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On 10/27/2016 at 1:37 AM, oli girl said:There are a few like my self who developed hyperthyroid, or had similar symptoms but their levels were deemed as normal. Though I agree the majority of Accutane patients develop or have symptoms of hypothyroid. You can try Iodine, In fact I think movingonmusicgal has used a Iodine protocol. As long as you haven't been dx with a autoimmune thyroid disorder then you should be fine to try Iodine.
Is it possible to have symptoms of both hypo and hyperthyroidism from accutane? I feel like I have hypo symptoms and also hyper like flushing and blushing.
14 minutes ago, john86 said:Out of curiosity, how much did they take?I have taken it for stretches of time; I don't at the moment though, mainly to avoid taking unneeded supplements and because I recall reading how excess iodine might have adverse effects over the long-term (including on the thyroid). I thought I may have felt more energetic after taking it, but I can't be sure it wasn't simply the placebo effect at work. I think it's safe to say unfortunately that no natural supplement, whether iodine, Vitamin D, zinc or anything else is the solution to any of this.
They read "Iodine: Why You Need It, Why You Can't Live Without It". It's a book, written by doctor, which has garnered a lot of attention. He claims that 96% of people are iodine deficient. Many are severely deficient. My friends, who just about cleared all cognitive and sexual symptoms with iodine, read this book and highly recommend it to everyone with almost any health problems. They've taken it well over a year now and only praise it. It helped them in other ways as well. There is also research that shows that vitamin a and retinol have some pretty dramatic effects on iodine in the body. This doctor says he has seen thousands of patients and supplemented them all with iodine for a year or more and only 10 had non-detox problems because they had very rare thyroid problems beforehand. I can't say. I agree that iodine isn't a "cure all", but I do feel that it can only help.
I don't have these symptoms anymore, but I have been researching iodine a lot lately. Hopefully it can help with flushing/blushing problems. Waiting for my iodine to arrive here in Myanmar. Hope this helps somebody!
What is the consensus on beta carotene after accutane? Personally, my symptoms get worse with omega-3's. But anything on beta carotene?
If 96% of people are deficient then you most likely are as well... Just because you don't show "serious" symptoms doesn't mean there isn't a serious issue. Y'all have to read the book (or read the many excerpts online). He does a lot of studies and shows that food and iodized salt are nearly impossible to get real iodine from. Saturating the body the way it's supposed to be requires time and supplementation.
What is the consensus on beta carotene after accutane? Does it bring symptoms back or is it okay if it is from natural sources (a really good, natural supplement)?
8 hours ago, helpmeoutbuddies11 said:They read "Iodine: Why You Need It, Why You Can't Live Without It". It's a book, written by doctor, which has garnered a lot of attention. He claims that 96% of people are iodine deficient. Many are severely deficient. My friends, who just about cleared all cognitive and sexual symptoms with iodine, read this book and highly recommend it to everyone with almost any health problems. They've taken it well over a year now and only praise it. It helped them in other ways as well. There is also research that shows that vitamin a and retinol have some pretty dramatic effects on iodine in the body.
Just to clarify, your friends were fellow Accutane sufferers as well, or were they just looking to improve their mental and physical health in general? Also, do you have a link to the studies showing the effects of vitamin A on iodine? (I'm not doubting you, just looking to read more about it.)
For any of you bothered by side effects that a dr won't acknowledge or attribute to anything, I think the best course of action would be to ditch the supplements (besides vitamin d and omega 3) and try the paleo diet, along with exercise. I'm not positive, but I believe accutane can make you intolerant to Foods, such as gluten. The paleo died is a healing diet, and cardio/weight lifting every day is great for mental health. Your body is very good at healing itself, I would stop stressing about what supplements to take, and stop stressing/overthinking about every health problem. Wanna know what is proven to cause hair loss, fatigue, depression, brain fog, and sexual complications? Stress. I'm not underplaying anyone's issues, but anyone who is on this site for more then 10 minutes a day has to be very stressed out about whatever they are experiencing. Unless accutane gave you a disease, stop stressing out so bad, eat healthy, and exercise. When I have a finals, work, and girlfriend problems in the same week, my hair falls out, i get depressed, etc. so when you think about side effects or health issues and become OBSESSED, to the point where you don't think about anything else, your gonna feel like shit!
1 hour ago, john86 said:Just to clarify, your friends were fellow Accutane sufferers as well, or were they just looking to improve their mental and physical health in general? Also, do you have a link to the studies showing the effects of vitamin A on iodine? (I'm not doubting you, just looking to read more about it.)
Yes they were accutane sufferers. http://press.endocrine.org/doi/abs/10.1210/endo-129-6-2827 If you'll keep looking there are a bunch more too! Haven't looked through them too much...
1 hour ago, Mike San said:That's IF 96% are low. I havn't seen support of that. I also havn't seen any evidence that iodised salt doesn't provide one with 'real' iodine, whatever that means.
This guy has studies of thousands of people to prove it. The FDA's standard for iodine is a joke. I'm no doctor, but this guy has thousands of people saying they've been improved. It only provides iodide which is used exclusively by the thyroid. Iodine, which is used in every other cell, is not obtained through salt or just about anything else.
https://www.sciencebasedmedicine.org/the-dow-of-accutane/
just something interesting to read
15 hours ago, JohnSmith21 said:They think it's the long term antibtiocs that most derms REQUIRE before accutane. Some people stay on antibiotics for 5 years, take accutane, and get bowel problems years later, then blame accutane.
Well, I certainly think the multiple rounds of antibiotics patients are on before Accutane can lead to bowel issues. But Accutane has been found to tamper with the microbiome as well, in fact, to a GREATER DEGREE antibiotics do. Personally, I was on Accutane significantly longer than I was on antibiotics.
1 hour ago, JohnSmith21 said:https://www.sciencebasedmedicine.org/the-dow-of-accutane/
just something interesting to read
Quote from the article: "Doesn™t seem to be the kind of data that warrants millions to plaintiffs. To double check, I asked some drug company shills, er, I mean gastroenterologists, what they thought of the data. They were equally underwhelmed."
Yikes, the condescension of the article is utterly unwarranted. Whenever someone is dismissive of lawsuits against Accutane, I politely ask: How else would we have uncovered the systemic coverup by Roche, in which they concealed studies and patient reports that STRONGLY suggested a casual link between Accutane and IBD? Lawsuits are the only recourse us little people have. In terms of whether or not Accutane causes IBD, I am more convinced by studies that look into mechanism of action than I am a few correlational studies, especially if they're mixed! Not to mention, the manufacturer of Accutane themselves, acknowledged a potential link between Accutane and IBD in 1984, but recanted as the drug took off. C'mon! xD
4 hours ago, JohnSmith21 said:Wanna know what is proven to cause hair loss, fatigue, depression, brain fog, and sexual complications? Stress. I'm not underplaying anyone's issues, but anyone who is on this site for more then 10 minutes a day has to be very stressed out about whatever they are experiencing. Unless accutane gave you a disease, stop stressing out so bad, eat healthy, and exercise.
I know you're posting this from a place of compassion. But studies show of mechanism of action in which Accutane can cause some of those issues as well. For example, there are at least 5-6 pathways Accutane acts on that can lead to psychiatric disturbances.
After you listed off those symptoms, you said that unless Accutane gave us a serious disease we should try to lower our stress. I'm not disputing this, because I know you're being genuine. And trying to keep stress in check is always a good idea. 
But I will say post-Accutane, I have experienced IBS (an "official" disease) that has limited my ability to be in new situations or partake in social situations. All that aside, I would still say the brain fog has been 100x worse to deal with even though it isn't necessarily seen as legitimate the same way IBS is. I have done my best to live healthy and reduce stress. It does help, but it doesn't solve the problem unfortunately. That's why I am utterly obsessed with trying drastic interventions (supplements, medications to deal with my mental state, etc.). My symptoms are what gave me this stress in the first place. All I have to do is reflect on the research and my timeline.
17 minutes ago, ACCUiTy_drANE said:Well, I certainly think the multiple rounds of antibiotics patients are on before Accutane can lead to bowel issues. But Accutane has been found to tamper with the microbiome as well, in fact, to a GREATER DEGREE antibiotics do. Personally, I was on Accutane significantly longer than I was on antibiotics.
Quote from the article: "Doesn™t seem to be the kind of data that warrants millions to plaintiffs. To double check, I asked some drug company shills, er, I mean gastroenterologists, what they thought of the data. They were equally underwhelmed."Yikes, the condescension of the article is utterly unwarranted. Whenever someone is dismissive of lawsuits against Accutane, I politely ask: How else would we have uncovered the systemic coverup by Roche, in which they concealed studies and patient reports that STRONGLY suggested a casual link between Accutane and IBD? Lawsuits are the only recourse us little people have. In terms of whether or not Accutane causes IBD, I am more convinced by studies that look into mechanism of action than I am a few correlational studies, especially if they're mixed! Not to mention, the manufacturer of Accutane themselves, acknowledged a potential link between Accutane and IBD in 1984, but recanted as the drug took off. C'mon! xD
I know you're posting this from a place of compassion. But studies show of mechanism of action in which Accutane can cause some of those issues as well. For example, there are at least 5-6 pathways Accutane acts on that can lead to psychiatric disturbances.
After you listed off those symptoms, you said that unless Accutane gave us a serious disease we should try to lower our stress. I'm not disputing this, because I know you're being genuine. And trying to keep stress in check is always a good idea.
Yes definitely not being an asshole when I say any funny this! And this, amongst other studies that over 15 million got prescribed accutane per year and that's not counting the generic prescriptions, so the amount is most likely about 30 Million a year! The correlation between accutane and IBD is .01, which can very much be coincidental! Did you know there is a website that shows correlations between things that have nothing to with each other, to prove that phenomenon. For example, "people who consume more ice cream tend to get into more car accidents". It's just a coincidence! Stress is a PROVEN cause of IBD. Wanna know what kind of people often have high stress? Those with severe enough acne to warrant accutane (who most likely took long term antibiotics). Also, this study amongst others, in addition to my derm, say there is NO increased risk of chrones disease. However, a very small correlation to UC. But again, young people are the demographic who get diagnosed with UC, young people also are the demographic that take accutane. 30 million people use accutane or a generic version per year, and 400,000 people are diagnosed with IBD per year. Amongst those people less then 1% had taken accutane. I'm not defending the drug, but someone needs to play devils advocate. Also, isn't IBS different? That isn't often permanent a lot of people experience IBS at some point or another
2 hours ago, JohnSmith21 said:https://www.sciencebasedmedicine.org/the-dow-of-accutane/just something interesting to read
I know what you are doing. You took accutane 2 times, and thinking about third time, so you want to convince YOURSELF that it was a good thing to try accutane, and you want to believe that even if you try it again nothing bad wil happen.
20 minutes ago, Umas said:I know what you are doing. You took accutane 2 times, and thinking about third time, so you want to convince YOURSELF that it was a good thing to try accutane, and you want to believe that even if you try it again nothing bad wil happen.
No not at all Jesus everyone on this site is so sensitive. I'm still on the fence about it, not trying to convince myself of anything. I took two rounds and only had dry skin/joint pain, which stopped when I came off. If I was trying to convince myself I wouldn't read about all these horror stories .
8 minutes ago, JohnSmith21 said:30 minutes ago, Umas said:I know what you are doing. You took accutane 2 times, and thinking about third time, so you want to convince YOURSELF that it was a good thing to try accutane, and you want to believe that even if you try it again nothing bad wil happen.No not at all Jesus everyone on this site is so sensitive. I'm still on the fence about it, not trying to convince myself of anything. I took two rounds and only had dry skin/joint pain, which stopped when I came off. If I was trying to convince myself I wouldn't read about all these horror stories .
Actually I'm not sensitive. That was just my impresion. You asked on forum what people think about third round of accutane and then you post in this topic(which contains huge amount of information how bad accutane really is) things like link that tries to debunk accutane-IBD causation. So your action suggest that yea, you want to hear about accutane but good stuff, not the bad. Even here in topic named "Repairing the long-term damage from Accutane" you posted link I mentioned before. And that again suggest that you not really want to hear about bad stuff. You did already two rounds of accutane and here you have BIG RED FLAG in form of huge thread about dangers of accutane. My advice? If you have so severe acne that it prevents you from living then yes take accutane again but at least in very low dose. If you have normal mild, moderate or evedn moderate-severe acne then stay away because if accutane would be meant to cure you acne it would do at first or second time.
11 minutes ago, Umas said:Actually I'm not sensitive. That was just my impresion. You asked on forum what people think about third round of accutane and then you post in this topic(which contains huge amount of information how bad accutane really is) things like link that tries to debunk accutane-IBD causation. So your action suggest that yea, you want to hear about accutane but good stuff, not the bad. Even here in topic named "Repairing the long-term damage from Accutane" you posted link I mentioned before. And that again suggest that you not really want to hear about bad stuff. You did already two rounds of accutane and here you have BIG RED FLAG in form of huge thread about dangers of accutane. My advice? If you have so severe acne that it prevents you from living then yes take accutane again but at least in very low dose. If you have normal mild, moderate or evedn moderate-severe acne then stay away because if accutane would be meant to cure you acne it would do at first or second time.
Honestly my acne is very mild at this point, just perisistent
1 minute ago, JohnSmith21 said:13 minutes ago, Umas said:Actually I'm not sensitive. That was just my impresion. You asked on forum what people think about third round of accutane and then you post in this topic(which contains huge amount of information how bad accutane really is) things like link that tries to debunk accutane-IBD causation. So your action suggest that yea, you want to hear about accutane but good stuff, not the bad. Even here in topic named "Repairing the long-term damage from Accutane" you posted link I mentioned before. And that again suggest that you not really want to hear about bad stuff. You did already two rounds of accutane and here you have BIG RED FLAG in form of huge thread about dangers of accutane. My advice? If you have so severe acne that it prevents you from living then yes take accutane again but at least in very low dose. If you have normal mild, moderate or evedn moderate-severe acne then stay away because if accutane would be meant to cure you acne it would do at first or second time.Honestly my acne is very mild at this point, just perisistent
Then accutane wasn;t even created for cases like yours. How often do you change pillow cases? Is your acne on specific region on you face or all over? Do you touch often your face? What products you use on your face? Look answers for those question, besides very mild acne is pretty much nothing, many people have mild acne and just don't care. In your situation accutane can help you(altough is unlikely because two times it didn't work) or/and create a much much bigger problems. As would mr Spock say it's not logical. Indeed it's not logical to try accutane again in your situation.
2 hours ago, JohnSmith21 said:Also, this study amongst others, in addition to my derm, say there is NO increased risk of chrones disease. However, a very small correlation to UC. But again, young people are the demographic who get diagnosed with UC, young people also are the demographic that take accutane. 30 million people use accutane or a generic version per year, and 400,000 people are diagnosed with IBD per year. Amongst those people less then 1% had taken accutane. I'm not defending the drug, but someone needs to play devils advocate. Also, isn't IBS different? That isn't often permanent a lot of people experience IBS at some point or another
Edit: My cigarette example was included to make a point about experimental research and ethics. It's not to say the link between Accutane and IBD is as STRONG as cigarettes and lung cancer. You're missing the point.
20 minutes ago, ACCUiTy_drANE said:Studies that look at mechanism of action (MoA) are more useful than studies that look for a correlation between a drug and subsequent diagnosis. In addition to being more concrete, the results of MoA studies can be referenced to a broad array of research. For example, we know (experimental study) Accutane erodes the intestinal lining of mice. We know, from years of prior research in the field of gastroenterology, a possible consequence of this effect (i.e., IBD). That's because intestinal-lining erosion has been studied from multiple perspectives in the past. This applies to the studies that examine a MoA for Accutane causing depression as well. For example, we know (experimental study) Accutane can decrease the volume of the hippocampus, and years of research in the field of psychiatry show that this specific effect (regardless of cause) is a trigger for depression. These specific diseases have certain, well-established pathways. So basically, for the purposes of this discussion, the implications of MoA research inherently relies on years of scientific knowledge attained through myriad experimental and correlation studies. That's why I like it. It's more thorough than rushing ahead to looking at diagnosis rates.If we do conduct research that simply looks at the connection between taking Accutane and an IBD diagnosis, we are looking at two factors divorced from an appropriate context. And you're right. Even if a correlation is found, a correlation can mean many things. That's why we have to look at the full picture. Correlational research has its place (we have to start SOMEWHERE), but the results have to be looked at in the context of other studies done (e.g, MoA studies,quasiexperimental studies like the antibiotic study, effects of similar drugs, etc.). Definitive "proof" of any substance causing a condition in HUMANS is impossible due to the ethical concerns of designing a truly experimental study. See: Cigarettes and lung cancer in humans. No proof of cause.
Yes but the percent of people who get lung cancer, and the percent of smokers who get lung cancer are extremely high. I mean there are side effects from Advil that happen at less then 1% that can kill you, and I personally know someone who died of rye's syndrome (that 1% side effect of Advil).
1 hour ago, Gladiatoro said:
Just remember folks - as soon as you start looking at prescription medicine everything comes with its own list of side effects.
But we're fucked cause supplements don't work so what choice do we have but to look at more drugs to get us out of this mess!
Thanks for posting - I may have to look at some of that stuff for brain fog - my career is at stake if I don't too!!!
2 hours ago, TrueJustice said:Just remember folks - as soon as you start looking at prescription medicine everything comes with its own list of side effects.But we're fucked cause supplements don't work so what choice do we have but to look at more drugs to get us out of this mess!
Thanks for posting - I may have to look at some of that stuff for brain fog - my career is at stake if I don't too!!!
???
Advil is OTC.
Yet there is prescription ibuprofen.
Doesn't make it any different.
2 hours ago, ehohel said:???Advil is OTC.
Yet there is prescription ibuprofen.
Doesn't make it any different.
What???
Hydergine is a drug vs supplement isn't it?
Some of the other things mentioned I've never heard so I'd have to look up. Cucumin is an easy supplement to get that they mention.
Sounds like a mixture of both supplements & drugs were mentioned.
On 10/26/2016 at 2:42 AM, helpmeoutbuddies11 said:Does anyone know if thyroid problems could be related to accutane induced rosacea/flushing/blushing? Could iodide help that side effect at all?
Hi,
You could try using a daily regimen of washing your face with a sulphur soap (make sure to pick one with good reviews/ingredients, I use 'keep it clean' a 10% sulphur soap) and afterwards moisturize with unrefined raw shea butter.
After accutane one of the problems I developed was progressively worsening rosacea and dermatitis on my face and scalp. For a long time I was able to keep it at bay using a carrier oil combined with oregano oil, I used this combination to kill the bacteria/fungi on my face that was part of the problem, but eventually the bacteria/fungi seemingly adapted and this was no longer effective. The sulphur/shea butter combination has been working for around 2years with no signs of diminished effectiveness.
I theorize that, in my case at least, there is some kind of autoimmune response going on. This is because the dermatitis would be worse if I consumed a trigger food such as milk. Likely my immune system was attacking the bacteria/fungi on my face whilst going after milk protein that had passed through my gut barrier into the blood stream.
I suffer from bacterial/fungal issues in other areas too but feel these are nearly resolved due to extensive work on my gut health, I say nearly as I have slipped at times and had the issues come back so the job cannot be finished.
To briefly address your mention of iodine in relation to facial flushing, I did 'the iodine protocol' for quite some time and it offered me no relief in that regard.
Perhaps your symptoms are too different to mine for my suggestion to be useful but I hope it helps you find some relief.
I have followed this thread for some years now and appreciate all of your relentless efforts in the face of such difficult struggles. Due to anxiety issues I find it difficult to talk in public forums but hope to be able to one day contribute something helpful from extensive self testing, as of now this is still a work in progress. I wish the best for all of you.