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Joseph, you've postulated that it's higher Neanderthal gene levels that provide the likely common thread. It's an interesting idea.
Supposedly ethnic Europeans have some 1-4% Neanderthal genes. You think that those who are closer to the 4% are more likely to be culled by accutane?
Maybe. At the least, something like it.
"Supposedly ethnic Europeans have some 1-4% Neanderthal genes. You think that those who are closer to the 4% are more likely to be culled by accutane?"
That's an average and a lower bound. But yes, I think neanderthals are in general much more susceptible to agricultural and industrial food intolerances, and also to Accutane side effects. For reasons too numerous to begin listing. PM me if you want to talk about it. I assume you're an introvert. If so, you have higher neanderthal gene expression.
Guys, I'm convinced Dr. Snow is the real deal when it comes to curing IBS permanently. He also says he can permanently reverse 100% of accutane side effects. I'm inclined to believe him.
My new #1 priority is earning enough to afford his treatment regimen. I don't plan to deviate from my current regimen until then.
His consulting fee is a one time $200 I think, which covers you for life. Treatment runs 4-6 months. Supplement cost will bring total cost up to 1.5-2k USD.
This is what I'm going to do next.
His website: http://holisticgastroenterology.com
You can do it or not, I don't care. If you don't, that leaves him with more time for me.
FYI he's semi-retired, barely computer literate, and does this more to help others than anything. My advice: If you decide to contact him, play nice, because he doesn't need you.
On 5/2/2012 at 7:57 PM, JosephBuchignani said:Guys, I'm convinced Dr. Snow is the real deal when it comes to curing IBS permanently. He also says he can permanently reverse 100% of accutane side effects. I'm inclined to believe him.
My new #1 priority is earning enough to afford his treatment regimen. I don't plan to deviate from my current regimen until then.
His consulting fee is a one time $200 I think, which covers you for life. Treatment runs 4-6 months. Supplement cost will bring total cost up to 1.5-2k USD.
This is what I'm going to do next.
His website: http://holisticgastroenterology.com
You can do it or not, I don't care. If you don't, that leaves him with more time for me.
FYI he's semi-retired, barely computer literate, and does this more to help others than anything. My advice: If you decide to contact him, play nice, because he doesn't need you.
I'd rather wait for someone else to tell me for fact that this guy isn't a liar.
Sucks, but there are people out there who think 'I wonder who would be easy to scam - Ah, the ill who are desperate'.
I'm not saying this is the case with this guy. I just didn't like the terms on his site (His refund policy under FAQs).
Most of us can't see this guy face-to-face, so his recommendations will be based on a phone call.
Why should all of us call and pay $500 for the same advice?
I still think my constipation could just be thyroid related.
As far as I'm aware, I don't have IBS/IBD or anything like that.
But I'm open to giving things a trial. I've just been tricked quite a few times and have learned that some people have no morals at all.
See my Youtube videos uploaded today on [Edited link out] for an example.
But yeah, until I've heard someone or a dozen people in my shoes curing themselves because of this Dr. Snow fella, I'm not throwing any money out there.
For anyone wanting some info on Dr. snow (the guy with the "cure") here is a forum I found: http://www.ibsgroup....dr-albert-snow/
There's actually a lot of good info in that forum. Check it out
Also found this today http://www.holistich...after-accutane/
Has colostrum been mentioned on this thread? I was reading the reviews on iherb and it seems like it can help lots of things.
I mentioned I was going to try it, I think.
Used up a bottle (after reading the iHerb reviews for 'Now') and it didn't do squat.
Guys,
Has anyone managed to come up with anything that helps with the sexual sides, ED?
I am off the drug for a year now and ED seems to be getting worse.
(I started spending long hours reading the forums lately and am getting depressed the more I read about the potential irreversible side effects of accutane i.e. apoptosis, epigenesis etc.)
Cheers,
accux - have you tried zinc/copper? This gives me a tiny boost. Vitamin D also worked for a short period. Consider changing your diet to a paleo or raw diet - in 4.5 years of suffering from accutane induced ED this is the only thing that has consistently improved my libido - but still nowhere near enough. Intense compound weightlifting gives a short term boost as well.
To the guys who are suffering from accutane induced ED, and are in a relationship, how do you keep things sexually active? I am completely reliant on cialis/viagra tbh, which is thoroughly depressing. I've mentioned this before - but the only thing that returned me to normal was using a ball zinger - in fact at times it turned me into a fucking pornstar, even more horny than before accutane - but it increase T, and subsequently E off the
charts. If things don't improve I may give this another go with an estrogen blocker, but this could worsen things.
Accuz - can you outline what you have tried? The standard herbs that increase testosterone (trib, maca, muira puama etc) did work for me but would stop working after 24 hours or so - they need to be cycled to maintain effectiveness. They also brought negative sides for me.
Next on my list is to address thyroid and adrenals, although I am not sure if that will help libido
I don't have libido loss but only ED and that is pretty much the only perm side effect I have from Accutane.
I use small doses of Viagra (1/4 of the smallest pill-25 mg) to keep things working down there. Embarrassing but nothing else seems to be working.
I haven't tried any of the T boosting supplements.
I take 1 berrocca and fish oil every morning, my only supplements.
accux, have you had testosterone and/or other sex hormones tested? Many accutane victims with sexual dysfunction seem to have low T levels for a while after quitting the drug. If you have a clear-cut deficiency, there are many treatement options that may help. No guarantees though. Raising T doesn't do jack for me, but I noticed a little better function while I was taking bromocriptine, a dopamine agonist. You may have to try several different treatment options before you find one that even helps. At least get some basic hormone tests performed to see where you stand if you haven't already.
Tree, This is difficult to discuss without sounding too vulgar, but have you tried oral/other methods of foreplay before sex? It seems to "get me in the mood" most of the time, but not always. In any case, I've managed to get by for years by doing this and also by trying to take advantage of every meager glimpse of libido. If the opportunity presents itself, then go for it every time.
I had basic biochem tests one month after quitting the drug, my thyroid and free test were ok. My liver enzymes were slightly elevated.
You are right I need to take further tests, for some reason I kept denying that there was a problem for a year now hoping things will correct themselves (actually it went worse).
I was not aware what a potent drug accutane was and I was not really careful with drinking during my first 6 months of taking 20mg every other day. Sometimes I think that might have exacerbated its effect on the brain.
Has any of the sexual side sufferers was taking alcohol with the drug?
On 5/2/2012 at 9:40 PM, IndigoRush said:On 5/2/2012 at 4:41 AM, humanstate said:For anyone wanting some info on Dr. snow (the guy with the "cure") here is a forum I found: [Removed]
There's actually a lot of good info in that forum. Check it out
Also found this today http://www.holistich...after-accutane/
Has colostrum been mentioned on this thread? I was reading the reviews on iherb and it seems like it can help lots of things.
I mentioned I was going to try it, I think.
Used up a bottle (after reading the iHerb reviews for 'Now') and it didn't do squat.
Idk. I do think colostrum is something we should look into.
I called Symbiotics (a company that sells it) and talked to a someone. She said that it balances your immune system, whether it be over or under-active. She said it helps people with auto immune disorders and recommended taking the powder and capsule. The capsule is release when it hits your small intestine and helps from then on and the powder is beneficial for your mouth, esophagus and stomach lining.
She also told me about this site http://colostrumplus.com/ It has studies where colostrum has been used to treat various diseases. There was a study on Srojens.
Also here is Dr Snows basic cure plan for anyone who hasn't checked it out
"This will get you started - btw- this DOES work 31 yrs of doing it- I am a Naturopathic Doctor- Holistic Gastro-enterology
1. Get a good Probiotic -must be refrigerated & have multi strains of bacteria- especially Bifidus -most people don't take enough!
3 caps twice daily
2. Colostrum 2 caps x 2
3. Fish Oil caps- again MUST take enough 4 x 3 times daily - should be pre-digested if available.
4. * L- Glutamine - with herbs & misc stuff - such as - Nag- Gamma Oryzinol- Marshmallow Root -Ginger -this is not exactly what we want - but do your best.
8 caps 3 times daily
That is enough for now- take all between meals = 1/2 hour before - & 1 hour after food
****** low fiber diet- no raw fruit - vegs- nuts- seeds or corn.
Yes- you do need to take a Probiotic with the colostrum. The best on the market ( a company that i have no financial interest in - I am a customer just like you!) and the only one I would ever use- to maximize your potential for success is FloraMore by Renew Life- you would take 2 caps twice daily & 1 colostrum twice daily- preferably 1/2 hr before & 1 hr after food.
Typically w/o knowing your situation- you should take it this way for 60 days- along with the other items I will suggest right now.
Same company- Intesti-More & Fish -something -I forget the exact name -you can find it at health food stores ect or online. 2 caps ea. twice a day of these . Also - if you have diarrhea- you will need one other thing by them -BoulardiiMax- 2 caps twice daily for 30 days.
If you do this you should be "fixed" in 60 -90 days & not in need of ANYTHING- drug or natural supplements. How do we know we are cured? When you function w/o anything perfectly - w/o any dietary or lifestyle restrictions. Forget a Dr's analysis -let your body & common sense tell you.
I must tell you that part of the process is to be guided thru this for individual 'tweeking" so you will need to let me know how you are doing- maybe every 2-3 weeks. "
It seems I wasn't clear enough last time, so I'll repeat:
I directly asked Dr. Snow via email if he was claiming to reverse 100% of Accutane side effects, including sexual dysfunction, skin issues, bone and joint issues, etc.
He replied, "Whole shebang."
For those with gastric trouble, Snow's mechanism of action makes 100% sense to me. I want to record it here, mostly for my own thoughts, but you may find it useful.
The initial problem is depopulation of the bacterial lining of the internal membranes - nasal, intestinal, gastric, bladder, whatever.
This leads to overgrowth of the wrong kinds of bacteria, causing an acidic environment that causes inflammation and tissue degeneration. From there, all problems become progressively worse.
The only solution is to repopulate the originally intended bacterial "mat".
When I have an episode, this is exactly what I feel is happening. I already know that stress alters the mucosal linings, making them more susceptible. I feel as if something burns its way through my guts over a couple of days. Then I recover.
When placed in Snow's paradigm, the exhaustion and pain and disturbed sleep make perfect sense. It's supposed to hurt. Something bad is happening.
I have no idea how Snow can cure non-gastro side effects, particularly those that don't involve mucosal linings. But based on his credibility with gastro matters, and his extensive practice, I'm inclined to believe him.
It seems I wasn't clear enough last time, so I'll repeat:
I directly asked Dr. Snow via email if he was claiming to reverse 100% of Accutane side effects, including sexual dysfunction, skin issues, bone and joint issues, etc.
He replied, "Whole shebang."
For those with gastric trouble, Snow's mechanism of action makes 100% sense to me. I want to record it here, mostly for my own thoughts, but you may find it useful.
The initial problem is depopulation of the bacterial lining of the internal membranes - nasal, intestinal, gastric, bladder, whatever.
This leads to overgrowth of the wrong kinds of bacteria, causing an acidic environment that causes inflammation and tissue degeneration. From there, all problems become progressively worse.
The only solution is to repopulate the originally intended bacterial "mat".
When I have an episode, this is exactly what I feel is happening. I already know that stress alters the mucosal linings, making them more susceptible. I feel as if something burns its way through my guts over a couple of days. Then I recover.
When placed in Snow's paradigm, the exhaustion and pain and disturbed sleep make perfect sense. It's supposed to hurt. Something bad is happening.
I have no idea how Snow can cure non-gastro side effects, particularly those that don't involve mucosal linings. But based on his credibility with gastro matters, and his extensive practice, I'm inclined to believe him.
What we need is someone to try it. I would myself but I have no money at this point. The soonest I could have that money would probably be July... I hate the thought of having to wait that long.
@lev No he didn't, and I didn't search or ask about it.
If I'm the first to try here, that's fine by me. I think I'll be able to start earning for real pretty soon. Just getting organized at the moment. Some good prospects. Will start getting serious about it tomorrow.
Has anybody tried running a marathon or going under heavy exercise?
That might increase cortisol in the body in the short term but endurance exercises generally have a normalizing effect for hormones and neurotransmitters and triggers neurogenesis with BDNF.
Besides has anybody seen a urologist in the UK for sexual sides.
Anybody you could recommend?
accux - long distance running hasnt done much for me, but I havent run a marathon so can't comment on that. Compound weights/sprints could help hormone balance which could be more beneficial.
I've seen a couple of urologists in the UK - absolute complete and utter fucking waste of time. They didnt have a clue, prescribed me viagra and told me 'its all in my head'. In my opinion, urology is the wrong department for this anyway - get a referral to an endo and get a full blood panel done and start from there
If the problem is bacterial then no scope can see it, no doctor can find it, and they will only deal with the downstream resulting issues.
Doctors know fuck all.
If the problem is bacterial then no scope can see it, no doctor can find it, and they will only deal with the downstream resulting issues.
Doctors know f--- all.
It's funny when I say medical doctors are idiots and people laugh at me!
I have mentioned colostrum before and yes it works, but....
First, I tried liquid organic colostrum. I tried the following brands:
Very expensive but it works, almost perfect digestion, more energy, faster regeneration from exercise. I would love to drink a bottle every day.
I researched colostrum in quite some detail and it is a fabulous supplement. As the liquid is real expensive, I gave the best selling colostrum powder from iherb (Symbiotics) a shot, unfortunately it did not give me the same benefits.
You should never tell the truth to stupid people. It upsets them unnecessarily.
That said, I like stupid people (socially, not on the internet). They're nice when not provoked, and a source of endless amusement.
Well, sorry if this upsets you, but your Dr Snow is nearly the definition of a quack.
I directly asked Dr. Snow via email if he was claiming to reverse 100% of Accutane side effects, including sexual dysfunction, skin issues, bone and joint issues, etc.
He replied, "Whole shebang."
Honestly, this guy tele-diagnoses everyone with the same imbalance of gut flora (IBD from accutane is strongly believed to be auto-immune in nature, not bacterial) and claims an outlandish success rate?
http://holisticgastroenterology.com/
"My GI Regeneration Method will completely cure your IBD within 90-120 days. All of my clients see improvement in the 1st 30 days. 95% of my clients are healed in 3 months. My method leads to permanent improvement. You do not need to travel to my office. All of my appointments are done via telephone or Skype as I do not need to examine you. I just need you to tell me your history."
Lets see what some of his patients have to say: http://www.ibsgroup....g/page__st__180
A pretty piss-poor track record compared to what he claims, don't you think?
Some of us don't even have gastro issues. If he claims %100 that my sexual dysfunction will be cured, will %100 percent of my hard-earned money be returned if the treatment fails? Will he cure my junk and my mind by getting rid of bad bacteria in my intestines that he detected via the tone of my voice over the phone? Ridiculous!
I'd have more faith in this Al Snow curing me: http://en.wikipedia.org/wiki/Al_Snow
Hope you were amused.
Great quote from one of his patients:
This treatment is going towards one of many failed attempts to cure my IBS. This however is by far the most expensive one. I would eastimate the cost to around 600$.
So many people preying on desperate sick people. That is sick itself. Just like with accutane.
For what it's worth, I've found what IBS I had to be treated by simple MSM at 2 grams a day, with gelatin added to broths daily. And sauerkraut once per day.
I did not find that the other symptoms from accutane went away once the IBS was resolved.
Dubya B, legitimate skepticism does not make you an idiot.
I read the thread with interest and found that those who were actually following the protocol were reporting success. Siea was not using refrigerated probiotics. Someone else was trying to mimic it without consulting with Dr. Snow. Neither counts.
If you have a better smoking gun link, I'd love to see it.
I could be disastrously wrong. I haven't shelled out any cash yet or completed my reading and research. This is more of a gut instinct thing. He patterns after other geniuses who have influenced my life.
They're always found on the fringe because the mainstream automatically rejects the revolutionary.