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On 6/10/2016 at 3:33 PM, marlin15 said:On 6/10/2016 at 2:55 PM, yetanotheraccutanevictim said:marlin15,
Appreciate the constructive response.Unlike you, I'm actually trying to uncover why we're all messed up. I'm not sure if copper is a part of this but there's definitely some imbalance in all of us when it comes to certain minerals. It could be that I've had copper dysregulation as a young child and accutane just amplified it ten-fold.
It's funny you quote Schopenhauer as he is a man who possesses realist views on math and science, something that is severely lacking in this thread for the past 3 years, and is only hindered by the bullshit quackery of "field control therapy" and everything else you propose. Schopenhauer would have a nice laugh at that.
Sorry for the philosophy nerdery, but at least Schopenhauer has some relevance! Afterall, his pessimistic view on the "will" and its eternal failure to achieve satisfaction sound eerily as if they were inspired by someone trying to find a solution to their Accutane damage.
Here's a working theory from a different site which may have some relevance to us: http://www.protocol-online.org/forums/uploads/monthly_08_2010/msg-19273-027408800 1282061244.ipb
Just got out from seeing my GP, she's given me a pathology test to look at ceruloplasmin and to do a urinary copper test - that's what I wanted!
She doesn't know everything and said to me that if tests come back indicating an imbalance she'll be sending me to a "Geneticist". Makes sense as they will know what to do with balancing and at the same time how to do it "holistically". Like my GP said, the problem you have when you hit the body with supplements is you stand a chance of upsetting another part of the body or creating an imbalance somewhere else!
In our cases getting the diet correct is fucken crucial as a starting point for giving our organs ( BODY) the best nutrients possible, after this we start looking at other things to bring into the equation if necessary i.e supplements or medicine.
Refreshing to here my GP say that she doesn't know everything - I respect that and I'm not there to fight or argue, I see her to work on things with an open mind - she gives me hope!!
Some of the arrogant male doctors I've seen in the best I can't say the same thing about!!!
Hey guys.
Ive been lurking this forum for about 2 years and I think its time for me to provide my own perspective. I was prescribed 20mg (40?) of Accutane for 6 months in 2011. I ended up stopping after about 4 months because I was getting increasingly worried about the effects it had on me. My oh so very professional dermatologist insisted I stay on it for its full course and double the dose halfway in due to the risk of acne coming back, but I decided to quit anyway. During the treatment, I bought dozens of bottles of eye drops, religiously applied lip balm and drank a lot of liquids. I hated it.
I dont think Im as severely affected as some of you, but I have been suffering of some of the most common symptoms ever since. Mainly:
Lack of sebum. Dryness. Mostly face skin. Chronic Rhinitis. Dry eyes.
Unquenchable thirst. I have to drink all the time.
Joints are prone to get hurt at the gym if I dont pay attention. Cracking/Popping.
IBD, had to completely review diet because I get stomach ache / bloating all the time.
These are the ones I cant deny are caused by Accutane. I prefer to hold the belief that most of what we go through, we can counter, as I hate the thought of forever being the victim of a little pill I took out of desperation. However, I could also include depression, lethargy, hypersomnia, anxiety. Not that I had none of this in the past, but I figure seeing as Ive been working so hard at bettering myself, the effects probably would have diminished if I hadnt been on Accutane. My acnes gone ever since, but I dont recall reaping the psychological benefits I was expecting from having a presentable face.
Ive developed more and more interest in self-improvement subjects over time, as a result of not feeling in control of my own body. Ive been following a Paleo/Bulletproof diet since mid 2013. I do Intermittent Fasting 16h/d. I go to the gym. I sleep a lot, probably too much. I take as many healthy supplements as I can think to take, including Omega 3, Vit D, Vit C, and different nootropics. I practice nofap + semen retention. I generally feel healthy. I feel sharp, usually. I never get sick.
..But then I eat something ever so slightly unhealthy and feel the pain for hours.
..I go outside, some wind blows in face, and my eyes burn.
..I smile, feel my face skin tensing up, and am reminded that its super dry.
..I sniff and realise my nose is like a dry canyon.
..I get a bit too enthusiastic at the gym and my knees hate me for days.
..And nothing I do fixes it.
The gist I get from reading all these posts is that we still dont quite understand whats wrong with our bodies. The main issue for me at least seems to be a lack of sebum production. I remain unsure if its because of some form of Retinoid accumulation hidden somewhere, or if its simply that my bodys ability to produce sebum has been wrecked. I kinda liked the idea of Accutane increasing FoxO1 activity and leading to a reduction in IGF-1 levels. Maybe my hormone levels will point to that. I did discover I was likely hypomethylated through accidentally ingesting a low dose (~50mg) of Niacin and flushing way too much. Upcoming test results should confirm that. Maybe methylation also has something to do with it. At least it seems like it. I also definitely like the Taurine idea. I'll be supplementing for the heck of it.
I had some brief blood tests done in Oct 2014. Everything that was tested fell into normal range, including Vit A, B12, folic acid. Ive done a 23andme DNA test a week ago and will soon do a very complete blood panel, including Copper. Ill report the results and see from there what may appear abnormal, and what can be done about it.
For the most part, I always find myself thinking that whatever effects Accutane had on my body is likely permanent. Im really hoping this isnt the case. I hate self-victimization and avoid as much as possible thinking about Accutane, but every once in a while it just blows in my face and I feel like it's forever taken something from me. It sucks that I take so much care being as healthy as possible, yet am still stuck with stupid side effects years later.
Im going to be fighting this disease very aggressively from now on. Hopefully that leads to something positive!
2 hours ago, Mike San said:Anyone still using Taurine?
I tried it too, seems like there is some benefit, some effect on skin and global "resistance" but it's limited.
Also tried TUDCA, some limited positive effect on liver and digestion, but doesn't fix anything.
I believe both can reinforce bodies defense, but useless in general, except maybe if you take them while taking accutane.
edit: also tried niacin flush (nature's way 100mg) and that's has very positive effects, in general for cells nutrition/blood circulation, and maybe also lymphatic circulation. but i noticed it's only effective at the beginning, after some times, it become less and less effective. I believe in general it's better to use circulation plants, like cayenne etc.
NoFap has been doing wonders for me lately. I've known about it for quite some time and even made it 5-7 days in the past, but now I'm on day 10ish and I'm really starting to see the benefits. My erectons have improved both quality and quantity. My skin seems to be healing (not as red and dehydrated). And my minor gyno has 75% disappeared. I've also been taking cold showers which might be helping a lot too with these side effects. I'm never gonna jerk off again if I can help it
22 hours ago, MrErdem said:I think I am going to try tamoxifen for my sexual problems. Anyone tried before?
Had nocturnal and morning erections the first 4 nights I took tamoxifen. Almost felt like being back to normal sexually after so many years, After the first 4 nights, everything went back to baseline and I quit taking it after a month.
23 hours ago, MrErdem said:I think I am going to try tamoxifen for my sexual problems. Anyone tried before?
Are you serious, this drug is for Cancer and the original pharma company stop making it....Guess who does now Teva who makes Accutane!
21 hours ago, anonyy said:Low carb diet? wtf, it's like the worst diet ever. In a clean diet the main food is fruit.
Not necessarily true! I got dx with autoimmune diabetes after Accutane...does one think carbs or fruit are good for me....Not a chance. Like I have said over and over again we all have similar issues, we all have accutainted...but we are also made up of different DNA and dx with different issues!
Did I love Italian food, and certain fruits before Accutane of course, but now I count carbs and live if I am diligent on about 80 a day and feel good!
5 hours ago, QuietSoldier said:NoFap has been doing wonders for me lately. I've known about it for quite some time and even made it 5-7 days in the past, but now I'm on day 10ish and I'm really starting to see the benefits. My erectons have improved both quality and quantity. My skin seems to be healing (not as red and dehydrated). And my minor gyno has 75% disappeared. I've also been taking cold showers which might be helping a lot too with these side effects. I'm never gonna jerk off again if I can help it
My testosterone has been a bit low but I notice for me it goes up when I work out my legs either by excercise bike, yoga or gym work.
Working out the legs has been known to raise testosterone levels naturally!!
This all might help those with sexual function issues even just minorly.....
4 hours ago, oli girl said:Not necessarily true! I got dx with autoimmune diabetes after Accutane...does one think carbs or fruit are good for me....Not a chance. Like I have said over and over again we all have similar issues, we all have accutainted...but we are also made up of different DNA and dx with different issues!Did I love Italian food, and certain fruits before Accutane of course, but now I count carbs and live if I am diligent on about 80 a day and feel good!
Fruits are very different from starches, starches are very bad for diabete yea, but fruits is completely different. I'm not an expert on diabete, maybe look at grapegate or drM videos (rawfigs), he had success with any types of disease in his clinic, certainly the most efficient doctor on the planet. But anyway, only way to defeat any disease, is with detox and easy to digest food, and physiological / hypotoxic, like fruit. Anyway.. cells require sugar to live, can't recover eating only dead food/meat, and only proteins.
And by the way autoimmune doesn't exist, it's just your immune system terminating mutated or damaged/intoxicated cells.
Chromium polynicotinate helped me greatly years ago tolerating sugar (and fixing vision issues), typically deficient with modern diet, specially because of meat & things like sodas apparently, some analysis showed i had (very) low chromium too (all others fine). Only supplement with positive effect i used, among with zinc (but i never took those every day, and no more than 3weeks, then never again or very rarely, too much = opposite effect).
http://care.diabetesjournals.org/content/27/11/2741
1 hour ago, anonyy said:Fruits are very different from starches, starches are very bad for diabete yea, but fruits is completely different. I'm not an expert on diabete, maybe look at grapegate or drM videos (rawfigs), he had success with any types of disease in his clinic, certainly the most efficient doctor on the planet. But anyway, only way to defeat any disease, is with detox and easy to digest food, and physiological / hypotoxic, like fruit. Anyway.. cells require sugar to live, can't recover eating only dead food/meat, and only proteins.
And by the way autoimmune doesn't exist, it's just your immune system terminating mutated or damaged/intoxicated cells.Chromium polynicotinate helped me greatly years ago tolerating sugar (and fixing vision issues), typically deficient with modern diet, specially because of meat & things like sodas apparently, some analysis showed i had (very) low chromium too (all others fine). Only supplement with positive effect i used, among with zinc (but i never took those every day, and no more than 3weeks, then never again or very rarely, too much = opposite effect).
http://care.diabetesjournals.org/content/27/11/2741
thank you for the link, but that applies to type 2 diabetics not type 1 big difference.....
It won't cure anything (only detox can), but it can help, second link is about curing them.
Told about this chromium thing because it can maybe help others too, i've seen so much people with vision issue after accutane, strangely at one point i didn't saw anything too far away, needed glasses, now i see perfectly and see nothing with the glasses... i don't think it's the chromium (or at least not only), but certainly the detox and vitamin A. Also because i read that glasses are a big mistake, make things more difficult to repair, if eyes get used to them.
48 minutes ago, anonyy said:It won't cure anything (only detox can), but it can help, second link is about curing them.
Told about this chromium thing because it can maybe help others too, i've seen so much people with vision issue after accutane, strangely at one point i didn't saw anything too far away, needed glasses, now i see perfectly and see nothing with the glasses... i don't think it's the chromium (or at least not only), but certainly the detox and vitamin A. Also because i read that glasses are a big mistake, make things more difficult to repair, if eyes get used to them.
My problem isn't so much my eyes, it's more that I can't focus on things properly which is probably because my frontal lobe of brain is impaired I would imagine - we must of all seen the studies by now!!?
I think I'm going to go on St Johns Wort again, my anxiety never ceases. I'll tell you one thing, if you've got side effects from Accutane and you never do a thing about it don't ever just count on time healing things, that will never fucking happen in our case!!
Hence why we constantly experimenting with supplements or trying to detox this and that.
Time is NO healer with our situation - I'm sorry to say that.
Whats happened with the movement towards Choleostatis, blocked bilary ducts? IS anyone still taking any supplements for this? TUDCA, UDCA or taurine? I know liver flushes are probably getting done by members out there, but just wondering the extent to which people are getting onboard with this?
I ask this because Ive run a little experiment over the last few days. Whenever I eat large amounts of fat I wake up with bleeding gums, like seriously pretty bad stuff. And when I cut down on it as much as I can, no bleeding gums. I've also noticed a pretty big improvement in mental capacity and energy. Also, I stopped my NB course over the last week. The vitamins they recommend are all mostly fat soluble. If we have Choleostasis would this mean fat soluble vitamins are harder to digest, as our bile is impaired?
Ive ordered some Allochol tablets, a Russian product that apparently is as effective as liver flushing. Im not confident on this but its just what Ive heard. I will still start to do proper liver flushes over the next few months. Also will begin supplementing with Taurine.
4 hours ago, TrueJustice said:My problem isn't so much my eyes, it's more that I can't focus on things properly which is probably because my frontal lobe of brain is impaired I would imagine - we must of all seen the studies by now!!?I think I'm going to go on St Johns Wort again, my anxiety never ceases. I'll tell you one thing, if you've got side effects from Accutane and you never do a thing about it don't ever just count on time healing things, that will never fucking happen in our case!!
Hence why we constantly experimenting with supplements or trying to detox this and that.
Time is NO healer with our situation - I'm sorry to say that.
Do you think your inability to concentrate/focus is due Inflammed sinus cavities (confirmed by ENT) ?Do you feel any pressure or congestion behind your eyes/forehead? It may be giving you the impression of your frontal lobe (it does to me).
That's what I feel like is causing all my issues. My sinuses are always slightly congested/Inflammed. Anytime I swallow my ears feel sticky. The congestion makes it harder to breathe which causes a lack of oxygen and just a general shitty sleep. Which then causes adrenal issues (lack of libido? Nervous system?)If your not sleeping good it's going to be almost impossible to get better.
My theory for me is that accutane caused my immune system go out of wack. Which made me hypersensitive to everything. Which caused all my allergies (Dust, Pollen & multiple foods). So I'm constantly in a state of inflammation. Which is why sometimes a night of heavy drinking makes me feel better. I notices on those days when I'm feeling perfect as my symptoms come back my head feels like its getting filled up with mucus. Inflammation = Sinus Congestion = Brain Fog?
My plan right now is to detox as much as possible and build up my immune system.I just bought an infared sauna and I feel like it helps with my inflammation. About 20 mins of use and my brain fog, energy, mood, sinus congestion, and inflammation improves. Effects last about an hour or two.
Anonyy what would you say are the top 5 most important supplements/ life style changes that you found helped you the most? Thanks in advance.
4 hours ago, Iamme. said:Whats happened with the movement towards Choleostatis, blocked bilary ducts? IS anyone still taking any supplements for this? TUDCA, UDCA or taurine? I know liver flushes are probably getting done by members out there, but just wondering the extent to which people are getting onboard with this?
I ask this because Ive run a little experiment over the last few days. Whenever I eat large amounts of fat I wake up with bleeding gums, like seriously pretty bad stuff. And when I cut down on it as much as I can, no bleeding gums. I've also noticed a pretty big improvement in mental capacity and energy. Also, I stopped my NB course over the last week. The vitamins they recommend are all mostly fat soluble. If we have Choleostasis would this mean fat soluble vitamins are harder to digest, as our bile is impaired?
Ive ordered some Allochol tablets, a Russian product that apparently is as effective as liver flushing. Im not confident on this but its just what Ive heard. I will still start to do proper liver flushes over the next few months. Also will begin supplementing with Taurine.
Be careful taking that stuff - good lord!!
do you know much about it?
6 minutes ago, Bobby.Digital said:Do you think your inability to concentrate/focus is due Inflammed sinus cavities? Do you feel any pressure or congestion behind your eyes/forehead? It may be giving you the impression of your frontal lobe (it does to me).That's what I feel like is causing all my issues. My sinuses are always slightly congested/Inflammed. Anytime I swallow my ears feel sticky. The congestion makes it harder to breathe which causes a lack of oxygen and just a general shitty sleep. Which then causes adrenal issues (lack of libido? Nervous system?)If your not sleeping good it's going to be almost impossible to get better.
My theory for me is that accutane caused my immune system go out of wack. Which made me hypersensitive to everything. Which caused all my allergies (Dust, Pollen & multiple foods). So I'm constantly in a state of inflammation. Which is why sometimes a night of heavy drinking makes me feel better.
My plan right now is to detox as much as possible and build up my immune system.I just bought an infared sauna and I feel like it helps with my inflammation. About 20 mins of use and my brain fog, energy, mood, sinus congestion, and inflammation improves). Effects last about an hour or two.
Anonyy what would you say are the top 5 most important supplements/ life style changes that you found helped you the most? Thanks in advance.
Nah, I think I'm brain damaged or something. I mean the bad sleeping doesn't help but my mind is slow to react these days, speech and what I want to say is delayed.
Nothing brings any moisture back!! I mean it could be that my brain like everything else is just dry and under performing but as usual no one knows how to get moisture back - at this stage pretty much fucked for life.
Accutane = Mistake!!!
12 minutes ago, TrueJustice said:Be careful taking that stuff - good lord!!do you know much about it?
Not a huge amount, but yeah I will do as much research as possible. There is one guy on YouTube who has taken it for bodybuilding purposes, I will contact him and have a chat about he stuff. Might have to go forum searching, translate some Russian to english probably.
Hey Lamme- I'm currentlydoingthe liver flushes (started a week ago)and started taking Tudca and taurine about a month ago. I'll keep you updated as to how everything goes and I hope you do the same. Btw my symptoms got a lot worse when I started taking Tudca. Could this be because my body was trying to push the Retinoic acid out? Not sure but will continue.
Anonyy I believe is our best resource on here. The guyhas basically cured himself of everything through detoxing his body. It may have taken him 10 years but he never gave up.
Anonyy- top things people should be doing right now to get back to health other than liver flushing?
Btw - my old account (Chris15)got locked so created a new one (Chris16).
