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Repairing the long-term damage from Accutane

 
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26
(@maynerd)

Posted : 03/19/2012 11:25 pm

Thank's for the advice mate much appreciated, do you mean the vitamin e capsules yeh ? I'm going to give the docs a visit about this

The docs might not say shit either way about vit E. They might look bad for not telling you to take it along with tane in the first place or they somehow might not believe it but I own a thousand plus page book on the pharmacological basis of therapeutic medicine and it says that excess vitamin E helps protect against hypervitaminosis A. It's a really in depth and well sourced book focusing on integrative medicine. I wish everyone here could read it. Talks about so much but a lot about keratinization processes, chondroitin and goes super specific into what hypervitaminosis does to joints etc etc.

 

You are at a critical point right now because you definitely have Accutane metabolites in your body so you need to take high levels of E, hopefully with multiple tocopherols. Docs, blood tests, etc are all narrow. Start thinking of a doc as someone who can help you in a life threatening situation but who's best solution for anything any of us would present would be to grab some leaves off the nearest tree bush to rub on it. It's one thing that pissed me off about going to my derm, I listed 5 problems a 23yo should not be having and he just kept saying go to your doctor go to your doctor. I was like, you sonuvabitch prescribe me chemo without me knowing then when shit hits the fan send me to a doctor who we both know ain't going to do shit for me.

 

dcrangers, accutane is well known to cause varying degrees of tinnitus. Tinnitus can alter the blood flow to the ear and cause ringing, cracking, or muscle spasms around the ear. As with all side effects from Accutane, I'm sure they will tell you it will stop after you are off the drug, but as anyone here can tell you, that is not always the case.

Is there anything i can do to help this, my right ear just feels blocked or filled with fluid or preassure, and can also twicth ?

One night both my ears filled up super bad and I got scared cuz I'm a musician so I went to the ER and they blasted water in my ears to clean them out in order check for structural abnormalities, they didn't find any. The fluid/pressure left for the most part but the clicking movements and tinnitus remain. Perhaps you could try some ear candles or some method of deep cleaning. I felt like for sure the pressure was gonna come back right after they cleaned but it didn't.

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29
(@tritonxiv)

Posted : 03/20/2012 3:28 pm

I have to tell you guys...

 

I'm sorry for all the suffering you've been through in life...

 

But I have been taking roaccutane 20mg a day for almost ten years now. Longer than anyone I know. My life is wonderful because of this drug.

 

If you pull this drug off the market it will ruin my life.

 

Advocate for increased awareness and medical responsibility. But ultimately, please let everyone make their own informed choice.

 

Thanks guys, I wish all the best for you.

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359
(@dubya_b)

Posted : 03/20/2012 6:04 pm

On 3/18/2012 at 12:38 PM, Lukez said:
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There was a thread entitled "isotretinoin induced androgen insensitivity" or something along those lines that was pretty happening last fall, and now I can't find any trace that it existed.

That's what I think it does, reduce adrogen sensitivity. Therefore tests show you can have high T but it can't go anywhere, therefore the sexual and mood side effects.

Here's a link that is related, the first post is decent:

http://www.acne.org/...rom-the-inside/

If you do a google search you will get links on related topics. Not much on reversing it though. I'm still not clear on whether the propecia people ever developed a consistent protocol for reversing their symptoms either.

I have to agree with you about androgen insensitivity. I literally had almost everything that happened to me at puberty disappear within the time frame of a few days with the exception of the deep voice and body hair. (no more: spontaneous erections, crazy libido, heightened mood, greasy hair, increased energy, competetiveness, increased imagination, sweaty pits, waxy ears.) I can still build muscle and have somewhat oily skin/light acne though, which I find sort of contrary and odd.

I don't know if everyone knows what I'm talking about because even I didn't notice it until it was gone, but that general "good feeling" that came along when I went through puberty vanished. It never really came back despite having decent blood levels of androgens and the closest I've come to feeling normal since this all happened was after taking super high doses of exogenous T, but that didn't last long and I don't recommend anyone do that since it could be dangerous and doesn't seem to work long-term anyways.

I now feel the way that many hypogonadal old men decribe their state of being.

I don't think androgen insensitivity can explain all of accutane's side effects though. Which raises even more questions.

Thanks for that showing me that thread lukez, it was pretty interesting, along the same lines. Finally found the one I was looking for http://www.acne.org/...al-dysfunction/ . I had to literally type-in the exact thread name to find it.[Edited image out]

You asked about the post finasteride guys. They haven't had much luck finding a treatment yet either. Every couple months someone seems to come to that board saying they were miraculously cured by something. It sadly almost always turns out the same in the end. Several guys then try the same treatment and it either has minimal effects for them or none of the guys who try the treatment feel any better except the original poster. Then everyone is left wondering if the initial poster recovered naturally, was BSing the whole time. or if everyone else was just doing the treatment wrong. So no, they haven't come across a miracle cure yet or even a reliable treatment really.

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359
(@dubya_b)

Posted : 03/20/2012 6:29 pm

Almost forgot. Here's a study showing that androgens and estrogens increase the telomerase enzyme in bone marrow cells.

http://www.ncbi.nlm.nih.gov/pubmed/19561322

 

It could be that this is simply because most growth factors increase telomerase. (Accutane has been shown to inhibit the effects of many growth factors so AFAIK, this could be a possible reason why isotretinoin decreaeses telomerase/telomeres)

Isotretinoin could possibly directly downregulate this enzyme too.

 

I didn't look into it too deeply. Just thought it was something to think about.

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(@merry-mary)

Posted : 03/21/2012 4:25 pm

Hi Dubya_B

Nice to meet you! Allow me the question: How old are you?

I'm glad about your infos, links and search in the internet, even though I wish I'd understand some more 'biological' English Vocabulary [Edit image out]

"I didn't look into it too deeply." ... How should we??

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359
(@dubya_b)

Posted : 03/21/2012 4:53 pm

Hi Mary. I'm 30 this year, been suffering from side effects since I was 18.

 

If you want to learn more about biology I would suggest purchasing some college-level textbooks dealing with whatever specific topic you are interested in.

I recently bought this one "Molecular Biology Made Simple and Fun" The book wasn't overly complicated, but made many of the studies I have been reading a lot more understandable. There should be similar books available in your native language.

 

By looking more deeply I meant by looking for more studies about the effects of hormones on telomerase levels, trying to find out whether or not most growth factors increase telomerase or if inhibiting growth factors generally inhibits telomerase, finding out whether accutane/retinoids directly supress telomerase or if it's a secondary effect, etc...

 

For example: If isotretinoin inhibits telomerase directly, then there's not much point in placing the blame on the other effects that isotretinoin can cause.

 

Take care Mary. I wish you would reconsider taking part in that documentary; there are many of us who would pay to have a chance to do something like that.

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(@merry-mary)

Posted : 03/21/2012 5:26 pm

I wish you would reconsider taking part in that documentary; there are many of us who would pay to have a chance to do something like that.

 

 

Please keep in mind that this is not a talent show, maybe I can pass contacts to people who are interested. It is in my high interest and appreciation as well to bring "light into the dark", to illuminate this case and to bring fairness to all of us who have suffered as if their lives were their death (can only speak for me, and for sure, this is really hard to measure and of course unworldly for a lot of people reading this who took accutane and idolize it because for them it showed the effect it had on 99 of 100 laboratory mice. Or were it 98, 97, 90, 50...?).

 

I just don't feel mentally able yet to deliver something via TV that maybe a whole generation of scientists and (not "or") attorneys are interested/will be interested in - and something that may be linked to a huge amount of money of which it won't be clear or easy to adjudicate (solatium / compensation for immaterial damage).

 

I can't just go there and say: hey I just bought "Nature, Basic Knowledge Volume II, for secondary school" because I want to find out all about the depth psychology/neurology/deeply neurological processes when I incomprehensibly nearly committed suicide in the middle of the/my oh so glorious youth!" (Key question: If suicide was a disease, wouldn't it be the most unexplainable then?)

 

Ah but thank you for your info about your age and the tips for books by the way. It might be a good "beginning" and help to understand better, yes.

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91
(@josephbuchignani)

Posted : 03/21/2012 7:36 pm

"I can't just go there and say: hey I just bought "Nature, Basic Knowledge Volume II, for secondary school" because I want to find out all about the depth psychology/neurology/deeply neurological processes when I incomprehensibly nearly committed suicide in the middle of the/my oh so glorious youth!" (Key question: If suicide was a disease, wouldn't it be the most unexplainable then?)"

 

 

 

Sounds like a very powerful statement to me. Damning, even.

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359
(@dubya_b)

Posted : 03/21/2012 9:43 pm

@Mary- Either you misunderstood what I meant or I misunderstood you. I have considered suicide myself often since accutane because I lack the ability to enjoy life since taking the drug, feeling like shit mentally and physically a majority of the time.

 

I know you may have good reasons for not going in front of a camera and that's enough of a reason not to.

 

The point of taking part in a documentary would not be to discuss scientific evidence against accutane or discuss court cases against accutane, it would mainly be to let others know how it has destroyed our lives and possibly plea for help.

 

I only try to encourage people to spread the word because our plight is definately not getting the attention it deserves.

 

When someone takes accutane they are still not warned that it may cause permanent depression among other things.

 

We are still laughed at by doctors when we tell them that a "safe" (fda approved) drug for acne has left us with unrelenting fatigue or impotence.

 

Shortening of telomere length has been proven to lead to premature halting of cell division and has been linked to accutane use, thus the discussion on telomerase and hormones.

I have taken an interest in the effects this drug can have because I want answers and am desparately seeking a way out of the hell it has left me in.

What was said in my previous post was because I thought you were saying you wanted to learn more about how taking accutane could have effected you. My mistake.

 

Do you mind if I ask what symptoms you have developed since taking accutane?

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(@merry-mary)

Posted : 03/22/2012 2:47 am

Helloo Dubya_B

 

It might be true that my different native language can cause some misunderstandings, yes, but I think I mostly understood and can support everything you told until now.

With my statement above I just wanted to underline that, at the moment, I do not have the ability, concerning time, mental or/and (!) physical health, my through accutane affected nerves and even my capacity for remembering because of my fear to have a flashback into my harder times (what happened sometimes when I started to try getting to the bottom of causation. What is, as I think, also a reason for the almost impossibleness of being able again to see the wood for trees.), to deal with things and scientific knowledge that scientists deal with after leaving university. Where we would find the difference that they did choose this (for career reasons or probably as well personal concernment, but not for accutane reasons, that's what I'm sure of) and we/I did not!

I really am interested in this whole process of hormones and much more as well but I can't replace my current environment with this.

 

And, with the focal point to underline the thing mentioned above, I forgot to say that it is as well my main interest, and that I completely agree with you, that the thing that should be told in a documentary and to accutane interested people (and I mean all of the different interests by this..) are explanations of our personal and psychical experiences on accutane. And yes, to plea for help? But to me it became some part of reality that the supplement on our suffering/affliction which was and is hearing and reading of "coincidence" for not to say "unprovable happenstance", "fancy" or "paranoia", really "broke in".

 

Sometimes for me all what seems to be left to think or say: This whole thing is just so contemporary...

 

Let me tell you about my symptoms in my next post.

 

 

I have taken an interest in the effects this drug can have because I want answers and am desparately seeking a way out of the hell it has left me in.

 

I have taken an interest in the effects this drug can have because I want to inform and protect others, to spread what needs to be spread, and I want compensation for immaterial damage, somewhen. To refer to the subject of this topic: a full repair of the long-term damage from accutane, for me, is meanwhile only possible comprehending solatium.

 

I think we could also start a discussion about the original aim for this drug when it was developed and about the irresponsibility of transferring/transforming it in/to a treatment for a completely different disease? Or are there any threads about this already, can you tell me off-hand?

 

@ JosephBuchignani: May you allow me the question how far you are involved?

For me it just doesn't seem to be enough to tell/to allude the public to the story of the one terrorist crashing on accutane into the northern facade of the world trade centers' north tower.

 

I'd be glad if/I wish statement was evidence.

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2
(@edikk)

Posted : 03/22/2012 7:00 am

Hello comrades.

Greetings from Berlin. I have to say I never thought I would get into such a hellhole of a situation, but if im in a mess I prefer not to pounder ''why me?'', but to do something about it.

I have basically the symptoms of Indigo ( I like the name smile.png ) Now supplements I think may be excluded as the complete cure. Maybe complementary, but thats about it.

So far from what I understood in the post, the answer to our big problems ( which are the androgen insensitivity, telomere damage, and problems of similar degrees) can be corrected with 2 options : major biochemic intervention (which requires again the use of drugs, plus knowing how to use them) or stimulation of the brain for self restoration(long term thing with an uncertain prospect). I guess I will start with number 2 by meditating more often, consuming a more healthy diet, adding some supplements, having a more positive outlook on my self ( stimulate regeneration). There was someone here ( i cant remeber the name or page) who said he tried something of this sort.

Maybe we could work out a comprehensive therpay plan for this.

Now for those with stomach problems, try cheking out dysbiosis. It might help you out. At least thats what im treating myself for. Maybe anyone knows someone who practices some form of brain stimulation therapy that can try to reset the brain to its original calibration.

And remember guys. We must never give up on this or be weak. WE WILL FIX THIS, NO MATTER WHAT!

Love ya and hope to hear from you. ))

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0
(@dcrangersfootballclub)

Posted : 03/22/2012 11:39 am

Thank's for the advice mate much appreciated, do you mean the vitamin e capsules yeh ? I'm going to give the docs a visit about this

 

The docs might not say shit either way about vit E. They might look bad for not telling you to take it along with tane in the first place or they somehow might not believe it but I own a thousand plus page book on the pharmacological basis of therapeutic medicine and it says that excess vitamin E helps protect against hypervitaminosis A. It's a really in depth and well sourced book focusing on integrative medicine. I wish everyone here could read it. Talks about so much but a lot about keratinization processes, chondroitin and goes super specific into what hypervitaminosis does to joints etc etc.

 

You are at a critical point right now because you definitely have Accutane metabolites in your body so you need to take high levels of E, hopefully with multiple tocopherols. Docs, blood tests, etc are all narrow. Start thinking of a doc as someone who can help you in a life threatening situation but who's best solution for anything any of us would present would be to grab some leaves off the nearest tree bush to rub on it. It's one thing that pissed me off about going to my derm, I listed 5 problems a 23yo should not be having and he just kept saying go to your doctor go to your doctor. I was like, you sonuvabitch prescribe me chemo without me knowing then when shit hits the fan send me to a doctor who we both know ain't going to do shit for me.

 

dcrangers, accutane is well known to cause varying degrees of tinnitus. Tinnitus can alter the blood flow to the ear and cause ringing, cracking, or muscle spasms around the ear. As with all side effects from Accutane, I'm sure they will tell you it will stop after you are off the drug, but as anyone here can tell you, that is not always the case.

Is there anything i can do to help this, my right ear just feels blocked or filled with fluid or preassure, and can also twicth ?

 

One night both my ears filled up super bad and I got scared cuz I'm a musician so I went to the ER and they blasted water in my ears to clean them out in order check for structural abnormalities, they didn't find any. The fluid/pressure left for the most part but the clicking movements and tinnitus remain. Perhaps you could try some ear candles or some method of deep cleaning. I felt like for sure the pressure was gonna come back right after they cleaned but it didn't.

 

 

Thank's for the replies, have you heard of an antibiotic called augmentin or amoxicillin, i was wondering if one of these might help me, i read about it and t says it hepls ear fulness, is this in your medicine book mate ?

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21
(@aharon)

Posted : 03/22/2012 12:56 pm

I don't think androgen insensitivity can explain all of accutane's side effects though.

 

The big two lasting side effects are androgen insensitivity and damage to the digestive system.

 

The type of damage to the digestive system can on its own, much like having parasites, prevent absorption of nutrients and prevent healing.

 

Dubya, how much T did you take and for how long?

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143
(@indigorush)

Posted : 03/22/2012 1:05 pm

 

Thank's for the advice mate much appreciated, do you mean the vitamin e capsules yeh ? I'm going to give the docs a visit about this

 

The docs might not say shit either way about vit E. They might look bad for not telling you to take it along with tane in the first place or they somehow might not believe it but I own a thousand plus page book on the pharmacological basis of therapeutic medicine and it says that excess vitamin E helps protect against hypervitaminosis A. It's a really in depth and well sourced book focusing on integrative medicine. I wish everyone here could read it. Talks about so much but a lot about keratinization processes, chondroitin and goes super specific into what hypervitaminosis does to joints etc etc.

 

You are at a critical point right now because you definitely have Accutane metabolites in your body so you need to take high levels of E, hopefully with multiple tocopherols. Docs, blood tests, etc are all narrow. Start thinking of a doc as someone who can help you in a life threatening situation but who's best solution for anything any of us would present would be to grab some leaves off the nearest tree bush to rub on it. It's one thing that pissed me off about going to my derm, I listed 5 problems a 23yo should not be having and he just kept saying go to your doctor go to your doctor. I was like, you sonuvabitch prescribe me chemo without me knowing then when shit hits the fan send me to a doctor who we both know ain't going to do shit for me.

 

dcrangers, accutane is well known to cause varying degrees of tinnitus. Tinnitus can alter the blood flow to the ear and cause ringing, cracking, or muscle spasms around the ear. As with all side effects from Accutane, I'm sure they will tell you it will stop after you are off the drug, but as anyone here can tell you, that is not always the case.

Is there anything i can do to help this, my right ear just feels blocked or filled with fluid or preassure, and can also twicth ?

 

One night both my ears filled up super bad and I got scared cuz I'm a musician so I went to the ER and they blasted water in my ears to clean them out in order check for structural abnormalities, they didn't find any. The fluid/pressure left for the most part but the clicking movements and tinnitus remain. Perhaps you could try some ear candles or some method of deep cleaning. I felt like for sure the pressure was gonna come back right after they cleaned but it didn't.

 

 

Thank's for the replies, have you heard of an antibiotic called augmentin or amoxicillin, i was wondering if one of these might help me, i read about it and t says it hepls ear fulness, is this in your medicine book mate ?

 

 

I'm sorry, but you're posts aren't relevant to this topic.

We've already advised to get off the drug.

Why would you carry on taking it when it's messing with your ears?

The answer is to get off Accutane, before you further damage your body.

We're not here to talk about antibiotics for acne, so you need to search elsewhere on acne.org.

I don't want to sound harsh, but this wasn't the point in the original postings, and I don't want to see this go off topic

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143
(@indigorush)

Posted : 03/22/2012 1:24 pm

Hello comrades.

Greetings from Berlin. I have to say I never thought I would get into such a hellhole of a situation, but if im in a mess I prefer not to pounder ''why me?'', but to do something about it. To sum my history shortly, 21 years old, on Isogalen (isotretinoin) for 2,5 months and woolaa. If either the doctor or the pamphlet that she gave me said anything about ED, I would have told my parents screw this im not gonna gamble.

I have basically the symptoms of Indigo ( I like the name smile.png ), but the most troubling for me is E.D. Now supplements I think may be excluded as the complete cure. Maybe complementary, but thats about it.

So far from what I understood in the post, the answer to our big problems ( which are the androgen insensitivity, telomere damage, and problems of similar degrees) can be corrected with 2 options : major biochemic intervention (which requires again the use of drugs, plus knowing how to use them) or stimulation of the brain for self restoration(long term thing with an uncertain prospect). I guess I will start with number 2 by meditating more often, consuming a more healthy diet, adding some supplements, having a more positive outlook on my self ( stimulate regeneration). There was someone here ( i cant remeber the name or page) who said he tried something of this sort.

Maybe we could work out a comprehensive therpay plan for this.

Now for those with stomach problems, try cheking out dysbiosis. It might help you out. At least thats what im treating myself for. Maybe anyone knows someone who practices some form of brain stimulation therapy that can try to reset the brain to its original calibration.

And remember guys. We must never give up on this or be weak. WE WILL FIX THIS, NO MATTER WHAT!

Love ya and hope to hear from you. ))

 

Edit: BTW, if anyone wants to chat on a personal level or any other for that matter, I would love to. Skype: eduard_kravchiuk.

P.S. Can anyone please tell me what have they tried for ED and if anything worked to a certain degree? Accupuncture, coconut oil, some therapy, meditation?

 

 

Hi Ed,

 

Welcome to the forum.

Glad to have another smart dude on the bandwagon.

You might come in handy.

 

I love your enthusiasm.

I, too, am so determined to get well again.

Lately though, I've really been struggling.

 

The last 5 days, I have been eating Gluten free.

As I've said before, I've upped my protein (in the form of sliced pork/ham/chicken) and am eating mostly natural foods.

 

Since avoiding Gluten, I don't feel any better, but I have the odds stacked against me, and perhaps I'm silly to expect changes so soon.

I'll mention again that someone advised a gluten-free diet, as it had helped them to feel "300%" better after just two days.

Clearly something is wrong with our digestive systems.

 

Whether we are now gluten intolerant, or even have celiac remains to be seen, but Gluten is well-known to be a problem for the average person.

We really shouldn't be eating it, and a lot of research points towards it causing problems in the body.

 

If you are gluten intolerant (or have celiac disease) and continue to eat gluten-containing foods (mostly grains, cereals or baked foods) your villi (in the small intestine) are shortened.

Think of villi as hands. They stick out, and as food passes from the digestive system, their job is to absorb the nutrients.

Now, when your villi are shortened (possibly caused by other allergies/food sensitivies too), the nutrients don't get absorbed easily - they go straight through and you develop deficiencies.

 

I am giving up on supplements for good from this point forward.

I've never experienced any benefits from taking them, and have spent thousands of pounds (probably £3-5,000 over the last few years) on them.

I'm still not sure if supplements are any good. It could be our poor digestive systems not enabling them to work.

 

I also have another small theory.

Many of us suffering have dry mouth and dry eyes.

I'm still pretty sure I could have sjogren's syndrome. Apparantly this can take 6 years to get a diagnosis for.

However, Accutane clearly has affected our mucous membranes.

Whether that is through sjogrens (an untreatable autoimmune disease) or just that they were damaged I don't know.

However, Slippery elm and marshmallow root are a couple of herbs that could help this. They are known to repair the stomach, if inflammation is a problem.

 

For these to work though, I guess you'd need to cut out any foods that are causing problems.

 

In terms of the documentary, the TV company had a meeting the other day.

It sounds like it's going well.

I'd assumed the show was 100% going to happen, but the TV channel (which I'm not sure I can name yet) can change their minds still.

They have another meeting in 9 days time.

 

The show isn't going to concentrate on Accutane for that long though... by the sounds of it.

It's a show about acne and treatment in general. I think it'll focus on natural treatments and diet.

When I meet with them, I'll explain what I want to say and the goal I'd like to reach (explaining the drug can cause long-term/permanent side effects including sexual dysfunction and anxiety/depression. I also want it to be mentioned that the drug is chemo).

 

Stef

 

P.S - Ed, I don't think anyone here (or anywhere else) has been able to cure their ED.

:/

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2
(@edikk)

Posted : 03/22/2012 1:52 pm

For those with symptoms of IBS - http://holisticgastroenterology.com/

And the dysbiosis thing I mentioned ( similar to IBS) could be a factor why you have dry eyes ( not enough imunoglobulin).

There was a very smart phrase I heard here that said we need to treat this not as an individual problem, but as a complex problem. Therefore we need to go on an all out cleansing spree. There was someone here, on about page 40, that said he dealt with hes problems. He mentioned a lot of water drinking (3-4 pure water) which is more than we drink by far, decent amounts of exercise and what I would say a ''Revelation'' in his soul. Thats what we need. We need to make stronger and longer pushes not only in the physical level, but also on the emotional level ( that means less stress, more inner fighting). Not saying that you havent tried it or anything, but we need to keep pushing harder and longer. Even though i feel tired most of the time, I am going to drink a hell lot more water, exercise more and constantly steer my mind to be again what i was meant to be. Its going to be a hellish ride. But as one smart person once said ( I cant remember him :D ) : '' sometimes you have to go through hell, in order to get into heaven''.

About the DNA stuff : the best thing that could help with that in my opinion is the mind. It may take a long time, but DNA is just a compilation of our bodys habits. Even the accutane damage. So we need the power of mind to bend it back.

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143
(@indigorush)

Posted : 03/22/2012 2:25 pm

I drink like 10 glasses of water as it is though. And yet, I never feel properly hydrated. It's pretty horrible.

Always have this dry taste in my mouth.

There are so many theories behind everything.

I think Accutane may caused sjogren's in some people.

Auto-immune diseases can arrive after the immune system has been overworked.

 

As for exercise, I'm doing badminton tonight.

Love it, but I also used to go to the gym. It wasn't a cure for me.

I'd be surprised after 6 years and all these side effects, whether I could get better.

 

He (SClippers) had been suffering for only a year or so..

And his biggest problem seemed to be hair loss.

It was probably just luck.

I hate to say it, but I can't see any other reason.

 

I've tried so, so, so hard to have my own revelation.

Always reading books on self-development, meditation, nutrition and whatever else.

I've tried to fight the side effects, and the solitary lifestyle Accutane forces you into, by going out and meeting people.

It's not helped my anxiety.

I normally feel like I just want to hide away when I'm in public.

 

Don't forget James (Jmsil) will find out his telomere results in a couple of weeks or so.

That'll give us some answers.

It'll be interesting to find out his biological age.

 

I believe in the mind, but I see this as such a struggle now.

Willpower isn't enough, and the motivation is lacking most of the time because I don't have the energy.

 

I dunno..

Maybe we will find out the answers some day.

Meanwhile, we need to do our best with coping.

We can control certain things.

 

We can choose what we do with our time.

How we fill our minds.

What job we work in.

What goals we set ourselves.

What we eat.

 

Etc

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91
(@josephbuchignani)

Posted : 03/22/2012 4:08 pm

I disagree with the hell to heaven concept. In my experience, any elevation in cortisol leads to severe symptom ramp-up. The key is ultra-low-stress living on a consistent basis.

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(@maynerd)

Posted : 03/22/2012 6:27 pm

For those with symptoms of IBS - http://holisticgastroenterology.com/

And the dysbiosis thing I mentioned ( similar to IBS) could be a factor why you have dry eyes ( not enough imunoglobulin).

 

 

Interesting take on the immunoglobulin, we need to assume our bodies are dry in every way including mucous membranes and any other slimy thing.

Good article here about immunoglobulin, mentions vit A and E. Apparently lycopene as well as E can increase immunoglobulin levels.

http://www.sevobserver.com/index.php?option=com_k2&view=item&id=8028:boosting-immunoglobulin-levels-through-nutrition&Itemid=45

 

I think the dry eyes aspect is more closely related to hyaluronic acid though. I understand @indigo's plan to stop supplements but HA is one that I would stick with regardless.

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(@merry-mary)

Posted : 03/23/2012 1:56 am

Hi everyone

 

I didn't find "enough" time yet to read in this forum but I read your statement, Joseph Buchignani, and I can, at the moment, agree with it.

 

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(@indigorush)

Posted : 03/23/2012 2:40 am

Maynerd... Did HA help you? Even that didn't do anything for me. I used doctors best.

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(@hitman87)

Posted : 03/23/2012 2:04 pm

I've been a Accutane user for 8 years and recently stopped for good. I was off Accutane because I took antibiotics for an infection. After the antibiotics/infection I started Accutane again. This time I got terrible stomach pains for the first time ever. This included a lot of burping/farting and a very full/weird feeling on the left side under my ribcage. I've been to the docter and got echo's/pictures taken. It seems I have some form of obstipation. Well, I can go to the bathroom and everything seems rather normal, but somehow there is accumulation. I drink a lot now (never did ;) ), work out almost every day and eat a fiber rich diet. The weird full/weird feeling gets a lot less, but If I don't work out for one day, it gets back. It seems to get chronic. :(

 

Is there anyone who has the same problems and what do you do to make it less of a problem? I can go to the bathroom, but in the morning I take two shits after each other with a timespan of about 45 to 60 minutes. First one more solid, second one not. This already seems weird to me, because I can't seem to loose the fecal matter in one bathroom visit.

 

I'm really down about this, because with this issue I tried something new against my acne with amazing results. It seems that zinc solves about 90% of my skin problems. I still have acne, but far less active. I take the picolinate 22mg zinc from Solgar, only one a day. This for me is a major breaktrough, that after 8 years of accutane I found something that seems almost as effective as this terrible drug. Downside now is that I suffer from the obstipation problems...

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(@maynerd)

Posted : 03/23/2012 3:11 pm

Maynerd... Did HA help you? Even that didn't do anything for me. I used doctors best.

 

 

I used to drink so much water and I felt like it was just running through me not sticking to anything. Then I took ha from jarrow and I felt like my body was holding water better, at least I didn't have the desire to constantly drink water. That was a long time ago and I still didn't realize how bad tane had actually messed me up so I didn't take anything for the tane as I was in a state of denial about the bad effects. Anyways, I definitely notice that my skin feels a little softer or less dry. It feels more normal. Im currently taking source naturals and my eyes have felt slightly less dry and I have been getting way less eye floaters the past two days which is a week after starting use. There are differences in brands and such so I waited a long time to buy my newest bottle of ha so I could research to make sure I was taking the right one but then after not being able to fully figure it out I had to go with source cuz it at least gets good reviews on amazon. I takee 1 pill before bed and one in the morning. Each pill=100units. Its not the miracle we're looking for but I agree with bill sardi on this one, i think its important for maintenance. Btw I want to purchase his ebook on ha but it is so expensive for an e book maybe someday. Hope this is understandable, im texting from my cell.

 

Sorry for your troubles @hitman87. What dose were you on for such a long time? You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi. I think we can learn from these extreme cases. It is interesting because I read this article by a naturopath who thinks the tane is compacted in our stomachs and that is why we get ibd. She recommends enema flushing. it could be stuck or it could have made our stomachs dry and therefore the food we ingest on a regular basis gets stuck easily. I wish we could do some rat studies of our own.

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(@aharon)

Posted : 03/23/2012 6:06 pm

You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi

 

Has anyone actually tried this for a reasonable period of time, enough to get past the initial enthusiasm that it might be helpful phase? What were the results?

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(@maynerd)

Posted : 03/23/2012 9:14 pm

 

You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi

 

Has anyone actually tried this for a reasonable period of time, enough to get past the initial enthusiasm that it might be helpful phase? What were the results?

 

 

I've only been at it for a couple days and have been gaining positive results ass far as the productivity of bms are concerned. Many herbalists are fans of it. But that's all I know from my end so far.

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