well back on the copper bandwagon for now. men get a average of 1.5mg in their diet per day. up to 10mg per day should be safe according to webmd. this is for a normal healthy adult mind you. I wonder if supplementing was pushing out a infection in my sinuses ( i have been ct scanned not long ago and had sinus inflammation but the ent said not severe enough to warrant surgery.) the extra mucus production in my face was crazy on the higher dose copper. my eyes would tear up along with having to blow my nose constantly. I wonder if this would eventually normalize and provide a moisturizing effect that could maybe stop the facial flushing as well. time will tell. il do 2mg copper 2x per day for now. though im always tempted to go higher in hopes to speed up the process.
3 hours ago, Vakaris said:Guys, please help if anyone can direct me with valuable information.. I finished accutane 2 years ago and I still have SLOW WOUND HEALING, SCAR.. And what really strange for me that I can't find anyone with any suggestions how to treat this thing or any idea why it's happening? If anyone know anything, please reply, thank you
im going to be like tryingtohelp and post you this little chart here.
The World Health Organization gives 10 mg/day as the tolerable upper limit of copper intake.
@tryingtohelp2014I scored really low on my total antioxidant function tests ($395 each). I wonder if low copper could be the reason due to it preventing proper copper zinc superoxide dismutase creation.
feb2014 results
[Edited link out]
may 2015 results
[Edited link out]
*note that my immune system (21 yr old) is that of a 60 yr old.
Also, my WBCs are chronically low. I think it relates to me being overloaded with oxalates which causes pyroluria (B6 & zinc deficiency).
The spleen heavily depends on B6. But, low WBCs can also be due to copper deficiency.
Common signs you may have pyroluria:
ever went through a hard emotional trauma?
have white spots on fingernails?
have poor dream recall?
have a chronic infection like lyme disease?
Get whole blood histamine checked as one possible indicator.
Health diagnostics and research institute for testing I think.
I wish I had money to get all of Tryingtohelp2014's recommended tests. I believe EVERYONE here should listen to him and get those done. Look at his signature. Please share your results. I will be getting these done at my next available convenience (it will be months from now unfortunately).
37 minutes ago, macleod said:Hmm, well I think I just found out where we have all been adversely affected...and possibly how. And it's not good. I'll posit a hypothesis soon, maybe in PM or on here...
I have just received an urgent and horrifying news story... We have just discovered when the world is going to end, and its not good.
ok bye.
lol sry man couldnt resist.
Who can recommend the very best all inclusive scientific paper/article - account of accutane.
Any info on Tolomere shortening - not Nathans.
Has anyone ever managed to speak to Dr Doug Bremner. We know he researched and says brain damaged has been caused so possibly no cure.
But we really need to understand what if any research has been carried out looking at all aspects of accutane and the damage it causes.
i know it seems that no doctor have a handle on this but surly there is a doctor who will be intrigued enough to study this.
I am emailing everyoneI can find who might help but not one knows anything about accutane.
We just need one good doctor to look at this and possiby offer some suggestions.
I have had quite a few who are willing to take on patients but I am not wasting money on doctors who clearly have no idea what they are doing.
Thanks
4 hours ago, hatetane said:Who can recommend the very best all inclusive scientific paper/article - account of accutane.
Any info on Tolomere shortening - not Nathans.
Has anyone ever managed to speak to Dr Doug Bremner. We know he researched and says brain damaged has been caused so possibly no cure.
But we really need to understand what if any research has been carried out looking at all aspects of accutane and the damage it causes.i know it seems that no doctor have a handle on this but surly there is a doctor who will be intrigued enough to study this.
I am emailing everyoneI can find who might help but not one knows anything about accutane.
We just need one good doctor to look at this and possiby offer some suggestions.I have had quite a few who are willing to take on patients but I am not wasting money on doctors who clearly have no idea what they are doing.
Thanks
Do any of you guys, (I know this is a difficult one) as reported by the fin/pro guys, feel like you have lost excitement for life. I know depression would mimic this. These claims seem quite specific - is this the same as brain fog or is it something different. And do you all dream normally.
Sorry to always be asking questions.
On 2/27/2016 at 6:20 AM, guitarman01 said:
Thank you for you message! Of course I done search online on wound healing and I watched many videos and I tried different things.. But this one thing you just mentioned looks interesting for me because I missed copper thing. I mean I used Zinc 30g a day for few months.. and I forgot to take extra copper, iron. And this might be very believed I got these minerals deficiency because of Zinc 30g. I wish it would work..
[removed]
20 hours ago, hatetane said:Do any of you guys, (I know this is a difficult one) as reported by the fin/pro guys, feel like you have lost excitement for life. I know depression would mimic this. These claims seem quite specific - is this the same as brain fog or is it something different. And do you all dream normally.
Sorry to always be asking questions.
Of course. I thought for many years that it was an adrenal issue that accutane had caused (and. It very well could be) however recently I am starting to come to a realization that it may be mild depression (I was on for a month). A lot of ppl like to throw around the term depression, but it's quite different from sadness (which is a natural human emotion). Depression is, in my studies and experience, a lack of emotion, rather the inability to feel, even if say a loved one died. It in my case manifests as apathy and a lack of motivation. I can't remember the last time I cried. I have intimate relations with beautiful girls but can't establish a connection as I used to. I just want to shake hands and say goodbye. I feel distanced from society and don't blink and eye when reading tragic news stories. There is a RECENT medical study in vitro where they took hypothalamus cells and exposed them to 13-cis-ra where the cells died. This, in the scientists minds is the clear relation to isotretinoin and depression. Who can really quantify what a human would feel or act like after losing hypothalamus cells. It's egregious.
pretty sure im done with copper. so just moving on down the line here.
This study specifically assessed plasma retinol-binding protein-4 (RBP4), an inflammatory marker
http://www.nutritionjrnl.com/article/S0899-9007(08)00428-0/abstract
Transfatty acid intake, vitamin A intake, and smoking time showed positive and significant correlations with RBP4 concentrations=not good for inflammation
individuals with a higher selenium intake (P= 0.027), non-smoking participants (P= 0.032), and subjects who self-declared to practice some physical activity (P= 0.030) presented significantly lower RBP4 concentrations=less inflammation
Interestingly, selenium intake was inversely and significantly associated with RBP4 concentration
plasma RBP4 values could be a valuable tool to screen potential nutrient and inflammation interactions.
2 hours ago, guitarman01 said:pretty sure im done with copper. so just moving on down the line here.
Dude you need to settle! youre jumping all over the place. promote your own theories, but dont discredit something that might help. you took way too much, too soon.
and btw... you probably did the exact WRONG thing you were supposed to.... before taking the ceruloplasim test without getting a baseline test first...
53 minutes ago, tryingtohelp2014 said:Dude you need to settle! youre jumping all over the place. promote your own theories, but dont discredit something that might help. you took way too much, too soon.and btw... you probably did the exact WRONG thing you were supposed to.... before taking the ceruloplasim test without getting a baseline test first...
How have you been getting on? Are you copper deficient, supplementing and/or feeling better?
1 hour ago, tryingtohelp2014 said:Dude you need to settle! youre jumping all over the place. promote your own theories, but dont discredit something that might help. you took way too much, too soon.and btw... you probably did the exact WRONG thing you were supposed to.... before taking the ceruloplasim test without getting a baseline test first...
yes lol i know im all over the place. but i think things move way to slow on here. thats why anytime i have a thought i just post it. I might contradicte myself but thats going to happen.Im not sticking to one thought but many thoughts.if I come across crazy I dont care we are all alittle crazy on here with this shit we are forced to deal with ourselves.I dont care how nice i word my sentences or how pretty my paragraphs are or how clean my research/googling is. Im not writing a thesis, they are not even theories. im just trying to get anything, any info i come across out as fast as possible.
im just looking at this from a practical standpoint. first of all your blood test and whoever else posted their blood test was maybe a couple points below normal range, meaning results could be insignificant.It surely doesnt seem to indicate a serious copper deficiency. I mean how would a doctor interpret these results? also their is a flip side to every coin and ive also read a study where 3 to 6mg copper per day didnt even have an effect on copper status markers after 6 weeks. and i dont really think i took way too much when 10mg per day is the safe upper limit. and in the case of a real deficiency im sure a higher amount would be called for. it just seemed to have a drying effect on me and my sinuses. hence the nosebleeds, thick mucus. Not discrediting anything, im just going to be looking at other things still. and posting my random thoughts.
Hi there guys, how is it going for you guys?
Has anyone improved or cured themselves yet? Haven't been in for awhile, I can see a lot of new studies tho.
I have been slightly better lately, currently half way of doing a Humaworm cleanse for parasites, the stuff I see in the toilet bowl is just quite disgusting, and no I'm not talking about the poop.
First two days of starting Humaworm I was fine then third day I had the migraine/headache and that very night I was aching all over with cold chills. Yep it's die off, and what's worse was I didn't even have Panadol in my house!
The worse is over I think, I'm feeling better and better each day.
Humaworm is to kill parasites mainly, it helps with controlling candida issues, but I have other protocols lined up to tackle candida, the anti fungals the doctor prescribed wasn't that effective, which is why I decided to tackle my problem at the parasite front.
I feel more energy, colleagues commented that I'm more bubbly and sarcastic, depression gone, I can stay up late if I wanted to before10:30was very late for me already.
Red veins in eyes improving slowly, yellow in eyes improving slowly.
Fatigue and brain fog gone, I feel clearer. Although sometimes it comes back, but I think it has something to do with die off.
It's a 30 day cleanse, think I'm up the 14 days at the moment, repeating the cleanse in three months.
Im thinking maybe just maybe Roaccutane altered something in the body that made all this get out of control.
Copper?
Correct me if I'm wrong, don't they use copper spray on vegetables as a fungicide?
On February 27, 2016 at 8:04 AM, hatetane said:Do any of you guys, (I know this is a difficult one) as reported by the fin/pro guys, feel like you have lost excitement for life. I know depression would mimic this. These claims seem quite specific - is this the same as brain fog or is it something different. And do you all dream normally.
Sorry to always be asking questions.
it's like my body doesn't have the resources to function fully. I don't have motivation because I don't have energy for it. Often I feel lack of energy even in my dreams.
Bifidobacteria. most important type of bacteria in gut from child birth. alot of info here.
2 hours ago, trantran83333 said:Im thinking maybe just maybe Roaccutane altered something in the body that made all this get out of control.
Copper?
Correct me if I'm wrong, don't they use copper spray on vegetables as a fungicide?
these damn parasites! a lot of our symptoms are interchangable with the people that suffer from Lymes.
didnt you say you felt better after going to the beach one day? two others said they 100% cured accutane nightblindness with iodine. you absorb iodine just from being around the ocean mist!
heres an example.. im a big saltwater reef fanatic. the two absolute goto items for reefers when fish or corals get sick are: copper for fish parasites, and iodine for coral bacteria infections! the weirder part is copper is needed to convert iodide into iodine in ourt bodies.
People use Lugols for parasite infections all over the internet.
Malaria is the most significant public health problem in the world with nearly 3.5 billion (1 in 2) people at risk.The malaria parasite absorbs vitamin A and converts it to retinoic acid for its use to invade the red blood cells. Listlessness from anemia in patients is the hallmark symptom of the disease.It has been theorized that hypervitaminosis Afrom a backup of retinoic acid produced by the parasitecauses or exacerbates the symptoms in the person.
On 2/28/2016 at 5:27 PM, macleod said:Of course. I thought for many years that it was an adrenal issue that accutane had caused (and. It very well could be) however recently I am starting to come to a realization that it may be mild depression (I was on for a month). A lot of ppl like to throw around the term depression, but it's quite different from sadness (which is a natural human emotion). Depression is, in my studies and experience, a lack of emotion, rather the inability to feel, even if say a loved one died. It in my case manifests as apathy and a lack of motivation. I can't remember the last time I cried. I have intimate relations with beautiful girls but can't establish a connection as I used to. I just want to shake hands and say goodbye. I feel distanced from society and don't blink and eye when reading tragic news stories. There is a RECENT medical study in vitro where they took hypothalamus cells and exposed them to 13-cis-ra where the cells died. This, in the scientists minds is the clear relation to isotretinoin and depression. Who can really quantify what a human would feel or act like after losing hypothalamus cells. It's egregious.
I still say this is not permanent. ive had plenty of moments post accutane where i felt absolutely great and clear headed, not depressed, feel connections,feel motiviated. but then i get mad because im like where has this been all this time? and then the normal feeling goes away. when i feel good i feel like i could do anything. but when bad i feel like a tortured soul who gets more enjoyment/comfort just being by myself. I think shit is so up and down with us. almost like being bipolar but different. there has to be triggers that we are not aware of yet that make us feel this way.
Pancreatic Insufficiency
there is also this
[Edited link out]
so basically every time we eat something we could start to have problems.
also the amount of enzymes they medically recommend is not easily bought.
Does anyone think the brain fog and other symptoms might just be caused by inflammation and excess mucus production? The other day I was sitting in my room and I felt drainage down the back of my throat and almost simultaneously my brain fog and energy levels improved. I Googled to see if anyone else has experienced this and came across this post.
http://patient.info/forums/discuss/mucus-inflaming-the-brain-is-it-possible--359150
Another thing is those rare days after heavy alcohol consumption when all my symptoms are completely gone I've noticed when my symptoms do come back almost simultaneously my head feels like it is filling up with something (mucus?). I know "binge drinking" blunts the immune system for a period of time which could be the reason why we wake up feeling great.
[Edited link out]
On 2/29/2016 at 11:57 AM, Bobby.Digital said:Does anyone think the brain fog and other symptoms might just be caused by excess mucus production? The other day I was sitting in my room and I felt drainage down the back of my throat and almost simultaneously my brain fog and energy levels improved. I Googled to see if anyone else has experienced this and came across this post.
http://patient.info/forums/discuss/mucus-inflaming-the-brain-is-it-possible--359150
Another thing is those rare days after heavy alcohol consumption when all my symptoms are completely gone I've noticed when my symptoms do come back almost simultaneously my head feels like it is filling up with something (mucus?). I know "binge drinking" blunts the immune system for a period of time which could be the reason why we wake up feeling great.
[Edited link out]
yes. ive basically said this exact same thing. for me the excess mucus gets so bad i get dizzy. its in my ears. used to be just my left now its moved to my right as well. i do have allergies. im taking montelukast atm just started this but i think it is helping. diff nasal steroids seem to help or make things worse. to give a funny example. when the mucus is bad i can drink just a couple beers and feel drunk. when ive been on Nasonex for awhile, I can drink like 6 beers and still feel pretty normal. there is def something going on here. whether its inhaled or brought on by gut problems/deficiencies. antihistamines have also helped but they are all either drying or sedating.
my regimen for the moment is going to montelukast for inflammation, breathing, keeping my nose open. allergies.
align for my yellow tongue that will just not go away
and wait for it copper! lol. this wasnt working too good by itself but im going to pair it with montelukast. you should have seen what came out of my nose earlier. no wonder im having problems. either copper brought this on or pushed it out. it def looked like some infected mucus.