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On 11/24/2016 at 5:34 PM, pabpab said:
Hey buddy
The thing is that the results I'm getting are not getting me anywhere. No libido since 10 years. Just needed to stop having sex with my gf because I was so empty with no emotions that got soft... 3rd time since 12 days of our so-awaited holidays..........
Spent good part of last 10 years visiting doctors and testing myself. Nothing relevant has been found as yet.
Yes, I had very low free testosterone and very low DHT.
Did a clomid treatment, took shots of testosterone, took dhea....it's all poitnless. Had scores over the top after clomid yet still was as miserable sexually as ever.
Now I have mid-lowish T - feel the same as ever.
Obviosuly, I'm all in the "get tested" camp however it's so fucking depressing that with all that money and time invested it's not getting anywhere...
Let me give you an example. Nowadays the only result which looks dodgy is my catecholamin test (btw @hatetanespoke about dopamine test - that's this one).
Posted the results here. [Edited link out]Tried to find a doctor who would be interested in this case and willing to spend some time thinking about it. Every single one didn't want my case.
Eventually found an experienced scientist with whom I'm working but hopefully you see my point.
That said, I'm willing to take any test that is needed and get any treatment necessary to get me sex drive back. Fortunatey, money's not an issue and can spend a lot if this will get my life back.
Any suggestions?
Btw, as someone was discussing this above - did an MRI of my pituitary as well and it's perfectly fine.
I always ask , accumulated dosage?
4 hours ago, Pido said:There has been some talk about fundraising scientists to look our case. What happened to that idea? I can't see them working for charity on this. We can try to do our own research, but I feel that it isn't taking us anywhere. Atleast it's taking too much of time and in best case someone gets his symptoms cured, but I don't think that's enough. The pharma industry needs to pay somehow for ruining our lives. Because of that we need scientists to work on this sooner or later and I rather choose the sooner option.
You are low in HGH? More people need to get this test.
Can you tell us more about it and what your doctors had to say.
Are you willing to post all your test results - it may help,
On 24/11/2016 at 5:59 AM, Nick Ryan said:
I suffer from fatigue, chemo brain, joint problems and muscle weakness but my biggest problems is ED. It would be interesting to know how patients after chemotherapy with these effects are treated.
I think I'm going to try the protocol zink, calcium d glucarate also sounds interesting.
I'm not exactly sure? Thinking back it was probably just the standard course - 3 months maybe that I was on it, possibly a little longer?
I got the standard liver blood test half way through the course - no issue at the time so I continued. I got major depression towards the end which has never really left.
Life changing stuff, biggest mistake of my life and I'm getting angrier by the day.
This is in response to Gladiatoro post at top of page.
On 11/13/2016 at 7:51 AM, tanedout said:Just saw this over on the ATM forum, some guy doing pretty well taking zinc supplements, and putting forward a very interesting theory which I can relate to regards taking certain sups which result in no morning glory for a while, then you stop and it slowly comes back after a time.
Also very interesting to read the theory of the type 1 and type 2 PFS. Personally based on these categorisations I would be a type 2, as sorghum for example seems to have no real impact, but I get benefits from weed (would rather not touch the stuff, but have tried it and it does result in improvements for a period), and zinc (I eat pumpkin seeds every day and have for a couple of years as I notice if I don't - great source of zinc). My bloods also show my DHT is high (DHT = 4.1 nmol/L (range0.9 - 2.90)
[Edited link out]
Anyone been trying this protocol? Zinc lowers estradiol right?
22 hours ago, hatetane said:You are low in HGH? More people need to get this test.
Can you tell us more about it and what your doctors had to say.
Are you willing to post all your test results - it may help,
My GH level was <0.15 (max 9.0). I got to the test through dermatologist, but he didn't know what to do when the results came so he guided me to a endocrinologist. The endocrinologist said that I shoud have never been tested with that test and he sent me to a IGF1 test and the result was 38.7 (15.0 - 45.0). If I remember correctly and understood it right, GH controls the IGF1 production and that's all what matters, GH levels can be low at times.
I've had pretty much all the basic hormone tests and some other tests, but nothing unordinary there. DHT is 1.09 (1.03 - 2.92). T-levels were also on the lower side, I don't remember exactly and I don't have the results.
When you tell a naturopath that you took accutane most would say that's a pure poison, they know it's bad stuff. But allopathic doctors don't care they ignore it's dangers and shrug their shoulders and say it's not that bad , that's the kind of world we are living in , I call it drug inc.
On 11/25/2016 at 7:37 PM, hatetane said:Good!! Be strong and get yourself back to college next year.
Eat healthy and exercise.do you think you are strong enough to demand your doctor to order complete blood tests like the one Kynarr wanted to get?
We do need to get as many people to have these tests as possible but most doctors jut won't agree to it!QUOTE :
The physiological loss of sodium occurs when energy metabolism fails, as in diabetes, hypothyroidism, hyperestrogenism, and starvation. What these conditions have in common is an increased level of free fatty acids in the blood. Increased free fatty acids impair the use of glucose. The consumption of carbohydrate, like an increase of thyroid hormone, insulin, or progesterone, increases the retention of sodium; fructose is the most effective carbohydrate (Rebello, et al., 1983).Amazoniacadded this quoteOct 22, 2016http://www.genf20-plus.com/
Anyone looked into this?
I'm not sure ow exactly to convince my doctor of this, but I will try. I honestly don't know how to go about dealing with setting u an appointment for this either. BTW, does anyone know of a way to improve dealing with stress. I can't manage stressful situations like I used to, and this is honestly about the biggest thing that made me leave college.
11 hours ago, cnb30 said:I'm not sure ow exactly to convince my doctor of this, but I will try. I honestly don't know how to go about dealing with setting u an appointment for this either. BTW, does anyone know of a way to improve dealing with stress. I can't manage stressful situations like I used to, and this is honestly about the biggest thing that made me leave college.
In regards to appointments, personally i've just been going through my entry point, my family doctor, and just telling her exactly how I feel, where I'm at and what I want. I think that's the best way to at least get started. It's okay for a doctor not to know how to help you, but at least be sure then that you are then referred some place else.
For stress, and this is coming from a once extremely shy, agoraphobic teenager stuck with extreme general anxiety, what helped me was learning that nobody cares. Everyone's much too busy worrying about their own issues to really care about yours. The more crazy you get in public and do stupid stuff, ironically, the more you see that the only people it can make uncomfortable, are those around you who are too stuck up to understand that it's possible to be free from concerns.
Go to the gym, go for walks outside alone, try meditation, yoga. Buy an acupressure mat. Try natural, non-dangerous supplements/drugs (avoid prescription pills). Chamomile tea is awesome. Passiflora. Phenibut if you can avoid dependency and abuse is something out of this world. Listen to relaxing or familiar music. Be sure to eat as healthy as possible (Bulletproof/Paleo). Sleep well. If you're a guy, don't watch porn, don't masturbate. These are all logic and simple things that when put together put you in a great place.
1 hour ago, Kynarr said:In regards to appointments, personally i've just been going through my entry point, my family doctor, and just telling her exactly how I feel, where I'm at and what I want. I think that's the best way to at least get started. It's okay for a doctor not to know how to help you, but at least be sure then that you are then referred some place else.For stress, and this is coming from a once extremely shy, agoraphobic teenager stuck with extreme general anxiety, what helped me was learning that nobody cares. Everyone's much too busy worrying about their own issues to really care about yours. The more crazy you get in public and do stupid stuff, ironically, the more you see that the only people it can make uncomfortable, are those around you who are too stuck up to understand that it's possible to be free from concerns.
Go to the gym, go for walks outside alone, try meditation, yoga. Buy an acupressure mat. Try natural, non-dangerous supplements/drugs (avoid prescription pills). Chamomile tea is awesome. Passiflora. Phenibut if you can avoid dependency and abuse is something out of this world. Listen to relaxing or familiar music. Be sure to eat as healthy as possible (Bulletproof/Paleo). Sleep well. If you're a guy, don't watch porn, don't masturbate. These are all logic and simple things that when put together put you in a great place.
Phenibut is the only thing that has come close to making me feel normal. Unfortunetly so short lived.
8 hours ago, cnb30 said:Can anyone here show an image for reference of how large 40 mg of nsi-189 is?
Scale is only option, me possibly having more humidity would make my powder more dense while you could have very dry air and have very powdery chemical.
On 2016-11-26 at 11:17 PM, TrueJustice said:I'm not exactly sure? Thinking back it was probably just the standard course - 3 months maybe that I was on it, possibly a little longer?
I got the standard liver blood test half way through the course - no issue at the time so I continued. I got major depression towards the end which has never really left.
Life changing stuff, biggest mistake of my life and I'm getting angrier by the day.
This is in response to Gladiatoro post at top of page.
Yeah me too I find it heart wrenching teens are put on this poison for a few pimples it's absolutely criminal but I wouldn't necessarily describe it as depression rather reduced brain function. Luckily I have a huge brain lol. I consider that a blessing after what I have been through with this CHEMO torture.
3 hours ago, Gladiatoro said:Yeah me too I find it heart wrenching teens are put on this poison for a few pimples it's absolutely criminal but I wouldn't necessarily describe it as depression rather reduced brain function. Luckily I have a huge brain lol. I consider that a blessing after what I have been through with this CHEMO torture.
Sounds about right. The only reason I felt any depression from Accutane is because I am fully aware of the side effects that persist on a daily basis. There's only one thing that has totally made me feel normal from my sides, and improved my memory, mental functioning, sleep quality, and stopped my systematic inflammation. And that magic pill is called prednisone. I took it as a 15 day taper for a cough problem I was having and I never even realized that every single day on this drug I was at my very very best functioning, every single day was my "best day of the week". Which really makes me feel like my issues lie within the gut. Sounds like an autoimmune disease where my immune system is just attacking everything and causing inflammation everywhere. Taking steroids for life though is my final option. I rather exhaust every other option before jumping the gun on something like that again. High hopes for LDN, if it can come in faster dammit.
2 hours ago, ehohel said:5 hours ago, Gladiatoro said:Yeah me too I find it heart wrenching teens are put on this poison for a few pimples it's absolutely criminal but I wouldn't necessarily describe it as depression rather reduced brain function. Luckily I have a huge brain lol. I consider that a blessing after what I have been through with this CHEMO torture.Sounds about right. The only reason I felt any depression from Accutane is because I am fully aware of the side effects that persist on a daily basis. There's only one thing that has totally made me feel normal from my sides, and improved my memory, mental functioning, sleep quality, and stopped my systematic inflammation. And that magic pill is called prednisone. I took it as a 15 day taper for a cough problem I was having and I never even realized that every single day on this drug I was at my very very best functioning, every single day was my "best day of the week". Which really makes me feel like my issues lie within the gut. Sounds like an autoimmune disease where my immune system is just attacking everything and causing inflammation everywhere. Taking steroids for life though is my final option. I rather exhaust every other option before jumping the gun on something like that again. High hopes for LDN, if it can come in faster dammit.
Sadly I do a lot better if I don't drink too much beer . My ancestors would be ashamed lol.
Hey guys, I got a hormone panel done.. well, it's pretty bad. I took 120mg accutane/day for 5 months and ended 14 months ago when I was having sex and became limp while switching positions. Since then has been hell - notably, no libido, no spontaneous erections, if I get an erection it's not very full, general fatigue and malaise, anxiety, crippling brain fog (had to drop out of an Ivy League), and muscle soreness.
If you guys could help me interpret what all this means I would very much appreciate it. Side note - something that's weird and doesn't make sense with my hormone levels at all is that I actually do resistance training 4-5 times a week for a couple hours and most would consider me pretty big and muscular. My musculature and strength levels have definitely responded pretty well to strength training.
This lab has some weird ranges.. DHT is definitely low, for ex.: (20 y.o. Male)
DHT LC/MS/MS - 20 Range: 16-79
DHT, Free - 2.10 Range: 1.00-6.20
FSH - <0.7 Range: 1.6-8.0
LH - 3.0 Range: 1.5-9.3 (This has gone up.. right after accutane it was 1.1)
Progesterone - <0.5 Range: <1.4
Test. Total - 389 Range: 250-827
Estradiol - 25 Range: <39
Sex Hormone Binding Globulin - 13 Range: 10-50
3 hours ago, ehohel said:7 hours ago, Gladiatoro said:Yeah me too I find it heart wrenching teens are put on this poison for a few pimples it's absolutely criminal but I wouldn't necessarily describe it as depression rather reduced brain function. Luckily I have a huge brain lol. I consider that a blessing after what I have been through with this CHEMO torture.Sounds about right. The only reason I felt any depression from Accutane is because I am fully aware of the side effects that persist on a daily basis. There's only one thing that has totally made me feel normal from my sides, and improved my memory, mental functioning, sleep quality, and stopped my systematic inflammation. And that magic pill is called prednisone. I took it as a 15 day taper for a cough problem I was having and I never even realized that every single day on this drug I was at my very very best functioning, every single day was my "best day of the week". Which really makes me feel like my issues lie within the gut. Sounds like an autoimmune disease where my immune system is just attacking everything and causing inflammation everywhere. Taking steroids for life though is my final option. I rather exhaust every other option before jumping the gun on something like that again. High hopes for LDN, if it can come in faster dammit.
To me it sounds like an "Autoimmune" issue too - definitely our gut health has been smashed.
So, who's seen an autoimmune specialist???
Does anyone know what they are likely to put you on for this systemic inflammation we have??
Next week i see my Gastroenterologist. I'm going to ask him some deeper questions abou t this inflammation. He suggested last time that if the antibotics currently taking don't work, he'll look at a "Poo transplant" - My question is, who should be a candidate for such a procedure outside of us tane victims?? Whywould it be necessary for us to have it done?? ( I know why, but does he?? )
I'll be keen to hear his response!!
On another note - in terms of chemo side effects, you'd have to think that plenty of people go back to their doctor suffering from chemo brain etc, not just accutane victims. So why is it so hard to fathom what we are explaining with our side effects when we see a doctor??
Sounds to me that chemo side effects are quite common - if that's the case what is usually recommended to help treat it??
If a doctor can't fathom this question, the industry seriously needs to rethink how we train them!!!
1 hour ago, Weltschmerz47 said:Hey guys, I got a hormone panel done.. well, it's pretty bad. I took 120mg accutane/day for 5 months and ended 14 months ago when I was having sex and became limp while switching positions. Since then has been hell - notably, no libido, no spontaneous erections, if I get an erection it's not very full, general fatigue and malaise, anxiety, crippling brain fog (had to drop out of an Ivy League), and muscle soreness.
If you guys could help me interpret what all this means I would very much appreciate it. Side note - something that's weird and doesn't make sense with my hormone levels at all is that I actually do resistance training 4-5 times a week for a couple hours and most would consider me pretty big and muscular. My musculature and strength levels have definitely responded pretty well to strength training.
This lab has some weird ranges.. DHT is definitely low, for ex.: (20 y.o. Male)
DHT LC/MS/MS - 20 Range: 16-79
DHT, Free - 2.10 Range: 1.00-6.20
FSH - <0.7 Range: 1.6-8.0
LH - 3.0 Range: 1.5-9.3 (This has gone up.. right after accutane it was 1.1)
Progesterone - <0.5 Range: <1.4
Test. Total - 389 Range: 250-827
Estradiol - 25 Range: <39
Sex Hormone Binding Globulin - 13 Range: 10-50
Wow after careful analysis and years of reading post tan stories I would definitely have to say accumulated dosage is the MAIN factor in severity of long term side effects.
52 minutes ago, TrueJustice said:To me it sounds like an "Autoimmune" issue too - definitely our gut health has been smashed.So, who's seen an autoimmune specialist???
Does anyone know what they are likely to put you on for this systemic inflammation we have??
Next week i see my Gastroenterologist. I'm going to ask him some deeper questions abou t this inflammation. He suggested last time that if the antibotics currently taking don't work, he'll look at a "Poo transplant" - My question is, who should be a candidate for such a procedure outside of us tane victims?? Whywould it be necessary for us to have it done?? ( I know why, but does he?? )
I'll be keen to hear his response!!
On another note - in terms of chemo side effects, you'd have to think that plenty of people go back to their doctor suffering from chemo brain etc, not just accutane victims. So why is it so hard to fathom what we are explaining with our side effects when we see a doctor??
Sounds to me that chemo side effects are quite common - if that's the case what is usually recommended to help treat it??
If a doctor can't fathom this question, the industry seriously needs to rethink how we train them!!!
Prednisone, what I mentioned above is used to suppress immune system function. People with autoimmune diseases take that for life, it's quite amazing, I felt normal for the first time ever since accutane. But it's not good in the long run, I know I got a cut on my finger while taking it, and it didn't heal AT ALL up until a few weeks after I finished taking it. We NEED our immune system, but it's being an asshole (if we have autoimmune disease). Another thing that looks promising is LDN, I'm going to get right on that as soon as I receive it, I know there's another user here who is reaching a month on LDN now I think. It takes a few months to receive effects.
1 hour ago, ehohel said:2 hours ago, TrueJustice said:To me it sounds like an "Autoimmune" issue too - definitely our gut health has been smashed.So, who's seen an autoimmune specialist???
Does anyone know what they are likely to put you on for this systemic inflammation we have??
Next week i see my Gastroenterologist. I'm going to ask him some deeper questions abou t this inflammation. He suggested last time that if the antibotics currently taking don't work, he'll look at a "Poo transplant" - My question is, who should be a candidate for such a procedure outside of us tane victims?? Whywould it be necessary for us to have it done?? ( I know why, but does he?? )
I'll be keen to hear his response!!
On another note - in terms of chemo side effects, you'd have to think that plenty of people go back to their doctor suffering from chemo brain etc, not just accutane victims. So why is it so hard to fathom what we are explaining with our side effects when we see a doctor??
Sounds to me that chemo side effects are quite common - if that's the case what is usually recommended to help treat it??
If a doctor can't fathom this question, the industry seriously needs to rethink how we train them!!!
Prednisone, what I mentioned above is used to suppress immune system function. People with autoimmune diseases take that for life, it's quite amazing, I felt normal for the first time ever since accutane. But it's not good in the long run, I know I got a cut on my finger while taking it, and it didn't heal AT ALL up until a few weeks after I finished taking it. We NEED our immune system, but it's being an asshole (if we have autoimmune disease). Another thing that looks promising is LDN, I'm going to get right on that as soon as I receive it, I know there's another user here who is reaching a month on LDN now I think. It takes a few months to receive effects.
The industry is completely bankrupt /. Corrupt what else is new.
9 hours ago, TrueJustice said:Next week i see my Gastroenterologist. I'm going to ask him some deeper questions abou t this inflammation. He suggested last time that if the antibotics currently taking don't work, he'll look at a "Poo transplant" - My question is, who should be a candidate for such a procedure outside of us tane victims?? Whywould it be necessary for us to have it done?? ( I know why, but does he?? )
The idea of "poo transplant" is to get the necessary bacteria species that are missing in your gut. So far i have heard that people getting it got only temporary relief after doing this.
It's been a while that i haven't had morning wood, and last couple of days i've been drinking some red wine, my libido is up and i had some morning wood. It seems like red wine has quercetin which boosts T.
why don't you just make kefir drinks if u are concerned about gut flora health? there are some great stories of kefir curing peoples chron's after drinking it for a while. i myself have a shake every night mixed with fruits n seeds. if u want i can tell u how, just pm me..
4 hours ago, sacha_n said:The idea of "poo transplant" is to get the necessary bacteria species that are missing in your gut. So far i have heard that people getting it got only temporary relief after doing this.
It's been a while that i haven't had morning wood, and last couple of days i've been drinking some red wine, my libido is up and i had some morning wood. It seems like red wine has quercetin which boosts T.
You mean grapes or other red fruits wine?