1 hour ago, cnb30 said:

But honestly, what is the furthest someone on here with serious issues has recovered when it comes to their ability do have emotions?

Permanently or temporarily?

this is from nutrahacker

Detoxification
rs1138272 GSTP1
C
CT: 1/2
9.72320% pretty rare
Conjugation toxins to glutathione
Probable decreased function, increased oxidative stress

also this one, this cant be right, shows extremely rare mutation less then 1 percent.

Folate One-Carbon Metabolism / Methylation (FOCM)
rs1801131
MTHFR
A
GT: 1/2
0.06720%
Converts folic acid to 5-methyltetrahydrofolate
Low BH4, excess ammonia, low nitric oxide, does NOT lead to high homocysteine, however high superoxide

^ This can be tested

Guitarman, getting those tests done and the in vitro lab results you have been posting will be near impossible. You would have to visit a handful of doctors in the U.S. and most of them will do a basic or comprehensive CBC which doesn't include the majority of the things you post. You really have to have actual signs or suggestive symptoms for a doctor to dig in that far to do those kinds of tests. I appreciate your research, and have more to say on the matter, but imagine if you are a newly affected accutane user or a doctor stumbling on this page because of a patient. You are kind of complicating things.

alot of these tests have exact codes and information you can reference to your doctor that might not be familiar with them. you can reference mayo test catalog, quest, and labcorp.

for instance I just phoned in this test yesterday to my doctor, we will see if she grants it, but she knows my history with accutane.

Test ID: AAQP
Amino Acids, Quantitative, Plasma

http://www.mayomedicallaboratories.com/test-catalog/Overview/9265

here is a example of a test you can get on your own for about the co pay of a doctor visit.

AmmoniaBlood Test

https://www.walkinlab.com/ammoniaplasmatest.html
cost is 38 dollars.

This isnt for new people, this is for people that are still searching that have been searching for years. Im showing all the options, things to look into have not been exhausted yet.
This definitely isnt for new people, but im happy to help anyone new that might come along.
This is all very possible with all these tests. Its a matter of knowing where to find the tests and having the right doctor to be willing to look into them.
Im just provide a knowledge base for people that might not be aware.

11 hours ago, macleod said:

Permanently or temporarily?

Permaneantly

How come accutane is having the same affect on kids as these drugs are. psychotic thoughts, suicidal ideation, suicide and homicide.

I think I will scream if one more person asks me for advice and then implies I am crazy!!!

Well guys, just received a phone call from my doctor that I certainly did not want to hear (about my blood tests). "Everything looks fine!"

I'm still going to retrieve a copy and share on here just cause I want y'all to look at it. But she didn't say anything about cortisol so they may have not tested that option, which I may just order a saliva test at home or something.

At this point guys, I'm absolutely miserable. I don't know where to turn.. Almost 8 months off of this killer and I still feel like absolute shit. Any protocols are welcome at this point. Time to start experimenting I guess.

18 minutes ago, Colinboko said:

Well guys, just received a phone call from my doctor that I certainly did not want to hear (about my blood tests). "Everything looks fine!"

I'm still going to retrieve a copy and share on here just cause I want y'all to look at it. But she didn't say anything about cortisol so they may have not tested that option, which I may just order a saliva test at home or something.

At this point guys, I'm absolutely miserable. I don't know where to turn.. Almost 8 months off of this killer and I still feel like absolute shit. Any protocols are welcome at this point. Time to start experimenting I guess.

This was almost on cue. Ok so I'm happy to try to help anyone new but you. Kidding. Yes definitely good to have a record of your tests so you can keep track of what you've taken and what you haven't, and to be able to look at the actual numbers.

12 minutes ago, guitarman01 said:

33 minutes ago, Colinboko said:

Well guys, just received a phone call from my doctor that I certainly did not want to hear (about my blood tests). "Everything looks fine!"

I'm still going to retrieve a copy and share on here just cause I want y'all to look at it. But she didn't say anything about cortisol so they may have not tested that option, which I may just order a saliva test at home or something.

At this point guys, I'm absolutely miserable. I don't know where to turn.. Almost 8 months off of this killer and I still feel like absolute shit. Any protocols are welcome at this point. Time to start experimenting I guess.

This was almost on cue. Ok so I'm happy to try to help anyone new but you. Kidding. Yes definitely good to have a record of your tests so you can keep track of what you've taken and what you haven't, and to be able to look at the actual numbers.

I'd be happy to take your advice but only if your posts are comprehensible. I do like that you throw options around here because it certainly is better than no research at all. But sometimes they get a little confusing, and way too much for a newbie to understand.

Guys ive been on accutanefor 3 and half months 40 mg a day for 2 months and 60 mg a day for the last one and a half month. Honestly this post has scared me to death and imseriously considering getting off accutane immediately. Even so do you guys think that 3 and a half months are enough to make me prone to these kind of long term effects? Only substantial symptom ive experienced is minor brain fog and memory loss. Anywysthank you in advance and good luck!

Temporary remedies I can try?I don't care if they're temporary.. I need some type of fucking relief.

Also can we please elaborate for once on the fact that some people aren't catching common colds/fluanymore.... I went all year without a fucking sniffle. This is definitely a stand out side effect. I used to catch colds all the time. Is there so much inflammation in my body that it's just killing all of the bacteria/viruses ?

2 hours ago, Neverlucky97 said:

Guys ive been on accutanefor 3 and half months 40 mg a day for 2 months and 60 mg a day for the last one and a half month. Honestly this post has scared me to death and imseriously considering getting off accutane immediately. Even so do you guys think that 3 and a half months are enough to make me prone to these kind of long term effects? Only substantial symptom ive experienced is minor brain fog and memory loss. Anywysthank you in advance and good luck!

10mg/day for 30 days and I'm still I'm stuck with the sides 7 years later. I don't think dosage is really a factor, it's likely a genetic susceptibility.

I think there are far more people out there who are affected by this drug but just don't realise it because they're told by derms and doctors that there are no long term side effects. Many people are also kids when they get prescribed this poison so they may never realise that they would be a very different person had they not taken it and think their status quo is just 'normal'. Unbelievably sad.

1 hour ago, tanedout said:

10mg/day for 30 days and I'm still I'm stuck with the sides 7 years later. I don't think dosage is really a factor, it's likely a genetic susceptibility.

I think there are far more people out there who are affected by this drug but just don't realise it because they're told by derms and doctors that there are no long term side effects. Many people are also kids when they get prescribed this poison so they may never realise that they would be a very different person had they not taken it and think their status quo is just 'normal'. Unbelievably sad.

Yes, this exactly. I believe I was maybe 14 when I took a pretty substantial dosage/duration of time.(I wish I knew exactly, but my record has been sealed) Being a 14 year old, I didnt know shit about the dangers of accutane. There definitely wasnt any internet. My mom didnt know anything. We only knew what the dermatologist told us. The worst thing I remember thinking was hair loss? well that would suck, but we were assured any side effects were short term and we could stop the drug and things would go back to normal. The opposite has happened really. I just didnt make the connection strongly enough with accutane, especially at my age.

People that recently took the drug might be in a better position to do something about it, With much more increasing knowledge then some of us had access to back then. Thats why if you know somethings wrong, dont wait on it, and dont wait for the doctors to tell you its not the accutane. Your going to have to fight and id probably start with the dermatologist that prescribed you. its probably the easiest most sensible course of action that could lead to more reports/investigations into the drug and its effects. Long and short term. Obviously that window has passed for some of us and its harder to make the association, clinically speaking.

7 hours ago, Colinboko said:

Well guys, just received a phone call from my doctor that I certainly did not want to hear (about my blood tests). "Everything looks fine!"

I'm still going to retrieve a copy and share on here just cause I want y'all to look at it. But she didn't say anything about cortisol so they may have not tested that option, which I may just order a saliva test at home or something.

At this point guys, I'm absolutely miserable. I don't know where to turn.. Almost 8 months off of this killer and I still feel like absolute shit. Any protocols are welcome at this point. Time to start experimenting I guess.

Can I suggest you get a print out of you results for your ownrecords. Also it is aways worth going through you own blood test and coming to your own conclusions. For instance T may be within range but in reality very low. This also goes for Vit D and B12 - ideally they should be closer to the optimum level.

4 hours ago, Neverlucky97 said:

Guys ive been on accutanefor 3 and half months 40 mg a day for 2 months and 60 mg a day for the last one and a half month. Honestly this post has scared me to death and imseriously considering getting off accutane immediately. Even so do you guys think that 3 and a half months are enough to make me prone to these kind of long term effects? Only substantial symptom ive experienced is minor brain fog and memory loss. Anywysthank you in advance and good luck!

In all honesty brain fog and memory loss are not good signs - you brain is being affected by this drug.
Don't freak out, you are most likely fine but I would always suggest getting of accutane as soon as possible.
Tapering down is not usually an accutane protocol but I think it makes sense to taper down slowly.

I also suggest you take Vit C,D and E for a while(RDA) and commence a healthy diet immediately for the next 6 months or so.

I am sure you will be absolutely fine. Stay away from this forum and concentrate on healthy living.

Good luck

2 hours ago, tanedout said:

10mg/day for 30 days and I'm still I'm stuck with the sides 7 years later. I don't think dosage is really a factor, it's likely a genetic susceptibility.

I think there are far more people out there who are affected by this drug but just don't realise it because they're told by derms and doctors that there are no long term side effects. Many people are also kids when they get prescribed this poison so they may never realise that they would be a very different person had they not taken it and think their status quo is just 'normal'. Unbelievably sad.

This sadly is true. Most people are kids when they first take accutane.
Nine-lives is a prime example - suffered for years and only just made the accutane connection.
As he says himself - as hard as it is you learn to accept that you have difficulties, but to realise that a drug has caused this is a terrible blow.

35 minutes ago, guitarman01 said:

Yes, this exactly. I believe I was maybe 14 when I took a pretty substantial dosage/duration of time.(I wish I knew exactly, but my record has been sealed) Being a 14 year old, I didnt know shit about the dangers of accutane. There definitely wasnt any internet. My mom didnt know anything. We only knew what the dermatologist told us. The worst thing I remember thinking was hair loss? well that would suck, but we were assured any side effects were short term and we could stop the drug and things would go back to normal. The opposite has happened really. I just didnt make the connection strongly enough with accutane, especially at my age.

People that recently took the drug might be in a better position to do something about it, With much more increasing knowledge then some of us had access to back then. Thats why if you know somethings wrong, dont wait on it, and dont wait for the doctors to tell you its not the accutane. Your going to have to fight and id probably start with the dermatologist that prescribed you. its probably the easiest most sensible course of action that could lead to more reports/investigations into the drug and its effects. Long and short term. Obviously that window has passed for some of us and its harder to make the association, clinically speaking.

We would still appreciate you reporting your sides. It just endorses our believe that side effect are persistent and or permanent..
The only way we will ever get research i by reporting side effects.
I have had no response from anyone except newbie nine-lives - how sad it that?

15 minutes ago, hatetane said:

We would still appreciate you reporting your sides. It just endorses our believe that side effect are persistent and or permanent..
The only way we will ever get research i by reporting side effects.
I have had no response from anyone except newbie nine-lives - how sad it that?

I did report to the FDA. Now im reporting that I reported to you. Or did I just reportingly report it? 

http://forums.phoenixrising.me/index.php?threads/sick-but-never-sick.39474/

interesting article I found on CFS sufferers... I know what a cold/flu feels like. And I can honestly say I haven't caught one since I came off that pill.

Don't have a chance to listen to it right now. But if you want to give us the cliff notes.

Melanie Dispenza, MD - Modulation of the Immune System by Isotretinoin in Acne Patients

https://acneandrosacea.org/research/audiopearls/modulation-immune-system-isotretinoin

4 hours ago, guitarman01 said:

Don't have a chance to listen to it right now. But if you want to give us the cliff notes.

Melanie Dispenza, MD - Modulation of the Immune System by Isotretinoin in Acne Patients

https://acneandrosacea.org/research/audiopearls/modulation-immune-system-isotretinoin

Can I ask, without even listening to it yet, why are there so many research papers on isotretinoin??
All these research papers that people are posting leads me to believe they don't know all the things that this drug can potentially do.

I mean are there this many research papers on other drugs, like say cholesterol or blood pressure drugs - ones that are frequently used by a large portion of the population?

"Modulation of the Immune System" what does that mean? Altering the immune system??

18 minutes ago, TrueJustice said:

Can I ask, without even listening to it yet, why are there so many research papers on isotretinoin??
All these research papers that people are posting leads me to believe they don't know all the things that this drug can potentially do.

I mean are there this many research papers on other drugs, like say cholesterol or blood pressure drugs - ones that are frequently used by a large portion of the population?

"Modulation of the Immune System" what does that mean? Altering the immune system??

Basically people who are prone to acne are hypersensitive to the acnese bacteria or whatever it's called. This woman is suggesting that accutane somehow causes our immune system to be less responsive to that bacteria.. but it can also alter other mechanisms in the body. To be honest, we relate a lot to CFS sufferers.

Guitar..have you had the MRA yet?

Just did yesterday. There was no contrast. I was in a different room and maybe smaller mri machine? The test was shorter as well. Results might take a week. I'll post the report as soon as it comes through.

Some of these terms are interchangeable
So far I've been diagnosed with cerebral atrophy, mild loss of brain volume and thinning of the corpus callous.

So far people getting headaches, brain fog, head pressure, there might be something else going on here.

If my results here are due to accutane. I might be in a unique position to not only help myself but all you guys. Hopefully that's the case.

Obviously I'm no doctor. But with what I'm dealing with it does feel like blood flow restriction or constricted blood vessels. Wouldn't be a coincidence being that someone else on here was just diagnosed with a type of Vasculitus. We will see

Oh nice.. wait, isn't the mra with contrast? So you had mri or mra , do you know for sure? Thanks!

6 minutes ago, Mike San said:

Oh nice.. wait, isn't the mra with contrast? So you had mri or mra , do you know for sure? Thanks!

It was definitely a mra this was ordered after my regular mri by same neurologist. It looked at different part of my brain or zoomed in or something not sure. Though the day of they kept calling it a mri, I confirmed multiple times it was also a mra. Mri was just the broader term? Maybe I'll look into the difference this weekend.