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10 hours ago, TrueJustice said:Why's that??If your list of complications isn't as long as others consider yourself lucky!!
That's an insensitive comment with all that people are going through - did you put much thought into it?
Friend you 're wrong , I'm very poisoned by accutane , my life is destroyed like others guys . But this thread to almost 10000 message repeats the same things cyclically , many give false hope with quack remedies...
2 hours ago, Ruvik said:Friend you 're wrong , I'm very poisoned by accutane , my life is destroyed like others guys . But this thread to almost 10000 message repeats the same things cyclically , many give false hope with quack remedies...
and half of those posts are people bitching and moaning like yourself... offering nothing.
get tested, post results, or be quiet.
3 hours ago, Ruvik said:Friend you 're wrong , I'm very poisoned by accutane , my life is destroyed like others guys . But this thread to almost 10000 message repeats the same things cyclically , many give false hope with quack remedies...
This isn't a safe place for people who don't believe in magic.
3 hours ago, Ruvik said:Friend you 're wrong , I'm very poisoned by accutane , my life is destroyed like others guys . But this thread to almost 10000 message repeats the same things cyclically , many give false hope with quack remedies...
Mate I know facing Accutane problems sucks but never blame the thread, people are just trying to post results and give some feedback. If it weren't for forum there'd be nowhere else to gather information etc. Sometimes I like to winge too but I also try to offer up some results from tests etc. If we are going to get anywhere as a group we need to do more tests and start connecting the dots so to speak.
I'm not sure if this is helpful or not but with my reflux problem it can be linked to "Histamine" levels. This is something I didn't know 2 days ago. Histamine levels have been discussed before by others so I'm going to get some tests, just thought I should share that.
The medication recommended by the specialist to reduce reflux is called "Pariet". Hope it doesn't come with side effects but I'm not willing to allow reflux to continue burning my Oesophagus.
I will also be looking at getting into fermented foods - there have been some good reports on here from people eating fermented foods - it's time I started doing the same, can only be a good thing for improving stomach health 
10 hours ago, tryingtohelp2014 said:April test .June test
ceruloplasmin 17.3 .............18.9
copper ..........75..................78
nice job. you just raised your free unbound copper from 19 to 21.3. reference range is 10-15.
and where is this medical reference you keep quoting that if you raise your ceruloplasmin in a couple days by supplementing with copper you are copper deficient?
Ceruloplasmin responds to acute inflammation.
your body already has a problem with copper.
you take more copper.
you increase inflammation, hence it might temporality raise your ceruloplasmin level in response to this.(its false)
You want to really find out about copper, you quit taking the 20 other supplements your taking along with it and you continue to take that 4mg copper per day so you know wtf its doing. Until then you dont.
3 hours ago, TrueJustice said:Mate I know facing Accutane problems sucks but never blame the thread, people are just trying to post results and give some feedback. If it weren't for forum there'd be nowhere else to gather information etc. Sometimes I like to winge too but I also try to offer up some results from tests etc. If we are going to get anywhere as a group we need to do more tests and start connecting the dots so to speak.I'm not sure if this is helpful or not but with my reflux problem it can be linked to "Histamine" levels. This is something I didn't know 2 days ago. Histamine levels have been discussed before by others so I'm going to get some tests, just thought I should share that.
The medication recommended by the specialist to reduce reflux is called "Pariet". Hope it doesn't come with side effects but I'm not willing to allow reflux to continue burning my Oesophagus.
I will also be looking at getting into fermented foods - there have been some good reports on here from people eating fermented foods - it's time I started doing the same, can only be a good thing for improving stomach health
Apple Cider Vinegar is spouse to help with acid reflux also I believe!
5 hours ago, anonyy said:your reflux issue is just indigestion, from weak stomach, liver, pancreas & nervous system/adrenals (always the same ofc). if you eat meat it will be worse. had it for some times, an infernal loop.
True!!
How is your vitality these days - how's the strength in your body??
I sense that many peoples frustrations post Accutane is the fact that you have to address mutipble problems simultaneously.
You can't just strengthen the Liver, at the same time you have to work on gut health. On top of that you've got to address adrenals and lymphatic system - no doubt it's a mine field.
That YouTube link sent the other day discussing Oxygen therapy sounds promising - the part where they discussed Depresdion and that most people don't respond to medication. Moving away from relying on medication or supplements it sounds interesting, the Oxygen therapy addresses issues at a very deep level - I'm going to look into it!!
anonyy and others have stressed the importance of physiology and great diet - this is resonating with me as being the truth, foundation has got to be a healthy diet ahead of chucking down supplement after supplement.
If you've been dealing with health issues after Accutane it stands to reason that it's taken its toll on your mental health, it certainly has on mine. I will NOT go on antidepressants though - that's why I'm keen to look at Oxygen therapy whilst I slowly do the detoxing and diet adjustments.
Blood tests along the way coupled with some examinations can't hurt either ( colon/ gut examination for example ) At 40 I would probably do these anyway as I'd like to know everything is functioning properly....or not
I will lay off the red meat for sure - thx anonyy
@TrueJusticeYea, I think its a great conservative way to relieve inflammation and increase the healing process which we know lacks after Accutane for whatever reason. Hb0t is backed by real science and proven effective. Coupled with diet change and moderate exercise, it can go a long way.
Digestive enzymes and some supplements have worked for me to keep bile flow ideal and maintain homeostasis throughout the body. I will say that tendonitis is hard to treat with just supplements. But, for the most part diet and exercise is the key. It's no secret that particular foods and spices have beneficial capabilities within the human body (It's not magic or quackery, it's just how it is) Whether it's papaya for digestion or tumeric for inflammation...I mean this is the universe we live in.
I think most of the posts in this thread are very logical and a great way to get the body back on track and hopefully to even better levels one day. I have read other users who post the same and feel the same way as me, so I don't know why some on here are saying our posts are useless.
http://www.protocol-online.org/forums/uploads/monthly_08_2010/msg-19273-027408800 1282061244.ipb
opinion?
22 hours ago, oli girl said:On 29/06/2016 at 9:52 AM, TrueJustice said:Mate I know facing Accutane problems sucks but never blame the thread, people are just trying to post results and give some feedback. If it weren't for forum there'd be nowhere else to gather information etc. Sometimes I like to winge too but I also try to offer up some results from tests etc. If we are going to get anywhere as a group we need to do more tests and start connecting the dots so to speak.I'm not sure if this is helpful or not but with my reflux problem it can be linked to "Histamine" levels. This is something I didn't know 2 days ago. Histamine levels have been discussed before by others so I'm going to get some tests, just thought I should share that.
The medication recommended by the specialist to reduce reflux is called "Pariet". Hope it doesn't come with side effects but I'm not willing to allow reflux to continue burning my Oesophagus.
I will also be looking at getting into fermented foods - there have been some good reports on here from people eating fermented foods - it's time I started doing the same, can only be a good thing for improving stomach health
Apple Cider Vinegar is spouse to help with acid reflux also I believe!
Oil girl, how did you stop your post accutane flushing? I have been off of it for a while and still flush?
On 29 June 2016 at 11:57 AM, oli girl said:On 29 June 2016 at 7:52 AM, TrueJustice said:Mate I know facing Accutane problems sucks but never blame the thread, people are just trying to post results and give some feedback. If it weren't for forum there'd be nowhere else to gather information etc. Sometimes I like to winge too but I also try to offer up some results from tests etc. If we are going to get anywhere as a group we need to do more tests and start connecting the dots so to speak.I'm not sure if this is helpful or not but with my reflux problem it can be linked to "Histamine" levels. This is something I didn't know 2 days ago. Histamine levels have been discussed before by others so I'm going to get some tests, just thought I should share that.
The medication recommended by the specialist to reduce reflux is called "Pariet". Hope it doesn't come with side effects but I'm not willing to allow reflux to continue burning my Oesophagus.
I will also be looking at getting into fermented foods - there have been some good reports on here from people eating fermented foods - it's time I started doing the same, can only be a good thing for improving stomach health
Apple Cider Vinegar is spouse to help with acid reflux also I believe!
Thanks for info - I'm currently taking Swedish Bitters which prob does the same thing in aiding stomach.
Does anyone know which type of Specialist deals with "Auto Immune" diseases??
This might be my next line of investigating. It's been quite a week fitting in Colonoscopy and Gastropothy, finally getting those copper blood tests done tomorrow too, plus trying to hold down a full time job in a state of fatigue....
5 minutes ago, TrueJustice said:Thanks for info - I'm currently taking Swedish Bitters which prob does the same thing in aiding stomach.Does anyone know which type of Specialist deals with "Auto Immune" diseases??
This might be my next line of investigating. It's been quite a week fitting in Colonoscopy and Gastropothy, finally getting those copper blood tests done tomorrow too, plus trying to hold down a full time job in a state of fatigue....
Rhumetologist
7 hours ago, Ruvik said:http://www.protocol-online.org/forums/uploads/monthly_08_2010/msg-19273-027408800 1282061244.ipbopinion?
I mean, it sounds exactly like my experience. Probably the best hypothesis to date. Nathan Carr's as well. I believe our glands (hormones) and cellular proliferation is askew. It really sucks. I feel like a walking shell of a person. If I didn't also have permanent night blindness from Accutane, I would sign up for the military right now, because I could easily carry out ANY tasks physically and completely devoid of emotion or personality.
2 hours ago, macleod said:I mean, it sounds exactly like my experience. Probably the best hypothesis to date. Nathan Carr's as well. I believe our glands (hormones) and cellular proliferation is askew. It really sucks. I feel like a walking shell of a person. If I didn't also have permanent night blindness from Accutane, I would sign up for the military right now, because I could easily carry out ANY tasks physically and completely devoid of emotion or personality.
the theory of desensitized ARs makes a lot of sense. It would explain why I feel better after shaving as I imagine shaving stimulates ARs in the skin
3 hours ago, Bobby.Digital said:Rhumetologist
Thanks!!
Has anyone been to see one?
I've now seen a Gastroenterologist ( this week ) In the past I've seen an Endocrinologist, the other specialist that spring to mind who might shed some light would be a Genetisist??
If there's any others pls let us all know!!
I could of sworn an Endocrinologist would of found something wrong with us but the fucken tests in my case just didn't prove to be conclusive. Testosterone although low was still in range, everything else checked out ok - I would of been more grateful if it didn't, at least we could of pinpointed something.
Those who are delving in to the whole "Copper" issue surely would benefit from talking to a Genetisist??
14 hours ago, macleod said:I mean, it sounds exactly like my experience. Probably the best hypothesis to date. Nathan Carr's as well. I believe our glands (hormones) and cellular proliferation is askew. It really sucks. I feel like a walking shell of a person. If I didn't also have permanent night blindness from Accutane, I would sign up for the military right now, because I could easily carry out ANY tasks physically and completely devoid of emotion or personality.
Yes, exactly the same symptomsfor me and for so many other victims. Accutane has made me an half-man, deleted sexual activity in my body and muscle, In the last months I tried:
- Creatine, known to increase the DHT +L-Carnitine tartrate for androgen receptors ---> morning erections AFTER years, better muscles sensation for weeks. Then slowly stop working.
For many of us THIS is diagnosis. This isin front of our eyes.
12 hours ago, QuietSoldier said:the theory of desensitized ARs makes a lot of sense. It would explain why I feel better after shaving as I imagine shaving stimulates ARs in the skin
I shaved week is I noticed the same thing, a psychological reaction or not?
Seems very likely that the sexual dysfunction could be caused by inflammation. The tubes that carry nitrous oxide are so tiny, only a slight bit of inflammation could stop the flow. Regarding antihistamines - brings to mind this comment from someone who at least had a temporary cure from Loratadine - an allergy medication antihistamine -
Also - did anyone see this comment on the RXisk website comment section on Accutane? Steroids are taken for inflammation especially in the cases of arthritis.
I am a physician and took isotretinion for about two months, about two years ago. I had loss of libidos and impotence about five weeks after starting it. This is an unreported side effect that even the dermatologists dont know about. My advice to anyone thinking about taking the drug is dont risk it. I have been digging deep into research papers to figure out what the if anything can help it. It seems that this drug reduces the ability of the body to convert testosterone into dihydrotestosterone (DHT). DHT is the hormone that is deficient in men and women and needs to be replaced to get back your libido and improve depression. While taking testosterone will help, taking androgenic steroids such as mesterolone (which is analog o DHT) will make you feel almost back up your old self. Ideally, taking 200 mg of testosterone and 100 mg of Mesterolone (commonly known as Masteron) subcutaneously will help significantly. Women have to be more careful about the dose as they will have irreversible masculinization if the dose is too high. I would say 20 mg of testosterone and 10-20 mg of Masteron per week is a typical dose for women. In Europe DHT cream is available with a prescription and should greatly improve symptoms but its not available in the US so youll have to find less legal ways to obtain it online.
Forgot to copy the link for the Loratidine success -
[Edited link out]
Sexual dysfunction could more likely be explained by hormone reduction. It is now proven (several peer reviewed studies have come out since 2010 that have shown this) that Accutane lowers most of the pituitary hormones.
Accutane isn't even available anymore,too many law suits + patent expired some got paid millions due to severe side effects many cases are still in the courts , only generic forms are now available. ifyou have a severe permanent side effect I would recommend a lawyer these people responsible need to be brought to justice.
One thing we know for sure is that it f&$)s the whole system over apparently permanently it's the gift that keeps on giving.
On 7/1/2016 at 2:19 AM, Justmom said:Seems very likely that the sexual dysfunction could be caused by inflammation. The tubes that carry nitrous oxide are so tiny, only a slight bit of inflammation could stop the flow. Regarding antihistamines - brings to mind this comment from someone who at least had a temporary cure from Loratadine - an allergy medication antihistamine -
Also - did anyone see this comment on the RXisk website comment section on Accutane? Steroids are taken for inflammation especially in the cases of arthritis.
DoctorKsays:April 12, 2016 at 5:38 amI am a physician and took isotretinion for about two months, about two years ago. I had loss of libidos and impotence about five weeks after starting it. This is an unreported side effect that even the dermatologists dont know about. My advice to anyone thinking about taking the drug is dont risk it. I have been digging deep into research papers to figure out what the if anything can help it. It seems that this drug reduces the ability of the body to convert testosterone into dihydrotestosterone (DHT). DHT is the hormone that is deficient in men and women and needs to be replaced to get back your libido and improve depression. While taking testosterone will help, taking androgenic steroids such as mesterolone (which is analog o DHT) will make you feel almost back up your old self. Ideally, taking 200 mg of testosterone and 100 mg of Mesterolone (commonly known as Masteron) subcutaneously will help significantly. Women have to be more careful about the dose as they will have irreversible masculinization if the dose is too high. I would say 20 mg of testosterone and 10-20 mg of Masteron per week is a typical dose for women. In Europe DHT cream is available with a prescription and should greatly improve symptoms but its not available in the US so youll have to find less legal ways to obtain it online.
Forgot to copy the link for the Loratidine success -
[Edited link out]
Thanks for info!!
And so why isn't this known widely amongst Endocrinologist???
They seem to just do the routine panel check and if it all comes back in range well then you don't have a problem - total bullshit!!
With all my light sensitivity, pressure in head and general foginess there is something ascure with my hormones and glands.
The inflammation hypothesis seems to ring true!!
Thanks again
2 hours ago, Justmom said:I am a physician and took isotretinion for about two months, about two years ago. I had loss of libidos and impotence about five weeks after starting it. This is an unreported side effect that even the dermatologists dont know about. My advice to anyone thinking about taking the drug is dont risk it. I have been digging deep into research papers to figure out what the if anything can help it. It seems that this drug reduces the ability of the body to convert testosterone into dihydrotestosterone (DHT). DHT is the hormone that is deficient in men and women and needs to be replaced to get back your libido and improve depression. While taking testosterone will help, taking androgenic steroids such as mesterolone (which is analog o DHT) will make you feel almost back up your old self. Ideally, taking 200 mg of testosterone and 100 mg of Mesterolone (commonly known as Masteron) subcutaneously will help significantly. Women have to be more careful about the dose as they will have irreversible masculinization if the dose is too high. I would say 20 mg of testosterone and 10-20 mg of Masteron per week is a typical dose for women. In Europe DHT cream is available with a prescription and should greatly improve symptoms but its not available in the US so youll have to find less legal ways to obtain it online.
No offense, but this doesnt really sound like something a physician would say. recommending steroids even if having to obtain illegally.
I know this is a very touchy subject but erectile dysfunction is normally from one of 3 causes. More often then anything else its a lack of blood flow, this could be due to inflammation. the other 2 are hormone imbalance or nerve damage. I myself have experienced varying levels of ed and lack of sensation. it seems to come and go. there maybe could be inflammation in other areas or glands that have a trickle down effect that could also cause ed. just speculating, i know other people have looked into this way more then me.
Does Viagra help?
are there test for nerve damage ? if you prick it with a needle in different areas would it hurt?
Ruvik mentioned a shorted D, bent to one side. I can tell you excess copper deposited in the wrong place is capable of this. from my own experience.
I posted some propecia studies awhile back, the cliff notes were something along the lines of copper was possibly transported and either"stuck"or caused oxidative damage in the testicles that lowered sperm count.
I believe there are also connections with copper and estrogen which could maybe throw things out of balance.
just more pieces of the puzzle.
oh and for me, the first time I buffed the banana was phenomenal, and i believe this was many months post accutane if not a year. but I think something continued to happen after this that started to change everything. Same with the hair loss, facial flushing, and everything else.