Was wondering if anyone here has investigated Accutane's involvement with our gut bacteria? Its connection to e. coli and stuff?  http://www.propeciahelp.com/forum/viewtopic.php?f=1&t=10595  has some idea about how a drug can have a major effect in one's gut... That would explain why some have gotten better by fasting or doing other things helping their gut (I know we are not "in the same boat" as those Finasteride guys, but hey, their "boat is sinking" too ) 

On 13/6/2016 at 5:44 PM, Gladiatoro said:

On 13/6/2016 at 3:27 PM, behindemusgo said:

Hello! I recently wrote my first post in this forum. I am from Spain and I am experiencing a very strange hair loss that I trully believe it was triggered after taking accutane (sorry for my english). I have read hundreds of posts but now I am so confused that I don't know how to begin with. I was thinking of doing liver flushing but I never thought about copper, dna, etc... I am not experiencing joint pains, or dry lips, or whatever. My symptoms are just hair loss and skin problems. My hair loss is diffuse and I lose hair all over my scalp (sides too). Sometimes i have very dry skin and sometimes my skin gets so freakin oily I can't believe it. Also, I am experiencing kinda inflammation pain and my face pores look so bad. I am not sure if accutane caused vision problems... I think state this could be a little hypochondriac because I can't prove it but sometimes I can not focus properly (I got my eyes tested few days ago and I am using glasess with appropiate lenses). So, I would like to know if anyone experienced this type of hair loss and what way should I take or what type of blood tests I should do. Sorry for my ignorance but so many technical terms made me so confused I don't know how to begin.

Dosage?

I am so sorry, I can't remember. This was like 5 years ago. I just can asure it wasnt a low dose because I am a big guy. Why is it important?

Welll dosage is important on how poisoned your body is typical treatment is 40 my X 6 months for a total of 7200 mg.

15 hours ago, TrueJustice said:

My problem isn't so much my eyes, it's more that I can't focus on things properly which is probably because my frontal lobe of brain is impaired I would imagine - we must of all seen the studies by now!!?

I think I'm going to go on St Johns Wort again, my anxiety never ceases. I'll tell you one thing, if you've got side effects from Accutane and you never do a thing about it don't ever just count on time healing things, that will never fucking happen in our case!!

Hence why we constantly experimenting with supplements or trying to detox this and that.

Time is NO healer with our situation - I'm sorry to say that.

Of course time is no healer, if you change nothing and do nothing nothing will change. Noone said nowhere that we need to do nothing to heal.
When i talk of detox, i don't talk of accutane, with time, the toxicity is way beyond accutane alone. Most people are still "fine" (with only medium life-impairing side effects) until 1 year after ending accutane, when everything start failing and life become hell.

Yea about eyes it was that too, impossibility to focus or need tons of concentration, don't have it anymore.

@Chris16
it's sadly true for the 10 years x) but i tried a lot of things before finding things that works, and lot of mistakes. i only started finding the right path 4 years ago. So i'll say 2 years can be enough to be cured, doing what's required. Sad that i lost 10 years for nothing, being in the darkness of ignorance and looking for false solutions, sadly like most people here, who still don't understand...

5 minutes ago, Gladiatoro said:

Welll dosage is important on how poisoned your body is typical treatment is 40 my X 6 months for a total of 7200 mg.

I think my dose was increased after 6 months of treatment and I were taking it for 11 months. I drunk alcohol while I was on it which, as my doctor said, makes it longer to get rid of it. You know how it could be stored and how I can detox from it? I have seen liver flush methods but I don't know which one follow or if it will be effective. Thanks for your answer!

Go to you tube type in the search bartop 8 tips for reversingside effects of accutane.

Btw my allopathic doctor said that I have to watch my diet and take better care of myself ie less alcohol I say B.S I never signed up for ANY of this , strangly enough I find that after drinking the next day my mental clarity improves , it's one );)$& up drug that's for sure.

Having said that beer makes my concentration worse but rum improves it. I might be Alergic to hops or something to that order plus I had severe back pain from beer that's gone now thank GOD for that.

2 hours ago, Gladiatoro said:

Go to you tube type in the search bartop 8 tips for reversingside effects of accutane.

Btw my allopathic doctor said that I have to watch my diet and take better care of myself ie less alcohol I say B.S I never signed up for ANY of this , strangly enough I find that after drinking the next day my mental clarity improves , it's one );)$& up drug that's for sure.

Having said that beer makes my concentration worse but rum improves it. I might be Alergic to hops or something to that order plus I had severe back pain from beer that's gone now thank GOD for that.

You are all too addicted to stimulants to recover.. if you want to drink alcohol specially after accutane, knowing it's the most toxic thing for the liver, the most damaged organ after accutane, can't expect being better.

Why you are still looking for someone else to do things for you, nobody going to help you about accutane, problem is inside of you, there is no magic cure out there, there is no easy solution, you'll have to struggle by yourself and from yourself. only your own body can recover, if you permit him to. how long do you need to suffer to understand it, and finally recover. (wastalking about everyone here). i believe a lot of people here are sick because in a way, they are doing it to themselves, it's the only explanation, i don't believe people can be so blind for so long..

12 minutes ago, anonyy said:

You are all too addicted to stimulants to recover.. if you want to drink alcohol specially after accutane, knowing it's the most toxic thing for the liver, the most damaged organ after accutane, can't expect being better.

Why you are still looking for someone else to do things for you, nobody going to help you about accutane, problem is inside of you, there is no magic cure out there, there is no easy solution, you'll have to struggle by yourself and from yourself. only your own body can recover, if you permit him to. how long do you need to suffer to understand it, and finally recover. (wastalking about everyone here). i believe a lot of people here are sick because in a way, they are doing it to themselves, it's the only explanation, i don't believe people can be so blind for so long..

Hey anonyy,

I won't be able to review all 300 and something pages here. Could you briefly detail what exactly you've done to cure yourself?

hi
i've made a little resume page 373

4 hours ago, anonyy said:

Of course time is no healer, if you change nothing and do nothing nothing will change. Noone said nowhere that we need to do nothing to heal.
When i talk of detox, i don't talk of accutane, with time, the toxicity is way beyond accutane alone. Most people are still "fine" (with only medium life-impairing side effects) until 1 year after ending accutane, when everything start failing and life become hell.

Yea about eyes it was that too, impossibility to focus or need tons of concentration, don't have it anymore.

@Chris16
it's sadly true for the 10 years x) but i tried a lot of things before finding things that works, and lot of mistakes. i only started finding the right path 4 years ago. So i'll say 2 years can be enough to be cured, doing what's required. Sad that i lost 10 years for nothing, being in the darkness of ignorance and looking for false solutions, sadly like most people here, who still don't understand...

I never said that anyone else mentioned time being no healer - I'm saying that!

There are a lot of people who've totally dropped off the radar, I mean the very guy who started this thread 5 years ago, where is he these days? Cured, given up, loving life, who would know?

The only people who don't come back to this thread are the ones who've successfully completed 10 or more liver flushes - perhaps he's part of that group?

defeatists never wins. why you still look for an external solution? doesn't matter what other people do or don't do, when you understand how things works, especially physiology. all people here and elsewhere who succeeded already said what should be done, but people too lazy or idk weak mentaly, to do them and persist.. and prefer to be defeatists. maybe you should start to think that your only problem/enemy in this situation is yourself?
apparently until someone tells you (talking abouta lot of people here) a magic easy solution who will cure everything instantly who require no responsability or struggle, you won't be interested.

15 hours ago, Bobby.Digital said:

Do you think your inability to concentrate/focus is due Inflammed sinus cavities (confirmed by ENT) ?Do you feel any pressure or congestion behind your eyes/forehead? It may be giving you the impression of your frontal lobe (it does to me).

That's what I feel like is causing all my issues. My sinuses are always slightly congested/Inflammed. Anytime I swallow my ears feel sticky. The congestion makes it harder to breathe which causes a lack of oxygen and just a general shitty sleep. Which then causes adrenal issues (lack of libido? Nervous system?)If your not sleeping good it's going to be almost impossible to get better.

My theory for me is that accutane caused my immune system go out of wack. Which made me hypersensitive to everything. Which caused all my allergies (Dust, Pollen & multiple foods). So I'm constantly in a state of inflammation. Which is why sometimes a night of heavy drinking makes me feel better. I notices on those days when I'm feeling perfect as my symptoms come back my head feels like its getting filled up with mucus. Inflammation = Sinus Congestion = Brain Fog?

Yes this exactly. there have been alot of other people that have complained of similar symptoms brought on by accutane. I think it started way back as facial flushing, this progressed into sinus congestion, which progressed into ear fullness, clogged ears and tinnitus type symptoms. ive had confirmed sinusitis by a ct scan but the ent said it wasnt severe enough to warrant surgery.
I've had a dull feeling on the left side of my head for years now that tends to come and go. I dont think its a coincidence that this is the same side where my ear fullness is the worst. ive had a mri and eeg. No brain damage. I got one more nerve test coming up from the nero dr.
I think the ear fullness/inflammation is close enough to the brain it might be causing some low grade brain inflammation.

my calculated free copper is 21.6 range 10-15
my absolute goal is to lower this number down to reference range and retest month to month to see what is going on with this number.until i prove myself otherwise this could very well be the source of my chronic inflammation.

and lets not forget this is a calculated number.This number could be even higher due to chronic inflammation that can sort of artificially raise the ceruloplasmin number used to make this calculation .Also im a skinny guy, I very well maybe should be at the low end of this reference range. there is a actual free copper blood test that some places offer that would be more accurate but its hard to find. Some quest diagnostics labs offer it, but its mostly at universities or specialist that study Wilsons disease.

yetanotheraccutanes free copper number was a whopping 31 out of 10-15.
for some of us our number one goal is to monitor these numbers and see how static they are. Then we go from there.
I would not call this insignificant until proven otherwise.

51 minutes ago, anonyy said:

defeatists never wins. why you still look for an external solution? doesn't matter what other people do or don't do, when you understand how things works, especially physiology. all people here and elsewhere who succeeded already said what should be done, but people too lazy or idk weak mentaly, to do them and persist.. and prefer to be defeatists. maybe you should start to think that your only problem/enemy in this situation is yourself?
apparently until someone tells you (talking abouta lot of people here) a magic easy solution who will cure everything instantly who require no responsability or struggle, you won't be interested.

Well im glad that's not me.

Done liver flushes by the book no shortcuts - more to come!

Done MRI, about to go do colonoscopy in a week.

Exercise, good diet, don't smoke, drink very little alcohol etc. Held down a full time job for last 18 years while dealing with side effects.

Studied yoga and became a teacher until joints became too sore. Stool practice but don't teach.

Nothing lazy about any of that. I didn't mention ALL the supplements experimented with over the years but that wasn't exactly hard to do!

Not defeatest at all - just being real about it all. Not easy for anyone.

Also I'm calling bullshit on some people cured. People eating shrimp only as cure - give me a fucken break.

Like a lot of people I've improved my condition but in my mind a cure is feeling totally normal again and with no need to be on this thread. All respect to the thread but I don't plan on hanging here once cured!!

Ok you are not a defeatist, but you seems to start being one, don't x)

What you call a good diet? that's where most people are wrong.

Liver flush alone is not enough, you need to use herbs and most certainly glandular's too (specially adrenal, no more than 200mg, every day or 2days from my experience), and maybe some fasting.
Alcohol even low dosage is very poisonous to the liver, and a strong stimulant.

Please list herbs??

Also I'm wanting to try glandular supplements but I worry that it will affect thyroid. As my dr said, be careful taking supplements to improve a condition that isn't necessarily related. What she means is, you may inadvertently bring about a problem through supplementing.

My issue is thyroid test appear all ok but them I read many tests aren't conclusive - what should I do??

You took Dr Morses Adrenal Glands Tonic - is this correct??

if so, how did you find it?

I was talking about glandular's extracts. Herbs i tried a lot but only the package and specially my "personalized package" like those in the week 1&2 dr morse company sells had that much efficacity (coupled with glandular's). ourbotanicals sells both but need to create an account to see the glandular's, they are from new zealand. you have all the ingredients on the website, you can still find them somewhere else.

don't ever take thyroid glandular's, had bad reaction with them (they dose them too much) and no positive effect even low dosage.

4 hours ago, anonyy said:

I was talking about glandular's extracts. Herbs i tried a lot but only the package and specially my "personalized package" like those in the week 1&2 dr morse company sells had that much efficacity (coupled with glandular's). ourbotanicals sells both but need to create an account to see the glandular's, they are from new zealand. you have all the ingredients on the website, you can still find them somewhere else.

don't ever take thyroid glandular's, had bad reaction with them (they dose them too much) and no positive effect even low dosage.

I like what they have to offer on website and I know you can design your own back based on needs but not understanding weeks 7-8 or 11-12 for exampleWhy would you need that much??

weeks 1-2 pack seems like best place to start.

Do you still take any of these products?

I'd really like to clean the lymphatic system up - these products look very ethical from what I can see. I might join and purchase some!

I was reading about Salma Hayek the movie actress she took tan when she was young she said her skin is now forever dry and sensitive . She smokes drinks and doesn't exercise eats rich foods but at age 50 or so she says she is in the best shape of her life.

My point is that there is NO magic cure for isotretinoin poisoning no magic supplement I would recommend staying away from retinol however Ie ANY fish oil and limit vit A intake. also don't rub your skin exsessively our skin receptors are. F($&0ed up this will cause unwanted side effects like heart papulations and dizziness that's what happened to me . I was rubbing witch hazel to get rid of mild chest acne in retrospect a very bad move was dizzy for a week.

I had no idea at the extent of my poisoning but now I know what NOT to do and because of this my side effects are minimal. The only thing I'm taking right now is Korean red ginseng for energy and mental stimulation ginkgo biloba is good too.

I started with weeks 1-2 too, then i continued for 2 month i believe. It was truly those, coupled with diet and glandular's who had the most effect. Liver flush too. I know those kits cost a lot but didn't find any equivalent

On 5/25/2016 at 0:50 PM, Tom87 said:

I've achieved now almost 80% recovery of accutane damage. It's getting better 🙂
Theamounts of supplementsand foods thatI've tried is incredible long!!! The most of them were only a waste of money.
I'm currently usingthis supplements below.

Hormon Balance Stack:
- 5000mg Taurine
- 5000iu Vitamin D3 (10 drops)
- 400mg Magnesium
- 2mg Copper

I've replaced 7-Keto DHEAwith copper for 2 days.7-Keto DHEAwas the best supplement against heavy sweating that i've ever tried.
I hope copper hasalso asimilar effect for this symptom.

Anti Candida / Parasites Stack (Day 13):
- 3 Pills Nystatin daily
- 2 Tablespoon olive oil
- Liquid Clean for Candida / Parasites
(Wormwood, Black Walnuts, etc...)

Maybe I can test my ED issue soon. Last weekend I've met a nice girlin a bar andI'm having a date with her in her apartment on Saturday.

The debate on whether our problems are due to lack of copper/taurine/vitamin d or whether we need to detox, liver flush, and address candida/parasites has been pretty intense lately. I'm not sure that everyone has been effected the same way, which is why testing is so important and possibly why people are so adamant about these different theories. Honestly, I'm more convinced by tryingtohelp's line of reasoning, but then again I haven't really looked into annony or guitarman's ideas much.

Tom87, seeing as you have taken a couple of the approaches I mentioned above at the same time and noticed results, I'm interested to see how you are feeling after 3 or so weeks after this post. Still at 80% recovery?

Also, can you point to a few of the symptoms that have improved?

The black walnut still interests me because as I mentioned some pages back, I have been taking an anti-inflammatory supplement that includes black walnut and it has been effective at relieving some of my symptoms.

One person said they were using a product called "Astaxanthin".
Anyone know if this is any good?

Its a carotenoid so we all know the jury is still out on the whole Vit A thing BUT given I've still got floaters, dry skin, brain capacity feels diminished etc it might be a good thing to try!?

Says on website 550 times the antioxidant activity of Vit E, 10 times that of beta-carotene and surpasses C as well.....

It might be a supplement that "kick starts" stuff and possibly brings back some moisture to the body?

Pls share thoughts!!

42 minutes ago, TrueJustice said:

One person said they were using a product called "Astaxanthin".
Anyone know if this is any good?

Its a carotenoid so we all know the jury is still out on the whole Vit A thing BUT given I've still got floaters, dry skin, brain capacity feels diminished etc it might be a good thing to try!?

Says on website 550 times the antioxidant activity of Vit E, 10 times that of beta-carotene and surpasses C as well.....

It might be a supplement that "kick starts" stuff and possibly brings back some moisture to the body?

Pls share thoughts!!

I use it. 3x a day at 12mg total. Probably have been using it for about 2 months now.

At the start it reduced my floaters. But they came back. Although my focus was improved. The texture and intricacies of things became more apparent. That was fun.

Not too sure about bringing moisture back to the body though. For a period of time I had really itchy skin. Could see it peeling as it was so dry. Face was the same, scalp was notorious. It's winter here and I still get this. However it's nowhere near as bad as it used to be. This could have just been the result of time and the large list of other things I tried.

All in all I would recommend it. My idea is copper toxicity. So I'm tailoring supplements to that. Astaxanthin should be effective in stopping the oxidative tendencies of copper. I had a period of stopping for about a week whilst waiting for a delivery. I didn't notice any positive effects from being off it.

Thx for replying, good that it might reduce floaters!!

I think I'll try it, does make me wonder again as to why some doctors put their patients on Vit A when Accutane side effects start???

Astaxanthin could be very similar, minus the toxic side effects of straight Vit A supplement.

One of these days we'll nail the relationship between Vit A and Copoer - I think it's the key to all this inflammation, floaters, varicose veins, stiff joints. It's all linked!!

thx again

On 28/05/2016 at 7:26 AM, yetanotheraccutanevictim said:

Interesting experience by a CureZone forum user (even more evidence that it remains lodged in our bodies):

"I was on accutane twice: when I was 16 and 21.

I'm 42 now, and just finished 5 years of detox. I'm pretty much done (unless there are symptoms ahead that I'm not aware of).

I just wanted to put a warning out there for those who are actively detoxing, and were on accutane.

I believe we detox backwards: last thing in, comes out first. You can track your progress by symptoms of whatever pharmaceuticals are coming out.

I had to detox years of the pill, and tetracyclene. As they came out, I was hardly aware of it (even though I often had herxheimer because my PH wasn't steady).

But the absolute WORST of my detox was the accutane. I went through periods where my brain was not extremely optimistic, funny, creative and extroverted.

That is my normal self.

Accutane can lead to depression and even suicide. When I took it as a teenager and young adult, those were the same feelings I had (I felt blah and boring, but not depressed).

I am SO grateful that it didn't affect me in a worse way.

But still, it was nasty when it all came out.

So be very careful if it did affect you terribly, and you now are actively detoxing.

And the other part of detox that was the worst, was the very end of it- my childhood vaccines.

Massive amounts of smelly chemicals came out of me for months...but that's another story 

(I was surprised that there isn't a chronic fatigue forum, or detox forum. So I put this message in accutane, acne, fasting, immunity, women's, and support groups) 

Heres a little bit more on this. I fb messages her to get the primary methods of detox she used. 

______________________________________________________________________________________

Eventually, fasting will open all cells, and replace dead water full of toxins, with cleaner water. But most people can't fast until they get over hypoglycemia.

Do you have it? How long can you go without food with no energy problems or headaches?

And it's important to fast only when your saliva PH is at least at 6.8. Do you know yours yet?

You can't detox until it gets up to 7.

_______________________________________________________________________________

Seems like fasting is what she used the most. I know the member Chico Esposito, if i spelt that right, was pretty adament on this approach.

Fasting is pretty much the only way to regenerate internal cells, even the complicated beta cells in a pancreas, a scientist once told me. Fasting has worked for me when I'm in a bind and I feel an acute pancreatic attack incoming, i have to refrain from food and water for 24 hrs, introduce water day 2, and vegetable+fruit juice day 3 or 4. Longest I've fasted was 3 days. I felt fine, a bit balloon headed, sometimes a headache for a minute or two. Only scary part is around day 3 when you sit on the couch for an hour and then stand up, you get dizzy, you have to remember to stand up slowly. around day 3 is usually when i introduce a nutrient smoothie of some sorts, and then work my way back up to solid foods.

you feel bursts of dopamine during a fast, and i would like to do it more often. i think intermittent fasting, in conjunction with perhaps a vegan diet, and maintenance sessions of hyperbaric oxygen therapy is going to be my next trials. i'll explain more later.