Acne.org Products
Came across this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC34517/
Wouldn't be surprised if our telomeres are fucked up
Now to go about figuring out how to fix them
I just started taking Slippery Elm and it has helped my bowel mvmnts significantly.
Could you please elaborate on this?
Apparently my digestive system is so sensitive that it cannot tolerate any pill whatsoever. I just tried taking Liv.52, which has no additives, cellulose capsule, and I'm getting sick from it. I have to find a way to strengthen the lining before I can take any of the pills I want to try. Dammit.
I've been working with an herb shoppe by my house and they recommended Slippery Elm. I struggle with constipation even if I eat a ton of fiber during the day. But when I take the SE, I take it in powder form, between half to a whole teaspoon, with my morning yogurt. I need to get up to taking it 3 times a day. But anyhow, when I take it I get a large, easy moving, healthy bm between 1-3 hours later and then I get a slight uptick in energy after that. They're still not dark bm's so I am probably under-producing bile. Have you ever thought about trying Cholacol 1? Make sure you get 1, I accidentally ordered 2 and I need to re order.
Hey Indigo,
Don't worry about your adrenal glands they recover 100% naturally in a day or 2, when you are stressed and depressed they get weak for a bit, and you get all those symptoms that match accutane symptoms. I am going again to my doctor on the 26th of march and ill ask him exactly what he did for my adrenal glands, and I'll let you know.
About 5-htp, its really working for me, my mind is so clear, I am relaxed my muscles are strong again and I sleep like a baby. Before I could barely walk from the muscle weakness, I was waking up tired, I had problems concentrating on my school work, and was paranoid for no reason..
How to properly take 5-htp, you have to take 600mg, I take 200mg when i wake up, then 100mg every 3 hours. Also you must take 100 mg of vitamin b-6 in the morning, because the body needs b-6 to make serotonin. You talked in one of your videos about how one of your friends was getting better after drinking redbull (has b-6).
I hope you try it and it works for you.
Guys!
I have some GOOD news!
Really good, actually.
No - I don't have any answers for getting us out of this.
However ...
I had an average day at work today.
Felt a bit crappy.. But thought 'At least it's Friday, and I can have the weekend to relax'.
I got home and there was an envelope to me.
Nothing strange about that.
It's from my Theatre - The one I act for.
I wondered why they'd be contacting me.
Like I've probably said, I'm due to finish my course very soon (next week actually).
Anyways...
The note was nothing to do with them.
Someone called Ceri had found my YouTube videos (about Accutane) and was trying to get in contact with me.
She managed to find out where I went for Acting and got the Theatre to write to me.
The big news is this:
A documentary is being made about Roaccutane.
I don't know if I can actually say any more than that at this point, but it'll be on a large networking channel over here in the UK.
Ceri was calling from a television company, and they've done a documentary for Katie Piper (who's book I've read. Search 'Katie Piper - My Beautiful face' - It's a shocking story).
The documentary is in the works now, so I'm not sure how big a part I'll be playing in this.
The company is directed by someone who's Son commited suicide because of this drug.
I will be meeting with them during next week, so will have more to say then.
For now though - That's pretty good news.
And I really needed some good news... and something to do when I finish my job.
I've always wanted to meet up with you guys..
This could offer that chance, at least for those of you living in England.
They offered me the chance to go to London and speak to them there, but being a bit anxious... I decided i'd prefer not to go there by myself.
James, Chico (I think you're from the UK) and any others - Would you be interested, if I can get you involved in this?
Stefan.
Stefan, THAT'S AMAZING! Finally more people will know! I doubt it will make accutane get pulled from the market but it might make some kids think twice about taking it!!!!
Hi everyone i'm hoping that someone can help me out here, i have made many posts on health forums and had no replies 
, I am 18 and i started my roaccutane course on november 29th 2011 with 40mg total per day. I am nearly at the end of month 4 and i have one more month to go. I met with my derm and had my bloods taken, she told me that i would have one more month left, that would be a total of 5 months on roaccutane. My bloods have been fine every month but i have this problem with my right ear and i dont know what it is and i'm scared that when i finish the course it might not go away I will try my best to explain it feels like it twitches when i move my right jaw sometimes and it's the outer ear you can see it move also the inside feels blocked like it has fluid or something in it, also above my ear feels swollen like muscle or bone that moves. I have no idea what this is. Does anyone have any ideas of what side effect i could have.
Hi everyone i'm hoping that someone can help me out here, i have made many posts on health forums and had no replies
, I am 18 and i started my roaccutane course on november 29th 2011 with 40mg total per day. I am nearly at the end of month 4 and i have one more month to go. I met with my derm and had my bloods taken, she told me that i would have one more month left, that would be a total of 5 months on roaccutane. My bloods have been fine every month but i have this problem with my right ear and i dont know what it is and i'm scared that when i finish the course it might not go away
Strange, I just started experiencing some ear problems where my inner ear feels blocked or filled up and the innner ear moves when I chew sometimes and when I push on the outside it moves but did not assume it was accutane related, just tmj or something which for me is probably what it is. I took accutane 4 years ago.
Of course, you should realize everyone here has been having bad effects from accutane that have lasted for years so we are all going to recommend that you stop taking the chemo drug, particularly if you are expriencing anything strange. I am going to recommend you start taking vitamin E ASAP either way. If you are worried, trust yourself. Blood tests are indicators of organ functioning, overall health is much more complex than that.
Hi everyone i'm hoping that someone can help me out here, i have made many posts on health forums and had no replies
Strange, I just started experiencing some ear problems where my inner ear feels blocked or filled up and the innner ear moves when I chew sometimes and when I push on the outside it moves but did not assume it was accutane related, just tmj or something which for me is probably what it is. I took accutane 4 years ago.
Of course, you should realize everyone here has been having bad effects from accutane that have lasted for years so we are all going to recommend that you stop taking the chemo drug, particularly if you are expriencing anything strange. I am going to recommend you start taking vitamin E ASAP either way. If you are worried, trust yourself. Blood tests are indicators of organ functioning, overall health is much more complex than that.
hi, what is tmj ? i had no problems with my ear before i started the drug, but now i think i have left it to long and i only have one month left, but i dont know what to do about my ear problem it's only my right ear, it gets in the way of things during the day and when i'm doing sports do you mean take vitamin e tablets ? in what way will vitamin e help thank's ?
Indigo that is great! I have to say that I meet a Accutaner who has suffered for 25yrs once a year and it does help in many ways to know your not alone etc.... I hope you guys near Indigo meet! Not sure if you can say, but is it Liam Grant who is putting this together. He did some interviews and documentry years ago.
dcrangersfootball club- stop taking the med. Listen to your body!
dcrangers, accutane is well known to cause varying degrees of tinnitus. Tinnitus can alter the blood flow to the ear and cause ringing, cracking, or muscle spasms around the ear. As with all side effects from Accutane, I'm sure they will tell you it will stop after you are off the drug, but as anyone here can tell you, that is not always the case.
I believe I have now hit a point where I can exceed my health level pre-Accutane. The main features:
1. Meal time control to regulate Circadian
2. Ultra low stress lifestyle, with continuous meditation
3. Low fat meat and rice diet
I ate at a restaurant so a bit of downtime coming up. But it's not at all clear that those Liv.52 pills made me sick - that could've been minor sleep deprivation.
Anyway I just had to test whether restaurants were now safe, and of course they're still not. Gotta pack a lunch next time I travel.
Still, it's amazing how far regularized Circadian, low stress, and constant meditation have taken me. I'm actually living better than I ever have before. (Apart from the restaurant bit.)
I'll have to prove this out in the next week, but I've definitely seen the break in the clouds this week. I gave my best performance at work today. Super awesome.
Proper stress management and Circadian management seems to vastly reduce the severity of my attacks when I do commit an error. Which reduces the stress of anticipation once an error has been made. Virtuous cycle FTW.
And meditating constantly is literally mindblowing.
Yeah, I was only on it for a month, went off of it because of suspected cranial pressure buildup from the tane, I've had tinnitus ever since then. It took a while to get used to it, but I came up with a sort of meditation that helps get rid of it, I focus on each of the different frequencies, and eventually that one will go away, then I move on to the next, etc. I can get the sounds to reduce at least 50-70%, a few times they've gone away 100%, but then it comes back. I wasn't sleeping well at all while on tane, I remember the first night I woke up 20 plus times. Of course we're in the minority, but it's still something I tell my friends who are curious about accutane. To quote my professor, "Sure, it might only happen to 1% of the people, but when you're part of that 1%, it can be hell."
I think the lack of sleep for a long time really made other tane related issues way worse. Never really experienced depression or anxiety until then, but those things are also made worse by the lack of sleep. I had achy bones, constantly felt dehydrated despite drinking at least a gallon of water a day, and I was eating mostly primal. It's a powerful drug to say the least. Oh, and I was taking a low dose, 5 mg every few days.
On the bright side, it made me appreciate my health much more. To be short about it, I avoid gluten/soy completely, some good dairy (raw products) here and there, lots of fermented foods, bone broths, good animal products like grass fed beef, ribs, intestines (trying to work on others, still haven't found a liver recipe I like), nutrient dense veggies like kale, spirulina and chlorella, and just overall healthy diet/what you'd find in the nutrition section. Exercising daily, meditation, getting sun, relaxing, spending time with good people, keeping goals, stuff like that.
It can take a while, but I truly believe in the body's ability to heal itself given the proper materials. To anyone reading this consider accutane, it's ultimately up to you, but listen to your body.
hi, what is tmj ? i had no problems with my ear before i started the drug, but now i think i have left it to long and i only have one month left, but i dont know what to do about my ear problem it's only my right ear, it gets in the way of things during the day and when i'm doing sports do you mean take vitamin e tablets ? in what way will vitamin e help thank's ?
TMJ is a broad characterization of problems with your jaw bones/joint. It can have many causes, most deal with swelling. Since it's so close to your ear a lot of people have ear problems along with it as well. http://en.wikipedia.org/wiki/Temporomandibular_joint_disorder
So you're going to continue because you only have one month left? That one month could be the difference between long term issues or not and you're already having problems so you're a prime candidate to have stuff come up in the future. Vitamin E helps the body process vitamin A and there have been studies showing people's side effects are less when they take E.
I apologize for going off topic, but can anyone tell me whether or not threads get deleted from this site after sitting for awhile without any new posts being made?
There was a thread entitled "isotretinoin induced androgen insensitivity" or something along those lines that was pretty happening last fall, and now I can't find any trace that it existed. It doesn't even show up in the "posts" link in the profiles of people who I clearly remember commenting in that thread. [Edited image out]
Hello everyone,
Please look into this! Look at the symptoms, and please go to your doctor right away and see if you have this!!!!!
Studies have also linked ACCUTANE to this desease....
There was a thread entitled "isotretinoin induced androgen insensitivity" or something along those lines that was pretty happening last fall, and now I can't find any trace that it existed.
That's what I think it does, reduce adrogen sensitivity. Therefore tests show you can have high T but it can't go anywhere, therefore the sexual and mood side effects.
Here's a link that is related, the first post is decent:
http://www.acne.org/...rom-the-inside/
If you do a google search you will get links on related topics. Not much on reversing it though. I'm still not clear on whether the propecia people ever developed a consistent protocol for reversing their symptoms either.
That is great news Indigo about the documentary on Roaccutane. The best news I've heard in a long time...
Public awareness is what is needed about this drug, and hopefully a documentary will do this. I'm not sure if I can help out with this though. The sad fact is, I literally don't leave the house any more (the doctors was an emotional struggle) because of severe social anxiety and being so self conscious, that a trip to London is really not possible. I really hope I'm not letting you down and that you are able to go.
Hey James.
I didn't realise things were so bad for you.
You're old enough to make your own decisions, but I must suggest that you do everything to escape falling further into the trap of hiding away from the world.
Don't you go out to work, with your Dad?
You don't have to take part in this documentary, and I'm not sure if I'm going to have to go to London for it, but it would have been cool to have you in on this.
I'm trying not to look at things just from my perspective anymore.
Lately, I've been quite social.
I'm actually really confident at times, because I'm so determined not to let this drug ruin my life.
At badminton for example, I've been there quite a few times now.
I'll normally jump on a court and shout to everyone 'Who wants a game with me?'
Sure, I still have moments of anxiety, and this is clearly because of something related to Accutane.
However, I fight it, rather than let it knock me down.
I know exactly how you feel.
This drug made me feel so disconnected from others, like I didn't want to see anybody.
I still get like that now, but I don't think it's a bad thing to have alone time sometimes.
With depression in general though, it is common to push people away and shut yourself off from the world.
My advice then, would be for you to have a 'Fuck it' attitude.
Not in a wreckless way, but in a 'chilled out' sense.
'It doesn't matter, because life is a game.'
I was scared... really scared to start acting.
I wanted to try it out, but I kept putting off and saying 'I'm not well right now.. I'll wait until I feel better'.
But I didn't feel better, and after a while I just did it.
One of the best self-help books I've read is 'Feel the fear and do it anyway'.
That may help you.
But just realise... anxiety is only fear. Just accept it as being there right now. But don't give it power.
Don't let it stop you from going out and missing out on opportunities.
People are different, and you may not want to be on TV anyway, but for me I feel like I want people to know about this, even if it means risking some embarassment.
Fear is only fear and it can't hurt you.
That's all I have to say, but I hope it helps.
I hope you realise you have to fight your feelings.
Be strong. You can do it.
You may not have control over some things, but you have control over this.
Once the telomere test is out of the way, maybe use your money on things that make you feel good.
I'm sick of buying supplements that don't do anything.
I'd rather spent that money on something worthwhile, like a relaxing massage or something I can remember for a long time - a day out or holiday.
Something that will get me out, socialising and away from my own safehouse (bedroom)
Stef
Hi Stef and everybody else who is interested in this topic
I was asked to take part in a German documentary about Roaccutane (..always keep the financial interests of the media in mind as well..). But I'm pretty sure already that I don't want to show up on tv in the next few years..
I am somebody who experienced some of the severe side effects as well. But I didn't even compare notes with other victims/concernced people yet.
It's nice to recapture slowly the own life, this improvement is so nice that it is not of my most important interest to put all my regained energy into explaining the world that the earth is flat. That might be the exact point that inures to the benefit of the innocence of Roche (Producer of Ro-(Accutane).
But I really hope that the satisfaction based on results of research or/and compensation for immaterial damage will reach the ones who are in need of it before their death.
But before, there are so many questions that need to get clarified, like: How many actual deaths of laboratory mice are allowed to get an admission to the market for a chemical drug? And how many of those mice did actually have acne?! Aren't you interested in the answer too???
My courage and motivation would be stronger if I was an ingenius scientist, "fighting" for the "good" (antagonism), or at least looking for it.
I may have become one if Accutane wouldn't have deformed my intellectual and emotional skills.
hi, what is tmj ? i had no problems with my ear before i started the drug, but now i think i have left it to long and i only have one month left, but i dont know what to do about my ear problem it's only my right ear, it gets in the way of things during the day and when i'm doing sports do you mean take vitamin e tablets ? in what way will vitamin e help thank's ?
TMJ is a broad characterization of problems with your jaw bones/joint. It can have many causes, most deal with swelling. Since it's so close to your ear a lot of people have ear problems along with it as well. http://en.wikipedia...._joint_disorder
So you're going to continue because you only have one month left? That one month could be the difference between long term issues or not and you're already having problems so you're a prime candidate to have stuff come up in the future. Vitamin E helps the body process vitamin A and there have been studies showing people's side effects are less when they take E.
Thank's for the advice mate much appreciated, do you mean the vitamin e capsules yeh ? I'm going to give the docs a visit about this
dcrangers, accutane is well known to cause varying degrees of tinnitus. Tinnitus can alter the blood flow to the ear and cause ringing, cracking, or muscle spasms around the ear. As with all side effects from Accutane, I'm sure they will tell you it will stop after you are off the drug, but as anyone here can tell you, that is not always the case.
Is there anything i can do to help this, my right ear just feels blocked or filled with fluid or preassure, and can also twicth ?