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Repairing the long-term damage from Accutane

 
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37
(@umas)

Posted : 11/30/2016 12:18 pm

1 hour ago, macleod said:

why don't you just make kefir drinks if u are concerned about gut flora health? there are some great stories of kefir curing peoples chron's after drinking it for a while. i myself have a shake every night mixed with fruits n seeds. if u want i can tell u how, just pm me..

I make my own kefir too, and another benefit is that it taste GREAT! I use some good probiotic capsule, open it and pour everything to a jar with milk.After 24-48 hours voila - you've got homemade kefir! Jar have to be open, but with gauze on top.
I was thinking about poo transplant too, BUT nobody is talking about possible risks. I mean, one risk is in procedure itself, but let's say that it went smootly. But we all have unique microflora. What if someone microflora is good for that person, but not good for another? Of course if it is someone from family, that there higher percentage of possibility that correct microflora is similiar but seriously we still are in the dark in terms of microflora, so I would not jump into that wagon right away, just because it's not classic medicine but alternative. Sometimes alternative medicine is worse that academical medicine. I think that our bodies tends to heal, and help maintain or rebuild microflora in composition we just need, but we need to help that process especially if it was badly damage. if it's not a autoimmune disease then making your immune system stronger make sense, and also... live to the fullest. Seriously, not only it eleviate stress but think about it - bacteries are all around us. Metting new persone, eating new stuff, travel to new places, every time our organism interact with bacterias.
If you have c. diff or some sort of inflammatory bowel disease then yes, poo transplant can be a good thing. But it's not a golden bullet it will not heal every GI problem, and I wonder if it is not dangerous itself(because seriously transplanting your poo is not that natural, is better then chemicals but still not natural entirely)

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157
(@tanedout)

Posted : 11/30/2016 12:39 pm

15 hours ago, TrueJustice said:
To me it sounds like an "Autoimmune" issue too - definitely our gut health has been smashed.

So, who's seen an autoimmune specialist???

Does anyone know what they are likely to put you on for this systemic inflammation we have??

Next week i see my Gastroenterologist. I'm going to ask him some deeper questions abou t this inflammation. He suggested last time that if the antibotics currently taking don't work, he'll look at a "Poo transplant" - My question is, who should be a candidate for such a procedure outside of us tane victims?? Whywould it be necessary for us to have it done?? ( I know why, but does he?? )

I'll be keen to hear his response!!

On another note - in terms of chemo side effects, you'd have to think that plenty of people go back to their doctor suffering from chemo brain etc, not just accutane victims. So why is it so hard to fathom what we are explaining with our side effects when we see a doctor??

Sounds to me that chemo side effects are quite common - if that's the case what is usually recommended to help treat it??

If a doctor can't fathom this question, the industry seriously needs to rethink how we train them!!!

It'll be a series of fecal transplants from a healthy 'doner', not just one. Some of the PFS lot have tried this and apparently got some improvements from doing them.

It's possible to get a gastrointestinal test done to see what species of good bacteria you have (I've done this myself), and pretty much everyone whose been tested (15-20 people that I've seen results for) is lacking in the 'beneficial e.coli' strain. I tried taking the probiotic 'mutaflor' to try and replenish this, although it seemed to just make me constipated, so didn't get too far with that. May try again as I've still got loads in the fridge. There are likely other strains lacking too - the test only looks at the main known strains.

Milk kefir is pretty easy to make and I drank that daily for months. Water kefir isn't worth bothering with IMO - tried that for a time also. Sauerkraut is also pretty easy to make and again I ate that daily for some months, and have also tried drinking kombucha on a regular basis.

Gut health is clearly a factor in our issues, but it's difficult to know if that is the root cause, or if it's due to hormonal imbalance or methylation issues. They're all interlinked and they're all out of balance.

Definitely worth trying to ensure your gut health is good though, try and avoid processed foods, fizzy drinks, too much alcohol etc. I've just recently gone gluten free as my 23andme test says I'm 'likely intolerant'. Supermarkets are starting to offer more and more 'free from' ranges which helps

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(@sacha_n)

Posted : 11/30/2016 12:41 pm

41 minutes ago, Kokodu said:
You mean grapes or other red fruits wine?

Yes it was regular grapes red wine, it wasn't expensive and didn't tasted very well, but not bad too

28 minutes ago, Umas said:

If you have c. diff or some sort of inflammatory bowel disease then yes, poo transplant can be a good thing. But it's not a golden bullet it will not heal every GI problem, and I wonder if it is not dangerous itself(because seriously transplanting your poo is not that natural, is better then chemicals but still not natural entirely)

Yes it seems like some people getting poo transplant got worse. Not sure if anyone got completely healed. About this being not natural, as a kid I had a dog, and once I saw him eating another dog's poo. I was disgusted and wanted him to stop but he did it anyway. The defenders of poo transplant use this as an argument too, as it seems animals have some intuition about their health and nature, like cats eating some herbs while sick..

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37
(@umas)

Posted : 11/30/2016 2:21 pm

1 hour ago, sacha_n said:
Yes it was regular grapes red wine, it wasn't expensive and didn't tasted very well, but not bad too Yes it seems like some people getting poo transplant got worse. Not sure if anyone got completely healed. About this being not natural, as a kid I had a dog, and once I saw him eating another dog's poo. I was disgusted and wanted him to stop but he did it anyway. The defenders of poo transplant use this as an argument too, as it seems animals have some intuition about their health and nature, like cats eating some herbs while sick..

I am aware of behaviours of some animals(hamsters often eat their poo) and I don't want to argue that poo transplant is bad - because I honestly don't know! It's promissing and it seems that it helps people but I would still say that shoving up your ass poo of someone else is less natural for human that interact with different people, in different places, eat different food etc. Especially when you have symptoms but you know, can live with it. Different situation is when for example you have c.diff or IBD and shit every 30 minutes, then sure poo transplant in that situation seems like incredible safe in comparision to other methods. For myself I am a little bit sceptic. I was thinking about poo transplant but I need more info about it. Not just praises, but how it exactly works(especially in long term) and list of all possible risks and dangers. I had faith in conventional medicine and it f*ck me up, I'm not gonna be reckless ever again. Right now I try to boost my immune system and overall wellbeing. It's almost funny how I am in chronic pain, yet thanks to all suplementations, exercises, meditations etc I no longer get sick at winter times. Before antibiotics for acne that f*ck me up I felt healthy but get sick even 2 times every winter. Now I almost never get sick, and when I get sick I recover much faster than anyone I know, and yet I feel every moment of every day sick and tired. Weird.

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45
(@cnb30)

Posted : 11/30/2016 2:48 pm

Just did some research and realized that I was taking only like 10-20 mg of nsi-189. After correcting this to 50mg, and combining it with L-Tyrosine, I'm actually feeling somewhat myself. Does anyone have any thought's on this/advice/possibly anything else that would help?

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1753
(@truejustice)

Posted : 11/30/2016 4:21 pm

5 hours ago, macleod said:

why don't you just make kefir drinks if u are concerned about gut flora health? there are some great stories of kefir curing peoples chron's after drinking it for a while. i myself have a shake every night mixed with fruits n seeds. if u want i can tell u how, just pm me..

Wouldnt a gastroenterologist recommend this if it's that easy over doing poo transplant??

Ill be honest, I don't know a lot about this procedure, the place where I go though is where this world renowned gut doctor started this procedure from what I've read.

Im sure these doctors here questions all the time - why don't I just eat sauerkraut doc, why can't I just take a good probiotic, why not just drink kefir doc??

I will also say though, because us tane victims don't fully know what's wrong i.e do our problems stem from gut or hormone issues???? Your guess is as good as mine as to whether a Poo transplant is really what I need??

I've been with this bullshit or 20 years experimenting and trying to find a cure, let's just say this is another one that I'm willing to try. If I get it done and it doesn't help me well at least I tried. If I regain my gut health and it's still not a complete cure, at least I've cured my gut.

After that I'll start to focus my attention into endocrinology away from gastroenterology.

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37
(@umas)

Posted : 11/30/2016 5:19 pm

50 minutes ago, TrueJustice said:
Wouldnt a gastroenterologist recommend this if it's that easy over doing poo transplant??

Ill be honest, I don't know a lot about this procedure, the place where I go though is where this world renowned gut doctor started this procedure from what I've read.

Im sure these doctors here questions all the time - why don't I just eat sauerkraut doc, why can't I just take a good probiotic, why not just drink kefir doc??

I will also say though, because us tane victims don't fully know what's wrong i.e do our problems stem from gut or hormone issues???? Your guess is as good as mine as to whether a Poo transplant is really what I need??

I've been with this bullshit or 20 years experimenting and trying to find a cure, let's just say this is another one that I'm willing to try. If I get it done and it doesn't help me well at least I tried. If I regain my gut health and it's still not a complete cure, at least I've cured my gut.

After that I'll start to focus my attention into endocrinology away from gastroenterology.

Doctors are in reality just higher level clerks. They sell meds and procedures. There are of course exceptions, and good doctors that really care for their patients(because there are doctors that not only really wants to help because I believe that many want to, but most of them don't know how to help). Doctors doesn't care about your diet(unless your illness is directly caused by that) or what exercise you do, they treat all alternative medicine the same. They treat acupuncture the same as some "energy-healing", when in fact acupuncture is beneficial in many cases and there are proofs for that. Doctor don't care for homemade kefir, because he can't "sell" it to you. You can do it by yourself, and not by buing harmful "medicines" produced by big pharma. Poo transplant slowly becomes accepted by conventional medicine, and this have positives(because it's something that can really help), but also negatives(just another procedure they want to sell to you even if you don't neeed it). It's rather safe but find a good donor, someone from close family would be best.

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184
(@monsterdiesel)

Posted : 11/30/2016 6:03 pm

Has anyone used straight Reduced Glutathione? I've been using 500 mg for a couple weeks now and it's having a positive effect on Testosterone. I have not measured it yet but I noticed a difference in aggression, assertiveness, and muscularity. Again, there's a return to a certain hardness to my muscles that's been absent since using accutane.

Of all the things I've used, this is actually working. I tried 1 gr but it turns me into an asshole.

All feedback is welcome.

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1753
(@truejustice)

Posted : 11/30/2016 6:30 pm

23 minutes ago, MonsterDiesel said:

Has anyone used straight Reduced Glutathione? I've been using 500 mg for a couple weeks now and it's having a positive effect on Testosterone. I have not measured it yet but I noticed a difference in aggression, assertiveness, and muscularity. Again, there's a return to a certain hardness to my muscles that's been absent since using accutane.

Of all the things I've used, this is actually working. I tried 1 gr but it turns me into an asshole.

All feedback is welcome.

Sorry are we still on subject of gut health??

Are you talking about Glutamine which is good for gut health or Glutathione which is good for your joints??

Glutamine I could understand might effect mood as serotonin is in the gut. Never heard of Glutathione having an effect in mood or aggression etc?

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0
(@abi72)

Posted : 11/30/2016 7:35 pm

On 11/27/2016 at 4:22 PM, Pido said:
My GH level was <0.15 (max 9.0). I got to the test through dermatologist, but he didn't know what to do when the results came so he guided me to a endocrinologist. The endocrinologist said that I shoud have never been tested with that test and he sent me to a IGF1 test and the result was 38.7 (15.0 - 45.0). If I remember correctly and understood it right, GH controls the IGF1 production and that's all what matters, GH levels can be low at times.

I've had pretty much all the basic hormone tests and some other tests, but nothing unordinary there. DHT is 1.09 (1.03 - 2.92). T-levels were also on the lower side, I don't remember exactly and I don't have the results.

You got any tests you can share? Is your E low or high?

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50
(@ehohel)

Posted : 11/30/2016 8:45 pm

2 hours ago, MonsterDiesel said:

Has anyone used straight Reduced Glutathione? I've been using 500 mg for a couple weeks now and it's having a positive effect on Testosterone. I have not measured it yet but I noticed a difference in aggression, assertiveness, and muscularity. Again, there's a return to a certain hardness to my muscles that's been absent since using accutane.

Of all the things I've used, this is actually working. I tried 1 gr but it turns me into an asshole.

All feedback is welcome.

No, but I just took NAC for the first time which is a glutathione precursor. And I feel really good mentally right now. (Wide awake, warm in my head, cant really explain it.) Going to up the dose tomorrow see what happens.

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184
(@monsterdiesel)

Posted : 11/30/2016 8:51 pm

I used NAC too on/off for years. I felt and obvious dopaminergic effect but it never had any effect on testosterone/muscles. It dried my eyes and mouth too much because it also breaks down mucus so I had to stop it.

Glutatione feels different. And then theres the idea that our livers have to make it from nac and they dont function optimally.

I also notice vitamin E seems to synergize with glutathione. I feel a small boost to libido and the combo just makes me feel better.

Ive taken vitamin e alone before and noticed no difference.

Glutathione for the win and forget the nonsense that its not absorbed blah blah. It just isnt true.

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1753
(@truejustice)

Posted : 11/30/2016 9:53 pm

3 hours ago, TrueJustice said:
Sorry are we still on subject of gut health??

Are you talking about Glutamine which is good for gut health or Glutathione which is good for your joints??

Glutamine I could understand might effect mood as serotonin is in the gut. Never heard of Glutathione having an effect in mood or aggression etc?

Disregard what I said.

Its Glucosamine that's for joints not Glutathione.

All these Glu supplements are doing my head in :) 

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50
(@ehohel)

Posted : 12/01/2016 10:21 am

15 hours ago, MonsterDiesel said:

I used NAC too on/off for years. I felt and obvious dopaminergic effect but it never had any effect on testosterone/muscles. It dried my eyes and mouth too much because it also breaks down mucus so I had to stop it.

Glutatione feels different. And then theres the idea that our livers have to make it from nac and they dont function optimally.

I also notice vitamin E seems to synergize with glutathione. I feel a small boost to libido and the combo just makes me feel better.

Ive taken vitamin e alone before and noticed no difference.

Glutathione for the win and forget the nonsense that its not absorbed blah blah. It just isnt true.

Well I just ordered it, going to give it a try with the whole shabang.

Reduced glutathione
NAC
QH + PQQ
TUDCA

Maybe I should add calcium d glucarate while I'm at it lol.

edit: hmmmm low glutathione links to low calcitriol. Perhaps that's the cause of my joint pain? Anyone ever their calcium levels tested?

goddamn read the wiki page on glutathione. So many connections to problems we have. Somehow we gotta figure out what's causing our liver to not synthesis it. I'm going to skip that step for now and see if supplementing it as results first.

http://m.jbc.org/content/280/40/33766.full

https://www.wikigenes.org/e/gene/e/2729.html

http://www.ncbi.nlm.nih.gov/pubmed/14706824

http://www.sciencedirect.com/science/article/pii/S0925443905000517

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(@sacha_n)

Posted : 12/01/2016 12:41 pm

22 hours ago, Umas said:
I am aware of behaviours of some animals(hamsters often eat their poo) and I don't want to argue that poo transplant is bad - because I honestly don't know! It's promissing and it seems that it helps people but I would still say that shoving up your ass poo of someone else is less natural for human that interact with different people, in different places, eat different food etc. Especially when you have symptoms but you know, can live with it. Different situation is when for example you have c.diff or IBD and shit every 30 minutes, then sure poo transplant in that situation seems like incredible safe in comparision to other methods. For myself I am a little bit sceptic. I was thinking about poo transplant but I need more info about it. Not just praises, but how it exactly works(especially in long term) and list of all possible risks and dangers. I had faith in conventional medicine and it f*ck me up, I'm not gonna be reckless ever again. Right now I try to boost my immune system and overall wellbeing. It's almost funny how I am in chronic pain, yet thanks to all suplementations, exercises, meditations etc I no longer get sick at winter times. Before antibiotics for acne that f*ck me up I felt healthy but get sick even 2 times every winter. Now I almost never get sick, and when I get sick I recover much faster than anyone I know, and yet I feel every moment of every day sick and tired. Weird.

I'm thinking the same way that you, after accutane experience I don't really trust doctors and doubt every possible treatment. That's interesting about you never getting sick in winter. This was my case for most of last years too. I never get diarrhea neither. Not sure that's a good thing though, it may be that little sicknesses can be used by our body to get rid of toxins.

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37
(@umas)

Posted : 12/01/2016 2:31 pm

1 hour ago, sacha_n said:
On 30.11.2016 at 8:21 PM, Umas said:
I am aware of behaviours of some animals(hamsters often eat their poo) and I don't want to argue that poo transplant is bad - because I honestly don't know! It's promissing and it seems that it helps people but I would still say that shoving up your ass poo of someone else is less natural for human that interact with different people, in different places, eat different food etc. Especially when you have symptoms but you know, can live with it. Different situation is when for example you have c.diff or IBD and shit every 30 minutes, then sure poo transplant in that situation seems like incredible safe in comparision to other methods. For myself I am a little bit sceptic. I was thinking about poo transplant but I need more info about it. Not just praises, but how it exactly works(especially in long term) and list of all possible risks and dangers. I had faith in conventional medicine and it f*ck me up, I'm not gonna be reckless ever again. Right now I try to boost my immune system and overall wellbeing. It's almost funny how I am in chronic pain, yet thanks to all suplementations, exercises, meditations etc I no longer get sick at winter times. Before antibiotics for acne that f*ck me up I felt healthy but get sick even 2 times every winter. Now I almost never get sick, and when I get sick I recover much faster than anyone I know, and yet I feel every moment of every day sick and tired. Weird.

I'm thinking the same way that you, after accutane experience I don't really trust doctors and doubt every possible treatment. That's interesting about you never getting sick in winter. This was my case for most of last years too. I never get diarrhea neither. Not sure that's a good thing though, it may be that little sicknesses can be used by our body to get rid of toxins.

To be more precise - I sometimes have sore throat in the winter, but in the past ater day-two of sore throat I would be sick for ~7 days(first problems with nose, after that usually coughing), but now after day of sore past I feel next day "normal". I say "normal" because I no longer feel how I should feel. Eh, but hope dies last i quess

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(@abi72)

Posted : 12/01/2016 2:43 pm

20 hours ago, MonsterDiesel said:

Has anyone used straight Reduced Glutathione? I've been using 500 mg for a couple weeks now and it's having a positive effect on Testosterone. I have not measured it yet but I noticed a difference in aggression, assertiveness, and muscularity. Again, there's a return to a certain hardness to my muscles that's been absent since using accutane.

Of all the things I've used, this is actually working. I tried 1 gr but it turns me into an asshole.

All feedback is welcome.

http://www.immunehealthscience.com/glutathione-side-effects.html

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22
(@quietsoldier)

Posted : 12/01/2016 11:41 pm

Anyone with eye problems should definitely be taking Taurine

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223
(@gladiatoro)

Posted : 12/02/2016 6:15 pm

On 2016-11-17 at 5:39 PM, MovingOnMusicGal said:

I realized this ENTIRE time I haven't' been taking enough iodine. As soon as I bumped up my dosage to 25MG (LUGOL's is the best in my opinion), I experienced no joint pain, ZILCH. Been at it for one month. I found this PDF to be very informative and helpful. http://jeffreydachmd.com/wp-content/uploads/2014/03/The-Guide-to-Supplementing-with-Iodine-Stephanie-Burst-ND.pdf Also, since I started methylation protocol, I don't get hangovers. Dehydrated yes, but I used to get MASSIVE hangovers where my head would feel like it was imploding. I am much better hydrated internally now after long-term high dose glutamine, coffee enemas, and homemade bone broth. Those 3 things have cured the dehydration problem. I'm not fiending for water anymore since I think my gut is finally sealed some. I still have yeast overgrowth problems, but they are much more manageable and I can always keep it at bay with supplements and especially turpentine, which just fricken nails it dead after taking it. The fact that it always comes back continues to speak to blocked bile flow/gallbladder issues. I think it also speaks to a defect in the immune system as well. It's not like I eat unhealthfully or treat my body poorly for a 28 year old. The main issue I have now is chronic constipation. Has anyone made any progress in this area? I know the obvious like fiber, magnesium, etc etc. Not what I am looking for, but someone who has something that either cures it or significantly helps? If we have blocked digestion it causes neurological and psychiatric symptoms as well. I'm sure by now most of us know that 70% (possibly more) of serotonin is FORMED in the gut. If things aren't moving or working down there, makes sense that we treat that too, no?

Thanks guys!

Beer works pretty good for constipation in moderation if I drink too much I get other side effects like back pain and dizziness and my eyes are dry and red like fire. I call it chronic systemic dehydration a.k.a isotretinoin.

This sick drug is forcing me to live like some kind of saint.

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0
(@Anonymous)

Posted : 12/04/2016 3:24 pm

Anyone experiment difficulty finding words during a conversation or or feeling diminished cognitive abilities?
Some day I feel like my brain is not totally ative

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50
(@ehohel)

Posted : 12/04/2016 3:36 pm

11 minutes ago, Ruvik said:

Anyone experiment difficulty finding words during a conversation or or feeling diminished cognitive abilities?
Some day I feel like my brain is not totally ative

Uh, everyone here.

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33
(@ihateaccutane)

Posted : 12/04/2016 4:20 pm

1 hour ago, ehohel said:
1 hour ago, Ruvik said:

Anyone experiment difficulty finding words during a conversation or or feeling diminished cognitive abilities?
Some day I feel like my brain is not totally ative

Uh, everyone here.

I have very bad side effects including ED, penile shrinkage, vision problems, tinnitus and all others for almost 3 years.. But no cognitive problems..

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223
(@gladiatoro)

Posted : 12/04/2016 5:13 pm

This damn drug needs to be banned in all its generic versions. The more we learn about its mechanism which literally took me decades the more I realize it's lethality.

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223
(@gladiatoro)

Posted : 12/04/2016 7:10 pm

3 hours ago, Ruvik said:

Anyone experiment difficulty finding words during a conversation or or feeling diminished cognitive abilities?
Some day I feel like my brain is not totally ative

Yeah that is isotretinoin at work.

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39
(@movingonmusicgal)

Posted : 12/04/2016 8:50 pm

Helpful to understand Liver detox pathways. It may be that we need to focus on one more than the other..please read. goes into extreme detail.

http://balancedconcepts.net/liver_phases_detox_paths.pdf

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