Lmao I agree it's hard not to know what was before it
i believe I always had cold hands and feet
plus I'm skinny
and no exercise at all doesn't help

i have to get social life back and work out that's for sure
fresh air too...thank u man for this

2 minutes ago, Nemesisbrady said:

Lmao I agree it's hard not to know what was before it
i believe I always had cold hands and feet
plus I'm skinny
and no exercise at all doesn't help

i have to get social life back and work out that's for sure
fresh air too...thank u man for this

There's absolutely more to life than pure aesthetics. Don't let accutane and its side effects get in the way of letting your little light shine.

3-4 years ago: anxiety, minimal social life.

Today: I occasionally do amateur stand up and take impromptu drop in classes all the time. Don't let this one life choice prevent you from living because time won't stop. It'll keep ticking ... that's a guarantee.The self wallowing does nothing but exacerbate your side effects and sleep issues in my personal opinion.

Thank u man
i needed this
i was socializing more and had a fiancee and her daughter
sadly she was a bad person and ye...but that def causes more depression for me lately
but can't let her and Accutane ruin me
id love to go back to school and help people in medical field

tje facial flushing and rashes make it hard for me to do it...but thank u so much man I appreciate this

1 hour ago, SClippers said:

I'll preface this by saying this will most likely be my last post ever on this subject. My parents and doc let me down, I absolutely regret having ever taken this. With age and perspective it's clear as day why the product appeals to so many people. The worst part is they're taking advantage of a very vulnerable age group, it was pure vanity on my end and insecurities. I also despise the fact doctors and vested interests 'objectively' present side effects %'s. It isn't you, just go in assuming there's a 50% chance you may have a serious short term or long term reaction to the meds and you'll more times than not make the right decision.

This is purely anecdotal of course. I'm 95% healed and I'm perfectly fine with whatever lingering side effects I have now. I'm not happy with my hair but that's life, I made a decision and in all honesty I'm way better for it. I'm now in charge of my health and I make it a point to act the part of an adult. If you can't take nothing away from this experience please make it that, you are your own caretaker. I'm 100% confident I could have waited it out and fixed my diet.

Some side effects went away with time but the joint+memory+hair issues didn't at least for me. I had a huge break through recently and I honestly can't attribute it to 1 thing so here's a list of things I have done:

Mental clarity and up and down feelings - PM me for that. I can't say here. But what I can say is regularly practicing yoga and meditation have netted huge gains for me.
4L water per day
Cut out all supplements. The biggest running scam there is that people who are looking for any answer succumb to every day. The only things I take supplement wise are ZMA (very noticeable benefits), Vitamin D and Fish oil. No B Vitamins or anything else. The body work as a unit and unless you're super deficient in something you'd probably be better off looking elsewhere.
Stress - I think the one thing everyone on here has in common is we felt like acne was taking a hold of our lives. It's the only reason you'd resort taking the drug willfully ignoring the laundry list of warnings and side effects. If you do suffer from hair loss I think this is one of the biggest reasons it continues to persist. And I'm not talking about traditional worry stress either, if you're suffering from back pain or are sick this can wreck havoc on your system. I don't know what accutane did to our bodies but I suspect it makes us more susceptible to the effects of stress and I've noticed this during exam periods and layoffs.

And I left this for last as I did reference a 'huge personal breakthrough.' For years I made a conscious decision to avoid all Vitamin A rich foods and I suspect that was a huge mistake. Over the past 6 months I've cleaned up my diet and start adding more plant based foods and juicing and the effect have been tremendous. Why should any of us avoid eating plant based foods? I was an idiot for ever doing so. If anything avoid eating over processed garbage and consume everything else in moderation.

How significant? Dry skin and brittle hair are a thing of the past. Even the joint issues! I sometimes wake up with my face as oily as it was during my teenage years.

Night and day difference my friends. I can't attribute my recovery to one thing but I can tell you doctors and DM's were a complete and colossal waste of time. And frankly they didn't care. They had no problem prescribing me this poison and did nothing to help me when I needed it.

I guess I'll stick around to answer any PM's but this is it for me. I'd like to thank oli girl and anyone else who who was compassionate enough to talk to me and try and help me out during my early years.

Am I jaded towards the medical community? A bit but at the end of the day this experience taught me to subscribe to self blame and self accountability first. It's something most adults lack in general as they're comfortable displacing blame and shifting the decision making process onto outside parties be it their significant other or doc.

Should you really get back surgery if you weren't in car crash?
Are the risks of chemo worth it?
Should you jump on thyroid medication if you're someone who already leads a very unhealthy lifestyle?

Don't jump to the first thing you're presented with in life. Take a deep breath and take some time.

You're allowed to be skeptical of what's going in your body and I hope Accutane has taught all of us that. There's obviously a time and place to seek professional help, but please take the time out to listen to your own body. It's what I did and it's worked wonders. It is after all your body and the changes are tangible, you'll know.

I got nothing but love for all of you and I hope you guys all the best in all of your future endeavors. If anyone ever wants to talk or shoot the shit PM me. I'm a very different mental space and it would be rude to not give back to a community that tried it's best to help me out when I felt hopeless.

Edit: I also posted this because it would be easy to not come back now that I'm recovered. There aren't too many feel good stories posted on here. I also debated making this post into a thread and fielding Q&A for a short period.

I also had some blood done work recently and all of my levels are not only in the normal range but at the top. Confusing but I'll take it. Especially my hormones+thyroid, they tanked right after I took accutane and stayed suppressed for years.  There is hope and I think 'm one of the lone success stories.

It was a complete lifestyle change. That's my take home message.

 

so  you Would  say go? To juice something like carrots ? It should be so healthy for your skin ? But Are too afraid to touch because of the a vitamin it contains? I start juice a Month ago! But not fruit/veg with  a vitamin In

Brady, start using Iodine. I'll bet it'll help youtremendously. LDN could help you out, but Iodine is easier to get to.

For your face get Cerave Hydrating Cleanser and Cerave PMmoisturizer. Stop using ALL oils/products with oils in them (also coconut oil!) if you suspect seb derm. The ONLY oil you should use on your face if you have seb derm issuses is MCT oil. Look into Climbazole which is the compound that is most effective against seb derm. A lotion with Urea could also help you. Apple cider vingear diluted at a 1:2 ratio with spring water and left on your face for 10 minutes can help seb derm too.

If you suspect rosacea look into ZZ cream, Finacea, Soolantra. From looking at your pictures though it certainly doesn't look likerosacea. You say that your face flushes red when you exercise, have sex, gets angry which sounds like rosacea though.

I never struggled with hairloss, dry hair, itchy scalp etc. after Accutane though, but I would suggest trying Apple Cider Vingear as a hair conditioner and use it everyday. Also let it sit in for 5 minutes before rinsing out - it will be easy for you because you have short hair. You could also start using Nizoral/E45 shampoo to bring some thickness back into your hair.

As for diet/lifestyle try the Bulletproof Diet, lots of water, drink water with 1 tablespoon of apple cider vingeat 3 times a day. Go to the gym 4/5 days a week and start on a split program. I would avoid protein powder though (even brown rice protein) since I found that i simply don't digest any protein powder well (makes me bloated,nauseous). Do HIIT, go for walks, swim in the ocean. Don't use toothpaste with flouride and avoid plastic containers, cups etc. Get as much sun as possible obv. Im not a fan of store brought probiotics, bit the best ones are Jarro-dophilus and LactoBif imo - take the capsules with ice cold water in the morning 45 minutes before eating anything - making your own Kefir/Kombucha is better though. Digestive Enzymes is a must and slippery elm and marshmallow root can help your digestion too.

Sleep in COMPLETE darkness and make sure all electronic devices in the room are turned off. Don't use your phone for alarm - use an old alarmclock which runs on batteries. Don't eat or drink anything 2 hours before you go to sleep and your last meal of the day should be light with few pref. no carbs. 400 mgs of MagnesiumGlycinate taken 2 hours before you go to bed will help you with better sleep. Also look into Valerian root, Phenibut, l-tryptophan etc. and experiment with them. Always try and go to sleep before midnight pref. right when sun goes down (that can be very hard, I know.) look into blue blocker glasses too.

also again avoid all synthetic fat-soluble vitamins in supplement form. So no vitamin d, k supp etc.

2 hours ago, SClippers said:

I'll preface this by saying this will most likely be my last post ever on this subject. My parents and doc let me down, I absolutely regret having ever taken this. With age and perspective it's clear as day why the product appeals to so many people. The worst part is they're taking advantage of a very vulnerable age group, it was pure vanity on my end and insecurities. I also despise the fact doctors and vested interests 'objectively' present side effects %'s. It isn't you, just go in assuming there's a 50% chance you may have a serious short term or long term reaction to the meds and you'll more times than not make the right decision.

This is purely anecdotal of course. I'm 95% healed and I'm perfectly fine with whatever lingering side effects I have now. I'm not happy with my hair but that's life, I made a decision and in all honesty I'm way better for it. I'm now in charge of my health and I make it a point to act the part of an adult. If you can't take nothing away from this experience please make it that, you are your own caretaker. I'm 100% confident I could have waited it out and fixed my diet.

Some side effects went away with time but the joint+memory+hair issues didn't at least for me. I had a huge break through recently and I honestly can't attribute it to 1 thing so here's a list of things I have done:

Mental clarity and up and down feelings - PM me for that. I can't say here. But what I can say is regularly practicing yoga and meditation have netted huge gains for me.
4L water per day
Cut out all supplements. The biggest running scam there is that people who are looking for any answer succumb to every day. The only things I take supplement wise are ZMA (very noticeable benefits), Vitamin D and Fish oil. No B Vitamins or anything else. The body work as a unit and unless you're super deficient in something you'd probably be better off looking elsewhere.
Stress - I think the one thing everyone on here has in common is we felt like acne was taking a hold of our lives. It's the only reason you'd resort taking the drug willfully ignoring the laundry list of warnings and side effects. If you do suffer from hair loss I think this is one of the biggest reasons it continues to persist. And I'm not talking about traditional worry stress either, if you're suffering from back pain or are sick this can wreck havoc on your system. I don't know what accutane did to our bodies but I suspect it makes us more susceptible to the effects of stress and I've noticed this during exam periods and layoffs.

And I left this for last as I did reference a 'huge personal breakthrough.' For years I made a conscious decision to avoid all Vitamin A rich foods and I suspect that was a huge mistake. Over the past 6 months I've cleaned up my diet and start adding more plant based foods and juicing and the effect have been tremendous. Why should any of us avoid eating plant based foods? I was an idiot for ever doing so. If anything avoid eating over processed garbage and consume everything else in moderation.

How significant? Dry skin and brittle hair are a thing of the past. Even the joint issues! I sometimes wake up with my face as oily as it was during my teenage years.

Night and day difference my friends. I can't attribute my recovery to one thing but I can tell you doctors and DM's were a complete and colossal waste of time. And frankly they didn't care. They had no problem prescribing me this poison and did nothing to help me when I needed it.

I guess I'll stick around to answer any PM's but this is it for me. I'd like to thank oli girl and anyone else who who was compassionate enough to talk to me and try and help me out during my early years.

Am I jaded towards the medical community? A bit but at the end of the day this experience taught me to subscribe to self blame and self accountability first. It's something most adults lack in general as they're comfortable displacing blame and shifting the decision making process onto outside parties be it their significant other or doc.

Should you really get back surgery if you weren't in car crash?
Are the risks of chemo worth it?
Should you jump on thyroid medication if you're someone who already leads a very unhealthy lifestyle?

Don't jump to the first thing you're presented with in life. Take a deep breath and take some time.

You're allowed to be skeptical of what's going in your body and I hope Accutane has taught all of us that. There's obviously a time and place to seek professional help, but please take the time out to listen to your own body. It's what I did and it's worked wonders. It is after all your body and the changes are tangible, you'll know.

I got nothing but love for all of you and I hope you guys all the best in all of your future endeavors. If anyone ever wants to talk or shoot the shit PM me. I'm a very different mental space and it would be rude to not give back to a community that tried it's best to help me out when I felt hopeless.

Edit: I also posted this because it would be easy to not come back now that I'm recovered. There aren't too many feel good stories posted on here. I also debated making this post into a thread and fielding Q&A for a short period.

I also had some blood done work recently and all of my levels are not only in the normal range but at the top. Confusing but I'll take it. Especially my hormones+thyroid, they tanked right after I took accutane and stayed suppressed for years. There is hope and I think 'm one of the lone success stories.

It was a complete lifestyle change. That's my take home message.

Sclippers- Thank You So Much for coming back and sharing your good news. hopefully it will inspire andhelp others!I thoughtofyou fromtime to time.I am glad to hear you are doing well!

Iodine I will look into and LDN
i tried all those washes and moisturizers might do it again
mct I will look into thanks
not sure if it's Seb Derm or not
sucks it's so dry no oil
i really appreciate that I will do all that look into it for my skin
appreciate all the info u have provided
I've tried financea it bleached me more lol
woukd lasers help? Or is my skin too destoryed
thank u yes I would like to do that for my hair as it def has thinned out...I wonder if it's not kids hives and dry skin? Not sure it def reacts like rosacea

Wow u nailed it with the digestive enzymes and more I stopped taking them I will again
and do the above I need to be more active
im not at all
wow I need to look into all of this
I hope it improves the skin and sleep
thank u sooooooo much
all of u have been helpful
i really hope we all get some relief
thank u so much

ive been taking D supplement 2000IU
MY LEVELS ARE LOW 30s

LDN I guess people said is mostly for pain and it can have more issues and block dopamine feelings
not sure if it's true
and one of the iodines mentioned the Lugos? Causes problems
I'm so skeptic since accutane

but I hope this helps and I'll look into the other stuff
thanks guys

I consider both to be safe to consume even after Accutane.

Iodine can have some minor side effects like headache, tiredness, but that is only if you start at a dose that is too high or ramp up the your dosage too quickly (eg. go from 5mg/day to 50mg/day). I have had no side effects from Iodine ever.

Find my first post on this forum to see what supplements you need to take in order for Iodine to work its job in your body and your starting dose/ideal dose.

And the form of Iodine you need is JCROWS Lugols Iodine 5%. You can buy it from amazon.co.uk

LDNs only reported side effects are vivid dreams and problems falling asleep after consuming it (you take it at night before bed for it to be most effective), but those side effects should only last for maxium the first 2 weeks you take LDN (if you are on your ideal dose which for most people are between 3.0 3-5mg). Most people have no side effects the first 2 weeks.

So I looked up bullet proof diet
im so so about it
im currently on gluten wheat egg dairy free
i only drink water almond coconut milk and fruit veggies I juice
i do eat
kind bar granola bars and gluten free whole grain bagels and pasta here and there
also kite hill cream cheese dairy free
sometimes Daiya frozen pizza I know horrible loaded salt and more
but I miss pizza and that's about it
i do eat meats lean and red meat I cut out for month and got too shaky
i do eat beans and brown rice quinea gluten free

i have to regain 20 pounds so it's tough to eliminate more at the moment

I will look into more products u have listed
thanks

@washer I will look into it thanks
what symptoms did iodine help u with?

2 hours ago, Nemesisbrady said:

@washer I will look into it thanks
what symptoms did iodine help u with?

Go to my profile and read the first post I made on this forum. I detail everything there.

I would really suggest that everyone here look's into Iodine esp. you guys who have also used antbiotics in the past, even just for very short courses like 2-3 days. Would really help you.

I'll look now thanks
yes I got an ulcer from antibiotics at 17
was on them almost two years

Just read it  I just hope it improves my skin
i felt like the person down the post saying how there skin is so dry....I'm confused though some people say avoid vitamin a and they get worse others say it helps

i only eat fruits veggies
and drink a drink protein here and there with a palimate
i don't eat eggs and dairy
so I may be deficient one day?

and I just took two fish oils this aeek

is that ok??? And flax seed sometimes
not sure if it dries me out or not because some days I feel extremely dry regardless

So can anyone answer honestly if any sufferers have made recoveries from thyroid/adrenal medications?

2 hours ago, Colinboko said:

So can anyone answer honestly if any sufferers have made recoveries from thyroid/adrenal medications?

I hope so -

I've got a blood test next week to test my thyroid.

It will be the first time I've been to a doctor since i was prescribed accutane 6 or 7 years ago.

2 hours ago, Justdry said:

I hope so -

I've got a blood test next week to test my thyroid.

It will be the first time I've been to a doctor since i was prescribed accutane 6 or 7 years ago.

Not sure where you are from but try and get your doctor to do an iodine test.
Make sure you say that others have been iodine deficient.

There is a long list of things you should get tested - have you seen the list?

45 minutes ago, hatetane said:

Not sure where you are from but try and get your doctor to do an iodine test.
Make sure you say that others have been iodine deficient.

There is a long list of things you should get tested - have you seen the list?

I'm from the UK.

What page is the list on?

I'm getting the bloods taken next Monday so i'll see if they can add the iodine test onto it.

I won't be seeing the doctor until the Friday after the test. However, I already know they won't have a clue what i'm talking about. Probably tell me to moisturize or something stupid.

I really want to start with Iodine now, however, i'm trying not to take anything that would affect the test results. I might buy some Iodine ready to take after the test.

On 19.2.2017 at 10:48 AM, Nemesisbrady said:

Yea thanks earlier to who said color don't look to bad
it's weird I'm extremely pale
lioe hands and my face just gets pink during sex shower heat nerves and exercise 
i also am housebound much of my days
ttied to go to bed at 1:30 woke up at 4am seeating
always have these night sweats now everyday 
not hot in here and in boxers dunno why

and I haven't tried those would those work? They gave me one med
and it's so drying he even said it def will but it'll help the hives

also afraid of vitamin a 
but I'm told to juice beets and all these 
I doubt doing all this will restore shrunk oil glands
but who knows 

I eat coconut oil here and there and use it cooking 
olive oil also

@sacha_n yea it's very weird
my skin looks different like that's when it flares up
i also have when I was using this moisturiser
and then days when it's just patchy and old acne marks laser marks u can see where it doesn't get red since v beam

I remember my hair was thinning for awhile the crown
i stopped wearing hats and all that
and that's when they gave me the levothyroxine 
my eyebrows fall out easily and eye lashes 
hair is dry 
but I'm thankful that hasn't happend and I'm so sorry to u that it has
i really hate what this drug has done
ans I feel I look really old
maybe this pic not so much I must have moisturizer in it 

I have very big bags under eyes from sleep issues
so bad I can provide pics but yea

and I have like lines under eyes and near mouth
pores are huge near t zone

 

Here's so pics 

the first one I may have exfoliated on some
spots 

but u can see where it spares the pinkness jawline
shaving is almost impossible 

the second is typical spot it gets 
laser helped some spots 

ehhhh the last two excuse it
i feel I look 70 with those bags
not sure if it's thyroid causing them
but I've got them at 19
and I average maybe 3 hours solid sleep and then wake up every 2 hours and lay in bed about 13 hours lately

but for those wondering about tanning
i couldn't tan good either until recently 
I wouldn't say I tan where I want 
but there's hope u can tan
im a white Irish Italian 
my hands don't tan 
but that's my face with just the sun and I didn't go out much summer

but the main focus of last two is to show the pics
and how I feel Accutane aged me

To be be fair I haven't slept 7-9 hours straight in 10-11 years
so maybe that don't help
i was told sleep apnea before when I was 165
im 130 and adenoids small and tonsils
i was told I snore from people
but the machine dries out nasal passages
likw I feel like anything I do I'm screwed 

i I know it can be worse
just I'm light skinned so the pinkness and flaky and bumps are more pronounced in lighting in stores or outside 
and then I flush when anxious over this
rigjt now the dry eyes and sleep and skin stuff my main issues

Thanks for sharing.  I have very similar skin problems. The skin texture looks the same. with the difference, that I am 48 now. So more wrinkles and so on. I also have those bags under the eyes. I know how difficult it is to go through every day live with such sensitive skin. Hopefully you will recover. All the best - stay strong.

On 18.2.2017 at 10:28 AM, Pido said:

I believe I'm more pale after tane and definetly have harder time with tanning. I think alot of that has to do with my dryness. It seems like my body can't absorb water like it should. It's wierd that I have to drink water constantly and others around me can go long days with maybe one glass of water during lunch. Only 'tan' I seem to get nowadays is pigment moles.

Definitely more pale after accutane. My skin is not tanning at all and is extremely sensitive to sun light. I stay always out of direct sun exposure when possible. My guess is, that accutane damaged the melanocytes permanently.

On 18.2.2017 at 2:05 PM, mikez said:

Im not sure Im Iodine defient... my thyroid panels always come back normal... no doubt there are multiple causes of paleness in general though.

Possibly the skin doesn't absorb / convert vitamin D form the sun properly anymore. Accutane obviously changes the characteristics of the skin permanently.

I agree - skin characteristics are are changed permanently after accutane. Low sebum production is only one aspect. Thin skin and pale skin add to it.

@roland1968 this sucks is there anything we can do???
ive looked into eye surgery problem is it causes dry eyes
no clue what to do 
I'm always exhausted 
I wake up every two-three hours
with my eyes stuck shut seollen
dry nasal passages and mouth cotton like
night sweats 
skin is just dead and pink and rashy 
have to exfoliate nose everyday it's so flaky and rub olive oil allllll over it and let it air dry 

8 hours ago, Justdry said:

I'm from the UK.

What page is the list on?

I'm getting the bloods taken next Monday so i'll see if they can add the iodine test onto it.

I won't be seeing the doctor until the Friday after the test. However, I already know they won't have a clue what i'm talking about. Probably tell me to moisturize or something stupid.

I really want to start with Iodine now, however, i'm trying not to take anything that would affect the test results. I might buy some Iodine ready to take after the test.

Yeah get tested first. There is a home test for iodine you can try, look on youtube.
I will PM you the list but it is really for the guys that have sexual problems.

hmm vitamin d 5,000 IU
omega 3 6 9 15x a day?'!!!!

whats your take on this stuff
he mentions a in other videos and retinoids

Also he mentions oily skin and sugar and stuff causing it
maybe because we eat healthy now it's not back? Idk I'm streSed
all this makes me want to sleep
doesnt make sense he says vitamin a is needed for dry skin
and then says it can help get rid of sebum
same with zinc

tomato tomaaaaato

10 hours ago, hatetane said:

Yeah get tested first. There is a home test for iodine you can try, look on youtube.
I will PM you the list but it is really for the guys that have sexual problems.

thanks, ill try that after next monday.

Yeah, i have no sexual problems but i still feel its a hormonal issue causing no oil production.

Couldn't sleep
i feel like this drug caused hyper anxiety and more
maybe dryness and all this from that
earlier today I was going to see an ex and got all sweaty hot dry and nigjtmare

also another skin issue
i get black marks on face when I sweat or hot
not blackheads I can wash it away after
this just sucks