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53 minutes ago, helpmeoutbuddies11 said:Does anyone know if thyroid problems could be related to accutane induced rosacea/flushing/blushing? Could iodide help that side effect at all?
Yes, Hyper thyroid can cause blushing and flushing. Have you looked through the thread link I posted for you. Have you had any labs, taking any supplements etc.
2 hours ago, ACCUiTy_drANE said:Yep, comprehension has always been a big problem of mine. I remember when I first got off Accutane, I tried to watch a popular movie at a theater and did not catch a single aspect of the plot. It was utterly nonsensical to me. My friend tried to talk about the movie with me but I had NOTHING to say. I honestly think these cognitive issues are the underlying reason for my anhedonia/depression. If I cannot focus or feel immersed in any form of entertainment, it's hard to look forward to a day off. Or the release of a new movie/video game/book. I think this problem directly effects any form of work I do as well. My brain never aligns, or calibrates, with the task I am doing. So I'm left feeling foggy headed all the time. It's the best way I can describe it, man.
Wow, I definitely relate to all of this, as I've experienced all the same issues.... It's like your mind doesn't react to particular stimuli in the normal way anymore, and you can't simply direct your mind to focus on anything. By the way, have you ever tried pregnenolone by any chance?
12 hours ago, oli girl said:13 hours ago, helpmeoutbuddies11 said:Does anyone know if thyroid problems could be related to accutane induced rosacea/flushing/blushing? Could iodide help that side effect at all?
Yes, Hyper thyroid can cause blushing and flushing. Have you looked through the thread link I posted for you. Have you had any labs, taking any supplements etc.
I heard that accutane use isn't related to hyperthyroidism, though, just hypothyroidism. Yes I read through most of it. Haven't had labs. I've been living in Myanmar for a while and in a place where hospitals pretty much don't exist. Will return to the states in december. Is iodine worth a shot?
There are a few like my self who developed hyperthyroid, or had similar symptoms but their levels were deemed as normal. Though I agree the majority of Accutane patients develop or have symptoms of hypothyroid. You can try Iodine, In fact I think movingonmusicgal has used a Iodine protocol. As long as you haven't been dx with a autoimmune thyroid disorder then you should be fine to try Iodine.
17 hours ago, ACCUiTy_drANE said:I have only been on it for 1.5 months. My current regimen includes Lion's Mane, Tianeptine, Agmatine, Fish Oil, and Vitamin D. It's hard to say what is helping. But Lion's Mane is something you must be on for a very long time to see results. My stack as a whole has helped my irritability and I have started to have some days where I feel grounded. In terms of memory, I believe it has improved, but comprehension has traditionally been a bigger issue than memory for me.I started this medicinal mushroom because it may help with myelin sheath repair. And considering Accutane is a 5-Alpha Reductase Inhibitor (and therefore causes downregulation of neurosteroids) as well as a chemotherapy drug, that's two ways myelin sheath potentially could have been damaged.
Word of caution: Please be sure you bought it from a vendor who does purity testing. It is VERY common for vendors to take shortcuts with medicinal mushrooms. They grow mycelium (the "root" of the mushroom) in rice and mix it together prior to the ACTUAL fruiting body (i.e., mushroom) fully developing. A truly reliable vendor will be able to tell you how much active ²-Glucans the extract contains. I would bet much of the Lion's Mane on the market is bunk.
Hopefully I'm wrong though.
Yep, comprehension has always been a big problem of mine. I remember when I first got off Accutane, I tried to watch a popular movie at a theater and did not catch a single aspect of the plot. It was utterly nonsensical to me. My friend tried to talk about the movie with me but I had NOTHING to say. I honestly think these cognitive issues are the underlying reason for my anhedonia/depression. If I cannot focus or feel immersed in any form of entertainment, it's hard to look forward to a day off. Or the release of a new movie/video game/book. I think this problem directly affects any form of work I do as well. My brain never aligns, or calibrates, with the task I am doing. So I'm left feeling foggy headed all the time. It's the best way I can describe it, man.
Thanks for taking the time to reply. I've seen an instant improvement in concentration and motivation with inosine 500 mg once a day. It's supposed to improve your cognitive functions and motivation which it has for me. However, my memory still needs improvement. I'll stay on Lion's Mane for a few months and I'll report on improvements. I've used it before, years ago, and do remember it helped a little.
22 hours ago, john86 said:Wow, I definitely relate to all of this, as I've experienced all the same issues.... It's like your mind doesn't react to particular stimuli in the normal way anymore, and you can't simply direct your mind to focus on anything. By the way, have you ever tried pregnenolone by any chance?
I haven't tried it. It seems likepregnenolone SHOULD be useful. It's the myelin-protecting neurosteroid that 5ARI drugs (like Accutane and Finasteride) seem capable of inhibiting, right? I haven't gone out of my way to read anecdotes about people using pregnenolone on PropeciaHelp. It may benefit me, but I'm not sure where to begin with my hormone profile. I have clinically undetectable levels of cholesterol and low-normal testosterone.
Pregnenolone seems like a safe enough hormone to try down the line. That being said, I'm a long way away from trying any estrogen blockers, as many have (though I sympathize). For instance, this article discusses how cognitive impairment presumed to be caused from chemotherapy drugs may often actually be due to the hormonal therapies also used to treat cancer. A lot of research on chemo brain is conducted on breast cancer survivors, so it's hard to extrapolate to our situation. BUT, we know Accutane seems to have apoptotic effects and hormonal effects (albeit different from breast cancer drugs).
So the above research probably has zero connection to Accutane. However, it tells me that playing with estrogen levels (in an attempt to undo hormonal disturbances from Accutane) could have enduring cognitive consequences if done long-term or incorrectly. So I'm reluctant to tamper with that until other avenues have been exhausted first. I need to savor any cognition I have left! If anyone else has insight on this, chime in!
its a infection. Its not candida or yeast infection. its a bacterial infection. its possibly a type ofspirochete.its capable of hiding from the immune system to live in harmony with the body. Its a spiral shape thats capable of invading any soft tissue it feels like, including the brain. I would not be taking any supplements at all thinking their is some deficiency. The bacteria feed off these supplements and are capable of stealing nutrients from the body. Zinc and vitamin k2 I last mentioned are especially dangerous when it comes to feeding numerous types of bacteria. They can create what could be a minor annoyance, into something much more serious. If you want to get any test I would look into getting a Western blot blood test. This might reveal a ongoing chronic infection that our bodies are producing antibodies to. This not only test for Lyme but can detect other spirochete based bacterial infections.
Speaking of lyme look that shit up and all its side effects. Very, Very similar. Just a example of what a bacterial infection is capable of doing.
It can suck the life out of people, and break your body down from the inside out.
1 hour ago, guitarman01 said:its a infection. Its not candida or yeast infection. its a bacterial infection. its possibly a type ofspirochete.its capable of hiding from the immune system to live in harmony with the body. Its a spiral shape thats capable of invading any soft tissue it feels like, including the brain. I would not be taking any supplements at all thinking their is some deficiency. The bacteria feed off these supplements and are capable of stealing nutrients from the body. Zinc and vitamin k2 I last mentioned are especially dangerous when it comes to feeding numerous types of bacteria. They can create what could be a minor annoyance, into something much more serious. If you want to get any test I would look into getting a Western blot blood test. This might reveal a ongoing chronic infection that our bodies are producing antibodies to. This not only test for Lyme but can detect other spirochete based bacterial infections.
Speaking of lyme look that shit up and all its side effects. Very, Very similar. Just a example of what a bacterial infection is capable of doing.
It can suck the life out of people, and break your body down from the inside out.
An infection brought on by Accutanes ability to wreak havoc on gut health right?? Destroysthe Villi I reckon. I'm on Rifaximin and Vancomycin right now but haven't noticed anything major - I'm well into the course that Gastro doctor has put me on, definitely less stomache aches but absolutely no change to energy levels, in fact I'm so drained right now which is why I want LDN.
anyway, I continue to keep the supplement industry alive even though nothing really works - guess I need some placebos every couple of week. Is iodine safe to take, thought I'd ask??
Next for me with gut health will be a "Poo transplant" - I won't be taking anyone's on this forum though you'll be relieved to know : )
Acute or subacute bacterial or viral infections are unlikely as our problems duration has been several years or more. We also lack the accompanying symptoms of fever, night sweats, and chills that follow infections. So, please stop posting this with absolute certainty as people who have issues will start to believe this and people who are knowledgeable in medicine will think we are ambulance chasers.
Chronic infectious disorders or fungal problems should be considered, but only to rule them out in your mind. So I agree with getting those tests, just to rule them out. But again, the duration of our problems, it's very unlikely.
More likely than not it's an autoimmune/inflammatory disorder...at least that's more plausible.
Also, who are you responding to? Did you just post this just because? It's your first post since August...
Isotretinoin induces brain impairment FACT. Allopathic medicine calls it CHEMO BRAIN , I call it poison , in my opinion this drug needs to be pulled off the market along with the rest of the poisons pHARMa sells .
In reality allpathic inc has killed / maimed more people than ALL the wars combined FACT. Again I tell people to go to natural news. com to find true healing.
I have suspected spirochete or chlamydia pneumoniae infection too. Many people have dormant CPN infection. Maybe accutane pushes it from lungs to other parts of the body? Sometimes when I took supplements I initially felt better, but later experienced new symptoms like weakness, fever or night sweats. Also my basal temperature is low, about 35.8, maybe this way the body tries to prevent bacteria to multiply? Hope it's not though, having chronic infection scares me as sh*t
On 10/26/2016 at 5:25 AM, john86 said:Wow, I definitely relate to all of this, as I've experienced all the same issues.... It's like your mind doesn't react to particular stimuli in the normal way anymore, and you can't simply direct your mind to focus on anything. By the way, have you ever tried pregnenolone by any chance?
Has ANYONE tried pregnenolone?
My order of NSI189 arrived. I'm hopeful!
1 hour ago, hatetane said:On 2016-10-25 at 9:25 PM, john86 said:Wow, I definitely relate to all of this, as I've experienced all the same issues.... It's like your mind doesn't react to particular stimuli in the normal way anymore, and you can't simply direct your mind to focus on anything. By the way, have you ever tried pregnenolone by any chance?Has ANYONE tried pregnenolone?
Try intermittent fasting no more than 24 hours though.
9 hours ago, Gladiatoro said:Isotretinoin induces brain impairment FACT. Allopathic medicine calls it CHEMO BRAIN , I call it poison , in my opinion this drug needs to be pulled off the market along with the rest of the poisons pHARMa sells .
In reality allpathic inc has killed / maimed more people than ALL the wars combined FACT. Again I tell people to go to natural news. com to find true healing.
Can you elaborate more on the natural path for healing pls!??
After nearly 20 years of hell of trying to find a cure I'm open to Anything that will lead me there, if it's an antibiotic treatment that I need so be it I'll take it, if it's a Poo transplant to heal my gut I'll take it, if I need Iodine bring it on, I really don't have a clue though at this stage?
Id love to know that the natural path can lead us out of this misery but who has done this successfully to date?? As it turns out I should of gone down the natural path 20 years ago to treat my acne back in the day - that way I would of had a life over the last 2 decades and not missed out on the best parts of my 20's, 30's & now 40's fighting all this shit.
In by case I'm open to all sides of medicine to get us out of this mess!!
johnsmith121- yes it can cause folliculitis, Accutane is known to lower the immune system, slow wound healing, harbor more bacteria etc. I would advise you to think real hard about taking a third course of Accutane, even 1 course is playing Russian roulette with your health.
1 hour ago, oli girl said:johnsmith121- yes it can cause folliculitis, Accutane is known to lower the immune system, slow wound healing, harbor more bacteria etc. I would advise you to think real hard about taking a third course of Accutane, even 1 course is playing Russian roulette with your health.
This drug is definitely nothing to mess around with, however there are some things that come to play where u can play devils advocate. For example, recently they are finding that accutane might to be as linked to bowel disease as once thought. They think it's the long term antibtiocs that most derms REQUIRE before accutane. Some people stay on antibiotics for 5 years, take accutane, and get bowel problems years later, then blame accutane.
12 hours ago, ACCUiTy_drANE said:I haven't tried it. It seems likepregnenolone SHOULD be useful. It's the myelin-protecting neurosteroid that 5ARI drugs (like Accutane and Finasteride) seem capable of inhibiting, right? I haven't gone out of my way to read anecdotes about people using pregnenolone on PropeciaHelp. It may benefit me, but I'm not sure where to begin with my hormone profile. I have clinically undetectable levels of cholesterol and low-normal testosterone.
My understanding is that it's both a neurosteroid in its own right as well as a precursor that your body converts into a number of other hormones, including testosterone and estrogens, amongst other substances. I thought I'd mention it because I tried experimenting with it a while back, and the first time I took it or so most of the post-Accutane brain fog and anhedonia disappeared for a while. Unfortunately this effect stopped pretty soon after I first took it. I don't recommend trying it, since as you suggest, it's probably not a good idea to mess with hormones like that without medical supervision or at least proper precautions. The temporary relief was quite remarkable, however, so I was mainly curious if anyone else had tried it or anything similar.
1 hour ago, JohnSmith21 said:2 hours ago, oli girl said:johnsmith121- yes it can cause folliculitis, Accutane is known to lower the immune system, slow wound healing, harbor more bacteria etc. I would advise you to think real hard about taking a third course of Accutane, even 1 course is playing Russian roulette with your health.
This drug is definitely nothing to mess around with, however there are some things that come to play where u can play devils advocate. For example, recently they are finding that accutane might to be as linked to bowel disease as once thought. They think it's the long term antibtiocs that most derms REQUIRE before accutane. Some people stay on antibiotics for 5 years, take accutane, and get bowel problems years later, then blame accutane.
That may be true, but I never once took antobiotics before accutane. Nine months to a year or so after accutane and boom! some serious bowel problems come out of seemingly nowhere. Of course, five years of antibiotics would mess your insides up. I digress...
For those of you with sexual problems and brain fog: Has anyone looked into serious iodine supplementation? I have two buddies who had those problems after accutane for a few years and they started doing some real iodine supplementation for about a year or so and they're just about all fixed up! I had all that but it went away on it's own. I am now left with severely dry eyes, severely dry face, stomach problems (mostly fixed thanks to diet and kefir) and facial redness with some pretty bad flushing/blushing (can't figure this one out). I came across this iodine thing while talking to my buddies and wondered if it could also help calm thyroid and immune system and help flushing/blushing. BTW, iodine is used by every single cell in the body and is known to help cognitive function and sexual problems. Sorry if this has already been discussed at length!
On 10/25/2016 at 8:58 PM, ACCUiTy_drANE said:I started this medicinal mushroom because it may help with myelin sheath repair. And considering Accutane is a 5-Alpha Reductase Inhibitor (and therefore causes downregulation of neurosteroids) as well as a chemotherapy drug, that's two waysmyelin sheath potentially could have been damaged.
Have you had an MRI or otherwise been tested for demyelination?
6 minutes ago, helpmeoutbuddies11 said:That may be true, but I never once took antobiotics before accutane. Nine months to a year or so after accutane and boom! some serious bowel problems come out of seemingly nowhere. Of course, five years of antibiotics would mess your insides up. I digress...For those of you with sexual problems and brain fog: Has anyone looked into serious iodine supplementation? I have two buddies who had those problems after accutane for a few years and they started doing some real iodine supplementation for about a year or so and they're just about all fixed up! I had all that but it went away on it's own. I am now left with severely dry eyes, severely dry face, stomach problems (mostly fixed thanks to diet and kefir) and facial redness with some pretty bad flushing/blushing (can't figure this one out). I came across this iodine thing while talking to my buddies and wondered if it could also help calm thyroid and immune system and help flushing/blushing. BTW, iodine is used by every single cell in the body and is known to help cognitive function and sexual problems. Sorry if this has already been discussed at length!
Out of curiosity, how much did they take?
I have taken it for stretches of time; I don't at the moment though, mainly to avoid taking unneeded supplements and because I recall reading how excess iodine might have adverse effects over the long-term (including on the thyroid). I thought I may have felt more energetic after taking it, but I can't be sure it wasn't simply the placebo effect at work. I think it's safe to say unfortunately that no natural supplement, whether iodine, Vitamin D, zinc or anything else is the solution to any of this.