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Repairing the long-term damage from Accutane

 
MemberMember
359
(@dubya_b)

Posted : 06/24/2016 2:35 pm

57 minutes ago, QuietSoldier said:

Wow... my sexual problems must be bacterial related. I shaved last night with a razor for the first time in a long time (usually just trim my stubble with a trimmer), and ever since my ability to get solid erections has been restored. Any chance bacteria has been stored up in hair follicles or something? I took antibiotics for a long time in my teens before accutane

WTF?

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MemberMember
299
(@macleod)

Posted : 06/24/2016 5:12 pm

Alright guys. Just chill out. I have a lot to say on this whole matter and the state we are in and our options moving forward, but I'm just waiting for the right time, as we are in a complete disarray and far from solving jack.

But, let's get on topic and let me try to help those in need.

To to all those with digestive issues and even those with none, may I recommended digestive enzymes. I have been using the NOW brand (Now Super Enzymes)and they are a step in the right direction towards healthy bile flow and absorption. Really recommend. Also, they may have other health benefits too in regard to detoxifying and assisting the body in removal and replenishment. Google more about digestive enzymes.

And seriously,take them. And I also expect all of you to transition to a healthy diet ofvegetables and fruits daily. I also expect you all to incorporate exercising (mainly cardio) by any means as this is crucial for your survival.

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MemberMember
1803
(@guitarman01)

Posted : 06/24/2016 8:42 pm

one day somebody is going to come on here that has it all figured out and nobody is going to believe him. its going to be like the boy who cried wolf on here. trying to excrete stored accutane after 15+ years does seem like chasing ghost to me. The f'd up thing is once we do finally figure it all out, its going to be like "man this is great, im ready to live my life the way I want to now!" Then it will be like "oh shit, im 50." So not only am I trying to solve this shit, I'd want to seek compensation for all these years and spent money dicking around wondering wtf is going on. Im a few credits shy of my lawyers degree, but I know I might be too far removed to claim damages if this day ever comes. But il be sure they know. Il be sure they know we know. I'll get back to you guys down the line. Or sooner if my good buddy starts telling you guys to take copper again because he was too quick to misinterpret the data he was looking at.

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MemberMember
1804
(@truejustice)

Posted : 06/24/2016 8:57 pm

8 minutes ago, guitarman01 said:

one day somebody is going to come on here that has it all figured out and nobody is going to believe him. its going to be like the boy who cried wolf on here. trying to excrete stored accutane after 15+ years does seem like chasing ghost to me. The f'd up thing is once we do finally figure it all out, its going to be like "man this is great, im ready to live my life the way I want to now!" Then it will be like "oh shit, im 50." So not only am I trying to solve this shit, I'd want to seek compensation for all these years and spent money dicking around wondering wtf is going on. Im a few credits shy of my lawyers degree, but I know I might be too far removed to claim damages if this day ever comes. But il be sure they know. Il be sure they know we know. I'll get back to you guys down the line. Or sooner if my good buddy starts telling you guys to take copper again because he was too quick to misinterpret the data he was looking at.

So true!!

The stolen years for me are from 22 years to now 40. I'm 41 next month so 50 will roll around quickly I'm sure.

Roche - just fuck up people's lives and show no accountability. No wonder the world is full of turmoil and hatred. Until corruption and greed is put to an end how can there be any harmony I ask?

Anyway - No food for me over coming days, got my colonoscopy early next week which Roche are paying for ( LOL )

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MemberMember
76
(@yetanotheraccutanevictim)

Posted : 06/24/2016 9:07 pm

On 6/23/2016 at 7:55 PM, MovingOnMusicGal said:

Coffee enemas for the win. I am hydrated, absorbing nutrients, and passing long nasty strings of candida. I feel super clear, joint pain free, and clear-headed. OH and before sending a message stating it's super dangerous, do your research about how it is utilized in the body and how it detoxifies the liver. Oh yah, also experience helps too. Keeping this one on the very helpful list.

+1

Glad to hear positive results from performing coffee enemas. They have been INCREDIBLY helpful to me as well. The key to health is a healthy liver. I truly believe the majority of our problems are from liver damage. We need to get it decongested and functioning normal again.

Nothing heals the liver faster than coffee enemas and liver flushes. These practices also support lymphatic drainage indirectly.

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MemberMember
299
(@macleod)

Posted : 06/24/2016 10:45 pm

But, see this is the thing. Roche isn't even involved in Accutane anymore. They are focused on new innovative drugs for their investors. They could care less about their old drug and more so this thread.

And there is no specific cure, because the drug alters ones genes and impacts one on the cellular level. Some peoples glands are messed up, some peoples digestive systems, other mental function... We areessentially trying to find the fountain of youth and cure aging. The drug probably caused apoptosis on a cellular level. Pushed our bodies 5 years ahead of schedule...which clearly caused problems in some people.

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MemberMember
1804
(@truejustice)

Posted : 06/24/2016 11:41 pm

I wonder if the people who went on Accutane originally not for Acne but as Chemo for brain cancer or whatever it was first designed for have the same issues as us? All dried out and fucked up.

Anyone doing those coffee enamas getting any moisture back in the body?? I just have no oil left it would seem :(

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MemberMember
359
(@dubya_b)

Posted : 06/25/2016 12:09 am

1 hour ago, macleod said:

But, see this is the thing. Roche isn't even involved in Accutane anymore. They are focused on new innovative drugs for their investors. They could care less about their old drug and more so this thread.

And there is no specific cure, because the drug alters ones genes and impacts one on the cellular level. Some peoples glands are messed up, some peoples digestive systems, other mental function... We areessentially trying to find the fountain of youth and cure aging. The drug probably caused apoptosis on a cellular level. Pushed our bodies 5 years ahead of schedule...which clearly caused problems in some people.

Never forget that Roaccutane is still sold in Europe. Roche absolutely has an interest in keeping our stories out of the public eye.

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MemberMember
70
(@whackutane)

Posted : 06/25/2016 1:36 am

1 hour ago, TrueJustice said:

I wonder if the people who went on Accutane originally not for Acne but as Chemo for brain cancer or whatever it was first designed for have the same issues as us? All dried out and fucked up.

Anyone doing those coffee enamas getting any moisture back in the body?? I just have no oil left it would seem :(

I've probably done around 100. Although I never had any huge oil problems I have been feeling hugely better over the last few months. SO much more energy. Although I account this mostly to Nutritional Balancing, CE's a big component of the program. 

Interesting how our symptoms are comparable to Lyme disease. 
http://www.lymedisease.org.au/about-lyme-disease-2/

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MemberMember
1804
(@truejustice)

Posted : 06/25/2016 3:04 am

1 hour ago, Iamme. said:
I've probably done around 100. Although I never had any huge oil problems I have been feeling hugely better over the last few months. SO much more energy. Although I account this mostly to Nutritional Balancing, CE's a big component of the program.

Interesting how our symptoms are comparable to Lyme disease.
http://www.lymedisease.org.au/about-lyme-disease-2/

So do you just hook it up in the bathroom?

I gather you just do lying down in bathroom. I've done enough colon cleanses to make me think it's not too hard to do but I'd like to know more.

Someone said that they can be dangerous but why? I mean is the equipment easy to keep clean so you can use long term?
Thats prob my main concern!

Inserting nozzles etc is easy once you've done a few times, this is my experience from going to colon hydrotherapy clinic.

Pls share procedure as it will help more of us start to do these at home. That's got to be much easier than having to go to a clinic all the time to cleanse colon.

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MemberMember
10
(@kokodu)

Posted : 06/25/2016 7:32 am

5 hours ago, Iamme. said:

Interesting how our symptoms are comparable to Lyme disease.
http://www.lymedisease.org.au/about-lyme-disease-2/

This month I have done lyme disease test and IgM is negative but IgG is positive. It may be chronic lyme disease. Soon I'm going to meet a specialist.

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0
(@Anonymous)

Posted : 06/25/2016 8:26 am

hope that one day medicine and doc recognizes that accutane has ruined our lives? many of us are considered liars, not victims.

8 hours ago, TrueJustice said:

I wonder if the people who went on Accutane originally not for Acne but as Chemo for brain cancer or whatever it was first designed for have the same issues as us? All dried out and fucked up.

Anyone doing those coffee enamas getting any moisture back in the body?? I just have no oil left it would seem :(

we have assumed a kind of chemotherapy

people who recover cancer, after chemotherapy what assume for body recovery? nothing?

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MemberMember
299
(@macleod)

Posted : 06/25/2016 9:59 am

10 hours ago, Dubya_B said:
Never forget that Roaccutane is still sold in Europe. Roche absolutely has an interest in keeping our stories out of the public eye.

I didn't know that. In that case we could still be able to rock the boat and lose them millions of dollars if we wanted to. We would have to organize a protest and get the medias attention. Especially now as they are quite susceptible.

Their quarterly profits were only at 4% this year (3% actually, 1% because of tamiflu sales keeping them afloat) and they seem to be struggling at the moment as investors expect more from them. It's totally egregious that the FDA has given the green light to sell Tamiflu to the general public and Roche has influenced doctors to hand it out like candy. Can you believe people risk permanent side effects for an extra 2 days of flu relief, and even that claim is not solid. And that drug was designed for the H1N1 strain...why are we prescribing it for the common flu? It's unreal. It's actually like the movies Hollywood makes.

I will say the FDA tried their best to regulate accutane, but I'm not sure if the people currently in place are competent any more, or working for the American public's best interest. I really want to take a closer look at who is in charge over here.

8 hours ago, Iamme. said:
Interesting how our symptoms are comparable to Lyme disease.
http://www.lymedisease.org.au/about-lyme-disease-2/

That is quite interesting. Maybe we should look into how that bacteria works to get a feel of what areas we should focus on.

But, I will say a lot of the side effects are similar to most drugs that they pump out nowadays capable of genetic transcription. You'll see the common pattern of hair loss, depression, sexual dysfunction, digestive issues, joint pain. Drugs that have nothing to do with retinoic acid, but drugs that have the capacity to alter genes and alter receptors in the brain.

1 hour ago, Ruvik said:

hope that one day medicine and doc recognizes that accutane has ruined our lives? many of us are considered liars, not victims.

we have assumed a kind of chemotherapy

people who recover cancer, after chemotherapy what assume for body recovery? nothing?

Trust me, they know. We are probably just collateral damage in their eyes. Standard procedure would be to prescribe SSRI or some form of palliative care. It's really not the doctors fault, they are just the front line and have to clean up the mess that these companies cause. Then again the companies pay them, they pay everybody.

Anyways, there is hope. New treatments for radiation damage include hyperbaric oxygen therapy, which is what I'm going to try this summer. Stem cell treatments into the spinal fluid looks promising as well for stroke victims.

We can all agree we have a systemic inflammation in our bodies. Yes? Well, lets focus on mediating that issue.

For those with neurological inflammation and depression like me, take a look at this video ( ).

Itlooks like a very promising conservative treatment. hyperbaric o2 treatments and possibly Ketamine. I also believe the hyperbaric o2 will relieve systemic inflammation throughout the body (joints, internal organs, etc.) Not only that, but hyperbaric o2 treatment activates stem cells within the body, that is our own bodies ability to heal itself. ( )

I also want to entertain possibly getting a SPECT scanof the brain, which I think we should all do, post accutane. And before treatments. Remember SPECT scans were used by that Doctorto show correlation of depression post accutane. Can you imagine if we all got SPECTscans and they were all far from normal or healthy. That would be a lawsuit right there we can drag Roche into.

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MemberMember
70
(@whackutane)

Posted : 06/25/2016 10:37 am

7 hours ago, TrueJustice said:
So do you just hook it up in the bathroom?

I gather you just do lying down in bathroom. I've done enough colon cleanses to make me think it's not too hard to do but I'd like to know more.

Someone said that they can be dangerous but why? I mean is the equipment easy to keep clean so you can use long term?
Thats prob my main concern!

Inserting nozzles etc is easy once you've done a few times, this is my experience from going to colon hydrotherapy clinic.

Pls share procedure as it will help more of us start to do these at home. That's got to be much easier than having to go to a clinic all the time to cleanse colon.

Just do a quick google man, if you are really committed you will have no problem, after a while you will find its a nice change from the standard routine of life, sleep, work and eat etc. Its actually quite therapeutic. A bucket can be purchased for $20 aud on ebay, 1 week from QLD. Coffee from Woolies Macro shelfs. Im sure you can find all this. DrLwilson.com can help greatly.

@tryingtohelp2014 , I understand your reasoning, its perfectly logical and sound. I think what you need to understand however is that this is a horrible catastrophe that has been thrust upon too many of us. While we could work to understand the hard science behind it, and while yes that may provide an answer one day, as of now we don't have one.
Liver flushes, fasting, supplements etc are all we have. Is it not better to attempt as many of these protocols as possible than to try nothing at all? and potentially lurk this forum. I did that for too long and now amcommittedfor anything withinreason, coffee enemas, liver flushes, i'll do it. I won't give up. This is what we need. The answer is blurred. We as humans quite possibly don't even know the fickle tendencies of health, so that is why this forum tries anything, Ibelieve. I don't like these posts without progression but I feel this was needed.

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MemberMember
223
(@gladiatoro)

Posted : 06/25/2016 2:32 pm

Tamiflu another giant scam that poisons thousands , read the book virus mania , excellent .

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MemberMember
1804
(@truejustice)

Posted : 06/25/2016 5:57 pm

7 hours ago, macleod said:
I didn't know that. In that case we could still be able to rock the boat and lose them millions of dollars if we wanted to. We would have to organize a protest and get the medias attention. Especially now as they are quite susceptible.

Their quarterly profits were only at 4% this year (3% actually, 1% because of tamiflu sales keeping them afloat) and they seem to be struggling at the moment as investors expect more from them. It's totally egregious that the FDA has given the green light to sell Tamiflu to the general public and Roche has influenced doctors to hand it out like candy. Can you believe people risk permanent side effects for an extra 2 days of flu relief, and even that claim is not solid. And that drug was designed for the H1N1 strain...why are we prescribing it for the common flu? It's unreal. It's actually like the movies Hollywood makes.

I will say the FDA tried their best to regulate accutane, but I'm not sure if the people currently in place are competent any more, or working for the American public's best interest. I really want to take a closer look at who is in charge over here.
That is quite interesting. Maybe we should look into how that bacteria works to get a feel of what areas we should focus on.

But, I will say a lot of the side effects are similar to most drugs that they pump out nowadays capable of genetic transcription. You'll see the common pattern of hair loss, depression, sexual dysfunction, digestive issues, joint pain. Drugs that have nothing to do with retinoic acid, but drugs that have the capacity to alter genes and alter receptors in the brain.

Trust me, they know. We are probably just collateral damage in their eyes. Standard procedure would be to prescribe SSRI or some form of palliative care. It's really not the doctors fault, they are just the front line and have to clean up the mess that these companies cause. Then again the companies pay them, they pay everybody.

Anyways, there is hope. New treatments for radiation damage include hyperbaric oxygen therapy, which is what I'm going to try this summer. Stem cell treatments into the spinal fluid looks promising as well for stroke victims.

We can all agree we have a systemic inflammation in our bodies. Yes? Well, lets focus on mediating that issue.

For those with neurological inflammation and depression like me, take a look at this video ( ).

Itlooks like a very promising conservative treatment. hyperbaric o2 treatments and possibly Ketamine. I also believe the hyperbaric o2 will relieve systemic inflammation throughout the body (joints, internal organs, etc.) Not only that, but hyperbaric o2 treatment activates stem cells within the body, that is our own bodies ability to heal itself. ( )

I also want to entertain possibly getting a SPECT scanof the brain, which I think we should all do, post accutane. And before treatments. Remember SPECT scans were used by that Doctorto show correlation of depression post accutane. Can you imagine if we all got SPECTscans and they were all far from normal or healthy. That would be a lawsuit right there we can drag Roche into.

Thanks for this link into depression. I can handle the bad feelings what I'm struggling with isthe inflammation!

Anyone care to mention best inflammation supplements?? Best as in reducing it throughout the body!

The detoxing I'll continue to do Liver Flushes etc but inflammation right now is a big concern for me!

Good find. Oxygen therapy also looks promising!

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MemberMember
4
(@blackfox01)

Posted : 06/26/2016 5:20 am

This thread is a nightmare to follow. We need a forum here.

Has anyone tried Freddds methylation protocal???

if so what doses did you use and what were your improvements?

thanks

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MemberMember
6
(@pedroe)

Posted : 06/26/2016 2:36 pm

On 6/23/2016 at 9:55 PM, MovingOnMusicGal said:

Coffee enemas for the win. I am hydrated, absorbing nutrients, and passing long nasty strings of candida. I feel super clear, joint pain free, and clear-headed. OH and before sending a message stating it's super dangerous, do your research about how it is utilized in the body and how it detoxifies the liver. Oh yah, also experience helps too. Keeping this one on the very helpful list.

Hi, i took a look upon "Gersons Therapy" and the supposed dangerous around it. It's ridiculous, there is an article mentioning three people dying from it. At first the supposedcauses are very questionable, but the most incredible is like THREE PEOPLE? How many millions allopathic medicine is killing everyday and they come with articles pointing out the dangerous around liver flushes, coffee enemas and everything that doesn't pay them anything.

All i can say is that alternative medicine, diet and cannabis are the only things that have really helped me so far. I agree with anonyy, we must provide the ground to recovery. Maybe accutane has made too much damage and our body is never going to be like it once was, but even so, you can only feel better with a proper diet and lifestyle.

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MemberMember
1804
(@truejustice)

Posted : 06/28/2016 2:26 am

Had my colonoscopy and gastroscopy done yesterday. All good on the colonoscopy front with no abnormalities however I have an Ulcerative Oesophagus prob due to the insane amount of reflux I get post Accutane. I remember one person saying they get heartburn even after drinking water - so true!!

I'm on a medication to address reflux and I'm hoping my ulcerative Oesophagus will heal - I have a follow up with Doctor in coming months about this.

Other poo and stomach tests will come back soon and determine if there's something else to address on the parasite front etc.

Glad I had this done but please if you have bad reflux best to address it sooner rather than later - I've taken things to reduce it over the years but I really should of been on top of this earlier. It's not like I haven't had other issues to deal with like fatty liver, head pressure bad varicose veins etc.

Just add it to the list of complications......

As usual I wish everyone well :)

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MemberMember
70
(@whackutane)

Posted : 06/28/2016 2:33 am

Just received my Allochol tablets. After a good amount of research online there doesn't seem to be too many reports of severe side effects. The tablets seem to be made of mostly simple natural ingredients, yet apparently are reported to improve bile flow greatly, offering a superior cleanse.

Interestingly, there are instructions from a few websites that suggest using a liver flush with the tablets for greater results. As this product is found from mostly Eastern European countries, info is hard to find and nearly always in broken english

 

image.jpeg

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0
(@Anonymous)

Posted : 06/28/2016 2:34 am

after copper bullshit now is time of colon and poo, yes this thread is nightmare, is normal that people don't take seriously accutane victim!

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MemberMember
70
(@whackutane)

Posted : 06/28/2016 2:36 am

2 minutes ago, Ruvik said:

after copper bullshit now is time of colon and poo, yes this thread is nightmare, is normal that people don't take seriously accutane victim!

Fuck off dick weed

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MemberMember
1804
(@truejustice)

Posted : 06/28/2016 2:41 am

4 minutes ago, Ruvik said:

after copper bullshit now is time of colon and poo, yes this thread is nightmare, is normal that people don't take seriously accutane victim!

Why's that??

If your list of complications isn't as long as others consider yourself lucky!!

That's an insensitive comment with all that people are going through - did you put much thought into it?

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MemberMember
3
(@off-the-wall)

Posted : 06/28/2016 7:17 am

The disease of the body is shown in signs and symptoms. I don't think we can try to find out what is wrong with all of us from
accutane. Accutane as a poison makes the body vulnerable to disease that is in one's genetic predisposition. Now we have the disease. Treat the disease. Everyone keeps focusing on accutane and that's where you're stuck. Why do u think some people leave unscathed by accutane and others die. It doesn't do the same thing to everyone. It's just a highly toxic drug and once we cross that line of our bodies not being able to handle it, our weakest spots get triggered. We haven't all got the same damage from accutane. We have different diseases now. And also, how naive to think we can figure out what's happening inside? Everyone's running around in circles treating themselves like lab rats.

Stay in the NOW and treat the present disease. You know what's true medicine? Homeopathy. The banerjis have great success treating serious conditions and yes they've treated cancer and yes the scientific community has
acknowledge their success.

What I'm learning is that the disease is a result of our vital force in disarray- in high entropy- disordered and less complex. The body then tries to compensate for the disorder and we see this in symptoms of the body. I don't think we should be looking for a physical thing inside our bodies unless it helps for a diagnosis of a disease and then treat the disease using homeopathy

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MemberMember
960
(@tryingtohelp2014)

Posted : 06/28/2016 8:58 am

new results

After 2 months of 4000iu Vitamin D... my levels have increased from 9 to 36.9

after 2 months of  copper, im still in the low normal range. (i believe this shows how much we really need to improve body stores.)

i also tested my serum Vitamin A levels... normal.   

Zinc Normal (after taking copper only.... again, copper alone doesnt deplete zinc... zinc on the otherhand does deplete copper.  my zinc actually went up since my last test.)

I will get one more ceruloplasmin test in 5 days, and i will up my copper from 2mg to 4mg for the 5 days before the test.   i would be willing to bet my ceruloplasmin goes alot higher, while reducing any "toxic" copper lol.   If that happens, it will confirm a true copper deficiency in the liver.

 such a joke on this thread about toxic copper.

April test                            .June test          

ceruloplasmin 17.3  .............18.9 
copper       ..........75..................78
zn       ..................76..................83           

i want to get a biotin test.  13 cis retinoic acid messes up the biotinidase enzyme.... many many people report more oily skin taking biotin.   some suggest thats how accutane works, just like B5 does... by disrupting biotin.
http://www.ncbi.nlm.nih.gov/pubmed/10325581
 

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