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Repairing the long-term damage from Accutane

 
MemberMember
21
(@aharon)

Posted : 05/03/2012 8:45 pm

There's nothing wrong with trying it out.

 

My preference is each person here try an approach for confirmation every time something is said to work. For example, idebenone or proviron or Dr. Snow's protocol.

 

Then we report back on what is discovered.

 

I may try idebenone in a week or two. Someone in Europea where it's more easily accessed should try proviron to see whether there is merit to levianthan's report for more than one person.

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MemberMember
148
(@oli-girl)

Posted : 05/03/2012 8:56 pm

Just thought I post this recent study, I know we all know the damage Accutane does on the eyes, just thought I'd post it though

 

http://www.reuters.com/article/2012/04/18/us-acne-drug-tied-to-a-doubled-risk-of-e-idUSBRE83H14C20120418?feedType=RSS&feedName=healthNews

 

 

Though other health problems that Accutane can cause, can also wreck havoc on the eyes

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MemberMember
45
(@jmsil)

Posted : 05/04/2012 1:03 am

"It's a relatively dangerous drug," he said. "The best way to avoid these side effects is if you do not take the drug at all."

 

Well it sure has ruined my eyes. Thanks for the link Oli Girl - it's always good to read about the new studies they do on the drug.

 

I didn't post this yesterday, because I was too "flippin angry". The hospital phoned yesterday, so the results/report would be now in, you would think? No. It's even worse than that. I don't want to go into details, but long story short - "they" have cocked-up. They are saying they run out of samples or something, therefore the test cannot be completed, and have offered either a full refund or to make an appointment to give more blood again. So yes, I make it over a 7 week wait (which should of only been 3-4 weeks) for absolutely nothing. My possible proof that Accutane has aged me has gone out the window. I've had to wait over double the amount of time it should of took, and it makes you wonder if they ever has these "fax problems" and if they were ever waiting for this report at all. I'm not sure if I can go through the effort of going to get another blood test and then wait this long again. How do I know they won't do this again? So sorry to anyone who was awaiting these results as much as I was...

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MemberMember
359
(@dubya_b)

Posted : 05/04/2012 1:04 am

Joseph, my apologies for dragging you into such a condescending argument with someone such as myself, but I am a bit surprised that your hyper-intelligent intuition didn't catch the obvious signs of medical quackery being thrown up by Dr Snow's website and comments.

 

#1- Claiming his methods can cure anything and everything that's wrong with you: He told you that he could cure (not treat, but cure) %100 percent of accutane's side effects, something no other doctor has been known to do. Has he ever even treated an accutane victim before? He seems to make this cojecture based on nothing and with no special insight into accutane's methods of action. Does this Gastroenterologist have extensive experience in healing sexual dysfunction, depression, nervous system disorders, joint issues, etc...? Not according to all of the information on him. Wild baseless claim, and it is one huge steaming pile of BS. Just plain wrong.

 

#2- From his site:

"1. All Inflammatory Bowel Conditions are the same.

 

 

2. They are just different degrees of damage to the same tissue.

 

 

 

3. They are not diseases or syndromes.

 

 

 

4. They are manmade.

 

 

 

5. They have the same cause and the same cure.

 

 

 

6. There is only one cause.

 

 

 

7. There is only one cure.

 

 

 

8. Your doctor cannot fix it.

 

 

 

9. I can."

 

 

 

Yes, he claims to have special knowledge of digestive disorders which has yet to be uncovered by conventional medicine, or backed-up by scientific evidence, and he is the only one who can cure you. There's a big red flag.

 

 

 

 

#3-"My GI Regeneration Method will completely cure your IBD within 90-120 days. All of my clients see improvement in the 1st 30 days. 95% of my clients are healed in 3 months. My method leads to permanent improvement."

 

 

 

Guaranteed speedy, miraculous, and pain-free cure. There's your third sign. Anyone who doesn't see improvement in the first thirty days must be doing it wrong. LOL

 

 

 

 

Are you saying %100 of those who didn't have success with Dr Snow's method did it wrong? ...and tell me how many who followed the protocol were actually "cured."

 

 

I can't offer-up any definite answers Joseph, but if your comfortable being lied to by psuedo-doctors looking for easy profit, then I suppose you'll find unreliable answers for your health problems rather than none.

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MemberMember
91
(@josephbuchignani)

Posted : 05/04/2012 3:37 am

Yes, Dubya, he claims to have experience treating Accutane patients. Yes, he claims 100% cure rate for those who follow his protocol correctly.

 

I said I was inclined to believe he can reverse all Accutane damage. I am obviously more confident in his ability to fix gastro issues. Regarding the former, I have merely presented his claim, without expectation that it will be believed. Now the claim has been heard and I am satisfied.

 

He is either a quack or sitting on a magic cure. We will know soon enough.

 

Happy to oblige, Modesto. You are hereby formally advised to avert your eyes in my presence at all times.

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1
(@tree1)

Posted : 05/04/2012 7:14 am

Lukez - can you advise what side effects idebenone has been known to help with? Cheers

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MemberMember
85
(@and1)

Posted : 05/04/2012 2:24 pm

still nobody here has answered my question regarding IgA, who else has low levels of IgA?

 

As the topic of colostrum has come up it makes sense to ask this question again, because a lack of IgA was one of the main reasons why I tried colostrum. IgA is one of the most essential substances to maintain the body's equilibrium and fight off invaders from the outside. Colostrum contains IgA as well as IgG, but do the research yourself...

 

If we were to find out that accutane causes long term IgA deficiencies it would be a major breakthrough, because it is linked to a lot of the symtoms we have like pink eye, IBS, leaky gut, blody nose/sinusitis... Actually once you have an IgA deficiency you pretty much suffer from an auto-immune disorder... A lot of people with gluten sensitivities have low levels of IgA as well.

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MemberMember
21
(@aharon)

Posted : 05/04/2012 3:01 pm

Tree1,

 

Idebenone was said by malden over at the AllThingsMale forum to help with weight gain, energy, being able to work out again, and some degree of mental repair as well.

 

He said it was the most effective product he had tried, although it was slow acting. Idebenone is a synthetic variant of coQ10. It's available online and in some cases by prescription.

 

Believe,

 

I don't know my IgA levels. But if you tried colustrum, and it has IgA, and you think low IgA is the problem, then are you cured/treated from the colostrum?

That's what matters. I've tried colostrum and didn't notice any improvement.

 

My own IBS cure I've recently posted.

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MemberMember
85
(@and1)

Posted : 05/04/2012 5:26 pm

If I could afford to drink half or a quarter of a bottle (one bottle is 125 ml) of colostrum every day, I would consider myself cured, it makes a world of difference. Digestive problems pretty much gone, more energy, no dry eyes, better mood... There are people in the world of bodybuilding who say colostrum is way better than roids...

 

Once I make enough money I will definitely try a bottle or half a bottle a day for like 2 or 3 months.

 

The colostrum powder did not work for me. Felt slightly better, but maybe that was only a placebo effect. It was not worth the money.

 

I tried different brands, here is the breakdown of the content of the liquid colostrum, it is German, but I am sure you will understand:

 

Analyse

Repalac Immun-flussig

 

76 kJ (18 kcal)/100ml

Vitamine

 

Thiamin (Vit. B1)

0,09 mg/100ml

Riboflavin (Vit. B2)

0,33 mg/100ml

Pyrodoxin (Vit. B6)

0,028 mg/100ml

Cobalamin (Vit. B12)

0,45 ug/100ml

Folsaure

5,2 ug/100ml

Nicotinamid

0,09 mg/100ml

Pantothensaure

0,31 mg/100ml

Mineralien

 

Natrium (Na)

688 mg/l

Kalium (K)

1608 mg/l

Calzium (Ca)

1784 mg/l

Magnesium(Mg)

248 mg/l

Eisen (Fe)

0,5 mg/l

Mangan (Mn)

0,1 mg/l

Zink (Zn)

8,6 mg/l

Phosphor (P)

1362 mg/l

Selen (Se)

0,05 mg/l

 

Freie Aminosauren

 

Alanin

1,44mg/100 ml

Arginin

0,22mg/100 ml

Asparginsaure

1,07 mg/100 ml

s-Alanin

0,1 mg/100 ml

s-Aminoisobuttersaure

0,1 mg/100 ml

Cystin

0,11 mg/100 ml

Glutamin

3,54 mg/100 ml

Glutaminsaure

0,1 mg/100 ml

Glycin

1,11 mg/100 ml

Histidin

0,70 mg/100 ml

Isoleucin

0,50 mg/100 ml

Leucin

2,41 mg/100 ml

Lysin

0,26 mg/100 ml

Methionin

0,23 mg/100 ml

Ornithin

0,20 mg/100 ml

Phenylalanin

1,00 mg/100 ml

Phosphorethanolamin

2,24 mg/100 ml

Phosphorserin

0,63 mg/100 ml

Prolin

3,38 mg/100 ml

Serin

0,71 mg/100 ml

Taurin

11,79 mg/100 ml

Threonin

0,48 mg/100 ml

Tryptophan

0,22 mg/100 ml

Tyrosin

1,18 mg/100 ml

Valin

1,10 mg/100 ml

 

Immunglobuline

 

Immunglobuline

59,1 g/l

 

Naturliche regulatorische Peptidfaktoren bzw. Immunotransmitter u.a. Interleukine, Lymphokine, Monokine, Interferon, Lysozyme, Wachstumsfaktoren, Lactoferrin.

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MemberMember
16
(@humanstate)

Posted : 05/04/2012 6:49 pm

If I could afford to drink half or a quarter of a bottle (one bottle is 125 ml) of colostrum every day, I would consider myself cured, it makes a world of difference. Digestive problems pretty much gone, more energy, no dry eyes, better mood... There are people in the world of bodybuilding who say colostrum is way better than roids...

 

Once I make enough money I will definitely try a bottle or half a bottle a day for like 2 or 3 months.

 

The colostrum powder did not work for me. Felt slightly better, but maybe that was only a placebo effect. It was not worth the money.

 

I tried different brands, here is the breakdown of the content of the liquid colostrum, it is German, but I am sure you will understand:

 

Analyse

Repalac Immun-flussig

76 kJ (18 kcal)/100ml

Vitamine

 

Thiamin (Vit. B1)

0,09 mg/100ml

Riboflavin (Vit. B2)

0,33 mg/100ml

Pyrodoxin (Vit. B6)

0,028 mg/100ml

Cobalamin (Vit. B12)

0,45 ug/100ml

Folsaure

5,2 ug/100ml

Nicotinamid

0,09 mg/100ml

Pantothensaure

0,31 mg/100ml

Mineralien

 

Natrium (Na)

688 mg/l

Kalium (K)

1608 mg/l

Calzium (Ca)

1784 mg/l

Magnesium(Mg)

248 mg/l

Eisen (Fe)

0,5 mg/l

Mangan (Mn)

0,1 mg/l

Zink (Zn)

8,6 mg/l

Phosphor (P)

1362 mg/l

Selen (Se)

0,05 mg/l

 

Freie Aminosauren

 

Alanin

1,44mg/100 ml

Arginin

0,22mg/100 ml

Asparginsaure

1,07 mg/100 ml

s-Alanin

0,1 mg/100 ml

s-Aminoisobuttersaure

0,1 mg/100 ml

Cystin

0,11 mg/100 ml

Glutamin

3,54 mg/100 ml

Glutaminsaure

0,1 mg/100 ml

Glycin

1,11 mg/100 ml

Histidin

0,70 mg/100 ml

Isoleucin

0,50 mg/100 ml

Leucin

2,41 mg/100 ml

Lysin

0,26 mg/100 ml

Methionin

0,23 mg/100 ml

Ornithin

0,20 mg/100 ml

Phenylalanin

1,00 mg/100 ml

Phosphorethanolamin

2,24 mg/100 ml

Phosphorserin

0,63 mg/100 ml

Prolin

3,38 mg/100 ml

Serin

0,71 mg/100 ml

Taurin

11,79 mg/100 ml

Threonin

0,48 mg/100 ml

Tryptophan

0,22 mg/100 ml

Tyrosin

1,18 mg/100 ml

Valin

1,10 mg/100 ml

 

Immunglobuline

 

Immunglobuline

59,1 g/l

 

 

Where can you get the liquid?

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MemberMember
13
(@sclippers)

Posted : 05/04/2012 11:34 pm

Hey and Indigo and rest of you how are things going

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MemberMember
91
(@josephbuchignani)

Posted : 05/05/2012 1:22 am

I have just finished all 15+ pages of Dr. Snow's blog. Below I will provide the only clear explanation of his theory available anywhere on the Internet. If you are not interested in that, feel free to skip this post.

 

Every breastfed baby develops a healthy mucosal membrane system. Human breast milk contains the perfect balance of probotioc strains and colostrom, which allows the bacteria to bind to the mucosal lining walls.

 

This mucosal membrane extends not only throughout the gut, but also to other systems such as the urinary tract, reproductive tract, nasal tract, lungs, ears, eyes, etc. In fact, good bacteria colonize the surface of your entire body - skin, nails, and hair.

 

Later in life, antibiotics or other environmental and dietary factors may cause a reduction in this original bacterial colony. As a result, the mucus membrane no longer performs its original functions correctly. Moreover, bad bacteria may proliferate, unbalancing the PH level, causing the membrane to become sensitive and inflamed. The immune system becomes involved, with unpredictable results. If the membrane is in the digestive tract, digestive juices may begin to eat through the membrane and into surrounding tissue. The membrane becomes too permeable. Various medical interventions usually tend to worsen the problem by masking symptoms designed to protect the body from further damage. Or, worst of all, by prescribing more antibiotics.

 

All of these problems can create many different symptom sets depending on the location of the damaged membrane, severity, and individual circumstances. But it all stems from the same root problem - the devastation of the original bacterial colony. That's why these problems started to become prevalent only after WWII - that's when antibiotic and baby formula use first became widespread.

 

Dr. Snow's solution is to

1. Repopulate the colony with a probiotic + colostom supplement program that closely mimics human breast milk

2. Manage symptoms while the recovery proceeds

3. Gradually rebuild damaged tissue

4. Gradually reintroduce the full range of food and lifestyle available to a normal, healthy person.

 

A family member of mine will probably try Dr. Snow before I do, for chronic IBS. I was not able to get additional details from Dr. Snow on the mechanism for reversing Accutane damage without scheduling an appointment.

 

There may be a lower-cost way to implement most of Dr. Snow's protocol - one that does not require expensive refrigerated probiotics and premium colostrum. Simply drink human breast milk.

 

Given the logistical problems involved in refrigerated shipping from the US to China, I may try this option. Note that I was not able to get Snow to confirm that this would work for me. I still want to schedule a consultation with him, to get further answers.

 

So, wouldn't it be interesting, if the only answer to the Vitaminosis-A, aka the death vitamin, was human breast milk, aka the original liquid of life?

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MemberMember
143
(@indigorush)

Posted : 05/05/2012 4:27 am

Hey and Indigo and rest of you how are things going

 

 

Like how I get a personal mention ;)

Not good though.

I really fucking try, and I'd been okay the last several days (well - as 'okay' as possible when dealing with this).

Last night, I went to a family buffet. I didn't eat much.. It was savoury snack-food mostly.

After, I just felt ill and tired, and overall horrible.

It's just a great big pain-in-the-butt.

 

Today I feel rubbish because my gums still seem to be receding.

It's definitely getting worse, and that's just not fair.

I hate not having control.

It's like... Why should I bother(?)

Nothing I do makes any difference anyway.

 

People can abuse their livers with alcohol for years and then undo the damage by stopping.

I brush my teeth with a soft-bristled brush, floss my teeth and only drink water.

I chew gum after meals to get rid of any food that's been lodged in my teeth.

It's not bloody rocket science. I know how to brush my teeth, and I couldn't be doing it more 'right'.

I even bought an all-natural product called 'Tooth-soap' which is supposed to be really good.

Only got it yesterday, but I have a sinking feeling that I'll lose all my teeth or have to result to very painful gum surgery.

And that's not going to 'fix' the problem, is it?

It's probably down to dry mouth and my shitty immune system that can't defend itself against simple bacteria.

It's all very frustrating and I feel completely at will to whatever is going to happen to me.

 

Before Tooth-soap, I was using a fluoride-free toothpaste and switched chemical mouthwash for tea tree oil drops and water.

What am I supposed to do?

 

It's one of those days where I think 'I'm not supposed to get through this. Clearly, it's not meant to be'.

I just feel like swallowing as many painkillers as possible, or crashing my car into a building at 80mph.

 

It sucks, because I don't want my life to be like this.

Anyone else ... Overweight people, or people with a drug problem... They have the choice to get better.

It appears I/we don't.

 

But hey - How are you?

Still alive and well?

 

ENVIOUS, much?!

 

 

 

I've linked videos of this guy before. He's very, very good.

I'm watching this one now.

He mentioned God quite a bit, but it doesn't really bother me.

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MemberMember
85
(@and1)

Posted : 05/05/2012 5:05 am

I have mentioned colostrum before and yes it works, but....

 

First, I tried liquid organic colostrum. I tried the following brands:

 

http://www.aponeo.de...W0LFXqMLAKqNkbH

 

http://www.aponeo.de...W0LFXqMLAKqNkbH

 

 

 

This is where I got it, it is probably available throughout Europe. The process they use saves all the ingredients, it was specifically developed at the University of Cologne.

 

The only brand I found that was selling a liquid in the US I believe is Kirklabs, but I can't guarantee for the quality, it all depends on when the colostrum is taken, if it is taken too late it is basically just plain milk...

 

 

There may be a lower-cost way to implement most of Dr. Snow's protocol - one that does not require expensive refrigerated probiotics and premium colostrum. Simply drink human breast milk.

 

 

 

Human breast milk is not the same as human colostrum, just like cows milk is not colostrum, I hope you know that. But indeed human colostrum is probably the best stuff you can get I have heard that before.

 

@ Indigo: you gotta correct your self-image to win this fight, you see yourself too much as a victim, this state of mind won't get you anywhere.

 

Life is not a sprint it is a marathon!

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MemberMember
3
(@keiko1)

Posted : 05/05/2012 11:25 am

I didn't really care to read the last couple of pages but are you actually blaming Accutane for gum receding now? Also, trying to get Accutane banned is probably not the best action route. Good luck though buddy lol

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MemberMember
21
(@aharon)

Posted : 05/05/2012 1:23 pm

Simply drink human breast milk

 

Wouldn't it be best to get it directly?

 

Rather than all the shipping from US to China shtuff...

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MemberMember
91
(@josephbuchignani)

Posted : 05/05/2012 1:32 pm

My plan is just to find a nursing infant, tap it on the shoulder, and say, "Excuse me, you gonna finish that?"

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MemberMember
21
(@aharon)

Posted : 05/05/2012 2:39 pm

Now you're talking. You know you can get lactation devices, right? Get your girlfriend on the program. Tell her it's for science. No, wait, girls hate that. Tell her if she really loves you it's time to lactate.

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MemberMember
0
(@hitman87)

Posted : 05/05/2012 3:43 pm

I'm feeling so bad the last few days. It seems that my magical Zinc picolinate stopped working. It looked so promissing and the results were there. For a couple of weeks I was off accutane, and had just one zinc tablet each day. It seemed to have about 80% of the effect accutane had, minus de side-effect. Somehow I suspect that zinc might have boosted the last few leftovers of Accutane in my body to work and now it's gone. :(

 

Ever since I stopped accutane a few months back (because of medical reasons including antibiotics) I started developing scalp acne. I never had it and now the acne on my scalp is worse than on my face. Terrible itching, all day long. In the magical zinc moments, this was reduced to a minimum. I tried to get more out of it by doing healthy stuff like eating nuts and taking cod liver oil. This would just break me out terrible, so I tried something new recently. I took mango every day for two weeks. The result is that my skin looks like crap, especially on my scalp. Because of the accutane I'm balding, so I have very short hair. Right now the scalp acne is very visible. This and the terrible itching got me thinking in a whole wrong direction. The direction of starting Accutane again.

 

It seems like every effort I take to be more healthy just backfires big time. The only way to stay "clear" (about 80%) the last weeks was taking zinc, dry bread, water, tea and dry rice. Everything like fruits, sugars, and things to spice up food would break me out. Result is that I lost a lot of weight too. I just look like shit now + big time acne. I'm also still suffering from constipation to top it all off.

 

I hoped to have some better and more possitive thoughts to share, but I feel kinda desperate. Been avoiding social interaction the last few days and thinking of accutane big time. I really don't want it, but right now I'm too ashamed to meet people and interact. What do you guys do when you get a acne flair up? Boost you're regime, just let it happen or try new stuff?

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MemberMember
91
(@josephbuchignani)

Posted : 05/05/2012 9:37 pm

Hah. I think we've finally reached the limits of shit I'm willing to talk about online under my real name. Hats off to you sir.

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0
(@Anonymous)

Posted : 05/05/2012 11:06 pm

Now you're talking. You know you can get lactation devices, right? Get your girlfriend on the program. Tell her it's for science. No, wait, girls hate that. Tell her if she really loves you it's time to lactate.

 

 

lol

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MemberMember
16
(@humanstate)

Posted : 05/06/2012 9:55 am

My plan is just to find a nursing infant, tap it on the shoulder, and say, "Excuse me, you gonna finish that?"

 

 

Jeeeze why is everyone always hating on you? I thought this was funny.

 

Lighten up guys! Our (well mine at least) lives are bad enough! I feel like we might be getting somewhere.

 

We can't afford to be negative and attack eachother.

 

You realize we pretty much have no answers right?

 

We need to work TOGETHER to get our lives back!

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MemberMember
85
(@and1)

Posted : 05/06/2012 11:14 am

Yeah, lighten up guys.

 

Colostrum is one reason why I am pretty optimistic about the future. Once I graduate university and find a well paid job I can afford down a bottle of colostrum every day. That will be like "being on steroids" all the time without the side effects...lol

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MemberMember
143
(@indigorush)

Posted : 05/06/2012 12:09 pm

 

My plan is just to find a nursing infant, tap it on the shoulder, and say, "Excuse me, you gonna finish that?"

 

 

Jeeeze why is everyone always hating on you? I thought this was funny.

 

Lighten up guys! Our (well mine at least) lives are bad enough! I feel like we might be getting somewhere.

 

We can't afford to be negative and attack eachother.

 

You realize we pretty much have no answers right?

 

We need to work TOGETHER to get our lives back!

 

 

He has his moments...

 

For the record, I love all of you guys! and gal - Oli Girl

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MemberMember
29
(@tritonxiv)

Posted : 05/06/2012 1:43 pm

I didn't really care to read the last couple of pages but are you actually blaming Accutane for gum receding now? Also, trying to get Accutane banned is probably not the best action route. Good luck though buddy lol

 

 

I've determined this thread has turned into an all encompassing smorgasborg of hypochondriasis with accutane as the sole scapegoat for all of life's problems.

 

Normally, I wouldn't have a problem with people doing what they do, but when people start preaching how accutane is the devil and should be banned... Well I have a huge problem with that. After 9 years taking accutane, I can safely say that most of these "problems" are not in any way related to a drug they took for four months. These guys and gals should really seek some counseling. Breast lactations to treat post-accutane "problems"?!!? Come on now....

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