating junk, pure junk. I was eating bread, milk, cheese, refined sugar, table salt, all poison yet are considered to be a "normal diet" in the western world. This stuff is horrible for you. The candida thrive on sugar it had overgrown and had basically overtaken my entire body. The symptoms of candida overgrowth are numerous, the list is too long to mention here. Basically you feel like death, that is how I can explain it. So the alternative medicine doctor told me a full recovery was possible. All I needed to do was to change my diet. I drank lots of water and only water. I ate green vegetables and nuts. Basically everything that is allowed on the candida diet (google it). I also took a few supplements like acidophilus, white oak bark, slippery elm, dandylion seed, gluten defense, moducare, and aloe vera juice. Five months later and I am feeling fantastic. A full recovery. I am feeling better than I have ever felt, ever. It is so funny everytime we are out or at a party and I get offered a piece of cake, a donut or cookie or something, I turn it down like it is pure poison. Because to me it is, refined sugar is just horrible stuff. The thing is, you may be reading this and feeling a bit skeptical, but I am being dead serious, I am living proof. If your diet consists of any of those foods I mentioned above, try out the candida diet for AT LEAST 5 months and see how you feel. You may have never felt what I feel in your entire life. If you have any acne or just feel bad in general, it is imperative that you change your diet. Anybody that says diet does nothing for acne is just being plain ignorant. This included doctors too. They likely read it out of a textbook someplace but have never actually lived it or experienced it for themselves.

 

If I had been taking care of my body like I am now, I probably would have never even had to take Accutane. Because I would have been naturally free of acne. But what is done is done and hind sight is 20/20. I was terribly ignorant back then. I did no research, I trusted my hospital doctor without checking my references, I expected others to do things for me, I was irresponsible, I was eating garbage, I was confused, I was lazy, I was ungrateful, I took things for granted. The worst part is that I wasn't even aware that I was being ignorant. I have learned since then to be fully aware and conscious of the decisions that I make and I absolutely make sure to check my references. It has changed my entire life. In a way I am glad that I took that drug because it brought me to my knees. It brought me to my knees physically, emotionally, mentally and spiritually. It makes me think of that saying that goes, "you really don't know what you have till it's gone". It is so true. Nowadays, I am so thankful and so grateful for everything that I have in my life. When you are grateful you are rich. I don't mean just thinking "yeah I guess I am grateful for what I have got", I mean thinking and feeling gratitude to the point where tears well up in your eyes. That kind of gratitude. I live life with a new level of awareness. A whole new paradigm shift has taken place in my life. If you are still reading I want to leave you with a quote that has brought me to tears because I have lived it.

 

"Ignorance is not bliss, it's misery. It's poverty of the mind and spirit, and sooner or later of the bank account. Wisdom is weath of the heart, mind, and soul. And unlike money, once you have it, no one and nothing can ever take it away from you. Once you come to posess it, wisdom is yours forever. And even when you pass it on to others, your own store of it grows."

 

 

 

this was posted by some guy on http://www.medhelp.org/posts/Acne/Accutane-and-joint-pain/show/1262 who cured all his problems try his instructions

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breesy, oli girl, IndigoRush and 6 people reacted
MemberMember
143
(@indigorush)

Posted : 05/21/2012 11:25 am

Taking isotertnion is a bit like playing Russian Roulette. Since this drug alters RNA transcription, it depends heavily on your DNA's susceptibility to the drug. Some people will experience mild side effects, while others will experience devastating side effects. Isotretinoin (Accutane) is a retinoid which is a derivative of Vitamin A. Taking a full course of Isotretinoin is basically like taking an overdose of Vitamin A. An overdose of vitamin A, or vitamin A poisoning, is also known as Hypervitaminosis A. Hypervitaminosis A can also be experienced from eating the liver of certain animals, for example the polar bear. Eskimos do not eat polar bear liver because it gives them Vitamin A poisoning (Hypervitaminosis A).

 

The side effects from Vitamin A poisoning are numerous. Sore joints, dry skin, dry eyes, colitis, blurry vision, rash, psoriasis, loss of hair, depression, headache, fatigue, nosebleeds, loss of hearing, lowered immune system function. The effect the Vitamin A poisoning has on the cells is that it slows down cellular proliferation. This is how it works for Acne by slowing down the oil production. This is fine for controlling the Acne, however it can be devastating/damaging to other organ and musculoskeletal systems which require cellular proliferation to operate adequately. For some people, after they stop taking Isotretinoin the cellular proliferation levels return to normal and a certain amount of healing/recovery can be done by the body. But for others who are more susceptible to the drug, proliferation levels do not return to normal and too much damage is done to certain organ systems to be able to recover. This is why I say that when you take this drug Isotretinoin (Accutane) you are playing Russian Roulette with your DNA and its susceptibility to it.

 

When I took this drug approximately 3 years ago, I had the common side effects (dry skin, dry lips, dry eyes, sore joints). I was 22 years old when I took the drug and I weighed 250 pounds. I took 50mg/day for 5 months. I was fine afterwards aside from a sore back. The Acne cleared up completely. Approximately 1 year after I stopped taking the drug, I started to feel horrible and had thoughts of suicide. I also was having heart palpitations and my fingers were cold and showing signs of clubbing on the fingertips. I also was showing signs of crohns disease. I went to the doctor (hospital) and they had no clue as to what was wrong. I showed them my fingers and the lady doctor just basically shrugged her shoulders. I told her about the crohns syptoms (symptoms) and she booked me for a scope in approximately 7 months. Terrible medical service, absolutely horrendous. So I ended up going to an alternative medicine clinic where I had a live blood analysis. All I can say is, oh my god! If you are reading this right now and you are feeling horrible, please, I beg you, please go and get a high quality live blood analysis done. Anyways back to the story, my blood had showed everything. You get to see your own blood under the microscope. The alternative medicine doctor layed out everything that was wrong with me, EVERYTHING. My red blood cells were all clumped together, a formation called rouleaux where the red blood cells look like stacks of coins all stuck together. He explained my fingers were cold and showing signs of clubbing because the red blood cells were not getting through the capillaries in my fingers because they need to go through one at a time, a feat which was not possible due to my clumped blood cells. I also showed signs of MASSIVE candida overgrowth, we are talking a 12/10. It was really bad. He mentioned the candida was likely the cause of my crohns symptoms because the candida live in the intestine and drill holes into the walls of the intestine causing inflammation.

 

Ok new paragraph. This candida overgrowth was caused by me taking the Accutane. This is because the body immune function and friendly bacteria is reduced during the course of the drug. This allowed the candida to overgrow. Also my diet was horrible. I was eating junk, pure junk. I was eating bread, milk, cheese, refined sugar, table salt, all poison yet are considered to be a "normal diet" in the western world. This stuff is horrible for you. The candida thrive on sugar it had overgrown and had basically overtaken my entire body. The symptoms of candida overgrowth are numerous, the list is too long to mention here. Basically you feel like death, that is how I can explain it. So the alternative medicine doctor told me a full recovery was possible. All I needed to do was to change my diet. I drank lots of water and only water. I ate green vegetables and nuts. Basically everything that is allowed on the candida diet (google it). I also took a few supplements like acidophilus, white oak bark, slippery elm, dandylion seed, gluten defense, moducare, and aloe vera juice. Five months later and I am feeling fantastic. A full recovery. I am feeling better than I have ever felt, ever. It is so funny everytime we are out or at a party and I get offered a piece of cake, a donut or cookie or something, I turn it down like it is pure poison. Because to me it is, refined sugar is just horrible stuff. The thing is, you may be reading this and feeling a bit skeptical, but I am being dead serious, I am living proof. If your diet consists of any of those foods I mentioned above, try out the candida diet for AT LEAST 5 months and see how you feel. You may have never felt what I feel in your entire life. If you have any acne or just feel bad in general, it is imperative that you change your diet. Anybody that says diet does nothing for acne is just being plain ignorant. This included doctors too. They likely read it out of a textbook someplace but have never actually lived it or experienced it for themselves.

 

If I had been taking care of my body like I am now, I probably would have never even had to take Accutane. Because I would have been naturally free of acne. But what is done is done and hind sight is 20/20. I was terribly ignorant back then. I did no research, I trusted my hospital doctor without checking my references, I expected others to do things for me, I was irresponsible, I was eating garbage, I was confused, I was lazy, I was ungrateful, I took things for granted. The worst part is that I wasn't even aware that I was being ignorant. I have learned since then to be fully aware and conscious of the decisions that I make and I absolutely make sure to check my references. It has changed my entire life. In a way I am glad that I took that drug because it brought me to my knees. It brought me to my knees physically, emotionally, mentally and spiritually. It makes me think of that saying that goes, "you really don't know what you have till it's gone". It is so true. Nowadays, I am so thankful and so grateful for everything that I have in my life. When you are grateful you are rich. I don't mean just thinking "yeah I guess I am grateful for what I have got", I mean thinking and feeling gratitude to the point where tears well up in your eyes. That kind of gratitude. I live life with a new level of awareness. A whole new paradigm shift has taken place in my life. If you are still reading I want to leave you with a quote that has brought me to tears because I have lived it.

 

"Ignorance is not bliss, it's misery. It's poverty of the mind and spirit, and sooner or later of the bank account. Wisdom is weath of the heart, mind, and soul. And unlike money, once you have it, no one and nothing can ever take it away from you. Once you come to posess it, wisdom is yours forever. And even when you pass it on to others, your own store of it grows."

 

 

 

this was posted by some guy on http://www.medhelp.o...-pain/show/1262 who cured all his problems try his instructions

 

 

Thanks for the positive comment.

Someone contacted me recently on YouTube about candida - Was that you?

I forgot I'd bought the book on it, so will read soon.

I definitely think mind is vital in all of this, regardless of whether you're eating the right things.

It's just hard to keep positive at times.

Since my last comment, I had a massive downfall and felt very depressed the last few days.

I just know I can never ever be happy if I can't cure these effects.

I needed a comment like this and I believe you.

No idea where I'd find an alternative doctor like you did.. I think all medical doctors work for the National Health Service in the UK, but perhaps I don't need to.

 

Could you please verify what effects you managed to repair, and the actual state of your health at present?

Since when have you felt better?

Are fruit allowed on a candida diet?

What sorts of food do you eat nowadays?

Any chance of a YouTube video from yourself about this?

 

Oh right, that wasn't you speaking..

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MemberMember
3
(@karansinghal)

Posted : 05/21/2012 11:37 am

this was posted by some guy on http://www.medhelp.o...-pain/show/1262 who cured all his problems try his instructions. i am also takin anti candida diet one thing which controls candida is olive leaf extract . olive leaf extact is very helpfull in controlling candida

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MemberMember
143
(@indigorush)

Posted : 05/21/2012 11:56 am

I've already taken Olive leaf extract and can't say it helped me.

How long have you been taking it for?

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MemberMember
3
(@karansinghal)

Posted : 05/21/2012 12:01 pm

i have taken for 2 months and still taking (now herbs) its not easy to control candida. you need to take another things also.

i just read from different sites and try different supplements. i am thinking to try accupuncture . I am from India.

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MemberMember
143
(@indigorush)

Posted : 05/21/2012 12:18 pm

Not a bad idea.

It's meant to be good.

I was reading a book that mentions chakra's and what-not, but that's a bit of a turn of.

However, energy is linked to health - many say - so something like accupuncture could help.

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MemberMember
91
(@josephbuchignani)

Posted : 05/21/2012 5:34 pm

Well, this was a tough month for me. Most of it boiled down to the temperature change, which caught me with my pants down. It got hot and I didn't know what I needed to do to adjust.

 

1. A/C. Obviously. Huge impact on sleep. Getting it installed at the new apartment. Finding the right settings, bedding, etc.

2. Sleeping on floor - bad idea, too hard.

3. Fish overdose causes bad reaction. News to me.

4. Sitting indoors in A/C all day = not enough sunlight = insomnia at night = bad IBS. Solution - take a long walk in sun, work in natural sunlight thru windows.

 

I just figured out 4 and got my circadian rhythm back in line. Feeling great now. Made a huge difference in just one day.

 

So the lesson is, meal timing alone is not enough to control circadian, you also need sunlight. Particularly if you are neanderthal introvert, since you will power up into "night watchman" mode and go on a longer than 24 hour schedule.

 

I expect there will be another major transition to winter for me, if I'm not cured by then.

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MemberMember
26
(@maynerd)

Posted : 05/21/2012 7:05 pm

Hello everybody,

 

Well I just had gum grafting done on my teeth a few days ago and let me share with you that it is not too bad and I had 3 teeth done at one time. The worst part was the numbing shots and I think some of the ppl who posted horror stories had the procedure done a long time ago before the procedure became less invasive so don't feel horrified if you need your gums done, pain in the neck yes but by no means horrific. Btw, it shouldn't be that difficult to understand that accutaners suffer from receding gums. My derm when I went back said flat out "skin dryness 5 years after accutane is normal and expected" Gums are just a type of skin.

 

Anyhow, the real reason I am posting is to share that they put me on an antibiotic for the procedure and since starting the antibiotic my skin has been feeling a lot more normal and my neck has been grinding less loudly. That's all. Just wanted to reinforce what others have said about bacterial/anti-bacterial agents in hopes that it would help develop our theory about how this drug is affecting us.

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MemberMember
37
(@chiron)

Posted : 05/21/2012 10:55 pm

Hi y'all! I have been taking diatomaceous earth (food grade) which has helped my digestion quite ALOT. It is apparently wonderful for hair, nails and bones, as well as for killing any parasites in the gut. Also, it is plentiful and inexpensive which is nice to see in a supplement for a change. Because it is mostly silica with smaller amounts of magnesium and others, it provides the body with usable calcium as opposed to "calcium" supplements which actually can deplete bone mineral calcium somehow from what I have heard from specialists. These diatoms that the "earth" is made up of are really beautiful algae with hard exoskeletons in a fossilized form which acts like glass (silica is what glass is made from). As they pass through the colon, they cleans the matter stuck there as well as shred parasites of all kinds, while not harming the mucosal lining of the human body. Still supplementing with fermented cod liver oil and amino acids, but feeling much better overall since cutting wheat, sugar and dairy out of my diet for the most part. Having some trouble sticking with it, but am trying to eliminate candida and it's working. The diatomaceous earth builds strong bones and joints by providing collagen to bones and hair (which then grows faster) and my local nutritionist swears by it for her dog walks which are no longer painful at all, whereas they used to be before taking the d.e. with water.

 

I have also found much peace in reading about the spiritual realm through the tens of thousands of accounts by near-death experiencers. These are people who were in terrible car wrecks, suffered illness and disease beyond what any of us have, etc. and have returned to tell of their almost always positive and usually uncannily similar experiences of "dying" in a clinical, no-bull patty sense. They almost always tell a story upon their return of a love so pure, and a feeling of joy so warm that every one of them wants to stay and has to be literally pushed back in many cases into their bodily "reality". So if that is the creative force that we must all return to, it takes the edge off and puts things into a fresh perspective for me a little bit. And suicide is still not cool though :)) Sorry if this is "out there" for some. Check out http://www.near-death.com/ if interested. The case of Pam Reynolds is the most well documented in a clinical setting. It's a bit off topic, but I thought some might be curious...

 

Besides that, I am trying to psychologically accept all aspects of my life and that anxiety is okay in small amounts. It is essential as is every other "negative" aspect of our lives. For every situation and scary emotion, there is an opposite that if recognized then along with the "bad" emotion, can complete a picture that recognizes the fullness of experience and can create in us a sense of calm and appreciation for life. For instance, anxiety about jealousy...so there is jealousy but there is then also security sometimes. So there is illness. But also there is health. See what I am saying? Always there are pairs, not one single emotion to become trapped in. I must sound a bit weird, but I have been reading a lot of freud, so there I go. Before I was blessed with the gift of Isotretinoin therapy (ahem), I was an award-winning art student. After taking the shite, I almost completely lost interest in painting. I have to now force myself to approach the a blank canvas with faith instead of the blind confidence I experienced as a student, pre-Accutane. Nothing to do but get going and take courage in the face of adversity when anxiety arises. "What's the alternative?" my aunt always says.

 

I apologize for deviating from strictly attacking the Isotrtinoin problem from a biomedical standpoint. Peace y'all...

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MemberMember
16
(@humanstate)

Posted : 05/21/2012 11:28 pm

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

 

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

 

I would hate to have to do that but I will if nessecary.

 

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

 

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

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MemberMember
18
(@user142279)

Posted : 05/21/2012 11:39 pm

^

 

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

 

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

 

I would hate to have to do that but I will if nessecary.

 

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

 

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

 

 

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

 

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

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MemberMember
91
(@josephbuchignani)

Posted : 05/22/2012 12:21 am

@Humanstate I'm back to 100% today after resuming sunlight exposure yesterday.

@Chiron Yes, inner peace is extremely important for my coping regimine, since stress is a trigger.

More info on Dr. Snow here: [Edited link out]

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MemberMember
143
(@indigorush)

Posted : 05/22/2012 9:45 am

'The Candida Cure' is a very good book.

I really need some money, but my next move will be following the protocol and eating really good foods.

Not sure if anyone here had tried it, but I don't think it'll work with diet alone.

You also have to kill of the yeast overgrowth and build up the gastrointestinal tract with plenty of good bacteria.

May not be easy, but at least it's not fasting. You still get to eat.

Some of the symptoms listed in the book are interesting.

It mentions Hypothyroidism and lack of sexual desire/pleasure.

I'd bet my life that I have candida to some degree... I just have to hope it holds some of the big answers.

 

As soon as I have income, I'll get the Candida Clear product by NOW foods, and stock up on good food.

Don't like the idea of one piece of fruit maximum, per day, though!

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MemberMember
148
(@oli-girl)

Posted : 05/22/2012 12:20 pm

Indigo - Is the documentry going to aired on the BBC? I thought I read that on one of your threads from pg 62. If soo most of us in the U.S. get the BBC channel. Also, many other documentries made in the U.K., France, Germany & Ireland were put up on You Tube sooo let us know.

 

I hope everyoe is doing well, I'd update ya'll, but really don't feel like typing.

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MemberMember
143
(@indigorush)

Posted : 05/22/2012 2:29 pm

Indigo - Is the documentry going to aired on the BBC? I thought I read that on one of your threads from pg 62. If soo most of us in the U.S. get the BBC channel. Also, many other documentries made in the U.K., France, Germany & Ireland were put up on You Tube sooo let us know.

 

I hope everyoe is doing well, I'd update ya'll, but really don't feel like typing.

 

 

Cool..

I heard you have BBC America, but wasn't sure if it aired UK shows...

It's meant to be on BBC3 in November.

I'll let you know the official date etc, when I can.

Quote
MemberMember
16
(@humanstate)

Posted : 05/22/2012 6:16 pm

^

 

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

 

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

 

I would hate to have to do that but I will if nessecary.

 

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

 

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

 

 

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

 

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

 

 

I believe diet does play a big role in overall health.

But if I'm supposed to only eat raw foods for the rest of my life have I been healed? I don't think going raw or doing something like that is for me. Not that I wouldn't go Raw or follow a healthy diet but I don't think it's the right corse of treatment...

 

Idk guys I dont think going raw or doing the candida diet is the answer. It may help but it won't get you back 100%

 

I've been getting stomach pains the last few days, in addition to my intestinal pain...

 

What do people know about candida over growth?

 

Are there any of our symptoms related to that?

 

 

 

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MemberMember
0
(@batman2)

Posted : 05/22/2012 6:29 pm

Hello fellow sufferers.

 

Sometimes it strikes me as weird, scary and counterproductive to be searching for accutane side effects remedies, by exploring various supplements etc. I guess keeping a good diet, living a healthy life, sleep etc is always the basic foundation to be sought.

 

Anyways I have been following this forum since it started, after having suffered multiple long term side effects.

 

I have tried most supplements sometimes reccomended here, to no avail...

 

Not too long ago though someone here mentioned trying Creatine, as it apparently increases testosterone and IGF-1 levels slightly. I have been taking this 100% pure (and most likely harmless (I hope) ) creatine, which is a common weight lifters supplement for muschle energy.

 

Anyways, just thought i'd mention that among all the supplements i have tried, it is by far the single one that has worked best for me. Of course things such as moderate back ache is still present today, but energy, libido, immune system, among other things all seem to have improved.

 

Maybe it's just the passing of time that is healing me, it's been 4 years since my last accutane episode now.

 

But maybe the creatine (along with some 3 sesssions of workout at the gym/week) really does help with accutane side effects.

 

Really guys, all the best, good luck to all of you. But perhaps it's worth a try with creatine, it's a cheap and common supplement (you can get it at any protein shake store : )

 

Let me know if this does wonders for anyone else.

 

It's also good to wake up once again, with morning boners... :)

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MemberMember
21
(@aharon)

Posted : 05/22/2012 9:32 pm

Yeah, I've mentioned creatine before. It's a good one.

 

I've tried candida cures. There's some drug you can get that wipes out all candida in your system, then you can re-populate with good bacteria. No diff whatsoever.

 

 

But if I'm supposed to only eat raw foods for the rest of my life have I been healed?

 

xactly.

 

What a lot of garbage out there, preying on the sick for money. It's time for a great cleanse alright, and I don't mean the health food store kind.

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MemberMember
0
(@jonesbev)

Posted : 05/22/2012 10:49 pm

veggies really does it again!! yey!!! a healthy life can give you glowing skin

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MemberMember
3
(@karansinghal)

Posted : 05/23/2012 6:27 am

For back ache try boswellia serrata (indian herbal medicine) good for all types of pain .

It doesn't have any side effects, try it.

It cured my all type of pains

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MemberMember
91
(@josephbuchignani)

Posted : 05/23/2012 9:59 am

I discovered a new rule: No napping.

 

I have to consolidate my sleep into one block.

 

Your body can only sustain muscle sleep for x hours. Due to the way the REM cyclical nightly pattern ramps up and down over a longer period, this means that breaking up muscle sleep leads to insufficient brain sleep, and a spike in stress.

 

So if you break up your sleep blocks, your muscles get enough rest, but your nervous system doesn't.

 

Polyphasics pass through an adjustment period and overcome this, but frankly an "adjustment period" would destroy my constitution long before I reached adaptation.

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MemberMember
18
(@user142279)

Posted : 05/23/2012 10:25 am

 

^

 

So I talked to my dad about my accutane health stuff today and it went well. He listened and tried to wrap his head around everything. He doesn't understand why I have all these symptoms but when I get a blood test everything is fine. He also doesnt agree with my complete distrust of the medical bussiness (I will call it bussiness now). He says it's too extreme. He had me look up some accutane law suit stuff, I called one of the places and talked to a very nice lady. She was sympathetic and understood my situation. The feeling of someone agreeing or even acknowledging what I'm going through was unreal... I can't even put into words my emotions

 

I told her my symptoms and how my doctors don't listen/don't think it's accutane related and she said that happenes often. She recommended getting a colonoscopy to see if I have crohns or another ibd.

 

I would hate to have to do that but I will if nessecary.

 

I told my dad about Dr. Snow and he felt uneasy about how the whole thing with him works(so do I). Everything Dr. Snow says makes sense tho... I was on antibiotics for years before accutane. I feel like it has to be digestion related.

 

I don't think it stays in your system forever... I think it does for maybe a couple years or until you sweat it out. I think by then there has been significant damage done to your body and your body isn't able to repair itself.

 

 

I can't seem to find your specific posts, but who is Dr.Snow? I'm more than willing to bet that as far as information, you can get all of it from the nutrition section. It sounds like from what you're describing he's going for a sort of intestinal permeability/gut repair/brain-gut connection thing? What's your diet and lifestyle like? How's sleep, stress, social interaction, sunlight, exercise, and things of that sort? Do you practice some sort of heightened self awareness techniques, positive thinking, meditation, or anything like that? Journaling?

 

I only went on tane for about a month, things didn't go so well for about 4 months after. A lot of it, and let me know if I'm jumping the gun, is the beating up of oneself for a choice that may have heavily changed the way you have to live. However, once you can come to terms with it, and believe in the good amount of data and science as well as mechanistic underpinnings to disease that we have a decent enough understanding of when it comes to implementing the most depth and breadth when it comes to treating these issues, putting your best mindset forward, things will slowly, but surely improve. You find a new normal. I had to get used to drinking more water than I formerly did, tinnitus, and the now long gone side effects of body pain, depression, anxiety, migraines, and even pseudotumorcerebri, one of the more serious side effects for which I was pulled. Pretty much anything health related has a mental component, so the best thing you can do right now is working towards a positive mindset - one that believes in beating this. And truly, believe that you can.

 

 

I believe diet does play a big role in overall health.

But if I'm supposed to only eat raw foods for the rest of my life have I been healed? I don't think going raw or doing something like that is for me. Not that I wouldn't go Raw or follow a healthy diet but I don't think it's the right corse of treatment...

 

Idk guys I dont think going raw or doing the candida diet is the answer. It may help but it won't get you back 100%

 

I've been getting stomach pains the last few days, in addition to my intestinal pain...

 

What do people know about candida over growth?

 

Are there any of our symptoms related to that?

 

 

Diet plays a huge role, yes! As do things like sleep, stress, exercise, socializing, relaxing, positive thinking, and a number of other things.

 

I can't seem to find much on Snow's protocol, but honestly imo the whole ALL raw food thing is a bit BS. Most foods are better digested when cooked, and you get better absorption of the nutritional content. Meats are best cooked rare to medium rare, and absorb better than overcooked and raw.

 

The thing is with things like Candida and a host of other (largely internet promoted) diseases is that they have a ton of overlapping symptoms with many diseases - how do you know which one is which? Is it a food intolerance? leaky gut? gut dysbiosis? A combination of things? The best thing you can do is a comprehensive regimen that addresses all of these things. Most naturopaths/doctors will put you on a similar regimen that has you basically doing a few things...

 

1. Avoid potential autoimmune foods (gluten, nightshades, dairy, seeds, legumes, nuts), as well as pro-inflammatory foods (rancid omega 6 PUFA vegetable oils, sugars [candida regimens pretty much cut out all sugars, as do many other regimens])

 

2. Nutrient dense diet of bioavailable nutrients & foods specifically for GI health, like fermented foods, aloe, bone broth, etc

 

3. Supplements such as Vitamin D3, and especially probiotics

 

4. Improve lifestyle habits like sleep, exercise, positive thinking, stress reduction, etc.

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MemberMember
85
(@and1)

Posted : 05/23/2012 4:20 pm

Exercise is crucial for me as well.

 

 

I discovered a new rule: No napping.

 

I have to consolidate my sleep into one block.

 

Your body can only sustain muscle sleep for x hours. Due to the way the REM cyclical nightly pattern ramps up and down over a longer period, this means that breaking up muscle sleep leads to insufficient brain sleep, and a spike in stress.

 

So if you break up your sleep blocks, your muscles get enough rest, but your nervous system doesn't.

 

Polyphasics pass through an adjustment period and overcome this, but frankly an "adjustment period" would destroy my constitution long before I reached adaptation.

 

 

Have you tried power napping, that is, taking naps of 20 to 30 minutes. Helps me a great deal to increase my productivity. Take a look at the following chart, it shows the average capacity/performance of humans throughout the day.

 

1-3-Leistungskurve.gif

 

Guess when I take the nap, when I am least productive. Usually I have lunch at 1:30 in the afternoon, thereafter I take a quick nap and I am ready to go. It resets my brain.

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